Bendy Bodies with Dr. Linda Bluestein https://www.bendybodiespodcast.com/ en-us © 2026 Human Content, Inc. and Bendy Bodies, LLC. All rights reserved. Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together! https://megaphone.imgix.net/podcasts/342bc2ea-4300-11ef-8b66-df65d463a1a7/image/2e773c85e485118a3edf6363db7100c4.jpg?ixlib=rails-4.3.1&max-w=3000&max-h=3000&fit=crop&auto=format,compress Bendy Bodies with Dr. Linda Bluestein https://www.bendybodiespodcast.com/ no episodic On Hypermobility & Connective Tissue Disorders Dr. Linda Bluestein Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together! Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.

Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!

]]> Dr. Linda Bluestein podcasts@human-content.com Tight Muscles, Loose Joints, Pelvic Pain: The Hypermobility Paradox with Dr. Brooke Winder (Ep 192) In this essential conversation, Dr. Linda Bluestein welcomes pelvic health physical therapist and dance science expert Dr. Brooke Winder to explore the often-hidden intersection of pelvic health, performance, and joint hypermobility. Dr. Winder shares her professional insights and personal history with urinary leakage as a young athlete, shedding light on why over a third of professional dancers and aerialists experience similar symptoms. The discussion unpacks the "hypermobility paradox", where muscles become chronically overactive to compensate for lax ligaments, and how this tension can lead to pelvic pain, incontinence, and sexual dysfunction. From the impact of under-fueling (REDs) to the surprising connection between jaw tension and the pelvic floor, this episode provides a roadmap for athletes and non-athletes alike to "zoom out" and find holistic strategies for recovery and resilience. Takeaways: The Hypermobility Paradox: People with lax connective tissue often have hyperactive pelvic floor muscles that work overtime to provide the stability their ligaments cannot. Prevalence in Performance: Around 34% of professional dancers and 40% of aerialists report urinary leakage, even those who have never been pregnant or given birth. The "Zoom Out" Method: Pelvic health is influenced by the entire body; issues in the jaw (TMJ), neck, and hips can directly contribute to pelvic floor tension and pain. REDs and Incontinence: Low energy availability (under-fueling) can weaken skeletal muscles, including the pelvic floor, and is now recognized as a health consequence of Relative Energy Deficiency in Sport. Autonomic Influence: The pelvic floor is highly responsive to the nervous system; conditions like POTS can trigger bladder urgency and disrupt coordination. Agency in Therapy: Pelvic floor PT does not always require an internal exam; many improvements can be made through external assessment, virtual coaching, and movement strategies Find the episode transcript here. Want more Dr. Brooke Winder? https://www.instagram.com/drbrookewinderpt/ Go to cozyearth.com and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 16 Apr 2026 09:00:00 -0000 full Dr. Linda Bluestein In this essential conversation, Dr. Linda Bluestein welcomes pelvic health physical therapist and dance science expert Dr. Brooke Winder to explore the often-hidden intersection of pelvic health, performance, and joint hypermobility. Dr. Winder shares her professional insights and personal history with urinary leakage as a young athlete, shedding light on why over a third of professional dancers and aerialists experience similar symptoms. The discussion unpacks the "hypermobility paradox", where muscles become chronically overactive to compensate for lax ligaments, and how this tension can lead to pelvic pain, incontinence, and sexual dysfunction. From the impact of under-fueling (REDs) to the surprising connection between jaw tension and the pelvic floor, this episode provides a roadmap for athletes and non-athletes alike to "zoom out" and find holistic strategies for recovery and resilience. Takeaways: The Hypermobility Paradox: People with lax connective tissue often have hyperactive pelvic floor muscles that work overtime to provide the stability their ligaments cannot. Prevalence in Performance: Around 34% of professional dancers and 40% of aerialists report urinary leakage, even those who have never been pregnant or given birth. The "Zoom Out" Method: Pelvic health is influenced by the entire body; issues in the jaw (TMJ), neck, and hips can directly contribute to pelvic floor tension and pain. REDs and Incontinence: Low energy availability (under-fueling) can weaken skeletal muscles, including the pelvic floor, and is now recognized as a health consequence of Relative Energy Deficiency in Sport. Autonomic Influence: The pelvic floor is highly responsive to the nervous system; conditions like POTS can trigger bladder urgency and disrupt coordination. Agency in Therapy: Pelvic floor PT does not always require an internal exam; many improvements can be made through external assessment, virtual coaching, and movement strategies Find the episode transcript here. Want more Dr. Brooke Winder? https://www.instagram.com/drbrookewinderpt/ Go to cozyearth.com and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this essential conversation, Dr. Linda Bluestein welcomes pelvic health physical therapist and dance science expert Dr. Brooke Winder to explore the often-hidden intersection of pelvic health, performance, and joint hypermobility.


Dr. Winder shares her professional insights and personal history with urinary leakage as a young athlete, shedding light on why over a third of professional dancers and aerialists experience similar symptoms. The discussion unpacks the "hypermobility paradox", where muscles become chronically overactive to compensate for lax ligaments, and how this tension can lead to pelvic pain, incontinence, and sexual dysfunction.


From the impact of under-fueling (REDs) to the surprising connection between jaw tension and the pelvic floor, this episode provides a roadmap for athletes and non-athletes alike to "zoom out" and find holistic strategies for recovery and resilience.

Takeaways:


The Hypermobility Paradox: People with lax connective tissue often have hyperactive pelvic floor muscles that work overtime to provide the stability their ligaments cannot.

Prevalence in Performance: Around 34% of professional dancers and 40% of aerialists report urinary leakage, even those who have never been pregnant or given birth.

The "Zoom Out" Method: Pelvic health is influenced by the entire body; issues in the jaw (TMJ), neck, and hips can directly contribute to pelvic floor tension and pain.

REDs and Incontinence: Low energy availability (under-fueling) can weaken skeletal muscles, including the pelvic floor, and is now recognized as a health consequence of Relative Energy Deficiency in Sport.

Autonomic Influence: The pelvic floor is highly responsive to the nervous system; conditions like POTS can trigger bladder urgency and disrupt coordination.

Agency in Therapy: Pelvic floor PT does not always require an internal exam; many improvements can be made through external assessment, virtual coaching, and movement strategies


Find the episode transcript here.


Want more Dr. Brooke Winder?


https://www.instagram.com/drbrookewinderpt/


Go to cozyearth.com and use my Promo Code: BENDYBOGO


Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today!



Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4574 Mast Cells to Microplastics with Dr. Anne Maitland and cohost Dr. Dacre Knight (Ep 191) In this enlightening episode, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight sit down with nationally recognized expert Dr. Anne Maitland to explore a revolutionary perspective on allergic and immune-mediated disorders. Dr. Maitland unpacks the "Epithelial Barrier Hypothesis," explaining how our modernized, industrialized environment, filled with microplastics, "forever chemicals," and processed foods, has essentially "confused" our ancestral defenses. She describes the triad of the epithelial border, the nervous system, and mast cells, illustrating how hypermobile individuals often act as the "canaries in the coal mine" due to their heightened sensory perceptions. The discussion moves beyond traditional allergy testing to address why so many patients suffer from multi-organ symptoms despite negative lab results, offering practical "swaps" and treatment strategies to help quiet a twitchy immune system. Takeaways The Border Under Attack: Modern pollutants like microplastics and harsh cleaners cause "leaky" epithelial barriers in the skin, gut, and lungs, allowing triggers to constantly activate the immune system. The Sensory-Immune Triad: Mast cells sit directly next to somatosensory nerves and blood vessels; when the nerves detect danger, they signal the mast cells to release potent chemicals. "Twitchy" vs. "Broken" Cells: Most patients don't have rare genetic mast cell diseases (broken cells) but rather "Mast Cells Breaking Bad", cells that are over-responding to an increasingly toxic environment. EDS and Hypersensitivity: There is a high correlation between being "bendy" and being hypersensitive, as proprioceptive deficits can keep the nervous system and thus the mast cells in a state of high alert. Practical Swaps for Stability: Simple changes like wearing cotton, using glass storage, and avoiding processed foods (emulsifiers) can significantly reduce the "insults" to your epithelial barriers. Find the episode transcript here. Want more Dr. Anne Maitland? https://x.com/asktheallergist Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 Apr 2026 09:00:00 -0000 full Dr. Linda Bluestein In this enlightening episode, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight sit down with nationally recognized expert Dr. Anne Maitland to explore a revolutionary perspective on allergic and immune-mediated disorders. Dr. Maitland unpacks the "Epithelial Barrier Hypothesis," explaining how our modernized, industrialized environment, filled with microplastics, "forever chemicals," and processed foods, has essentially "confused" our ancestral defenses. She describes the triad of the epithelial border, the nervous system, and mast cells, illustrating how hypermobile individuals often act as the "canaries in the coal mine" due to their heightened sensory perceptions. The discussion moves beyond traditional allergy testing to address why so many patients suffer from multi-organ symptoms despite negative lab results, offering practical "swaps" and treatment strategies to help quiet a twitchy immune system. Takeaways The Border Under Attack: Modern pollutants like microplastics and harsh cleaners cause "leaky" epithelial barriers in the skin, gut, and lungs, allowing triggers to constantly activate the immune system. The Sensory-Immune Triad: Mast cells sit directly next to somatosensory nerves and blood vessels; when the nerves detect danger, they signal the mast cells to release potent chemicals. "Twitchy" vs. "Broken" Cells: Most patients don't have rare genetic mast cell diseases (broken cells) but rather "Mast Cells Breaking Bad", cells that are over-responding to an increasingly toxic environment. EDS and Hypersensitivity: There is a high correlation between being "bendy" and being hypersensitive, as proprioceptive deficits can keep the nervous system and thus the mast cells in a state of high alert. Practical Swaps for Stability: Simple changes like wearing cotton, using glass storage, and avoiding processed foods (emulsifiers) can significantly reduce the "insults" to your epithelial barriers. Find the episode transcript here. Want more Dr. Anne Maitland? https://x.com/asktheallergist Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this enlightening episode, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight sit down with nationally recognized expert Dr. Anne Maitland to explore a revolutionary perspective on allergic and immune-mediated disorders.


Dr. Maitland unpacks the "Epithelial Barrier Hypothesis," explaining how our modernized, industrialized environment, filled with microplastics, "forever chemicals," and processed foods, has essentially "confused" our ancestral defenses. She describes the triad of the epithelial border, the nervous system, and mast cells, illustrating how hypermobile individuals often act as the "canaries in the coal mine" due to their heightened sensory perceptions.


The discussion moves beyond traditional allergy testing to address why so many patients suffer from multi-organ symptoms despite negative lab results, offering practical "swaps" and treatment strategies to help quiet a twitchy immune system.

Takeaways


The Border Under Attack: Modern pollutants like microplastics and harsh cleaners cause "leaky" epithelial barriers in the skin, gut, and lungs, allowing triggers to constantly activate the immune system.

The Sensory-Immune Triad: Mast cells sit directly next to somatosensory nerves and blood vessels; when the nerves detect danger, they signal the mast cells to release potent chemicals.

"Twitchy" vs. "Broken" Cells: Most patients don't have rare genetic mast cell diseases (broken cells) but rather "Mast Cells Breaking Bad", cells that are over-responding to an increasingly toxic environment.

EDS and Hypersensitivity: There is a high correlation between being "bendy" and being hypersensitive, as proprioceptive deficits can keep the nervous system and thus the mast cells in a state of high alert.

Practical Swaps for Stability: Simple changes like wearing cotton, using glass storage, and avoiding processed foods (emulsifiers) can significantly reduce the "insults" to your epithelial barriers.


Find the episode transcript here.


Want more Dr. Anne Maitland?


https://x.com/asktheallergist


Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today!


Want to learn more about the UVA EDS Center?



For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health



Want more Dr. Dacre Knight?

https://x.com/knidac




Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 5135 Validation and Empowerment: What EDS Patients Need to Know | Office Hours (Ep 190) In this listener-inspired episode, Dr. Linda Bluestein is joined by producer Aron from Human Content to address the fundamental truths she wishes every patient knew about hypermobility. Together, they explore the "invisible" yet highly visible nature of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), providing a roadmap to help patients stop gaslighting themselves and start advocating for better care. Dr. Bluestein breaks down complex concepts like central sensitization and the "sympathetic overdrive" often experienced by bendy bodies, while offering practical strategies for organizing medical documents and communicating effectively with practitioners. From debunking the myth of "growing pains" in teenagers to identifying environmental mast cell triggers, this conversation is a masterclass in shifting from a mindset of anxiety to one of curious, proactive detection. Takeaways: You Are Not Imagining It: Learn why hypermobility symptoms like pain, fatigue, and brain fog are frequently dismissed and how to validate your own physiological experience. The Interconnected Body: Understand how connective tissue disorders affect nearly every system, from gut motility to the "dishwasher of the brain" known as the glymphatic system. The "Reporter" Mindset: Discover how to present your symptoms objectively to doctors to avoid having physical complaints misattributed solely to anxiety. The HSD/hEDS Distinction: Clarify the differences between hypermobile EDS and hypermobility spectrum disorders, including the current reality of genetic testing. Mast Cells as the First Domino: Explore why stabilizing mast cells can have widespread benefits across the GI tract, skin, and nervous system Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 02 Apr 2026 09:00:00 -0000 full Dr. Linda Bluestein In this listener-inspired episode, Dr. Linda Bluestein is joined by producer Aron from Human Content to address the fundamental truths she wishes every patient knew about hypermobility. Together, they explore the "invisible" yet highly visible nature of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), providing a roadmap to help patients stop gaslighting themselves and start advocating for better care. Dr. Bluestein breaks down complex concepts like central sensitization and the "sympathetic overdrive" often experienced by bendy bodies, while offering practical strategies for organizing medical documents and communicating effectively with practitioners. From debunking the myth of "growing pains" in teenagers to identifying environmental mast cell triggers, this conversation is a masterclass in shifting from a mindset of anxiety to one of curious, proactive detection. Takeaways: You Are Not Imagining It: Learn why hypermobility symptoms like pain, fatigue, and brain fog are frequently dismissed and how to validate your own physiological experience. The Interconnected Body: Understand how connective tissue disorders affect nearly every system, from gut motility to the "dishwasher of the brain" known as the glymphatic system. The "Reporter" Mindset: Discover how to present your symptoms objectively to doctors to avoid having physical complaints misattributed solely to anxiety. The HSD/hEDS Distinction: Clarify the differences between hypermobile EDS and hypermobility spectrum disorders, including the current reality of genetic testing. Mast Cells as the First Domino: Explore why stabilizing mast cells can have widespread benefits across the GI tract, skin, and nervous system Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this listener-inspired episode, Dr. Linda Bluestein is joined by producer Aron from Human Content to address the fundamental truths she wishes every patient knew about hypermobility. Together, they explore the "invisible" yet highly visible nature of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), providing a roadmap to help patients stop gaslighting themselves and start advocating for better care.


Dr. Bluestein breaks down complex concepts like central sensitization and the "sympathetic overdrive" often experienced by bendy bodies, while offering practical strategies for organizing medical documents and communicating effectively with practitioners. From debunking the myth of "growing pains" in teenagers to identifying environmental mast cell triggers, this conversation is a masterclass in shifting from a mindset of anxiety to one of curious, proactive detection.

Takeaways:


You Are Not Imagining It: Learn why hypermobility symptoms like pain, fatigue, and brain fog are frequently dismissed and how to validate your own physiological experience.



The Interconnected Body: Understand how connective tissue disorders affect nearly every system, from gut motility to the "dishwasher of the brain" known as the glymphatic system.



The "Reporter" Mindset: Discover how to present your symptoms objectively to doctors to avoid having physical complaints misattributed solely to anxiety.



The HSD/hEDS Distinction: Clarify the differences between hypermobile EDS and hypermobility spectrum disorders, including the current reality of genetic testing.



Mast Cells as the First Domino: Explore why stabilizing mast cells can have widespread benefits across the GI tract, skin, and nervous system


Find the episode transcript here.


Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today!


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 3538 Eyes Problems in EDS with Dr. Eric Singman and cohost Dr. Dacre Knight (Ep 189) In this highly requested follow-up, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight welcome back neuro-ophthalmologist Dr. Eric Singman to dive deeper into the complex intersection of the eyes, the brain, and Ehlers-Danlos syndrome.  Dr. Singman shares a vital triage guide for navigating the world of eye specialists, helping listeners distinguish between routine vision needs and neuro-ophthalmic emergencies. The discussion explores how intracranial pressure fluctuations, cervical spine instability, and mast cell activation can all masquerade as primary eye problems, often leading patients down expensive and ineffective "snake oil" paths.  Whether you struggle with reading endurance, "glitter" vision, or the visual impacts of POTS, this episode provides a roadmap for finding credible care and understanding the "why" behind hypermobile vision symptoms. Takeaways: The Specialty Triage: Learn how to determine if you need a retina specialist, a cornea expert, or a neuro-ophthalmologist for new or chronic symptoms. Reading Hygiene and the Neck: Discover why your "bad neck" might be the true culprit behind reading fatigue and eye strain. The Pressure Spectrum: Understand how individuals with EDS can experience both high and low intracranial pressure, and why a "normal" spinal tap might be misleading. The "Bandaid" of Prisms: Dr. Singman explains why prisms are a temporary measure and why prescribing them without a diagnosis can be dangerous. Spotting Snake Oil: Identify the red flags of vision therapies that lack clinical data and primarily target the patient's pocketbook. Find the episode transcript here. Want more Dr. Eric Singman?https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Want to learn more about the UVA EDS Center?For Appointments and Questions: RUVAEDSCenter@uvahealth.orgUVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinicUVA EDS FAQ: https://www.uvahealth.com/support/eds/faqUVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-healthWant more Dr. Dacre Knight?https://x.com/knidac Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 Mar 2026 09:00:00 -0000 full Dr. Linda Bluestein In this highly requested follow-up, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight welcome back neuro-ophthalmologist Dr. Eric Singman to dive deeper into the complex intersection of the eyes, the brain, and Ehlers-Danlos syndrome.  Dr. Singman shares a vital triage guide for navigating the world of eye specialists, helping listeners distinguish between routine vision needs and neuro-ophthalmic emergencies. The discussion explores how intracranial pressure fluctuations, cervical spine instability, and mast cell activation can all masquerade as primary eye problems, often leading patients down expensive and ineffective "snake oil" paths.  Whether you struggle with reading endurance, "glitter" vision, or the visual impacts of POTS, this episode provides a roadmap for finding credible care and understanding the "why" behind hypermobile vision symptoms. Takeaways: The Specialty Triage: Learn how to determine if you need a retina specialist, a cornea expert, or a neuro-ophthalmologist for new or chronic symptoms. Reading Hygiene and the Neck: Discover why your "bad neck" might be the true culprit behind reading fatigue and eye strain. The Pressure Spectrum: Understand how individuals with EDS can experience both high and low intracranial pressure, and why a "normal" spinal tap might be misleading. The "Bandaid" of Prisms: Dr. Singman explains why prisms are a temporary measure and why prescribing them without a diagnosis can be dangerous. Spotting Snake Oil: Identify the red flags of vision therapies that lack clinical data and primarily target the patient's pocketbook. Find the episode transcript here. Want more Dr. Eric Singman?https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Want to learn more about the UVA EDS Center?For Appointments and Questions: RUVAEDSCenter@uvahealth.orgUVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinicUVA EDS FAQ: https://www.uvahealth.com/support/eds/faqUVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-healthWant more Dr. Dacre Knight?https://x.com/knidac Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. Learn more about your ad choices. Visit megaphone.fm/adchoices In this highly requested follow-up, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight welcome back neuro-ophthalmologist Dr. Eric Singman to dive deeper into the complex intersection of the eyes, the brain, and Ehlers-Danlos syndrome. 

Dr. Singman shares a vital triage guide for navigating the world of eye specialists, helping listeners distinguish between routine vision needs and neuro-ophthalmic emergencies. The discussion explores how intracranial pressure fluctuations, cervical spine instability, and mast cell activation can all masquerade as primary eye problems, often leading patients down expensive and ineffective "snake oil" paths. 

Whether you struggle with reading endurance, "glitter" vision, or the visual impacts of POTS, this episode provides a roadmap for finding credible care and understanding the "why" behind hypermobile vision symptoms.


Takeaways:

  • The Specialty Triage: Learn how to determine if you need a retina specialist, a cornea expert, or a neuro-ophthalmologist for new or chronic symptoms.


  • Reading Hygiene and the Neck: Discover why your "bad neck" might be the true culprit behind reading fatigue and eye strain.


  • The Pressure Spectrum: Understand how individuals with EDS can experience both high and low intracranial pressure, and why a "normal" spinal tap might be misleading.


  • The "Bandaid" of Prisms: Dr. Singman explains why prisms are a temporary measure and why prescribing them without a diagnosis can be dangerous.


  • Spotting Snake Oil: Identify the red flags of vision therapies that lack clinical data and primarily target the patient's pocketbook.

Find the episode transcript here.


Want more Dr. Eric Singman?
https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804


Want to learn more about the UVA EDS Center?
For Appointments and Questions: RUVAEDSCenter@uvahealth.org
UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic
UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq
UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health
Want more Dr. Dacre Knight?
https://x.com/knidac


Want more Dr. Linda Bluestein, MD?
Website:  https://www.hypermobilitymd.com/
YouTube: https://www.youtube.com/@bendybodiespodcast
Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠
Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠
X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠
LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠
Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/
Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd
Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠

Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

Part of the Human Content Podcast Network

FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4443 Arachnoiditis: The Severe Pain Condition Doctors Miss with Dr. Forest Tennant (Ep 188) Severe back pain that refuses to respond to treatment may sometimes have a far more serious cause than most people realize. In this episode of Bendy Bodies, Dr. Linda Bluestein speaks with Dr. Forest Tennant, a longtime physician and researcher who has spent decades studying adhesive arachnoiditis, a rare but devastating inflammatory condition affecting the nerves in the lower spinal canal. Often misunderstood and frequently missed, arachnoiditis can cause extreme pain, neurologic dysfunction, and progressive disability. Dr. Tennant explains what the arachnoid membrane is, how inflammation can cause nerve roots to clump together, and why people with connective tissue disorders like Ehlers-Danlos syndrome may be at higher risk. The conversation explores common triggers, including spinal procedures and surgeries, along with the symptom patterns that may signal something more serious than typical back pain. The episode also dives into emerging treatment strategies, including anti-inflammatory protocols, neuroprotective therapies, peptides, and newer approaches aimed at reducing nerve inflammation and supporting tissue repair. For patients living with unexplained severe back pain, and clinicians searching for answers, this episode sheds light on a condition that remains widely underrecognized but increasingly understood. Takeaways: Adhesive arachnoiditis is an inflammatory condition affecting the arachnoid membrane in the spinal canal, which can cause nerve roots to stick together and disrupt nerve signaling. Severe back pain that doesn’t respond to typical treatments may be a red flag, particularly when symptoms worsen with sitting or include unusual skin sensations like crawling or dripping. People with connective tissue disorders such as Ehlers-Danlos syndrome may have an increased risk due to underlying collagen abnormalities. Early recognition and treatment targeting inflammation and nerve health may help prevent progression, making awareness critical for both patients and clinicians. Effective pain management is essential because poorly controlled, high-impact chronic pain can significantly affect both quality of life and overall health over time. Find the episode transcript here. Want more Dr. Forest Tennant? https://arachnoiditishope.com/ Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Mar 2026 09:00:00 -0000 full Dr. Linda Bluestein Severe back pain that refuses to respond to treatment may sometimes have a far more serious cause than most people realize. In this episode of Bendy Bodies, Dr. Linda Bluestein speaks with Dr. Forest Tennant, a longtime physician and researcher who has spent decades studying adhesive arachnoiditis, a rare but devastating inflammatory condition affecting the nerves in the lower spinal canal. Often misunderstood and frequently missed, arachnoiditis can cause extreme pain, neurologic dysfunction, and progressive disability. Dr. Tennant explains what the arachnoid membrane is, how inflammation can cause nerve roots to clump together, and why people with connective tissue disorders like Ehlers-Danlos syndrome may be at higher risk. The conversation explores common triggers, including spinal procedures and surgeries, along with the symptom patterns that may signal something more serious than typical back pain. The episode also dives into emerging treatment strategies, including anti-inflammatory protocols, neuroprotective therapies, peptides, and newer approaches aimed at reducing nerve inflammation and supporting tissue repair. For patients living with unexplained severe back pain, and clinicians searching for answers, this episode sheds light on a condition that remains widely underrecognized but increasingly understood. Takeaways: Adhesive arachnoiditis is an inflammatory condition affecting the arachnoid membrane in the spinal canal, which can cause nerve roots to stick together and disrupt nerve signaling. Severe back pain that doesn’t respond to typical treatments may be a red flag, particularly when symptoms worsen with sitting or include unusual skin sensations like crawling or dripping. People with connective tissue disorders such as Ehlers-Danlos syndrome may have an increased risk due to underlying collagen abnormalities. Early recognition and treatment targeting inflammation and nerve health may help prevent progression, making awareness critical for both patients and clinicians. Effective pain management is essential because poorly controlled, high-impact chronic pain can significantly affect both quality of life and overall health over time. Find the episode transcript here. Want more Dr. Forest Tennant? https://arachnoiditishope.com/ Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Severe back pain that refuses to respond to treatment may sometimes have a far more serious cause than most people realize. In this episode of Bendy Bodies, Dr. Linda Bluestein speaks with Dr. Forest Tennant, a longtime physician and researcher who has spent decades studying adhesive arachnoiditis, a rare but devastating inflammatory condition affecting the nerves in the lower spinal canal. Often misunderstood and frequently missed, arachnoiditis can cause extreme pain, neurologic dysfunction, and progressive disability.


Dr. Tennant explains what the arachnoid membrane is, how inflammation can cause nerve roots to clump together, and why people with connective tissue disorders like Ehlers-Danlos syndrome may be at higher risk. The conversation explores common triggers, including spinal procedures and surgeries, along with the symptom patterns that may signal something more serious than typical back pain.


The episode also dives into emerging treatment strategies, including anti-inflammatory protocols, neuroprotective therapies, peptides, and newer approaches aimed at reducing nerve inflammation and supporting tissue repair.

For patients living with unexplained severe back pain, and clinicians searching for answers, this episode sheds light on a condition that remains widely underrecognized but increasingly understood.




Takeaways:


Adhesive arachnoiditis is an inflammatory condition affecting the arachnoid membrane in the spinal canal, which can cause nerve roots to stick together and disrupt nerve signaling.


Severe back pain that doesn’t respond to typical treatments may be a red flag, particularly when symptoms worsen with sitting or include unusual skin sensations like crawling or dripping.


People with connective tissue disorders such as Ehlers-Danlos syndrome may have an increased risk due to underlying collagen abnormalities.


Early recognition and treatment targeting inflammation and nerve health may help prevent progression, making awareness critical for both patients and clinicians.


Effective pain management is essential because poorly controlled, high-impact chronic pain can significantly affect both quality of life and overall health over time.


Find the episode transcript here.


Want more Dr. Forest Tennant?


https://arachnoiditishope.com/


Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today!


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health






Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4316 Lifestyle Factors That Truly Change EDS Outcomes with Dr. Ina Stephens (Ep 187) When living with Ehlers-Danlos Syndrome and hypermobility disorders, medications alone rarely resolve all the symptoms. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens, integrative medicine specialist and Associate Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about how lifestyle medicine, nervous system regulation, and whole-body care can dramatically influence outcomes for people with connective tissue disorders.Dr. Stephens explains how her background in infectious disease, vaccinology, and complex care led her to recognize patterns across seemingly unrelated symptoms and why listening deeply to patients often reveals the underlying problem. The discussion explores how nutrition, gut health, vagal nerve tone, sleep quality, and gradual strength building all influence inflammation, fatigue, and autonomic dysfunction in EDS.The episode also dives into the science of the microbiome, why small lifestyle shifts can produce meaningful physiologic change, and how integrative medicine expands the treatment toolbox beyond traditional Western approaches. For patients navigating complex symptoms, and clinicians caring for them, this conversation offers a thoughtful reminder that healing often happens through steady, strategic steps rather than quick fixes. Takeaways: There is rarely a single “magic” treatment for EDS, POTS, or MCAS.  Progress usually comes from strategic sequencing. Overtreating symptoms without addressing underlying patterns can create long-term setbacks. Physical therapy must be individualized in hypermobility, with an emphasis on pacing and trust. Shared decision-making improves outcomes, especially when treatment goals align with what brings the patient meaning and quality of life. Minimally disruptive medicine matters, reducing cognitive, financial, and physical treatment burden is part of effective care. Find the episode transcript here. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Mar 2026 09:00:00 -0000 full Dr. Linda Bluestein When living with Ehlers-Danlos Syndrome and hypermobility disorders, medications alone rarely resolve all the symptoms. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens, integrative medicine specialist and Associate Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about how lifestyle medicine, nervous system regulation, and whole-body care can dramatically influence outcomes for people with connective tissue disorders.Dr. Stephens explains how her background in infectious disease, vaccinology, and complex care led her to recognize patterns across seemingly unrelated symptoms and why listening deeply to patients often reveals the underlying problem. The discussion explores how nutrition, gut health, vagal nerve tone, sleep quality, and gradual strength building all influence inflammation, fatigue, and autonomic dysfunction in EDS.The episode also dives into the science of the microbiome, why small lifestyle shifts can produce meaningful physiologic change, and how integrative medicine expands the treatment toolbox beyond traditional Western approaches. For patients navigating complex symptoms, and clinicians caring for them, this conversation offers a thoughtful reminder that healing often happens through steady, strategic steps rather than quick fixes. Takeaways: There is rarely a single “magic” treatment for EDS, POTS, or MCAS.  Progress usually comes from strategic sequencing. Overtreating symptoms without addressing underlying patterns can create long-term setbacks. Physical therapy must be individualized in hypermobility, with an emphasis on pacing and trust. Shared decision-making improves outcomes, especially when treatment goals align with what brings the patient meaning and quality of life. Minimally disruptive medicine matters, reducing cognitive, financial, and physical treatment burden is part of effective care. Find the episode transcript here. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices When living with Ehlers-Danlos Syndrome and hypermobility disorders, medications alone rarely resolve all the symptoms. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens, integrative medicine specialist and Associate Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about how lifestyle medicine, nervous system regulation, and whole-body care can dramatically influence outcomes for people with connective tissue disorders.
Dr. Stephens explains how her background in infectious disease, vaccinology, and complex care led her to recognize patterns across seemingly unrelated symptoms and why listening deeply to patients often reveals the underlying problem. The discussion explores how nutrition, gut health, vagal nerve tone, sleep quality, and gradual strength building all influence inflammation, fatigue, and autonomic dysfunction in EDS.
The episode also dives into the science of the microbiome, why small lifestyle shifts can produce meaningful physiologic change, and how integrative medicine expands the treatment toolbox beyond traditional Western approaches. For patients navigating complex symptoms, and clinicians caring for them, this conversation offers a thoughtful reminder that healing often happens through steady, strategic steps rather than quick fixes.


Takeaways:


There is rarely a single “magic” treatment for EDS, POTS, or MCAS.  Progress usually comes from strategic sequencing.


Overtreating symptoms without addressing underlying patterns can create long-term setbacks.


Physical therapy must be individualized in hypermobility, with an emphasis on pacing and trust.


Shared decision-making improves outcomes, especially when treatment goals align with what brings the patient meaning and quality of life.


Minimally disruptive medicine matters, reducing cognitive, financial, and physical treatment burden is part of effective care.


Find the episode transcript here.


Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 5164 What to Treat First When Everything Is Flaring with Dr. Dacre Knight (Ep 186) There is no magic treatment for Ehlers-Danlos Syndrome, POTS, or mast cell activation disorders, but there is strategy. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dacre Knight, MD, founding Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a practical and deeply thoughtful conversation about how complex chronic conditions should actually be treated. Rather than chasing quick fixes, Dr. Bluestein and Dr. Knight explore sequencing. What to address first when everything is flaring, how to balance short-term symptom relief with long-term sustainability, and why overtreatment can sometimes cause more harm than good. They discuss the pitfalls of siloed care, the insurance barriers that complicate physical therapy, and the importance of starting low, going slow, and minimizing treatment burden. The episode also tackles difficult but essential questions: What does “getting better” really mean in lifelong connective tissue disorders? How do clinicians avoid reactionary prescribing? And how can patients recognize the difference between a thoughtful care plan and a rushed one? Takeaways: There is rarely a single “magic” treatment for EDS, POTS, or MCAS—progress usually comes from strategic sequencing. Overtreating symptoms without addressing underlying patterns can create long-term setbacks. Physical therapy must be individualized in hypermobility, with an emphasis on pacing and trust. Shared decision-making improves outcomes, especially when treatment goals align with what brings the patient meaning and quality of life. Minimally disruptive medicine matters, reducing cognitive, financial, and physical treatment burden is part of effective care. Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Mar 2026 10:00:00 -0000 full Dr. Linda Bluestein There is no magic treatment for Ehlers-Danlos Syndrome, POTS, or mast cell activation disorders, but there is strategy. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dacre Knight, MD, founding Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a practical and deeply thoughtful conversation about how complex chronic conditions should actually be treated. Rather than chasing quick fixes, Dr. Bluestein and Dr. Knight explore sequencing. What to address first when everything is flaring, how to balance short-term symptom relief with long-term sustainability, and why overtreatment can sometimes cause more harm than good. They discuss the pitfalls of siloed care, the insurance barriers that complicate physical therapy, and the importance of starting low, going slow, and minimizing treatment burden. The episode also tackles difficult but essential questions: What does “getting better” really mean in lifelong connective tissue disorders? How do clinicians avoid reactionary prescribing? And how can patients recognize the difference between a thoughtful care plan and a rushed one? Takeaways: There is rarely a single “magic” treatment for EDS, POTS, or MCAS—progress usually comes from strategic sequencing. Overtreating symptoms without addressing underlying patterns can create long-term setbacks. Physical therapy must be individualized in hypermobility, with an emphasis on pacing and trust. Shared decision-making improves outcomes, especially when treatment goals align with what brings the patient meaning and quality of life. Minimally disruptive medicine matters, reducing cognitive, financial, and physical treatment burden is part of effective care. Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices There is no magic treatment for Ehlers-Danlos Syndrome, POTS, or mast cell activation disorders, but there is strategy. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dacre Knight, MD, founding Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a practical and deeply thoughtful conversation about how complex chronic conditions should actually be treated.

Rather than chasing quick fixes, Dr. Bluestein and Dr. Knight explore sequencing. What to address first when everything is flaring, how to balance short-term symptom relief with long-term sustainability, and why overtreatment can sometimes cause more harm than good. They discuss the pitfalls of siloed care, the insurance barriers that complicate physical therapy, and the importance of starting low, going slow, and minimizing treatment burden.

The episode also tackles difficult but essential questions: What does “getting better” really mean in lifelong connective tissue disorders? How do clinicians avoid reactionary prescribing? And how can patients recognize the difference between a thoughtful care plan and a rushed one?



Takeaways:


There is rarely a single “magic” treatment for EDS, POTS, or MCAS—progress usually comes from strategic sequencing.


Overtreating symptoms without addressing underlying patterns can create long-term setbacks.


Physical therapy must be individualized in hypermobility, with an emphasis on pacing and trust.


Shared decision-making improves outcomes, especially when treatment goals align with what brings the patient meaning and quality of life.


Minimally disruptive medicine matters, reducing cognitive, financial, and physical treatment burden is part of effective care.


Find the episode transcript here.


Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health


Want more Dr. Dacre Knight?

https://x.com/knidac


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4613 When POTS Isn’t the Whole Story: What Doctors Often Miss | Office Hours (Ep 185) POTS is a real diagnosis, but it isn’t always the whole story. In this episode of Bendy Bodies, Dr. Linda Bluestein takes a deep dive into POTS imitators: conditions that can mimic, worsen, or coexist with postural orthostatic tachycardia syndrome and quietly derail treatment progress. Inspired by listener questions and real-world clinical patterns, the episode explores why some people do “everything right” for POTS and still don’t improve.The conversation breaks down overlooked contributors like nutrient deficiencies (including pernicious anemia and thiamine deficiency), endocrine and hormonal conditions, mast cell activation, medication effects, sleep disorders, post-infectious syndromes, and neurologic or autoimmune drivers. Dr. Bluestein explains how normal labs can be misleading, why symptoms often appear before classic test abnormalities, and how multiple factors can converge on the same autonomic pathway.Rather than encouraging self-diagnosis, this episode offers a framework for asking better questions, helping listeners recognize red flags, avoid medical ping-pong, and advocate thoughtfully without overwhelming themselves or their clinicians. For anyone living with POTS symptoms that don’t fully respond to treatment, this episode provides clarity, context, and a more nuanced way forward. Takeaways: POTS is a pattern, not always a root cause, and multiple conditions can drive the same autonomic symptoms. Normal routine labs do not rule out nutrient deficiencies, including B12 or thiamine deficiency. Hormonal, endocrine, mast cell, and neurologic factors frequently overlap, complicating diagnosis and treatment. Symptoms that persist despite appropriate POTS care are a signal to look deeper, not push harder. Thoughtful pacing and prioritization matter, helping patients avoid burnout while still advocating effectively. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 Feb 2026 10:00:00 -0000 full Dr. Linda Bluestein POTS is a real diagnosis, but it isn’t always the whole story. In this episode of Bendy Bodies, Dr. Linda Bluestein takes a deep dive into POTS imitators: conditions that can mimic, worsen, or coexist with postural orthostatic tachycardia syndrome and quietly derail treatment progress. Inspired by listener questions and real-world clinical patterns, the episode explores why some people do “everything right” for POTS and still don’t improve.The conversation breaks down overlooked contributors like nutrient deficiencies (including pernicious anemia and thiamine deficiency), endocrine and hormonal conditions, mast cell activation, medication effects, sleep disorders, post-infectious syndromes, and neurologic or autoimmune drivers. Dr. Bluestein explains how normal labs can be misleading, why symptoms often appear before classic test abnormalities, and how multiple factors can converge on the same autonomic pathway.Rather than encouraging self-diagnosis, this episode offers a framework for asking better questions, helping listeners recognize red flags, avoid medical ping-pong, and advocate thoughtfully without overwhelming themselves or their clinicians. For anyone living with POTS symptoms that don’t fully respond to treatment, this episode provides clarity, context, and a more nuanced way forward. Takeaways: POTS is a pattern, not always a root cause, and multiple conditions can drive the same autonomic symptoms. Normal routine labs do not rule out nutrient deficiencies, including B12 or thiamine deficiency. Hormonal, endocrine, mast cell, and neurologic factors frequently overlap, complicating diagnosis and treatment. Symptoms that persist despite appropriate POTS care are a signal to look deeper, not push harder. Thoughtful pacing and prioritization matter, helping patients avoid burnout while still advocating effectively. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices POTS is a real diagnosis, but it isn’t always the whole story. In this episode of Bendy Bodies, Dr. Linda Bluestein takes a deep dive into POTS imitators: conditions that can mimic, worsen, or coexist with postural orthostatic tachycardia syndrome and quietly derail treatment progress. Inspired by listener questions and real-world clinical patterns, the episode explores why some people do “everything right” for POTS and still don’t improve.
The conversation breaks down overlooked contributors like nutrient deficiencies (including pernicious anemia and thiamine deficiency), endocrine and hormonal conditions, mast cell activation, medication effects, sleep disorders, post-infectious syndromes, and neurologic or autoimmune drivers. Dr. Bluestein explains how normal labs can be misleading, why symptoms often appear before classic test abnormalities, and how multiple factors can converge on the same autonomic pathway.
Rather than encouraging self-diagnosis, this episode offers a framework for asking better questions, helping listeners recognize red flags, avoid medical ping-pong, and advocate thoughtfully without overwhelming themselves or their clinicians.

For anyone living with POTS symptoms that don’t fully respond to treatment, this episode provides clarity, context, and a more nuanced way forward.


Takeaways:


POTS is a pattern, not always a root cause, and multiple conditions can drive the same autonomic symptoms.


Normal routine labs do not rule out nutrient deficiencies, including B12 or thiamine deficiency.


Hormonal, endocrine, mast cell, and neurologic factors frequently overlap, complicating diagnosis and treatment.


Symptoms that persist despite appropriate POTS care are a signal to look deeper, not push harder.



Thoughtful pacing and prioritization matter, helping patients avoid burnout while still advocating effectively.


Find the episode transcript here.


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health




Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 3800 Why Doctors Miss EDS, POTS, and MCAS with Dr. Dacre Knight (Ep 184) Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about why complex, multisystem conditions continue to fall through the cracks of modern medicine. Together, they explore how siloed healthcare systems, time-limited visits, and overreliance on “normal” labs and imaging contribute to years of delayed diagnosis and unnecessary suffering. The discussion unpacks why patients are often labeled as anxious, functional, or “too complex,” how pattern recognition breaks down when symptoms span multiple systems, and why early diagnosis could prevent much of the downstream complexity clinicians later struggle to manage. Dr. Knight also explains how diagnostic frameworks like the EDS–POTS–MCAS triad can be helpful and where they risk oversimplifying reality. This episode offers a candid look at the gaps in current diagnostic thinking and a more thoughtful, patient-centered approach to evaluating complex chronic illness, one that prioritizes listening, curiosity, and clinical humility. Takeaways: When diagnosis is delayed, complexity isn’t inevitable — it’s created. “Normal” tests don’t mean normal lives. Pain, fatigue, and dysfunction can exist long before labs catch up. Many patients aren’t anxious until they’re repeatedly dismissed. Mislabeling symptoms often becomes the real diagnosis delay. Multisystem conditions don’t reveal themselves through checklists — they emerge through patterns clinicians are trained to overlook. Sometimes the most powerful intervention isn’t a test or a treatment — it’s listening earlier, longer, and with curiosity. Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Feb 2026 10:00:00 -0000 full Dr. Linda Bluestein Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about why complex, multisystem conditions continue to fall through the cracks of modern medicine. Together, they explore how siloed healthcare systems, time-limited visits, and overreliance on “normal” labs and imaging contribute to years of delayed diagnosis and unnecessary suffering. The discussion unpacks why patients are often labeled as anxious, functional, or “too complex,” how pattern recognition breaks down when symptoms span multiple systems, and why early diagnosis could prevent much of the downstream complexity clinicians later struggle to manage. Dr. Knight also explains how diagnostic frameworks like the EDS–POTS–MCAS triad can be helpful and where they risk oversimplifying reality. This episode offers a candid look at the gaps in current diagnostic thinking and a more thoughtful, patient-centered approach to evaluating complex chronic illness, one that prioritizes listening, curiosity, and clinical humility. Takeaways: When diagnosis is delayed, complexity isn’t inevitable — it’s created. “Normal” tests don’t mean normal lives. Pain, fatigue, and dysfunction can exist long before labs catch up. Many patients aren’t anxious until they’re repeatedly dismissed. Mislabeling symptoms often becomes the real diagnosis delay. Multisystem conditions don’t reveal themselves through checklists — they emerge through patterns clinicians are trained to overlook. Sometimes the most powerful intervention isn’t a test or a treatment — it’s listening earlier, longer, and with curiosity. Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about why complex, multisystem conditions continue to fall through the cracks of modern medicine. Together, they explore how siloed healthcare systems, time-limited visits, and overreliance on “normal” labs and imaging contribute to years of delayed diagnosis and unnecessary suffering.


The discussion unpacks why patients are often labeled as anxious, functional, or “too complex,” how pattern recognition breaks down when symptoms span multiple systems, and why early diagnosis could prevent much of the downstream complexity clinicians later struggle to manage. Dr. Knight also explains how diagnostic frameworks like the EDS–POTS–MCAS triad can be helpful and where they risk oversimplifying reality.


This episode offers a candid look at the gaps in current diagnostic thinking and a more thoughtful, patient-centered approach to evaluating complex chronic illness, one that prioritizes listening, curiosity, and clinical humility.


Takeaways:


When diagnosis is delayed, complexity isn’t inevitable — it’s created.


“Normal” tests don’t mean normal lives. Pain, fatigue, and dysfunction can exist long before labs catch up.


Many patients aren’t anxious until they’re repeatedly dismissed. Mislabeling symptoms often becomes the real diagnosis delay.


Multisystem conditions don’t reveal themselves through checklists — they emerge through patterns clinicians are trained to overlook.


Sometimes the most powerful intervention isn’t a test or a treatment — it’s listening earlier, longer, and with curiosity.


Find the episode transcript here.


Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health


Want more Dr. Dacre Knight?

https://x.com/knidac


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4080 Pelvic Pain in EDS: What Doctors Miss and Why It Matters with Dr Rachel Rubin (Ep 183) Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Rachel Rubin, a board-certified urologist and nationally recognized leader in sexual medicine, to unpack why connective tissue disorders, mast cell activation, dysautonomia, and hormonal shifts so often collide in the pelvis. Together, they explore why bladder symptoms can occur without infection, why pelvic floor therapy alone may not be enough, and how hormones influence tissue health, inflammation, and pain. The conversation dives into underrecognized drivers of symptoms, like vestibular pain, nerve involvement, mast cell activity, and hormonal suppression from birth control, while also addressing why many patients are left searching for answers for years. Dr. Rubin explains why sexual health is inseparable from overall health and how multidisciplinary, patient-centered care can dramatically improve quality of life. For anyone living with a connective tissue disorder who has been told “everything looks normal” despite ongoing pelvic or bladder symptoms, this episode offers clarity, validation, and a new framework for understanding what may actually be happening. Takeaways: Pelvic and bladder symptoms in EDS are rarely caused by just one issue, they often involve hormones, nerves, mast cells, and musculoskeletal factors together. Pain with tampons, sex, or sitting is not normal, even if exams and tests appear normal. Hormonal changes and suppression can significantly affect pelvic tissue health, contributing to pain and urinary symptoms. Pelvic floor therapy helps many patients, but not all, especially when underlying tissue or hormonal issues go unaddressed. Sexual health is a quality-of-life issue, not a luxury, and deserves serious medical attention in hypermobility care. Find the episode transcript here. Want more Dr. Rachel Rubin? Instagram: @drrachelrubin YouTube: https://www.youtube.com/c/DrRachelRubin Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Feb 2026 10:00:00 -0000 full Dr. Linda Bluestein Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Rachel Rubin, a board-certified urologist and nationally recognized leader in sexual medicine, to unpack why connective tissue disorders, mast cell activation, dysautonomia, and hormonal shifts so often collide in the pelvis. Together, they explore why bladder symptoms can occur without infection, why pelvic floor therapy alone may not be enough, and how hormones influence tissue health, inflammation, and pain. The conversation dives into underrecognized drivers of symptoms, like vestibular pain, nerve involvement, mast cell activity, and hormonal suppression from birth control, while also addressing why many patients are left searching for answers for years. Dr. Rubin explains why sexual health is inseparable from overall health and how multidisciplinary, patient-centered care can dramatically improve quality of life. For anyone living with a connective tissue disorder who has been told “everything looks normal” despite ongoing pelvic or bladder symptoms, this episode offers clarity, validation, and a new framework for understanding what may actually be happening. Takeaways: Pelvic and bladder symptoms in EDS are rarely caused by just one issue, they often involve hormones, nerves, mast cells, and musculoskeletal factors together. Pain with tampons, sex, or sitting is not normal, even if exams and tests appear normal. Hormonal changes and suppression can significantly affect pelvic tissue health, contributing to pain and urinary symptoms. Pelvic floor therapy helps many patients, but not all, especially when underlying tissue or hormonal issues go unaddressed. Sexual health is a quality-of-life issue, not a luxury, and deserves serious medical attention in hypermobility care. Find the episode transcript here. Want more Dr. Rachel Rubin? Instagram: @drrachelrubin YouTube: https://www.youtube.com/c/DrRachelRubin Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation.

In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Rachel Rubin, a board-certified urologist and nationally recognized leader in sexual medicine, to unpack why connective tissue disorders, mast cell activation, dysautonomia, and hormonal shifts so often collide in the pelvis. Together, they explore why bladder symptoms can occur without infection, why pelvic floor therapy alone may not be enough, and how hormones influence tissue health, inflammation, and pain.

The conversation dives into underrecognized drivers of symptoms, like vestibular pain, nerve involvement, mast cell activity, and hormonal suppression from birth control, while also addressing why many patients are left searching for answers for years. Dr. Rubin explains why sexual health is inseparable from overall health and how multidisciplinary, patient-centered care can dramatically improve quality of life.


For anyone living with a connective tissue disorder who has been told “everything looks normal” despite ongoing pelvic or bladder symptoms, this episode offers clarity, validation, and a new framework for understanding what may actually be happening.


Takeaways:

  • Pelvic and bladder symptoms in EDS are rarely caused by just one issue, they often involve hormones, nerves, mast cells, and musculoskeletal factors together.

  • Pain with tampons, sex, or sitting is not normal, even if exams and tests appear normal.

  • Hormonal changes and suppression can significantly affect pelvic tissue health, contributing to pain and urinary symptoms.

  • Pelvic floor therapy helps many patients, but not all, especially when underlying tissue or hormonal issues go unaddressed.

  • Sexual health is a quality-of-life issue, not a luxury, and deserves serious medical attention in hypermobility care.

Find the episode transcript here.


Want more Dr. Rachel Rubin?


Instagram: @drrachelrubin

YouTube: https://www.youtube.com/c/DrRachelRubin



Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 3344 The Biggest Mistake in EDS Care and How to Fix It with Dr. Ina Stephens & Dr. Dacre Knight (Ep 182) What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care. The conversation explores the power of integrative, multidisciplinary care, the consequences of fragmented systems, and why early recognition, especially in pediatric patients, can profoundly change lifelong outcomes. Dr. Stephens and Dr. Knight discuss what patients can expect when seeking care at UVA, how research and clinical care are being built together, and why clinician education is essential to closing long-standing gaps in EDS care. The episode also features a major announcement: a new collaboration between Bendy Bodies and the UVA EDS Center, uniting global patient education with academic medicine to help reshape how connective tissue disorders are understood, taught, and treated worldwide. For anyone searching for what meaningful progress in EDS care could look like, this conversation offers a glimpse of what’s possible. Takeaways: EDS care is most effective when it’s coordinated, not scattered across disconnected specialties. Early diagnosis, particularly in children, can prevent years of physical and emotional harm. An “EDS home” model helps reduce gaslighting, burnout, and fragmented care. Academic medicine is beginning to catch up, creating space for evidence-informed, compassionate treatment. Education itself is a form of care, benefiting both patients and clinicians navigating complex conditions. Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Feb 2026 10:00:00 -0000 full Dr. Linda Bluestein What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care. The conversation explores the power of integrative, multidisciplinary care, the consequences of fragmented systems, and why early recognition, especially in pediatric patients, can profoundly change lifelong outcomes. Dr. Stephens and Dr. Knight discuss what patients can expect when seeking care at UVA, how research and clinical care are being built together, and why clinician education is essential to closing long-standing gaps in EDS care. The episode also features a major announcement: a new collaboration between Bendy Bodies and the UVA EDS Center, uniting global patient education with academic medicine to help reshape how connective tissue disorders are understood, taught, and treated worldwide. For anyone searching for what meaningful progress in EDS care could look like, this conversation offers a glimpse of what’s possible. Takeaways: EDS care is most effective when it’s coordinated, not scattered across disconnected specialties. Early diagnosis, particularly in children, can prevent years of physical and emotional harm. An “EDS home” model helps reduce gaslighting, burnout, and fragmented care. Academic medicine is beginning to catch up, creating space for evidence-informed, compassionate treatment. Education itself is a form of care, benefiting both patients and clinicians navigating complex conditions. Find the episode transcript here. Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home?


In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care.


The conversation explores the power of integrative, multidisciplinary care, the consequences of fragmented systems, and why early recognition, especially in pediatric patients, can profoundly change lifelong outcomes. Dr. Stephens and Dr. Knight discuss what patients can expect when seeking care at UVA, how research and clinical care are being built together, and why clinician education is essential to closing long-standing gaps in EDS care.


The episode also features a major announcement: a new collaboration between Bendy Bodies and the UVA EDS Center, uniting global patient education with academic medicine to help reshape how connective tissue disorders are understood, taught, and treated worldwide.


For anyone searching for what meaningful progress in EDS care could look like, this conversation offers a glimpse of what’s possible.


Takeaways:


EDS care is most effective when it’s coordinated, not scattered across disconnected specialties.


Early diagnosis, particularly in children, can prevent years of physical and emotional harm.


An “EDS home” model helps reduce gaslighting, burnout, and fragmented care.


Academic medicine is beginning to catch up, creating space for evidence-informed, compassionate treatment.



Education itself is a form of care, benefiting both patients and clinicians navigating complex conditions.


Find the episode transcript here.


Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Want to learn more about the UVA EDS Center?


For Appointments and Questions: RUVAEDSCenter@uvahealth.org

UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic

UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq

UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health






Want more Dr. Dacre Knight?


https://x.com/knidac



Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4323 Mast Cell Activation Syndrome: The Diagnosis Most Doctors Miss with Dr. Lawrence Afrin (Ep 181) Mast Cell Activation Syndrome is one of the most misunderstood, and underrecognized, conditions in modern medicine. In this episode, Dr. Linda Bluestein is joined by Dr. Lawrence Afrin, one of the world’s leading experts on mast cell disease, to unpack why MCAS is so often missed, why tryptase alone is not enough to diagnose it, and how this condition may be driving chronic inflammation, neurologic symptoms, psychiatric symptoms, and even hypermobile Ehlers-Danlos Syndrome (hEDS) in some patients. They talk about why MCAS can look completely different from one person to the next, how mast cells influence nearly every system in the body, and why so many patients are told “nothing is wrong” despite being profoundly unwell. We also explore emerging treatments, including GLP-1 medications, and what the future of MCAS research may hold. If you or your patients live with complex, multisystem symptoms that don’t fit neatly into one diagnosis, this conversation may change how you see everything. Takeaways: MCAS rarely looks like classic allergy, which is why it’s so often overlooked. Normal tryptase does not rule out mast cell disease, despite what many clinicians believe. Chronic multisystem inflammation is the biggest red flag for MCAS. MCAS may help explain hypermobile EDS in some patients, not as a genetic collagen defect but as an immune-driven process. New therapies are discussed, offering real hope for improved quality of life. Find the episode transcript here. Want more Dr. Lawrence Afrin? http://www.aimcenterpm.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 29 Jan 2026 10:00:00 -0000 full Dr. Linda Bluestein Mast Cell Activation Syndrome is one of the most misunderstood, and underrecognized, conditions in modern medicine. In this episode, Dr. Linda Bluestein is joined by Dr. Lawrence Afrin, one of the world’s leading experts on mast cell disease, to unpack why MCAS is so often missed, why tryptase alone is not enough to diagnose it, and how this condition may be driving chronic inflammation, neurologic symptoms, psychiatric symptoms, and even hypermobile Ehlers-Danlos Syndrome (hEDS) in some patients. They talk about why MCAS can look completely different from one person to the next, how mast cells influence nearly every system in the body, and why so many patients are told “nothing is wrong” despite being profoundly unwell. We also explore emerging treatments, including GLP-1 medications, and what the future of MCAS research may hold. If you or your patients live with complex, multisystem symptoms that don’t fit neatly into one diagnosis, this conversation may change how you see everything. Takeaways: MCAS rarely looks like classic allergy, which is why it’s so often overlooked. Normal tryptase does not rule out mast cell disease, despite what many clinicians believe. Chronic multisystem inflammation is the biggest red flag for MCAS. MCAS may help explain hypermobile EDS in some patients, not as a genetic collagen defect but as an immune-driven process. New therapies are discussed, offering real hope for improved quality of life. Find the episode transcript here. Want more Dr. Lawrence Afrin? http://www.aimcenterpm.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Mast Cell Activation Syndrome is one of the most misunderstood, and underrecognized, conditions in modern medicine. In this episode, Dr. Linda Bluestein is joined by Dr. Lawrence Afrin, one of the world’s leading experts on mast cell disease, to unpack why MCAS is so often missed, why tryptase alone is not enough to diagnose it, and how this condition may be driving chronic inflammation, neurologic symptoms, psychiatric symptoms, and even hypermobile Ehlers-Danlos Syndrome (hEDS) in some patients.


They talk about why MCAS can look completely different from one person to the next, how mast cells influence nearly every system in the body, and why so many patients are told “nothing is wrong” despite being profoundly unwell. We also explore emerging treatments, including GLP-1 medications, and what the future of MCAS research may hold.


If you or your patients live with complex, multisystem symptoms that don’t fit neatly into one diagnosis, this conversation may change how you see everything.


Takeaways:


MCAS rarely looks like classic allergy, which is why it’s so often overlooked.


Normal tryptase does not rule out mast cell disease, despite what many clinicians believe.


Chronic multisystem inflammation is the biggest red flag for MCAS.


MCAS may help explain hypermobile EDS in some patients, not as a genetic collagen defect but as an immune-driven process.


New therapies are discussed, offering real hope for improved quality of life.


Find the episode transcript here.


Want more Dr. Lawrence Afrin?


http://www.aimcenterpm.com



Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 5610 When Eye Exams Miss the Real Problem in EDS with Dr. Eric Singman (Ep 180) In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when everything looks “normal,” why convergence problems and visual fatigue are so common, and how conditions like POTS, mast cell activation, Chiari malformation, and cervical instability quietly affect how we see. They also talk about dry eye, visual snow, glare sensitivity, elevated intracranial pressure without papilledema, and why so many EDS patients are sent down expensive treatment paths that may not actually help. This conversation is part science, part myth-busting, and part reality check for anyone who’s been told their symptoms don’t make sense. If you’ve ever felt dismissed, confused, or overwhelmed by eye and vision issues in connective tissue disorders, this one’s for you. Takeaways: Normal eye exams don’t mean your vision problem isn’t real, especially for people with EDS. Many vision symptoms in EDS are collateral damage, not primary eye disease. Convergence issues are often blamed, but fatigue, cognition, and neck instability may be the real drivers. Dry eye in EDS is more complex than “use drops”, especially with mast cell involvement. The neck may be the missing piece in vision, brain fog, headaches, and reading difficulty. Find the episode transcript here. Want more Dr. Eric Singman? https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 Jan 2026 10:00:00 -0000 full Dr. Linda Bluestein In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when everything looks “normal,” why convergence problems and visual fatigue are so common, and how conditions like POTS, mast cell activation, Chiari malformation, and cervical instability quietly affect how we see. They also talk about dry eye, visual snow, glare sensitivity, elevated intracranial pressure without papilledema, and why so many EDS patients are sent down expensive treatment paths that may not actually help. This conversation is part science, part myth-busting, and part reality check for anyone who’s been told their symptoms don’t make sense. If you’ve ever felt dismissed, confused, or overwhelmed by eye and vision issues in connective tissue disorders, this one’s for you. Takeaways: Normal eye exams don’t mean your vision problem isn’t real, especially for people with EDS. Many vision symptoms in EDS are collateral damage, not primary eye disease. Convergence issues are often blamed, but fatigue, cognition, and neck instability may be the real drivers. Dry eye in EDS is more complex than “use drops”, especially with mast cell involvement. The neck may be the missing piece in vision, brain fog, headaches, and reading difficulty. Find the episode transcript here. Want more Dr. Eric Singman? https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when everything looks “normal,” why convergence problems and visual fatigue are so common, and how conditions like POTS, mast cell activation, Chiari malformation, and cervical instability quietly affect how we see.

They also talk about dry eye, visual snow, glare sensitivity, elevated intracranial pressure without papilledema, and why so many EDS patients are sent down expensive treatment paths that may not actually help. This conversation is part science, part myth-busting, and part reality check for anyone who’s been told their symptoms don’t make sense.

If you’ve ever felt dismissed, confused, or overwhelmed by eye and vision issues in connective tissue disorders, this one’s for you.


Takeaways:

Normal eye exams don’t mean your vision problem isn’t real, especially for people with EDS.

Many vision symptoms in EDS are collateral damage, not primary eye disease.

Convergence issues are often blamed, but fatigue, cognition, and neck instability may be the real drivers.

Dry eye in EDS is more complex than “use drops”, especially with mast cell involvement.

The neck may be the missing piece in vision, brain fog, headaches, and reading difficulty.


Find the episode transcript here.


Want more Dr. Eric Singman?

https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804

Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4825 Chronic Pain, Focus, and the Brain Shift Psychedelics Reveal with Dr. Shimi Kang (Ep 179) In this expansive and deeply affirming conversation, Linda Bluestein and Shimi Kang explore a powerful idea: true healing comes from connection, not control—especially when living with chronic pain, nervous system dysregulation, or complex, overlapping conditions. They unpack the neuroscience of emotional regulation and why chronic pain so often disrupts attention, focus, and cognitive flexibility—issues frequently labeled as “brain fog” or misattributed solely to mood or motivation. The discussion also dives into the growing recognition of overlap between neurodivergence and Ehlers-Danlos Syndromes, exploring how sensory sensitivity, pain, autonomic stress, and dopamine dysregulation may be biologically intertwined. The conversation examines how constant tech stimulation and dopamine overload can further impair resilience, focus, and emotional regulation, particularly in already taxed nervous systems. They also explore emerging research on psychedelic-assisted therapies, including how substances like psilocybin may help unlock stored trauma, shift pain pathways, and support nervous system recalibration. From the culture of medicine to the lived experience of chronic illness, they name the often-unspoken role of shame in blocking connection, care, and recovery—inviting listeners to rethink how we relate to our bodies, our brains, and what it truly means to heal. Takeaways: How chronic pain and nervous system stress impair focus, attention, and executive function The emerging connection between neurodivergence (e.g.; ADHD, autism, dyscalculia, dysgraphia etc.) and Ehlers-Danlos syndromes Why dopamine overload—from phones, apps, and constant stimulation—can worsen pain and emotional regulation How psychedelic-assisted therapies may help release stored trauma and alter pain pathways Why unspoken shame in medicine and chronic illness interferes with healing and connection Why whole-person healing requires honoring the brain–body–nervous system connection Find the episode transcript here. Want more Dr. Shimi Kang? https://x.com/drshimikang https://www.instagram.com/drshimikang/?hl=en https://www.facebook.com/drshimikang/ https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 15 Jan 2026 10:00:00 -0000 full Dr. Linda Bluestein In this expansive and deeply affirming conversation, Linda Bluestein and Shimi Kang explore a powerful idea: true healing comes from connection, not control—especially when living with chronic pain, nervous system dysregulation, or complex, overlapping conditions. They unpack the neuroscience of emotional regulation and why chronic pain so often disrupts attention, focus, and cognitive flexibility—issues frequently labeled as “brain fog” or misattributed solely to mood or motivation. The discussion also dives into the growing recognition of overlap between neurodivergence and Ehlers-Danlos Syndromes, exploring how sensory sensitivity, pain, autonomic stress, and dopamine dysregulation may be biologically intertwined. The conversation examines how constant tech stimulation and dopamine overload can further impair resilience, focus, and emotional regulation, particularly in already taxed nervous systems. They also explore emerging research on psychedelic-assisted therapies, including how substances like psilocybin may help unlock stored trauma, shift pain pathways, and support nervous system recalibration. From the culture of medicine to the lived experience of chronic illness, they name the often-unspoken role of shame in blocking connection, care, and recovery—inviting listeners to rethink how we relate to our bodies, our brains, and what it truly means to heal. Takeaways: How chronic pain and nervous system stress impair focus, attention, and executive function The emerging connection between neurodivergence (e.g.; ADHD, autism, dyscalculia, dysgraphia etc.) and Ehlers-Danlos syndromes Why dopamine overload—from phones, apps, and constant stimulation—can worsen pain and emotional regulation How psychedelic-assisted therapies may help release stored trauma and alter pain pathways Why unspoken shame in medicine and chronic illness interferes with healing and connection Why whole-person healing requires honoring the brain–body–nervous system connection Find the episode transcript here. Want more Dr. Shimi Kang? https://x.com/drshimikang https://www.instagram.com/drshimikang/?hl=en https://www.facebook.com/drshimikang/ https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this expansive and deeply affirming conversation, Linda Bluestein and Shimi Kang explore a powerful idea: true healing comes from connection, not control—especially when living with chronic pain, nervous system dysregulation, or complex, overlapping conditions.

They unpack the neuroscience of emotional regulation and why chronic pain so often disrupts attention, focus, and cognitive flexibility—issues frequently labeled as “brain fog” or misattributed solely to mood or motivation. The discussion also dives into the growing recognition of overlap between neurodivergence and Ehlers-Danlos Syndromes, exploring how sensory sensitivity, pain, autonomic stress, and dopamine dysregulation may be biologically intertwined.

The conversation examines how constant tech stimulation and dopamine overload can further impair resilience, focus, and emotional regulation, particularly in already taxed nervous systems. They also explore emerging research on psychedelic-assisted therapies, including how substances like psilocybin may help unlock stored trauma, shift pain pathways, and support nervous system recalibration.

From the culture of medicine to the lived experience of chronic illness, they name the often-unspoken role of shame in blocking connection, care, and recovery—inviting listeners to rethink how we relate to our bodies, our brains, and what it truly means to heal.


Takeaways:

  • How chronic pain and nervous system stress impair focus, attention, and executive function

  • The emerging connection between neurodivergence (e.g.; ADHD, autism, dyscalculia, dysgraphia etc.) and Ehlers-Danlos syndromes

  • Why dopamine overload—from phones, apps, and constant stimulation—can worsen pain and emotional regulation

  • How psychedelic-assisted therapies may help release stored trauma and alter pain pathways

  • Why unspoken shame in medicine and chronic illness interferes with healing and connection

  • Why whole-person healing requires honoring the brain–body–nervous system connection

Find the episode transcript here.


Want more Dr. Shimi Kang?

https://x.com/drshimikang

https://www.instagram.com/drshimikang/?hl=en

https://www.facebook.com/drshimikang/

https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA

https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4805 What If It’s Not IBS or Anxiety? A Vascular Surgeon Explains with Dr. Robert Hacker (Ep 178) What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome), Nutcracker Syndrome, May-Thurner Syndrome, and pelvic venous congestion syndrome, conditions that disproportionately affect women and often go undiagnosed for years. Together, they dive into the frustrating diagnostic delays, the overlap between vascular compression and syndromes like POTS (Postural Orthostatic Tachycardia Syndrome) and EDS  (Ehlers-Danlos Syndrome), and how new surgical approaches are offering hope. Whether you're navigating chronic pelvic pain, unexplained GI symptoms, or fainting episodes, this conversation breaks down the misunderstood links between your veins, nerves, and connective tissue—and what to do about them. Takeaways: MALS isn’t rare, it’s rarely diagnosed. Dr. Hacker explains the symptoms and scans to look for when your gut symptoms don’t match the tests. Why so many women are misdiagnosed with IBS or anxiety. Pelvic venous congestion, Nutcracker Syndrome, and May-Thurner often mimic more common conditions—but require totally different treatments. The surprising connection between vascular compression and POTS. It’s not just nerves, your veins might be compressing in ways that worsen dysautonomia. Surgery isn’t a silver bullet, but it can be life-changing. Dr. Hacker shares what makes a good surgical candidate and how his team helps patients navigate workup and recovery. When your connective tissue works against your vascular system. Hypermobility and EDS can make vascular compression more likely and more complicated to treat. Find the episode transcript here. Want more Dr. Robert Hacker? Instagram: https://www.instagram.com/stlvascular/ Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Go to Cozy Earth now for a Buy One Get One Free Pajama Offer from 1/25-2/8! Yes, go to cozyearth.com they are doing a BOGO pajama promo. Just use my Code: BENDYBOGO Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Jan 2026 10:00:00 -0000 full Dr. Linda Bluestein What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome), Nutcracker Syndrome, May-Thurner Syndrome, and pelvic venous congestion syndrome, conditions that disproportionately affect women and often go undiagnosed for years. Together, they dive into the frustrating diagnostic delays, the overlap between vascular compression and syndromes like POTS (Postural Orthostatic Tachycardia Syndrome) and EDS  (Ehlers-Danlos Syndrome), and how new surgical approaches are offering hope. Whether you're navigating chronic pelvic pain, unexplained GI symptoms, or fainting episodes, this conversation breaks down the misunderstood links between your veins, nerves, and connective tissue—and what to do about them. Takeaways: MALS isn’t rare, it’s rarely diagnosed. Dr. Hacker explains the symptoms and scans to look for when your gut symptoms don’t match the tests. Why so many women are misdiagnosed with IBS or anxiety. Pelvic venous congestion, Nutcracker Syndrome, and May-Thurner often mimic more common conditions—but require totally different treatments. The surprising connection between vascular compression and POTS. It’s not just nerves, your veins might be compressing in ways that worsen dysautonomia. Surgery isn’t a silver bullet, but it can be life-changing. Dr. Hacker shares what makes a good surgical candidate and how his team helps patients navigate workup and recovery. When your connective tissue works against your vascular system. Hypermobility and EDS can make vascular compression more likely and more complicated to treat. Find the episode transcript here. Want more Dr. Robert Hacker? Instagram: https://www.instagram.com/stlvascular/ Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Go to Cozy Earth now for a Buy One Get One Free Pajama Offer from 1/25-2/8! Yes, go to cozyearth.com they are doing a BOGO pajama promo. Just use my Code: BENDYBOGO Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome), Nutcracker Syndrome, May-Thurner Syndrome, and pelvic venous congestion syndrome, conditions that disproportionately affect women and often go undiagnosed for years.

Together, they dive into the frustrating diagnostic delays, the overlap between vascular compression and syndromes like POTS (Postural Orthostatic Tachycardia Syndrome) and EDS  (Ehlers-Danlos Syndrome), and how new surgical approaches are offering hope. Whether you're navigating chronic pelvic pain, unexplained GI symptoms, or fainting episodes, this conversation breaks down the misunderstood links between your veins, nerves, and connective tissue—and what to do about them.


Takeaways:


MALS isn’t rare, it’s rarely diagnosed. Dr. Hacker explains the symptoms and scans to look for when your gut symptoms don’t match the tests.


Why so many women are misdiagnosed with IBS or anxiety. Pelvic venous congestion, Nutcracker Syndrome, and May-Thurner often mimic more common conditions—but require totally different treatments.


The surprising connection between vascular compression and POTS. It’s not just nerves, your veins might be compressing in ways that worsen dysautonomia.


Surgery isn’t a silver bullet, but it can be life-changing. Dr. Hacker shares what makes a good surgical candidate and how his team helps patients navigate workup and recovery.



When your connective tissue works against your vascular system. Hypermobility and EDS can make vascular compression more likely and more complicated to treat.


Find the episode transcript here.


Want more Dr. Robert Hacker?


Instagram: https://www.instagram.com/stlvascular/


Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO


Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today!



Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


Go to Cozy Earth now for a Buy One Get One Free Pajama Offer from 1/25-2/8! Yes, go to cozyearth.com they are doing a BOGO pajama promo. Just use my Code: BENDYBOGO


Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 4491 Rectal Prolapse, Dyscalculia & Dyspraxia: The Connective Tissue Connection | Office Hours (Ep 177) In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein breaks down why so many surgical interventions fall short for people with hypermobile Ehlers-Danlos Syndrome (hEDS) and what you must consider before your next procedure, including essential imaging, anesthesia concerns, pelvic floor support, and mesh alternatives. Then, she explores a lesser-known but increasingly discussed connection: how vision dyspraxia and dyscalculia often go hand-in-hand with hypermobility, and why challenges with balance, motor planning, and even math might be far more physical than we think. Plus, you'll hear my own hypermobility hack for surviving the dreaded shampoo bowl at the salon. Whether you're navigating chronic pain, misunderstood learning challenges, or a body that just won’t follow the rules, this episode is packed with the nuanced insight you’ve been waiting for. Takeaways: Why rectal prolapse surgeries often fail in HEDS and the exact workup to request before considering another one. The real risks of mesh, sutures, and tension-based surgical repair in connective tissue disorders. How vision dyspraxia and convergence insufficiency can disrupt learning and quality of life and why they’re so common in EDS. Dyscalculia explained: not just a math issue, but a brain-body mismatch often missed in neurodiverse bendy bodies. Two hypermobility hacks worth stealing including a genius way to get your hair washed without neck pain. Find the episode transcript here: https://www.bendybodiespodcast.com/rectal-prolapse-dyscalculia-dyspraxia-the-connective-tissue-connection-office-hours-ep-177/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Tue, 30 Dec 2025 10:00:00 -0000 full Dr. Linda Bluestein In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein breaks down why so many surgical interventions fall short for people with hypermobile Ehlers-Danlos Syndrome (hEDS) and what you must consider before your next procedure, including essential imaging, anesthesia concerns, pelvic floor support, and mesh alternatives. Then, she explores a lesser-known but increasingly discussed connection: how vision dyspraxia and dyscalculia often go hand-in-hand with hypermobility, and why challenges with balance, motor planning, and even math might be far more physical than we think. Plus, you'll hear my own hypermobility hack for surviving the dreaded shampoo bowl at the salon. Whether you're navigating chronic pain, misunderstood learning challenges, or a body that just won’t follow the rules, this episode is packed with the nuanced insight you’ve been waiting for. Takeaways: Why rectal prolapse surgeries often fail in HEDS and the exact workup to request before considering another one. The real risks of mesh, sutures, and tension-based surgical repair in connective tissue disorders. How vision dyspraxia and convergence insufficiency can disrupt learning and quality of life and why they’re so common in EDS. Dyscalculia explained: not just a math issue, but a brain-body mismatch often missed in neurodiverse bendy bodies. Two hypermobility hacks worth stealing including a genius way to get your hair washed without neck pain. Find the episode transcript here: https://www.bendybodiespodcast.com/rectal-prolapse-dyscalculia-dyspraxia-the-connective-tissue-connection-office-hours-ep-177/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein breaks down why so many surgical interventions fall short for people with hypermobile Ehlers-Danlos Syndrome (hEDS) and what you must consider before your next procedure, including essential imaging, anesthesia concerns, pelvic floor support, and mesh alternatives. Then, she explores a lesser-known but increasingly discussed connection: how vision dyspraxia and dyscalculia often go hand-in-hand with hypermobility, and why challenges with balance, motor planning, and even math might be far more physical than we think. Plus, you'll hear my own hypermobility hack for surviving the dreaded shampoo bowl at the salon. Whether you're navigating chronic pain, misunderstood learning challenges, or a body that just won’t follow the rules, this episode is packed with the nuanced insight you’ve been waiting for.

Takeaways:


Why rectal prolapse surgeries often fail in HEDS and the exact workup to request before considering another one.


The real risks of mesh, sutures, and tension-based surgical repair in connective tissue disorders.


How vision dyspraxia and convergence insufficiency can disrupt learning and quality of life and why they’re so common in EDS.


Dyscalculia explained: not just a math issue, but a brain-body mismatch often missed in neurodiverse bendy bodies.



Two hypermobility hacks worth stealing including a genius way to get your hair washed without neck pain.


Find the episode transcript here: https://www.bendybodiespodcast.com/rectal-prolapse-dyscalculia-dyspraxia-the-connective-tissue-connection-office-hours-ep-177/


Want more Dr. Linda Bluestein, MD?

Website: https://www.hypermobilitymd.com/

YouTube: https://www.youtube.com/@bendybodiespodcast

Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

YOUR bendy body is our highest priority!⁠⁠


Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


Part of the Human Content Podcast Network


FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

Learn more about your ad choices. Visit megaphone.fm/adchoices

]]> 2857 The Roadmap That Could Change EDS Forever with Lara Bloom (Ep 176) In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why have progress and awareness lagged for so long? And what is happening right now around the world that could shift everything? Together, they unpack the systemic obstacles still tripping up patients, from years-long diagnostic delays and rampant misinformation to critical gaps in research, policy, and clinical education. Lara shares the driving force behind her vision for global change and the monumental international effort unfolding to move EDS and HSD into the spotlight they’ve long deserved. If you’ve ever wondered why the system feels stuck, or what it might take to finally break through, this conversation offers rare insight and genuine hope. Takeaways: Lara reveals why global alignment across policy, education, and clinical care could be the missing key to major breakthroughs for EDS and HSD. The episode exposes the hidden consequences of misdiagnosis and why early recognition, especially in children, may be more urgent than most clinicians realize. Linda and Lara dig into how outdated terminology and dismissive provider attitudes continue to shape patient experiences in ways few talk about openly. Lara shares how her personal journey fuels her global leadership and why patient voices are becoming impossible to ignore in research, advocacy, and policy. The international symposium and roadmap point toward real momentum, but lasting change will require unprecedented collaboration across borders and specialties. Find Episode Transcript here: https://www.bendybodiespodcast.com/the-roadmap-that-could-change-eds-forever-with-lara-bloom-ep-176/ Want more Lara Bloom? Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Linda's favorite powdered Vitamin C Product: https://www.amazon.com/shop/hypermobilitymd/list/3PBOYTJKW5YIX?ref_=aipsflist Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Tue, 23 Dec 2025 10:00:00 -0000 full Dr. Linda Bluestein In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why have progress and awareness lagged for so long? And what is happening right now around the world that could shift everything? Together, they unpack the systemic obstacles still tripping up patients, from years-long diagnostic delays and rampant misinformation to critical gaps in research, policy, and clinical education. Lara shares the driving force behind her vision for global change and the monumental international effort unfolding to move EDS and HSD into the spotlight they’ve long deserved. If you’ve ever wondered why the system feels stuck, or what it might take to finally break through, this conversation offers rare insight and genuine hope. Takeaways: Lara reveals why global alignment across policy, education, and clinical care could be the missing key to major breakthroughs for EDS and HSD. The episode exposes the hidden consequences of misdiagnosis and why early recognition, especially in children, may be more urgent than most clinicians realize. Linda and Lara dig into how outdated terminology and dismissive provider attitudes continue to shape patient experiences in ways few talk about openly. Lara shares how her personal journey fuels her global leadership and why patient voices are becoming impossible to ignore in research, advocacy, and policy. The international symposium and roadmap point toward real momentum, but lasting change will require unprecedented collaboration across borders and specialties. Find Episode Transcript here: https://www.bendybodiespodcast.com/the-roadmap-that-could-change-eds-forever-with-lara-bloom-ep-176/ Want more Lara Bloom? Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Linda's favorite powdered Vitamin C Product: https://www.amazon.com/shop/hypermobilitymd/list/3PBOYTJKW5YIX?ref_=aipsflist Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why have progress and awareness lagged for so long? And what is happening right now around the world that could shift everything?

Together, they unpack the systemic obstacles still tripping up patients, from years-long diagnostic delays and rampant misinformation to critical gaps in research, policy, and clinical education. Lara shares the driving force behind her vision for global change and the monumental international effort unfolding to move EDS and HSD into the spotlight they’ve long deserved.

If you’ve ever wondered why the system feels stuck, or what it might take to finally break through, this conversation offers rare insight and genuine hope.

Takeaways:

  • Lara reveals why global alignment across policy, education, and clinical care could be the missing key to major breakthroughs for EDS and HSD.

  • The episode exposes the hidden consequences of misdiagnosis and why early recognition, especially in children, may be more urgent than most clinicians realize.

  • Linda and Lara dig into how outdated terminology and dismissive provider attitudes continue to shape patient experiences in ways few talk about openly.

  • Lara shares how her personal journey fuels her global leadership and why patient voices are becoming impossible to ignore in research, advocacy, and policy.

    The international symposium and roadmap point toward real momentum, but lasting change will require unprecedented collaboration across borders and specialties.

  • Find Episode Transcript here: https://www.bendybodiespodcast.com/the-roadmap-that-could-change-eds-forever-with-lara-bloom-ep-176/


    Want more Lara Bloom?


    Website: https://www.larabloom.com/

    Twitter: @larabloom

    Instagram: @lara.bloom


    Youtube: @LaraBloom


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start




    Linda's favorite powdered Vitamin C Product: https://www.amazon.com/shop/hypermobilitymd/list/3PBOYTJKW5YIX?ref_=aipsflist


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    • Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3987     POTS Revisited: Embolization, GLP-1 & Daily Management with Dr. Alexis Cutchins (Ep 175) In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome), to tackle one of the most misunderstood vascular conditions in complex patients. From treatment options and expected outcomes to what really happens after embolization procedures, they unpack the physiology and the myths. Plus, they dive into GLP-1 medications like semaglutide and tirzepatide, long COVID symptom overlaps, heat intolerance, and why certain movement strategies backfire for patients with hypermobility, POTS, and other connective tissue conditions. They also trade tips on hydration, travel, pelvic support, and how to build movement back into your life, even when your nervous system fights you at every step. Takeaways: Dr. Cutchins explains how PVD impacts the whole body, causing fatigue, pelvic pain, and even mimicking other disorders. Weight loss drugs like semaglutide and tirzepatide can help, but only in the context of a larger strategy that considers joint instability, hormonal shifts, and gut function. They discuss how patients with PVD or dysautonomia are especially sensitive to warm environments and what that teaches us about blood flow and pressure regulation. From favorite exercises to subtle red flags, they explore how to reintroduce movement without triggering crashes or setbacks. Compression, salt loading, movement timing, and cooling tools can turn a nightmare trip into a manageable one. Want more Dr. Alexis Cutchins? Find the episode transcript here. https://www.instagram.com/drcutchins/ https://youtube.com/@DrCutchins?si=pNvR2A6eFOL4vS9m Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 18 Dec 2025 10:00:00 -0000 full Dr. Linda Bluestein In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome), to tackle one of the most misunderstood vascular conditions in complex patients. From treatment options and expected outcomes to what really happens after embolization procedures, they unpack the physiology and the myths. Plus, they dive into GLP-1 medications like semaglutide and tirzepatide, long COVID symptom overlaps, heat intolerance, and why certain movement strategies backfire for patients with hypermobility, POTS, and other connective tissue conditions. They also trade tips on hydration, travel, pelvic support, and how to build movement back into your life, even when your nervous system fights you at every step. Takeaways: Dr. Cutchins explains how PVD impacts the whole body, causing fatigue, pelvic pain, and even mimicking other disorders. Weight loss drugs like semaglutide and tirzepatide can help, but only in the context of a larger strategy that considers joint instability, hormonal shifts, and gut function. They discuss how patients with PVD or dysautonomia are especially sensitive to warm environments and what that teaches us about blood flow and pressure regulation. From favorite exercises to subtle red flags, they explore how to reintroduce movement without triggering crashes or setbacks. Compression, salt loading, movement timing, and cooling tools can turn a nightmare trip into a manageable one. Want more Dr. Alexis Cutchins? Find the episode transcript here. https://www.instagram.com/drcutchins/ https://youtube.com/@DrCutchins?si=pNvR2A6eFOL4vS9m Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome), to tackle one of the most misunderstood vascular conditions in complex patients. From treatment options and expected outcomes to what really happens after embolization procedures, they unpack the physiology and the myths. Plus, they dive into GLP-1 medications like semaglutide and tirzepatide, long COVID symptom overlaps, heat intolerance, and why certain movement strategies backfire for patients with hypermobility, POTS, and other connective tissue conditions. They also trade tips on hydration, travel, pelvic support, and how to build movement back into your life, even when your nervous system fights you at every step.


    Takeaways:

    Dr. Cutchins explains how PVD impacts the whole body, causing fatigue, pelvic pain, and even mimicking other disorders.

    Weight loss drugs like semaglutide and tirzepatide can help, but only in the context of a larger strategy that considers joint instability, hormonal shifts, and gut function.

    They discuss how patients with PVD or dysautonomia are especially sensitive to warm environments and what that teaches us about blood flow and pressure regulation.

    From favorite exercises to subtle red flags, they explore how to reintroduce movement without triggering crashes or setbacks.

    Compression, salt loading, movement timing, and cooling tools can turn a nightmare trip into a manageable one.


    Want more Dr. Alexis Cutchins?


    Find the episode transcript here.


    https://www.instagram.com/drcutchins/

    https://youtube.com/@DrCutchins?si=pNvR2A6eFOL4vS9m




    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


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    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


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    ]]>     4304     What No One Tells You About Pregnancy with EDS | Office Hours (Ep 174) Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies. From racing heart rates and failed epidurals to postpartum complications and misunderstood mental health shifts, we’re laying it all out. We explore rapid labor, prolapse risk, anesthetic resistance, dysautonomia flares, pelvic floor fragility, and why some babies bruise easier than doctors expect. Whether you're prepping for pregnancy, navigating birth, or recovering afterward, this is your roadmap for a more informed journey. Takeaways: Pregnancy with EDS or HSD isn't automatically high-risk, but it comes with specific concerns like tissue fragility, anesthesia resistance, and prolapse that OBs may overlook. Labor can be rapid and unpredictable in people with connective tissue disorders, making delivery planning (and backup plans) especially important. Local anesthetics may not work as expected, so communicating prior resistance to meds like lidocaine is crucial for anesthesia teams. Postpartum recovery often takes longer, with higher risk of complications like joint instability, slow healing, and mental health shifts, including postpartum depression. Medical students with EDS should choose specialties with pacing and physical demand in mind, considering how residency schedules and procedures might affect long-term career sustainability. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 Dec 2025 10:00:00 -0000 full Dr. Linda Bluestein Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies. From racing heart rates and failed epidurals to postpartum complications and misunderstood mental health shifts, we’re laying it all out. We explore rapid labor, prolapse risk, anesthetic resistance, dysautonomia flares, pelvic floor fragility, and why some babies bruise easier than doctors expect. Whether you're prepping for pregnancy, navigating birth, or recovering afterward, this is your roadmap for a more informed journey. Takeaways: Pregnancy with EDS or HSD isn't automatically high-risk, but it comes with specific concerns like tissue fragility, anesthesia resistance, and prolapse that OBs may overlook. Labor can be rapid and unpredictable in people with connective tissue disorders, making delivery planning (and backup plans) especially important. Local anesthetics may not work as expected, so communicating prior resistance to meds like lidocaine is crucial for anesthesia teams. Postpartum recovery often takes longer, with higher risk of complications like joint instability, slow healing, and mental health shifts, including postpartum depression. Medical students with EDS should choose specialties with pacing and physical demand in mind, considering how residency schedules and procedures might affect long-term career sustainability. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies. From racing heart rates and failed epidurals to postpartum complications and misunderstood mental health shifts, we’re laying it all out. We explore rapid labor, prolapse risk, anesthetic resistance, dysautonomia flares, pelvic floor fragility, and why some babies bruise easier than doctors expect. Whether you're prepping for pregnancy, navigating birth, or recovering afterward, this is your roadmap for a more informed journey.

    Takeaways:


    Pregnancy with EDS or HSD isn't automatically high-risk, but it comes with specific concerns like tissue fragility, anesthesia resistance, and prolapse that OBs may overlook.


    Labor can be rapid and unpredictable in people with connective tissue disorders, making delivery planning (and backup plans) especially important.


    Local anesthetics may not work as expected, so communicating prior resistance to meds like lidocaine is crucial for anesthesia teams.


    Postpartum recovery often takes longer, with higher risk of complications like joint instability, slow healing, and mental health shifts, including postpartum depression.



    Medical students with EDS should choose specialties with pacing and physical demand in mind, considering how residency schedules and procedures might affect long-term career sustainability.


    Find the episode transcript here.


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2981     Why Are So Many People Misdiagnosed With TMJ Disorders? With Professor Renton (Ep 173) In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders. Together, they unpack why so many patients suffer from persistent facial, jaw, or head pain despite “normal” scans and what magnetic resonance neurography (MRN) can reveal that traditional imaging might miss. They also dig into local anesthetic reactions, the limitations of pain scales, and how to distinguish between healthy vs. unhealthy pain. . Takeaways Professor Renton explains how magnetic resonance neurography (MRN) can detect nerve irritation that typical MRIs may miss, especially in TMJ and facial pain cases. You’ll hear how migraine-related nerve dysfunction can present as jaw pain, facial burning, or unexplained dental sensitivity without classic migraine symptoms. They explore how patients with conditions like mast cell activation may react to preservatives or delivery mechanisms in numbing agents, even if allergy tests are negative. The conversation questions whether traditional 1-to-10 pain rating tools capture the lived experience of chronic nerve or facial pain and what alternatives might help. Dr. Bluestein and Professor Renton discuss how to recognize pain that signals normal healing versus pain that points to long-term nerve dysfunction or central sensitization. Find the episode transcript here. Want more Professor Tara Renton? Website: https://orofacialpain.org.uk/ Youtube: https://www.youtube.com/watch?v=pKw1La6H5Dw Linkedin: https://www.linkedin.com/in/tara-renton-a5999018/?originalSubdomain=uk Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 04 Dec 2025 10:00:00 -0000 full Dr. Linda Bluestein In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders. Together, they unpack why so many patients suffer from persistent facial, jaw, or head pain despite “normal” scans and what magnetic resonance neurography (MRN) can reveal that traditional imaging might miss. They also dig into local anesthetic reactions, the limitations of pain scales, and how to distinguish between healthy vs. unhealthy pain. . Takeaways Professor Renton explains how magnetic resonance neurography (MRN) can detect nerve irritation that typical MRIs may miss, especially in TMJ and facial pain cases. You’ll hear how migraine-related nerve dysfunction can present as jaw pain, facial burning, or unexplained dental sensitivity without classic migraine symptoms. They explore how patients with conditions like mast cell activation may react to preservatives or delivery mechanisms in numbing agents, even if allergy tests are negative. The conversation questions whether traditional 1-to-10 pain rating tools capture the lived experience of chronic nerve or facial pain and what alternatives might help. Dr. Bluestein and Professor Renton discuss how to recognize pain that signals normal healing versus pain that points to long-term nerve dysfunction or central sensitization. Find the episode transcript here. Want more Professor Tara Renton? Website: https://orofacialpain.org.uk/ Youtube: https://www.youtube.com/watch?v=pKw1La6H5Dw Linkedin: https://www.linkedin.com/in/tara-renton-a5999018/?originalSubdomain=uk Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders. Together, they unpack why so many patients suffer from persistent facial, jaw, or head pain despite “normal” scans and what magnetic resonance neurography (MRN) can reveal that traditional imaging might miss. They also dig into local anesthetic reactions, the limitations of pain scales, and how to distinguish between healthy vs. unhealthy pain. .


    Takeaways


    Professor Renton explains how magnetic resonance neurography (MRN) can detect nerve irritation that typical MRIs may miss, especially in TMJ and facial pain cases.


    You’ll hear how migraine-related nerve dysfunction can present as jaw pain, facial burning, or unexplained dental sensitivity without classic migraine symptoms.


    They explore how patients with conditions like mast cell activation may react to preservatives or delivery mechanisms in numbing agents, even if allergy tests are negative.


    The conversation questions whether traditional 1-to-10 pain rating tools capture the lived experience of chronic nerve or facial pain and what alternatives might help.



    Dr. Bluestein and Professor Renton discuss how to recognize pain that signals normal healing versus pain that points to long-term nerve dysfunction or central sensitization.


    Find the episode transcript here.


    Want more Professor Tara Renton?


    Website: https://orofacialpain.org.uk/

    Youtube: https://www.youtube.com/watch?v=pKw1La6H5Dw

    Linkedin: https://www.linkedin.com/in/tara-renton-a5999018/?originalSubdomain=uk


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4676     The Truth About Ballet Bodies with ABTs Skylar Brandt (Ep 172) In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level. Skylar pulls back the curtain on the physical and psychological demands of elite ballet—the toll it takes, the constant adaptations required to avoid breakdown, and the pressure of sustaining a career where your body, your art, and your livelihood are inseparably intertwined. She speaks candidly about navigating the challenges of less-flexible feet in an industry that glorifies extreme range, and why the dance world must rethink the “more is better” mentality. But one of Skylar’s most powerful messages is the importance of listening to your body—learning when to push, when to modify, and when to stop—wisdom that applies not only to dancers, but to anyone striving for longevity in a demanding field. This episode dives into the high-stakes intersection of artistry, athleticism, body awareness, and survival, offering a rare and riveting look behind the curtain of one of the world’s most unforgiving professions. Takeaways: Skylar reveals how elite performers balance on the edge of injury, often compensating in ways that hide the real damage. Despite growing awareness, the aesthetic of fragility still reigns and muscular dancers are often questioned, even sidelined. Jennifer and Dr. Bluestein challenge the outdated idea that power ruins grace and Skylar proves it’s possible to embody both. Skylar shares how her body learned to work around instability and what happened when those patterns stopped serving her. From pelvic stability to core engagement, Skylar’s journey shows how science-backed support can extend performance careers. Find the episode transcript here. Want more Skylar Brandt? Instagram: @skylarbrandt Want more Jennifer Milner? Instagram: https://www.instagram.com/jennifer.milner/?hl=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Tue, 25 Nov 2025 10:00:00 -0000 full Dr. Linda Bluestein In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level. Skylar pulls back the curtain on the physical and psychological demands of elite ballet—the toll it takes, the constant adaptations required to avoid breakdown, and the pressure of sustaining a career where your body, your art, and your livelihood are inseparably intertwined. She speaks candidly about navigating the challenges of less-flexible feet in an industry that glorifies extreme range, and why the dance world must rethink the “more is better” mentality. But one of Skylar’s most powerful messages is the importance of listening to your body—learning when to push, when to modify, and when to stop—wisdom that applies not only to dancers, but to anyone striving for longevity in a demanding field. This episode dives into the high-stakes intersection of artistry, athleticism, body awareness, and survival, offering a rare and riveting look behind the curtain of one of the world’s most unforgiving professions. Takeaways: Skylar reveals how elite performers balance on the edge of injury, often compensating in ways that hide the real damage. Despite growing awareness, the aesthetic of fragility still reigns and muscular dancers are often questioned, even sidelined. Jennifer and Dr. Bluestein challenge the outdated idea that power ruins grace and Skylar proves it’s possible to embody both. Skylar shares how her body learned to work around instability and what happened when those patterns stopped serving her. From pelvic stability to core engagement, Skylar’s journey shows how science-backed support can extend performance careers. Find the episode transcript here. Want more Skylar Brandt? Instagram: @skylarbrandt Want more Jennifer Milner? Instagram: https://www.instagram.com/jennifer.milner/?hl=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level. Skylar pulls back the curtain on the physical and psychological demands of elite ballet—the toll it takes, the constant adaptations required to avoid breakdown, and the pressure of sustaining a career where your body, your art, and your livelihood are inseparably intertwined.

    She speaks candidly about navigating the challenges of less-flexible feet in an industry that glorifies extreme range, and why the dance world must rethink the “more is better” mentality. But one of Skylar’s most powerful messages is the importance of listening to your body—learning when to push, when to modify, and when to stop—wisdom that applies not only to dancers, but to anyone striving for longevity in a demanding field.

    This episode dives into the high-stakes intersection of artistry, athleticism, body awareness, and survival, offering a rare and riveting look behind the curtain of one of the world’s most unforgiving professions.


    Takeaways:

    Skylar reveals how elite performers balance on the edge of injury, often compensating in ways that hide the real damage.

    Despite growing awareness, the aesthetic of fragility still reigns and muscular dancers are often questioned, even sidelined.

    Jennifer and Dr. Bluestein challenge the outdated idea that power ruins grace and Skylar proves it’s possible to embody both.

    Skylar shares how her body learned to work around instability and what happened when those patterns stopped serving her.

    From pelvic stability to core engagement, Skylar’s journey shows how science-backed support can extend performance careers.


    Find the episode transcript here.


    Want more Skylar Brandt?

    Instagram: @skylarbrandt


    Want more Jennifer Milner?

    Instagram: https://www.instagram.com/jennifer.milner/?hl=en


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4552     From Nitrous to Nerves: MTHFR, CRPS & Cervical Collars Unpacked | Office Hours (EP 171) In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr. Bluestein explores how standard treatments can backfire, especially for patients with EDS, MCAS, or complex regional pain syndrome (CRPS). She also dives into the surprising risks of cervical collars, and why something that feels stabilizing may actually worsen pain over time. If you’ve ever been told your symptoms “shouldn’t be happening,” this episode might finally connect the dots. Takeaways Dr. Bluestein explains how this commonly used sedative can trigger or worsen neurological symptoms in vulnerable patients and why you might want to avoid it. From scar sensitivity to chronic nerve pain, Dr. Bluestein explores the challenges many face but few anticipate. You’ll learn when collars are truly helpful and when they might prolong instability, weakness, and pain. This condition affects the nervous system in ways most clinicians miss. Dr. Bluestein breaks down how to recognize early signs and advocate for better care. Dr. Bluestein reveals the disconnect between standard protocols and what EDS/MCAS patients actually experience in the OR and during recovery. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Nov 2025 10:00:00 -0000 full Dr. Linda Bluestein In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr. Bluestein explores how standard treatments can backfire, especially for patients with EDS, MCAS, or complex regional pain syndrome (CRPS). She also dives into the surprising risks of cervical collars, and why something that feels stabilizing may actually worsen pain over time. If you’ve ever been told your symptoms “shouldn’t be happening,” this episode might finally connect the dots. Takeaways Dr. Bluestein explains how this commonly used sedative can trigger or worsen neurological symptoms in vulnerable patients and why you might want to avoid it. From scar sensitivity to chronic nerve pain, Dr. Bluestein explores the challenges many face but few anticipate. You’ll learn when collars are truly helpful and when they might prolong instability, weakness, and pain. This condition affects the nervous system in ways most clinicians miss. Dr. Bluestein breaks down how to recognize early signs and advocate for better care. Dr. Bluestein reveals the disconnect between standard protocols and what EDS/MCAS patients actually experience in the OR and during recovery. Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr. Bluestein explores how standard treatments can backfire, especially for patients with EDS, MCAS, or complex regional pain syndrome (CRPS). She also dives into the surprising risks of cervical collars, and why something that feels stabilizing may actually worsen pain over time. If you’ve ever been told your symptoms “shouldn’t be happening,” this episode might finally connect the dots.


    Takeaways

    Dr. Bluestein explains how this commonly used sedative can trigger or worsen neurological symptoms in vulnerable patients and why you might want to avoid it.

    From scar sensitivity to chronic nerve pain, Dr. Bluestein explores the challenges many face but few anticipate.

    You’ll learn when collars are truly helpful and when they might prolong instability, weakness, and pain.

    This condition affects the nervous system in ways most clinicians miss. Dr. Bluestein breaks down how to recognize early signs and advocate for better care.

    Dr. Bluestein reveals the disconnect between standard protocols and what EDS/MCAS patients actually experience in the OR and during recovery.

    Find the episode transcript here.

    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2510     When Surgery Isn’t Simple: What hEDS Patients Should Know Before Going Under | Office Hours (Ep 170) In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her unique perspective as both a physician and a patient. With honesty and a touch of humor, she tackles everything from her least favorite diagnosis to how she manages confusing or contradictory advice. Whether you’re new to these conditions or deep in the weeds, this conversation brings clarity to complexity. Takeaways: Dr. Bluestein dives into why some patients need significantly more, or less, medication to stay under, and why it’s not your fault if things felt “off.” She explores how connective tissue disorders can affect everything from wound healing to joint positioning on the table. Learn how dysautonomia, MCAS, and EDS can complicate anesthesia depth and pain perception during and after surgery. Linda reflects on how emotional trauma and sensory overwhelm can turn recovery into a mental marathon and why that deserves more attention. From advocating for specific anesthesia plans to bringing your own blanket (really), Dr. Bluestein shares what patients can do to stay safer and more comfortable. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 13 Nov 2025 10:00:00 -0000 full Dr. Linda Bluestein In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her unique perspective as both a physician and a patient. With honesty and a touch of humor, she tackles everything from her least favorite diagnosis to how she manages confusing or contradictory advice. Whether you’re new to these conditions or deep in the weeds, this conversation brings clarity to complexity. Takeaways: Dr. Bluestein dives into why some patients need significantly more, or less, medication to stay under, and why it’s not your fault if things felt “off.” She explores how connective tissue disorders can affect everything from wound healing to joint positioning on the table. Learn how dysautonomia, MCAS, and EDS can complicate anesthesia depth and pain perception during and after surgery. Linda reflects on how emotional trauma and sensory overwhelm can turn recovery into a mental marathon and why that deserves more attention. From advocating for specific anesthesia plans to bringing your own blanket (really), Dr. Bluestein shares what patients can do to stay safer and more comfortable. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her unique perspective as both a physician and a patient. With honesty and a touch of humor, she tackles everything from her least favorite diagnosis to how she manages confusing or contradictory advice. Whether you’re new to these conditions or deep in the weeds, this conversation brings clarity to complexity.

    Takeaways:

    Dr. Bluestein dives into why some patients need significantly more, or less, medication to stay under, and why it’s not your fault if things felt “off.”

    She explores how connective tissue disorders can affect everything from wound healing to joint positioning on the table.

    Learn how dysautonomia, MCAS, and EDS can complicate anesthesia depth and pain perception during and after surgery.

    Linda reflects on how emotional trauma and sensory overwhelm can turn recovery into a mental marathon and why that deserves more attention.

    From advocating for specific anesthesia plans to bringing your own blanket (really), Dr. Bluestein shares what patients can do to stay safer and more comfortable.

    References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com.



    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2430     Could Psychiatric Symptoms Be Hiding a Physical Illness? with Dr. Janet Settle (Ep 169) In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psychiatric illness, and why so many patients are misdiagnosed, medicated, and misunderstood. With deep expertise in trauma-informed psychiatry, Dr. Settle explains how MCAS and other overlooked conditions could be the real cause behind persistent mental health symptoms and what it takes to finally get the right diagnosis. Takeaways: Dr. Settle explains how MCAS can present as psychiatric symptoms like panic, depression, or brain fog—long before classic allergy symptoms appear. The conversation explores how common psych meds can actually exacerbate MCAS-related symptoms in some patients, leading to confusing outcomes. Learn how past trauma and immune dysregulation may work together to create a complex feedback loop—affecting mood, cognition, and inflammation. Many patients are labeled with mental illness for years before MCAS or other immune-based conditions are considered. Dr. Settle shares why this misdiagnosis is so common. Discover how identifying MCAS and understanding its psychiatric presentations can open the door to treatments that actually work—and a life patients didn’t think was possible. Find the episode transcript here. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Dr. Janet Settle? https://www.linkedin.com/in/janet-settle-md-b2666142/ www.janetsettle.com www.Gateway2Healing.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 06 Nov 2025 10:00:00 -0000 full Dr. Linda Bluestein In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psychiatric illness, and why so many patients are misdiagnosed, medicated, and misunderstood. With deep expertise in trauma-informed psychiatry, Dr. Settle explains how MCAS and other overlooked conditions could be the real cause behind persistent mental health symptoms and what it takes to finally get the right diagnosis. Takeaways: Dr. Settle explains how MCAS can present as psychiatric symptoms like panic, depression, or brain fog—long before classic allergy symptoms appear. The conversation explores how common psych meds can actually exacerbate MCAS-related symptoms in some patients, leading to confusing outcomes. Learn how past trauma and immune dysregulation may work together to create a complex feedback loop—affecting mood, cognition, and inflammation. Many patients are labeled with mental illness for years before MCAS or other immune-based conditions are considered. Dr. Settle shares why this misdiagnosis is so common. Discover how identifying MCAS and understanding its psychiatric presentations can open the door to treatments that actually work—and a life patients didn’t think was possible. Find the episode transcript here. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Dr. Janet Settle? https://www.linkedin.com/in/janet-settle-md-b2666142/ www.janetsettle.com www.Gateway2Healing.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psychiatric illness, and why so many patients are misdiagnosed, medicated, and misunderstood. With deep expertise in trauma-informed psychiatry, Dr. Settle explains how MCAS and other overlooked conditions could be the real cause behind persistent mental health symptoms and what it takes to finally get the right diagnosis.


    Takeaways:

    Dr. Settle explains how MCAS can present as psychiatric symptoms like panic, depression, or brain fog—long before classic allergy symptoms appear.


    The conversation explores how common psych meds can actually exacerbate MCAS-related symptoms in some patients, leading to confusing outcomes.


    Learn how past trauma and immune dysregulation may work together to create a complex feedback loop—affecting mood, cognition, and inflammation.


    Many patients are labeled with mental illness for years before MCAS or other immune-based conditions are considered. Dr. Settle shares why this misdiagnosis is so common.



    Discover how identifying MCAS and understanding its psychiatric presentations can open the door to treatments that actually work—and a life patients didn’t think was possible.


    Find the episode transcript here.


    References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com.


    Want more Dr. Janet Settle?


    https://www.linkedin.com/in/janet-settle-md-b2666142/

    www.janetsettle.com

    www.Gateway2Healing.com


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4352     From Palliative Care to Purpose: The Tilly Rose Story (Ep 168) In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn’t know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. Find the episode transcript here. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 30 Oct 2025 09:00:00 -0000 full Dr. Linda Bluestein In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn’t know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. Find the episode transcript here. References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com. Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn’t know what to do with you.


    Takeaways

    What happens when a diagnosis rewrites your life story and how can you reclaim the pen?


    Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir.


    Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.”


    Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change?


    Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment.


    Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future.


    Find the episode transcript here.


    References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com.


    Want more Tilly Rose?


    https://www.instagram.com/thattillyrose/?hl=en

    https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr

    https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk

    https://www.tiktok.com/@thattillyrose?lang=en




    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4911     The Diagnosis Hiding In Your Pelvis with Dr. Alexis Cutchins (Ep 167) In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chronic pelvic pain and how many patients are left cycling through specialists without answers. From diagnostic challenges to emerging treatments, this episode will change the way you think about pelvic pain and complex multisystem illness. Find the episode transcript here. Have a question you’d like answered in Part 2 with Dr. Cutchins? Submit here! Resources mentioned: Learn more about Sheer Health WHO Oral Rehydration Salts Study Want more Dr. Alexis Cutchins? Find @drcutchins on Instagram and YouTube Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 23 Oct 2025 09:00:00 -0000 full Dr. Linda Bluestein In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chronic pelvic pain and how many patients are left cycling through specialists without answers. From diagnostic challenges to emerging treatments, this episode will change the way you think about pelvic pain and complex multisystem illness. Find the episode transcript here. Have a question you’d like answered in Part 2 with Dr. Cutchins? Submit here! Resources mentioned: Learn more about Sheer Health WHO Oral Rehydration Salts Study Want more Dr. Alexis Cutchins? Find @drcutchins on Instagram and YouTube Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chronic pelvic pain and how many patients are left cycling through specialists without answers. From diagnostic challenges to emerging treatments, this episode will change the way you think about pelvic pain and complex multisystem illness.

    Find the episode transcript here.


    Have a question you’d like answered in Part 2 with Dr. Cutchins? Submit here!


    Resources mentioned:


    Want more Dr. Alexis Cutchins? Find @drcutchins on Instagram and YouTube


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.


    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3234     What If Your Spine Surgery Wasn't Necessary? with Dr. Betsy Grunch (Ep 166) In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by neurosurgeon and social media educator Dr. Betsy Grunch to tackle complex questions around spine health, chronic pain, and the unique challenges faced by people with hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes (EDS). Together, they explore why “normal” MRIs don’t always tell the whole story, when surgery is (and isn’t) the right option, and how the healthcare system sometimes overlooks the needs of patients living with invisible or misunderstood conditions. Dr. Grunch shares what she’s seeing in the OR, what she’s hearing from patients online, and how she’s trying to change the narrative, one compassionate conversation at a time. Takeaways Dr. Grunch explains how patients can feel intense pain even when imaging appears "normal"—and why that doesn't mean the pain isn’t real. Learn why people with EDS or joint instability may need a different approach—and what surgeons should know before operating. Dr. Grunch talks about the importance of timing, accurate diagnosis, and avoiding unnecessary procedures when conservative options could work. From TikTok DMs to comment sections, Dr. Grunch shares how social media is reshaping her perspective on what patients need. Through open communication and education, Dr. Grunch offers a refreshing take on how specialists can avoid bias and embrace curiosity. Find the episode transcript here. References: Ep 137: https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/ Want more Dr. Betsy Grunch? https://www.x.com/ladyspinedoc https://www.instagram.com/ladyspinedoc https://www.facebook.com/ladyspinedoc https://www.youtube.com/@ladyspinedoc https://www.linkedin.com/in/drgrunch/ https://www.tiktok.com/@ladyspinedoc Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 16 Oct 2025 09:00:00 -0000 full Dr. Linda Bluestein In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by neurosurgeon and social media educator Dr. Betsy Grunch to tackle complex questions around spine health, chronic pain, and the unique challenges faced by people with hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes (EDS). Together, they explore why “normal” MRIs don’t always tell the whole story, when surgery is (and isn’t) the right option, and how the healthcare system sometimes overlooks the needs of patients living with invisible or misunderstood conditions. Dr. Grunch shares what she’s seeing in the OR, what she’s hearing from patients online, and how she’s trying to change the narrative, one compassionate conversation at a time. Takeaways Dr. Grunch explains how patients can feel intense pain even when imaging appears "normal"—and why that doesn't mean the pain isn’t real. Learn why people with EDS or joint instability may need a different approach—and what surgeons should know before operating. Dr. Grunch talks about the importance of timing, accurate diagnosis, and avoiding unnecessary procedures when conservative options could work. From TikTok DMs to comment sections, Dr. Grunch shares how social media is reshaping her perspective on what patients need. Through open communication and education, Dr. Grunch offers a refreshing take on how specialists can avoid bias and embrace curiosity. Find the episode transcript here. References: Ep 137: https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/ Want more Dr. Betsy Grunch? https://www.x.com/ladyspinedoc https://www.instagram.com/ladyspinedoc https://www.facebook.com/ladyspinedoc https://www.youtube.com/@ladyspinedoc https://www.linkedin.com/in/drgrunch/ https://www.tiktok.com/@ladyspinedoc Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by neurosurgeon and social media educator Dr. Betsy Grunch to tackle complex questions around spine health, chronic pain, and the unique challenges faced by people with hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes (EDS). Together, they explore why “normal” MRIs don’t always tell the whole story, when surgery is (and isn’t) the right option, and how the healthcare system sometimes overlooks the needs of patients living with invisible or misunderstood conditions. Dr. Grunch shares what she’s seeing in the OR, what she’s hearing from patients online, and how she’s trying to change the narrative, one compassionate conversation at a time.


    Takeaways

    Dr. Grunch explains how patients can feel intense pain even when imaging appears "normal"—and why that doesn't mean the pain isn’t real.


    Learn why people with EDS or joint instability may need a different approach—and what surgeons should know before operating.


    Dr. Grunch talks about the importance of timing, accurate diagnosis, and avoiding unnecessary procedures when conservative options could work.


    From TikTok DMs to comment sections, Dr. Grunch shares how social media is reshaping her perspective on what patients need.


    Through open communication and education, Dr. Grunch offers a refreshing take on how specialists can avoid bias and embrace curiosity.


    Find the episode transcript here.


    References:


    Ep 137: https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/


    Want more Dr. Betsy Grunch?


    https://www.x.com/ladyspinedoc

    https://www.instagram.com/ladyspinedoc

    https://www.facebook.com/ladyspinedoc

    https://www.youtube.com/@ladyspinedoc

    https://www.linkedin.com/in/drgrunch/

    https://www.tiktok.com/@ladyspinedoc


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4282     Dancing Stronger: Smarter Training for Bendy Bodies with Jennifer Milner (BEN 165) In this empowering episode, Dr. Linda Bluestein is joined by OG Bendy Bodies cohost, Jennifer Milner.  Jen is a ballet coach, Pilates trainer, and specialist in working with hypermobile bodies. Together they explore why traditional movement cues don’t always work for bendy bodies, how dancers and athletes can train smarter (not harder), and what it really takes to move with strength when your body doesn’t follow the rules. From injury prevention to body awareness and emotional recovery, this conversation is a must-listen for anyone living in or coaching a flexible, fragile, or frequently misunderstood body. Takeaways What if the training cues you’ve always heard—like “pull your belly button in”—are actually setting hypermobile dancers up for injury? Could “engage your glutes” or other classic instructions be doing more harm than good for bendy bodies? Discover how Jennifer helps dancers feel in control of their limbs—even when movement feels disconnected or confusing. Why do so many talented performers burn out early, and how can mindset shifts and body literacy turn that story around? Learn what it really means to train with your body instead of fighting against it—especially when your body doesn’t follow the rules. Find the episode transcript here. References: Pointe Safe by SF Performing Arts PT, Dr. Kendall Alway https://www.sfperformingartspt.com/pointe-safe Pre-pointe Assessment, Lisa Howell https://theballetblog.com/blog/pointe-articles/pre-pointe-assessment/ Pointe Assessment Journal Article https://pubmed.ncbi.nlm.nih.gov/39723557/ Want more Jessica Milner? Instagram: https://www.instagram.com/jennifer.milner/?hl=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 Oct 2025 09:00:00 -0000 full Dr. Linda Bluestein In this empowering episode, Dr. Linda Bluestein is joined by OG Bendy Bodies cohost, Jennifer Milner.  Jen is a ballet coach, Pilates trainer, and specialist in working with hypermobile bodies. Together they explore why traditional movement cues don’t always work for bendy bodies, how dancers and athletes can train smarter (not harder), and what it really takes to move with strength when your body doesn’t follow the rules. From injury prevention to body awareness and emotional recovery, this conversation is a must-listen for anyone living in or coaching a flexible, fragile, or frequently misunderstood body. Takeaways What if the training cues you’ve always heard—like “pull your belly button in”—are actually setting hypermobile dancers up for injury? Could “engage your glutes” or other classic instructions be doing more harm than good for bendy bodies? Discover how Jennifer helps dancers feel in control of their limbs—even when movement feels disconnected or confusing. Why do so many talented performers burn out early, and how can mindset shifts and body literacy turn that story around? Learn what it really means to train with your body instead of fighting against it—especially when your body doesn’t follow the rules. Find the episode transcript here. References: Pointe Safe by SF Performing Arts PT, Dr. Kendall Alway https://www.sfperformingartspt.com/pointe-safe Pre-pointe Assessment, Lisa Howell https://theballetblog.com/blog/pointe-articles/pre-pointe-assessment/ Pointe Assessment Journal Article https://pubmed.ncbi.nlm.nih.gov/39723557/ Want more Jessica Milner? Instagram: https://www.instagram.com/jennifer.milner/?hl=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this empowering episode, Dr. Linda Bluestein is joined by OG Bendy Bodies cohost, Jennifer Milner.  Jen is a ballet coach, Pilates trainer, and specialist in working with hypermobile bodies. Together they explore why traditional movement cues don’t always work for bendy bodies, how dancers and athletes can train smarter (not harder), and what it really takes to move with strength when your body doesn’t follow the rules. From injury prevention to body awareness and emotional recovery, this conversation is a must-listen for anyone living in or coaching a flexible, fragile, or frequently misunderstood body.


    Takeaways

    • What if the training cues you’ve always heard—like “pull your belly button in”—are actually setting hypermobile dancers up for injury?

    • Could “engage your glutes” or other classic instructions be doing more harm than good for bendy bodies?

    • Discover how Jennifer helps dancers feel in control of their limbs—even when movement feels disconnected or confusing.

    • Why do so many talented performers burn out early, and how can mindset shifts and body literacy turn that story around?

    • Learn what it really means to train with your body instead of fighting against it—especially when your body doesn’t follow the rules.

    Find the episode transcript here.


    References:


    Pointe Safe by SF Performing Arts PT, Dr. Kendall Alway

    https://www.sfperformingartspt.com/pointe-safe


    Pre-pointe Assessment, Lisa Howell

    https://theballetblog.com/blog/pointe-articles/pre-pointe-assessment/


    Pointe Assessment Journal Article

    https://pubmed.ncbi.nlm.nih.gov/39723557/


    Want more Jessica Milner?


    Instagram: https://www.instagram.com/jennifer.milner/?hl=en


    Want more Dr. Linda Bluestein, MD?

    Website: https://www.hypermobilitymd.com/

    YouTube: https://www.youtube.com/@bendybodiespodcast

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/

    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd

    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠


    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠


    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4547     Are You Being Gaslit About Hormones and Health? | Office Hours (Ep 164) In this raw and reflective Office Hours episode, Dr. Linda Bluestein responds to listener feedback and dives deep into the cultural and clinical gaslighting faced by people, especially women, navigating complex health conditions. From the dismissal of perimenopause to the rise of so-called “TikTok diseases,” Dr. Bluestein explores the dangerous disconnect between lived experiences and clinical skepticism. She also unpacks a now-infamous comment involving tuna, and what it reveals about how the medical community sometimes chooses ridicule over reflection. This episode is equal parts fiery and thoughtful, a must-listen for anyone tired of being misunderstood. Find the episode transcript here. Additional Information: Red Flags: https://www.bendybodiespodcast.com/p/redflags/Bobby Jones CSF Together We Thrive Summit Lectures: https://bobbyjonescsf.org/i-am-patient/patient-conference/ Road to 2026: https://www.ehlers-danlos.com/road-to-2026/Registries:  Dysautonomia Project: https://thedysautonomiaproject.org/find-a-provider/ Dysautonomia International: https://dysautonomiainternational.org/page.php?ID=14Genetic Counselor Registry: https://abgc.learningbuilder.com/Search/Public/MemberRole/VerificationMy Webinar ‘Hypermobility – Diagnosis and Treatment in the MCAS patient’: https://shop.ehlers-danlos.org/product/dr-linda-bluestein-the-hypermobility-md-hypermobility-disorders-specialist/?utm_source=chatgpt.comMENS PMMS Approach: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307&utm_source=chatgpt.comCurbsiders Episode: Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155): https://www.bendybodiespodcast.com/gluten-mthfr-mast-cells-and-more-office-hours-ep-155/?utm_source=chatgpt.comNIH article on mercury and mast cells: https://pmc.ncbi.nlm.nih.gov/articles/PMC2850891/Dr. Mary Claire's Substack: https://open.substack.com/pub/drmaryclairehaver/p/what-nearly-1000-women-told-me-about?r=1vualn&utm_medium=iosTestosterone is Essential for Women with Dr. Kelly Casperson (Ep 131): https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/Sex hormones and allergies: exploring the gender differences in immune responses: https://www.frontiersin.org/journals/allergy/articles/10.3389/falgy.2024.1483919/fullImpact of progesterone on the immune system in women: https://pmc.ncbi.nlm.nih.gov/articles/PMC10024519/ Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Join YOUR Bendy Bodies community at ⁠⁠⁠https://www.bendybodiespodcast.com/⁠⁠⁠. Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 02 Oct 2025 09:00:00 -0000 full Dr. Linda Bluestein In this raw and reflective Office Hours episode, Dr. Linda Bluestein responds to listener feedback and dives deep into the cultural and clinical gaslighting faced by people, especially women, navigating complex health conditions. From the dismissal of perimenopause to the rise of so-called “TikTok diseases,” Dr. Bluestein explores the dangerous disconnect between lived experiences and clinical skepticism. She also unpacks a now-infamous comment involving tuna, and what it reveals about how the medical community sometimes chooses ridicule over reflection. This episode is equal parts fiery and thoughtful, a must-listen for anyone tired of being misunderstood. Find the episode transcript here. Additional Information: Red Flags: https://www.bendybodiespodcast.com/p/redflags/Bobby Jones CSF Together We Thrive Summit Lectures: https://bobbyjonescsf.org/i-am-patient/patient-conference/ Road to 2026: https://www.ehlers-danlos.com/road-to-2026/Registries:  Dysautonomia Project: https://thedysautonomiaproject.org/find-a-provider/ Dysautonomia International: https://dysautonomiainternational.org/page.php?ID=14Genetic Counselor Registry: https://abgc.learningbuilder.com/Search/Public/MemberRole/VerificationMy Webinar ‘Hypermobility – Diagnosis and Treatment in the MCAS patient’: https://shop.ehlers-danlos.org/product/dr-linda-bluestein-the-hypermobility-md-hypermobility-disorders-specialist/?utm_source=chatgpt.comMENS PMMS Approach: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307&utm_source=chatgpt.comCurbsiders Episode: Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155): https://www.bendybodiespodcast.com/gluten-mthfr-mast-cells-and-more-office-hours-ep-155/?utm_source=chatgpt.comNIH article on mercury and mast cells: https://pmc.ncbi.nlm.nih.gov/articles/PMC2850891/Dr. Mary Claire's Substack: https://open.substack.com/pub/drmaryclairehaver/p/what-nearly-1000-women-told-me-about?r=1vualn&utm_medium=iosTestosterone is Essential for Women with Dr. Kelly Casperson (Ep 131): https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/Sex hormones and allergies: exploring the gender differences in immune responses: https://www.frontiersin.org/journals/allergy/articles/10.3389/falgy.2024.1483919/fullImpact of progesterone on the immune system in women: https://pmc.ncbi.nlm.nih.gov/articles/PMC10024519/ Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Join YOUR Bendy Bodies community at ⁠⁠⁠https://www.bendybodiespodcast.com/⁠⁠⁠. Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this raw and reflective Office Hours episode, Dr. Linda Bluestein responds to listener feedback and dives deep into the cultural and clinical gaslighting faced by people, especially women, navigating complex health conditions. From the dismissal of perimenopause to the rise of so-called “TikTok diseases,” Dr. Bluestein explores the dangerous disconnect between lived experiences and clinical skepticism. She also unpacks a now-infamous comment involving tuna, and what it reveals about how the medical community sometimes chooses ridicule over reflection. This episode is equal parts fiery and thoughtful, a must-listen for anyone tired of being misunderstood.


    Find the episode transcript here.


    Additional Information:

    Red Flags: https://www.bendybodiespodcast.com/p/redflags/
    Bobby Jones CSF Together We Thrive Summit Lectures: https://bobbyjonescsf.org/i-am-patient/patient-conference/


    Road to 2026: https://www.ehlers-danlos.com/road-to-2026/
    Registries: 

    Dysautonomia Project: https://thedysautonomiaproject.org/find-a-provider/

    Dysautonomia International: https://dysautonomiainternational.org/page.php?ID=14
    Genetic Counselor Registry: https://abgc.learningbuilder.com/Search/Public/MemberRole/Verification
    My Webinar ‘Hypermobility – Diagnosis and Treatment in the MCAS patient’: https://shop.ehlers-danlos.org/product/dr-linda-bluestein-the-hypermobility-md-hypermobility-disorders-specialist/?utm_source=chatgpt.com
    MENS PMMS Approach: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307&utm_source=chatgpt.com
    Curbsiders Episode: Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155): https://www.bendybodiespodcast.com/gluten-mthfr-mast-cells-and-more-office-hours-ep-155/?utm_source=chatgpt.com
    NIH article on mercury and mast cells: https://pmc.ncbi.nlm.nih.gov/articles/PMC2850891/
    Dr. Mary Claire's Substack: https://open.substack.com/pub/drmaryclairehaver/p/what-nearly-1000-women-told-me-about?r=1vualn&utm_medium=ios
    Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131): https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/
    Sex hormones and allergies: exploring the gender differences in immune responses: https://www.frontiersin.org/journals/allergy/articles/10.3389/falgy.2024.1483919/full
    Impact of progesterone on the immune system in women: https://pmc.ncbi.nlm.nih.gov/articles/PMC10024519/


    Want more Dr. Linda Bluestein, MD?
    Website:  https://www.hypermobilitymd.com/
    YouTube: https://www.youtube.com/@bendybodiespodcast
    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠
    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠
    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠
    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠
    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/
    Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd
    Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    YOUR bendy body is our highest priority!⁠⁠


    Join YOUR Bendy Bodies community at ⁠⁠⁠https://www.bendybodiespodcast.com/⁠⁠⁠.


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2906     Hidden Causes of Abdominal Pain in EDS with Dr. Pradeep Chopra (Ep 163) Abdominal pain in EDS can be a puzzle with countless hidden pieces. In this episode, Dr. Linda Bluestein welcomes back Dr. Pradeep Chopra for part two of their exploration into gastrointestinal problems. Together, they uncover overlooked causes of abdominal pain, from drooping intestines and tethered spinal cords to mast cell activation and nerve entrapment. Listeners will hear surprising connections between the spine, bladder, ribs, and gut, with insights that could explain symptoms often dismissed or misunderstood. Takeaways: How intestines “dropping” into the pelvis complicate digestion and bladder function. Why tethered cord surgery may relieve unexpected symptoms, including GI issues. The overlooked role of mast cell activation in abdominal pain and food intolerances. How abdominal pain can actually begin in the ribs, nerves, or pelvic floor. Why abdominal migraines and CRPS challenge traditional medical thinking. Find the episode transcript here. Want more Dr. Pradeep Chopra? Website: ⁠⁠https://www.painri.com/⁠⁠Contact Dr. Chopra’s Office: ⁠⁠⁠snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠⁠https://www.hypermobilitymd.com/⁠⁠⁠. YouTube: ⁠⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠⁠  Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠  Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠  X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠  LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠  Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠⁠ Shop my Amazon store ⁠⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Check out the following episodes to learn more: Find previous Bendy Bodies episodes featuring Dr. Pradeep Chopra here:https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/Find previous Bendy Bodies episodes featuring Dr. Theoharis Theoharides here:https://www.bendybodiespodcast.com/guests/theoharis-theoharide/Hidden Causes of Pain ‘Down There’ with Dr. Andrew Goldstein (Ep 148):https://www.bendybodiespodcast.com/hidden-causes-of-pain-down-there-with-dr-andrew-goldstein-ep-148/Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130): https://www.bendybodiespodcast.com/hidden-causes-of-painful-sex-ep-130/Slipping Rib Surgery in EDS with Adam Hansen, MD: https://www.bendybodiespodcast.com/videos/84-slipping-rib-surgery-in-eds-with-adam-hansen-md/Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137): https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/Why Do Some GI Problems Hide from Every Test? with Dr. Zachary Spiritos (Ep 153): https://www.bendybodiespodcast.com/why-do-some-gi-problems-hide-from-every-test-ep-153/ Join YOUR Bendy Bodies community at ⁠⁠⁠https://www.bendybodiespodcast.com/⁠⁠⁠. YOUR bendy body is our highest priority!⁠⁠⁠⁠ Learn more about Human Content at ⁠⁠⁠⁠http://www.human-content.com⁠⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠⁠sales@human-content.com⁠⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 Sep 2025 09:00:00 -0000 full Dr. Linda Bluestein Abdominal pain in EDS can be a puzzle with countless hidden pieces. In this episode, Dr. Linda Bluestein welcomes back Dr. Pradeep Chopra for part two of their exploration into gastrointestinal problems. Together, they uncover overlooked causes of abdominal pain, from drooping intestines and tethered spinal cords to mast cell activation and nerve entrapment. Listeners will hear surprising connections between the spine, bladder, ribs, and gut, with insights that could explain symptoms often dismissed or misunderstood. Takeaways: How intestines “dropping” into the pelvis complicate digestion and bladder function. Why tethered cord surgery may relieve unexpected symptoms, including GI issues. The overlooked role of mast cell activation in abdominal pain and food intolerances. How abdominal pain can actually begin in the ribs, nerves, or pelvic floor. Why abdominal migraines and CRPS challenge traditional medical thinking. Find the episode transcript here. Want more Dr. Pradeep Chopra? Website: ⁠⁠https://www.painri.com/⁠⁠Contact Dr. Chopra’s Office: ⁠⁠⁠snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠⁠https://www.hypermobilitymd.com/⁠⁠⁠. YouTube: ⁠⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠⁠  Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠  Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠  X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠  LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠  Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠⁠ Shop my Amazon store ⁠⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Check out the following episodes to learn more: Find previous Bendy Bodies episodes featuring Dr. Pradeep Chopra here:https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/Find previous Bendy Bodies episodes featuring Dr. Theoharis Theoharides here:https://www.bendybodiespodcast.com/guests/theoharis-theoharide/Hidden Causes of Pain ‘Down There’ with Dr. Andrew Goldstein (Ep 148):https://www.bendybodiespodcast.com/hidden-causes-of-pain-down-there-with-dr-andrew-goldstein-ep-148/Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130): https://www.bendybodiespodcast.com/hidden-causes-of-painful-sex-ep-130/Slipping Rib Surgery in EDS with Adam Hansen, MD: https://www.bendybodiespodcast.com/videos/84-slipping-rib-surgery-in-eds-with-adam-hansen-md/Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137): https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/Why Do Some GI Problems Hide from Every Test? with Dr. Zachary Spiritos (Ep 153): https://www.bendybodiespodcast.com/why-do-some-gi-problems-hide-from-every-test-ep-153/ Join YOUR Bendy Bodies community at ⁠⁠⁠https://www.bendybodiespodcast.com/⁠⁠⁠. YOUR bendy body is our highest priority!⁠⁠⁠⁠ Learn more about Human Content at ⁠⁠⁠⁠http://www.human-content.com⁠⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠⁠sales@human-content.com⁠⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Abdominal pain in EDS can be a puzzle with countless hidden pieces. In this episode, Dr. Linda Bluestein welcomes back Dr. Pradeep Chopra for part two of their exploration into gastrointestinal problems. Together, they uncover overlooked causes of abdominal pain, from drooping intestines and tethered spinal cords to mast cell activation and nerve entrapment. Listeners will hear surprising connections between the spine, bladder, ribs, and gut, with insights that could explain symptoms often dismissed or misunderstood.


    Takeaways:

    How intestines “dropping” into the pelvis complicate digestion and bladder function.

    Why tethered cord surgery may relieve unexpected symptoms, including GI issues.

    The overlooked role of mast cell activation in abdominal pain and food intolerances.

    How abdominal pain can actually begin in the ribs, nerves, or pelvic floor.

    Why abdominal migraines and CRPS challenge traditional medical thinking.


    Find the episode transcript here.


    Want more Dr. Pradeep Chopra?

    Website: ⁠⁠https://www.painri.com/⁠⁠
    Contact Dr. Chopra’s Office: ⁠⁠⁠snapa102@gmail.com


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠⁠https://www.hypermobilitymd.com/⁠⁠⁠.

    YouTube: ⁠⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠⁠ 

    Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ 

    Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ 

    X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ 

    Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠

    To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Check out the following episodes to learn more:

    Find previous Bendy Bodies episodes featuring Dr. Pradeep Chopra here:https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/
    Find previous Bendy Bodies episodes featuring Dr. Theoharis Theoharides here:
    https://www.bendybodiespodcast.com/guests/theoharis-theoharide/
    Hidden Causes of Pain ‘Down There’ with Dr. Andrew Goldstein (Ep 148):https://www.bendybodiespodcast.com/hidden-causes-of-pain-down-there-with-dr-andrew-goldstein-ep-148/
    Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130): https://www.bendybodiespodcast.com/hidden-causes-of-painful-sex-ep-130/
    Slipping Rib Surgery in EDS with Adam Hansen, MD: https://www.bendybodiespodcast.com/videos/84-slipping-rib-surgery-in-eds-with-adam-hansen-md/
    Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/
    Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137): https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/
    Why Do Some GI Problems Hide from Every Test? with Dr. Zachary Spiritos (Ep 153): https://www.bendybodiespodcast.com/why-do-some-gi-problems-hide-from-every-test-ep-153/


    Join YOUR Bendy Bodies community at ⁠⁠⁠https://www.bendybodiespodcast.com/⁠⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠⁠⁠


    Learn more about Human Content at ⁠⁠⁠⁠http://www.human-content.com⁠⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠⁠sales@human-content.com⁠⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4251     Hypermobility Problems with Anesthesiologist Dr. Linda Bluestein | Glaucomfleckens Bonus Episode In honor of Pain Awareness Month, I wanted to share an episode of one of my favorite healthcare podcasts, “Knock Knock Hi with the Glaucomfleckens.” In this interview from last July, Will and Kristin Flanary (AKA Dr. and Lady Glaucomflecken) kindly invited me on to talk about my journey from ballet to anesthesiology to integrative pain care, and how hypermobility and chronic pain are often overlooked or misunderstood in both medicine and everyday life. Listen to more episodes of “Knock Knock, Hi! with the Glaucomfleckens” wherever you get your podcasts, or watch on YouTube. https://www.human-content.com/kkh Bendy Bodies, alongside Knock Knock Hi with the Glaucomfleckens, is a proud part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Mon, 22 Sep 2025 16:05:00 -0000 full Dr. Linda Bluestein In honor of Pain Awareness Month, I wanted to share an episode of one of my favorite healthcare podcasts, “Knock Knock Hi with the Glaucomfleckens.” In this interview from last July, Will and Kristin Flanary (AKA Dr. and Lady Glaucomflecken) kindly invited me on to talk about my journey from ballet to anesthesiology to integrative pain care, and how hypermobility and chronic pain are often overlooked or misunderstood in both medicine and everyday life. Listen to more episodes of “Knock Knock, Hi! with the Glaucomfleckens” wherever you get your podcasts, or watch on YouTube. https://www.human-content.com/kkh Bendy Bodies, alongside Knock Knock Hi with the Glaucomfleckens, is a proud part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In honor of Pain Awareness Month, I wanted to share an episode of one of my favorite healthcare podcasts, “Knock Knock Hi with the Glaucomfleckens.” In this interview from last July, Will and Kristin Flanary (AKA Dr. and Lady Glaucomflecken) kindly invited me on to talk about my journey from ballet to anesthesiology to integrative pain care, and how hypermobility and chronic pain are often overlooked or misunderstood in both medicine and everyday life. Listen to more episodes of “Knock Knock, Hi! with the Glaucomfleckens” wherever you get your podcasts, or watch on YouTube. https://www.human-content.com/kkh Bendy Bodies, alongside Knock Knock Hi with the Glaucomfleckens, is a proud part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4022     EDS Foot and Ankle issues with Dr. Patrick Agnew (Ep 162) In this informative and eye-opening episode, Dr. Linda Bluestein sits down with foot and ankle surgeon Dr. Patrick Agnew, who specializes in treating patients with joint hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes. Together, they explore why lower extremity pain and dysfunction are so common and often misunderstood in EDS and HSD (Hypermobility Spectrum Disorders). From failed orthotics to unnecessary surgeries, they break down the biggest foot myths and offer practical advice for building stability, choosing footwear, and getting the right help before things spiral. This conversation will change the way you walk, literally and metaphorically. Takeaways Patrick Agnew explains why the “fallen arch” theory doesn’t always apply to hypermobile bodies and what to focus on instead. Learn when foot surgery helps, when it hurts, and why many EDS patients should think twice before going under the knife. Not all orthotics are created equal. Agnew shares why many fail—and how to find support that works with (not against) your anatomy. Chronic ankle injuries may signal more than weakness—they could be your body’s way of screaming for a new approach. Forget the trends. Discover how to pick footwear that supports your unique structure without creating more dysfunction. Find the episode transcript here. Want more Dr. Patrick Agnew? YT: ⁠https://www.youtube.com/watch?v=sPTK1lhGuP0⁠ FB: ⁠https://www.facebook.com/profile.php?id=100068257805669 Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ To check out all of my favorite products, please click on this link: ⁠https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 18 Sep 2025 09:00:00 -0000 full Dr. Linda Bluestein In this informative and eye-opening episode, Dr. Linda Bluestein sits down with foot and ankle surgeon Dr. Patrick Agnew, who specializes in treating patients with joint hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes. Together, they explore why lower extremity pain and dysfunction are so common and often misunderstood in EDS and HSD (Hypermobility Spectrum Disorders). From failed orthotics to unnecessary surgeries, they break down the biggest foot myths and offer practical advice for building stability, choosing footwear, and getting the right help before things spiral. This conversation will change the way you walk, literally and metaphorically. Takeaways Patrick Agnew explains why the “fallen arch” theory doesn’t always apply to hypermobile bodies and what to focus on instead. Learn when foot surgery helps, when it hurts, and why many EDS patients should think twice before going under the knife. Not all orthotics are created equal. Agnew shares why many fail—and how to find support that works with (not against) your anatomy. Chronic ankle injuries may signal more than weakness—they could be your body’s way of screaming for a new approach. Forget the trends. Discover how to pick footwear that supports your unique structure without creating more dysfunction. Find the episode transcript here. Want more Dr. Patrick Agnew? YT: ⁠https://www.youtube.com/watch?v=sPTK1lhGuP0⁠ FB: ⁠https://www.facebook.com/profile.php?id=100068257805669 Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ To check out all of my favorite products, please click on this link: ⁠https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this informative and eye-opening episode, Dr. Linda Bluestein sits down with foot and ankle surgeon Dr. Patrick Agnew, who specializes in treating patients with joint hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes. Together, they explore why lower extremity pain and dysfunction are so common and often misunderstood in EDS and HSD (Hypermobility Spectrum Disorders). From failed orthotics to unnecessary surgeries, they break down the biggest foot myths and offer practical advice for building stability, choosing footwear, and getting the right help before things spiral. This conversation will change the way you walk, literally and metaphorically.


    Takeaways

    • Patrick Agnew explains why the “fallen arch” theory doesn’t always apply to hypermobile bodies and what to focus on instead.
    • Learn when foot surgery helps, when it hurts, and why many EDS patients should think twice before going under the knife.
    • Not all orthotics are created equal. Agnew shares why many fail—and how to find support that works with (not against) your anatomy.
    • Chronic ankle injuries may signal more than weakness—they could be your body’s way of screaming for a new approach.
    • Forget the trends. Discover how to pick footwear that supports your unique structure without creating more dysfunction.

    Find the episode transcript here.


    Want more Dr. Patrick Agnew?


    YT: ⁠https://www.youtube.com/watch?v=sPTK1lhGuP0⁠

    FB: ⁠https://www.facebook.com/profile.php?id=100068257805669

    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠

    To check out all of my favorite products, please click on this link: ⁠https://www.hypermobilitymd.com/productswelove


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5243     Dental Myths & EDS Truths with Dr. Audrey Kershaw (Ep 161) Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn’t), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (craniocervical instability) is a concern, and what truly drives gum disease vs “EDS-specific” issues. We also address periodontal EDS (a rare subtype), toothpaste choices (fluoride vs hydroxyapatite vs chelators), and the surprisingly powerful habit of “spit, don’t rinse.” Stay to the end for practical Hypermobility Hacks you can implement tonight. Takeaways Is wisdom teeth surgery happening too often… or dangerously too late? What if the biggest risk during oral surgery isn’t the tooth—but how your neck is positioned? Why do some people with EDS feel every cut and drill—even after “getting numb”? Could one cheap hack—“spit, don’t rinse”—protect your teeth better than $30 toothpaste? Are sharks hiding the secret to stronger enamel in your bathroom cabinet? Find the episode transcript here. References: 2012 Paper- The effects of NICE guidelines on the management of third molar teeth: https://pubmed.ncbi.nlm.nih.gov/22955790/ 2020 RCS Guidelines on Third Molars: https://www.rcseng.ac.uk/-/media/files/rcs/fds/guidelines/3rd-molar-guidelines--april-2021-v2.pdf AAOMS Guidelines on Third Molar Management: https://aaoms.org/wp-content/uploads/2024/03/management_third_molar_white_paper.pdf Bendy Bodies Podcast on Preparing for Surgery with Linda Bluestein, MD: https://www.bendybodiespodcast.com/58-preparing-for-surgery-with-linda-bluestein-md/ GIRFT RCS TMD Document: https://remedy.bnssg.icb.nhs.uk/media/omvphznu/tmd-patient-support-document-march-2024-1.pdf Dr. Mike Harrison’s Talk on EDS Support UK: https://www.ehlers-danlos.org/information/webinar-with-dr-mike-harrison-on-why-dental-issues-occur-with-connective-tissue-disorder/ EDS and Dental Issues Talk by Ines and Ulrike: https://www.youtube.com/watch?v=Lsf0YEeps5c&t=65s EDS Society on Periodontal EDS: https://www.ehlers-danlos.com/peds/ Austrian Conversation on pEDS (PubMed): https://pubmed.ncbi.nlm.nih.gov/28836281/ Genetics Home Reference on Ehlers-Danlos Syndrome: https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome#statistics Perioperative Care in Patients with Ehlers Danlos Syndromes (SCIRP): https://www.scirp.org/journal/paperinformation?paperid=97524 Want more Dr. Audrey Kershaw? Facebook: ⁠https://www.facebook.com/audrey.kershaw.3⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 Sep 2025 09:00:00 -0000 full Dr. Linda Bluestein Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn’t), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (craniocervical instability) is a concern, and what truly drives gum disease vs “EDS-specific” issues. We also address periodontal EDS (a rare subtype), toothpaste choices (fluoride vs hydroxyapatite vs chelators), and the surprisingly powerful habit of “spit, don’t rinse.” Stay to the end for practical Hypermobility Hacks you can implement tonight. Takeaways Is wisdom teeth surgery happening too often… or dangerously too late? What if the biggest risk during oral surgery isn’t the tooth—but how your neck is positioned? Why do some people with EDS feel every cut and drill—even after “getting numb”? Could one cheap hack—“spit, don’t rinse”—protect your teeth better than $30 toothpaste? Are sharks hiding the secret to stronger enamel in your bathroom cabinet? Find the episode transcript here. References: 2012 Paper- The effects of NICE guidelines on the management of third molar teeth: https://pubmed.ncbi.nlm.nih.gov/22955790/ 2020 RCS Guidelines on Third Molars: https://www.rcseng.ac.uk/-/media/files/rcs/fds/guidelines/3rd-molar-guidelines--april-2021-v2.pdf AAOMS Guidelines on Third Molar Management: https://aaoms.org/wp-content/uploads/2024/03/management_third_molar_white_paper.pdf Bendy Bodies Podcast on Preparing for Surgery with Linda Bluestein, MD: https://www.bendybodiespodcast.com/58-preparing-for-surgery-with-linda-bluestein-md/ GIRFT RCS TMD Document: https://remedy.bnssg.icb.nhs.uk/media/omvphznu/tmd-patient-support-document-march-2024-1.pdf Dr. Mike Harrison’s Talk on EDS Support UK: https://www.ehlers-danlos.org/information/webinar-with-dr-mike-harrison-on-why-dental-issues-occur-with-connective-tissue-disorder/ EDS and Dental Issues Talk by Ines and Ulrike: https://www.youtube.com/watch?v=Lsf0YEeps5c&t=65s EDS Society on Periodontal EDS: https://www.ehlers-danlos.com/peds/ Austrian Conversation on pEDS (PubMed): https://pubmed.ncbi.nlm.nih.gov/28836281/ Genetics Home Reference on Ehlers-Danlos Syndrome: https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome#statistics Perioperative Care in Patients with Ehlers Danlos Syndromes (SCIRP): https://www.scirp.org/journal/paperinformation?paperid=97524 Want more Dr. Audrey Kershaw? Facebook: ⁠https://www.facebook.com/audrey.kershaw.3⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn’t), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (craniocervical instability) is a concern, and what truly drives gum disease vs “EDS-specific” issues. We also address periodontal EDS (a rare subtype), toothpaste choices (fluoride vs hydroxyapatite vs chelators), and the surprisingly powerful habit of “spit, don’t rinse.” Stay to the end for practical Hypermobility Hacks you can implement tonight.


    Takeaways

    1. Is wisdom teeth surgery happening too often… or dangerously too late?

    2. What if the biggest risk during oral surgery isn’t the tooth—but how your neck is positioned?

    3. Why do some people with EDS feel every cut and drill—even after “getting numb”?

    4. Could one cheap hack—“spit, don’t rinse”—protect your teeth better than $30 toothpaste?

    5. Are sharks hiding the secret to stronger enamel in your bathroom cabinet?

    Find the episode transcript here.


    References:

    2012 Paper- The effects of NICE guidelines on the management of third molar teeth: https://pubmed.ncbi.nlm.nih.gov/22955790/

    2020 RCS Guidelines on Third Molars: https://www.rcseng.ac.uk/-/media/files/rcs/fds/guidelines/3rd-molar-guidelines--april-2021-v2.pdf

    AAOMS Guidelines on Third Molar Management: https://aaoms.org/wp-content/uploads/2024/03/management_third_molar_white_paper.pdf

    Bendy Bodies Podcast on Preparing for Surgery with Linda Bluestein, MD: https://www.bendybodiespodcast.com/58-preparing-for-surgery-with-linda-bluestein-md/

    GIRFT RCS TMD Document: https://remedy.bnssg.icb.nhs.uk/media/omvphznu/tmd-patient-support-document-march-2024-1.pdf

    Dr. Mike Harrison’s Talk on EDS Support UK: https://www.ehlers-danlos.org/information/webinar-with-dr-mike-harrison-on-why-dental-issues-occur-with-connective-tissue-disorder/

    EDS and Dental Issues Talk by Ines and Ulrike: https://www.youtube.com/watch?v=Lsf0YEeps5c&t=65s

    EDS Society on Periodontal EDS: https://www.ehlers-danlos.com/peds/

    Austrian Conversation on pEDS (PubMed): https://pubmed.ncbi.nlm.nih.gov/28836281/

    Genetics Home Reference on Ehlers-Danlos Syndrome: https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome#statistics

    Perioperative Care in Patients with Ehlers Danlos Syndromes (SCIRP): https://www.scirp.org/journal/paperinformation?paperid=97524



    Want more Dr. Audrey Kershaw?

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    To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

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    Part of the Human Content Podcast Network

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    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3960     Parenting Making You Both Sick? with Dr. Shimi Kang (Ep 160) Dr. Linda Bluestein is joined by award-winning psychiatrist and author Dr. Shimi Kang to explore a radical, yet intuitive concept: that play, creativity, and rest aren’t luxuries - they’re medicine. In a world where high-achievers and neurodivergent thinkers are pushed to exhaustion, Dr. Kang unpacks how this cultural mindset leads to burnout, inflammation, and chronic illness. Drawing from both cutting-edge neuroscience and her own clinical experience, she offers practical tools to help listeners regulate their nervous systems, reconnect with joy, and reclaim their health. If you've ever felt overwhelmed, misunderstood, or stuck in survival mode, this episode will reframe everything. Takeaways - Discover the surprising connection between neurodivergence and hypermobility that could redefine your understanding of chronic illness.   - Burnout isn’t just in your head—uncover the biological triggers that shut your system down and what you can do about it.   - Curious about how play can rewire your nervous system? This episode reveals its unexpected power to transform your well-being.   - Could "dolphin parenting" be the secret to breaking free from the stress of overachievement? Tune in to find out!   - Forget control—learn why embracing curiosity might just be the game-changer you need for true healing. Find the episode transcript here. Want more Dr. Shimi Kang? Twitter/X: ⁠https://x.com/drshimikang⁠ Instagram: ⁠https://www.instagram.com/drshimikang/?hl=en⁠ Facebook: ⁠https://www.facebook.com/drshimikang/⁠ Youtube: ⁠https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA⁠ Linkedin: ⁠https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ To check out all of my affiliate accounts, please click on this link: https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 04 Sep 2025 09:00:00 -0000 full Dr. Linda Bluestein Dr. Linda Bluestein is joined by award-winning psychiatrist and author Dr. Shimi Kang to explore a radical, yet intuitive concept: that play, creativity, and rest aren’t luxuries - they’re medicine. In a world where high-achievers and neurodivergent thinkers are pushed to exhaustion, Dr. Kang unpacks how this cultural mindset leads to burnout, inflammation, and chronic illness. Drawing from both cutting-edge neuroscience and her own clinical experience, she offers practical tools to help listeners regulate their nervous systems, reconnect with joy, and reclaim their health. If you've ever felt overwhelmed, misunderstood, or stuck in survival mode, this episode will reframe everything. Takeaways - Discover the surprising connection between neurodivergence and hypermobility that could redefine your understanding of chronic illness.   - Burnout isn’t just in your head—uncover the biological triggers that shut your system down and what you can do about it.   - Curious about how play can rewire your nervous system? This episode reveals its unexpected power to transform your well-being.   - Could "dolphin parenting" be the secret to breaking free from the stress of overachievement? Tune in to find out!   - Forget control—learn why embracing curiosity might just be the game-changer you need for true healing. Find the episode transcript here. Want more Dr. Shimi Kang? Twitter/X: ⁠https://x.com/drshimikang⁠ Instagram: ⁠https://www.instagram.com/drshimikang/?hl=en⁠ Facebook: ⁠https://www.facebook.com/drshimikang/⁠ Youtube: ⁠https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA⁠ Linkedin: ⁠https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ To check out all of my affiliate accounts, please click on this link: https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Dr. Linda Bluestein is joined by award-winning psychiatrist and author Dr. Shimi Kang to explore a radical, yet intuitive concept: that play, creativity, and rest aren’t luxuries - they’re medicine. In a world where high-achievers and neurodivergent thinkers are pushed to exhaustion, Dr. Kang unpacks how this cultural mindset leads to burnout, inflammation, and chronic illness. Drawing from both cutting-edge neuroscience and her own clinical experience, she offers practical tools to help listeners regulate their nervous systems, reconnect with joy, and reclaim their health. If you've ever felt overwhelmed, misunderstood, or stuck in survival mode, this episode will reframe everything.

    Takeaways

    - Discover the surprising connection between neurodivergence and hypermobility that could redefine your understanding of chronic illness.  

    - Burnout isn’t just in your head—uncover the biological triggers that shut your system down and what you can do about it.  

    - Curious about how play can rewire your nervous system? This episode reveals its unexpected power to transform your well-being.  

    - Could "dolphin parenting" be the secret to breaking free from the stress of overachievement? Tune in to find out!  

    - Forget control—learn why embracing curiosity might just be the game-changer you need for true healing.


    Find the episode transcript here.


    Want more Dr. Shimi Kang?

    Twitter/X: ⁠https://x.com/drshimikang⁠

    Instagram: ⁠https://www.instagram.com/drshimikang/?hl=en⁠

    Facebook: ⁠https://www.facebook.com/drshimikang/⁠

    Youtube: ⁠https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA⁠

    Linkedin: ⁠https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca⁠


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠

    To check out all of my affiliate accounts, please click on this link: https://www.hypermobilitymd.com/productswelove


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4889     Truth Bombs & Backlash with Kate Colbert (Ep 159) After a wave of passionate listener feedback sparked intense conversations behind the scenes, The Bendy Bodies Podcast returns with a candid and heartfelt follow-up. In this episode, Dr. Linda Bluestein is joined by author and communications expert Kate Colbert to openly address the concerns raised about recent content and to set the record straight. From questions about language and lived experience to the emotional cost of being misunderstood, Dr. Bluestein and Kate hold nothing back. Together, they unpack what went wrong, what they stand by, and what they’ll do differently moving forward. This is the episode that proves growth is messy, but worth it. Takeaways What sparked intense pushback from listeners this season Why language matters more than ever in the chronic illness community Why science isn't always black and white  The frustrations of medical and scientific uncertainty   What happens when a podcast decides to grow in public Find the episode transcript here. Want more Kate Colbert? Linkedin: https://www.linkedin.com/in/katecolbert/ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 28 Aug 2025 09:00:00 -0000 full Dr. Linda Bluestein After a wave of passionate listener feedback sparked intense conversations behind the scenes, The Bendy Bodies Podcast returns with a candid and heartfelt follow-up. In this episode, Dr. Linda Bluestein is joined by author and communications expert Kate Colbert to openly address the concerns raised about recent content and to set the record straight. From questions about language and lived experience to the emotional cost of being misunderstood, Dr. Bluestein and Kate hold nothing back. Together, they unpack what went wrong, what they stand by, and what they’ll do differently moving forward. This is the episode that proves growth is messy, but worth it. Takeaways What sparked intense pushback from listeners this season Why language matters more than ever in the chronic illness community Why science isn't always black and white  The frustrations of medical and scientific uncertainty   What happens when a podcast decides to grow in public Find the episode transcript here. Want more Kate Colbert? Linkedin: https://www.linkedin.com/in/katecolbert/ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices After a wave of passionate listener feedback sparked intense conversations behind the scenes, The Bendy Bodies Podcast returns with a candid and heartfelt follow-up. In this episode, Dr. Linda Bluestein is joined by author and communications expert Kate Colbert to openly address the concerns raised about recent content and to set the record straight. From questions about language and lived experience to the emotional cost of being misunderstood, Dr. Bluestein and Kate hold nothing back. Together, they unpack what went wrong, what they stand by, and what they’ll do differently moving forward. This is the episode that proves growth is messy, but worth it.

    Takeaways

    What sparked intense pushback from listeners this season

    Why language matters more than ever in the chronic illness community

    Why science isn't always black and white 

    The frustrations of medical and scientific uncertainty  

    What happens when a podcast decides to grow in public


    Find the episode transcript here.


    Want more Kate Colbert?

    Linkedin: https://www.linkedin.com/in/katecolbert/


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4548     Discussing Your Feedback: Pain, Autism & hEDS Diagnostic Criteria | Office Hours (Ep 158) In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone’s pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person’s experience.  Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community. Takeaways Why pain is always real—even when labeled “non-structural” How mast cell research intersects with autism without erasing identity Why a hEDS diagnosis matters for some patients—but not for all What the upcoming 2026 hEDS criteria changes could mean for the community How listener feedback shapes the future of Bendy Bodies Find the episode transcipt here. Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 14 Aug 2025 09:00:00 -0000 full Dr. Linda Bluestein In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone’s pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person’s experience.  Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community. Takeaways Why pain is always real—even when labeled “non-structural” How mast cell research intersects with autism without erasing identity Why a hEDS diagnosis matters for some patients—but not for all What the upcoming 2026 hEDS criteria changes could mean for the community How listener feedback shapes the future of Bendy Bodies Find the episode transcipt here. Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone’s pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person’s experience.  Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community.

    Takeaways

    • Why pain is always real—even when labeled “non-structural”

    • How mast cell research intersects with autism without erasing identity

    • Why a hEDS diagnosis matters for some patients—but not for all

    • What the upcoming 2026 hEDS criteria changes could mean for the community

    • How listener feedback shapes the future of Bendy Bodies

    Find the episode transcipt here.


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     855     Can Pain Education Lessen Chronic Pain with Adriaan Louw, DPT? (Ep 156) In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down the science of how the brain processes pain, why knowledge can reduce fear, and how changing your understanding can actually decrease your pain experience. Through engaging stories and evidence-backed insight, he shares how rewiring the nervous system starts not with a pill, but with a conversation. Takeaways Why pain persists even after healing has occurred Connecting fear, misunderstandings, and pain What you can learn about pain to start to reduce it What clinicians often miss when treating chronic symptoms How to approach pain as a brain-and-nervous-system issue—not just a body issue References: Guest: Dr. Adriaan Louw Bio & publications: Evidence In Motion Podcast appearance on PNE+: Integrative Pain Science Institute Books by Dr. Louw: Pain Neuroscience Education: Teaching People About Pain Why Do I Hurt? Louw et al. (2016) “The Clinical Application of Pain Neuroscience Education” – https://pubmed.ncbi.nlm.nih.gov/26828801/ And more: Dr. Bluestein's Favorite Books Want more Dr. Adriaan Louw? X: ⁠https://www.twitter.com/EIMTeam⁠ IG: ⁠https://www.instagram.com/eimteam/⁠ FB: ⁠https://www.facebook.com/EIMTeam⁠ LinkedIn: ⁠https://www.linkedin.com/company/evidence-in-motion-eim-⁠ Website: ⁠https://whyyouhurt.com/⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Tue, 12 Aug 2025 15:00:00 -0000 full Dr. Linda Bluestein In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down the science of how the brain processes pain, why knowledge can reduce fear, and how changing your understanding can actually decrease your pain experience. Through engaging stories and evidence-backed insight, he shares how rewiring the nervous system starts not with a pill, but with a conversation. Takeaways Why pain persists even after healing has occurred Connecting fear, misunderstandings, and pain What you can learn about pain to start to reduce it What clinicians often miss when treating chronic symptoms How to approach pain as a brain-and-nervous-system issue—not just a body issue References: Guest: Dr. Adriaan Louw Bio & publications: Evidence In Motion Podcast appearance on PNE+: Integrative Pain Science Institute Books by Dr. Louw: Pain Neuroscience Education: Teaching People About Pain Why Do I Hurt? Louw et al. (2016) “The Clinical Application of Pain Neuroscience Education” – https://pubmed.ncbi.nlm.nih.gov/26828801/ And more: Dr. Bluestein's Favorite Books Want more Dr. Adriaan Louw? X: ⁠https://www.twitter.com/EIMTeam⁠ IG: ⁠https://www.instagram.com/eimteam/⁠ FB: ⁠https://www.facebook.com/EIMTeam⁠ LinkedIn: ⁠https://www.linkedin.com/company/evidence-in-motion-eim-⁠ Website: ⁠https://whyyouhurt.com/⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down the science of how the brain processes pain, why knowledge can reduce fear, and how changing your understanding can actually decrease your pain experience. Through engaging stories and evidence-backed insight, he shares how rewiring the nervous system starts not with a pill, but with a conversation.

    Takeaways

    • Why pain persists even after healing has occurred

    • Connecting fear, misunderstandings, and pain

    • What you can learn about pain to start to reduce it

    • What clinicians often miss when treating chronic symptoms

    • How to approach pain as a brain-and-nervous-system issue—not just a body issue

    References:

    Guest: Dr. Adriaan Louw

    Books by Dr. Louw:

    Want more Dr. Adriaan Louw?

    X: ⁠https://www.twitter.com/EIMTeam⁠

    IG: ⁠https://www.instagram.com/eimteam/⁠

    FB: ⁠https://www.facebook.com/EIMTeam⁠

    LinkedIn: ⁠https://www.linkedin.com/company/evidence-in-motion-eim-⁠

    Website: ⁠https://whyyouhurt.com/⁠


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4215     Could Your Gut Pain Be EDS-Related? with Dr. Pradeep Chopra (Ep 157) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders) along with POTS (Postural orthostatic tachycardia syndrome) and MCAS (Mast cell activation syndrome), can trigger unexpected abdominal pain and digestive challenges. Along the way, they explore overlooked diagnoses like Eagle Syndrome, SIBO (Small Intestinal Bacterial Overgrowth), and MALS (Median Arcuate Ligament Syndrome), while also revealing hacks and strategies that empower patients to better understand and manage their symptoms. This is part one of a two-part deep dive into GI issues you won’t want to miss. Takeaways Why EDS patients often have “dancing teeth” and unique dental vulnerabilities How Eagle Syndrome can masquerade as severe TMJ pain or headaches The hidden role of MCAS in driving throat and GI inflammation Why overlooked compression syndromes like MALS and SMA cause devastating abdominal pain A surprising at-home hack with beets that can reveal slowed gut motility Note: If you found Dr. Chopra's comments about teeth intriguing, we will address listener feedback in Episode 159, coming soon. Find the episode transcript here. References: AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review: https://pubmed.ncbi.nlm.nih.gov/40387691/ Want more Dr. Pradeep Chopra? Find previous Bendy Bodies episodes with Dr. Chopra here: ⁠https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/⁠ Website: ⁠https://www.painri.com/⁠ Contact Dr. Chopra’s Office: ⁠⁠snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links ⁠ Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 07 Aug 2025 09:00:00 -0000 full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders) along with POTS (Postural orthostatic tachycardia syndrome) and MCAS (Mast cell activation syndrome), can trigger unexpected abdominal pain and digestive challenges. Along the way, they explore overlooked diagnoses like Eagle Syndrome, SIBO (Small Intestinal Bacterial Overgrowth), and MALS (Median Arcuate Ligament Syndrome), while also revealing hacks and strategies that empower patients to better understand and manage their symptoms. This is part one of a two-part deep dive into GI issues you won’t want to miss. Takeaways Why EDS patients often have “dancing teeth” and unique dental vulnerabilities How Eagle Syndrome can masquerade as severe TMJ pain or headaches The hidden role of MCAS in driving throat and GI inflammation Why overlooked compression syndromes like MALS and SMA cause devastating abdominal pain A surprising at-home hack with beets that can reveal slowed gut motility Note: If you found Dr. Chopra's comments about teeth intriguing, we will address listener feedback in Episode 159, coming soon. Find the episode transcript here. References: AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review: https://pubmed.ncbi.nlm.nih.gov/40387691/ Want more Dr. Pradeep Chopra? Find previous Bendy Bodies episodes with Dr. Chopra here: ⁠https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/⁠ Website: ⁠https://www.painri.com/⁠ Contact Dr. Chopra’s Office: ⁠⁠snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links ⁠ Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders) along with POTS (Postural orthostatic tachycardia syndrome) and MCAS (Mast cell activation syndrome), can trigger unexpected abdominal pain and digestive challenges. Along the way, they explore overlooked diagnoses like Eagle Syndrome, SIBO (Small Intestinal Bacterial Overgrowth), and MALS (Median Arcuate Ligament Syndrome), while also revealing hacks and strategies that empower patients to better understand and manage their symptoms. This is part one of a two-part deep dive into GI issues you won’t want to miss.


    Takeaways

    • Why EDS patients often have “dancing teeth” and unique dental vulnerabilities
    • How Eagle Syndrome can masquerade as severe TMJ pain or headaches
    • The hidden role of MCAS in driving throat and GI inflammation
    • Why overlooked compression syndromes like MALS and SMA cause devastating abdominal pain
    • A surprising at-home hack with beets that can reveal slowed gut motility

    Note: If you found Dr. Chopra's comments about teeth intriguing, we will address listener feedback in Episode 159, coming soon.


    Find the episode transcript here.


    References:

    AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review: https://pubmed.ncbi.nlm.nih.gov/40387691/


    Want more Dr. Pradeep Chopra?

    Find previous Bendy Bodies episodes with Dr. Chopra here: ⁠https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/⁠

    Website: ⁠https://www.painri.com/⁠

    Contact Dr. Chopra’s Office: ⁠⁠snapa102@gmail.com


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    ⁠

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    ]]>     5195     Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155) In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss. Takeaways: Why Beighton scoring alone doesn’t cut it for diagnosing EDS The truth about MTHFR variants and their link to EDS The overlap between SVT, POTS, and when to worry What to ask your doctor if you’re not sure they "get" dysautonomia A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most References: The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com hEDS Diagnostic Criteria Checklist Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/ Hope for Hypermobility Article: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307 Substack: https://open.substack.com/pub/hypermobilitymd/p/navigating-treatment-for-hedshsd Find the episode transcript here Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/ Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/ Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/ https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/ LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/ LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 24 Jul 2025 09:00:00 -0000 full Dr. Linda Bluestein In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss. Takeaways: Why Beighton scoring alone doesn’t cut it for diagnosing EDS The truth about MTHFR variants and their link to EDS The overlap between SVT, POTS, and when to worry What to ask your doctor if you’re not sure they "get" dysautonomia A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most References: The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com hEDS Diagnostic Criteria Checklist Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/ Hope for Hypermobility Article: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307 Substack: https://open.substack.com/pub/hypermobilitymd/p/navigating-treatment-for-hedshsd Find the episode transcript here Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/ Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/ Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/ https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/ LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/ LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss.

    Takeaways:

    • Why Beighton scoring alone doesn’t cut it for diagnosing EDS

    • The truth about MTHFR variants and their link to EDS

    • The overlap between SVT, POTS, and when to worry

    • What to ask your doctor if you’re not sure they "get" dysautonomia

    • A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most

    References:

    The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein

    https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com

    hEDS Diagnostic Criteria Checklist

    Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/

    Hope for Hypermobility

    Find the episode transcript here


    Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/

    Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/

    Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/

    https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/

    LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/

    LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3293     Revising the Hypermobile EDS Criteria with Dr. Pradeep Chopra (Ep 154) In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, parent, or provider, this episode just might change how you see joint hypermobility and connective tissue disorders forever. Takeaways Why men and boys may be getting overlooked by the current EDS diagnostic model The difference between dislocations and subluxations—and why that matters A surprising source of CCI: what your dentist, surgeon, and anesthesiologist may not know The 2017 criteria: well-meaning, but are they dangerously outdated? What every hypermobile patient should bring to their next surgery (yes, it’s a hack) Want to follow along? Find the episode transcript here. References: Episode 70: https://youtu.be/BoRyQh12X2c Episode 71: https://youtu.be/yDT3JTzfiJk Episode 72: https://youtu.be/CYhnKkVjIxM Episode 73: https://youtu.be/2OxtZGNswfo Episode 77: https://youtu.be/d9A1aJB5GRo Episode 151: https://youtu.be/ho0rRcjUobI Perioperative Care in Patients with EDS by Linda Bluestein & Pradeep Chopra: https://www.scirp.org/journal/paperinformation?paperid=97524 Diagnostic Criteria: https://www.bendybodiespodcast.com/p/diagnostic-criteria-checklist/ The Incidence of Misdiagnosis in Patients with EDS: https://www.mdpi.com/2227-9067/12/6/698 Living Well with Orthostatic Intolerance by Peter C. Rowe: https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?linkCode=sl2&tag=onamzlindablu-20&ref_=aip_sf_list_spv_ofs_mixed_d 2023 Diagnostic Framework: https://www.ehlers-danlos.com/diagnosis/new-diagnostic-framework-for-pediatric-joint-hypermobility-v2/ Want more Dr. Pradeep Chopra?  Website: https://www.painri.com/ Contact Dr. Chopra’s Office: snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Jul 2025 09:00:00 -0000 full Dr. Linda Bluestein In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, parent, or provider, this episode just might change how you see joint hypermobility and connective tissue disorders forever. Takeaways Why men and boys may be getting overlooked by the current EDS diagnostic model The difference between dislocations and subluxations—and why that matters A surprising source of CCI: what your dentist, surgeon, and anesthesiologist may not know The 2017 criteria: well-meaning, but are they dangerously outdated? What every hypermobile patient should bring to their next surgery (yes, it’s a hack) Want to follow along? Find the episode transcript here. References: Episode 70: https://youtu.be/BoRyQh12X2c Episode 71: https://youtu.be/yDT3JTzfiJk Episode 72: https://youtu.be/CYhnKkVjIxM Episode 73: https://youtu.be/2OxtZGNswfo Episode 77: https://youtu.be/d9A1aJB5GRo Episode 151: https://youtu.be/ho0rRcjUobI Perioperative Care in Patients with EDS by Linda Bluestein & Pradeep Chopra: https://www.scirp.org/journal/paperinformation?paperid=97524 Diagnostic Criteria: https://www.bendybodiespodcast.com/p/diagnostic-criteria-checklist/ The Incidence of Misdiagnosis in Patients with EDS: https://www.mdpi.com/2227-9067/12/6/698 Living Well with Orthostatic Intolerance by Peter C. Rowe: https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?linkCode=sl2&tag=onamzlindablu-20&ref_=aip_sf_list_spv_ofs_mixed_d 2023 Diagnostic Framework: https://www.ehlers-danlos.com/diagnosis/new-diagnostic-framework-for-pediatric-joint-hypermobility-v2/ Want more Dr. Pradeep Chopra?  Website: https://www.painri.com/ Contact Dr. Chopra’s Office: snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, parent, or provider, this episode just might change how you see joint hypermobility and connective tissue disorders forever.


    Takeaways

    • Why men and boys may be getting overlooked by the current EDS diagnostic model

    • The difference between dislocations and subluxations—and why that matters

    • A surprising source of CCI: what your dentist, surgeon, and anesthesiologist may not know

    • The 2017 criteria: well-meaning, but are they dangerously outdated?

    • What every hypermobile patient should bring to their next surgery (yes, it’s a hack)

    Want to follow along? Find the episode transcript here.


    References:

    Episode 70: https://youtu.be/BoRyQh12X2c

    Episode 71: https://youtu.be/yDT3JTzfiJk

    Episode 72: https://youtu.be/CYhnKkVjIxM

    Episode 73: https://youtu.be/2OxtZGNswfo

    Episode 77: https://youtu.be/d9A1aJB5GRo

    Episode 151: https://youtu.be/ho0rRcjUobI


    Perioperative Care in Patients with EDS by Linda Bluestein & Pradeep Chopra: https://www.scirp.org/journal/paperinformation?paperid=97524


    Diagnostic Criteria: https://www.bendybodiespodcast.com/p/diagnostic-criteria-checklist/


    The Incidence of Misdiagnosis in Patients with EDS: https://www.mdpi.com/2227-9067/12/6/698


    Living Well with Orthostatic Intolerance by Peter C. Rowe: https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?linkCode=sl2&tag=onamzlindablu-20&ref_=aip_sf_list_spv_ofs_mixed_d


    2023 Diagnostic Framework: https://www.ehlers-danlos.com/diagnosis/new-diagnostic-framework-for-pediatric-joint-hypermobility-v2/


    Want more Dr. Pradeep Chopra? 

    Website: https://www.painri.com/

    Contact Dr. Chopra’s Office: snapa102@gmail.com


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4717     Why Do Some GI Problems Hide from Every Test? with Dr. Zachary Spiritos (Ep 153) Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come back “normal.” From misunderstood motility problems to surprising treatment twists, this episode is full of revelations that might change the way you think about your gut. And yes, there’s even a how-to on better pooping. Takeaways: Why your GI test results might be “normal”… but your symptoms are anything but. How slow motility and visceral hypersensitivity often masquerade as IBS. The overlooked connection between hypermobility, dysautonomia, and GI dysfunction. Why some patients are misdiagnosed for years—and how that’s finally changing. A surprising but effective tip to improve your daily bathroom routine. References: Breath-Test for SIBO (small intestinal bacterial overgrowth): https://www.triosmartbreath.com/ Mark Pimentel, MD: https://www.cedars-sinai.org/provider/mark-pimentel-887112.html Episode 127: https://www.youtube.com/watch?v=9ngUY9VPRcc Want more Dr. Zachary Spiritos?  Website: https://www.everbettermedicine.health Instagram: https://www.instagram.com/drzacspiritos/ Facebook: https://www.facebook.com/zachary.spiritos/ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 10 Jul 2025 09:00:00 -0000 full Dr. Linda Bluestein Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come back “normal.” From misunderstood motility problems to surprising treatment twists, this episode is full of revelations that might change the way you think about your gut. And yes, there’s even a how-to on better pooping. Takeaways: Why your GI test results might be “normal”… but your symptoms are anything but. How slow motility and visceral hypersensitivity often masquerade as IBS. The overlooked connection between hypermobility, dysautonomia, and GI dysfunction. Why some patients are misdiagnosed for years—and how that’s finally changing. A surprising but effective tip to improve your daily bathroom routine. References: Breath-Test for SIBO (small intestinal bacterial overgrowth): https://www.triosmartbreath.com/ Mark Pimentel, MD: https://www.cedars-sinai.org/provider/mark-pimentel-887112.html Episode 127: https://www.youtube.com/watch?v=9ngUY9VPRcc Want more Dr. Zachary Spiritos?  Website: https://www.everbettermedicine.health Instagram: https://www.instagram.com/drzacspiritos/ Facebook: https://www.facebook.com/zachary.spiritos/ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come back “normal.” From misunderstood motility problems to surprising treatment twists, this episode is full of revelations that might change the way you think about your gut. And yes, there’s even a how-to on better pooping.

    Takeaways:

    • Why your GI test results might be “normal”… but your symptoms are anything but.

    • How slow motility and visceral hypersensitivity often masquerade as IBS.

    • The overlooked connection between hypermobility, dysautonomia, and GI dysfunction.

    • Why some patients are misdiagnosed for years—and how that’s finally changing.

    • A surprising but effective tip to improve your daily bathroom routine.

    References:

    Breath-Test for SIBO (small intestinal bacterial overgrowth): https://www.triosmartbreath.com/


    Mark Pimentel, MD: https://www.cedars-sinai.org/provider/mark-pimentel-887112.html

    Episode 127: https://www.youtube.com/watch?v=9ngUY9VPRcc

    Want more Dr. Zachary Spiritos? 

    Website: https://www.everbettermedicine.health

    Instagram: https://www.instagram.com/drzacspiritos/


    Facebook: https://www.facebook.com/zachary.spiritos/

    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

    YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠ 

    Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠ 

    Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠ 

    X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠ 

    LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠ 

    Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠

    Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠


    Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4929     What Can Difficulty Swallowing and Voice Fatigue Mean? (Ep 152) Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels back the curtain on symptoms often dismissed or misdiagnosed. A must-listen for patients, clinicians, and anyone who's been told "everything looks normal." Takeaways: Hypermobile patients often experience voice, breathing, and swallowing issues—but go undiagnosed. Imaging and scope studies often miss the root causes of symptoms in EDS patients. Certain vocal exercises may actually harm people with fragile connective tissues. Sniffing can break a dangerous airway cycle caused by inducible laryngeal obstruction. An international team is working to create speech therapy protocols specifically for EDS. Find the episode transcript here. Want more Stacey Menton?Website: http://staceymenton.comFacebook: https://www.facebook.com/profile.php?id=100077671590313 Want more Dr. Linda Bluestein, MD? Website:  ⁠https://www.hypermobilitymd.com/⁠. YouTube: ⁠⁠youtube.com/@bendybodiespodcast⁠⁠  Instagram: ⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠  Facebook: ⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠  X: ⁠⁠https://twitter.com/BluesteinLinda⁠⁠  LinkedIn: ⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠  Newsletter: ⁠⁠https://hypermobilitymd.substack.com/⁠⁠ Shop my Amazon store ⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠https://www.bendybodiespodcast.com/⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠https://algonot.com/coupon/bendbod/⁠ Learn more about Human Content at ⁠⁠http://www.human-content.com⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠sales@human-content.com⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Jul 2025 09:00:00 -0000 full Dr. Linda Bluestein Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels back the curtain on symptoms often dismissed or misdiagnosed. A must-listen for patients, clinicians, and anyone who's been told "everything looks normal." Takeaways: Hypermobile patients often experience voice, breathing, and swallowing issues—but go undiagnosed. Imaging and scope studies often miss the root causes of symptoms in EDS patients. Certain vocal exercises may actually harm people with fragile connective tissues. Sniffing can break a dangerous airway cycle caused by inducible laryngeal obstruction. An international team is working to create speech therapy protocols specifically for EDS. Find the episode transcript here. Want more Stacey Menton?Website: http://staceymenton.comFacebook: https://www.facebook.com/profile.php?id=100077671590313 Want more Dr. Linda Bluestein, MD? Website:  ⁠https://www.hypermobilitymd.com/⁠. YouTube: ⁠⁠youtube.com/@bendybodiespodcast⁠⁠  Instagram: ⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠  Facebook: ⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠  X: ⁠⁠https://twitter.com/BluesteinLinda⁠⁠  LinkedIn: ⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠  Newsletter: ⁠⁠https://hypermobilitymd.substack.com/⁠⁠ Shop my Amazon store ⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠https://www.bendybodiespodcast.com/⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠https://algonot.com/coupon/bendbod/⁠ Learn more about Human Content at ⁠⁠http://www.human-content.com⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠sales@human-content.com⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels back the curtain on symptoms often dismissed or misdiagnosed. A must-listen for patients, clinicians, and anyone who's been told "everything looks normal."


    Takeaways:

    • Hypermobile patients often experience voice, breathing, and swallowing issues—but go undiagnosed.

    • Imaging and scope studies often miss the root causes of symptoms in EDS patients.

    • Certain vocal exercises may actually harm people with fragile connective tissues.

    • Sniffing can break a dangerous airway cycle caused by inducible laryngeal obstruction.

    • An international team is working to create speech therapy protocols specifically for EDS.

    Find the episode transcript here.


    Want more Stacey Menton?
    Website: http://staceymenton.com
    Facebook: https://www.facebook.com/profile.php?id=100077671590313


    Want more Dr. Linda Bluestein, MD?

    Website:  ⁠https://www.hypermobilitymd.com/⁠.

    YouTube: ⁠⁠youtube.com/@bendybodiespodcast⁠⁠ 

    Instagram: ⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠ 

    Facebook: ⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠ 

    X: ⁠⁠https://twitter.com/BluesteinLinda⁠⁠ 

    LinkedIn: ⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠ 

    Newsletter: ⁠⁠https://hypermobilitymd.substack.com/⁠⁠

    Shop my Amazon store ⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at ⁠https://www.bendybodiespodcast.com/⁠.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠https://algonot.com/coupon/bendbod/⁠


    Learn more about Human Content at ⁠⁠http://www.human-content.com⁠⁠

    Podcast Advertising/Business Inquiries: ⁠⁠sales@human-content.com⁠⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.



    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4304     Mast Cells: Friend or Foe? with Dr. Theoharis Theoharides (Ep 151) What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction? In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain. Together, they dive into groundbreaking research on neuroinflammation, autism, histamine, stress, and why brain fog may not be “all in your head”—but inflammation inside it. From overlooked biomarkers to misunderstood triggers, this episode unpacks the science most doctors still don’t know… but patients desperately need Takeaways: What you didn’t know about the link between stress and mast cell activation in the brain. A surprising breakdown of how mast cells could be fueling neuroinflammation and foggy thinking. Why autism and MCAS might share more than we think—especially in early development. The overlooked role of environmental stressors in triggering immune responses that affect cognition. How one researcher’s journey into mast cells rewrote everything we thought we knew about inflammation. Fine the episode transcript here. Want more Dr. Theoharis Theoharides? Website: https://www.drtheoharides.com/Podcast Link: https://algonot.com/Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.htmlLinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Want more Dr. Pradeep Chopra? Website: https://www.painri.com/ Reference Episodes: Episode 70: https://youtu.be/BoRyQh12X2cEpisode 71: https://youtu.be/yDT3JTzfiJkEpisode 72: https://youtu.be/CYhnKkVjIxMEpisode 73: https://youtu.be/2OxtZGNswfoEpisode 77: https://youtu.be/d9A1aJB5GRo Episode 139: https://youtu.be/u1pxvAzXh7M Want more Dr. Linda Bluestein, MD? Website:  https://www.hypermobilitymd.com/. YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at ⁠http://www.human-content.com⁠ Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 Jun 2025 09:00:00 -0000 full Dr. Linda Bluestein What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction? In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain. Together, they dive into groundbreaking research on neuroinflammation, autism, histamine, stress, and why brain fog may not be “all in your head”—but inflammation inside it. From overlooked biomarkers to misunderstood triggers, this episode unpacks the science most doctors still don’t know… but patients desperately need Takeaways: What you didn’t know about the link between stress and mast cell activation in the brain. A surprising breakdown of how mast cells could be fueling neuroinflammation and foggy thinking. Why autism and MCAS might share more than we think—especially in early development. The overlooked role of environmental stressors in triggering immune responses that affect cognition. How one researcher’s journey into mast cells rewrote everything we thought we knew about inflammation. Fine the episode transcript here. Want more Dr. Theoharis Theoharides? Website: https://www.drtheoharides.com/Podcast Link: https://algonot.com/Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.htmlLinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Want more Dr. Pradeep Chopra? Website: https://www.painri.com/ Reference Episodes: Episode 70: https://youtu.be/BoRyQh12X2cEpisode 71: https://youtu.be/yDT3JTzfiJkEpisode 72: https://youtu.be/CYhnKkVjIxMEpisode 73: https://youtu.be/2OxtZGNswfoEpisode 77: https://youtu.be/d9A1aJB5GRo Episode 139: https://youtu.be/u1pxvAzXh7M Want more Dr. Linda Bluestein, MD? Website:  https://www.hypermobilitymd.com/. YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at ⁠http://www.human-content.com⁠ Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction?

    In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain. Together, they dive into groundbreaking research on neuroinflammation, autism, histamine, stress, and why brain fog may not be “all in your head”—but inflammation inside it.

    From overlooked biomarkers to misunderstood triggers, this episode unpacks the science most doctors still don’t know… but patients desperately need

    Takeaways:

    • What you didn’t know about the link between stress and mast cell activation in the brain.

    • A surprising breakdown of how mast cells could be fueling neuroinflammation and foggy thinking.

    • Why autism and MCAS might share more than we think—especially in early development.

    • The overlooked role of environmental stressors in triggering immune responses that affect cognition.

    • How one researcher’s journey into mast cells rewrote everything we thought we knew about inflammation.

    Fine the episode transcript here.


    Want more Dr. Theoharis Theoharides?

    Website: https://www.drtheoharides.com/
    Podcast Link: https://algonot.com/
    Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html
    LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735

    Want more Dr. Pradeep Chopra?

    Website: https://www.painri.com/

    Reference Episodes:

    Episode 70: https://youtu.be/BoRyQh12X2c
    Episode 71: https://youtu.be/yDT3JTzfiJk
    Episode 72: https://youtu.be/CYhnKkVjIxM
    Episode 73: https://youtu.be/2OxtZGNswfo
    Episode 77: https://youtu.be/d9A1aJB5GRo

    Episode 139: https://youtu.be/u1pxvAzXh7M


    Want more Dr. Linda Bluestein, MD?

    Website:  https://www.hypermobilitymd.com/.

    YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

    Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

    Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

    X: ⁠https://twitter.com/BluesteinLinda⁠ 

    LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

    Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

    Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/


    Learn more about Human Content at ⁠http://www.human-content.com⁠

    Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.



    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4753     Misunderstood and Overlooked: hEDS, FND & Autism | Office Hours (Ep 150) You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you’ll hear something in this episode that makes you feel seen. Takeaways: How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients. What one family doctor learned when her toddler was flagged for autism... and EDS. The truth about low-dose naltrexone—and why it’s not a quick fix. Why a change in your diagnosis doesn’t change your reality. A life-saving strategy for traveling to high altitudes with EDS or POTS. Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Jun 2025 09:00:00 -0000 full Dr. Linda Bluestein You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you’ll hear something in this episode that makes you feel seen. Takeaways: How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients. What one family doctor learned when her toddler was flagged for autism... and EDS. The truth about low-dose naltrexone—and why it’s not a quick fix. Why a change in your diagnosis doesn’t change your reality. A life-saving strategy for traveling to high altitudes with EDS or POTS. Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches.


    I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you’ll hear something in this episode that makes you feel seen.


    Takeaways:

    • How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients.

    • What one family doctor learned when her toddler was flagged for autism... and EDS.

    • The truth about low-dose naltrexone—and why it’s not a quick fix.

    • Why a change in your diagnosis doesn’t change your reality.

      A life-saving strategy for traveling to high altitudes with EDS or POTS.

    Find the episode transcript here.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/


    Connect with the HypermobilityMD: 

    YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

    Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

    Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

    X: ⁠https://twitter.com/BluesteinLinda⁠ 

    LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

    Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

    Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠


    Learn more about Human Content at http://www.human-content.com

    Podcast Advertising/Business Inquiries: sales@human-content.com

    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2935     Are Your Breast Implants Making You Sick? with Dr. Eva Nagy (Ep 149) What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who’s become a global voice for patients suffering from Breast Implant Illness (BII). Together, they uncover the overlooked signs of mast cell activation, connective tissue involvement, immune dysregulation, and the invisible damage that can linger—even when scans look normal. Dr. Nagy breaks down the myths about “safe” implants, explains how BII can show up years—or hours—after surgery, and why removal must be done in a very specific way to truly heal. This episode exposes the real science behind BII, the staggering rate of gaslighting, and why so many hypermobile and chronically ill women are caught in this hidden epidemic. Takeaways: Her rash showed up the day she woke from surgery—what came next was worse. Silicone can migrate to your brain, lymph nodes… even your spinal cord. “Just anxiety”? One surgeon says no—and she has the pathology to prove it. A capsule left behind might mean years of symptoms—and one more surgery. When should breast implants be removed - even if there doesn't seem to be a problem Find the episode transcript here. Explant System Review Questionnaire Want more Dr. Eva Nagy? Facebook: https://www.facebook.com/profile.php?id=100067473308969 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠ LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Jun 2025 09:00:00 -0000 full Dr. Linda Bluestein What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who’s become a global voice for patients suffering from Breast Implant Illness (BII). Together, they uncover the overlooked signs of mast cell activation, connective tissue involvement, immune dysregulation, and the invisible damage that can linger—even when scans look normal. Dr. Nagy breaks down the myths about “safe” implants, explains how BII can show up years—or hours—after surgery, and why removal must be done in a very specific way to truly heal. This episode exposes the real science behind BII, the staggering rate of gaslighting, and why so many hypermobile and chronically ill women are caught in this hidden epidemic. Takeaways: Her rash showed up the day she woke from surgery—what came next was worse. Silicone can migrate to your brain, lymph nodes… even your spinal cord. “Just anxiety”? One surgeon says no—and she has the pathology to prove it. A capsule left behind might mean years of symptoms—and one more surgery. When should breast implants be removed - even if there doesn't seem to be a problem Find the episode transcript here. Explant System Review Questionnaire Want more Dr. Eva Nagy? Facebook: https://www.facebook.com/profile.php?id=100067473308969 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠ LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who’s become a global voice for patients suffering from Breast Implant Illness (BII).

    Together, they uncover the overlooked signs of mast cell activation, connective tissue involvement, immune dysregulation, and the invisible damage that can linger—even when scans look normal. Dr. Nagy breaks down the myths about “safe” implants, explains how BII can show up years—or hours—after surgery, and why removal must be done in a very specific way to truly heal.


    This episode exposes the real science behind BII, the staggering rate of gaslighting, and why so many hypermobile and chronically ill women are caught in this hidden epidemic.


    Takeaways:

    • Her rash showed up the day she woke from surgery—what came next was worse.

    • Silicone can migrate to your brain, lymph nodes… even your spinal cord.

    • “Just anxiety”? One surgeon says no—and she has the pathology to prove it.

    • A capsule left behind might mean years of symptoms—and one more surgery.

    • When should breast implants be removed - even if there doesn't seem to be a problem

    Find the episode transcript here.


    Explant System Review Questionnaire


    Want more Dr. Eva Nagy?


    Facebook: https://www.facebook.com/profile.php?id=100067473308969


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

    Connect with the HypermobilityMD: 

    YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

    Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

    Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

    X: ⁠https://twitter.com/BluesteinLinda⁠

    LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

    Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

    Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd


    Learn more about Human Content at http://www.human-content.com

    Podcast Advertising/Business Inquiries: sales@human-content.com

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3887     Hidden Causes of Pain ‘Down There’ with Dr. Andrew Goldstein (Ep 148) What if the pain you’ve been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in people with EDS (Ehlers-Danlos Syndrome), MCAS (Mast Cell Activation Syndrome) , and POTS (Postural Orthostatic Tachycardia Syndrome). Dr. Goldstein reveals why the traditional diagnosis of “vulvodynia” might be missing the real problem, and how factors like labral tears, pudendal nerve compression, Tarlov cysts, pelvic organ prolapse, endometriosis, nerve proliferation, and mast cell disorders can all converge into debilitating pain—and be completely overlooked. He explains why pelvic floor physical therapy sometimes fails, when Botox is a game-changer, and how stigma and misinformation continue to prevent EDS patients from receiving proper care. If you've ever been told "it's all in your head"—this episode proves it’s not. And it might be the roadmap you've been searching for. Takeaways: You might not feel hip pain at all—but your clitoris, rectum, or vulva will. A cyst that’s left off your MRI report could be ruining your life. That pain during intimacy? It could be nerve sprouting—and it's not your fault. When physical therapy fails, it may not be the therapy’s fault. He’s performed 1,300+ surgeries. Here’s how he decides if you really need one. Reference Links: Ep 130 with Dr. Goldstein: https://youtu.be/csiK_Zmb_hk Ep 116 with Dr. Feigenbaum: https://youtu.be/Uq4OrVa6deM https://www.gyncancer.org/ https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist https://pubmed.ncbi.nlm.nih.gov/23875629/ https://pubmed.ncbi.nlm.nih.gov/23577645/ https://www.isswsh.org/ Want more Dr. Andrew Goldstein? Instagram: https://www.instagram.com/the.cvvd/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Jun 2025 09:00:00 -0000 full Dr. Linda Bluestein What if the pain you’ve been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in people with EDS (Ehlers-Danlos Syndrome), MCAS (Mast Cell Activation Syndrome) , and POTS (Postural Orthostatic Tachycardia Syndrome). Dr. Goldstein reveals why the traditional diagnosis of “vulvodynia” might be missing the real problem, and how factors like labral tears, pudendal nerve compression, Tarlov cysts, pelvic organ prolapse, endometriosis, nerve proliferation, and mast cell disorders can all converge into debilitating pain—and be completely overlooked. He explains why pelvic floor physical therapy sometimes fails, when Botox is a game-changer, and how stigma and misinformation continue to prevent EDS patients from receiving proper care. If you've ever been told "it's all in your head"—this episode proves it’s not. And it might be the roadmap you've been searching for. Takeaways: You might not feel hip pain at all—but your clitoris, rectum, or vulva will. A cyst that’s left off your MRI report could be ruining your life. That pain during intimacy? It could be nerve sprouting—and it's not your fault. When physical therapy fails, it may not be the therapy’s fault. He’s performed 1,300+ surgeries. Here’s how he decides if you really need one. Reference Links: Ep 130 with Dr. Goldstein: https://youtu.be/csiK_Zmb_hk Ep 116 with Dr. Feigenbaum: https://youtu.be/Uq4OrVa6deM https://www.gyncancer.org/ https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist https://pubmed.ncbi.nlm.nih.gov/23875629/ https://pubmed.ncbi.nlm.nih.gov/23577645/ https://www.isswsh.org/ Want more Dr. Andrew Goldstein? Instagram: https://www.instagram.com/the.cvvd/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices What if the pain you’ve been told to ignore… was actually coming from your hips, your spine—or your immune system? In this deep-dive episode, Dr. Linda Bluestein is joined by Dr. Andrew Goldstein, an expert in sexual pain disorders, to unravel the misunderstood causes of vulvar and pelvic pain in people with EDS (Ehlers-Danlos Syndrome), MCAS (Mast Cell Activation Syndrome) , and POTS (Postural Orthostatic Tachycardia Syndrome).

    Dr. Goldstein reveals why the traditional diagnosis of “vulvodynia” might be missing the real problem, and how factors like labral tears, pudendal nerve compression, Tarlov cysts, pelvic organ prolapse, endometriosis, nerve proliferation, and mast cell disorders can all converge into debilitating pain—and be completely overlooked. He explains why pelvic floor physical therapy sometimes fails, when Botox is a game-changer, and how stigma and misinformation continue to prevent EDS patients from receiving proper care.

    If you've ever been told "it's all in your head"—this episode proves it’s not. And it might be the roadmap you've been searching for.


    Takeaways:

    • You might not feel hip pain at all—but your clitoris, rectum, or vulva will.

    • A cyst that’s left off your MRI report could be ruining your life.

    • That pain during intimacy? It could be nerve sprouting—and it's not your fault.

    • When physical therapy fails, it may not be the therapy’s fault.


    • He’s performed 1,300+ surgeries. Here’s how he decides if you really need one.

    Reference Links:

    Ep 130 with Dr. Goldstein: https://youtu.be/csiK_Zmb_hk

    Ep 116 with Dr. Feigenbaum: https://youtu.be/Uq4OrVa6deM


    https://www.gyncancer.org/


    https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist


    https://pubmed.ncbi.nlm.nih.gov/23875629/


    https://pubmed.ncbi.nlm.nih.gov/23577645/


    https://www.isswsh.org/



    Want more Dr. Andrew Goldstein?


    Instagram: https://www.instagram.com/the.cvvd/


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

    Connect with the HypermobilityMD: 

    YouTube: ⁠youtube.com/@bendybodiespodcast⁠ 

    Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠ 

    Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠ 

    X: ⁠https://twitter.com/BluesteinLinda⁠ 

    LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠ 

    Newsletter: ⁠https://hypermobilitymd.substack.com/⁠

    Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠


    Learn more about Human Content at http://www.human-content.com

    Podcast Advertising/Business Inquiries: sales@human-content.com

    Part of the Human Content Podcast Network


    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4625     Is There Any Hope for Broken Healthcare? (Ep 147) What if your rushed, robotic medical visit isn’t just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what’s truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight. Together, they uncover the corrosive impact of industrialized, fast medicine, the hidden costs of “heroic” care, and how complex patients are forced to carry impossible burdens in a system that sees them as data points, not people. Dr. Montori shares his vision for a Patient Revolution, explains why the soul of healthcare is under siege, and issues a call to action for anyone who's ever felt like just another number. If you’ve sensed something is deeply wrong in the exam room… you’re not imagining it. Takeaways: What if your provider is hurting just as much as you are—but for different reasons? When care vanishes, both the patient and the doctor suffer. The healthcare system wants faster visits. Dr. Montori wants a revolution. Heroic care comes at a cost—and not just for the clinician. You’re not imagining the harm. But you’re not powerless either. Reference Links: https://www.patientrevolution.org/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11902612/ Want more Dr. Victor Montori? Dr. Montori’s book: Bendy Bodies Amazon Booklist Bluesky: @vmontori@bsky.social Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 29 May 2025 09:00:00 -0000 full Dr. Linda Bluestein What if your rushed, robotic medical visit isn’t just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what’s truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight. Together, they uncover the corrosive impact of industrialized, fast medicine, the hidden costs of “heroic” care, and how complex patients are forced to carry impossible burdens in a system that sees them as data points, not people. Dr. Montori shares his vision for a Patient Revolution, explains why the soul of healthcare is under siege, and issues a call to action for anyone who's ever felt like just another number. If you’ve sensed something is deeply wrong in the exam room… you’re not imagining it. Takeaways: What if your provider is hurting just as much as you are—but for different reasons? When care vanishes, both the patient and the doctor suffer. The healthcare system wants faster visits. Dr. Montori wants a revolution. Heroic care comes at a cost—and not just for the clinician. You’re not imagining the harm. But you’re not powerless either. Reference Links: https://www.patientrevolution.org/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11902612/ Want more Dr. Victor Montori? Dr. Montori’s book: Bendy Bodies Amazon Booklist Bluesky: @vmontori@bsky.social Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices What if your rushed, robotic medical visit isn’t just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what’s truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight.

    Together, they uncover the corrosive impact of industrialized, fast medicine, the hidden costs of “heroic” care, and how complex patients are forced to carry impossible burdens in a system that sees them as data points, not people.

    Dr. Montori shares his vision for a Patient Revolution, explains why the soul of healthcare is under siege, and issues a call to action for anyone who's ever felt like just another number. If you’ve sensed something is deeply wrong in the exam room… you’re not imagining it.


    Takeaways:

    • What if your provider is hurting just as much as you are—but for different reasons?

    • When care vanishes, both the patient and the doctor suffer.

    • The healthcare system wants faster visits. Dr. Montori wants a revolution.

    • Heroic care comes at a cost—and not just for the clinician.

    • You’re not imagining the harm. But you’re not powerless either.

    Reference Links:

    https://www.patientrevolution.org/


    https://pmc.ncbi.nlm.nih.gov/articles/PMC11902612/


    Want more Dr. Victor Montori?

    Dr. Montori’s book: Bendy Bodies Amazon Booklist

    Bluesky: @vmontori@bsky.social


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/


    Connect with the HypermobilityMD: 

    YouTube: youtube.com/@bendybodiespodcast 

    Instagram: https://www.instagram.com/hypermobilitymd/ 

    Facebook: https://www.facebook.com/BendyBodiesPodcast 

    X: https://twitter.com/BluesteinLinda 

    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    Newsletter: https://hypermobilitymd.substack.com/

    Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd

    Learn more about Human Content at http://www.human-content.com

    Podcast Advertising/Business Inquiries: sales@human-content.com

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3729     What’s Behind the Rise in Chemical Sensitivity? | Office Hours (Ep 146) What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won’t prescribe—it’s all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn’t just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one’s talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here’s why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein’s Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS  and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at ⁠http://www.human-content.com⁠ Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 May 2025 09:00:00 -0000 full Dr. Linda Bluestein What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won’t prescribe—it’s all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn’t just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one’s talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here’s why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein’s Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS  and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at ⁠http://www.human-content.com⁠ Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk.

    From the scar tissue no one warned you about to the medication that works—but doctors won’t prescribe—it’s all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders.

    And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn’t just give answers. It reveals what questions you should have been asking all along.

    Takeaways:

    • This one over-the-counter product might be behind your chronic eye issues—and no one’s talking about it.

    • Considerations and cautions for taking cromolyn

    • A “safe” eye ointment led to lasting damage—here’s why.

    • Doctors say no to pain meds before surgery… but do they know the full risk?

    • A tick bite and subsequent food allergy changes everything—even your shampoo.

    Find the episode transcript here.


    Reference Links:

    EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk

    EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc

    EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns

    EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA

    EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0

    EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4

    EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0

    EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ

    EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY

    EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k


    Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein’s Amazon Store

    https://amzn.to/3RAjueJ

    https://www.amazon.com/shop/hypermobilitymd

    Toxicant Induced Loss of Tolerance (TILT) Tests

    https://tiltresearch.org/self-assessment/

    TILT Resources

    https://tiltresearch.org/resources/

    Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed

    Food Compatibility List

    https://www.twoalphagals.com/

    https://www.veganmed.org/

    YouTube Playlist on Moving with EDS  and HSD

    https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f

    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/

    Connect with the HypermobilityMD: 

    YouTube: youtube.com/@bendybodiespodcast 

    Instagram: https://www.instagram.com/hypermobilitymd/ 

    Facebook: https://www.facebook.com/BendyBodiesPodcast 

    X: https://twitter.com/BluesteinLinda 

    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    Newsletter: https://hypermobilitymd.substack.com/

    Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd

    Learn more about Human Content at ⁠http://www.human-content.com⁠

    Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠

    Part of the Human Content Podcast Network

    FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2877     Are Mast Cells Driving Autism? with Dr. Pejman Katiraei (Ep 145) What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many kids aren’t just neurodivergent—they have neuroinflammation. Together, they peel back the layers on what’s really driving autistic behaviors, why some children can’t tolerate food, noise, or even hugs—and how mast cells and histamine might be behind it all. Dr. Katiraei shares remarkable stories of transformation, explains why traditional testing often fails, and reveals a controversial treatment that’s changing lives. If your child is sensitive, reactive, or struggling to connect—and you’ve been told it’s just "behavioral"—this conversation might rewrite what you thought was possible. Takeaways: One child's refusal to eat broccoli held more answers than anyone expected. Could colic be the first warning sign of central inflammation? He couldn’t feel love—until one unlikely medication changed everything. A house tested clean… but the child kept getting worse. Why? Some diagnoses miss what’s burning beneath the surface. Find the episode transcript here. Reference Links: https://pubmed.ncbi.nlm.nih.gov/18626069/ https://www.sciencedirect.com/science/article/abs/pii/S0941950014001936The Dust Testhttps://www.thedusttest.com/https://www.mayoclinic.org/drugs-supplements/itraconazole-oral-route/description/drg-20071421 https://www.sciencedirect.com/science/article/abs/pii/S0149291813001823 https://pmc.ncbi.nlm.nih.gov/articles/PMC10932299/ Watch Ep 32 with Dr. Jessica Eccles: https://youtu.be/BmIFATctyzk Watch Ep 47 with Dr. Jessica Eccles: https://youtu.be/nhsLDzLpUWE Watch Ep 139 with Dr. Theoharides: https://youtu.be/u1pxvAzXh7M Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! https://wholistickids.com/ https://www.wholisticminds.com/ https://pkatiraei.substack.com https://www.youtube.com/@pkatiraei https://www.instagram.com/wholistickids?igsh=MXNyd3I3NTc0aGIydw== Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  Facebook: X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 15 May 2025 09:00:00 -0000 full Dr. Linda Bluestein What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many kids aren’t just neurodivergent—they have neuroinflammation. Together, they peel back the layers on what’s really driving autistic behaviors, why some children can’t tolerate food, noise, or even hugs—and how mast cells and histamine might be behind it all. Dr. Katiraei shares remarkable stories of transformation, explains why traditional testing often fails, and reveals a controversial treatment that’s changing lives. If your child is sensitive, reactive, or struggling to connect—and you’ve been told it’s just "behavioral"—this conversation might rewrite what you thought was possible. Takeaways: One child's refusal to eat broccoli held more answers than anyone expected. Could colic be the first warning sign of central inflammation? He couldn’t feel love—until one unlikely medication changed everything. A house tested clean… but the child kept getting worse. Why? Some diagnoses miss what’s burning beneath the surface. Find the episode transcript here. Reference Links: https://pubmed.ncbi.nlm.nih.gov/18626069/ https://www.sciencedirect.com/science/article/abs/pii/S0941950014001936The Dust Testhttps://www.thedusttest.com/https://www.mayoclinic.org/drugs-supplements/itraconazole-oral-route/description/drg-20071421 https://www.sciencedirect.com/science/article/abs/pii/S0149291813001823 https://pmc.ncbi.nlm.nih.gov/articles/PMC10932299/ Watch Ep 32 with Dr. Jessica Eccles: https://youtu.be/BmIFATctyzk Watch Ep 47 with Dr. Jessica Eccles: https://youtu.be/nhsLDzLpUWE Watch Ep 139 with Dr. Theoharides: https://youtu.be/u1pxvAzXh7M Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! https://wholistickids.com/ https://www.wholisticminds.com/ https://pkatiraei.substack.com https://www.youtube.com/@pkatiraei https://www.instagram.com/wholistickids?igsh=MXNyd3I3NTc0aGIydw== Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  Facebook: X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many kids aren’t just neurodivergent—they have neuroinflammation.

    Together, they peel back the layers on what’s really driving autistic behaviors, why some children can’t tolerate food, noise, or even hugs—and how mast cells and histamine might be behind it all. Dr. Katiraei shares remarkable stories of transformation, explains why traditional testing often fails, and reveals a controversial treatment that’s changing lives.

    If your child is sensitive, reactive, or struggling to connect—and you’ve been told it’s just "behavioral"—this conversation might rewrite what you thought was possible.

    Takeaways:

    • One child's refusal to eat broccoli held more answers than anyone expected.

    • Could colic be the first warning sign of central inflammation?

    • He couldn’t feel love—until one unlikely medication changed everything.

    • A house tested clean… but the child kept getting worse. Why?

    • Some diagnoses miss what’s burning beneath the surface.

    Find the episode transcript here.


    Reference Links:

    https://pubmed.ncbi.nlm.nih.gov/18626069/

    https://www.sciencedirect.com/science/article/abs/pii/S0941950014001936
    The Dust Test
    https://www.thedusttest.com/
    https://www.mayoclinic.org/drugs-supplements/itraconazole-oral-route/description/drg-20071421


    https://www.sciencedirect.com/science/article/abs/pii/S0149291813001823


    https://pmc.ncbi.nlm.nih.gov/articles/PMC10932299/

    Watch Ep 32 with Dr. Jessica Eccles: https://youtu.be/BmIFATctyzk

    Watch Ep 47 with Dr. Jessica Eccles: https://youtu.be/nhsLDzLpUWE

    Watch Ep 139 with Dr. Theoharides: https://youtu.be/u1pxvAzXh7M

    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

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    ]]>     5099     Unraveling Fatigue: Exploring ME/CFS, and Long COVID (Ep 144) What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn’t—build their own science. You’ll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you’ve ever wondered why your body feels like it’s working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn’t stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here. Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 May 2025 09:00:00 -0000 full Dr. Linda Bluestein What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn’t—build their own science. You’ll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you’ve ever wondered why your body feels like it’s working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn’t stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here. Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness.


    Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn’t—build their own science.



    You’ll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you’ve ever wondered why your body feels like it’s working against you—or what recovery might actually look like—this episode may change everything.


    Takeaways:


    She couldn’t stand in front of the fridge—until a “taboo” medication changed everything.


    The labs were normal. Her body was screaming.


    A grandmother, a diagnosis, and an unstoppable fight for answers.


    What if your symptoms don't show up on any scan… but still hold the truth?


    The protocol that sparked a remission—and a global movement.


    Find the episode transcript here.


    Reference Links:


    RemissionBiome w/Dr. Yellman


    https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/



    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Learn about Isabel Ramirez-Burnett :


    Twitter: https://x.com/isabelramirezrd?lang=en

    Renegade Research Twitter: https://x.com/renegaderes

    Youtube: https://www.youtube.com/remissionbiome

    LinkedIn: https://www.linkedin.com/isabelramirezrd

    BlueSky: https://isabelramirezrd.bsky.social

    Amazon: https://amzn.to/3EB7PcC


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4417     Dental Problems in EDS with Dr. Audrey Kershaw (Ep 143) What if your dental history held the key to a complex diagnosis no one’s caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who’s uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can’t numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can’t numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might’ve revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here’s what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document: https://remedy.bnssg.icb.nhs.uk/media/omvphznu/tmd-patient-support-document-march-2024-1.pdf   Scottish Dental Magazine article EDS Article  Scottish_Dental_magazine_October_2023 p38-39[77].pdf   BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf   LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/   Link to pt EDS email EDS PATIENT EMAIL April 2025.docx   Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 01 May 2025 09:00:00 -0000 full Dr. Linda Bluestein What if your dental history held the key to a complex diagnosis no one’s caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who’s uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can’t numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can’t numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might’ve revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here’s what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document: https://remedy.bnssg.icb.nhs.uk/media/omvphznu/tmd-patient-support-document-march-2024-1.pdf   Scottish Dental Magazine article EDS Article  Scottish_Dental_magazine_October_2023 p38-39[77].pdf   BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf   LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/   Link to pt EDS email EDS PATIENT EMAIL April 2025.docx   Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What if your dental history held the key to a complex diagnosis no one’s caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who’s uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair.


    From patients who “can’t numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about.


    If your mouth has always felt... different—this episode might explain why.


    Find the episode transcript here.


    Takeaways:

    • Some patients can’t numb up… and the reason may change how you see your entire body.
    • Your wisdom tooth extraction might’ve revealed more than just a dental issue.
    • That persistent jaw pain? It may be pointing to something systemic.
    • A 40-year case of bad breath led to an unexpected diagnosis—here’s what happened.
    • You might be able to spot a connective tissue disorder… before a dentist even says a word.


    Reference Links:


    GIRFT RCS TMD full document: https://remedy.bnssg.icb.nhs.uk/media/omvphznu/tmd-patient-support-document-march-2024-1.pdf

     

    Scottish Dental Magazine article EDS Article  Scottish_Dental_magazine_October_2023 p38-39[77].pdf

     

    BISOM link to mouth ulcers

    https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf

     

    LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/

     

    Link to pt EDS email EDS PATIENT EMAIL April 2025.docx

     

    Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Learn about Dr. Audrey Kershaw:


    Website: https://www.oralsurgery.scot/


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Learn more about Human Content at http://www.human-content.com

    Podcast Advertising/Business Inquiries: sales@human-content.com

    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4452     Is Your EDS Party Trick Causing Long-Term Damage? | Office Hours (EP 142) What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You’ll hear surprising stories from patients who’ve suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you’ve already heard it all about EDS, MCAS, and chronic illness—you haven’t heard this. Takeaways: A harmless beauty treatment… until it’s not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 24 Apr 2025 09:00:00 -0000 full Dr. Linda Bluestein What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You’ll hear surprising stories from patients who’ve suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you’ve already heard it all about EDS, MCAS, and chronic illness—you haven’t heard this. Takeaways: A harmless beauty treatment… until it’s not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers.


    You’ll hear surprising stories from patients who’ve suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim.


    If you think you’ve already heard it all about EDS, MCAS, and chronic illness—you haven’t heard this.



    Takeaways:

    A harmless beauty treatment… until it’s not. Learn what no one tells you about EDS and cosmetic procedures.


    What if your MRI looks “normal”—but your spine is screaming otherwise?


    Think party tricks are just for fun? Your joints might not agree.


    One invisible environmental trigger may be silently wrecking your nervous system.


    Even your surgeon might not know this one crucial detail—unless you ask the right question.


    Find the transcript for this episode here.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2720     Top Therapists Share Tips for Surviving EDS (Ep 141) What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn’t stop there. You’ll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it’s working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn’t what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Apr 2025 09:00:00 -0000 full Dr. Linda Bluestein What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn’t stop there. You’ll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it’s working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn’t what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship.


    From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose.


    But it doesn’t stop there. You’ll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it’s working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you.


    Takeaways:

    • What if the love of your life was diagnosed after your wedding… would you stay?
    • This surgery gave her legs—and her life—back.
    • They gave their illness a name… and it changed how they fought it.
    • The hardest part of caregiving isn’t what you think.
    • Sometimes, even therapists need help decoding each other.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Find the episode transcript here.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Learn about Melissa Dickinson & Tom Query:


    Melissa:

    Facebook: https://www.facebook.com/melissadickinsonEDSofGA/

    LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/

    Website: www.MelissaDickinson.com


    Tom:

    Facebook: https://www.facebook.com/wellspringcounselingintown

    Website: https://www.tomquery.com


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4539     Why Are You So Exhausted? with Dr. Brayden P. Yellman (Ep 140) What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper. Together, they unravel the hidden markers of post-exertional malaise, explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch. With no known biomarker, diagnosis is a clinical puzzle—and one too often dismissed. Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways. If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn’t know existed. Note: You may notice a few choppy moments in this video due to our guest’s frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding! Takeaways: Fatigue might not be what you think—and your body may be operating in a totally different mode. Your upright posture could be silently draining your energy every hour of the day. A “normal” MRI doesn’t mean your nervous system is functioning normally. Could your symptoms be the result of your brainstem being pulled—literally? The most revealing test? It might be one you do at home... and it doesn’t involve a lab. YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Brayden P. Yellman Twitter: https://x.com/BatemanHorne Instagram: https://www.instagram.com/bateman_horne_center/ Facebook: https://www.facebook.com/batemanhornecenter LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/ BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social Website: https://batemanhornecenter.org/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 10 Apr 2025 09:00:00 -0000 full Dr. Linda Bluestein What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper. Together, they unravel the hidden markers of post-exertional malaise, explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch. With no known biomarker, diagnosis is a clinical puzzle—and one too often dismissed. Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways. If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn’t know existed. Note: You may notice a few choppy moments in this video due to our guest’s frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding! Takeaways: Fatigue might not be what you think—and your body may be operating in a totally different mode. Your upright posture could be silently draining your energy every hour of the day. A “normal” MRI doesn’t mean your nervous system is functioning normally. Could your symptoms be the result of your brainstem being pulled—literally? The most revealing test? It might be one you do at home... and it doesn’t involve a lab. YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Brayden P. Yellman Twitter: https://x.com/BatemanHorne Instagram: https://www.instagram.com/bateman_horne_center/ Facebook: https://www.facebook.com/batemanhornecenter LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/ BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social Website: https://batemanhornecenter.org/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper.


    Together, they unravel the hidden markers of post-exertional malaise, explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch. With no known biomarker, diagnosis is a clinical puzzle—and one too often dismissed.


    Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways. If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn’t know existed.


    Note: You may notice a few choppy moments in this video due to our guest’s frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding!


    Takeaways:

    • Fatigue might not be what you think—and your body may be operating in a totally different mode.
    • Your upright posture could be silently draining your energy every hour of the day.
    • A “normal” MRI doesn’t mean your nervous system is functioning normally.
    • Could your symptoms be the result of your brainstem being pulled—literally?
    • The most revealing test? It might be one you do at home... and it doesn’t involve a lab.


    YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I


    Find the episode transcript here.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!


    Learn about Dr. Brayden P. Yellman

    Twitter: https://x.com/BatemanHorne

    Instagram: https://www.instagram.com/bateman_horne_center/

    Facebook: https://www.facebook.com/batemanhornecenter

    LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/

    BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social

    Website: https://batemanhornecenter.org/


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3938     Hidden Histamine Threats with Dr. Theoharis Theoharides (Ep 139) What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world’s leading experts on mast cells, to unravel the hidden roles they play in some of the most complex chronic illnesses. From histamine sensitivity that mimics allergies, to lab tests that miss what’s really going on, Dr. Theoharides sheds light on why so many patients are dismissed—and what doctors are missing. The conversation takes unexpected turns into brain inflammation, food triggers, and even autism, where mast cells may hold untapped insight into neurodevelopment and behavior. If you've ever felt like your symptoms don’t make sense—or that the medical system keeps overlooking something obvious—this episode might just connect the dots. Takeaways: You might be surprised to learn which test isn’t as useful for diagnosing MCAS as people think. The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation. Some reactions you're calling “allergies” might be something very different (and trickier to detect). The way mast cells interact with the brain could change how we think about neurodevelopment. A few supplements could help—but only if you're asking the right questions first. Chapters: 00:00 Introduction to Mast Cells and Guest Introduction 02:57 Understanding Mast Cell Activation Syndrome (MCAS) 10:35 Diagnostic Challenges and Lab Tests for MCAS 32:12 Mast Cells in the Brain and Neuroinflammation 44:00 Understanding Mast Cell Activation and Stress 46:06 The Role of Diet and Supplements in Managing Mast Cell Activation 55:42 Gut Health and Mast Cell Activation 01:01:51 Practical Tips and Future Directions Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Theoharis Theoharides Website: https://www.drtheoharides.com/ Podcast Link: https://algonot.com/ Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Apr 2025 17:19:00 -0000 full Dr. Linda Bluestein What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world’s leading experts on mast cells, to unravel the hidden roles they play in some of the most complex chronic illnesses. From histamine sensitivity that mimics allergies, to lab tests that miss what’s really going on, Dr. Theoharides sheds light on why so many patients are dismissed—and what doctors are missing. The conversation takes unexpected turns into brain inflammation, food triggers, and even autism, where mast cells may hold untapped insight into neurodevelopment and behavior. If you've ever felt like your symptoms don’t make sense—or that the medical system keeps overlooking something obvious—this episode might just connect the dots. Takeaways: You might be surprised to learn which test isn’t as useful for diagnosing MCAS as people think. The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation. Some reactions you're calling “allergies” might be something very different (and trickier to detect). The way mast cells interact with the brain could change how we think about neurodevelopment. A few supplements could help—but only if you're asking the right questions first. Chapters: 00:00 Introduction to Mast Cells and Guest Introduction 02:57 Understanding Mast Cell Activation Syndrome (MCAS) 10:35 Diagnostic Challenges and Lab Tests for MCAS 32:12 Mast Cells in the Brain and Neuroinflammation 44:00 Understanding Mast Cell Activation and Stress 46:06 The Role of Diet and Supplements in Managing Mast Cell Activation 55:42 Gut Health and Mast Cell Activation 01:01:51 Practical Tips and Future Directions Find the transcript for this episode here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Theoharis Theoharides Website: https://www.drtheoharides.com/ Podcast Link: https://algonot.com/ Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world’s leading experts on mast cells, to unravel the hidden roles they play in some of the most complex chronic illnesses.


    From histamine sensitivity that mimics allergies, to lab tests that miss what’s really going on, Dr. Theoharides sheds light on why so many patients are dismissed—and what doctors are missing. The conversation takes unexpected turns into brain inflammation, food triggers, and even autism, where mast cells may hold untapped insight into neurodevelopment and behavior.


    If you've ever felt like your symptoms don’t make sense—or that the medical system keeps overlooking something obvious—this episode might just connect the dots.


    Takeaways:


    You might be surprised to learn which test isn’t as useful for diagnosing MCAS as people think.


    The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation.


    Some reactions you're calling “allergies” might be something very different (and trickier to detect).


    The way mast cells interact with the brain could change how we think about neurodevelopment.


    A few supplements could help—but only if you're asking the right questions first.


    Chapters:

    00:00 Introduction to Mast Cells and Guest Introduction

    02:57 Understanding Mast Cell Activation Syndrome (MCAS)

    10:35 Diagnostic Challenges and Lab Tests for MCAS

    32:12 Mast Cells in the Brain and Neuroinflammation

    44:00 Understanding Mast Cell Activation and Stress

    46:06 The Role of Diet and Supplements in Managing Mast Cell Activation

    55:42 Gut Health and Mast Cell Activation

    01:01:51 Practical Tips and Future Directions


    Find the transcript for this episode here.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Learn about Dr. Theoharis Theoharides


    Website: https://www.drtheoharides.com/


    Podcast Link: https://algonot.com/


    Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html


    LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4740     Lower Your EDS Pain | Office Hours (EP 138) In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues.   Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you.   Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com  Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 27 Mar 2025 09:00:00 -0000 Lower Your EDS Pain | Office Hours (EP 138) full Dr. Linda Bluestein In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues.   Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you.   Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com  Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips.


    Takeaways:

    Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues.  


    Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms.


    How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening.


    EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers.


    Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you.  


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Find the episode transcript here.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com 


    Part of the Human Content Podcast Network


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2723     Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you’ve been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn’t Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Mar 2025 09:00:00 -0000 full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you’ve been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn’t Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you’ve been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research.


    Takeaways:


    Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key.


    EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired.


    Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction.


    Surgery Isn’t Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release.


    Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes.


    Articles referenced in the episode:


    https://pubmed.ncbi.nlm.nih.gov/38489815/


    https://pubmed.ncbi.nlm.nih.gov/38202013/


    https://pubmed.ncbi.nlm.nih.gov/35307588/



    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Find the episode transcript here.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!



    Learn about Dr. Petra Klinge


    Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd




    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4640     Hidden Triggers of Complex Illness with Dr. David Kaufman (Ep 136) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find this episode's transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about  Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 13 Mar 2025 09:00:00 -0000 Hidden Triggers of Complex Illness with Dr. David Kaufman (Ep 136) full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find this episode's transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about  Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice.


    Takeaways:

    Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments.


    Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms.


    Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing.


    Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability.


    Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Find this episode's transcript here.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about  Dr. David Kaufman

    Blue Sky: @kaufmanmd.bsky.social

    Website: https://www.centerforcomplexdiseases.com/

    Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4532     The Truth About Hormone Therapy | Office Hours (EP 135) In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights. Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances. Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT. Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 06 Mar 2025 10:00:00 -0000 full Dr. Linda Bluestein In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights. Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances. Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT. Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights.


    Takeaways:

    Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity, which is why hormonal changes impact pain and mobility.

    Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk, making HRT a potential tool for symptom management.

    Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue, it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances.

    Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health, so always ensure proper lab testing and medical oversight before starting HRT.

    Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation, impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Find the transcript for this episode here.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3028     Why Sjogren’s is Often Misdiagnosed with Dr. Kara Wada (Ep 134) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren’s disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren’s is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren’s diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you’re navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice. Find this episode's transcript here: https://www.bendybodiespodcast.com/sjogrens-misdiagnosis-dr-kara-wada/ Takeaways: Sjogren’s is Massively Underdiagnosed – Up to 75% of people with Sjogren’s remain undiagnosed, in part because its symptoms extend far beyond dryness and don’t always present in a textbook way. Autoimmune Conditions & EDS Are Connected – Sjogren’s, POTS, and MCAS frequently overlap due to their shared impact on the immune and nervous systems, making diagnosis and treatment complex. Dryness is Just the Beginning – Sjogren’s can cause neuropathy, fatigue, dysautonomia, gastrointestinal issues, and even a higher risk of lymphoma, making it more than just an inconvenience. Current Treatments Are Limited but Improving – There are no FDA-approved medications specifically for Sjogren’s, but promising treatments are currently in phase 3 trials, offering hope for better management Nutrition & Lifestyle Matter – Avoiding ultra-processed foods, prioritizing hydration, and incorporating anti-inflammatory nutrients can help manage symptoms and support immune function. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Past Episodes: https://www.bendybodiespodcast.com/linking-mast-cell-activation-autoimmunity-and-eds/ https://www.drkarawada.com/podcasts/becoming-immune-confident/episodes/2148563154 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about  Dr. Karen Wada Twitter: @CrunchyAllergy Instagram: @immuneconfidentmd TikTok: @immuneconfidentmd FB: @KaraWadaMD YT: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 27 Feb 2025 10:00:00 -0000 Why Sjogren’s is Often Misdiagnosed with Dr. Karen Wada full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren’s disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren’s is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren’s diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you’re navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren’s disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren’s is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren’s diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you’re navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice. Find this episode's transcript here: https://www.bendybodiespodcast.com/sjogrens-misdiagnosis-dr-kara-wada/ Takeaways: Sjogren’s is Massively Underdiagnosed – Up to 75% of people with Sjogren’s remain undiagnosed, in part because its symptoms extend far beyond dryness and don’t always present in a textbook way. Autoimmune Conditions & EDS Are Connected – Sjogren’s, POTS, and MCAS frequently overlap due to their shared impact on the immune and nervous systems, making diagnosis and treatment complex. Dryness is Just the Beginning – Sjogren’s can cause neuropathy, fatigue, dysautonomia, gastrointestinal issues, and even a higher risk of lymphoma, making it more than just an inconvenience. Current Treatments Are Limited but Improving – There are no FDA-approved medications specifically for Sjogren’s, but promising treatments are currently in phase 3 trials, offering hope for better management Nutrition & Lifestyle Matter – Avoiding ultra-processed foods, prioritizing hydration, and incorporating anti-inflammatory nutrients can help manage symptoms and support immune function. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Past Episodes: https://www.bendybodiespodcast.com/linking-mast-cell-activation-autoimmunity-and-eds/ https://www.drkarawada.com/podcasts/becoming-immune-confident/episodes/2148563154 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about  Dr. Karen Wada Twitter: @CrunchyAllergy Instagram: @immuneconfidentmd TikTok: @immuneconfidentmd FB: @KaraWadaMD YT: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren’s disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren’s is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren’s diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you’re navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice.


    Find this episode's transcript here:

    https://www.bendybodiespodcast.com/sjogrens-misdiagnosis-dr-kara-wada/


    Takeaways:


    Sjogren’s is Massively Underdiagnosed – Up to 75% of people with Sjogren’s remain undiagnosed, in part because its symptoms extend far beyond dryness and don’t always present in a textbook way.


    Autoimmune Conditions & EDS Are Connected – Sjogren’s, POTS, and MCAS frequently overlap due to their shared impact on the immune and nervous systems, making diagnosis and treatment complex.


    Dryness is Just the Beginning – Sjogren’s can cause neuropathy, fatigue, dysautonomia, gastrointestinal issues, and even a higher risk of lymphoma, making it more than just an inconvenience.


    Current Treatments Are Limited but Improving – There are no FDA-approved medications specifically for Sjogren’s, but promising treatments are currently in phase 3 trials, offering hope for better management


    Nutrition & Lifestyle Matter – Avoiding ultra-processed foods, prioritizing hydration, and incorporating anti-inflammatory nutrients can help manage symptoms and support immune function.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Past Episodes:

    https://www.bendybodiespodcast.com/linking-mast-cell-activation-autoimmunity-and-eds/


    https://www.drkarawada.com/podcasts/becoming-immune-confident/episodes/2148563154



    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about  Dr. Karen Wada

    Twitter: @CrunchyAllergy

    Instagram: @immuneconfidentmd

    TikTok: @immuneconfidentmd

    FB: @KaraWadaMD

    YT: @drkarawada


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4662     How Internists Think About Complex Illness with Dr. Matthew Watto (Ep 133) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need. Takeaways: Internists Have Limited Training in EDS & Hypermobility – Many internists receive little to no education on hypermobility-related conditions, making patient education and advocacy essential. Appointment Time is Short—Be Prepared – Most internists have at the very most 15-20 minutes for follow-ups and 30-40 minutes for new patients, so bringing a prioritized list of concerns helps maximize the visit. Ask for a Collaborative Approach – Internists are generalists, meaning they oversee a wide range of conditions. Patients with complex conditions should request coordination between specialists for better care. Concierge & Academic Medicine May Offer More Time – Patients who need longer appointments or more personalized care may benefit from concierge medicine, academic medical centers, or direct primary care models. Doctors Want to Help, But the System is Broken – Many doctors feel frustrated by short appointment times, insurance barriers, and administrative burdens. Patient-doctor teamwork is key to navigating these challenges. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Matthew Watto YT: @TheCurbsiders IG: @thecurbsiders Twitter: @/thecurbsiders & @doctorwatto Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Feb 2025 10:00:00 -0000 How Internists Think About Complex Illness with Dr. Matthew Watto (BEN 133) full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need. Takeaways: Internists Have Limited Training in EDS & Hypermobility – Many internists receive little to no education on hypermobility-related conditions, making patient education and advocacy essential. Appointment Time is Short—Be Prepared – Most internists have at the very most 15-20 minutes for follow-ups and 30-40 minutes for new patients, so bringing a prioritized list of concerns helps maximize the visit. Ask for a Collaborative Approach – Internists are generalists, meaning they oversee a wide range of conditions. Patients with complex conditions should request coordination between specialists for better care. Concierge & Academic Medicine May Offer More Time – Patients who need longer appointments or more personalized care may benefit from concierge medicine, academic medical centers, or direct primary care models. Doctors Want to Help, But the System is Broken – Many doctors feel frustrated by short appointment times, insurance barriers, and administrative burdens. Patient-doctor teamwork is key to navigating these challenges. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Matthew Watto YT: @TheCurbsiders IG: @thecurbsiders Twitter: @/thecurbsiders & @doctorwatto Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need.






    Takeaways:


    Internists Have Limited Training in EDS & Hypermobility – Many internists receive little to no education on hypermobility-related conditions, making patient education and advocacy essential.




    Appointment Time is Short—Be Prepared – Most internists have at the very most 15-20 minutes for follow-ups and 30-40 minutes for new patients, so bringing a prioritized list of concerns helps maximize the visit.




    Ask for a Collaborative Approach – Internists are generalists, meaning they oversee a wide range of conditions. Patients with complex conditions should request coordination between specialists for better care.




    Concierge & Academic Medicine May Offer More Time – Patients who need longer appointments or more personalized care may benefit from concierge medicine, academic medical centers, or direct primary care models.




    Doctors Want to Help, But the System is Broken – Many doctors feel frustrated by short appointment times, insurance barriers, and administrative burdens. Patient-doctor teamwork is key to navigating these challenges.




    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.



    Find the transcript for this episode here.



    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.




    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Learn about Dr. Matthew Watto


    YT: @TheCurbsiders


    IG: @thecurbsiders


    Twitter: @/thecurbsiders & @doctorwatto




    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4407     Reversing Brain Fog & Inflammation with Dr. Ilene Ruhoy (Ep 132) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 13 Feb 2025 10:00:00 -0000 Reversing Brain Fog & Inflammation with Dr. Ilene Ruhoy (Ep 132) full 5 132 Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels.


    Takeaways:


    Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone.


    Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements.


    Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some.


    Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue.


    Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation.




    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.




    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.




    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Learn about Dr. Ilene Ruhoy


    Instagram: @IleneRuhoyMDPhD

    TikTok: @IleneRuhoyMDPhD

    Podcast (YT): @Unraveledpod

    Twitter: @RuhoyMD

    Bluesky: @ruhoy.bsky.social


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5105     Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. Takeaways: Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy. Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don’t discuss it. Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help. Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated. Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. My favorite books: https://bit.ly/3WHFQhq Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Follow along with the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Kelly Casperson Instagram: @kellycaspersonmd Facebook: @youarentbroken YouTube: @kellycaspersonmd Book: You Are Not Broken https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 06 Feb 2025 10:00:00 -0000 Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. Takeaways: Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy. Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don’t discuss it. Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help. Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated. Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. My favorite books: https://bit.ly/3WHFQhq Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Follow along with the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Kelly Casperson Instagram: @kellycaspersonmd Facebook: @youarentbroken YouTube: @kellycaspersonmd Book: You Are Not Broken https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions.



    Takeaways:


    Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy.


    Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don’t discuss it.


    Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help.


    Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated.


    Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues.




    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    My favorite books: https://bit.ly/3WHFQhq


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Follow along with the episode transcript here.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.




    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Learn about Dr. Kelly Casperson


    Instagram: @kellycaspersonmd

    Facebook: @youarentbroken

    YouTube: @kellycaspersonmd


    Book: You Are Not Broken

    https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist




    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3339     Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. Takeaways: Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook. Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy. Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders. Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain. Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy. PS. The vestibule refers to the vulva (female external genitalia) between the labia minora (two inner skin folds that surround the vaginal opening). PSS. Neuroproliferative vestibulodynia is where there are too many nerve endings in the vestibule tissue.   Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find Bendy Bodies episode transcripts here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Irwin Goldstein & Sue Goldstein Facebook: @SDSexMed Youtube: @sdsexualmed Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 30 Jan 2025 10:00:00 -0000 Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130) full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein to explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. The Goldsteins share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. Takeaways: Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook. Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy. Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders. Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain. Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy. PS. The vestibule refers to the vulva (female external genitalia) between the labia minora (two inner skin folds that surround the vaginal opening). PSS. Neuroproliferative vestibulodynia is where there are too many nerve endings in the vestibule tissue.   Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find Bendy Bodies episode transcripts here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Irwin Goldstein & Sue Goldstein Facebook: @SDSexMed Youtube: @sdsexualmed Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope.



    Takeaways:

    Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook.

    Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy.

    Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders.

    Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain.

    Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy.


    PS. The vestibule refers to the vulva (female external genitalia) between the labia minora (two inner skin folds that surround the vaginal opening).


    PSS. Neuroproliferative vestibulodynia is where there are too many nerve endings in the vestibule tissue.

     


    Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Find Bendy Bodies episode transcripts here.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Dr. Irwin Goldstein & Sue Goldstein

    Facebook: @SDSexMed

    Youtube: @sdsexualmed


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5090     Mast Cells: A Hidden Trigger with Dr. Jill Carnahan (Ep 129) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health. Takeaways: Mast Cells as the Root Driver: Dr. Carnahan explains how mast cells play a central role in triggering symptoms in EDS, POTS, and MCAS, often driven by infections, toxins, or trauma. Functional Medicine Seeks the Root Cause: A functional medicine approach looks beyond symptoms to uncover underlying triggers like mold, Lyme disease, or environmental toxins. Limbic System Reset is Critical: Addressing the limbic system through the DNRS or The Gupta Program can calm overactive mast cells and reduce overall symptom severity. Diet Plays a Vital Role: A low-histamine diet can be transformative for people with MCAS, reducing inflammation and improving gut health. Small Steps Lead to Big Changes: Healing requires incremental improvements, like reducing toxic exposure, supporting adrenal function, and improving sleep and nutrition. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Find the transcript here: https://www.bendybodiespodcast.com/mast-cells-a-hidden-trigger/#transcript Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Jill Carnahan, MD IG: @drjillcarnahan/ FB: @flatironfunctionalmedicine YT: @JillCarnahanMD Book: https://amzn.to/4gVvtib Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 23 Jan 2025 10:00:00 -0000 Mast Cells: A Hidden Trigger with Dr. Jill Carnahan (Ep 129 full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health. Takeaways: Mast Cells as the Root Driver: Dr. Carnahan explains how mast cells play a central role in triggering symptoms in EDS, POTS, and MCAS, often driven by infections, toxins, or trauma. Functional Medicine Seeks the Root Cause: A functional medicine approach looks beyond symptoms to uncover underlying triggers like mold, Lyme disease, or environmental toxins. Limbic System Reset is Critical: Addressing the limbic system through the DNRS or The Gupta Program can calm overactive mast cells and reduce overall symptom severity. Diet Plays a Vital Role: A low-histamine diet can be transformative for people with MCAS, reducing inflammation and improving gut health. Small Steps Lead to Big Changes: Healing requires incremental improvements, like reducing toxic exposure, supporting adrenal function, and improving sleep and nutrition. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Find the transcript here: https://www.bendybodiespodcast.com/mast-cells-a-hidden-trigger/#transcript Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Jill Carnahan, MD IG: @drjillcarnahan/ FB: @flatironfunctionalmedicine YT: @JillCarnahanMD Book: https://amzn.to/4gVvtib Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health.


    Takeaways:


    Mast Cells as the Root Driver: Dr. Carnahan explains how mast cells play a central role in triggering symptoms in EDS, POTS, and MCAS, often driven by infections, toxins, or trauma.


    Functional Medicine Seeks the Root Cause: A functional medicine approach looks beyond symptoms to uncover underlying triggers like mold, Lyme disease, or environmental toxins.


    Limbic System Reset is Critical: Addressing the limbic system through the DNRS or The Gupta Program can calm overactive mast cells and reduce overall symptom severity.


    Diet Plays a Vital Role: A low-histamine diet can be transformative for people with MCAS, reducing inflammation and improving gut health.


    Small Steps Lead to Big Changes: Healing requires incremental improvements, like reducing toxic exposure, supporting adrenal function, and improving sleep and nutrition.




    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.




    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.



    Find the transcript here: https://www.bendybodiespodcast.com/mast-cells-a-hidden-trigger/#transcript



    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Learn about Dr. Jill Carnahan, MD


    IG: @drjillcarnahan/

    FB: @flatironfunctionalmedicine

    YT: @JillCarnahanMD

    Book: https://amzn.to/4gVvtib


    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3229     IV Fluids, Surgery, and Supplements | Office Hours (Ep 128) https://www.bendybodiespodcast.com/iv-fluids-surgery-and-supplements-office-hours-ep-128/#transcript In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 16 Jan 2025 10:00:00 -0000 IV Fluids, Surgery, and Supplements | Office Hours (Ep 128) full Dr. Linda Bluestein In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions.


    Takeaways:


    IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS.


    Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery.


    Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications.


    Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS.


    Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation.




    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.




    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.




    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2145     Pelvic Floor Secrets for Hypermobility with Dr. Emily Bohan (Ep 127) In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions. Emily explains why pelvic floor dysfunction can cause issues like low back pain, hip instability, urinary incontinence, and constipation. She shares her expertise on how to strengthen and relax the pelvic floor safely, emphasizing why Kegels aren't always the answer. Packed with practical tips, including "stop power peeing" and incremental exercise strategies, this episode provides actionable insights to help anyone dealing with pelvic or musculoskeletal pain. Takeaways: Pelvic Floor Dysfunction Affects More Than You Think: Issues like low back pain, hip pain, constipation, and urinary incontinence can often be traced to pelvic floor tension or weakness. Kegels Aren’t Always the Solution: Many people have overly tight pelvic floor muscles, making relaxation and proper breathing more effective than strengthening exercises like Kegels. Power Peeing is a No-No: Pushing or straining during urination can harm the pelvic floor over time, increasing the risk of prolapse and dysfunction. Incremental Progress Prevents Flares: For hypermobile individuals, small, controlled increases in movement and load are key to building strength without worsening pain. Pelvic Floor Therapy Is for Everyone: Pelvic floor physical therapy benefits people of all genders and ages, from postpartum women to male athletes experiencing pelvic pain. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Emily Bohan IG: @bohanpttraining TT: @bohanpttraining FB: Bohan PT Training Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 Jan 2025 10:00:00 -0000 Pelvic Floor Secrets for Hypermobility with Dr. Emily Bohan (Ep 127) full Dr. Linda Bluestein In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions. Emily explains why pelvic floor dysfunction can cause issues like low back pain, hip instability, urinary incontinence, and constipation. She shares her expertise on how to strengthen and relax the pelvic floor safely, emphasizing why Kegels aren't always the answer. Packed with practical tips, including "stop power peeing" and incremental exercise strategies, this episode provides actionable insights to help anyone dealing with pelvic or musculoskeletal pain. In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions. Emily explains why pelvic floor dysfunction can cause issues like low back pain, hip instability, urinary incontinence, and constipation. She shares her expertise on how to strengthen and relax the pelvic floor safely, emphasizing why Kegels aren't always the answer. Packed with practical tips, including "stop power peeing" and incremental exercise strategies, this episode provides actionable insights to help anyone dealing with pelvic or musculoskeletal pain. Takeaways: Pelvic Floor Dysfunction Affects More Than You Think: Issues like low back pain, hip pain, constipation, and urinary incontinence can often be traced to pelvic floor tension or weakness. Kegels Aren’t Always the Solution: Many people have overly tight pelvic floor muscles, making relaxation and proper breathing more effective than strengthening exercises like Kegels. Power Peeing is a No-No: Pushing or straining during urination can harm the pelvic floor over time, increasing the risk of prolapse and dysfunction. Incremental Progress Prevents Flares: For hypermobile individuals, small, controlled increases in movement and load are key to building strength without worsening pain. Pelvic Floor Therapy Is for Everyone: Pelvic floor physical therapy benefits people of all genders and ages, from postpartum women to male athletes experiencing pelvic pain. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Emily Bohan IG: @bohanpttraining TT: @bohanpttraining FB: Bohan PT Training Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions. Emily explains why pelvic floor dysfunction can cause issues like low back pain, hip instability, urinary incontinence, and constipation. She shares her expertise on how to strengthen and relax the pelvic floor safely, emphasizing why Kegels aren't always the answer. Packed with practical tips, including "stop power peeing" and incremental exercise strategies, this episode provides actionable insights to help anyone dealing with pelvic or musculoskeletal pain.


    Takeaways:

    Pelvic Floor Dysfunction Affects More Than You Think: Issues like low back pain, hip pain, constipation, and urinary incontinence can often be traced to pelvic floor tension or weakness.


    Kegels Aren’t Always the Solution: Many people have overly tight pelvic floor muscles, making relaxation and proper breathing more effective than strengthening exercises like Kegels.


    Power Peeing is a No-No: Pushing or straining during urination can harm the pelvic floor over time, increasing the risk of prolapse and dysfunction.


    Incremental Progress Prevents Flares: For hypermobile individuals, small, controlled increases in movement and load are key to building strength without worsening pain.


    Pelvic Floor Therapy Is for Everyone: Pelvic floor physical therapy benefits people of all genders and ages, from postpartum women to male athletes experiencing pelvic pain.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Emily Bohan

    IG: @bohanpttraining

    TT: @bohanpttraining

    FB: Bohan PT Training

    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4075     Navigating College with EDS: A Firsthand Experience with Lauren Vasko (EP 126) In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya. She reflects on her challenges with misdiagnoses, traumatic medical experiences, and the importance of self-advocacy. Lauren reveals the tools, treatments, and mindset shifts that helped her heal, including physical therapy, medications, supplements, and setting boundaries. Her message of hope reminds us that even the hardest journeys can lead to unexpected triumphs. NOTE: Due to some technical limitations, Lauren's video will showcase lines over her frame, but it should not impact her audio or any of her amazing comments! Takeaways: Believe Healing Is Possible: Lauren emphasizes the importance of overcoming a “victim mentality” and truly believing in your ability to improve, no matter how severe your condition feels. Small Wins Add Up: Success doesn’t come all at once. Lauren highlights how small changes—5% improvements—eventually added up to transformative progress in her life. Advocate for Yourself: Lauren’s journey shows the importance of questioning medical advice, finding the right providers, and being actively involved in your care. Physical Therapy and Traction Were Game-Changers: Specialized physical therapy, dry needling, and cervical traction played key roles in helping Lauren avoid invasive surgery for CCI (Cranial-Cervical Instability). Set Boundaries for Health and Identity: Lauren shares the importance of not letting your diagnosis define you, setting boundaries with support communities, and finding joy in new passions like art and teaching. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Lauren Vasko Instagram: @asformeandmyhealth Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 02 Jan 2025 10:00:00 -0000 Navigating College with EDS: A Firsthand Experience with Lauren Vasko (EP 126) full Dr. Linda Bluestein In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya. She reflects on her challenges with misdiagnoses, traumatic medical experiences, and the importance of self-advocacy. Lauren reveals the tools, treatments, and mindset shifts that helped her heal, including physical therapy, medications, supplements, and setting boundaries. Her message of hope reminds us that even the hardest journeys can lead to unexpected triumphs. In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya. She reflects on her challenges with misdiagnoses, traumatic medical experiences, and the importance of self-advocacy. Lauren reveals the tools, treatments, and mindset shifts that helped her heal, including physical therapy, medications, supplements, and setting boundaries. Her message of hope reminds us that even the hardest journeys can lead to unexpected triumphs. NOTE: Due to some technical limitations, Lauren's video will showcase lines over her frame, but it should not impact her audio or any of her amazing comments! Takeaways: Believe Healing Is Possible: Lauren emphasizes the importance of overcoming a “victim mentality” and truly believing in your ability to improve, no matter how severe your condition feels. Small Wins Add Up: Success doesn’t come all at once. Lauren highlights how small changes—5% improvements—eventually added up to transformative progress in her life. Advocate for Yourself: Lauren’s journey shows the importance of questioning medical advice, finding the right providers, and being actively involved in your care. Physical Therapy and Traction Were Game-Changers: Specialized physical therapy, dry needling, and cervical traction played key roles in helping Lauren avoid invasive surgery for CCI (Cranial-Cervical Instability). Set Boundaries for Health and Identity: Lauren shares the importance of not letting your diagnosis define you, setting boundaries with support communities, and finding joy in new passions like art and teaching. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Lauren Vasko Instagram: @asformeandmyhealth Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya. She reflects on her challenges with misdiagnoses, traumatic medical experiences, and the importance of self-advocacy. Lauren reveals the tools, treatments, and mindset shifts that helped her heal, including physical therapy, medications, supplements, and setting boundaries. Her message of hope reminds us that even the hardest journeys can lead to unexpected triumphs.


    NOTE: Due to some technical limitations, Lauren's video will showcase lines over her frame, but it should not impact her audio or any of her amazing comments!


    Takeaways:

    Believe Healing Is Possible: Lauren emphasizes the importance of overcoming a “victim mentality” and truly believing in your ability to improve, no matter how severe your condition feels.

    Small Wins Add Up: Success doesn’t come all at once. Lauren highlights how small changes—5% improvements—eventually added up to transformative progress in her life.

    Advocate for Yourself: Lauren’s journey shows the importance of questioning medical advice, finding the right providers, and being actively involved in your care.

    Physical Therapy and Traction Were Game-Changers: Specialized physical therapy, dry needling, and cervical traction played key roles in helping Lauren avoid invasive surgery for CCI (Cranial-Cervical Instability).

    Set Boundaries for Health and Identity: Lauren shares the importance of not letting your diagnosis define you, setting boundaries with support communities, and finding joy in new passions like art and teaching.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Lauren Vasko

    Instagram: @asformeandmyhealth


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4175     Strategies for POTS Relief with Dr. Satish Raj (Ep 125) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments. Learn why POTS is a "feeling faint" disorder rather than a fainting disorder, the role of compression garments and increased sodium intake, and how non-pharmacological treatments form the foundation of care. Packed with practical advice and expert insights, this episode is essential listening for anyone navigating POTS or related conditions. Takeaways: POTS is a "Feeling Faint" Disorder: Unlike fainting disorders, POTS is characterized by persistent symptoms of lightheadedness and discomfort without necessarily leading to fainting. Non-Pharmacological Treatments First: Increasing salt and water intake, wearing compression garments (focusing on the abdomen and pelvis), and engaging in tailored exercise programs form the foundation of POTS management. Dr. Raj emphasizes some key details, improving the odds of success.   Individualized Treatment Matters: Compression garments not only aid in blood flow but may also provide joint stabilization benefits for hypermobile patients. POTS is Multifactorial: The causes of POTS are diverse, ranging from post-viral onset to structural and blood volume issues, requiring a nuanced, patient-specific approach to treatment. Exercise Takes Time but Works: Low-resistance, reclined exercises like rowing and cycling can improve cardiac output and quality of life, but patients need to commit for at least six weeks to notice meaningful improvements. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Satish Raj Website: https://www.ehlers-danlos.com/satish-raj/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 Dec 2024 10:00:00 -0000 Strategies for POTS Relief with Dr. Satish Raj (Ep 125) full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments. Learn why POTS is a "feeling faint" disorder rather than a fainting disorder, the role of compression garments and increased sodium intake, and how non-pharmacological treatments form the foundation of care. Packed with practical advice and expert insights, this episode is essential listening for anyone navigating POTS or related conditions. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments. Learn why POTS is a "feeling faint" disorder rather than a fainting disorder, the role of compression garments and increased sodium intake, and how non-pharmacological treatments form the foundation of care. Packed with practical advice and expert insights, this episode is essential listening for anyone navigating POTS or related conditions. Takeaways: POTS is a "Feeling Faint" Disorder: Unlike fainting disorders, POTS is characterized by persistent symptoms of lightheadedness and discomfort without necessarily leading to fainting. Non-Pharmacological Treatments First: Increasing salt and water intake, wearing compression garments (focusing on the abdomen and pelvis), and engaging in tailored exercise programs form the foundation of POTS management. Dr. Raj emphasizes some key details, improving the odds of success.   Individualized Treatment Matters: Compression garments not only aid in blood flow but may also provide joint stabilization benefits for hypermobile patients. POTS is Multifactorial: The causes of POTS are diverse, ranging from post-viral onset to structural and blood volume issues, requiring a nuanced, patient-specific approach to treatment. Exercise Takes Time but Works: Low-resistance, reclined exercises like rowing and cycling can improve cardiac output and quality of life, but patients need to commit for at least six weeks to notice meaningful improvements. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Satish Raj Website: https://www.ehlers-danlos.com/satish-raj/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments. Learn why POTS is a "feeling faint" disorder rather than a fainting disorder, the role of compression garments and increased sodium intake, and how non-pharmacological treatments form the foundation of care. Packed with practical advice and expert insights, this episode is essential listening for anyone navigating POTS or related conditions.


    Takeaways:

    POTS is a "Feeling Faint" Disorder: Unlike fainting disorders, POTS is characterized by persistent symptoms of lightheadedness and discomfort without necessarily leading to fainting.

    Non-Pharmacological Treatments First: Increasing salt and water intake, wearing compression garments (focusing on the abdomen and pelvis), and engaging in tailored exercise programs form the foundation of POTS management. Dr. Raj emphasizes some key details, improving the odds of success.  

    Individualized Treatment Matters: Compression garments not only aid in blood flow but may also provide joint stabilization benefits for hypermobile patients.

    POTS is Multifactorial: The causes of POTS are diverse, ranging from post-viral onset to structural and blood volume issues, requiring a nuanced, patient-specific approach to treatment.

    Exercise Takes Time but Works: Low-resistance, reclined exercises like rowing and cycling can improve cardiac output and quality of life, but patients need to commit for at least six weeks to notice meaningful improvements.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Dr. Satish Raj

    Website: https://www.ehlers-danlos.com/satish-raj/


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4987     The Truth About Food Allergy Testing | Office Hours (Ep 124) In this informative solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, dives into pressing topics impacting the hypermobility community. Learn about the new anesthesia time limit policy from Anthem Blue Cross (that was then reversed), how to manage Mast Cell Activation Syndrome (MCAS), understand food allergy testing, and find the best coaching options for those with complex conditions.  Takeaways: New Anesthesia Policy Impacts EDS Patients: Anthem Blue Cross introduced time limits on anesthesia coverage, potentially shifting extra costs to patients if surgeries exceed these limits, making communication with providers essential. (This decision was then reversed after widespread public outcry demonstrating the importance of using our voices) MCAS Management is Personalized: Keeping a detailed symptom journal and identifying unique triggers are critical for managing mast cell activation syndrome effectively. Food Allergy Testing Limitations: Standard allergy tests may not reliably identify food triggers for those with MCAS, emphasizing the importance of symptom tracking and tailored elimination diets. Coaching vs. Medical Appointments: Coaching offers faster access and flexibility for guidance, but differs from medical services as it doesn’t include prescriptions or lab orders. Hypermobility Hacks for Surgery Prep: Stay informed about your insurance policies, maintain open communication with your healthcare team, and advocate for alternative payment or scheduling options if needed. Modifying Supplements for Surgery: Nutritional supplements that increase bleeding risk and/or interfere with medications used for anesthesia are discussed.  Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Dec 2024 10:00:00 -0000 The Truth About Food Allergy Testing | Office Hours (Ep 124) full Dr. Linda Bluestein In this informative solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, dives into pressing topics impacting the hypermobility community. Learn about the new anesthesia time limit policy from Anthem Blue Cross (that was then reversed), how to manage Mast Cell Activation Syndrome (MCAS), understand food allergy testing, and find the best coaching options for those with complex conditions. In this informative solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, dives into pressing topics impacting the hypermobility community. Learn about the new anesthesia time limit policy from Anthem Blue Cross (that was then reversed), how to manage Mast Cell Activation Syndrome (MCAS), understand food allergy testing, and find the best coaching options for those with complex conditions.  Takeaways: New Anesthesia Policy Impacts EDS Patients: Anthem Blue Cross introduced time limits on anesthesia coverage, potentially shifting extra costs to patients if surgeries exceed these limits, making communication with providers essential. (This decision was then reversed after widespread public outcry demonstrating the importance of using our voices) MCAS Management is Personalized: Keeping a detailed symptom journal and identifying unique triggers are critical for managing mast cell activation syndrome effectively. Food Allergy Testing Limitations: Standard allergy tests may not reliably identify food triggers for those with MCAS, emphasizing the importance of symptom tracking and tailored elimination diets. Coaching vs. Medical Appointments: Coaching offers faster access and flexibility for guidance, but differs from medical services as it doesn’t include prescriptions or lab orders. Hypermobility Hacks for Surgery Prep: Stay informed about your insurance policies, maintain open communication with your healthcare team, and advocate for alternative payment or scheduling options if needed. Modifying Supplements for Surgery: Nutritional supplements that increase bleeding risk and/or interfere with medications used for anesthesia are discussed.  Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this informative solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, dives into pressing topics impacting the hypermobility community. Learn about the new anesthesia time limit policy from Anthem Blue Cross (that was then reversed), how to manage Mast Cell Activation Syndrome (MCAS), understand food allergy testing, and find the best coaching options for those with complex conditions. 


    Takeaways:

    New Anesthesia Policy Impacts EDS Patients: Anthem Blue Cross introduced time limits on anesthesia coverage, potentially shifting extra costs to patients if surgeries exceed these limits, making communication with providers essential. (This decision was then reversed after widespread public outcry demonstrating the importance of using our voices)

    MCAS Management is Personalized: Keeping a detailed symptom journal and identifying unique triggers are critical for managing mast cell activation syndrome effectively.

    Food Allergy Testing Limitations: Standard allergy tests may not reliably identify food triggers for those with MCAS, emphasizing the importance of symptom tracking and tailored elimination diets.

    Coaching vs. Medical Appointments: Coaching offers faster access and flexibility for guidance, but differs from medical services as it doesn’t include prescriptions or lab orders.

    Hypermobility Hacks for Surgery Prep: Stay informed about your insurance policies, maintain open communication with your healthcare team, and advocate for alternative payment or scheduling options if needed.

    Modifying Supplements for Surgery: Nutritional supplements that increase bleeding risk and/or interfere with medications used for anesthesia are discussed. 


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3273     How EDS Affects the Ears, Nose, and Throat with Dr. Das (Ep 123) In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related issues. Takeaways: EDS Increases ENT Vulnerability: People with EDS are prone to ENT issues like tonsil stones, chronic sore throats, sinus infections, and vocal cord dysfunction due to their connective tissue laxity. Avoid Unnecessary ENT Surgeries: Surgery should be a last resort for EDS patients due to poor healing and higher complication risks. Alternatives like intracapsular tonsillectomy can minimize trauma when surgery is necessary. Antibiotic Treatment Requires Adjustment: EDS patients often need longer and earlier courses of antibiotics for sinus infections and other ENT issues to ensure full recovery. Hot Showers Are Healing: Heat and steam are beneficial for managing sinus issues, ear pain, and overall EDS symptoms, making hot showers a simple yet effective tool. Hot showers can be challenging for those with POTS and or MCAS, but for those who can tolerate them, they can be very helpful.    Steroids Can Do More Harm Than Good: Intranasal steroids like Flonase should be avoided in EDS patients, as they weaken already fragile connective tissues, potentially exacerbating problems. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Das Website: https://www.usasinus.org/meet-dr-das Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Dec 2024 10:00:00 -0000 How EDS Affects the Ears, Nose, and Throat with Dr. Das full Dr. Linda Bluestein In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related issues. In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related issues. Takeaways: EDS Increases ENT Vulnerability: People with EDS are prone to ENT issues like tonsil stones, chronic sore throats, sinus infections, and vocal cord dysfunction due to their connective tissue laxity. Avoid Unnecessary ENT Surgeries: Surgery should be a last resort for EDS patients due to poor healing and higher complication risks. Alternatives like intracapsular tonsillectomy can minimize trauma when surgery is necessary. Antibiotic Treatment Requires Adjustment: EDS patients often need longer and earlier courses of antibiotics for sinus infections and other ENT issues to ensure full recovery. Hot Showers Are Healing: Heat and steam are beneficial for managing sinus issues, ear pain, and overall EDS symptoms, making hot showers a simple yet effective tool. Hot showers can be challenging for those with POTS and or MCAS, but for those who can tolerate them, they can be very helpful.    Steroids Can Do More Harm Than Good: Intranasal steroids like Flonase should be avoided in EDS patients, as they weaken already fragile connective tissues, potentially exacerbating problems. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Das Website: https://www.usasinus.org/meet-dr-das Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related issues.


    Takeaways:

    EDS Increases ENT Vulnerability: People with EDS are prone to ENT issues like tonsil stones, chronic sore throats, sinus infections, and vocal cord dysfunction due to their connective tissue laxity.

    Avoid Unnecessary ENT Surgeries: Surgery should be a last resort for EDS patients due to poor healing and higher complication risks. Alternatives like intracapsular tonsillectomy can minimize trauma when surgery is necessary.

    Antibiotic Treatment Requires Adjustment: EDS patients often need longer and earlier courses of antibiotics for sinus infections and other ENT issues to ensure full recovery.

    Hot Showers Are Healing: Heat and steam are beneficial for managing sinus issues, ear pain, and overall EDS symptoms, making hot showers a simple yet effective tool. Hot showers can be challenging for those with POTS and or MCAS, but for those who can tolerate them, they can be very helpful.   

    Steroids Can Do More Harm Than Good: Intranasal steroids like Flonase should be avoided in EDS patients, as they weaken already fragile connective tissues, potentially exacerbating problems.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Dr. Das

    Website: https://www.usasinus.org/meet-dr-das


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4629     The Next Generation of EDS Experts with Jeevan Mann and Delaney Kenney (Ep 122) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with two brilliant young researchers, Jeevan Mann and Delaney Kenney, about their groundbreaking work in Ehlers-Danlos Syndromes (EDS). Jeevan shares insights into using 3D skin models for understanding hypermobile EDS, while Delaney discusses her biorepository project and the hope for future treatments. They also share personal experiences navigating life with chronic illness, the importance of advocating for accommodations, and the role of community in supporting those with EDS. This inspiring conversation highlights the innovative research that could transform EDS care and diagnosis. Takeaways: 3D Skin Models Transform Research: Jeevan explains how 3D skin equivalents provide a scalable and cost-effective way to study hypermobile EDS, enabling more replicates and faster results compared to mouse models. Hope for a Future Without EDS: Delaney highlights how working at the Gates Institute introduced her to the possibility of treatments that could manage or eliminate EDS symptoms in the future. Importance of Awareness: Both guests emphasize the need for broader education and awareness of EDS among medical professionals to reduce diagnosis delays and improve care. Advocacy Makes a Difference: Advocating for oneself and seeking accommodations, even when it’s difficult, can significantly improve the quality of life for those with chronic illnesses. Community Provides Strength: Connecting with others who share similar experiences, as well as learning from diverse approaches within the EDS community, fosters resilience and innovation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Jeevan Mann and Delaney Kenney Instagram: @jeevanmann03 & @delaney_kenney Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Dec 2024 10:00:00 -0000 The Next Generation of EDS Experts with Jeevan Mann and Delaney Kenney full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with two brilliant young researchers, Jeevan Mann and Delaney Kenney, about their groundbreaking work in Ehlers-Danlos syndrome (EDS). Jeevan shares insights into using 3D skin models for understanding hypermobile EDS, while Delaney discusses her biorepository project and the hope for future treatments. They also share personal experiences navigating life with chronic illness, the importance of advocating for accommodations, and the role of community in supporting those with EDS. This inspiring conversation highlights the innovative research that could transform EDS care and diagnosis. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with two brilliant young researchers, Jeevan Mann and Delaney Kenney, about their groundbreaking work in Ehlers-Danlos Syndromes (EDS). Jeevan shares insights into using 3D skin models for understanding hypermobile EDS, while Delaney discusses her biorepository project and the hope for future treatments. They also share personal experiences navigating life with chronic illness, the importance of advocating for accommodations, and the role of community in supporting those with EDS. This inspiring conversation highlights the innovative research that could transform EDS care and diagnosis. Takeaways: 3D Skin Models Transform Research: Jeevan explains how 3D skin equivalents provide a scalable and cost-effective way to study hypermobile EDS, enabling more replicates and faster results compared to mouse models. Hope for a Future Without EDS: Delaney highlights how working at the Gates Institute introduced her to the possibility of treatments that could manage or eliminate EDS symptoms in the future. Importance of Awareness: Both guests emphasize the need for broader education and awareness of EDS among medical professionals to reduce diagnosis delays and improve care. Advocacy Makes a Difference: Advocating for oneself and seeking accommodations, even when it’s difficult, can significantly improve the quality of life for those with chronic illnesses. Community Provides Strength: Connecting with others who share similar experiences, as well as learning from diverse approaches within the EDS community, fosters resilience and innovation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Jeevan Mann and Delaney Kenney Instagram: @jeevanmann03 & @delaney_kenney Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with two brilliant young researchers, Jeevan Mann and Delaney Kenney, about their groundbreaking work in Ehlers-Danlos Syndromes (EDS). Jeevan shares insights into using 3D skin models for understanding hypermobile EDS, while Delaney discusses her biorepository project and the hope for future treatments. They also share personal experiences navigating life with chronic illness, the importance of advocating for accommodations, and the role of community in supporting those with EDS. This inspiring conversation highlights the innovative research that could transform EDS care and diagnosis.


    Takeaways:

    3D Skin Models Transform Research: Jeevan explains how 3D skin equivalents provide a scalable and cost-effective way to study hypermobile EDS, enabling more replicates and faster results compared to mouse models.

    Hope for a Future Without EDS: Delaney highlights how working at the Gates Institute introduced her to the possibility of treatments that could manage or eliminate EDS symptoms in the future.

    Importance of Awareness: Both guests emphasize the need for broader education and awareness of EDS among medical professionals to reduce diagnosis delays and improve care.

    Advocacy Makes a Difference: Advocating for oneself and seeking accommodations, even when it’s difficult, can significantly improve the quality of life for those with chronic illnesses.

    Community Provides Strength: Connecting with others who share similar experiences, as well as learning from diverse approaches within the EDS community, fosters resilience and innovation.


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Jeevan Mann and Delaney Kenney

    Instagram: @jeevanmann03 & @delaney_kenney


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4203     MCAS Perspectives - Personal and Professional | Office Hours (Ep 121) In this candid solo episode of the Bendy Bodies podcast, I share my insights into Mast Cell Activation Syndrome (MCAS) and its intricate connection to hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Reflecting on my personal and professional perspective and cases from my practice, I discuss how MCAS may play a pivotal role in chronic pain and offer practical strategies for identifying and managing symptoms. From my first introduction to MCAS to groundbreaking results in patient care, this episode dives deep into the science and solutions for improving quality of life with these interconnected conditions. Stick around for special hypermobility hacks and helpful resources! Takeaways: MCAS as a Root Cause: Mast cell activation syndrome (MCAS) may be the underlying driver behind many symptoms experienced by individuals with hypermobile EDS (hEDS) and POTS, emphasizing the need for targeted treatment. A Spectrum of Symptoms: MCAS presents a wide variety of symptoms, from pain and fatigue to GI and neurological issues, making it essential to approach diagnosis and management comprehensively. Therapies Can Be Life-Changing: Tailored treatments for MCAS, such as antihistamines and mast cell stabilizers, can yield dramatic improvements in quality of life when appropriately managed. Patient Advocacy is Crucial: Self-advocacy and education are vital for navigating complex conditions like MCAS, hEDS, and POTS, especially when facing medical gaslighting or misdiagnosis. Sharing Information is Empowering: Podcasts, newsletters, and community platforms are invaluable for disseminating complex medical topics like MCAS, helping patients and providers alike understand these intricate conditions. Show Correction: I said “Mast cells respond to external stimuli but they actually respond to internal and external stimuli (hormones etc)   Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 28 Nov 2024 10:00:00 -0000 MCAS Perspectives - Personal and Professional | Office Hours full Dr. Linda Bluestein In this candid solo episode of the Bendy Bodies podcast, I share my insights into Mast Cell Activation Syndrome (MCAS) and its intricate connection to hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Reflecting on my personal experiences and cases from my practice, I discuss how MCAS may play a pivotal role in chronic pain and offer practical strategies for identifying and managing symptoms. From my first introduction to MCAS to groundbreaking results in patient care, this episode dives deep into the science and solutions for improving quality of life with these interconnected conditions. Stick around for special hypermobility hacks and helpful resources! In this candid solo episode of the Bendy Bodies podcast, I share my insights into Mast Cell Activation Syndrome (MCAS) and its intricate connection to hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Reflecting on my personal and professional perspective and cases from my practice, I discuss how MCAS may play a pivotal role in chronic pain and offer practical strategies for identifying and managing symptoms. From my first introduction to MCAS to groundbreaking results in patient care, this episode dives deep into the science and solutions for improving quality of life with these interconnected conditions. Stick around for special hypermobility hacks and helpful resources! Takeaways: MCAS as a Root Cause: Mast cell activation syndrome (MCAS) may be the underlying driver behind many symptoms experienced by individuals with hypermobile EDS (hEDS) and POTS, emphasizing the need for targeted treatment. A Spectrum of Symptoms: MCAS presents a wide variety of symptoms, from pain and fatigue to GI and neurological issues, making it essential to approach diagnosis and management comprehensively. Therapies Can Be Life-Changing: Tailored treatments for MCAS, such as antihistamines and mast cell stabilizers, can yield dramatic improvements in quality of life when appropriately managed. Patient Advocacy is Crucial: Self-advocacy and education are vital for navigating complex conditions like MCAS, hEDS, and POTS, especially when facing medical gaslighting or misdiagnosis. Sharing Information is Empowering: Podcasts, newsletters, and community platforms are invaluable for disseminating complex medical topics like MCAS, helping patients and providers alike understand these intricate conditions. Show Correction: I said “Mast cells respond to external stimuli but they actually respond to internal and external stimuli (hormones etc)   Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this candid solo episode of the Bendy Bodies podcast, I share my insights into Mast Cell Activation Syndrome (MCAS) and its intricate connection to hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Reflecting on my personal and professional perspective and cases from my practice, I discuss how MCAS may play a pivotal role in chronic pain and offer practical strategies for identifying and managing symptoms. From my first introduction to MCAS to groundbreaking results in patient care, this episode dives deep into the science and solutions for improving quality of life with these interconnected conditions. Stick around for special hypermobility hacks and helpful resources!

    Takeaways:

    MCAS as a Root Cause: Mast cell activation syndrome (MCAS) may be the underlying driver behind many symptoms experienced by individuals with hypermobile EDS (hEDS) and POTS, emphasizing the need for targeted treatment.

    A Spectrum of Symptoms: MCAS presents a wide variety of symptoms, from pain and fatigue to GI and neurological issues, making it essential to approach diagnosis and management comprehensively.

    Therapies Can Be Life-Changing: Tailored treatments for MCAS, such as antihistamines and mast cell stabilizers, can yield dramatic improvements in quality of life when appropriately managed.

    Patient Advocacy is Crucial: Self-advocacy and education are vital for navigating complex conditions like MCAS, hEDS, and POTS, especially when facing medical gaslighting or misdiagnosis.

    Sharing Information is Empowering: Podcasts, newsletters, and community platforms are invaluable for disseminating complex medical topics like MCAS, helping patients and providers alike understand these intricate conditions.


    Show Correction: I said “Mast cells respond to external stimuli but they actually respond to internal and external stimuli (hormones etc)  


    Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2870     Finding the Right PT for You with Wendy Wagner (Ep 120) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you’re looking to build strength or simply move without pain, Wendy’s expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies. Takeaways: Physical Therapy Requires Customization: Traditional PT often doesn’t suit hypermobile patients, who benefit more from individualized programs that focus on stability and gradual strength-building. Start Low, Go Slow: Many patients with EDS need to begin with very small movements to avoid overloading their joints and worsening pain or instability. Building Confidence is Essential: Overcoming kinesiophobia (fear of movement) is key for hypermobile patients, often requiring exercises that first build trust in their bodies. Mindfulness and Body Awareness Matter: Breathing exercises, body awareness, and even posture adjustments can help patients avoid compensatory movements and pain. Collaboration is Key in PT: Finding a PT willing to learn and work collaboratively is crucial for hypermobile patients to safely navigate physical therapy. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Wendy Wagner Facebook: https://www.facebook.com/wendy4therapy Website: https://www.wendy4therapy.com/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 21 Nov 2024 10:00:00 -0000 Finding the Right PT for You with Wendy Wagner full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you’re looking to build strength or simply move without pain, Wendy’s expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you’re looking to build strength or simply move without pain, Wendy’s expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies. Takeaways: Physical Therapy Requires Customization: Traditional PT often doesn’t suit hypermobile patients, who benefit more from individualized programs that focus on stability and gradual strength-building. Start Low, Go Slow: Many patients with EDS need to begin with very small movements to avoid overloading their joints and worsening pain or instability. Building Confidence is Essential: Overcoming kinesiophobia (fear of movement) is key for hypermobile patients, often requiring exercises that first build trust in their bodies. Mindfulness and Body Awareness Matter: Breathing exercises, body awareness, and even posture adjustments can help patients avoid compensatory movements and pain. Collaboration is Key in PT: Finding a PT willing to learn and work collaboratively is crucial for hypermobile patients to safely navigate physical therapy. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Wendy Wagner Facebook: https://www.facebook.com/wendy4therapy Website: https://www.wendy4therapy.com/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you’re looking to build strength or simply move without pain, Wendy’s expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies.

    Takeaways:

    Physical Therapy Requires Customization: Traditional PT often doesn’t suit hypermobile patients, who benefit more from individualized programs that focus on stability and gradual strength-building.

    Start Low, Go Slow: Many patients with EDS need to begin with very small movements to avoid overloading their joints and worsening pain or instability.

    Building Confidence is Essential: Overcoming kinesiophobia (fear of movement) is key for hypermobile patients, often requiring exercises that first build trust in their bodies.

    Mindfulness and Body Awareness Matter: Breathing exercises, body awareness, and even posture adjustments can help patients avoid compensatory movements and pain.

    Collaboration is Key in PT: Finding a PT willing to learn and work collaboratively is crucial for hypermobile patients to safely navigate physical therapy.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Wendy Wagner

    Facebook: https://www.facebook.com/wendy4therapy

    Website: https://www.wendy4therapy.com/


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4876     Food, Fiber, and Flexibility with Lorna Ryan (Ep 119) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society. Lorna shares essential advice on how to nourish the body for better pain management, improved gut health, and more energy. From the importance of fiber to balancing nutrients and understanding food sensitivities, this conversation is packed with practical tips. Lorna also shares her favorite recipes and explains how the right foods can help reduce EDS (Ehlers-Danlos Syndrome) symptoms and support gut health. Whether you’re looking to ease GI symptoms, balance energy levels, or discover new dietary approaches for EDS, this episode offers valuable insights and hacks. Takeaways: Flexible Diets Work Best: There is no one-size-fits-all diet for EDS; flexible eating plans based on individual needs are more effective than rigid restrictions. Fiber is Crucial for Gut Health: Fiber is essential for a healthy gut, and those with EDS often need to reintroduce it gradually to avoid GI symptoms. Adaptability is Key in Nutrition: Lorna emphasizes adapting diets based on changing symptoms, seasons, and life circumstances, helping to better manage health outcomes. Food as Nourishment, Not Restriction: Instead of focusing on restrictions, Lorna advises seeing food as a source of nourishment that supports healing and strength. Track, Don’t Restrict: Keeping a food and symptom diary helps identify triggers without unnecessary restrictions, especially for those managing mast cell activation syndrome and dysautonomia. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Lorna Ryan Instagram: https://www.instagram.com/lornaryanhealth Diet and Nutrition Summit Information   Recordings Package ($30) – The Recordings Package ticket will become available after sale of the Virtual Ticket ends, those who purchase will receive access to the on-demand content from November 3. It does not include access to the live event or our event app Whova, and will be available for 8 weeks after the event airs. Choose Your Price Access – After sale of the Recordings Package ticket ends, those who would like to access the on-demand content can purchase it on a “Choose Your Price” basis, where they are able to opt-out and access without a cost if they wish. Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 14 Nov 2024 10:00:00 -0000 Food, Fiber, and Flexibility with Lorna Ryan full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society. Lorna shares essential advice on how to nourish the body for better pain management, improved gut health, and more energy. From the importance of fiber to balancing nutrients and understanding food sensitivities, this conversation is packed with practical tips. Lorna also shares her favorite recipes and explains how the right foods can help reduce EDS (Ehlers-Danlos Syndrome) symptoms and support gut health. Whether you’re looking to ease GI symptoms, balance energy levels, or discover new dietary approaches for EDS, this episode offers valuable insights and hacks. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society. Lorna shares essential advice on how to nourish the body for better pain management, improved gut health, and more energy. From the importance of fiber to balancing nutrients and understanding food sensitivities, this conversation is packed with practical tips. Lorna also shares her favorite recipes and explains how the right foods can help reduce EDS (Ehlers-Danlos Syndrome) symptoms and support gut health. Whether you’re looking to ease GI symptoms, balance energy levels, or discover new dietary approaches for EDS, this episode offers valuable insights and hacks. Takeaways: Flexible Diets Work Best: There is no one-size-fits-all diet for EDS; flexible eating plans based on individual needs are more effective than rigid restrictions. Fiber is Crucial for Gut Health: Fiber is essential for a healthy gut, and those with EDS often need to reintroduce it gradually to avoid GI symptoms. Adaptability is Key in Nutrition: Lorna emphasizes adapting diets based on changing symptoms, seasons, and life circumstances, helping to better manage health outcomes. Food as Nourishment, Not Restriction: Instead of focusing on restrictions, Lorna advises seeing food as a source of nourishment that supports healing and strength. Track, Don’t Restrict: Keeping a food and symptom diary helps identify triggers without unnecessary restrictions, especially for those managing mast cell activation syndrome and dysautonomia. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Lorna Ryan Instagram: https://www.instagram.com/lornaryanhealth Diet and Nutrition Summit Information   Recordings Package ($30) – The Recordings Package ticket will become available after sale of the Virtual Ticket ends, those who purchase will receive access to the on-demand content from November 3. It does not include access to the live event or our event app Whova, and will be available for 8 weeks after the event airs. Choose Your Price Access – After sale of the Recordings Package ticket ends, those who would like to access the on-demand content can purchase it on a “Choose Your Price” basis, where they are able to opt-out and access without a cost if they wish. Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society. Lorna shares essential advice on how to nourish the body for better pain management, improved gut health, and more energy. From the importance of fiber to balancing nutrients and understanding food sensitivities, this conversation is packed with practical tips. Lorna also shares her favorite recipes and explains how the right foods can help reduce EDS (Ehlers-Danlos Syndrome) symptoms and support gut health. Whether you’re looking to ease GI symptoms, balance energy levels, or discover new dietary approaches for EDS, this episode offers valuable insights and hacks.

    Takeaways:

    Flexible Diets Work Best: There is no one-size-fits-all diet for EDS; flexible eating plans based on individual needs are more effective than rigid restrictions.

    Fiber is Crucial for Gut Health: Fiber is essential for a healthy gut, and those with EDS often need to reintroduce it gradually to avoid GI symptoms.

    Adaptability is Key in Nutrition: Lorna emphasizes adapting diets based on changing symptoms, seasons, and life circumstances, helping to better manage health outcomes.

    Food as Nourishment, Not Restriction: Instead of focusing on restrictions, Lorna advises seeing food as a source of nourishment that supports healing and strength.

    Track, Don’t Restrict: Keeping a food and symptom diary helps identify triggers without unnecessary restrictions, especially for those managing mast cell activation syndrome and dysautonomia.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Lorna Ryan

    Instagram: https://www.instagram.com/lornaryanhealth


    Diet and Nutrition Summit Information

     

    Recordings Package ($30) – The Recordings Package ticket will become available after sale of the Virtual Ticket ends, those who purchase will receive access to the on-demand content from November 3. It does not include access to the live event or our event app Whova, and will be available for 8 weeks after the event airs.

    Choose Your Price Access – After sale of the Recordings Package ticket ends, those who would like to access the on-demand content can purchase it on a “Choose Your Price” basis, where they are able to opt-out and access without a cost if they wish.


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4388     Biomarkers - Are we Close? with Dr. Clair Francomano (Ep 118) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this complex landscape. With updates from ongoing research, this episode is essential listening for those with EDS or related conditions. Takeaways: Differences Between hEDS and HSD: Dr. Francomano explains the nuanced distinctions between hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), noting that these categories may overlap more than previously thought and might benefit from unified diagnostic criteria in the future. Genetic Testing Red Flags: While genetic testing can be useful, Dr. Francomano highlights specific “red flags” in family history or personal health that should prompt a referral to a geneticist for further investigation. Current Limitations of Genetic Testing for hEDS: Unlike other types of EDS, hEDS currently has no identified genetic markers, meaning diagnosis relies on clinical criteria rather than genetic testing alone. Emerging Biomarkers Show Promise: New studies, such as those exploring fibronectin and calocrine, suggest potential biomarkers for hEDS and HSD, which could transform diagnosis and treatment in the future. Holistic Approach to Comorbidities: Dr. Francomano discusses how hEDS often presents with comorbidities like POTS and mast cell activation syndrome, recommending a comprehensive, multidisciplinary approach to manage these interconnected symptoms effectively. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Clair Francomano Her Book: https://amzn.to/4e3eSaF Instagram: @dr.clairfrancomano Youtube: @DoctorClair Red Flags List: https://www.bendybodiespodcast.com/p/redflags/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 07 Nov 2024 10:00:00 -0000 Biomarkers - Are we Close? with Dr. Clair Francomano full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this complex landscape. With updates from ongoing research, this episode is essential listening for those with EDS or related conditions. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this complex landscape. With updates from ongoing research, this episode is essential listening for those with EDS or related conditions. Takeaways: Differences Between hEDS and HSD: Dr. Francomano explains the nuanced distinctions between hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), noting that these categories may overlap more than previously thought and might benefit from unified diagnostic criteria in the future. Genetic Testing Red Flags: While genetic testing can be useful, Dr. Francomano highlights specific “red flags” in family history or personal health that should prompt a referral to a geneticist for further investigation. Current Limitations of Genetic Testing for hEDS: Unlike other types of EDS, hEDS currently has no identified genetic markers, meaning diagnosis relies on clinical criteria rather than genetic testing alone. Emerging Biomarkers Show Promise: New studies, such as those exploring fibronectin and calocrine, suggest potential biomarkers for hEDS and HSD, which could transform diagnosis and treatment in the future. Holistic Approach to Comorbidities: Dr. Francomano discusses how hEDS often presents with comorbidities like POTS and mast cell activation syndrome, recommending a comprehensive, multidisciplinary approach to manage these interconnected symptoms effectively. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Clair Francomano Her Book: https://amzn.to/4e3eSaF Instagram: @dr.clairfrancomano Youtube: @DoctorClair Red Flags List: https://www.bendybodiespodcast.com/p/redflags/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this complex landscape. With updates from ongoing research, this episode is essential listening for those with EDS or related conditions.

    Takeaways:

    Differences Between hEDS and HSD: Dr. Francomano explains the nuanced distinctions between hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), noting that these categories may overlap more than previously thought and might benefit from unified diagnostic criteria in the future.

    Genetic Testing Red Flags: While genetic testing can be useful, Dr. Francomano highlights specific “red flags” in family history or personal health that should prompt a referral to a geneticist for further investigation.

    Current Limitations of Genetic Testing for hEDS: Unlike other types of EDS, hEDS currently has no identified genetic markers, meaning diagnosis relies on clinical criteria rather than genetic testing alone.

    Emerging Biomarkers Show Promise: New studies, such as those exploring fibronectin and calocrine, suggest potential biomarkers for hEDS and HSD, which could transform diagnosis and treatment in the future.

    Holistic Approach to Comorbidities: Dr. Francomano discusses how hEDS often presents with comorbidities like POTS and mast cell activation syndrome, recommending a comprehensive, multidisciplinary approach to manage these interconnected symptoms effectively.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Dr. Clair Francomano


    Her Book: https://amzn.to/4e3eSaF

    Instagram: @dr.clairfrancomano

    Youtube: @DoctorClair


    Red Flags List: https://www.bendybodiespodcast.com/p/redflags/


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4433     My Life With EDS | Office Hours (Ep 117) In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or a long-time EDS warrior, you’ll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 31 Oct 2024 09:00:00 -0000 My Life With EDS | Office Hours full Dr. Linda Bluestein In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or a long-time EDS warrior, you’ll find plenty of insights and hacks to apply to your own journey. In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or a long-time EDS warrior, you’ll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or a long-time EDS warrior, you’ll find plenty of insights and hacks to apply to your own journey.


    Takeaways:


    Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate.


    Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system.


    Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions.


    Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction.


    Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication.



    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.




    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.




    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3332     Tarlov Cysts Truths with my Surgeon, Dr. Frank Feigenbaum (Ep 116) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life. Takeaways: Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves. Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions. Surgery Is a Lasting Solution: Dr. Feigenbaum’s unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites. Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually. The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Frank Feigenbaum: Website: https://www.frankfeigenbaum.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 24 Oct 2024 09:00:00 -0000 Tarlov Cysts Truths with my Surgeon, Dr. Frank Feigenbaum full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life. Takeaways: Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves. Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions. Surgery Is a Lasting Solution: Dr. Feigenbaum’s unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites. Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually. The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Frank Feigenbaum: Website: https://www.frankfeigenbaum.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life.

    Takeaways:

    Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves.

    Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions.

    Surgery Is a Lasting Solution: Dr. Feigenbaum’s unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites.

    Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually.

    The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority!


    Learn about Dr. Frank Feigenbaum:


    Website: https://www.frankfeigenbaum.com


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4887     The Untold Secrets to Dance Strength with Adji Cissoko (Ep 115) In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world. Takeaways: Strength is Essential: While flexibility came naturally to Adji, she quickly learned that building strength is crucial for controlling movement, especially in ballet. Strength allows dancers to safely showcase their flexibility without risking injury. Listening to Your Body: Adji emphasized the importance of tuning into your body to understand when to push through fatigue and when to rest, striking the right balance to avoid injury while still progressing. Sleep and Recovery Matter: Adji prioritizes sleep, often getting 9 to 10 hours per night, to allow her body to recover and stay resilient, particularly in demanding environments like high-altitude performances. Cross-Training for Dance Longevity: To maintain balance and strength, Adji incorporates Pilates, gyrotonics, and strength training into her routine, allowing her to stay in peak condition and mitigating injury risks. Flexibility Doesn’t Equal Strength: Adji learned early on that flexibility alone isn’t enough for successful dancing—building core and muscle strength is key to controlling movements and maintaining beautiful lines. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Adji Cissoko: Instagram: @adji_cissoko Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Oct 2024 09:00:00 -0000 The Untold Secrets to Dance Strength with Adji Cissoko full Dr. Linda Bluestein In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world. In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world. Takeaways: Strength is Essential: While flexibility came naturally to Adji, she quickly learned that building strength is crucial for controlling movement, especially in ballet. Strength allows dancers to safely showcase their flexibility without risking injury. Listening to Your Body: Adji emphasized the importance of tuning into your body to understand when to push through fatigue and when to rest, striking the right balance to avoid injury while still progressing. Sleep and Recovery Matter: Adji prioritizes sleep, often getting 9 to 10 hours per night, to allow her body to recover and stay resilient, particularly in demanding environments like high-altitude performances. Cross-Training for Dance Longevity: To maintain balance and strength, Adji incorporates Pilates, gyrotonics, and strength training into her routine, allowing her to stay in peak condition and mitigating injury risks. Flexibility Doesn’t Equal Strength: Adji learned early on that flexibility alone isn’t enough for successful dancing—building core and muscle strength is key to controlling movements and maintaining beautiful lines. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Adji Cissoko: Instagram: @adji_cissoko Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world.


    Takeaways:


    Strength is Essential: While flexibility came naturally to Adji, she quickly learned that building strength is crucial for controlling movement, especially in ballet. Strength allows dancers to safely showcase their flexibility without risking injury.


    Listening to Your Body: Adji emphasized the importance of tuning into your body to understand when to push through fatigue and when to rest, striking the right balance to avoid injury while still progressing.


    Sleep and Recovery Matter: Adji prioritizes sleep, often getting 9 to 10 hours per night, to allow her body to recover and stay resilient, particularly in demanding environments like high-altitude performances.


    Cross-Training for Dance Longevity: To maintain balance and strength, Adji incorporates Pilates, gyrotonics, and strength training into her routine, allowing her to stay in peak condition and mitigating injury risks.


    Flexibility Doesn’t Equal Strength: Adji learned early on that flexibility alone isn’t enough for successful dancing—building core and muscle strength is key to controlling movements and maintaining beautiful lines.




    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.




    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.




    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.




    Learn more about Human Content at http://www.human-content.com




    Podcast Advertising/Business Inquiries: sales@human-content.com




    YOUR bendy body is our highest priority!




    Learn about Adji Cissoko:


    Instagram: @adji_cissoko




    Keep up to date with the HypermobilityMD:




    YouTube: youtube.com/@bendybodiespodcast




    Twitter: twitter.com/BluesteinLinda




    LinkedIn: linkedin.com/in/hypermobilitymd




    Facebook: facebook.com/BendyBodiesPodcast




    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3370     Yoga Warning: Are You Putting Your Joints at Risk? with Lara Heimann (Ep 114) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely with hypermobility. Takeaways: Yoga for Hypermobile People: Hypermobile individuals can benefit from yoga if they focus on stability and avoid pushing into extreme ranges of motion. Stability Over Flexibility: Building strength and stability should be prioritized over achieving deep flexibility in yoga practice. Body Awareness is Key: Proprioception and awareness of body position are essential for safe movement in yoga for hypermobile individuals. Props and Feedback: Using blocks, the wall, and other props can help provide feedback and enhance stability during practice. Finding the Right Instructor: It's crucial to find a yoga teacher who understands the unique needs of hypermobile individuals and emphasizes stability over flexibility Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Lara Heimann: Instagram: @lara.heimann Facebook: @lara.f.heimann Youtube: @LYTMethod Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 10 Oct 2024 09:00:00 -0000 Yoga Warning: Are You Putting Your Joints at Risk? with Lara Heimann full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely with hypermobility. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely with hypermobility. Takeaways: Yoga for Hypermobile People: Hypermobile individuals can benefit from yoga if they focus on stability and avoid pushing into extreme ranges of motion. Stability Over Flexibility: Building strength and stability should be prioritized over achieving deep flexibility in yoga practice. Body Awareness is Key: Proprioception and awareness of body position are essential for safe movement in yoga for hypermobile individuals. Props and Feedback: Using blocks, the wall, and other props can help provide feedback and enhance stability during practice. Finding the Right Instructor: It's crucial to find a yoga teacher who understands the unique needs of hypermobile individuals and emphasizes stability over flexibility Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Lara Heimann: Instagram: @lara.heimann Facebook: @lara.f.heimann Youtube: @LYTMethod Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely with hypermobility.


    Takeaways:

    • Yoga for Hypermobile People: Hypermobile individuals can benefit from yoga if they focus on stability and avoid pushing into extreme ranges of motion.
    • Stability Over Flexibility: Building strength and stability should be prioritized over achieving deep flexibility in yoga practice.
    • Body Awareness is Key: Proprioception and awareness of body position are essential for safe movement in yoga for hypermobile individuals.
    • Props and Feedback: Using blocks, the wall, and other props can help provide feedback and enhance stability during practice.
    • Finding the Right Instructor: It's crucial to find a yoga teacher who understands the unique needs of hypermobile individuals and emphasizes stability over flexibility


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Learn about Lara Heimann:

    Instagram: @lara.heimann

    Facebook: @lara.f.heimann

    Youtube: @LYTMethod


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4168     Orthobiologics with the Centeno-Schultz Clinic (Ep 113) In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions. Takeaways: Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body’s natural healing processes. Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery. Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery. PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues. Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. John Pitts: IG: @johnpittsmd & @centenoschultzclinic Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Oct 2024 09:00:00 -0000 Orthobiologics with the Centeno-Schultz Clinic (Ep 113) full Dr. Linda Bluestein In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions. In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions. Takeaways: Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body’s natural healing processes. Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery. Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery. PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues. Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. John Pitts: IG: @johnpittsmd & @centenoschultzclinic Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions.

    Takeaways:

    Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body’s natural healing processes.

    Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery.

    Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery.

    PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues.

    Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Learn about Dr. John Pitts:

    IG: @johnpittsmd & @centenoschultzclinic


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4108     Genetic Testing in EDS with Dr. Paldeep Atwal (Ep 112) In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights, this episode offers valuable guidance. Takeaways: Importance of Genetic Testing: Genetic testing can reveal rare types of Ehlers-Danlos Syndromes (EDS), even when hypermobile EDS is suspected. Understanding Genetic Variants: Variants of uncertain significance can lead to confusion, making expert interpretation crucial for proper diagnosis. Gene-Environment Interactions: Genetic variants do not work in isolation—gene-gene and gene-environment interactions play a significant role in how conditions manifest. Complexity of Genetics in EDS: The absence of a genetic marker for hypermobile EDS highlights the need for continued research into the genetic basis of the condition. Avoiding Direct-to-Consumer Pitfalls: Be cautious with direct-to-consumer genetic testing, as inaccurate results can cause unnecessary stress. Always consult a geneticist for interpretation. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Paldeep Atwal Website: https://atwalclinic.com/ IG / X / FB : @atwalclinic Youtube: https://www.youtube.com/channel/UCffZDBcvf-vFRsT7k9GppTQ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 Sep 2024 07:00:00 -0000 Genetic Testing in EDS with Dr. Paldeep Atwal full Dr. Linda Bluestein In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights, this episode offers valuable guidance. In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights, this episode offers valuable guidance. Takeaways: Importance of Genetic Testing: Genetic testing can reveal rare types of Ehlers-Danlos Syndromes (EDS), even when hypermobile EDS is suspected. Understanding Genetic Variants: Variants of uncertain significance can lead to confusion, making expert interpretation crucial for proper diagnosis. Gene-Environment Interactions: Genetic variants do not work in isolation—gene-gene and gene-environment interactions play a significant role in how conditions manifest. Complexity of Genetics in EDS: The absence of a genetic marker for hypermobile EDS highlights the need for continued research into the genetic basis of the condition. Avoiding Direct-to-Consumer Pitfalls: Be cautious with direct-to-consumer genetic testing, as inaccurate results can cause unnecessary stress. Always consult a geneticist for interpretation. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Paldeep Atwal Website: https://atwalclinic.com/ IG / X / FB : @atwalclinic Youtube: https://www.youtube.com/channel/UCffZDBcvf-vFRsT7k9GppTQ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights, this episode offers valuable guidance.

    Takeaways:

    Importance of Genetic Testing: Genetic testing can reveal rare types of Ehlers-Danlos Syndromes (EDS), even when hypermobile EDS is suspected.

    Understanding Genetic Variants: Variants of uncertain significance can lead to confusion, making expert interpretation crucial for proper diagnosis.

    Gene-Environment Interactions: Genetic variants do not work in isolation—gene-gene and gene-environment interactions play a significant role in how conditions manifest.

    Complexity of Genetics in EDS: The absence of a genetic marker for hypermobile EDS highlights the need for continued research into the genetic basis of the condition.

    Avoiding Direct-to-Consumer Pitfalls: Be cautious with direct-to-consumer genetic testing, as inaccurate results can cause unnecessary stress. Always consult a geneticist for interpretation.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Learn about Dr. Paldeep Atwal

    Website: https://atwalclinic.com/

    IG / X / FB : @atwalclinic

    Youtube: https://www.youtube.com/channel/UCffZDBcvf-vFRsT7k9GppTQ


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4319     My Essential EDS Advice | Office Hours (Ep111) In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility. Takeaways: Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies. Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS. Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment. Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference. Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Sep 2024 09:00:00 -0000 My Essential EDS Advice (Office Hours) full Dr. Linda Bluestein In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility. In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility. Takeaways: Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies. Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS. Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment. Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference. Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility.

    Takeaways:

    Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies.

    Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS.

    Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment.

    Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference.

    Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3449     hEDS vs HSD: Controversies in Diagnosis with Alan Hakim, MD (Ep 110) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs).   Takeaways: Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the difference between hereditary connective tissue disorders like EDS and autoimmune connective tissue disorders such as lupus and rheumatoid arthritis. Evolving EDS Criteria: The 2017 classification of EDS has improved the understanding of conditions like hypermobile EDS, but there’s still ongoing research and work being done to refine the criteria. Dr. Hakim shares his thoughts on the criteria and the process.  Comorbidities in EDS and HSD: Conditions such as POTS (Postural Orthostatic Tachycardia Syndrome) and GI disorders often accompany hypermobility-related disorders, though more research is needed to establish how these comorbidities are connected. The Importance of Instability: Joint instability, rather than just hypermobility, may play a more significant role in patient symptoms, making proper diagnosis and treatment plans essential. Future of Genetic Testing: While genetic markers for hypermobile EDS have not yet been identified, significant research is underway to find biomarkers and better understand the genetic components of these disorders. Dr. Hakim shares his thoughts on when genetic testing should be performed and covers red flags for more rare types of EDS and other hereditary connective tissue disorders.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Alan Hakim: Instagram: @ehlers.danlos Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Sep 2024 09:00:00 -0000 hEDS vs HSD: Controversies in Diagnosis with Alan Hakim, MD full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs). In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs).   Takeaways: Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the difference between hereditary connective tissue disorders like EDS and autoimmune connective tissue disorders such as lupus and rheumatoid arthritis. Evolving EDS Criteria: The 2017 classification of EDS has improved the understanding of conditions like hypermobile EDS, but there’s still ongoing research and work being done to refine the criteria. Dr. Hakim shares his thoughts on the criteria and the process.  Comorbidities in EDS and HSD: Conditions such as POTS (Postural Orthostatic Tachycardia Syndrome) and GI disorders often accompany hypermobility-related disorders, though more research is needed to establish how these comorbidities are connected. The Importance of Instability: Joint instability, rather than just hypermobility, may play a more significant role in patient symptoms, making proper diagnosis and treatment plans essential. Future of Genetic Testing: While genetic markers for hypermobile EDS have not yet been identified, significant research is underway to find biomarkers and better understand the genetic components of these disorders. Dr. Hakim shares his thoughts on when genetic testing should be performed and covers red flags for more rare types of EDS and other hereditary connective tissue disorders.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Alan Hakim: Instagram: @ehlers.danlos Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs).  


    Takeaways:

    Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the difference between hereditary connective tissue disorders like EDS and autoimmune connective tissue disorders such as lupus and rheumatoid arthritis.

    Evolving EDS Criteria: The 2017 classification of EDS has improved the understanding of conditions like hypermobile EDS, but there’s still ongoing research and work being done to refine the criteria. Dr. Hakim shares his thoughts on the criteria and the process. 

    Comorbidities in EDS and HSD: Conditions such as POTS (Postural Orthostatic Tachycardia Syndrome) and GI disorders often accompany hypermobility-related disorders, though more research is needed to establish how these comorbidities are connected.

    The Importance of Instability: Joint instability, rather than just hypermobility, may play a more significant role in patient symptoms, making proper diagnosis and treatment plans essential.

    Future of Genetic Testing: While genetic markers for hypermobile EDS have not yet been identified, significant research is underway to find biomarkers and better understand the genetic components of these disorders. Dr. Hakim shares his thoughts on when genetic testing should be performed and covers red flags for more rare types of EDS and other hereditary connective tissue disorders.  


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Learn about Dr. Alan Hakim:

    Instagram: @ehlers.danlos


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4696     How EDS and HSD Impact Fascia and Pain with Tina Wang, MD (Ep 109) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders. Takeaways: Fascia’s Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain. Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction. Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients. Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients. Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Tina Wang: Linkedin: @tupelopointe Tiktok: @tupelopointe Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Sep 2024 09:00:00 -0000 How EDS and HSD Impact Fascia and Pain with Tina Wang, MD full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders. Takeaways: Fascia’s Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain. Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction. Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients. Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients. Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Tina Wang: Linkedin: @tupelopointe Tiktok: @tupelopointe Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders.


    Takeaways:


    Fascia’s Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain.

    Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction.

    Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients.

    Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients.

    Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Learn about Dr. Tina Wang:

    Linkedin: @tupelopointe

    Tiktok: @tupelopointe


    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4373     Welcome, Bendy Buddies! Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoices Fri, 30 Aug 2024 20:49:00 -0000 trailer Dr. Linda Bluestein Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoices Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now!

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     77     Overcoming Pain in EDS: Building Stronger Bodies with Whealth Founders Katie & Andrew Dettelbach (Ep 108) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life. Takeaways: Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error. Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies. Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly. Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health. Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Whealth Founders Katie & Andrew Dettelbach: X / Twitter: @spreadwhealth Instagram: @whealth Facebook: @spreadwhealth Youtube: @whealth Tiktok: @whealth_ Andrew IG: @the.shirtlessdude Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 29 Aug 2024 09:00:00 -0000 Overcoming Pain in EDS: Building Stronger Bodies with Whealth Founders Katie & Andrew Dettelbach full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life. Takeaways: Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error. Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies. Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly. Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health. Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Whealth Founders Katie & Andrew Dettelbach: X / Twitter: @spreadwhealth Instagram: @whealth Facebook: @spreadwhealth Youtube: @whealth Tiktok: @whealth_ Andrew IG: @the.shirtlessdude Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life.


    Takeaways:


    Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error.


    Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies.


    Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly.


    Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health.


    Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 


    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.



    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  


    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 


    Learn about Whealth Founders Katie & Andrew Dettelbach:


    X / Twitter: @spreadwhealth


    Instagram: @whealth


    Facebook: @spreadwhealth


    Youtube: @whealth


    Tiktok: @whealth_


    Andrew IG: @the.shirtlessdude



    Keep up to date with the HypermobilityMD:


    YouTube: youtube.com/@bendybodiespodcast


    Twitter: twitter.com/BluesteinLinda


    LinkedIn: linkedin.com/in/hypermobilitymd


    Facebook: facebook.com/BendyBodiesPodcast


    Blog: hypermobilitymd.com/blog




    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4610     Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD (Ep 107) In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life. Takeaways: Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability. Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being. Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person. Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss. Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Natasha Trujillo: Instagram: @npttherapy Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 Aug 2024 09:00:00 -0000 Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD full Dr. Linda Bluestein In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life. In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life. Takeaways: Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability. Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being. Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person. Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss. Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Natasha Trujillo: Instagram: @npttherapy Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life.


    Takeaways:

    Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability.

    Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being.

    Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person.

    Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss.

    Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  


    This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     

     

    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Learn about Dr. Natasha Trujillo:

    Instagram: @npttherapy


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3803     Group Rehabilitation for POTS with Emily Rich, OT (Ep 106) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance. Takeaways: Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies. Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively. Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels. The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting. Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Emily Rich: Instagram / YouTube: @emilyrichot Linkedin: @emilymrich Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 15 Aug 2024 09:00:00 -0000 Group Rehabilitation for POTS with Emily Rich, OT full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance. Takeaways: Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies. Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively. Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels. The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting. Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Emily Rich: Instagram / YouTube: @emilyrichot Linkedin: @emilymrich Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance.


    Takeaways:

    Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies.

    Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively.

    Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels.

    The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting.

    Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  


    This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     

     

    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Learn about Emily Rich:

    Instagram / YouTube: @emilyrichot

    Linkedin: @emilymrich


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3351     Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD (Ep 105) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain. Takeaways: Psychological Factors and Pain: Psychological factors such as stress, anxiety, and fear can significantly influence the perception of chronic pain and its severity. Pain as a Danger Signal: Pain is often a response to perceived danger, not just physical injury. The brain’s interpretation of pain involves complex neural circuits. Cognitive and Behavioral Therapy: CBT and ACT are effective therapies for managing chronic pain by addressing thought patterns and behaviors that influence pain perception. Importance of Self-Compassion: Developing self-compassion and psychological flexibility can improve resilience and coping strategies for individuals with chronic pain. Understanding Pain Neuroscience: Educating patients and healthcare providers about pain neuroscience can empower individuals to better manage their pain and improve their quality of life. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kaitlin Touza: Linkedin: https://www.linkedin.com/in/kaitlin-touza-phd-9117148a/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Aug 2024 09:00:00 -0000 Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD full Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain. Takeaways: Psychological Factors and Pain: Psychological factors such as stress, anxiety, and fear can significantly influence the perception of chronic pain and its severity. Pain as a Danger Signal: Pain is often a response to perceived danger, not just physical injury. The brain’s interpretation of pain involves complex neural circuits. Cognitive and Behavioral Therapy: CBT and ACT are effective therapies for managing chronic pain by addressing thought patterns and behaviors that influence pain perception. Importance of Self-Compassion: Developing self-compassion and psychological flexibility can improve resilience and coping strategies for individuals with chronic pain. Understanding Pain Neuroscience: Educating patients and healthcare providers about pain neuroscience can empower individuals to better manage their pain and improve their quality of life. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kaitlin Touza: Linkedin: https://www.linkedin.com/in/kaitlin-touza-phd-9117148a/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain.


    Takeaways:

    Psychological Factors and Pain: Psychological factors such as stress, anxiety, and fear can significantly influence the perception of chronic pain and its severity.

    Pain as a Danger Signal: Pain is often a response to perceived danger, not just physical injury. The brain’s interpretation of pain involves complex neural circuits.

    Cognitive and Behavioral Therapy: CBT and ACT are effective therapies for managing chronic pain by addressing thought patterns and behaviors that influence pain perception.

    Importance of Self-Compassion: Developing self-compassion and psychological flexibility can improve resilience and coping strategies for individuals with chronic pain.

    Understanding Pain Neuroscience: Educating patients and healthcare providers about pain neuroscience can empower individuals to better manage their pain and improve their quality of life.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  


    This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     

     

    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Learn about Kaitlin Touza:

    Linkedin: https://www.linkedin.com/in/kaitlin-touza-phd-9117148a/


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3971     Connective Tissue Disorders and Lipedema with Karen Herbst, MD (Ep 104) In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode. Takeaways: Lipedema Misdiagnosis: Lipedema is often misdiagnosed as regular obesity or confused with lymphedema, highlighting the need for better awareness and diagnostic criteria. Connection to Hormones: Hormonal changes, such as those during puberty, pregnancy, and menopause, can trigger or worsen lipedema due to increased fat and hormonal fluctuations. Inflammation and Fibrosis: Inflammation in lipedema leads to fibrosis, making the tissue nodular and tender, and potentially contributing to the chronic pain experienced by patients. Diet and Supplements: Anti-inflammatory diets, intermittent fasting, and certain supplements like berberine and CoQ10 can help manage lipedema symptoms by reducing inflammation and supporting metabolic health. Surgical and Non-Surgical Treatments: While liposuction can significantly improve symptoms, non-surgical treatments such as compression therapy, manual lymphatic drainage, and whole-body vibration are also beneficial in managing lipedema. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Karen Herbst: Instagram: @advancedlipedematreatment Tik Tok: @alt.program Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 01 Aug 2024 09:00:00 -0000 Connective Tissue Disorders and Lipedema with Karen Herbst, MD full 104 Dr. Linda Bluestein In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode. In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode. Takeaways: Lipedema Misdiagnosis: Lipedema is often misdiagnosed as regular obesity or confused with lymphedema, highlighting the need for better awareness and diagnostic criteria. Connection to Hormones: Hormonal changes, such as those during puberty, pregnancy, and menopause, can trigger or worsen lipedema due to increased fat and hormonal fluctuations. Inflammation and Fibrosis: Inflammation in lipedema leads to fibrosis, making the tissue nodular and tender, and potentially contributing to the chronic pain experienced by patients. Diet and Supplements: Anti-inflammatory diets, intermittent fasting, and certain supplements like berberine and CoQ10 can help manage lipedema symptoms by reducing inflammation and supporting metabolic health. Surgical and Non-Surgical Treatments: While liposuction can significantly improve symptoms, non-surgical treatments such as compression therapy, manual lymphatic drainage, and whole-body vibration are also beneficial in managing lipedema. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Karen Herbst: Instagram: @advancedlipedematreatment Tik Tok: @alt.program Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode.


    Takeaways:

    Lipedema Misdiagnosis: Lipedema is often misdiagnosed as regular obesity or confused with lymphedema, highlighting the need for better awareness and diagnostic criteria.

    Connection to Hormones: Hormonal changes, such as those during puberty, pregnancy, and menopause, can trigger or worsen lipedema due to increased fat and hormonal fluctuations.

    Inflammation and Fibrosis: Inflammation in lipedema leads to fibrosis, making the tissue nodular and tender, and potentially contributing to the chronic pain experienced by patients.

    Diet and Supplements: Anti-inflammatory diets, intermittent fasting, and certain supplements like berberine and CoQ10 can help manage lipedema symptoms by reducing inflammation and supporting metabolic health.

    Surgical and Non-Surgical Treatments: While liposuction can significantly improve symptoms, non-surgical treatments such as compression therapy, manual lymphatic drainage, and whole-body vibration are also beneficial in managing lipedema.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  


    This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     

     

    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Learn about Dr. Karen Herbst:

    Instagram: @advancedlipedematreatment

    Tik Tok: @alt.program


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4568     Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD (Ep 103) In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end! Takeaways: Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS. Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies. Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues. Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients. Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kara Wada: Website: https://www.drkarawada.com/ Instagram: @immuneconfidentmd Youtube: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 Jul 2024 09:00:00 -0000 Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD full 5 103 Dr. Linda Bluestein In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end! In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end! Takeaways: Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS. Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies. Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues. Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients. Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kara Wada: Website: https://www.drkarawada.com/ Instagram: @immuneconfidentmd Youtube: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end!


    Takeaways:

    Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS.

    Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies.

    Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues.

    Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients.

    Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  


    This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     

     

    Learn more about Human Content at http://www.human-content.com


    Podcast Advertising/Business Inquiries: sales@human-content.com


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Learn about Kara Wada:

    Website: https://www.drkarawada.com/

    Instagram: @immuneconfidentmd

    Youtube: @drkarawada


    Keep up to date with the HypermobilityMD:

    YouTube: youtube.com/@bendybodiespodcast

    Twitter: twitter.com/BluesteinLinda

    LinkedIn: linkedin.com/in/hypermobilitymd

    Facebook: facebook.com/BendyBodiesPodcast

    Blog: hypermobilitymd.com/blog


    Part of the Human Content Podcast Network

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3632     Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom (Ep 102) In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. Takeaways: Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD. Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing. Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy. Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration. Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Lara Bloom: Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 18 Jul 2024 09:00:00 -0000 Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom full 5 102 Dr. Linda Bluestein In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. Takeaways: Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD. Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing. Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy. Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration. Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Lara Bloom: Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care.


    Takeaways:

    Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD.

    Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing.

    Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy.

    Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration.

    Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  


    This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     

     

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    YOUR bendy body is our highest priority! 🧬🔬🦓


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    ]]>     3897     Season 4 Wrap: Reading Your Comments https://share.transistor.fm/s/2d7b2097 Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5! Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 13 Jun 2024 15:05:00 -0000 Season 4 Wrap: Reading Your Comments bonus 4 Dr. Linda Bluestein <p>Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5!</p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p> Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5! Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Learn more about your ad choices. Visit megaphone.fm/adchoices Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5!

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     388 no     Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta (Ep 101) https://share.transistor.fm/s/bf1efc21 In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body. Takeaways Chronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy. Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response. The brain's priority is survival, which can lead to maladaptive responses and chronic illness. The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day. An independent audit looked at 16 different conditions for three months. They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivities Clinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems. The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Neuroplasticity Intervention, Amygdala and Insula Retraining (AIR), Significantly Improves Overall Health and Functioning Across Various Chronic Conditions https://pubmed.ncbi.nlm.nih.gov/38404605/ Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot Randomized Controlled Trial Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot https://www.guptaprogram.com/ https://www.youtube.com/@GuptaProgram #MECSF #GuptaProgram #BrainRetraining #ChronicIllness #Hypermobility #ZebraStrong #ZebraWarriors #Neuroplasticity #ChemicalSensitivity #LongCOVID #LymeDisease #MoldIllness #MindBodyConnection #HypermobilityHacks #Podcast #BendyBodiesPodcast #BendyBodies #MedicalPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 06 Jun 2024 09:00:00 -0000 Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta full 101 Dr. Linda Bluestein <p>In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS.  They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Chronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy.</li><li>Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response.</li><li>The brain's priority is survival, which can lead to maladaptive responses and chronic illness.</li><li>The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day.</li><li>An independent audit looked at 16 different conditions for three months.  They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivities</li><li>Clinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems.</li><li>The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels.</li><li>Some individuals may experience temporary worsening during the program, but with support and a balanced approach, positive results can be achieved.</li><li>Healing and recovery are possible, and the brain's neuroplasticity allows for rewiring and improvement in various chronic conditions.</li><li>Making friends with your body and accepting hypermobility as an attribute can shift your perspective and contribute to healing.</li><li>The Gupta Program offers a free 28-day trial and a one-year money-back guarantee, making it accessible and low-risk for individuals seeking relief from chronic illnesses.</li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction and Background</p><p>01:43 The Impact of Chronic Conditions</p><p>04:05 Understanding Brain Retraining</p><p>05:21 The Brain's Priority: Survival</p><p>09:40 The Vicious Cycle of Symptoms</p><p>12:46 The Gupta Program</p><p>16:28 Neuroimmune Conditioned Syndromes</p><p>30:33 Time commitment for results</p><p>33:07 Somatic retraining and brain structures</p><p>34:23 Recommending brain retraining to patients</p><p>36:06 Addressing the software issues</p><p>37:58 Effectiveness of medications with brain retraining</p><p>39:08 Duration of the program</p><p>41:50 Potential worsening during the program</p><p>43:15 Final thoughts and hope for healing</p><p>45:28 Neuroplasticity and changing the brain</p><p>51:22 Hypermobility hack: Make friends with your body</p><p>52:30 Where to find more information about the program</p><p>58:18 Duration and cost of the program</p><p>59:25 Accessibility and money-back guarantee</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>Neuroplasticity Intervention, Amygdala and Insula Retraining (AIR), Significantly Improves Overall Health and Functioning Across Various Chronic Conditions</p><p><br></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/38404605/">https://pubmed.ncbi.nlm.nih.gov/38404605/</a></p><p><br></p><p>Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot Randomized Controlled Trial</p><p><br></p><p><a href="https://guptaprogram.com/wp-content/uploads/2020/10/jcm-09-03246.pdf">Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot</a></p><p><br></p><p><a href="https://www.guptaprogram.com/">https://www.guptaprogram.com/</a></p><p><br></p><p><a href="https://www.youtube.com/@GuptaProgram">https://www.youtube.com/@GuptaProgram</a></p><p><br>#MECSF #GuptaProgram #BrainRetraining #ChronicIllness #Hypermobility #ZebraStrong  #ZebraWarriors #Neuroplasticity #ChemicalSensitivity #LongCOVID #LymeDisease #MoldIllness #MindBodyConnection #HypermobilityHacks #Podcast #BendyBodiesPodcast #BendyBodies #MedicalPodcast #BendyBuddy #HypermobilityMD </p> In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body. Takeaways Chronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy. Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response. The brain's priority is survival, which can lead to maladaptive responses and chronic illness. The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day. An independent audit looked at 16 different conditions for three months. They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivities Clinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems. The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Neuroplasticity Intervention, Amygdala and Insula Retraining (AIR), Significantly Improves Overall Health and Functioning Across Various Chronic Conditions https://pubmed.ncbi.nlm.nih.gov/38404605/ Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot Randomized Controlled Trial Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot https://www.guptaprogram.com/ https://www.youtube.com/@GuptaProgram #MECSF #GuptaProgram #BrainRetraining #ChronicIllness #Hypermobility #ZebraStrong #ZebraWarriors #Neuroplasticity #ChemicalSensitivity #LongCOVID #LymeDisease #MoldIllness #MindBodyConnection #HypermobilityHacks #Podcast #BendyBodiesPodcast #BendyBodies #MedicalPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body.


    Takeaways


    • Chronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy.
    • Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response.
    • The brain's priority is survival, which can lead to maladaptive responses and chronic illness.
    • The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day.
    • An independent audit looked at 16 different conditions for three months. They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivities
    • Clinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems.
    • The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources: 


    Neuroplasticity Intervention, Amygdala and Insula Retraining (AIR), Significantly Improves Overall Health and Functioning Across Various Chronic Conditions


    https://pubmed.ncbi.nlm.nih.gov/38404605/


    Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot Randomized Controlled Trial


    Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot


    https://www.guptaprogram.com/


    https://www.youtube.com/@GuptaProgram


    #MECSF #GuptaProgram #BrainRetraining #ChronicIllness #Hypermobility #ZebraStrong #ZebraWarriors #Neuroplasticity #ChemicalSensitivity #LongCOVID #LymeDisease #MoldIllness #MindBodyConnection #HypermobilityHacks #Podcast #BendyBodiesPodcast #BendyBodies #MedicalPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3679 no     Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD https://share.transistor.fm/s/1db18bc6 Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS. Takeaways Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms.  Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions. Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms. Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients. Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms. Treatment approaches for EDS are discussed.  Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think. The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations. Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast. Chapters ➡ 00:00 Introduction and Celebration of 100 Episodes 25:52 Understanding and Empathizing with Patients' Struggles 36:40 The Top Three Concerns Among EDS Patients 41:20 The Most Effective Treatment Approaches for EDS 44:23 The Role of Mast Cell Activation Syndrome (MCAS) 52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team 01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness 1:05:21 Improving Quality of Care for Everyone 01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546 https://www.edsguardians.org/ #MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 30 May 2024 09:00:00 -0000 Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD full 100 Dr. Linda Bluestein <p>Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients.  Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms. </li><li>Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.</li><li>Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.</li><li>Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.</li><li>Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.</li><li>Treatment approaches for EDS are discussed. </li><li>Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.</li><li>The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.</li><li>Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.</li></ul><p>Chapters ➡</p><p><br></p><p>00:00 Introduction and Celebration of 100 Episodes</p><p>25:52 Understanding and Empathizing with Patients' Struggles</p><p>36:40 The Top Three Concerns Among EDS Patients</p><p>41:20 The Most Effective Treatment Approaches for EDS</p><p>44:23 The Role of Mast Cell Activation Syndrome (MCAS)</p><p>52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team</p><p>01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness</p><p>1:05:21 Improving Quality of Care for Everyone</p><p>01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p><a href="https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx">https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx</a></p><p><br></p><p><a href="https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546">https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546</a></p><p><br></p><p><a href="https://www.edsguardians.org/">https://www.edsguardians.org/</a></p><p><br></p><p>#MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong  #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode</p> Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS. Takeaways Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms.  Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions. Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms. Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients. Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms. Treatment approaches for EDS are discussed.  Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think. The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations. Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast. Chapters ➡ 00:00 Introduction and Celebration of 100 Episodes 25:52 Understanding and Empathizing with Patients' Struggles 36:40 The Top Three Concerns Among EDS Patients 41:20 The Most Effective Treatment Approaches for EDS 44:23 The Role of Mast Cell Activation Syndrome (MCAS) 52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team 01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness 1:05:21 Improving Quality of Care for Everyone 01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546 https://www.edsguardians.org/ #MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode Learn more about your ad choices. Visit megaphone.fm/adchoices Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.


    Takeaways


    • Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms. 
    • Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.
    • Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.
    • Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.
    • Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.
    • Treatment approaches for EDS are discussed. 
    • Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.
    • The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.
    • Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.

    Chapters ➡


    00:00 Introduction and Celebration of 100 Episodes

    25:52 Understanding and Empathizing with Patients' Struggles

    36:40 The Top Three Concerns Among EDS Patients

    41:20 The Most Effective Treatment Approaches for EDS

    44:23 The Role of Mast Cell Activation Syndrome (MCAS)

    52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team

    01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness

    1:05:21 Improving Quality of Care for Everyone

    01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources: 


    https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx


    https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546


    https://www.edsguardians.org/


    #MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4812 no     From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe (Ep 99) https://share.transistor.fm/s/38085935 Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness  Takeaways Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis. Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding. Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace. Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need. Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities. Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life. Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment. Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure. It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts. The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident. Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack.  Chapters ➡ 00:00 Introduction and Background 08:01 Supportive Coworkers and Accommodations 16:01 Benefits of Remote Work 32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach 42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure 49:39 The Role of Technology in a Car Accident 56:11 The Support System: Family, Friends, and Coworkers 01:06:31 Valuing Oneself and Advocating in the Workplace Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Learn more about Summer Dashe https://www.summerdashe.com/ #SummerDashe #dysautonomia #ChronicIllness #POTsie #POTSAwareness #ZebraWarriors #ZebraStrong #POTS #EhlersDanlos #Podcast  #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 23 May 2024 09:28:00 -0000 From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe full 99 Dr. Linda Bluestein <p>Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey.  She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome).  #dysautonomia #ChronicIllness #POTSAwareness </p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis.</li><li>Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding.</li><li>Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace.</li><li>Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need.</li><li>Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities.</li><li>Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life.</li><li>Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment.</li><li>Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure.</li><li>It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts.</li><li>The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident.</li><li>Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack. </li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction and Background</p><p>08:01 Supportive Coworkers and Accommodations</p><p>16:01 Benefits of Remote Work</p><p>32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach</p><p>42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure</p><p>49:39 The Role of Technology in a Car Accident</p><p>56:11 The Support System: Family, Friends, and Coworkers</p><p>01:06:31 Valuing Oneself and Advocating in the Workplace</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>Learn more about Summer Dashe</p><p>https://www.summerdashe.com/</p><p><br></p><p>#SummerDashe #dysautonomia #ChronicIllness #POTsie #POTSAwareness #ZebraWarriors #ZebraStrong #POTS #EhlersDanlos #Podcast </p><p>#BendyBodiesPodcast #BendyBuddy #HypermobilityMD </p> Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness  Takeaways Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis. Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding. Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace. Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need. Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities. Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life. Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment. Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure. It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts. The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident. Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack.  Chapters ➡ 00:00 Introduction and Background 08:01 Supportive Coworkers and Accommodations 16:01 Benefits of Remote Work 32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach 42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure 49:39 The Role of Technology in a Car Accident 56:11 The Support System: Family, Friends, and Coworkers 01:06:31 Valuing Oneself and Advocating in the Workplace Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Learn more about Summer Dashe https://www.summerdashe.com/ #SummerDashe #dysautonomia #ChronicIllness #POTsie #POTSAwareness #ZebraWarriors #ZebraStrong #POTS #EhlersDanlos #Podcast  #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness 


    Takeaways


    • Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis.
    • Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding.
    • Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace.
    • Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need.
    • Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities.
    • Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life.
    • Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment.
    • Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure.
    • It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts.
    • The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident.
    • Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack. 


    Chapters ➡


    00:00 Introduction and Background

    08:01 Supportive Coworkers and Accommodations

    16:01 Benefits of Remote Work

    32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach

    42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure

    49:39 The Role of Technology in a Car Accident

    56:11 The Support System: Family, Friends, and Coworkers

    01:06:31 Valuing Oneself and Advocating in the Workplace


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources: 


    Learn more about Summer Dashe

    https://www.summerdashe.com/


    #SummerDashe #dysautonomia #ChronicIllness #POTsie #POTSAwareness #ZebraWarriors #ZebraStrong #POTS #EhlersDanlos #Podcast 

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3587 no     Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD (Ep 98) https://share.transistor.fm/s/f14addc7 Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease.  Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS.  Immunotherapy for allergies and asthma may impact MCAS symptoms.  Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.  Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms. Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish. Testing mercury levels can help identify potential toxicity and guide treatment. Antihistamines can be beneficial for managing MCAS symptoms and should not be feared. Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs. Finding healthcare providers who understand and can effectively treat MCAS is crucial. Chapters ➡ 00:00 Introduction to MCAS and Dr. Tanya Dempsey 02:28 Infections and MCAS 14:31 Immune Deficiency and Infections 28:37 Environmental Triggers 37:00 Air Purification and Food Quality 42:01 Quality of Meat vs. Pesticide-Free Vegetables 43:11 Fish as an Alternative to Meat 44:32 Toxins in Fish and Mercury Levels 46:02 Detoxing Mercury and Sushi Concerns 47:08 Reactions to Sushi and Scombroid Food Poisoning 48:43 Sensitivity to Scents and Environmental Triggers 49:30 Long-Term Antihistamine Use and Dementia 52:21 Reactions to Laundry and Facial Products 56:23 Treatment Options after Failing Xolair 57:12 Food Dyes and MCAS 58:18 EMFs and MCAS 59:22 Why Some Doctors Fail to Believe in MCAS 01:03:41 Immunotherapy for Allergies and MCAS 01:04:56 Managing Heat, Sun, and Exercise Triggers 01:09:54 Diagnosing MCAS and Lab Testing Challenges 01:11:20 Final Thoughts and Finding Answers Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Learn about Dr. Tania Dempsey, MD: Website: https://www.drtaniadempsey.com/ Twitter Link: https://twitter.com/drtaniadempsey Instagram Link: https://www.instagram.com/drtaniadempseymd/ Facebook Link: https://www.facebook.com/taniadempseymd/ Linkedin Link: https://www.linkedin.com/in/tania-dempsey-m-d-82834a44 Mast Cell Matters Podcast https://podcasts.apple.com/us/podcast/mast-cell-matters-deep-dives-on-mcas-with-tania/id1717106678 Article: Learned Cautions Regarding Antibody Testing in MCAS  https://pubmed.ncbi.nlm.nih.gov/37566881/ Article: Diagnosis of mast cell activation syndrome: a global "consensus-2 https://pubmed.ncbi.nlm.nih.gov/32324159/ Article: Molecular Mechanisms of Scombroid Food Poisoning https://pubmed.ncbi.nlm.nih.gov/36614252/ Supportive Oligonucleotide Therapy (SOT) as a Potential Treatment for Viral Infections and Lyme Disease: Preliminary Results https://pubmed.ncbi.nlm.nih.gov/36412742/ Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (PTLDS) and Associated Co-infections: A Report of Three Cases and Retrospective Chart Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7690415/ #MCAS #MastCell #MastCellActivationSyndrome #MastCellActivationDisorder #MastCellDisease  #EDSAwarenessMonth #HSDAwarenessMonth #Podcast #BendyBodiesPodcast #BendyBuddy #BendyBodies #HypermobilityMD Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 16 May 2024 09:00:00 -0000 Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD full 98 Dr. Linda Bluestein Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease.  Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS.  Immunotherapy for allergies and asthma may impact MCAS symptoms.  Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.  Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms. Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish. Testing mercury levels can help identify potential toxicity and guide treatment. Antihistamines can be beneficial for managing MCAS symptoms and should not be feared. Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs. Finding healthcare providers who understand and can effectively treat MCAS is crucial. Chapters ➡ 00:00 Introduction to MCAS and Dr. Tanya Dempsey 02:28 Infections and MCAS 14:31 Immune Deficiency and Infections 28:37 Environmental Triggers 37:00 Air Purification and Food Quality 42:01 Quality of Meat vs. Pesticide-Free Vegetables 43:11 Fish as an Alternative to Meat 44:32 Toxins in Fish and Mercury Levels 46:02 Detoxing Mercury and Sushi Concerns 47:08 Reactions to Sushi and Scombroid Food Poisoning 48:43 Sensitivity to Scents and Environmental Triggers 49:30 Long-Term Antihistamine Use and Dementia 52:21 Reactions to Laundry and Facial Products 56:23 Treatment Options after Failing Xolair 57:12 Food Dyes and MCAS 58:18 EMFs and MCAS 59:22 Why Some Doctors Fail to Believe in MCAS 01:03:41 Immunotherapy for Allergies and MCAS 01:04:56 Managing Heat, Sun, and Exercise Triggers 01:09:54 Diagnosing MCAS and Lab Testing Challenges 01:11:20 Final Thoughts and Finding Answers Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Learn about Dr. Tania Dempsey, MD: Website: https://www.drtaniadempsey.com/ Twitter Link: https://twitter.com/drtaniadempsey Instagram Link: https://www.instagram.com/drtaniadempseymd/ Facebook Link: https://www.facebook.com/taniadempseymd/ Linkedin Link: https://www.linkedin.com/in/tania-dempsey-m-d-82834a44 Mast Cell Matters Podcast https://podcasts.apple.com/us/podcast/mast-cell-matters-deep-dives-on-mcas-with-tania/id1717106678 Article: Learned Cautions Regarding Antibody Testing in MCAS  https://pubmed.ncbi.nlm.nih.gov/37566881/ Article: Diagnosis of mast cell activation syndrome: a global "consensus-2 https://pubmed.ncbi.nlm.nih.gov/32324159/ Article: Molecular Mechanisms of Scombroid Food Poisoning https://pubmed.ncbi.nlm.nih.gov/36614252/ Supportive Oligonucleotide Therapy (SOT) as a Potential Treatment for Viral Infections and Lyme Disease: Preliminary Results https://pubmed.ncbi.nlm.nih.gov/36412742/ Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (PTLDS) and Associated Co-infections: A Report of Three Cases and Retrospective Chart Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7690415/ #MCAS #MastCell #MastCellActivationSyndrome #MastCellActivationDisorder #MastCellDisease  #EDSAwarenessMonth #HSDAwarenessMonth #Podcast #BendyBodiesPodcast #BendyBuddy #BendyBodies #HypermobilityMD Learn more about your ad choices. Visit megaphone.fm/adchoices Summary


    Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. 


    Takeaways

    • Infections can trigger mast cell reactions and people with MCAS may react differently than those without.
    • Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS. 
    • Immunotherapy for allergies and asthma may impact MCAS symptoms. 
    • Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed. 
    • Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms.
    • Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish.
    • Testing mercury levels can help identify potential toxicity and guide treatment.
    • Antihistamines can be beneficial for managing MCAS symptoms and should not be feared.
    • Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs.
    • Finding healthcare providers who understand and can effectively treat MCAS is crucial.


    Chapters ➡


    00:00 Introduction to MCAS and Dr. Tanya Dempsey

    02:28 Infections and MCAS

    14:31 Immune Deficiency and Infections

    28:37 Environmental Triggers

    37:00 Air Purification and Food Quality

    42:01 Quality of Meat vs. Pesticide-Free Vegetables

    43:11 Fish as an Alternative to Meat

    44:32 Toxins in Fish and Mercury Levels

    46:02 Detoxing Mercury and Sushi Concerns

    47:08 Reactions to Sushi and Scombroid Food Poisoning

    48:43 Sensitivity to Scents and Environmental Triggers

    49:30 Long-Term Antihistamine Use and Dementia

    52:21 Reactions to Laundry and Facial Products

    56:23 Treatment Options after Failing Xolair

    57:12 Food Dyes and MCAS

    58:18 EMFs and MCAS

    59:22 Why Some Doctors Fail to Believe in MCAS

    01:03:41 Immunotherapy for Allergies and MCAS

    01:04:56 Managing Heat, Sun, and Exercise Triggers

    01:09:54 Diagnosing MCAS and Lab Testing Challenges

    01:11:20 Final Thoughts and Finding Answers


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:


    Learn about Dr. Tania Dempsey, MD:


    Website: https://www.drtaniadempsey.com/

    Twitter Link: https://twitter.com/drtaniadempsey

    Instagram Link: https://www.instagram.com/drtaniadempseymd/

    Facebook Link: https://www.facebook.com/taniadempseymd/

    Linkedin Link: https://www.linkedin.com/in/tania-dempsey-m-d-82834a44


    Mast Cell Matters Podcast


    https://podcasts.apple.com/us/podcast/mast-cell-matters-deep-dives-on-mcas-with-tania/id1717106678


    Article: Learned Cautions Regarding Antibody Testing in MCAS 


    https://pubmed.ncbi.nlm.nih.gov/37566881/


    Article: Diagnosis of mast cell activation syndrome: a global "consensus-2

    https://pubmed.ncbi.nlm.nih.gov/32324159/


    Article: Molecular Mechanisms of Scombroid Food Poisoning

    https://pubmed.ncbi.nlm.nih.gov/36614252/


    Supportive Oligonucleotide Therapy (SOT) as a Potential Treatment for Viral Infections and Lyme Disease: Preliminary Results

    https://pubmed.ncbi.nlm.nih.gov/36412742/

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (PTLDS) and Associated Co-infections: A Report of Three Cases and Retrospective Chart Review

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7690415/


    #MCAS #MastCell #MastCellActivationSyndrome #MastCellActivationDisorder #MastCellDisease 

    #EDSAwarenessMonth #HSDAwarenessMonth

    #Podcast #BendyBodiesPodcast #BendyBuddy #BendyBodies #HypermobilityMD

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4605 no     Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert (Ep 97) https://share.transistor.fm/s/5f88c1c5 In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes.  They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members.  Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions. Takeaways EDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions. Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established. Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children.  Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support. Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked. Early intervention and appropriate treatment are crucial for better patient outcomes.  Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated. Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs. Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion. Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible. Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society. Chapters ➡ 00:00 Introduction and EDS Awareness Month 09:30 Identifying Hypermobility Conditions in Children 31:06 Early Intervention and Appropriate Treatment 42:04 Supporting Individuals with EDS in the Workplace 54:59 The Importance of Awareness and Empathy for EDS and Related Conditions Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: https://www.ehlers-danlos.com/ https://iadms.org/ https://www.edsguardians.org/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/ https://pubmed.ncbi.nlm.nih.gov/34524722/ #EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS  #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 May 2024 15:00:00 -0000 Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert full 97 Dr. Linda Bluestein <p>In this special “EDS Awareness Month” episode of the <em>Bendy Bodies Podcast</em>, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of</p><p>Ehlers-Danlos Syndromes.</p><p><br></p><p>Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need.  She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes. </p><p><br></p><p>They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members. </p><p><br></p><p>Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>EDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.</li><li>Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.</li><li>Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children. </li><li>Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.</li><li>Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.</li><li>Early intervention and appropriate treatment are crucial for better patient outcomes. </li><li>Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.</li><li>Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.</li><li>Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.</li><li>Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.</li><li>Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.</li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction and EDS Awareness Month</p><p>09:30 Identifying Hypermobility Conditions in Children</p><p>31:06 Early Intervention and Appropriate Treatment</p><p>42:04 Supporting Individuals with EDS in the Workplace</p><p>54:59 The Importance of Awareness and Empathy for EDS and Related Conditions</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:</p><p><br></p><p><a href="https://www.ehlers-danlos.com/">https://www.ehlers-danlos.com/</a></p><p><br></p><p><a href="https://iadms.org/">https://iadms.org/</a></p><p><br></p><p><a href="https://www.edsguardians.org/">https://www.edsguardians.org/</a></p><p><br></p><p><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/</a></p><p><br></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/34524722/">https://pubmed.ncbi.nlm.nih.gov/34524722/</a></p><p><br></p><p>#EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS </p><p>#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  </p> In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes.  They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members.  Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions. Takeaways EDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions. Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established. Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children.  Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support. Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked. Early intervention and appropriate treatment are crucial for better patient outcomes.  Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated. Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs. Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion. Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible. Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society. Chapters ➡ 00:00 Introduction and EDS Awareness Month 09:30 Identifying Hypermobility Conditions in Children 31:06 Early Intervention and Appropriate Treatment 42:04 Supporting Individuals with EDS in the Workplace 54:59 The Importance of Awareness and Empathy for EDS and Related Conditions Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: https://www.ehlers-danlos.com/ https://iadms.org/ https://www.edsguardians.org/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/ https://pubmed.ncbi.nlm.nih.gov/34524722/ #EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS  #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of

    Ehlers-Danlos Syndromes.


    Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes. 


    They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members. 


    Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.


    Takeaways


    • EDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.
    • Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.
    • Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children. 
    • Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.
    • Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.
    • Early intervention and appropriate treatment are crucial for better patient outcomes. 
    • Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.
    • Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.
    • Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.
    • Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.
    • Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.


    Chapters ➡


    00:00 Introduction and EDS Awareness Month

    09:30 Identifying Hypermobility Conditions in Children

    31:06 Early Intervention and Appropriate Treatment

    42:04 Supporting Individuals with EDS in the Workplace

    54:59 The Importance of Awareness and Empathy for EDS and Related Conditions


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:


    https://www.ehlers-danlos.com/


    https://iadms.org/


    https://www.edsguardians.org/


    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10328215/


    https://pubmed.ncbi.nlm.nih.gov/34524722/


    #EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS 

    #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3977 no     Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner (Ep 96) https://share.transistor.fm/s/42b5ee7a In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone. Chapters ➡ 00:00 Introduction 00:54 Introducing Dr. Chelsea Pierotti 01:13 Coping with Injuries 03:38 Coping Mechanisms 06:34 The Influence of Childhood Experiences 08:29 Developing Resilience 09:48 Transitioning from Dance 12:11 The Role of Pain 13:09 Challenges Faced by Hypermobile Dancers 13:23 Supporting Dancers through Challenges 17:49 The Importance of Social Support 18:43 Grief and Loss of a Dance Career 20:34 Developing Resilience and Coping Strategies 24:57 The Importance of Values 27:52 Shifting the Dance Culture 29:25 Coping with Career Shifts 33:22 Positive Coaching Approach 35:55 Developing Mental Skills 36:51 Applying Mental Skills to Life 37:24 The Importance of Self-Awareness in Dance 38:25 Mindset: Controlling the Controllables Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Pierotti: https://chelseapierotti.com https://instagram.com/dr.chelsea.pierotti  #Dancers #Dance #Injuries #Transitions #Grief #MentalSkills  #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 Apr 2024 14:29:00 -0000 Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner full 96 Dr. Linda Bluestein <p>In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>The way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms.</li><li>Shifting the mindset from seeing an injury as a disaster to viewing it as a challenge can help dancers overcome the emotional and psychological challenges of injury.</li><li>Social support plays a crucial role in the recovery process for dancers.</li><li>Dancers should define success in ways that are within their control, rather than relying solely on external validation.</li><li>Transitions between different forms of dance or giving up dancing altogether can be challenging, and it's important for dancers to have a strong sense of identity beyond being a dancer. Consider your values and what truly matters to you in life when transitioning out of dance.</li><li>Reflect on who you admire and what you admire about them to identify your own values.</li><li>Acknowledge and process the grief and loss that comes with leaving a dance career.</li><li>The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete.</li><li>Developing mental skills and self-awareness is crucial for dancers and beneficial for everyone.</li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction</p><p>00:54 Introducing Dr. Chelsea Pierotti</p><p>01:13 Coping with Injuries</p><p>03:38 Coping Mechanisms</p><p>06:34 The Influence of Childhood Experiences</p><p>08:29 Developing Resilience</p><p>09:48 Transitioning from Dance</p><p>12:11 The Role of Pain</p><p>13:09 Challenges Faced by Hypermobile Dancers</p><p>13:23 Supporting Dancers through Challenges</p><p>17:49 The Importance of Social Support</p><p>18:43 Grief and Loss of a Dance Career</p><p>20:34 Developing Resilience and Coping Strategies</p><p>24:57 The Importance of Values</p><p>27:52 Shifting the Dance Culture</p><p>29:25 Coping with Career Shifts</p><p>33:22 Positive Coaching Approach</p><p>35:55 Developing Mental Skills</p><p>36:51 Applying Mental Skills to Life</p><p>37:24 The Importance of Self-Awareness in Dance</p><p>38:25 Mindset: Controlling the Controllables</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p>Learn about Dr. Pierotti:</p><p><br></p><p><a href="https://chelseapierotti.com/">https://chelseapierotti.com</a></p><p><br></p><p><a href="https://instagram.com/dr.chelsea.pierotti"><em>https://instagram.com/dr.chelsea.pierotti</em></a> </p><p><br></p><p>#Dancers #Dance #Injuries #Transitions #Grief #MentalSkills </p><p>#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD</p> In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone. Chapters ➡ 00:00 Introduction 00:54 Introducing Dr. Chelsea Pierotti 01:13 Coping with Injuries 03:38 Coping Mechanisms 06:34 The Influence of Childhood Experiences 08:29 Developing Resilience 09:48 Transitioning from Dance 12:11 The Role of Pain 13:09 Challenges Faced by Hypermobile Dancers 13:23 Supporting Dancers through Challenges 17:49 The Importance of Social Support 18:43 Grief and Loss of a Dance Career 20:34 Developing Resilience and Coping Strategies 24:57 The Importance of Values 27:52 Shifting the Dance Culture 29:25 Coping with Career Shifts 33:22 Positive Coaching Approach 35:55 Developing Mental Skills 36:51 Applying Mental Skills to Life 37:24 The Importance of Self-Awareness in Dance 38:25 Mindset: Controlling the Controllables Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Pierotti: https://chelseapierotti.com https://instagram.com/dr.chelsea.pierotti  #Dancers #Dance #Injuries #Transitions #Grief #MentalSkills  #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.


    Chapters ➡


    00:00 Introduction

    00:54 Introducing Dr. Chelsea Pierotti

    01:13 Coping with Injuries

    03:38 Coping Mechanisms

    06:34 The Influence of Childhood Experiences

    08:29 Developing Resilience

    09:48 Transitioning from Dance

    12:11 The Role of Pain

    13:09 Challenges Faced by Hypermobile Dancers

    13:23 Supporting Dancers through Challenges

    17:49 The Importance of Social Support

    18:43 Grief and Loss of a Dance Career

    20:34 Developing Resilience and Coping Strategies

    24:57 The Importance of Values

    27:52 Shifting the Dance Culture

    29:25 Coping with Career Shifts

    33:22 Positive Coaching Approach

    35:55 Developing Mental Skills

    36:51 Applying Mental Skills to Life

    37:24 The Importance of Self-Awareness in Dance

    38:25 Mindset: Controlling the Controllables


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓

    Learn about Dr. Pierotti:


    https://chelseapierotti.com


    https://instagram.com/dr.chelsea.pierotti 


    #Dancers #Dance #Injuries #Transitions #Grief #MentalSkills 

    #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2629 no     95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD https://share.transistor.fm/s/644b1ed2 Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Learn more about Dr. Tick https://heathertickmd.com/ https://www.facebook.com/heathertickmd/ Heather Tick - YouTube Buy Dr. Tick’s book https://tinyurl.com/3na9zchp Fibromyalgia and other pain conditions https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/ Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author) https://www.sciencedirect.com/science/article/pii/S1550830718300223 Medical errors https://pubmed.ncbi.nlm.nih.gov/28186008/ https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical Sham acupuncture https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full Acupuncture in the emergency department https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/ Risk of stroke after chiropractic manipulation https://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltext WUSTL program developed by Shirley Sahrmann, PT, PhD https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/ Mast cells: Versatile gatekeepers of pain https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546 Carla Stecco, MD Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 Apr 2024 11:06:00 -0000 95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD full 95 Dr. Linda Bluestein <p>Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Integrative medicine takes a holistic approach to health, focusing on achieving overall well-being rather than just managing symptoms.</li><li>Pain management should involve a comprehensive care plan that includes movement, education, nutrition, sleep, psychosocial support, modalities, medications, and supplements.</li><li>Understanding pain neuroscience can help patients reframe their perception of pain and explore non-pharmacological strategies for pain relief.</li><li>Nutrition plays a crucial role in reducing chronic pain and inflammation, and a whole-food, plant-based diet is recommended.</li><li>Modalities such as acupuncture and manual therapies can provide effective pain relief and should be considered as part of a comprehensive pain management plan. Developing healthy movement habits is crucial for optimal movement.</li><li>Heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi can provide pain relief.</li><li>Managing diet and reducing mast cell activation can help alleviate stress response.</li><li>Laser therapy, ozone injections, and shockwave therapy may be effective for pain management.</li><li>Caution is needed when considering the use of medications and supplements.</li><li>Interventional pain management should be approached with strict criteria and careful consideration.</li><li>Regenerative medicine shows promise but requires further research and careful selection of providers.</li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction to Dr. Heather Tick</p><p>02:05 Understanding Integrative Medicine</p><p>07:41 Redefining Pain Management</p><p>10:31 The Importance of Education in Pain Care</p><p>12:58 The Role of Nutrition in Pain Relief</p><p>21:53 Exploring Different Modalities for Pain Relief</p><p>53:56 Impact of Habits on Movement</p><p>55:11 Benefits of Tai Chi</p><p>56:34 Connective Tissue and Movement</p><p>57:37 Role of Mast Cells in Stress Response</p><p>58:10 Effectiveness of Laser Therapy</p><p>01:00:35 Usefulness of Ozone Injections</p><p>01:02:03 Effectiveness of Shockwave Therapy</p><p>01:03:13 Overprescribed and Underutilized Medications</p><p>01:03:44 Importance of Stopping Medications</p><p>01:04:32 Impact of Proton Pump Inhibitors</p><p>01:05:37 Role of Gut in Producing Neurotransmitters</p><p>01:06:34 Importance of B Vitamins and Coenzyme Q10</p><p>01:17:26 Evaluation of Interventional Pain Management</p><p>01:19:16 Risks of Steroid Injections</p><p>01:21:26 Appropriate Use of Regenerative Medicine</p><p>01:25:30 Determining the Expertise of Medical Professionals</p><p>01:31:28 Differentiating Flares from New Problems</p><p>01:33:48 Challenges of IV Infusions and Regenerative Medicine</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>Learn more about Dr. Tick</p><p><br></p><p><a href="https://heathertickmd.com/">https://heathertickmd.com/</a></p><p><a href="https://www.facebook.com/heathertickmd/">https://www.facebook.com/heathertickmd/</a></p><p><a href="https://www.youtube.com/channel/UCdAS3cKuUec4OUeHdoaxfRA">Heather Tick - YouTube</a></p><p><br></p><p>Buy Dr. Tick’s book</p><p><br></p><p><a href="https://tinyurl.com/3na9zchp">https://tinyurl.com/3na9zchp</a></p><p><br></p><p>Fibromyalgia and other pain conditions</p><p><br></p><p><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/</a></p><p><br></p><p><b>Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author)</b></p><p><a href="https://www.sciencedirect.com/science/article/pii/S1550830718300223">https://www.sciencedirect.com/science/article/pii/S1550830718300223</a></p><p><br></p><p>Medical errors</p><p><br></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/28186008/">https://pubmed.ncbi.nlm.nih.gov/28186008/</a></p><p><a href="https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf">https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf</a></p><p><br></p><p><a href="https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical">https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical</a></p><p><br></p><p>Sham acupuncture</p><p><br></p><p><a href="https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full">https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full</a></p><p><br></p><p>Acupuncture in the emergency department</p><p><br></p><p><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/</a></p><p><br></p><p>Risk of stroke after chiropractic manipulation</p><p><br></p><p><a href="https://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltext">https://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltext</a></p><p><br></p><p>WUSTL program developed by Shirley Sahrmann, PT, PhD</p><p><br></p><p><a href="https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/">https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/</a></p><p><br></p><p>Mast cells:  Versatile gatekeepers of pain</p><p><br></p><p><a href="https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546">https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546</a></p><p><br></p><p>Carla Stecco, MD</p><p><br></p><p><a href="https:/..."></a></p> Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Learn more about Dr. Tick https://heathertickmd.com/ https://www.facebook.com/heathertickmd/ Heather Tick - YouTube Buy Dr. Tick’s book https://tinyurl.com/3na9zchp Fibromyalgia and other pain conditions https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/ Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author) https://www.sciencedirect.com/science/article/pii/S1550830718300223 Medical errors https://pubmed.ncbi.nlm.nih.gov/28186008/ https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical Sham acupuncture https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full Acupuncture in the emergency department https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/ Risk of stroke after chiropractic manipulation https://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltext WUSTL program developed by Shirley Sahrmann, PT, PhD https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/ Mast cells: Versatile gatekeepers of pain https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546 Carla Stecco, MD Learn more about your ad choices. Visit megaphone.fm/adchoices Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources: 


    Learn more about Dr. Tick


    https://heathertickmd.com/

    https://www.facebook.com/heathertickmd/

    Heather Tick - YouTube


    Buy Dr. Tick’s book


    https://tinyurl.com/3na9zchp


    Fibromyalgia and other pain conditions


    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/


    Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author)

    https://www.sciencedirect.com/science/article/pii/S1550830718300223


    Medical errors


    https://pubmed.ncbi.nlm.nih.gov/28186008/

    https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf


    https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical


    Sham acupuncture


    https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full


    Acupuncture in the emergency department


    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/


    Risk of stroke after chiropractic manipulation


    https://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltext


    WUSTL program developed by Shirley Sahrmann, PT, PhD


    https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/


    Mast cells: Versatile gatekeepers of pain


    https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546


    Carla Stecco, MD

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     6100 no     94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson https://share.transistor.fm/s/fe759305 In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility. Watching this episode on YouTube is recommended since there are some graphics used.  Takeaways Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals. Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms. The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns. Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility. Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support. Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits. Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers. Chapters ➡ 00:00 Introduction 01:22 Background and Interest in Hypermobility 11:56 Neurological Interest and Stroke Recovery 16:23 Traditional Physical Therapy Approaches 25:24 Importance of Bracing and Supports 39:18 Feet and Ankle Support 40:28 Pelvis Support 43:32 Neck Braces 51:46 Dispensing DME and Bracing 56:56 Carrying Products in the Clinic 01:02:59 Final Thoughts and Resources Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability Bendy Bodies's Amazon Page Eclipse Cervical Collar - Thuasne USA https://www.ehlers-danlos.com/echo/ Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge https://www.tamingthezebra.org/ Hypermobility/Ehlers-Danlos Syndrome Educational Handouts #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast  #BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 04 Apr 2024 14:08:00 -0000 94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson full 94 Dr. Linda Bluestein <p>In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints.  She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility.  Watching this episode on YouTube is recommended since there are some graphics used.  </p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.</li><li>Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.</li><li>The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.</li><li>Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.</li><li>Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.</li><li>Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.</li><li>Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.</li></ul><p>Chapters ➡</p><p><br></p><p>00:00 Introduction</p><p>01:22 Background and Interest in Hypermobility</p><p>11:56 Neurological Interest and Stroke Recovery</p><p>16:23 Traditional Physical Therapy Approaches</p><p>25:24 Importance of Bracing and Supports</p><p>39:18 Feet and Ankle Support</p><p>40:28 Pelvis Support</p><p>43:32 Neck Braces</p><p>51:46 Dispensing DME and Bracing</p><p>56:56 Carrying Products in the Clinic</p><p>01:02:59 Final Thoughts and Resources</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p><a href="https://chalelapti.com/">Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability</a></p><p><br></p><p><a href="https://www.amazon.com/shop/hypermobilitymd">Bendy Bodies's Amazon Page</a></p><p><br></p><p><a href="https://www.thuasneusa.com/product/eclipse-cervical-collar/">Eclipse Cervical Collar - Thuasne USA</a></p><p><br></p><p><a href="https://www.ehlers-danlos.com/echo/">https://www.ehlers-danlos.com/echo/</a></p><p><br></p><p><a href="https://www.medbridge.com/instructors/patricia-stott-physical-therapy/">Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge</a></p><p><br></p><p><a href="https://www.tamingthezebra.org/">https://www.tamingthezebra.org/</a></p><p><br></p><p><a href="https://webspace.clarkson.edu/~lrussek/research.html">Hypermobility/Ehlers-Danlos Syndrome Educational Handouts</a></p><p><br></p><p>#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast </p><p>#BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind </p> In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility. Watching this episode on YouTube is recommended since there are some graphics used.  Takeaways Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals. Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms. The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns. Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility. Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support. Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits. Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers. Chapters ➡ 00:00 Introduction 01:22 Background and Interest in Hypermobility 11:56 Neurological Interest and Stroke Recovery 16:23 Traditional Physical Therapy Approaches 25:24 Importance of Bracing and Supports 39:18 Feet and Ankle Support 40:28 Pelvis Support 43:32 Neck Braces 51:46 Dispensing DME and Bracing 56:56 Carrying Products in the Clinic 01:02:59 Final Thoughts and Resources Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability Bendy Bodies's Amazon Page Eclipse Cervical Collar - Thuasne USA https://www.ehlers-danlos.com/echo/ Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge https://www.tamingthezebra.org/ Hypermobility/Ehlers-Danlos Syndrome Educational Handouts #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast  #BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind  Learn more about your ad choices. Visit megaphone.fm/adchoices In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility. Watching this episode on YouTube is recommended since there are some graphics used. 


    Takeaways


    • Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.
    • Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.
    • The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.
    • Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.
    • Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.
    • Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.
    • Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.

    Chapters ➡


    00:00 Introduction

    01:22 Background and Interest in Hypermobility

    11:56 Neurological Interest and Stroke Recovery

    16:23 Traditional Physical Therapy Approaches

    25:24 Importance of Bracing and Supports

    39:18 Feet and Ankle Support

    40:28 Pelvis Support

    43:32 Neck Braces

    51:46 Dispensing DME and Bracing

    56:56 Carrying Products in the Clinic

    01:02:59 Final Thoughts and Resources


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. 

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.    


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources: 


    Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability


    Bendy Bodies's Amazon Page


    Eclipse Cervical Collar - Thuasne USA


    https://www.ehlers-danlos.com/echo/


    Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge


    https://www.tamingthezebra.org/


    Hypermobility/Ehlers-Danlos Syndrome Educational Handouts


    #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast 

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4017 no     93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin https://share.transistor.fm/s/72b6dbff This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more.  Takeaways The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS. The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation. A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations. Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals. Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs. Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS. Chapters ➡ 00:00 Introduction and Background 01:58 Motivation for Writing the Book 03:28 Challenges in Managing EDS and HSD 06:08 Different Types of Hypermobility and Connective Tissue Disorders 07:35 Approaching Physical Therapy for EDS and HSD 09:21 Primary Treatment Approach and Identifying Key Issues 21:04 Approaching Physical Therapy with Overlapping Problems 22:48 Non-Linear Path of Physical Therapy 31:01 Modifying Movement for Gentle Exercise 31:21 Addressing Deconditioning and Weakness 35:13 Neural Rehabilitation and Muscle Firing 36:09 Steps to Successful Strengthening 40:18 Expanding the Toolkit for Physical Therapy 43:13 Approaching Stabilization and Alignment 56:32 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Virtual book event sign up https://www.tamingthezebra.org http://www.elevationwellness.co/ www.goodhealthphysicaltherapy.com/clinic-staff/ www.medbridge.com/heather-purdin-physical-therapy https://www.olagrimsby.com/courses-page/ https://www.naiomt.com https://feldenkrais.com https://counterstrain.com https://frequencyspecific.com https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/ #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 07 Mar 2024 10:00:00 -0000 93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin full 93 Dr. Linda Bluestein <p>This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. </p><p><br></p><p>Takeaways</p><p><br></p><ul><li>The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.</li><li>The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.</li><li>A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.</li><li>Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.</li><li>Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.</li><li>Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.</li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction and Background</p><p>01:58 Motivation for Writing the Book</p><p>03:28 Challenges in Managing EDS and HSD</p><p>06:08 Different Types of Hypermobility and Connective Tissue Disorders</p><p>07:35 Approaching Physical Therapy for EDS and HSD</p><p>09:21 Primary Treatment Approach and Identifying Key Issues</p><p>21:04 Approaching Physical Therapy with Overlapping Problems</p><p>22:48 Non-Linear Path of Physical Therapy</p><p>31:01 Modifying Movement for Gentle Exercise</p><p>31:21 Addressing Deconditioning and Weakness</p><p>35:13 Neural Rehabilitation and Muscle Firing</p><p>36:09 Steps to Successful Strengthening</p><p>40:18 Expanding the Toolkit for Physical Therapy</p><p>43:13 Approaching Stabilization and Alignment</p><p>56:32 Hypermobility Hacks</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>Virtual book event <a href="https://www.eventbrite.com/e/virtual-author-book-event-taming-the-zebravolume-1-systemic-involvement-tickets-815892324907">sign up</a></p><p><br></p><p><a href="https://www.tamingthezebra.org/">https://www.tamingthezebra.org</a></p><p><br></p><p><a href="http://www.elevationwellness.co/">http://www.elevationwellness.co/</a></p><p><br></p><p><a href="http://www.goodhealthphysicaltherapy.com/clinic-staff/">www.goodhealthphysicaltherapy.com/clinic-staff/</a></p><p><br></p><p><a href="http://www.medbridge.com/heather-purdin-physical-therapy">www.medbridge.com/heather-purdin-physical-therapy</a></p><p><a href="https://www.olagrimsby.com/courses-page/">https://www.olagrimsby.com/courses-page/</a></p><p><a href="https://www.naiomt.com/">https://www.naiomt.com</a></p><p><a href="https://feldenkrais.com/">https://feldenkrais.com</a></p><p><a href="https://counterstrain.com/">https://counterstrain.com</a></p><p><a href="https://frequencyspecific.com/">https://frequencyspecific.com</a></p><p><a href="https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/">https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/</a></p><p><br></p><p>#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra</p><p>#BendyBodiesPodcast #BendyBuddy #HypermobilityMD </p> This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more.  Takeaways The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS. The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation. A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations. Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals. Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs. Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS. Chapters ➡ 00:00 Introduction and Background 01:58 Motivation for Writing the Book 03:28 Challenges in Managing EDS and HSD 06:08 Different Types of Hypermobility and Connective Tissue Disorders 07:35 Approaching Physical Therapy for EDS and HSD 09:21 Primary Treatment Approach and Identifying Key Issues 21:04 Approaching Physical Therapy with Overlapping Problems 22:48 Non-Linear Path of Physical Therapy 31:01 Modifying Movement for Gentle Exercise 31:21 Addressing Deconditioning and Weakness 35:13 Neural Rehabilitation and Muscle Firing 36:09 Steps to Successful Strengthening 40:18 Expanding the Toolkit for Physical Therapy 43:13 Approaching Stabilization and Alignment 56:32 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Virtual book event sign up https://www.tamingthezebra.org http://www.elevationwellness.co/ www.goodhealthphysicaltherapy.com/clinic-staff/ www.medbridge.com/heather-purdin-physical-therapy https://www.olagrimsby.com/courses-page/ https://www.naiomt.com https://feldenkrais.com https://counterstrain.com https://frequencyspecific.com https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/ #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. 


    Takeaways


    • The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.
    • The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.
    • A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.
    • Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.
    • Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.
    • Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.


    Chapters ➡


    00:00 Introduction and Background

    01:58 Motivation for Writing the Book

    03:28 Challenges in Managing EDS and HSD

    06:08 Different Types of Hypermobility and Connective Tissue Disorders

    07:35 Approaching Physical Therapy for EDS and HSD

    09:21 Primary Treatment Approach and Identifying Key Issues

    21:04 Approaching Physical Therapy with Overlapping Problems

    22:48 Non-Linear Path of Physical Therapy

    31:01 Modifying Movement for Gentle Exercise

    31:21 Addressing Deconditioning and Weakness

    35:13 Neural Rehabilitation and Muscle Firing

    36:09 Steps to Successful Strengthening

    40:18 Expanding the Toolkit for Physical Therapy

    43:13 Approaching Stabilization and Alignment

    56:32 Hypermobility Hacks


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:  


    Virtual book event sign up


    https://www.tamingthezebra.org


    http://www.elevationwellness.co/


    www.goodhealthphysicaltherapy.com/clinic-staff/


    www.medbridge.com/heather-purdin-physical-therapy

    https://www.olagrimsby.com/courses-page/

    https://www.naiomt.com

    https://feldenkrais.com

    https://counterstrain.com

    https://frequencyspecific.com

    https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/


    #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3652 no     92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT https://share.transistor.fm/s/49341117 In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals. Takeaways Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function. Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment. Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress. Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy. Open communication with the physical therapist and realistic expectations are essential for success. Chapters ➡ 00:00 Introduction to Dr. Lillian Holm 01:15 What can physical therapy do for people with symptomatic joint hypermobility? 04:19 Reasons why physical therapy may not lead to expected outcomes 09:09 How to find the best possible physical therapist for EDS and HSD 11:58 Misconceptions about physical therapy for joint hypermobility 21:25 Approach for people who don't like to exercise 25:41 Resetting the boom and bust cycle 35:23 Metrics for measuring success in physical therapy 50:18 Progress and Setbacks 52:47 Balancing Stretching with Strengthening 56:22 Starting to Walk Again 58:12 Physical Therapy for Scoliosis 01:01:04 Resources and Information 01:02:23 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Learn more about guest, Dr. Lilian Holm: https://www.lilianholm.com/ https://www.instagram.com/hypermobilitydoctor/ https://www.facebook.com/HypermobilityD Read her guest blog post for the Hypermobility MD website: https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you #RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 29 Feb 2024 10:00:00 -0000 92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT full 92 Dr. Linda Bluestein <p>In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.</li><li>Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.</li><li>Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.</li><li>Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.</li><li>Open communication with the physical therapist and realistic expectations are essential for success.</li></ul><p><br></p><p>Chapters ➡</p><p><br></p><p>00:00 Introduction to Dr. Lillian Holm</p><p>01:15 What can physical therapy do for people with symptomatic joint hypermobility?</p><p>04:19 Reasons why physical therapy may not lead to expected outcomes</p><p>09:09 How to find the best possible physical therapist for EDS and HSD</p><p>11:58 Misconceptions about physical therapy for joint hypermobility</p><p>21:25 Approach for people who don't like to exercise</p><p>25:41 Resetting the boom and bust cycle</p><p>35:23 Metrics for measuring success in physical therapy</p><p>50:18 Progress and Setbacks</p><p>52:47 Balancing Stretching with Strengthening</p><p>56:22 Starting to Walk Again</p><p>58:12 Physical Therapy for Scoliosis</p><p>01:01:04 Resources and Information</p><p>01:02:23 Hypermobility Hacks</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>Learn more about guest, Dr. Lilian Holm:</p><p><br></p><p><a href="https://www.lilianholm.com/">https://www.lilianholm.com/</a></p><p><a href="https://www.instagram.com/hypermobilitydoctor/">https://www.instagram.com/hypermobilitydoctor/</a></p><p><a href="https://www.facebook.com/HypermobilityD">https://www.facebook.com/HypermobilityD</a></p><p><br></p><p>Read her guest blog post for the Hypermobility MD website:</p><p><br></p><p><a href="https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you">https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you</a></p><p><br></p><p>#RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast</p><p>#BendyBodiesPodcast #BendyBuddy #HypermobilityMD </p> In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals. Takeaways Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function. Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment. Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress. Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy. Open communication with the physical therapist and realistic expectations are essential for success. Chapters ➡ 00:00 Introduction to Dr. Lillian Holm 01:15 What can physical therapy do for people with symptomatic joint hypermobility? 04:19 Reasons why physical therapy may not lead to expected outcomes 09:09 How to find the best possible physical therapist for EDS and HSD 11:58 Misconceptions about physical therapy for joint hypermobility 21:25 Approach for people who don't like to exercise 25:41 Resetting the boom and bust cycle 35:23 Metrics for measuring success in physical therapy 50:18 Progress and Setbacks 52:47 Balancing Stretching with Strengthening 56:22 Starting to Walk Again 58:12 Physical Therapy for Scoliosis 01:01:04 Resources and Information 01:02:23 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Learn more about guest, Dr. Lilian Holm: https://www.lilianholm.com/ https://www.instagram.com/hypermobilitydoctor/ https://www.facebook.com/HypermobilityD Read her guest blog post for the Hypermobility MD website: https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you #RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.


    Takeaways


    • Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.
    • Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.
    • Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.
    • Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.
    • Open communication with the physical therapist and realistic expectations are essential for success.


    Chapters ➡


    00:00 Introduction to Dr. Lillian Holm

    01:15 What can physical therapy do for people with symptomatic joint hypermobility?

    04:19 Reasons why physical therapy may not lead to expected outcomes

    09:09 How to find the best possible physical therapist for EDS and HSD

    11:58 Misconceptions about physical therapy for joint hypermobility

    21:25 Approach for people who don't like to exercise

    25:41 Resetting the boom and bust cycle

    35:23 Metrics for measuring success in physical therapy

    50:18 Progress and Setbacks

    52:47 Balancing Stretching with Strengthening

    56:22 Starting to Walk Again

    58:12 Physical Therapy for Scoliosis

    01:01:04 Resources and Information

    01:02:23 Hypermobility Hacks


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:  


    Learn more about guest, Dr. Lilian Holm:


    https://www.lilianholm.com/

    https://www.instagram.com/hypermobilitydoctor/

    https://www.facebook.com/HypermobilityD


    Read her guest blog post for the Hypermobility MD website:


    https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you


    #RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4083 no     91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach https://share.transistor.fm/s/0524c6f6 In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more.  Takeaways Hand pain, weakness, and injuries are common in individuals with joint hypermobility. Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis. TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip. Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed. Ring splints can provide support and stability for hypermobile joints in the hands. Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options.  Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed. Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases. Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation. Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Chapters 00:00 Introduction and Overview 01:38 Difference between Occupational and Physical Therapy 04:44 Common Reasons for Hand Pain in Connective Tissue Disorders 09:53 Approach to Hypermobility in Hands 12:46 Strengthening Hands with TheraPutty 20:55 Strengthening Hands without Overdoing It 21:27 Reasons Traditional Therapies May Not Work for Hand Pain 24:08 Low Profile Hand Support Options 28:23 Ring Splints and Insurance Coverage 38:34 Ring Splints and Plastic Splints 40:33 Hand Exercises for Different Age Groups 42:33 Avoiding Strain and Hyperextension 45:21 Tips for Traveling with Hand Problems 47:51 Challenges of the Medical System for Chronic Pain 51:22 Hand Pain with Writing 53:52 Hand Pain and Numbness in Sleep 56:16 Thumb Pain and De Quervain's Tendonitis 59:17 Cubital Tunnel Syndrome 01:02:19 Torn Triangular Fibrocartilage Complex (TFCC) 01:06:14 Decuervain's Tendonitis 01:09:17 TFCC Tear 01:13:32 Trigger Finger 01:17:31 Differentiating Trigger Finger from Subluxation 01:18:38 Pulley Injuries in Rock Climbers 01:19:25 Hypermobility Misdiagnosis 01:20:46 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Learn more about guest, Corinne McLees here: https://www.handcoachcorinne.com/ Check out the items mentioned in episode 91 here: https://amzn.to/49FkaGY Check out the Bendy Bodies Amazon Shop here: https://www.amazon.com/shop/hypermobilitymd Links to other products: https://www.silverringsplint.com/ https://www.evabellejewelry.com/ https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne #HandPain #HandProblems #HandWeakness #WristPain #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 Feb 2024 10:00:00 -0000 91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach full 91 Dr. Linda Bluestein <p>In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more. </p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Hand pain, weakness, and injuries are common in individuals with joint hypermobility.</li><li>Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.</li><li>TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.</li><li>Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.</li><li>Ring splints can provide support and stability for hypermobile joints in the hands.</li><li>Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. </li><li>Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.</li><li>Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.</li><li>Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.</li><li>Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.</li></ul><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Chapters</p><p><br></p><p>00:00 Introduction and Overview</p><p>01:38 Difference between Occupational and Physical Therapy</p><p>04:44 Common Reasons for Hand Pain in Connective Tissue Disorders</p><p>09:53 Approach to Hypermobility in Hands</p><p>12:46 Strengthening Hands with TheraPutty</p><p>20:55 Strengthening Hands without Overdoing It</p><p>21:27 Reasons Traditional Therapies May Not Work for Hand Pain</p><p>24:08 Low Profile Hand Support Options</p><p>28:23 Ring Splints and Insurance Coverage</p><p>38:34 Ring Splints and Plastic Splints</p><p>40:33 Hand Exercises for Different Age Groups</p><p>42:33 Avoiding Strain and Hyperextension</p><p>45:21 Tips for Traveling with Hand Problems</p><p>47:51 Challenges of the Medical System for Chronic Pain</p><p>51:22 Hand Pain with Writing</p><p>53:52 Hand Pain and Numbness in Sleep</p><p>56:16 Thumb Pain and De Quervain's Tendonitis</p><p>59:17 Cubital Tunnel Syndrome</p><p>01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)</p><p>01:06:14 Decuervain's Tendonitis</p><p>01:09:17 TFCC Tear</p><p>01:13:32 Trigger Finger</p><p>01:17:31 Differentiating Trigger Finger from Subluxation</p><p>01:18:38 Pulley Injuries in Rock Climbers</p><p>01:19:25 Hypermobility Misdiagnosis</p><p>01:20:46 Hypermobility Hacks</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>Learn more about guest, Corinne McLees here:</p><p><br></p><p><a href="https://www.handcoachcorinne.com/">https://www.handcoachcorinne.com/</a></p><p><br></p><p>Check out the items mentioned in episode 91 here:</p><p><br></p><p><a href="https://amzn.to/49FkaGY">https://amzn.to/49FkaGY</a></p><p><br></p><p>Check out the Bendy Bodies Amazon Shop here:</p><p><a href="https://www.amazon.com/shop/hypermobilitymd">https://www.amazon.com/shop/hypermobilitymd</a></p><p><br></p><p>Links to other products:</p><p><br></p><p><a href="https://www.silverringsplint.com/">https://www.silverringsplint.com/</a></p><p><br></p><p><a href="https://www.evabellejewelry.com/">https://www.evabellejewelry.com/</a></p><p><br></p><p><a href="https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&amp;utm_medium=Social&amp;utm_campaign=Corinne">https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&amp;utm_medium=Social&amp;utm_campaign=Corinne</a></p><p><br></p><p>#HandPain #HandProblems #HandWeakness #WristPain</p><p>#BendyBodiesPodcast #BendyBuddy #HypermobilityMD </p> In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more.  Takeaways Hand pain, weakness, and injuries are common in individuals with joint hypermobility. Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis. TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip. Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed. Ring splints can provide support and stability for hypermobile joints in the hands. Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options.  Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed. Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases. Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation. Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Chapters 00:00 Introduction and Overview 01:38 Difference between Occupational and Physical Therapy 04:44 Common Reasons for Hand Pain in Connective Tissue Disorders 09:53 Approach to Hypermobility in Hands 12:46 Strengthening Hands with TheraPutty 20:55 Strengthening Hands without Overdoing It 21:27 Reasons Traditional Therapies May Not Work for Hand Pain 24:08 Low Profile Hand Support Options 28:23 Ring Splints and Insurance Coverage 38:34 Ring Splints and Plastic Splints 40:33 Hand Exercises for Different Age Groups 42:33 Avoiding Strain and Hyperextension 45:21 Tips for Traveling with Hand Problems 47:51 Challenges of the Medical System for Chronic Pain 51:22 Hand Pain with Writing 53:52 Hand Pain and Numbness in Sleep 56:16 Thumb Pain and De Quervain's Tendonitis 59:17 Cubital Tunnel Syndrome 01:02:19 Torn Triangular Fibrocartilage Complex (TFCC) 01:06:14 Decuervain's Tendonitis 01:09:17 TFCC Tear 01:13:32 Trigger Finger 01:17:31 Differentiating Trigger Finger from Subluxation 01:18:38 Pulley Injuries in Rock Climbers 01:19:25 Hypermobility Misdiagnosis 01:20:46 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   Learn more about guest, Corinne McLees here: https://www.handcoachcorinne.com/ Check out the items mentioned in episode 91 here: https://amzn.to/49FkaGY Check out the Bendy Bodies Amazon Shop here: https://www.amazon.com/shop/hypermobilitymd Links to other products: https://www.silverringsplint.com/ https://www.evabellejewelry.com/ https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne #HandPain #HandProblems #HandWeakness #WristPain #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more. 


    Takeaways


    • Hand pain, weakness, and injuries are common in individuals with joint hypermobility.
    • Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.
    • TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.
    • Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.
    • Ring splints can provide support and stability for hypermobile joints in the hands.
    • Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. 
    • Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.
    • Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.
    • Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.
    • Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Chapters


    00:00 Introduction and Overview

    01:38 Difference between Occupational and Physical Therapy

    04:44 Common Reasons for Hand Pain in Connective Tissue Disorders

    09:53 Approach to Hypermobility in Hands

    12:46 Strengthening Hands with TheraPutty

    20:55 Strengthening Hands without Overdoing It

    21:27 Reasons Traditional Therapies May Not Work for Hand Pain

    24:08 Low Profile Hand Support Options

    28:23 Ring Splints and Insurance Coverage

    38:34 Ring Splints and Plastic Splints

    40:33 Hand Exercises for Different Age Groups

    42:33 Avoiding Strain and Hyperextension

    45:21 Tips for Traveling with Hand Problems

    47:51 Challenges of the Medical System for Chronic Pain

    51:22 Hand Pain with Writing

    53:52 Hand Pain and Numbness in Sleep

    56:16 Thumb Pain and De Quervain's Tendonitis

    59:17 Cubital Tunnel Syndrome

    01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)

    01:06:14 Decuervain's Tendonitis

    01:09:17 TFCC Tear

    01:13:32 Trigger Finger

    01:17:31 Differentiating Trigger Finger from Subluxation

    01:18:38 Pulley Injuries in Rock Climbers

    01:19:25 Hypermobility Misdiagnosis

    01:20:46 Hypermobility Hacks


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:  


    Learn more about guest, Corinne McLees here:


    https://www.handcoachcorinne.com/


    Check out the items mentioned in episode 91 here:


    https://amzn.to/49FkaGY


    Check out the Bendy Bodies Amazon Shop here:

    https://www.amazon.com/shop/hypermobilitymd


    Links to other products:


    https://www.silverringsplint.com/


    https://www.evabellejewelry.com/


    https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne


    #HandPain #HandProblems #HandWeakness #WristPain

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5100 no     90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD https://share.transistor.fm/s/68197cf6 In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention. Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog. Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog.  Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan. A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients. Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional. Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory. Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function. Chapters 00:00 Introduction of Dr. Ilene Ruhoy 01:57 Defining Brain Fog 04:14 Risk Factors for Brain Fog 09:42 Identifying Contributing Factors 11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome 14:09 Cognitive Dysfunction and Craniocervical Instability 18:18 Cognitive Dysfunction and CSF Leak 22:59 Cognitive Dysfunction and Dysautonomia 25:25 Cognitive Dysfunction and Upper Cervical Instability 30:12 Cognitive Dysfunction and CSF Leak 38:11 Applying Knowledge in Clinical Practice 39:04 The Importance of Making a Meaningful Difference 40:31 The Role of Nutrition in Cognitive Function 42:38 The Impact of Food Choices on Inflammation 43:44 Avoiding Processed Foods and Sugar 44:38 The Role of Complex Carbohydrates and Dairy 45:28 Increasing Vegetable Consumption 46:44 Improving Lifestyle Factors 47:09 Where to Find Dr. Ilene Ruhoy Online Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/ https://patreon.com/unraveledpod https://instagram.com/ileneruhoymdphd/ https://twitter.com/RuhoyMD https://tiktok.com/ileneruhoymdphd #BrainFog #BrainFogAwareness #BrainHealth #FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness #MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 15 Feb 2024 10:00:00 -0000 90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD full 90 Dr. Linda Bluestein <p>In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients. </p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.</li><li>Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.</li><li>Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. </li><li>Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.</li><li>A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.</li><li>Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.</li><li>Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.</li><li>Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function.</li></ul><p><br></p><p>Chapters</p><p><br></p><p>00:00 Introduction of Dr. Ilene Ruhoy</p><p>01:57 Defining Brain Fog</p><p>04:14 Risk Factors for Brain Fog</p><p>09:42 Identifying Contributing Factors</p><p>11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome</p><p>14:09 Cognitive Dysfunction and Craniocervical Instability</p><p>18:18 Cognitive Dysfunction and CSF Leak</p><p>22:59 Cognitive Dysfunction and Dysautonomia</p><p>25:25 Cognitive Dysfunction and Upper Cervical Instability</p><p>30:12 Cognitive Dysfunction and CSF Leak</p><p>38:11 Applying Knowledge in Clinical Practice</p><p>39:04 The Importance of Making a Meaningful Difference</p><p>40:31 The Role of Nutrition in Cognitive Function</p><p>42:38 The Impact of Food Choices on Inflammation</p><p>43:44 Avoiding Processed Foods and Sugar</p><p>44:38 The Role of Complex Carbohydrates and Dairy</p><p>45:28 Increasing Vegetable Consumption</p><p>46:44 Improving Lifestyle Factors</p><p>47:09 Where to Find Dr. Ilene Ruhoy Online</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p><a href="https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/">https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/</a></p><p><a href="https://patreon.com/unraveledpod">https://patreon.com/unraveledpod</a></p><p><a href="https://instagram.com/ileneruhoymdphd/">https://instagram.com/ileneruhoymdphd/</a></p><p><a href="https://twitter.com/RuhoyMD">https://twitter.com/RuhoyMD</a></p><p><a href="https://tiktok.com/ileneruhoymdphd">https://tiktok.com/ileneruhoymdphd</a></p><p><br></p><p>#BrainFog #BrainFogAwareness #BrainHealth</p><p>#FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness</p><p>#MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior</p><p>#BendyBodiesPodcast #BendyBuddy #HypermobilityMD </p> In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention. Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog. Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog.  Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan. A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients. Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional. Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory. Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function. Chapters 00:00 Introduction of Dr. Ilene Ruhoy 01:57 Defining Brain Fog 04:14 Risk Factors for Brain Fog 09:42 Identifying Contributing Factors 11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome 14:09 Cognitive Dysfunction and Craniocervical Instability 18:18 Cognitive Dysfunction and CSF Leak 22:59 Cognitive Dysfunction and Dysautonomia 25:25 Cognitive Dysfunction and Upper Cervical Instability 30:12 Cognitive Dysfunction and CSF Leak 38:11 Applying Knowledge in Clinical Practice 39:04 The Importance of Making a Meaningful Difference 40:31 The Role of Nutrition in Cognitive Function 42:38 The Impact of Food Choices on Inflammation 43:44 Avoiding Processed Foods and Sugar 44:38 The Role of Complex Carbohydrates and Dairy 45:28 Increasing Vegetable Consumption 46:44 Improving Lifestyle Factors 47:09 Where to Find Dr. Ilene Ruhoy Online Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/ https://patreon.com/unraveledpod https://instagram.com/ileneruhoymdphd/ https://twitter.com/RuhoyMD https://tiktok.com/ileneruhoymdphd #BrainFog #BrainFogAwareness #BrainHealth #FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness #MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients. 


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways


    • Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.
    • Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.
    • Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. 
    • Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.
    • A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.
    • Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.
    • Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.
    • Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function.


    Chapters


    00:00 Introduction of Dr. Ilene Ruhoy

    01:57 Defining Brain Fog

    04:14 Risk Factors for Brain Fog

    09:42 Identifying Contributing Factors

    11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome

    14:09 Cognitive Dysfunction and Craniocervical Instability

    18:18 Cognitive Dysfunction and CSF Leak

    22:59 Cognitive Dysfunction and Dysautonomia

    25:25 Cognitive Dysfunction and Upper Cervical Instability

    30:12 Cognitive Dysfunction and CSF Leak

    38:11 Applying Knowledge in Clinical Practice

    39:04 The Importance of Making a Meaningful Difference

    40:31 The Role of Nutrition in Cognitive Function

    42:38 The Impact of Food Choices on Inflammation

    43:44 Avoiding Processed Foods and Sugar

    44:38 The Role of Complex Carbohydrates and Dairy

    45:28 Increasing Vegetable Consumption

    46:44 Improving Lifestyle Factors

    47:09 Where to Find Dr. Ilene Ruhoy Online


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:  


    https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/

    https://patreon.com/unraveledpod

    https://instagram.com/ileneruhoymdphd/

    https://twitter.com/RuhoyMD

    https://tiktok.com/ileneruhoymdphd


    #BrainFog #BrainFogAwareness #BrainHealth

    #FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness

    #MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior

    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3008 no     89. Conquering the Sleep Struggle with Roger Seheult, MD https://share.transistor.fm/s/73b9be3a In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways: Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility. Understanding the circadian rhythm is important for optimizing sleep. Light, especially blue light, can significantly impact sleep quality. The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle. Morning light exposure is important for setting the body's internal clock. The timing of eating can affect sleep quality. Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality. Shifting sleep patterns can be challenging, especially for individuals with chronic illness. Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes. Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea. Sleep medications should be used cautiously due to potential side effects and dependency issues. Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality. Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep. Education on sleep disorders and their relationship with chronic illness should be improved in medical training. Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education. Chapters 00:00 Introduction of Dr. Roger Seheult 03:22 Understanding the Circadian Rhythm 07:02 Impact of Light on Sleep 09:20 The Suprachiasmatic Nucleus and its Role in Sleep 09:49 The Importance of Light for People with Chronic Illness 13:35 The Effect of Blue Light on Sleep 15:28 Ideal Bedtime for Optimal Sleep 17:25 The Impact of Electronics on Sleep 19:26 The Role of Melatonin in Sleep 20:05 The Importance of Morning Light 23:29 The Timing of Eating and its Effect on Sleep 24:00 Challenges of Working from Home and Small Meals 25:20 Sleep Schedule and Chronic Illness 28:57 Falling Asleep While Watching TV 31:49 Sleep Apnea and Chronic Illness 39:05 Sleep Apnea and Temporomandibular Dysfunction 44:09 EDS and Central Sleep Apnea 44:30 Elevating the Head of the Bed 45:23 Alignment Problems and Breathing 47:37 Sleep Medications and Side Effects 1:00:15 Supplements for Sleep 1:02:01 Sleep Watches and Monitoring Devices 1:03:01 Sleep Positions and Joint Instability 1:04:46 Paresthesias and Numbness in Sleep 1:05:11 Pillow Recommendations for Cervical Instability 1:07:35 Waking Up in Pain 1:09:58 Sympathetic Nervous System Activation 1:12:23 Safety of Melatonin 1:14:49 Improving Education on EDS and HSD Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   www.medcram.com https://www.youtube.com/@Medcram https://www.optum.com/care/locations/california.html https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/ https://www.itamar-medical.com/professionals/watchpat-300/ https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6 #BendyBodiesPodcast  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Feb 2024 10:00:00 -0000 89. Conquering the Sleep Struggle with Roger Seheult, MD full 89 Dr. Linda Bluestein <p>In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.</p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Takeaways:</p><p><br></p><p>Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.</p><p>Understanding the circadian rhythm is important for optimizing sleep.</p><p>Light, especially blue light, can significantly impact sleep quality.</p><p>The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.</p><p>Morning light exposure is important for setting the body's internal clock.</p><p>The timing of eating can affect sleep quality.</p><p>Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.</p><p>Shifting sleep patterns can be challenging, especially for individuals with chronic illness.</p><p>Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.</p><p>Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.</p><p>Sleep medications should be used cautiously due to potential side effects and dependency issues.</p><p>Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.</p><p>Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.</p><p>Education on sleep disorders and their relationship with chronic illness should be improved in medical training.</p><p>Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.</p><p><br></p><p>Chapters</p><p><br></p><p>00:00 Introduction of Dr. Roger Seheult</p><p>03:22 Understanding the Circadian Rhythm</p><p>07:02 Impact of Light on Sleep</p><p>09:20 The Suprachiasmatic Nucleus and its Role in Sleep</p><p>09:49 The Importance of Light for People with Chronic Illness</p><p>13:35 The Effect of Blue Light on Sleep</p><p>15:28 Ideal Bedtime for Optimal Sleep</p><p>17:25 The Impact of Electronics on Sleep</p><p>19:26 The Role of Melatonin in Sleep</p><p>20:05 The Importance of Morning Light</p><p>23:29 The Timing of Eating and its Effect on Sleep</p><p>24:00 Challenges of Working from Home and Small Meals</p><p>25:20 Sleep Schedule and Chronic Illness</p><p>28:57 Falling Asleep While Watching TV</p><p>31:49 Sleep Apnea and Chronic Illness</p><p>39:05 Sleep Apnea and Temporomandibular Dysfunction</p><p>44:09 EDS and Central Sleep Apnea</p><p>44:30 Elevating the Head of the Bed</p><p>45:23 Alignment Problems and Breathing</p><p>47:37 Sleep Medications and Side Effects</p><p>1:00:15 Supplements for Sleep</p><p>1:02:01 Sleep Watches and Monitoring Devices</p><p>1:03:01 Sleep Positions and Joint Instability</p><p>1:04:46 Paresthesias and Numbness in Sleep</p><p>1:05:11 Pillow Recommendations for Cervical Instability</p><p>1:07:35 Waking Up in Pain</p><p>1:09:58 Sympathetic Nervous System Activation</p><p>1:12:23 Safety of Melatonin</p><p>1:14:49 Improving Education on EDS and HSD</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p><a href="http://www.medcram.com/">www.medcram.com</a></p><p><a href="https://www.youtube.com/@Medcram">https://www.youtube.com/@Medcram</a></p><p><a href="https://www.optum.com/care/locations/california.html">https://www.optum.com/care/locations/california.html</a></p><p><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/</a></p><p><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/</a></p><p><a href="https://www.itamar-medical.com/professionals/watchpat-300/">https://www.itamar-medical.com/professionals/watchpat-300/</a></p><p><a href="https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6">https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6</a></p><p><br></p><p>#BendyBodiesPodcast </p> In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways: Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility. Understanding the circadian rhythm is important for optimizing sleep. Light, especially blue light, can significantly impact sleep quality. The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle. Morning light exposure is important for setting the body's internal clock. The timing of eating can affect sleep quality. Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality. Shifting sleep patterns can be challenging, especially for individuals with chronic illness. Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes. Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea. Sleep medications should be used cautiously due to potential side effects and dependency issues. Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality. Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep. Education on sleep disorders and their relationship with chronic illness should be improved in medical training. Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education. Chapters 00:00 Introduction of Dr. Roger Seheult 03:22 Understanding the Circadian Rhythm 07:02 Impact of Light on Sleep 09:20 The Suprachiasmatic Nucleus and its Role in Sleep 09:49 The Importance of Light for People with Chronic Illness 13:35 The Effect of Blue Light on Sleep 15:28 Ideal Bedtime for Optimal Sleep 17:25 The Impact of Electronics on Sleep 19:26 The Role of Melatonin in Sleep 20:05 The Importance of Morning Light 23:29 The Timing of Eating and its Effect on Sleep 24:00 Challenges of Working from Home and Small Meals 25:20 Sleep Schedule and Chronic Illness 28:57 Falling Asleep While Watching TV 31:49 Sleep Apnea and Chronic Illness 39:05 Sleep Apnea and Temporomandibular Dysfunction 44:09 EDS and Central Sleep Apnea 44:30 Elevating the Head of the Bed 45:23 Alignment Problems and Breathing 47:37 Sleep Medications and Side Effects 1:00:15 Supplements for Sleep 1:02:01 Sleep Watches and Monitoring Devices 1:03:01 Sleep Positions and Joint Instability 1:04:46 Paresthesias and Numbness in Sleep 1:05:11 Pillow Recommendations for Cervical Instability 1:07:35 Waking Up in Pain 1:09:58 Sympathetic Nervous System Activation 1:12:23 Safety of Melatonin 1:14:49 Improving Education on EDS and HSD Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   www.medcram.com https://www.youtube.com/@Medcram https://www.optum.com/care/locations/california.html https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/ https://www.itamar-medical.com/professionals/watchpat-300/ https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6 #BendyBodiesPodcast  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways:


    Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.

    Understanding the circadian rhythm is important for optimizing sleep.

    Light, especially blue light, can significantly impact sleep quality.

    The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.

    Morning light exposure is important for setting the body's internal clock.

    The timing of eating can affect sleep quality.

    Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.

    Shifting sleep patterns can be challenging, especially for individuals with chronic illness.

    Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.

    Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.

    Sleep medications should be used cautiously due to potential side effects and dependency issues.

    Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.

    Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.

    Education on sleep disorders and their relationship with chronic illness should be improved in medical training.

    Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.


    Chapters


    00:00 Introduction of Dr. Roger Seheult

    03:22 Understanding the Circadian Rhythm

    07:02 Impact of Light on Sleep

    09:20 The Suprachiasmatic Nucleus and its Role in Sleep

    09:49 The Importance of Light for People with Chronic Illness

    13:35 The Effect of Blue Light on Sleep

    15:28 Ideal Bedtime for Optimal Sleep

    17:25 The Impact of Electronics on Sleep

    19:26 The Role of Melatonin in Sleep

    20:05 The Importance of Morning Light

    23:29 The Timing of Eating and its Effect on Sleep

    24:00 Challenges of Working from Home and Small Meals

    25:20 Sleep Schedule and Chronic Illness

    28:57 Falling Asleep While Watching TV

    31:49 Sleep Apnea and Chronic Illness

    39:05 Sleep Apnea and Temporomandibular Dysfunction

    44:09 EDS and Central Sleep Apnea

    44:30 Elevating the Head of the Bed

    45:23 Alignment Problems and Breathing

    47:37 Sleep Medications and Side Effects

    1:00:15 Supplements for Sleep

    1:02:01 Sleep Watches and Monitoring Devices

    1:03:01 Sleep Positions and Joint Instability

    1:04:46 Paresthesias and Numbness in Sleep

    1:05:11 Pillow Recommendations for Cervical Instability

    1:07:35 Waking Up in Pain

    1:09:58 Sympathetic Nervous System Activation

    1:12:23 Safety of Melatonin

    1:14:49 Improving Education on EDS and HSD


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:  


    www.medcram.com

    https://www.youtube.com/@Medcram

    https://www.optum.com/care/locations/california.html

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/

    https://www.itamar-medical.com/professionals/watchpat-300/

    https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6


    #BendyBodiesPodcast 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5547 no     88. Service Dogs and Disability Rights with Tiffany Lee, JD https://share.transistor.fm/s/82c8a41f In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key points discussed:  **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations. **Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records. **Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved. **Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities. **Service Dogs:** The episode discusses obtaining a service dog and the associated considerations. **Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations. **Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed. **Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted. **Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed. Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities. Chapters 00:00 Introduction and Overview 01:14 Americans with Disabilities Act 03:28 Reasonable Accommodations in the Workplace 04:38 Determining Reasonable Accommodations 09:07 Accommodations in High School and College 11:22 Challenges with Disability Services in Education 13:59 Advocating for Accommodations in Education 16:36 Disclosing Disabilities to Employers and Universities 19:03 Determining Job Compatibility with Accommodations 21:03 Getting a Service Dog 23:37 Regulations and Considerations for Service Dog Training 36:33 Dealing with Unresponsive Disability Lawyers 38:07 Appealing Denied Disability Benefits 40:03 Legal Recourse for Undertreatment of Pain 43:07 Accommodations for Productivity Standards 43:45 Correcting Inaccuracies in Medical Records 47:46 Knowing When to Get an Accommodation or Apply for Disability 48:36 Considerations for Applying for Disability 50:23 Assets and Poverty Threshold for Disability 58:58 Making Disaster and Emergency Response Accessible 01:02:44 Hypermobility Hack: Walking Desk Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   For disability rights in general: https://www.ada.gov and https://adata.org/ For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/ For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability https://choosework.ssa.gov/ #BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 01 Feb 2024 10:00:00 -0000 88. Service Dogs and Disability Rights with Tiffany Lee, JD full 88 Dr. Linda Bluestein <p>In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.</p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Key points discussed: </p><p><br></p><p>**Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.</p><p><br></p><p>**Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.</p><p><br></p><p>**Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.</p><p><br></p><p>**Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.</p><p><br></p><p>**Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.</p><p><br></p><p>**Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.</p><p><br></p><p>**Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.</p><p><br></p><p>**Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.</p><p><br></p><p>**Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.</p><p><br></p><p>Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.</p><p><br></p><p>Chapters</p><p><br></p><p>00:00 Introduction and Overview</p><p>01:14 Americans with Disabilities Act</p><p>03:28 Reasonable Accommodations in the Workplace</p><p>04:38 Determining Reasonable Accommodations</p><p>09:07 Accommodations in High School and College</p><p>11:22 Challenges with Disability Services in Education</p><p>13:59 Advocating for Accommodations in Education</p><p>16:36 Disclosing Disabilities to Employers and Universities</p><p>19:03 Determining Job Compatibility with Accommodations</p><p>21:03 Getting a Service Dog</p><p>23:37 Regulations and Considerations for Service Dog Training</p><p>36:33 Dealing with Unresponsive Disability Lawyers</p><p>38:07 Appealing Denied Disability Benefits</p><p>40:03 Legal Recourse for Undertreatment of Pain</p><p>43:07 Accommodations for Productivity Standards</p><p>43:45 Correcting Inaccuracies in Medical Records</p><p>47:46 Knowing When to Get an Accommodation or Apply for Disability</p><p>48:36 Considerations for Applying for Disability</p><p>50:23 Assets and Poverty Threshold for Disability</p><p>58:58 Making Disaster and Emergency Response Accessible</p><p>01:02:44 Hypermobility Hack: Walking Desk</p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources:  </p><p><br></p><p>For disability rights in general: <a href="https://www.ada.gov/">https://www.ada.gov</a> and <a href="https://adata.org/">https://adata.org/</a></p><p>For service dogs: <a href="https://www.ada.gov/resources/service-animals-2010-requirements/">https://www.ada.gov/resources/service-animals-2010-requirements/</a> and <a href="https://www.ada.gov/resources/service-animals-faqs/">https://www.ada.gov/resources/service-animals-faqs/</a></p><p>For disability rights in employment: <a href="https://www.dol.gov/general/topic/disability/ada">https://www.dol.gov/general/topic/disability/ada</a> and <a href="https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability">https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability</a></p><p><a href="https://choosework.ssa.gov/">https://choosework.ssa.gov/</a></p><p><br></p><p>#BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges </p> In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key points discussed:  **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations. **Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records. **Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved. **Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities. **Service Dogs:** The episode discusses obtaining a service dog and the associated considerations. **Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations. **Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed. **Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted. **Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed. Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities. Chapters 00:00 Introduction and Overview 01:14 Americans with Disabilities Act 03:28 Reasonable Accommodations in the Workplace 04:38 Determining Reasonable Accommodations 09:07 Accommodations in High School and College 11:22 Challenges with Disability Services in Education 13:59 Advocating for Accommodations in Education 16:36 Disclosing Disabilities to Employers and Universities 19:03 Determining Job Compatibility with Accommodations 21:03 Getting a Service Dog 23:37 Regulations and Considerations for Service Dog Training 36:33 Dealing with Unresponsive Disability Lawyers 38:07 Appealing Denied Disability Benefits 40:03 Legal Recourse for Undertreatment of Pain 43:07 Accommodations for Productivity Standards 43:45 Correcting Inaccuracies in Medical Records 47:46 Knowing When to Get an Accommodation or Apply for Disability 48:36 Considerations for Applying for Disability 50:23 Assets and Poverty Threshold for Disability 58:58 Making Disaster and Emergency Response Accessible 01:02:44 Hypermobility Hack: Walking Desk Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:   For disability rights in general: https://www.ada.gov and https://adata.org/ For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/ For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability https://choosework.ssa.gov/ #BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Key points discussed: 


    **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.


    **Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.


    **Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.


    **Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.


    **Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.


    **Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.


    **Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.


    **Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.


    **Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.


    Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.


    Chapters


    00:00 Introduction and Overview

    01:14 Americans with Disabilities Act

    03:28 Reasonable Accommodations in the Workplace

    04:38 Determining Reasonable Accommodations

    09:07 Accommodations in High School and College

    11:22 Challenges with Disability Services in Education

    13:59 Advocating for Accommodations in Education

    16:36 Disclosing Disabilities to Employers and Universities

    19:03 Determining Job Compatibility with Accommodations

    21:03 Getting a Service Dog

    23:37 Regulations and Considerations for Service Dog Training

    36:33 Dealing with Unresponsive Disability Lawyers

    38:07 Appealing Denied Disability Benefits

    40:03 Legal Recourse for Undertreatment of Pain

    43:07 Accommodations for Productivity Standards

    43:45 Correcting Inaccuracies in Medical Records

    47:46 Knowing When to Get an Accommodation or Apply for Disability

    48:36 Considerations for Applying for Disability

    50:23 Assets and Poverty Threshold for Disability

    58:58 Making Disaster and Emergency Response Accessible

    01:02:44 Hypermobility Hack: Walking Desk


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources:  


    For disability rights in general: https://www.ada.gov and https://adata.org/

    For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/

    For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability

    https://choosework.ssa.gov/


    #BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4227 no     87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner https://share.transistor.fm/s/88f192de In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.   Takeaways Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues. Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors. The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders. It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers. If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support. Chapters 00:00 Introduction and Welcome 00:30 Introducing Josh Spell 01:36 Prevalence of Eating Disorders in Dancers 03:09 The Relationship Between Hypermobility and Eating Disorders 05:08 Understanding Eating Disorders as Coping Mechanisms 08:00 The Intersection of Eating Disorders and Other Mental Health Issues 10:35 The Impact of Social Media and Diet Culture on Eating Disorders 13:25 Self-Image and Body Standards in the Dance World 16:19 The Influence of Social Media and Zoom on Body Image 20:25 Balancing Sacrifice and Suffering in the Dance World 23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health 27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder 32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder 36:31 Steps to Take If You Suspect You Have an Eating Disorder 42:18 Hypermobility Hack: Giving the Eating Disorder a Persona 45:12 Where to Find Josh Spell Online This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources mentioned during the episode: Links for show notes: https://flexiblemindcounseling.org/ https://www.instagram.com/spellbound20/ https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/ https://www.jennifer-milner.com/ National Suicide Prevention Lifeline: 1.800.273.8255 Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US Eating Disorder Helpline: Call or text 1.800.931.2237 NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org NAMI – National Alliance on Mental Illness: www.nami.org Project Heal – https://www.theprojectheal.org/ Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert Find a Therapist: www.psychologytoday.com/us/therapists #Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 Jan 2024 15:25:00 -0000 87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner full 87 Dr. Linda Bluestein <p>In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. </p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.  </p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.</li><li>Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.</li><li>The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.</li><li>It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.</li><li>If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support.</li></ul><p><br></p><p>Chapters</p><p><br></p><p>00:00 Introduction and Welcome</p><p>00:30 Introducing Josh Spell</p><p>01:36 Prevalence of Eating Disorders in Dancers</p><p>03:09 The Relationship Between Hypermobility and Eating Disorders</p><p>05:08 Understanding Eating Disorders as Coping Mechanisms</p><p>08:00 The Intersection of Eating Disorders and Other Mental Health Issues</p><p>10:35 The Impact of Social Media and Diet Culture on Eating Disorders</p><p>13:25 Self-Image and Body Standards in the Dance World</p><p>16:19 The Influence of Social Media and Zoom on Body Image</p><p>20:25 Balancing Sacrifice and Suffering in the Dance World</p><p>23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health</p><p>27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder</p><p>32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder</p><p>36:31 Steps to Take If You Suspect You Have an Eating Disorder</p><p>42:18 Hypermobility Hack: Giving the Eating Disorder a Persona</p><p>45:12 Where to Find Josh Spell Online</p><p><br></p><p>This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.  </p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority! 🧬🔬🦓</p><p><br></p><p>Resources mentioned during the episode:</p><p><br></p><p>Links for show notes:</p><p><br></p><p><a href="https://flexiblemindcounseling.org/">https://flexiblemindcounseling.org/</a></p><p><br></p><p><a href="https://www.instagram.com/spellbound20/">https://www.instagram.com/spellbound20/</a></p><p><br></p><p><a href="https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/">https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/</a></p><p><br></p><p><a href="https://www.jennifer-milner.com/">https://www.jennifer-milner.com/</a></p><p>National Suicide Prevention Lifeline: <strong>1.800.273.8255</strong></p><p>Crisis Text Line: Text HOME to <strong>741741</strong>; Free crisis support, anywhere in US</p><p>Eating Disorder Helpline: Call or text <strong>1.800.931.2237</strong></p><p>NEDA – National Eating Disorders Association: <a href="http://www.nationaleatingdisorders.org/">www.nationaleatingdisorders.org</a></p><p>NAMI – National Alliance on Mental Illness: <a href="http://www.nami.org/">www.nami.org</a></p><p>Project Heal – https://<a href="http://www.theprojectheal.org/">www.theprojectheal.org</a>/</p><p>Find an Accredited Registered Dietitian (RDN) – <a href="http://www.eatright.org/">www.eatright.org</a>/find-an-expert</p><p>Find a Therapist: <a href="http://www.psychologytoday.com/us/therapists">www.psychologytoday.com/us/therapists</a></p><p><br></p><p>#Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD</p> In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.   Takeaways Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues. Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors. The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders. It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers. If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support. Chapters 00:00 Introduction and Welcome 00:30 Introducing Josh Spell 01:36 Prevalence of Eating Disorders in Dancers 03:09 The Relationship Between Hypermobility and Eating Disorders 05:08 Understanding Eating Disorders as Coping Mechanisms 08:00 The Intersection of Eating Disorders and Other Mental Health Issues 10:35 The Impact of Social Media and Diet Culture on Eating Disorders 13:25 Self-Image and Body Standards in the Dance World 16:19 The Influence of Social Media and Zoom on Body Image 20:25 Balancing Sacrifice and Suffering in the Dance World 23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health 27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder 32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder 36:31 Steps to Take If You Suspect You Have an Eating Disorder 42:18 Hypermobility Hack: Giving the Eating Disorder a Persona 45:12 Where to Find Josh Spell Online This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! 🧬🔬🦓 Resources mentioned during the episode: Links for show notes: https://flexiblemindcounseling.org/ https://www.instagram.com/spellbound20/ https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/ https://www.jennifer-milner.com/ National Suicide Prevention Lifeline: 1.800.273.8255 Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US Eating Disorder Helpline: Call or text 1.800.931.2237 NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org NAMI – National Alliance on Mental Illness: www.nami.org Project Heal – https://www.theprojectheal.org/ Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert Find a Therapist: www.psychologytoday.com/us/therapists #Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. 


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.  


    Takeaways


    • Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.
    • Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.
    • The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.
    • It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.
    • If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support.


    Chapters


    00:00 Introduction and Welcome

    00:30 Introducing Josh Spell

    01:36 Prevalence of Eating Disorders in Dancers

    03:09 The Relationship Between Hypermobility and Eating Disorders

    05:08 Understanding Eating Disorders as Coping Mechanisms

    08:00 The Intersection of Eating Disorders and Other Mental Health Issues

    10:35 The Impact of Social Media and Diet Culture on Eating Disorders

    13:25 Self-Image and Body Standards in the Dance World

    16:19 The Influence of Social Media and Zoom on Body Image

    20:25 Balancing Sacrifice and Suffering in the Dance World

    23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health

    27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder

    32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder

    36:31 Steps to Take If You Suspect You Have an Eating Disorder

    42:18 Hypermobility Hack: Giving the Eating Disorder a Persona

    45:12 Where to Find Josh Spell Online


    This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.  


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority! 🧬🔬🦓


    Resources mentioned during the episode:


    Links for show notes:


    https://flexiblemindcounseling.org/


    https://www.instagram.com/spellbound20/


    https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/


    https://www.jennifer-milner.com/

    National Suicide Prevention Lifeline: 1.800.273.8255

    Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US

    Eating Disorder Helpline: Call or text 1.800.931.2237

    NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org

    NAMI – National Alliance on Mental Illness: www.nami.org

    Project Heal – https://www.theprojectheal.org/

    Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert

    Find a Therapist: www.psychologytoday.com/us/therapists


    #Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2975 no     86. The Unfair EDS Journey with Amanda Cassil, PhD https://share.transistor.fm/s/3f9e1a3a In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Approach advocacy from a place of compassion and understanding Regulate your nervous system and slow down to make more intentional and strategic decisions Acknowledge and process grief as a natural part of living with chronic illness Consult with trusted individuals and healthcare providers for guidance and support. Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences. Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues. Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation. Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes. Chapters 00:00 Introduction 01:04 Motivation for Giving the Talk at the EDS Society Global Conference 04:14 Advocacy and the Challenges of the Healthcare System 07:16 Approaching Advocacy without Blame 10:27 Grief and Acceptance in Chronic Illness 13:34 Key Takeaways from the Talk 18:04 The Role of the Prefrontal Cortex in Chronic Illness 19:12 Neurodiversity and Advocacy 20:12 Presenting Research to Doctors 23:02 Dealing with Suboptimal Experiences with Clinicians 26:09 Processing Traumatic Experiences 29:16 The Role of Grief in Chronic Illness 36:09 Coping with Traumatic Experiences 40:36 Presenting Research to Doctors (Continued) 46:27 Navigating the Challenges of Collaboration 48:07 Addressing Multiple Symptoms and Issues 53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation 59:41 Finding Your Way Through an Unfair Journey This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Resources mentioned during the episode: https://www.STEMpsychology.com https://www.instagram.com/stempsychology/ https://www.linkedin.com/in/drcassil https://drgabormate.com/book/the-myth-of-normal/ https://www.resmaa.com/merch https://www.besselvanderkolk.com/ #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting  #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 18 Jan 2024 15:31:02 -0000 86. The Unfair EDS Journey with Amanda Cassil, PhD full 86 Dr. Linda Bluestein <p>In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.</p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Approach advocacy from a place of compassion and understanding</li><li>Regulate your nervous system and slow down to make more intentional and strategic decisions</li><li>Acknowledge and process grief as a natural part of living with chronic illness</li><li>Consult with trusted individuals and healthcare providers for guidance and support.</li><li>Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.</li><li>Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.</li><li>Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.</li><li>Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes.</li></ul><p><br></p><p>Chapters</p><p><br></p><p>00:00 Introduction</p><p>01:04 Motivation for Giving the Talk at the EDS Society Global Conference</p><p>04:14 Advocacy and the Challenges of the Healthcare System</p><p>07:16 Approaching Advocacy without Blame</p><p>10:27 Grief and Acceptance in Chronic Illness</p><p>13:34 Key Takeaways from the Talk</p><p>18:04 The Role of the Prefrontal Cortex in Chronic Illness</p><p>19:12 Neurodiversity and Advocacy</p><p>20:12 Presenting Research to Doctors</p><p>23:02 Dealing with Suboptimal Experiences with Clinicians</p><p>26:09 Processing Traumatic Experiences</p><p>29:16 The Role of Grief in Chronic Illness</p><p>36:09 Coping with Traumatic Experiences</p><p>40:36 Presenting Research to Doctors (Continued)</p><p>46:27 Navigating the Challenges of Collaboration</p><p>48:07 Addressing Multiple Symptoms and Issues</p><p>53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation</p><p>59:41 Finding Your Way Through an Unfair Journey</p><p><br></p><p>This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.  </p><p><br></p><p>Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a>.  </p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Resources mentioned during the episode:</p><p><br></p><p><a href="https://www.stempsychology.com/">https://www.STEMpsychology.com</a></p><p><br></p><p><a href="https://www.instagram.com/stempsychology/">https://www.instagram.com/stempsychology/</a></p><p><br></p><p><a href="https://www.linkedin.com/in/drcassil">https://www.linkedin.com/in/drcassil</a></p><p><br></p><p><a href="https://drgabormate.com/book/the-myth-of-normal/">https://drgabormate.com/book/the-myth-of-normal/</a></p><p><br></p><p><a href="https://www.resmaa.com/merch">https://www.resmaa.com/merch</a></p><p><br></p><p><a href="https://www.besselvanderkolk.com/">https://www.besselvanderkolk.com/</a></p><p><br></p><p>#HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting </p><p>#BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem </p> In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Approach advocacy from a place of compassion and understanding Regulate your nervous system and slow down to make more intentional and strategic decisions Acknowledge and process grief as a natural part of living with chronic illness Consult with trusted individuals and healthcare providers for guidance and support. Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences. Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues. Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation. Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes. Chapters 00:00 Introduction 01:04 Motivation for Giving the Talk at the EDS Society Global Conference 04:14 Advocacy and the Challenges of the Healthcare System 07:16 Approaching Advocacy without Blame 10:27 Grief and Acceptance in Chronic Illness 13:34 Key Takeaways from the Talk 18:04 The Role of the Prefrontal Cortex in Chronic Illness 19:12 Neurodiversity and Advocacy 20:12 Presenting Research to Doctors 23:02 Dealing with Suboptimal Experiences with Clinicians 26:09 Processing Traumatic Experiences 29:16 The Role of Grief in Chronic Illness 36:09 Coping with Traumatic Experiences 40:36 Presenting Research to Doctors (Continued) 46:27 Navigating the Challenges of Collaboration 48:07 Addressing Multiple Symptoms and Issues 53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation 59:41 Finding Your Way Through an Unfair Journey This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.     Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Resources mentioned during the episode: https://www.STEMpsychology.com https://www.instagram.com/stempsychology/ https://www.linkedin.com/in/drcassil https://drgabormate.com/book/the-myth-of-normal/ https://www.resmaa.com/merch https://www.besselvanderkolk.com/ #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting  #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways


    • Approach advocacy from a place of compassion and understanding
    • Regulate your nervous system and slow down to make more intentional and strategic decisions
    • Acknowledge and process grief as a natural part of living with chronic illness
    • Consult with trusted individuals and healthcare providers for guidance and support.
    • Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.
    • Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.
    • Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.
    • Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes.


    Chapters


    00:00 Introduction

    01:04 Motivation for Giving the Talk at the EDS Society Global Conference

    04:14 Advocacy and the Challenges of the Healthcare System

    07:16 Approaching Advocacy without Blame

    10:27 Grief and Acceptance in Chronic Illness

    13:34 Key Takeaways from the Talk

    18:04 The Role of the Prefrontal Cortex in Chronic Illness

    19:12 Neurodiversity and Advocacy

    20:12 Presenting Research to Doctors

    23:02 Dealing with Suboptimal Experiences with Clinicians

    26:09 Processing Traumatic Experiences

    29:16 The Role of Grief in Chronic Illness

    36:09 Coping with Traumatic Experiences

    40:36 Presenting Research to Doctors (Continued)

    46:27 Navigating the Challenges of Collaboration

    48:07 Addressing Multiple Symptoms and Issues

    53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation

    59:41 Finding Your Way Through an Unfair Journey


    This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.  


    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Resources mentioned during the episode:


    https://www.STEMpsychology.com


    https://www.instagram.com/stempsychology/


    https://www.linkedin.com/in/drcassil


    https://drgabormate.com/book/the-myth-of-normal/


    https://www.resmaa.com/merch


    https://www.besselvanderkolk.com/


    #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting 

    #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4119 no     85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA https://share.transistor.fm/s/b6506e31 In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key Highlights: 1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders. 2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative. 3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities. 4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations. 5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells. 6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites. 7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life. 8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions. 9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS. 10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia.  11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved. 12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects. 13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS. 14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions. Chapters 00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and Resources Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.mcasfund.org/https://aimcenterpm.com/https://www.gidoctor.net/leonard-weinstock-mdhttps://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-mdhttps://www.hypermobilitymd.com/https://www.standinguptopots.org/ #MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 Jan 2024 10:00:00 -0000 85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA full 85 Dr. Linda Bluestein <p>In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.   </p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p>Key Highlights:</p><p>1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.</p><p>2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.</p><p>3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.</p><p>4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.</p><p>5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.</p><p>6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.</p><p>7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.</p><p>8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.</p><p>9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.</p><p>10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. </p><p>11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.</p><p>12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.</p><p>13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.</p><p>14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.</p><p>Chapters</p><p>00:00 Introduction<br>00:37 Creating Awareness and Increasing Treatment Options<br>03:09 The Birth of the Documentary Project<br>05:20 Filming in New York<br>07:19 Filming in St. Louis<br>10:32 The Motivation to Work with Complex Patients<br>15:49 The Journey of Recognizing MCAS<br>17:34 The Impact of MCAS Treatment<br>21:00 Personal Experiences and Incorporating MCAS Treatment<br>22:42 The Need for an Educational Library<br>25:29 The Challenge of Condensing Information<br>26:21 Describing MCAS in Sound Bites<br>31:10 The Importance of Raising Awareness<br>34:42 Growth and Development Abnormalities in MCAS<br>40:03 Main Points about Hypermobility Syndromes and Dysautonomia<br>44:48 Partnership with LDN Research Trust<br>51:47 Final Words and Call for Support<br>54:26 Recognition and Treatment of Unrecognized Patients<br>55:44 Importance of Learning and Trying<br>56:13 Gratitude for Dedicated Doctors<br>56:47 Closing Remarks and Resources</p><p><br>Connect with YOUR Bendy Specialist, Linda Bluestein, MD!<br> <br>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p>Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      </p><p>YOUR bendy body is our highest priority!</p><p>Products, organizations, and services mentioned in this episode:</p><p>https://www.mcasfund.org/<br>https://aimcenterpm.com/<br>https://www.gidoctor.net/leonard-weinstock-md<br>https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md<br>https://www.hypermobilitymd.com/<br>https://www.standinguptopots.org/</p><p>#MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy</p> In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key Highlights: 1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders. 2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative. 3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities. 4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations. 5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells. 6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites. 7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life. 8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions. 9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS. 10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia.  11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved. 12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects. 13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS. 14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions. Chapters 00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and Resources Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.mcasfund.org/https://aimcenterpm.com/https://www.gidoctor.net/leonard-weinstock-mdhttps://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-mdhttps://www.hypermobilitymd.com/https://www.standinguptopots.org/ #MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy Learn more about your ad choices. Visit megaphone.fm/adchoices In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.   

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Key Highlights:

    1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.

    2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.

    3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.

    4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.

    5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.

    6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.

    7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.

    8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.

    9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.

    10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 

    11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.

    12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.

    13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.

    14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.

    Chapters

    00:00 Introduction
    00:37 Creating Awareness and Increasing Treatment Options
    03:09 The Birth of the Documentary Project
    05:20 Filming in New York
    07:19 Filming in St. Louis
    10:32 The Motivation to Work with Complex Patients
    15:49 The Journey of Recognizing MCAS
    17:34 The Impact of MCAS Treatment
    21:00 Personal Experiences and Incorporating MCAS Treatment
    22:42 The Need for an Educational Library
    25:29 The Challenge of Condensing Information
    26:21 Describing MCAS in Sound Bites
    31:10 The Importance of Raising Awareness
    34:42 Growth and Development Abnormalities in MCAS
    40:03 Main Points about Hypermobility Syndromes and Dysautonomia
    44:48 Partnership with LDN Research Trust
    51:47 Final Words and Call for Support
    54:26 Recognition and Treatment of Unrecognized Patients
    55:44 Importance of Learning and Trying
    56:13 Gratitude for Dedicated Doctors
    56:47 Closing Remarks and Resources


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://www.mcasfund.org/
    https://aimcenterpm.com/
    https://www.gidoctor.net/leonard-weinstock-md
    https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md
    https://www.hypermobilitymd.com/
    https://www.standinguptopots.org/

    #MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3548 no     84. Slipping Rib Surgery in EDS with Adam Hansen, MD https://share.transistor.fm/s/d95e8f8b In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility. Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans. Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction. Emerging areas of discovery include posterior joint disorders and bridging cartilage separation. Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome. Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture. Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome. Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure. The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques. The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections. There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome. The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly. Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction. He has built a network of surgeons around the world to provide local treatment options for patients. There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders. Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength. Chapters 00:00 Introduction and Warm-up01:03 Background and Expertise of Dr. Adam Hansen03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility14:01 Evaluation and Diagnosis of Chest Wall Problems21:16 Symptoms and Impact of Chest Wall Compression Syndromes24:49 Emerging Areas of Discovery in Slipping Rib Syndrome28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging36:37 Abdominal Compression Syndromes and Chest Wall Disorders41:19 Self-Help Strategies and Avoiding Surgery43:48 Posture and Exercise45:09 Taping Strategies and Lifestyle Changes46:23 Avoiding High Velocity Manipulation48:08 Qualifications for Surgery51:18 Preparing for Surgery53:21 Surgical Procedures58:08 The Hansen 3.0 Technique01:01:18 Outcomes and Complications01:20:06 Hypermobility Spectrum Disorder and EDS01:21:09 Male-Female Differences01:22:11 Recurrence and Additional Slipped Ribs01:23:49 Physician Awareness and Education01:24:58 Teaching Other Surgeons01:26:05 Building a Network of Surgeons01:26:50 Correlation Between Cervical Instability and Slipping Ribs01:28:38 Hypermobility and Skeletal Disorders01:29:59 Key Areas for Stability01:30:17 Hypermobility Hacks01:31:00 Finding Dr. Adam Hansen Online01:33:33 Closing Remarks This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: http://www.youtube.com/@adamhansen6524 Slipping Rib Syndrome Physical Examination   SD 480p:https://www.youtube.com/watch?v=Na69xXUZGhg Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 04 Jan 2024 16:10:21 -0000 84. Slipping Rib Surgery in EDS with Adam Hansen, MD full 84 Dr. Linda Bluestein <p>In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  </p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p>Takeaways</p><ul><li>Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.</li><li>Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.</li><li>Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.</li><li>Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.</li><li>Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.</li><li>Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.</li><li>Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.</li><li>Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.</li><li>The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.</li><li>The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.</li><li>There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.</li><li>The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.</li><li>Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.</li><li>He has built a network of surgeons around the world to provide local treatment options for patients.</li><li>There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.</li><li>Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.</li></ul><p><br>Chapters</p><p>00:00 Introduction and Warm-up<br>01:03 Background and Expertise of Dr. Adam Hansen<br>03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders<br>09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility<br>14:01 Evaluation and Diagnosis of Chest Wall Problems<br>21:16 Symptoms and Impact of Chest Wall Compression Syndromes<br>24:49 Emerging Areas of Discovery in Slipping Rib Syndrome<br>28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging<br>36:37 Abdominal Compression Syndromes and Chest Wall Disorders<br>41:19 Self-Help Strategies and Avoiding Surgery<br>43:48 Posture and Exercise<br>45:09 Taping Strategies and Lifestyle Changes<br>46:23 Avoiding High Velocity Manipulation<br>48:08 Qualifications for Surgery<br>51:18 Preparing for Surgery<br>53:21 Surgical Procedures<br>58:08 The Hansen 3.0 Technique<br>01:01:18 Outcomes and Complications<br>01:20:06 Hypermobility Spectrum Disorder and EDS<br>01:21:09 Male-Female Differences<br>01:22:11 Recurrence and Additional Slipped Ribs<br>01:23:49 Physician Awareness and Education<br>01:24:58 Teaching Other Surgeons<br>01:26:05 Building a Network of Surgeons<br>01:26:50 Correlation Between Cervical Instability and Slipping Ribs<br>01:28:38 Hypermobility and Skeletal Disorders<br>01:29:59 Key Areas for Stability<br>01:30:17 Hypermobility Hacks<br>01:31:00 Finding Dr. Adam Hansen Online<br>01:33:33 Closing Remarks</p><p>This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  </p><p>Connect with YOUR Bendy Specialist, Linda Bluestein, MD!<br> <br>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p>Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      </p><p>YOUR bendy body is our highest priority!</p><p>Products, organizations, and services mentioned in this episode:</p><p>http://www.youtube.com/@adamhansen6524</p><p>Slipping Rib Syndrome Physical Examination   SD 480p:<br>https://www.youtube.com/watch?v=Na69xXUZGhg</p> In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility. Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans. Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction. Emerging areas of discovery include posterior joint disorders and bridging cartilage separation. Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome. Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture. Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome. Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure. The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques. The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections. There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome. The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly. Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction. He has built a network of surgeons around the world to provide local treatment options for patients. There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders. Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength. Chapters 00:00 Introduction and Warm-up01:03 Background and Expertise of Dr. Adam Hansen03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility14:01 Evaluation and Diagnosis of Chest Wall Problems21:16 Symptoms and Impact of Chest Wall Compression Syndromes24:49 Emerging Areas of Discovery in Slipping Rib Syndrome28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging36:37 Abdominal Compression Syndromes and Chest Wall Disorders41:19 Self-Help Strategies and Avoiding Surgery43:48 Posture and Exercise45:09 Taping Strategies and Lifestyle Changes46:23 Avoiding High Velocity Manipulation48:08 Qualifications for Surgery51:18 Preparing for Surgery53:21 Surgical Procedures58:08 The Hansen 3.0 Technique01:01:18 Outcomes and Complications01:20:06 Hypermobility Spectrum Disorder and EDS01:21:09 Male-Female Differences01:22:11 Recurrence and Additional Slipped Ribs01:23:49 Physician Awareness and Education01:24:58 Teaching Other Surgeons01:26:05 Building a Network of Surgeons01:26:50 Correlation Between Cervical Instability and Slipping Ribs01:28:38 Hypermobility and Skeletal Disorders01:29:59 Key Areas for Stability01:30:17 Hypermobility Hacks01:31:00 Finding Dr. Adam Hansen Online01:33:33 Closing Remarks This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: http://www.youtube.com/@adamhansen6524 Slipping Rib Syndrome Physical Examination   SD 480p:https://www.youtube.com/watch?v=Na69xXUZGhg Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    • Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.
    • Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.
    • Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.
    • Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.
    • Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.
    • Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.
    • Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.
    • Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.
    • The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.
    • The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.
    • There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.
    • The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.
    • Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.
    • He has built a network of surgeons around the world to provide local treatment options for patients.
    • There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.
    • Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.


    Chapters

    00:00 Introduction and Warm-up
    01:03 Background and Expertise of Dr. Adam Hansen
    03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders
    09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility
    14:01 Evaluation and Diagnosis of Chest Wall Problems
    21:16 Symptoms and Impact of Chest Wall Compression Syndromes
    24:49 Emerging Areas of Discovery in Slipping Rib Syndrome
    28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging
    36:37 Abdominal Compression Syndromes and Chest Wall Disorders
    41:19 Self-Help Strategies and Avoiding Surgery
    43:48 Posture and Exercise
    45:09 Taping Strategies and Lifestyle Changes
    46:23 Avoiding High Velocity Manipulation
    48:08 Qualifications for Surgery
    51:18 Preparing for Surgery
    53:21 Surgical Procedures
    58:08 The Hansen 3.0 Technique
    01:01:18 Outcomes and Complications
    01:20:06 Hypermobility Spectrum Disorder and EDS
    01:21:09 Male-Female Differences
    01:22:11 Recurrence and Additional Slipped Ribs
    01:23:49 Physician Awareness and Education
    01:24:58 Teaching Other Surgeons
    01:26:05 Building a Network of Surgeons
    01:26:50 Correlation Between Cervical Instability and Slipping Ribs
    01:28:38 Hypermobility and Skeletal Disorders
    01:29:59 Key Areas for Stability
    01:30:17 Hypermobility Hacks
    01:31:00 Finding Dr. Adam Hansen Online
    01:33:33 Closing Remarks

    This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    http://www.youtube.com/@adamhansen6524

    Slipping Rib Syndrome Physical Examination   SD 480p:
    https://www.youtube.com/watch?v=Na69xXUZGhg

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5265 no     83. Expert Insights: Breath Work in Pain Management with Jill Miller https://share.transistor.fm/s/c6acb4e9 In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.Community support and engagement are crucial for managing hypermobility.High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this. Chapters 00:00 Introduction and Background03:01 Inspiration for Writing the Book09:11 Organization of the Book13:30 Why Bendy Bodies Should Care About Fascia15:40 Starting with Limited Budget19:02 Helpful Exercises for Bendy Bodies23:27 Addressing Mixed Picture of Bendiness and Stiffness28:07 The Five P's of the Parasympathetic Nervous System36:14 Low Back Decompression Exercise46:07 Improving Core Strength and Breathing51:41 Understanding Zone One, Zone Two, and Zone Three Breathing57:29 Self-Fascial Treatments for Better Breathing01:00:10 Managing Hypermobility Symptoms01:03:35 Extracorporeal Shockwave Therapy for Acute Pain01:09:10 The Power of Community and High-Intensity Interval Training This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: www.tuneupfitness.comhttps://thereadystate.com/https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/https://fasciaguide.com/experts/carla-stecco/ https://jen.health/ https://www.tuneupfitness.com/shop/online-course/roll-into-hiit https://patternpt.com/ https://www.youtube.com/@TuneUpFitness https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 21 Dec 2023 15:09:46 -0000 83. Expert Insights: Breath Work in Pain Management with Jill Miller full 83 Dr. Linda Bluestein <p>In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network. </p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p>Takeaways</p><p>Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.<br>Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.<br>Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.<br>The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.<br>The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.<br>Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.<br>Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.<br>Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.<br>Community support and engagement are crucial for managing hypermobility.<br>High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this.</p><p>Chapters</p><p>00:00 Introduction and Background<br>03:01 Inspiration for Writing the Book<br>09:11 Organization of the Book<br>13:30 Why Bendy Bodies Should Care About Fascia<br>15:40 Starting with Limited Budget<br>19:02 Helpful Exercises for Bendy Bodies<br>23:27 Addressing Mixed Picture of Bendiness and Stiffness<br>28:07 The Five P's of the Parasympathetic Nervous System<br>36:14 Low Back Decompression Exercise<br>46:07 Improving Core Strength and Breathing<br>51:41 Understanding Zone One, Zone Two, and Zone Three Breathing<br>57:29 Self-Fascial Treatments for Better Breathing<br>01:00:10 Managing Hypermobility Symptoms<br>01:03:35 Extracorporeal Shockwave Therapy for Acute Pain<br>01:09:10 The Power of Community and High-Intensity Interval Training</p><p>This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.  </p><p>Connect with YOUR Bendy Specialist, Linda Bluestein, MD!<br> <br>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p>Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      </p><p>YOUR bendy body is our highest priority!</p><p>Products, organizations, and services mentioned in this episode:</p><p>www.tuneupfitness.com<br>https://thereadystate.com/<br>https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/<br>https://fasciaguide.com/experts/carla-stecco/</p><p>https://jen.health/</p><p>https://www.tuneupfitness.com/shop/online-course/roll-into-hiit</p><p>https://patternpt.com/</p><p>https://www.youtube.com/@TuneUpFitness</p><p>https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref</p> In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.Community support and engagement are crucial for managing hypermobility.High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this. Chapters 00:00 Introduction and Background03:01 Inspiration for Writing the Book09:11 Organization of the Book13:30 Why Bendy Bodies Should Care About Fascia15:40 Starting with Limited Budget19:02 Helpful Exercises for Bendy Bodies23:27 Addressing Mixed Picture of Bendiness and Stiffness28:07 The Five P's of the Parasympathetic Nervous System36:14 Low Back Decompression Exercise46:07 Improving Core Strength and Breathing51:41 Understanding Zone One, Zone Two, and Zone Three Breathing57:29 Self-Fascial Treatments for Better Breathing01:00:10 Managing Hypermobility Symptoms01:03:35 Extracorporeal Shockwave Therapy for Acute Pain01:09:10 The Power of Community and High-Intensity Interval Training This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: www.tuneupfitness.comhttps://thereadystate.com/https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/https://fasciaguide.com/experts/carla-stecco/ https://jen.health/ https://www.tuneupfitness.com/shop/online-course/roll-into-hiit https://patternpt.com/ https://www.youtube.com/@TuneUpFitness https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network. 

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Takeaways

    Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.
    Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.
    Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.
    The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.
    The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.
    Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.
    Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.
    Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.
    Community support and engagement are crucial for managing hypermobility.
    High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this.

    Chapters

    00:00 Introduction and Background
    03:01 Inspiration for Writing the Book
    09:11 Organization of the Book
    13:30 Why Bendy Bodies Should Care About Fascia
    15:40 Starting with Limited Budget
    19:02 Helpful Exercises for Bendy Bodies
    23:27 Addressing Mixed Picture of Bendiness and Stiffness
    28:07 The Five P's of the Parasympathetic Nervous System
    36:14 Low Back Decompression Exercise
    46:07 Improving Core Strength and Breathing
    51:41 Understanding Zone One, Zone Two, and Zone Three Breathing
    57:29 Self-Fascial Treatments for Better Breathing
    01:00:10 Managing Hypermobility Symptoms
    01:03:35 Extracorporeal Shockwave Therapy for Acute Pain
    01:09:10 The Power of Community and High-Intensity Interval Training

    This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.  

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    www.tuneupfitness.com
    https://thereadystate.com/
    https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/
    https://fasciaguide.com/experts/carla-stecco/

    https://jen.health/

    https://www.tuneupfitness.com/shop/online-course/roll-into-hiit

    https://patternpt.com/

    https://www.youtube.com/@TuneUpFitness

    https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4743 no     82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD https://share.transistor.fm/s/f0326004 In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS). YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes. The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis. The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care. Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals. Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences. Chapters 00:00 Introduction 00:29 Dr. Halverson's Background and Research Interest 03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome 05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome 07:02 Antagonistic Relationship with Healthcare Professionals 08:29 Impact of Antagonistic Relationship on Patients 09:47 Triggers for Transition into Unbearable Symptoms 12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome 13:44 Importance of Panoply of Symptoms in Diagnosis 15:22 Challenges in Describing Multi-Systemic Symptoms 16:26 Numeric Pain Scales and the Complexity of Chronic Pain 19:40 Research on Hypermobile Ehlers-Danlos Syndrome 20:39 Research on Other Forms of Ehlers-Danlos Syndrome 23:56 Failure of Empathy in Patient-Provider Relationships 27:24 Worse Health Outcomes and Trust Issues 28:06 Impact of Failure of Empathy on Patients 30:33 Dealing with Antagonistic Relationships 31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome 36:12 Clinician-Associated Traumatization and its Differences from Other Constructs 39:21 Surprising Aspects of the Research 42:01 Recommendations for Patients with Clinician-Associated Traumatization 45:01 Future Directions of Research 49:04 Closing Remarks This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, articles, and services mentioned in this episode: https://bioethics.iu.edu/people/colin-halverson.html https://pubmed.ncbi.nlm.nih.gov/34524722/ https://doi.org/10.1016/j.ssmqr.2023.100237 Dr. Halverson can be reached at chalver@iu.edu. #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 14 Dec 2023 10:00:00 -0000 82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD full 82 Dr. Linda Bluestein <p>In this episode, YOUR guest is <a href="https://bioethics.iu.edu/people/colin-halverson.html">Colin Halverson, PhD</a>.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).</p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Takeaways</p><ul><li>Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes.</li><li>The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis.</li><li>The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care.</li><li>Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals.</li><li>Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences.</li></ul><p>Chapters</p><p><br></p><p>00:00 Introduction</p><p>00:29 Dr. Halverson's Background and Research Interest</p><p>03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome</p><p>05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome</p><p>07:02 Antagonistic Relationship with Healthcare Professionals</p><p>08:29 Impact of Antagonistic Relationship on Patients</p><p>09:47 Triggers for Transition into Unbearable Symptoms</p><p>12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome</p><p>13:44 Importance of Panoply of Symptoms in Diagnosis</p><p>15:22 Challenges in Describing Multi-Systemic Symptoms</p><p>16:26 Numeric Pain Scales and the Complexity of Chronic Pain</p><p>19:40 Research on Hypermobile Ehlers-Danlos Syndrome</p><p>20:39 Research on Other Forms of Ehlers-Danlos Syndrome</p><p>23:56 Failure of Empathy in Patient-Provider Relationships</p><p>27:24 Worse Health Outcomes and Trust Issues</p><p>28:06 Impact of Failure of Empathy on Patients</p><p>30:33 Dealing with Antagonistic Relationships</p><p>31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome</p><p>36:12 Clinician-Associated Traumatization and its Differences from Other Constructs</p><p>39:21 Surprising Aspects of the Research</p><p>42:01 Recommendations for Patients with Clinician-Associated Traumatization</p><p>45:01 Future Directions of Research</p><p>49:04 Closing Remarks</p><p><br></p><p>This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.  </p><p><br></p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p><br></p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, articles, and services mentioned in this episode:</p><p><br></p><p><a href="https://bioethics.iu.edu/people/colin-halverson.html">https://bioethics.iu.edu/people/colin-halverson.html</a></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/34524722/">https://pubmed.ncbi.nlm.nih.gov/34524722/</a></p><p><a href="https://doi.org/10.1016/j.ssmqr.2023.100237">https://doi.org/10.1016/j.ssmqr.2023.100237</a></p><p><br></p><p>Dr. Halverson can be reached at <a href="mailto:chalver@iu.edu">chalver@iu.edu</a>.</p><p><br></p><p>#InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney</p> In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS). YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes. The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis. The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care. Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals. Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences. Chapters 00:00 Introduction 00:29 Dr. Halverson's Background and Research Interest 03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome 05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome 07:02 Antagonistic Relationship with Healthcare Professionals 08:29 Impact of Antagonistic Relationship on Patients 09:47 Triggers for Transition into Unbearable Symptoms 12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome 13:44 Importance of Panoply of Symptoms in Diagnosis 15:22 Challenges in Describing Multi-Systemic Symptoms 16:26 Numeric Pain Scales and the Complexity of Chronic Pain 19:40 Research on Hypermobile Ehlers-Danlos Syndrome 20:39 Research on Other Forms of Ehlers-Danlos Syndrome 23:56 Failure of Empathy in Patient-Provider Relationships 27:24 Worse Health Outcomes and Trust Issues 28:06 Impact of Failure of Empathy on Patients 30:33 Dealing with Antagonistic Relationships 31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome 36:12 Clinician-Associated Traumatization and its Differences from Other Constructs 39:21 Surprising Aspects of the Research 42:01 Recommendations for Patients with Clinician-Associated Traumatization 45:01 Future Directions of Research 49:04 Closing Remarks This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, articles, and services mentioned in this episode: https://bioethics.iu.edu/people/colin-halverson.html https://pubmed.ncbi.nlm.nih.gov/34524722/ https://doi.org/10.1016/j.ssmqr.2023.100237 Dr. Halverson can be reached at chalver@iu.edu. #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways

    • Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes.
    • The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis.
    • The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care.
    • Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals.
    • Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences.

    Chapters


    00:00 Introduction

    00:29 Dr. Halverson's Background and Research Interest

    03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome

    05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome

    07:02 Antagonistic Relationship with Healthcare Professionals

    08:29 Impact of Antagonistic Relationship on Patients

    09:47 Triggers for Transition into Unbearable Symptoms

    12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome

    13:44 Importance of Panoply of Symptoms in Diagnosis

    15:22 Challenges in Describing Multi-Systemic Symptoms

    16:26 Numeric Pain Scales and the Complexity of Chronic Pain

    19:40 Research on Hypermobile Ehlers-Danlos Syndrome

    20:39 Research on Other Forms of Ehlers-Danlos Syndrome

    23:56 Failure of Empathy in Patient-Provider Relationships

    27:24 Worse Health Outcomes and Trust Issues

    28:06 Impact of Failure of Empathy on Patients

    30:33 Dealing with Antagonistic Relationships

    31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome

    36:12 Clinician-Associated Traumatization and its Differences from Other Constructs

    39:21 Surprising Aspects of the Research

    42:01 Recommendations for Patients with Clinician-Associated Traumatization

    45:01 Future Directions of Research

    49:04 Closing Remarks


    This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.  


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, articles, and services mentioned in this episode:


    https://bioethics.iu.edu/people/colin-halverson.html

    https://pubmed.ncbi.nlm.nih.gov/34524722/

    https://doi.org/10.1016/j.ssmqr.2023.100237


    Dr. Halverson can be reached at chalver@iu.edu.


    #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3274 no     81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT https://share.transistor.fm/s/4aa55919 In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Posture and alignment play a crucial role in foot pain in people with joint hypermobility. Orthotics can be an effective intervention for managing foot pain in hypermobile patients. Assessing and addressing foot pain early in children can prevent the development of other pain problems. Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition. Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture. Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment. Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain. Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility. Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain. Proper lacing techniques can help alleviate foot pain and discomfort. Lisa Ralston provides valuable insights and tips for managing foot problems. Chapters 00:00 Introduction and Guest Introduction 02:05 Causes of Foot Pain in People with Joint Hypermobility 06:12 Approach to Hypermobility Patients 08:18 Common Causes of Foot Pain 10:10 Pain Begets Pain 11:36 Approach to Hypermobile Patients 14:59 Orthotics for Children 17:02 Different Approach for Hypermobile Patients 19:06 Assessment and Treatment of Foot and Ankle 21:00 Shoe Selection and Tying Techniques 23:19 Different Foot Types and Shoe Recommendations 26:31 Importance of Firm Heel Counter in Shoes 27:45 Tying Shoes Properly 31:40 Recommended Shoe Brands 34:53 Orthotics and Failed PT 39:51 Addressing Failed PT 47:51 Orthotics and Failed Orthotics 53:48 Over-the-Counter Orthotics 56:06 Self-Mobilization of Feet 01:08:46 Hypermobility in Ice Skaters 01:09:16 Hypermobility Hacks 01:09:26 Foot Problems and Solutions 01:10:21 Lacing Techniques for Foot Comfort 01:10:54 Finding More Information Online This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://lisaralstonpt.janeapp.com/ https://www.bauerfeind.com/b2c/ https://www.oofos.com/ https://www.abeofootwear.com/ https://www.humanlocomotion.com/ https://www.brooksrunning.com/en_u https://www.hoka.com/en/us/ https://www.aetrex.com/home https://yoursole.com/us https://www.vasylimedical.com/ https://www.birkenstock.com/us https://www.nike.com/ https://www.saucony.com/en/home https://naot.com/ https://www.keenfootwear.com/ https://www.merrell.com/US/en/home https://www.chacos.com/US/en/home https://www.mephisto.com/us/ https://www.theballetblog.com/about-us/lisa-howell/ https://nyulangone.org/locations/harkness-center-for-dance-injuries https://www.vasylimedical.com/products/easyfit https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/ Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 07 Dec 2023 10:00:00 -0000 81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT full 81 Dr. Linda Bluestein <p>In this episode, YOUR guest is <a href="https://lisaralstonpt.janeapp.com/">Lisa Ralston</a>, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. </p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p><br></p><p>Takeaways</p><p><br></p><ul><li>Posture and alignment play a crucial role in foot pain in people with joint hypermobility.</li><li>Orthotics can be an effective intervention for managing foot pain in hypermobile patients.</li><li>Assessing and addressing foot pain early in children can prevent the development of other pain problems.</li><li>Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition.</li><li>Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture.</li><li>Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment.</li><li>Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain.</li><li>Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility.</li><li>Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain.</li><li>Proper lacing techniques can help alleviate foot pain and discomfort.</li><li>Lisa Ralston provides valuable insights and tips for managing foot problems.</li></ul><p>Chapters</p><p><br></p><p>00:00 Introduction and Guest Introduction</p><p>02:05 Causes of Foot Pain in People with Joint Hypermobility</p><p>06:12 Approach to Hypermobility Patients</p><p>08:18 Common Causes of Foot Pain</p><p>10:10 Pain Begets Pain</p><p>11:36 Approach to Hypermobile Patients</p><p>14:59 Orthotics for Children</p><p>17:02 Different Approach for Hypermobile Patients</p><p>19:06 Assessment and Treatment of Foot and Ankle</p><p>21:00 Shoe Selection and Tying Techniques</p><p>23:19 Different Foot Types and Shoe Recommendations</p><p>26:31 Importance of Firm Heel Counter in Shoes</p><p>27:45 Tying Shoes Properly</p><p>31:40 Recommended Shoe Brands</p><p>34:53 Orthotics and Failed PT</p><p>39:51 Addressing Failed PT</p><p>47:51 Orthotics and Failed Orthotics</p><p>53:48 Over-the-Counter Orthotics</p><p>56:06 Self-Mobilization of Feet</p><p>01:08:46 Hypermobility in Ice Skaters</p><p>01:09:16 Hypermobility Hacks</p><p>01:09:26 Foot Problems and Solutions</p><p>01:10:21 Lacing Techniques for Foot Comfort</p><p>01:10:54 Finding More Information Online</p><p><br></p><p>This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.  </p><p><br></p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, and services mentioned in this episode:</p><p><br></p><p><a href="https://lisaralstonpt.janeapp.com/">https://lisaralstonpt.janeapp.com/</a></p><p><a href="https://www.bauerfeind.com/b2c/">https://www.bauerfeind.com/b2c/</a></p><p><a href="https://www.oofos.com/">https://www.oofos.com/</a></p><p><a href="https://www.abeofootwear.com/">https://www.abeofootwear.com/</a></p><p><a href="https://www.humanlocomotion.com/">https://www.humanlocomotion.com/</a></p><p><a href="https://www.brooksrunning.com/en_us">https://www.brooksrunning.com/en_u</a></p><p><a href="https://www.hoka.com/en/us/">https://www.hoka.com/en/us/</a></p><p><a href="https://www.aetrex.com/home">https://www.aetrex.com/home</a></p><p><a href="https://yoursole.com/us">https://yoursole.com/us</a></p><p><a href="https://www.vasylimedical.com/">https://www.vasylimedical.com/</a></p><p><a href="https://www.birkenstock.com/us">https://www.birkenstock.com/us</a></p><p><a href="https://www.nike.com/">https://www.nike.com/</a></p><p><a href="https://www.saucony.com/en/home">https://www.saucony.com/en/home</a></p><p><a href="https://naot.com/">https://naot.com/</a></p><p><a href="https://www.keenfootwear.com/">https://www.keenfootwear.com/</a></p><p><a href="https://www.merrell.com/US/en/home">https://www.merrell.com/US/en/home</a></p><p><a href="https://www.chacos.com/US/en/home">https://www.chacos.com/US/en/home</a></p><p><a href="https://www.mephisto.com/us/">https://www.mephisto.com/us/</a></p><p><a href="https://www.theballetblog.com/about-us/lisa-howell/">https://www.theballetblog.com/about-us/lisa-howell/</a></p><p><a href="https://nyulangone.org/locations/harkness-center-for-dance-injuries">https://nyulangone.org/locations/harkness-center-for-dance-injuries</a></p><p><a href="https://www.vasylimedical.com/products/easyfit">https://www.vasylimedical.com/products/easyfit</a></p><p><a href="https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/">https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/</a></p> In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Posture and alignment play a crucial role in foot pain in people with joint hypermobility. Orthotics can be an effective intervention for managing foot pain in hypermobile patients. Assessing and addressing foot pain early in children can prevent the development of other pain problems. Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition. Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture. Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment. Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain. Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility. Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain. Proper lacing techniques can help alleviate foot pain and discomfort. Lisa Ralston provides valuable insights and tips for managing foot problems. Chapters 00:00 Introduction and Guest Introduction 02:05 Causes of Foot Pain in People with Joint Hypermobility 06:12 Approach to Hypermobility Patients 08:18 Common Causes of Foot Pain 10:10 Pain Begets Pain 11:36 Approach to Hypermobile Patients 14:59 Orthotics for Children 17:02 Different Approach for Hypermobile Patients 19:06 Assessment and Treatment of Foot and Ankle 21:00 Shoe Selection and Tying Techniques 23:19 Different Foot Types and Shoe Recommendations 26:31 Importance of Firm Heel Counter in Shoes 27:45 Tying Shoes Properly 31:40 Recommended Shoe Brands 34:53 Orthotics and Failed PT 39:51 Addressing Failed PT 47:51 Orthotics and Failed Orthotics 53:48 Over-the-Counter Orthotics 56:06 Self-Mobilization of Feet 01:08:46 Hypermobility in Ice Skaters 01:09:16 Hypermobility Hacks 01:09:26 Foot Problems and Solutions 01:10:21 Lacing Techniques for Foot Comfort 01:10:54 Finding More Information Online This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://lisaralstonpt.janeapp.com/ https://www.bauerfeind.com/b2c/ https://www.oofos.com/ https://www.abeofootwear.com/ https://www.humanlocomotion.com/ https://www.brooksrunning.com/en_u https://www.hoka.com/en/us/ https://www.aetrex.com/home https://yoursole.com/us https://www.vasylimedical.com/ https://www.birkenstock.com/us https://www.nike.com/ https://www.saucony.com/en/home https://naot.com/ https://www.keenfootwear.com/ https://www.merrell.com/US/en/home https://www.chacos.com/US/en/home https://www.mephisto.com/us/ https://www.theballetblog.com/about-us/lisa-howell/ https://nyulangone.org/locations/harkness-center-for-dance-injuries https://www.vasylimedical.com/products/easyfit https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/ Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. 


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways


    • Posture and alignment play a crucial role in foot pain in people with joint hypermobility.
    • Orthotics can be an effective intervention for managing foot pain in hypermobile patients.
    • Assessing and addressing foot pain early in children can prevent the development of other pain problems.
    • Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition.
    • Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture.
    • Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment.
    • Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain.
    • Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility.
    • Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain.
    • Proper lacing techniques can help alleviate foot pain and discomfort.
    • Lisa Ralston provides valuable insights and tips for managing foot problems.

    Chapters


    00:00 Introduction and Guest Introduction

    02:05 Causes of Foot Pain in People with Joint Hypermobility

    06:12 Approach to Hypermobility Patients

    08:18 Common Causes of Foot Pain

    10:10 Pain Begets Pain

    11:36 Approach to Hypermobile Patients

    14:59 Orthotics for Children

    17:02 Different Approach for Hypermobile Patients

    19:06 Assessment and Treatment of Foot and Ankle

    21:00 Shoe Selection and Tying Techniques

    23:19 Different Foot Types and Shoe Recommendations

    26:31 Importance of Firm Heel Counter in Shoes

    27:45 Tying Shoes Properly

    31:40 Recommended Shoe Brands

    34:53 Orthotics and Failed PT

    39:51 Addressing Failed PT

    47:51 Orthotics and Failed Orthotics

    53:48 Over-the-Counter Orthotics

    56:06 Self-Mobilization of Feet

    01:08:46 Hypermobility in Ice Skaters

    01:09:16 Hypermobility Hacks

    01:09:26 Foot Problems and Solutions

    01:10:21 Lacing Techniques for Foot Comfort

    01:10:54 Finding More Information Online


    This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.  


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://lisaralstonpt.janeapp.com/

    https://www.bauerfeind.com/b2c/

    https://www.oofos.com/

    https://www.abeofootwear.com/

    https://www.humanlocomotion.com/

    https://www.brooksrunning.com/en_u

    https://www.hoka.com/en/us/

    https://www.aetrex.com/home

    https://yoursole.com/us

    https://www.vasylimedical.com/

    https://www.birkenstock.com/us

    https://www.nike.com/

    https://www.saucony.com/en/home

    https://naot.com/

    https://www.keenfootwear.com/

    https://www.merrell.com/US/en/home

    https://www.chacos.com/US/en/home

    https://www.mephisto.com/us/

    https://www.theballetblog.com/about-us/lisa-howell/

    https://nyulangone.org/locations/harkness-center-for-dance-injuries

    https://www.vasylimedical.com/products/easyfit

    https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4523 no     80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD https://share.transistor.fm/s/43e82418 In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  What specialty evaluations are most important for patients with hypermobility syndromes ·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD ·  How they determine when to perform genetic testing and the findings in this group of patients ·  How his approach has evolved since the clinic’s inception in 2019 ·  The research that he has conducted and relevant findings ·  The role of autoimmunity in EDS and HSD ·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS) ·  The role of the immune system in symptomatic joint hypermobility ·  The relationship with fibromyalgia ·  What percentage of patients are diagnosed with hEDS vs HSD ·  What he says to people who assume that HSD is a less serious condition This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206 https://x.com/knidac?s=21 https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf https://pubmed.ncbi.nlm.nih.gov/35687402/ https://www.ehlers-danlos.com/ https://www.ehlers-danlos.com/healthcare-professionals-directory/ #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 30 Nov 2023 10:00:00 -0000 80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD full 80 Dr. Linda Bluestein <p>In this episode, YOUR guest is <a href="https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206">Dacre Knight, MD</a>.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.  </p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p> </p><p>Explored in this episode:</p><p>·  What specialty evaluations are most important for patients with hypermobility syndromes</p><p>·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD</p><p>·  How they determine when to perform genetic testing and the findings in this group of patients</p><p>·  How his approach has evolved since the clinic’s inception in 2019</p><p>·  The research that he has conducted and relevant findings</p><p>·  The role of autoimmunity in EDS and HSD</p><p>·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)</p><p>·  The role of the immune system in symptomatic joint hypermobility</p><p>·  The relationship with fibromyalgia</p><p>·  What percentage of patients are diagnosed with hEDS vs HSD</p><p>·  What he says to people who assume that HSD is a less serious condition</p><p><br></p><p><br></p><p>This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.  </p><p><br></p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p> </p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, and services mentioned in this episode:</p><p><br></p><p><a href="https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/"><strong>Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect</strong></a></p><p><a href="https://www.mayoclinic.org/departments-centers/ehlers-danlos-syndrome-clinic-florida/overview/ovc-20522975"><strong>Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic</strong></a></p><p><a href="https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206">https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206</a></p><p><a href="https://x.com/knidac?s=21">https://x.com/knidac?s=21</a></p><p><a href="https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full">https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full</a></p><p><a href="https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf">https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf</a></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/35687402/">https://pubmed.ncbi.nlm.nih.gov/35687402/</a></p><p><a href="https://www.ehlers-danlos.com/">https://www.ehlers-danlos.com/</a></p><p><a href="https://www.ehlers-danlos.com/healthcare-professionals-directory/">https://www.ehlers-danlos.com/healthcare-professionals-directory/</a></p><p><br></p><p>#BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax</p><p>#SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration</p><p>#InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility</p> In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  What specialty evaluations are most important for patients with hypermobility syndromes ·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD ·  How they determine when to perform genetic testing and the findings in this group of patients ·  How his approach has evolved since the clinic’s inception in 2019 ·  The research that he has conducted and relevant findings ·  The role of autoimmunity in EDS and HSD ·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS) ·  The role of the immune system in symptomatic joint hypermobility ·  The relationship with fibromyalgia ·  What percentage of patients are diagnosed with hEDS vs HSD ·  What he says to people who assume that HSD is a less serious condition This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206 https://x.com/knidac?s=21 https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf https://pubmed.ncbi.nlm.nih.gov/35687402/ https://www.ehlers-danlos.com/ https://www.ehlers-danlos.com/healthcare-professionals-directory/ #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.  

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

     

    Explored in this episode:

    ·  What specialty evaluations are most important for patients with hypermobility syndromes

    ·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD

    ·  How they determine when to perform genetic testing and the findings in this group of patients

    ·  How his approach has evolved since the clinic’s inception in 2019

    ·  The research that he has conducted and relevant findings

    ·  The role of autoimmunity in EDS and HSD

    ·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)

    ·  The role of the immune system in symptomatic joint hypermobility

    ·  The relationship with fibromyalgia

    ·  What percentage of patients are diagnosed with hEDS vs HSD

    ·  What he says to people who assume that HSD is a less serious condition



    This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.  


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

     

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect

    Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic

    https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206

    https://x.com/knidac?s=21

    https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full

    https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf

    https://pubmed.ncbi.nlm.nih.gov/35687402/

    https://www.ehlers-danlos.com/

    https://www.ehlers-danlos.com/healthcare-professionals-directory/


    #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax

    #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration

    #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4851 no     79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD https://share.transistor.fm/s/0efccc1d In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles.  His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome)  ·  How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related ·  What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis ·  How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware”  ·  What correlations exist between Crohn's disease, irritable bowel disease and RLS ·  Why it is so crucially important to listen to AND believe our patients ·  How Mast Cell Activation Disease and MCAS differ from one another ·  Why the term “syndrome” can be problematic ·  What environmental factors can play a role in MCAS ·  When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis ·  What testing can be performed for MCAS and the significance of tryptase levels  ·  How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.    The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life. This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.gidoctor.net/provider/leonard-weinstock-md https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/ https://www.mcasfund.org/ https://www.nowleap.com/leap/ https://www.ifm.org/ https://ldnresearchtrust.org/ https://www.ldnscience.org/ https://www.genebygene.com/   #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome  #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast  #PodcastDiscoveries #EDSdoctor #CompressionSyndrome Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 16 Nov 2023 10:00:00 -0000 79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD full 79 Dr. Linda Bluestein <p>In this episode, YOUR guest is gastroenterologist <a href="https://www.gidoctor.net/provider/leonard-weinstock-md">Leonard Weinstock, MD</a>, author of over 150 peer-reviewed journal articles.  His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.</p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p> </p><p>Explored in this episode:</p><p>·  What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome) </p><p>·  How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related</p><p>·  What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis</p><p>·  How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware” </p><p>·  What correlations exist between Crohn's disease, irritable bowel disease and RLS</p><p>·  Why it is so crucially important to listen to AND believe our patients</p><p>·  How Mast Cell Activation Disease and MCAS differ from one another</p><p>·  Why the term “syndrome” can be problematic</p><p>·  What environmental factors can play a role in MCAS</p><p>·  When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis</p><p>·  What testing can be performed for MCAS and the significance of tryptase levels </p><p>·  How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.   </p><p><br></p><p>The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.</p><p><br></p><p>This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.  </p><p><br></p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p> </p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, and services mentioned in this episode:</p><p><br></p><p><a href="https://www.gidoctor.net/provider/leonard-weinstock-md">https://www.gidoctor.net/provider/leonard-weinstock-md</a></p><p><a href="https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/">https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/</a></p><p><a href="https://www.mcasfund.org/">https://www.mcasfund.org/</a></p><p><a href="https://www.nowleap.com/leap/">https://www.nowleap.com/leap/</a></p><p><a href="https://www.ifm.org/">https://www.ifm.org/</a></p><p><a href="https://ldnresearchtrust.org/">https://ldnresearchtrust.org/</a></p><p><a href="https://www.ldnscience.org/">https://www.ldnscience.org/</a></p><p><a href="https://www.genebygene.com/">https://www.genebygene.com/</a></p><p> </p><p><br></p><p>#BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome  #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast </p><p>#PodcastDiscoveries #EDSdoctor #CompressionSyndrome</p> In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles.  His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome)  ·  How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related ·  What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis ·  How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware”  ·  What correlations exist between Crohn's disease, irritable bowel disease and RLS ·  Why it is so crucially important to listen to AND believe our patients ·  How Mast Cell Activation Disease and MCAS differ from one another ·  Why the term “syndrome” can be problematic ·  What environmental factors can play a role in MCAS ·  When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis ·  What testing can be performed for MCAS and the significance of tryptase levels  ·  How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.    The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life. This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.gidoctor.net/provider/leonard-weinstock-md https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/ https://www.mcasfund.org/ https://www.nowleap.com/leap/ https://www.ifm.org/ https://ldnresearchtrust.org/ https://www.ldnscience.org/ https://www.genebygene.com/   #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome  #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast  #PodcastDiscoveries #EDSdoctor #CompressionSyndrome Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles.  His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

     

    Explored in this episode:

    ·  What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome) 

    ·  How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related

    ·  What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis

    ·  How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware” 

    ·  What correlations exist between Crohn's disease, irritable bowel disease and RLS

    ·  Why it is so crucially important to listen to AND believe our patients

    ·  How Mast Cell Activation Disease and MCAS differ from one another

    ·  Why the term “syndrome” can be problematic

    ·  What environmental factors can play a role in MCAS

    ·  When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis

    ·  What testing can be performed for MCAS and the significance of tryptase levels 

    ·  How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.   


    The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.


    This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.  


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

     

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://www.gidoctor.net/provider/leonard-weinstock-md

    https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/

    https://www.mcasfund.org/

    https://www.nowleap.com/leap/

    https://www.ifm.org/

    https://ldnresearchtrust.org/

    https://www.ldnscience.org/

    https://www.genebygene.com/

     


    #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome  #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast 

    #PodcastDiscoveries #EDSdoctor #CompressionSyndrome

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3610 no     78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C https://share.transistor.fm/s/f2f69482 In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered.  Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  Inequality in healthcare and how we can best advocate for ourselves ·  Why we should prioritize diversity, equity, and inclusion in medical spaces  ·  The need for personal responsibility when learning about sensitive topics  ·  Discrimination and power dynamics in the healthcare setting  ·  Handling microaggressions ·  Addressing internalized ableism   ·  The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.healedandempowered.com/   #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 Nov 2023 10:03:00 -0000 78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C full 78 Dr. Linda Bluestein <p>In this episode, YOUR guest is <a href="https://www.healedandempowered.com/">Brianna Cardenas</a>, DMSC, PA-C, ATC and the founder of Healed and Empowered.  Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. </p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p> </p><p>Explored in this episode:</p><p>·  Inequality in healthcare and how we can best advocate for ourselves</p><p>·  Why we should prioritize diversity, equity, and inclusion in medical spaces </p><p>·  The need for personal responsibility when learning about sensitive topics </p><p>·  Discrimination and power dynamics in the healthcare setting </p><p>·  Handling microaggressions</p><p>·  Addressing internalized ableism  </p><p>·  The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC</p><p><br></p><p>This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.  </p><p><br></p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p> </p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, and services mentioned in this episode:</p><p><br></p><p><a href="https://www.healedandempowered.com/">https://www.healedandempowered.com/</a></p><p><br></p><p> </p><p>#Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor</p> In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered.  Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  Inequality in healthcare and how we can best advocate for ourselves ·  Why we should prioritize diversity, equity, and inclusion in medical spaces  ·  The need for personal responsibility when learning about sensitive topics  ·  Discrimination and power dynamics in the healthcare setting  ·  Handling microaggressions ·  Addressing internalized ableism   ·  The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.healedandempowered.com/   #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered.  Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. 


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

     

    Explored in this episode:

    ·  Inequality in healthcare and how we can best advocate for ourselves

    ·  Why we should prioritize diversity, equity, and inclusion in medical spaces 

    ·  The need for personal responsibility when learning about sensitive topics 

    ·  Discrimination and power dynamics in the healthcare setting 

    ·  Handling microaggressions

    ·  Addressing internalized ableism  

    ·  The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC


    This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.  


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

     

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://www.healedandempowered.com/


     

    #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4017 no     77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD https://share.transistor.fm/s/62a45538 In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York.  Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension.  Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws.  He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry. YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·   How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation ·   Why people with EDS are at increased risk of craniocervical instability·   What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability ·   Why he started performing surgery for Eagle’s Syndrome ·   Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems·   Causes of elevated intracranial pressure  This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment.  It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player.  Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial. This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://chiariedscenter.com/ Access Dr. Bolognese's intake forms here. https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0 #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 02 Nov 2023 09:14:00 -0000 77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD full 77 Dr. Linda Bluestein <p>In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York.  Dr. Bolognese is also on the Board of Directors of the American Syringomyelia &amp; Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension.  Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws.  He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry.</p><p>YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions. </p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.<br> <br>Explored in this episode:<br>·   How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation <br>·   Why people with EDS are at increased risk of craniocervical instability<br>·   What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability <br>·   Why he started performing surgery for Eagle’s Syndrome <br>·   Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems<br>·   Causes of elevated intracranial pressure</p><p> <br>This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment.  It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player.  Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial.</p><p><br>This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.  </p><p>Connect with YOUR Bendy Specialist, Linda Bluestein, MD!<br> <br>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.<br> <br>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.       </p><p>YOUR bendy body is our highest priority!</p><p>Products, organizations, and services mentioned in this episode:</p><p>https://chiariedscenter.com/</p><p>Access Dr. Bolognese's intake forms <a href="https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&amp;dl=0">here.</a></p><p>https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&amp;dl=0<br> <br>#Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor</p> In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York.  Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension.  Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws.  He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry. YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·   How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation ·   Why people with EDS are at increased risk of craniocervical instability·   What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability ·   Why he started performing surgery for Eagle’s Syndrome ·   Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems·   Causes of elevated intracranial pressure  This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment.  It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player.  Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial. This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://chiariedscenter.com/ Access Dr. Bolognese's intake forms here. https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0 #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York.  Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension.  Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws.  He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry.

    YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.
     
    Explored in this episode:
    ·   How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation
    ·   Why people with EDS are at increased risk of craniocervical instability
    ·   What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability
    ·   Why he started performing surgery for Eagle’s Syndrome
    ·   Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems
    ·   Causes of elevated intracranial pressure

     
    This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment.  It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player.  Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial.


    This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms. 

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
     
    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://chiariedscenter.com/

    Access Dr. Bolognese's intake forms here.

    https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0
     
    #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     8075 no     76. Orofacial Pain with Robinson-Smith, DDS https://share.transistor.fm/s/830d4ee4 In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine.  Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  Why the jaw is problematic so frequently in those with joint hypermobility ·  How ligamentous laxity contributes to jaw dysfunction  ·  The influence of hormones and puberty on jaw pain and function  ·  Open locking - what is it and how can you reduce the risk? ·  How you can make dental visits less traumatic   This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.     Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.ofpcos.com/   #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Oct 2023 09:00:00 -0000 76. Orofacial Pain with Robinson-Smith, DDS full 76 Dr. Linda Bluestein <p>In this episode, YOUR guest is <a href="https://www.ofpcos.com/">Julie Robinson-Smith, DDS</a>, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine.  Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!  </p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p> </p><p>Explored in this episode:</p><p>·  Why the jaw is problematic so frequently in those with joint hypermobility</p><p>·  How ligamentous laxity contributes to jaw dysfunction </p><p>·  The influence of hormones and puberty on jaw pain and function </p><p>·  Open locking - what is it and how can you reduce the risk?</p><p>·  How you can make dental visits less traumatic</p><p><br></p><p> </p><p>This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.  </p><p> </p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p> </p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, and services mentioned in this episode:</p><p><br></p><p>https://www.ofpcos.com/</p><p><br></p><p> </p><p>#Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor</p> In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine.  Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  Why the jaw is problematic so frequently in those with joint hypermobility ·  How ligamentous laxity contributes to jaw dysfunction  ·  The influence of hormones and puberty on jaw pain and function  ·  Open locking - what is it and how can you reduce the risk? ·  How you can make dental visits less traumatic   This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.     Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.ofpcos.com/   #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine.  Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!  


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

     

    Explored in this episode:

    ·  Why the jaw is problematic so frequently in those with joint hypermobility

    ·  How ligamentous laxity contributes to jaw dysfunction 

    ·  The influence of hormones and puberty on jaw pain and function 

    ·  Open locking - what is it and how can you reduce the risk?

    ·  How you can make dental visits less traumatic


     

    This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.  

     

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

     

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://www.ofpcos.com/


     

    #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2542 no     75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, DPT https://share.transistor.fm/s/bc455a37 In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions.  Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland.  Dr Stott is the founder of Elevation Wellness, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki.  She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  Whether or not hypermobility spectrum disorder (HSD) and Ehlers-Danlos Syndrome (EDS) have different clinical presentations ·  Severity of presentation versus the severity of instability ·  How inflammation impacts cervical instability ·  How dysfunction in other bodily systems can impact cervical instability  ·  Treatment options beyond “usual” physical therapy and surgery    This important conversation about causes of cervical instability beyond the neck will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact instability of the neck.     Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://chalelapti.com/about-us/ https://peterattiamd.com/outlive/ https://www.posturalrestoration.com/ https://www.uprightmrico.com/ https://www.asha.org/practice-portal/clinical-topics/orofacial-myofunctional-disorders/ https://www.tarlovcystfoundation.org/ https://www.elevationwellness.co/ https://www.frontiersin.org/articles/10.3389/fmed.2022.1072764/full   #Hypermobility #EDSpodcast #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #PhysicalTherapists #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Oct 2023 09:00:00 -0000 75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, DPT full 75 Dr. Linda Bluestein <p>In this episode, YOUR guest is <a href="https://www.elevationwellness.co/">Patricia Stott, DPT</a>, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions.  Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland.  Dr Stott is the founder of <a href="https://www.elevationwellness.co/">Elevation Wellness</a>, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki. <strong> </strong>She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine.  </p><p><br></p><p>YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.</p><p> </p><p>Explored in this episode:</p><p>·  Whether or not hypermobility spectrum disorder (HSD) and Ehlers-Danlos Syndrome (EDS) have different clinical presentations</p><p>·  Severity of presentation versus the severity of instability</p><p>·  How inflammation impacts cervical instability</p><p>·  How dysfunction in other bodily systems can impact cervical instability </p><p>·  Treatment options beyond “usual” physical therapy and surgery </p><p> </p><p>This important conversation about causes of cervical instability beyond the neck will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact instability of the neck.  </p><p> </p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p> </p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p><br></p><p>Products, organizations, and services mentioned in this episode:</p><p><br></p><p>https://chalelapti.com/about-us/</p><p>https://peterattiamd.com/outlive/</p><p>https://www.posturalrestoration.com/</p><p>https://www.uprightmrico.com/</p><p>https://www.asha.org/practice-portal/clinical-topics/orofacial-myofunctional-disorders/</p><p>https://www.tarlovcystfoundation.org/</p><p>https://www.elevationwellness.co/</p><p>https://www.frontiersin.org/articles/10.3389/fmed.2022.1072764/full</p><p> </p><p>#Hypermobility #EDSpodcast #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #PhysicalTherapists #EDSdoctor</p> In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions.  Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland.  Dr Stott is the founder of Elevation Wellness, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki.  She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.   Explored in this episode: ·  Whether or not hypermobility spectrum disorder (HSD) and Ehlers-Danlos Syndrome (EDS) have different clinical presentations ·  Severity of presentation versus the severity of instability ·  How inflammation impacts cervical instability ·  How dysfunction in other bodily systems can impact cervical instability  ·  Treatment options beyond “usual” physical therapy and surgery    This important conversation about causes of cervical instability beyond the neck will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact instability of the neck.     Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://chalelapti.com/about-us/ https://peterattiamd.com/outlive/ https://www.posturalrestoration.com/ https://www.uprightmrico.com/ https://www.asha.org/practice-portal/clinical-topics/orofacial-myofunctional-disorders/ https://www.tarlovcystfoundation.org/ https://www.elevationwellness.co/ https://www.frontiersin.org/articles/10.3389/fmed.2022.1072764/full   #Hypermobility #EDSpodcast #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #PhysicalTherapists #EDSdoctor Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions.  Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland.  Dr Stott is the founder of Elevation Wellness, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki.  She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine.  


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

     

    Explored in this episode:

    ·  Whether or not hypermobility spectrum disorder (HSD) and Ehlers-Danlos Syndrome (EDS) have different clinical presentations

    ·  Severity of presentation versus the severity of instability

    ·  How inflammation impacts cervical instability

    ·  How dysfunction in other bodily systems can impact cervical instability 

    ·  Treatment options beyond “usual” physical therapy and surgery 

     

    This important conversation about causes of cervical instability beyond the neck will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact instability of the neck.  

     

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

     

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://chalelapti.com/about-us/

    https://peterattiamd.com/outlive/

    https://www.posturalrestoration.com/

    https://www.uprightmrico.com/

    https://www.asha.org/practice-portal/clinical-topics/orofacial-myofunctional-disorders/

    https://www.tarlovcystfoundation.org/

    https://www.elevationwellness.co/

    https://www.frontiersin.org/articles/10.3389/fmed.2022.1072764/full

     

    #Hypermobility #EDSpodcast #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #PhysicalTherapists #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3755 no     74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert https://share.transistor.fm/s/cc5bbae1 In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.   YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer.    Explored in this episode: How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!).  What it’s like for Dr. Bluestein to be a physician who treats hypermobile patients AND a podcaster and social media icon in the hypermobility community. Learn the truth about the challenge of educating hundreds of thousands of people vs. working one-on-one with someone in the clinic setting.  The perfect Bendy Bodies episodes for “newbies” – where to start listening and why – if you’re new to a hypermobility disorder diagnosis or suspicion. Run-away BEST episodes in terms of listenership and the “buzz.” Dr. Bluestein’s favorite part of working with other professionals who care so much about hypermobile patients. What excitement YOU can look forward to in Season 4 of the Bendy Bodies Podcast! Chapters 00:00 Introduction and Background 03:01 Career Trajectory and Transition 08:37 Specializing in Symptomatic Joint Hypermobility 10:24 Challenges in Healthcare System 20:33 Starting the Bendy Bodies Podcast 30:59 Recommended Episodes for New Listeners 35:33 Balancing Expectations and Realities 39:35 The Importance of Patient-Provider Collaboration 40:18 Teaching Healthcare Providers about Hypermobile Conditions 41:37 The Role of Patients in Educating Doctors 42:53 Continual Learning and Growth in Medical Practice 45:08 Practical Tips for Living with Hypermobility 48:28 Hypermobility Hacks and Their Importance 55:41 Working with Professionals in Hypermobility Medicine 01:00:39 The Evolution of the Bendy Bodies Podcast 01:06:23 The Impact of the Bendy Bodies Podcast 03:00 Benefits of Yoga for Flexibility and Strength 09:30 Yoga for Stress Relief and Mental Health 15:45 Yoga for Injury Prevention and Rehabilitation 22:10 Yoga for Overall Well-being 28:20 Different Types of Yoga and Finding the Right Practice 34:50 Yoga for Different Age Groups 40:15 Yoga for Pregnancy and Postpartum 46:40 Yoga for Seniors 52:55 Yoga for Children and Teens 59:20 Yoga for Athletes 01:05:10 Yoga for Chronic Pain Management 01:11:25 Yoga for Specific Health Conditions 01:16:17 Conclusion   This important conversation about the beginnings (and the future) of the Bendy Bodies Podcast featuring the Hypermobility MD will leave you feeling inspired, prepared to get more from this community, and with a better understanding of how to use this platform to improve your health.    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority!     #EDSdoctor #DrBluestein #KateColbert #Hypermobility #EDSpodcast #HypermobilityPodcast #Podcast #HypermobilityMD #Bendy #BendyBuddy #EhlersDanlosSyndrome #EDS #EhlersDanlos  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Oct 2023 09:00:00 -0000 74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert full 74 Dr. Linda Bluestein <p>In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.</p><p> </p><p>YOUR guest co-host – serving up questions to Dr. Bluestein – is <a href="https://www.linkedin.com/in/katecolbert">Kate Colbert</a>, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer. </p><p> </p><p>Explored in this episode:</p><ul><li>How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!). </li><li>What it’s like for Dr. Bluestein to be a physician who treats hypermobile patients AND a podcaster and social media icon in the hypermobility community. Learn the truth about the challenge of educating hundreds of thousands of people vs. working one-on-one with someone in the clinic setting. </li><li>The perfect Bendy Bodies episodes for “newbies” – where to start listening and why – if you’re new to a hypermobility disorder diagnosis or suspicion.</li><li>Run-away BEST episodes in terms of listenership and the “buzz.”</li><li>Dr. Bluestein’s favorite part of working with other professionals who care so much about hypermobile patients.</li><li>What excitement YOU can look forward to in Season 4 of the Bendy Bodies Podcast!</li></ul><p>Chapters</p><p><br></p><p>00:00 Introduction and Background</p><p>03:01 Career Trajectory and Transition</p><p>08:37 Specializing in Symptomatic Joint Hypermobility</p><p>10:24 Challenges in Healthcare System</p><p>20:33 Starting the Bendy Bodies Podcast</p><p>30:59 Recommended Episodes for New Listeners</p><p>35:33 Balancing Expectations and Realities</p><p>39:35 The Importance of Patient-Provider Collaboration</p><p>40:18 Teaching Healthcare Providers about Hypermobile Conditions</p><p>41:37 The Role of Patients in Educating Doctors</p><p>42:53 Continual Learning and Growth in Medical Practice</p><p>45:08 Practical Tips for Living with Hypermobility</p><p>48:28 Hypermobility Hacks and Their Importance</p><p>55:41 Working with Professionals in Hypermobility Medicine</p><p>01:00:39 The Evolution of the Bendy Bodies Podcast</p><p>01:06:23 The Impact of the Bendy Bodies Podcast</p><p>03:00 Benefits of Yoga for Flexibility and Strength</p><p>09:30 Yoga for Stress Relief and Mental Health</p><p>15:45 Yoga for Injury Prevention and Rehabilitation</p><p>22:10 Yoga for Overall Well-being</p><p>28:20 Different Types of Yoga and Finding the Right Practice</p><p>34:50 Yoga for Different Age Groups</p><p>40:15 Yoga for Pregnancy and Postpartum</p><p>46:40 Yoga for Seniors</p><p>52:55 Yoga for Children and Teens</p><p>59:20 Yoga for Athletes</p><p>01:05:10 Yoga for Chronic Pain Management</p><p>01:11:25 Yoga for Specific Health Conditions</p><p>01:16:17 Conclusion</p><p> </p><p>This important conversation about the beginnings (and the future) of the Bendy Bodies Podcast featuring the Hypermobility MD will leave you feeling inspired, prepared to get more from this community, and with a better understanding of how to use this platform to improve your health. </p><p> </p><p>Connect with YOUR Bendy Specialist,<a href="http://www.hypermobilitymd.com/"> Linda Bluestein, MD</a>!</p><p> </p><p>Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.</p><p> </p><p>Join YOUR Bendy Bodies community at <a href="https://www.bendybodiespodcast.com/">https://www.bendybodiespodcast.com/</a>.      </p><p><br></p><p>YOUR bendy body is our highest priority!</p><p> </p><p> </p><p>#EDSdoctor #DrBluestein #KateColbert #Hypermobility #EDSpodcast #HypermobilityPodcast #Podcast #HypermobilityMD #Bendy #BendyBuddy #EhlersDanlosSyndrome #EDS #EhlersDanlos </p> In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.   YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer.    Explored in this episode: How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!).  What it’s like for Dr. Bluestein to be a physician who treats hypermobile patients AND a podcaster and social media icon in the hypermobility community. Learn the truth about the challenge of educating hundreds of thousands of people vs. working one-on-one with someone in the clinic setting.  The perfect Bendy Bodies episodes for “newbies” – where to start listening and why – if you’re new to a hypermobility disorder diagnosis or suspicion. Run-away BEST episodes in terms of listenership and the “buzz.” Dr. Bluestein’s favorite part of working with other professionals who care so much about hypermobile patients. What excitement YOU can look forward to in Season 4 of the Bendy Bodies Podcast! Chapters 00:00 Introduction and Background 03:01 Career Trajectory and Transition 08:37 Specializing in Symptomatic Joint Hypermobility 10:24 Challenges in Healthcare System 20:33 Starting the Bendy Bodies Podcast 30:59 Recommended Episodes for New Listeners 35:33 Balancing Expectations and Realities 39:35 The Importance of Patient-Provider Collaboration 40:18 Teaching Healthcare Providers about Hypermobile Conditions 41:37 The Role of Patients in Educating Doctors 42:53 Continual Learning and Growth in Medical Practice 45:08 Practical Tips for Living with Hypermobility 48:28 Hypermobility Hacks and Their Importance 55:41 Working with Professionals in Hypermobility Medicine 01:00:39 The Evolution of the Bendy Bodies Podcast 01:06:23 The Impact of the Bendy Bodies Podcast 03:00 Benefits of Yoga for Flexibility and Strength 09:30 Yoga for Stress Relief and Mental Health 15:45 Yoga for Injury Prevention and Rehabilitation 22:10 Yoga for Overall Well-being 28:20 Different Types of Yoga and Finding the Right Practice 34:50 Yoga for Different Age Groups 40:15 Yoga for Pregnancy and Postpartum 46:40 Yoga for Seniors 52:55 Yoga for Children and Teens 59:20 Yoga for Athletes 01:05:10 Yoga for Chronic Pain Management 01:11:25 Yoga for Specific Health Conditions 01:16:17 Conclusion   This important conversation about the beginnings (and the future) of the Bendy Bodies Podcast featuring the Hypermobility MD will leave you feeling inspired, prepared to get more from this community, and with a better understanding of how to use this platform to improve your health.    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.   Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority!     #EDSdoctor #DrBluestein #KateColbert #Hypermobility #EDSpodcast #HypermobilityPodcast #Podcast #HypermobilityMD #Bendy #BendyBuddy #EhlersDanlosSyndrome #EDS #EhlersDanlos  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.

     

    YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer. 

     

    Explored in this episode:

    • How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!). 
    • What it’s like for Dr. Bluestein to be a physician who treats hypermobile patients AND a podcaster and social media icon in the hypermobility community. Learn the truth about the challenge of educating hundreds of thousands of people vs. working one-on-one with someone in the clinic setting. 
    • The perfect Bendy Bodies episodes for “newbies” – where to start listening and why – if you’re new to a hypermobility disorder diagnosis or suspicion.
    • Run-away BEST episodes in terms of listenership and the “buzz.”
    • Dr. Bluestein’s favorite part of working with other professionals who care so much about hypermobile patients.
    • What excitement YOU can look forward to in Season 4 of the Bendy Bodies Podcast!

    Chapters


    00:00 Introduction and Background

    03:01 Career Trajectory and Transition

    08:37 Specializing in Symptomatic Joint Hypermobility

    10:24 Challenges in Healthcare System

    20:33 Starting the Bendy Bodies Podcast

    30:59 Recommended Episodes for New Listeners

    35:33 Balancing Expectations and Realities

    39:35 The Importance of Patient-Provider Collaboration

    40:18 Teaching Healthcare Providers about Hypermobile Conditions

    41:37 The Role of Patients in Educating Doctors

    42:53 Continual Learning and Growth in Medical Practice

    45:08 Practical Tips for Living with Hypermobility

    48:28 Hypermobility Hacks and Their Importance

    55:41 Working with Professionals in Hypermobility Medicine

    01:00:39 The Evolution of the Bendy Bodies Podcast

    01:06:23 The Impact of the Bendy Bodies Podcast

    03:00 Benefits of Yoga for Flexibility and Strength

    09:30 Yoga for Stress Relief and Mental Health

    15:45 Yoga for Injury Prevention and Rehabilitation

    22:10 Yoga for Overall Well-being

    28:20 Different Types of Yoga and Finding the Right Practice

    34:50 Yoga for Different Age Groups

    40:15 Yoga for Pregnancy and Postpartum

    46:40 Yoga for Seniors

    52:55 Yoga for Children and Teens

    59:20 Yoga for Athletes

    01:05:10 Yoga for Chronic Pain Management

    01:11:25 Yoga for Specific Health Conditions

    01:16:17 Conclusion

     

    This important conversation about the beginnings (and the future) of the Bendy Bodies Podcast featuring the Hypermobility MD will leave you feeling inspired, prepared to get more from this community, and with a better understanding of how to use this platform to improve your health. 

     

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

     

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

     

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      


    YOUR bendy body is our highest priority!

     

     

    #EDSdoctor #DrBluestein #KateColbert #Hypermobility #EDSpodcast #HypermobilityPodcast #Podcast #HypermobilityMD #Bendy #BendyBuddy #EhlersDanlosSyndrome #EDS #EhlersDanlos 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4748 no     73. Understanding Lower Extremity Pain with Pradeep Chopra, MD https://share.transistor.fm/s/007df941 The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain. Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into multiple possible causes of issues in these joints. Dr. Chopra discusses why rolling of the ankles is unhealthy, even if it’s asymptomatic, explains how pain in one part of the leg may be due to an issue in a different joint, and explores why and how you might correct knee hyperextension. Dr. Chopra dives into the hip joint structure, outlining possible reasons for hip subluxation. He shares different ways to treat SI joint pain, and offers practical suggestions for dealing with multiple lower extremity pain issues. Filled with detailed information, accessible medical explanations, and Dr. Chopra’s popular “hack” tips, this episode belongs on your must-listen list! Learn more about Dr. Chopra here. Check out the products discussed during this episode: https://pedagusa.com/ https://medspec.com/product-category/knee/patellofemoral/ https://www.bauerfeind.com/ https://www.drmartens.com/us/en/ https://www.converse.com/ #Podcast #HypermobilityHacks #HypermobilitySyndrome #HypermobilitySpectrumDisorder #EhlersDanlos #Hypermobility #Hyperextension #HipPain #Subluxation #PainManagementStrategies #JointPainRelief #LowerBodyPain #MobilityIssues #HipProblems #JointHealth #ChronicPainSupport #LowerBackPain #KneePain #BendyBuddy Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 31 Aug 2023 09:00:00 -0000 73. Understanding Lower Extremity Pain with Pradeep Chopra, MD full 73 Dr. Linda Bluestein <p>The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain.</p><p><br></p><p>Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into multiple possible causes of issues in these joints.</p><p><br></p><p>Dr. Chopra discusses why rolling of the ankles is unhealthy, even if it’s asymptomatic, explains how pain in one part of the leg may be due to an issue in a different joint, and explores why and how you might correct knee hyperextension.</p><p><br></p><p>Dr. Chopra dives into the hip joint structure, outlining possible reasons for hip subluxation. He shares different ways to treat SI joint pain, and offers practical suggestions for dealing with multiple lower extremity pain issues.</p><p><br></p><p>Filled with detailed information, accessible medical explanations, and Dr. Chopra’s popular “hack” tips, this episode belongs on your must-listen list!</p><p><br></p><p>Learn more about Dr. Chopra <a href="https://painri.com/">here</a>.</p><p><br></p><p>Check out the products discussed during this episode:</p><p><a href="https://pedagusa.com/">https://pedagusa.com/</a></p><p><a href="https://medspec.com/product-category/knee/patellofemoral/">https://medspec.com/product-category/knee/patellofemoral/</a></p><p><a href="https://www.bauerfeind.com/">https://www.bauerfeind.com/</a></p><p><a href="https://www.drmartens.com/us/en/">https://www.drmartens.com/us/en/</a></p><p><a href="https://www.converse.com/">https://www.converse.com/</a></p><p><br></p><p>#Podcast #HypermobilityHacks #HypermobilitySyndrome #HypermobilitySpectrumDisorder #EhlersDanlos #Hypermobility #Hyperextension #HipPain #Subluxation #PainManagementStrategies #JointPainRelief #LowerBodyPain #MobilityIssues #HipProblems #JointHealth #ChronicPainSupport #LowerBackPain #KneePain #BendyBuddy</p> The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain. Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into multiple possible causes of issues in these joints. Dr. Chopra discusses why rolling of the ankles is unhealthy, even if it’s asymptomatic, explains how pain in one part of the leg may be due to an issue in a different joint, and explores why and how you might correct knee hyperextension. Dr. Chopra dives into the hip joint structure, outlining possible reasons for hip subluxation. He shares different ways to treat SI joint pain, and offers practical suggestions for dealing with multiple lower extremity pain issues. Filled with detailed information, accessible medical explanations, and Dr. Chopra’s popular “hack” tips, this episode belongs on your must-listen list! Learn more about Dr. Chopra here. Check out the products discussed during this episode: https://pedagusa.com/ https://medspec.com/product-category/knee/patellofemoral/ https://www.bauerfeind.com/ https://www.drmartens.com/us/en/ https://www.converse.com/ #Podcast #HypermobilityHacks #HypermobilitySyndrome #HypermobilitySpectrumDisorder #EhlersDanlos #Hypermobility #Hyperextension #HipPain #Subluxation #PainManagementStrategies #JointPainRelief #LowerBodyPain #MobilityIssues #HipProblems #JointHealth #ChronicPainSupport #LowerBackPain #KneePain #BendyBuddy Learn more about your ad choices. Visit megaphone.fm/adchoices The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain.


    Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into multiple possible causes of issues in these joints.


    Dr. Chopra discusses why rolling of the ankles is unhealthy, even if it’s asymptomatic, explains how pain in one part of the leg may be due to an issue in a different joint, and explores why and how you might correct knee hyperextension.


    Dr. Chopra dives into the hip joint structure, outlining possible reasons for hip subluxation. He shares different ways to treat SI joint pain, and offers practical suggestions for dealing with multiple lower extremity pain issues.


    Filled with detailed information, accessible medical explanations, and Dr. Chopra’s popular “hack” tips, this episode belongs on your must-listen list!


    Learn more about Dr. Chopra here.


    Check out the products discussed during this episode:

    https://pedagusa.com/

    https://medspec.com/product-category/knee/patellofemoral/

    https://www.bauerfeind.com/

    https://www.drmartens.com/us/en/

    https://www.converse.com/


    #Podcast #HypermobilityHacks #HypermobilitySyndrome #HypermobilitySpectrumDisorder #EhlersDanlos #Hypermobility #Hyperextension #HipPain #Subluxation #PainManagementStrategies #JointPainRelief #LowerBodyPain #MobilityIssues #HipProblems #JointHealth #ChronicPainSupport #LowerBackPain #KneePain #BendyBuddy

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3371 no     72. Examining Upper Extremity Pain with Pradeep Chopra, MD https://share.transistor.fm/s/f487f932 Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities. Dr. Chopra breaks down the shoulder joint and its inherent instability. He gives advice on how to have hard conversations about sports that push an excessive range of motion in the upper extremities, and addresses noisy joints (eg: cavitation) in the hypermobile person. Dr. Chopra shares his experience with muscle relaxants, and why releasing tight muscles is not always helpful with joint pain. He also explains thoracic outlet syndrome and how it can mimic cervical disc issues, making it difficult to find effective treatments.  We cover complex regional pain syndrome (CRPS) and how this extremely painful condition may influence treatment choices.  Pain and hypermobility in the wrists and hands are covered, and Dr. Chopra shares how your writing style might be influenced by joint hypermobility. He offers hacks to increase proprioception in fine motor skills, and explains the downside to wearing a full hand brace. With an incredible body of knowledge to share, Dr. Chopra continues to help us examine complicated issues in a methodical way. For doctors, therapists, patients, and anyone associated with connective tissue disorders, this is another episode to add to your must-listen list. Learn more about Dr. Chopra here. Check out the products discussed during this episode: https://www.oxo.com/ https://www.ancient-minerals.com/ https://www.zebrasplints.com/ https://www.etsy.com/ Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Aug 2023 09:00:00 -0000 72. Examining Upper Extremity Pain with Pradeep Chopra, MD full 72 Dr. Linda Bluestein <p>Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities.</p><p><br></p><p>Dr. Chopra breaks down the shoulder joint and its inherent instability. He gives advice on how to have hard conversations about sports that push an excessive range of motion in the upper extremities, and addresses noisy joints (eg: cavitation) in the hypermobile person.</p><p><br></p><p>Dr. Chopra shares his experience with muscle relaxants, and why releasing tight muscles is not always helpful with joint pain. He also explains thoracic outlet syndrome and how it can mimic cervical disc issues, making it difficult to find effective treatments.  We cover complex regional pain syndrome (CRPS) and how this extremely painful condition may influence treatment choices. </p><p><br></p><p>Pain and hypermobility in the wrists and hands are covered, and Dr. Chopra shares how your writing style might be influenced by joint hypermobility. He offers hacks to increase proprioception in fine motor skills, and explains the downside to wearing a full hand brace.</p><p><br></p><p>With an incredible body of knowledge to share, Dr. Chopra continues to help us examine complicated issues in a methodical way.</p><p><br></p><p>For doctors, therapists, patients, and anyone associated with connective tissue disorders, this is another episode to add to your must-listen list.</p><p><br></p><p>Learn more about Dr. Chopra <a href="https://painri.com/">here</a>.</p><p><br></p><p>Check out the products discussed during this episode:</p><p><br><a href="https://www.oxo.com/">https://www.oxo.com/</a></p><p><a href="https://www.ancient-minerals.com/">https://www.ancient-minerals.com/</a></p><p><a href="https://www.zebrasplints.com/">https://www.zebrasplints.com/</a></p><p><a href="https://www.etsy.com/">https://www.etsy.com/</a></p> Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities. Dr. Chopra breaks down the shoulder joint and its inherent instability. He gives advice on how to have hard conversations about sports that push an excessive range of motion in the upper extremities, and addresses noisy joints (eg: cavitation) in the hypermobile person. Dr. Chopra shares his experience with muscle relaxants, and why releasing tight muscles is not always helpful with joint pain. He also explains thoracic outlet syndrome and how it can mimic cervical disc issues, making it difficult to find effective treatments.  We cover complex regional pain syndrome (CRPS) and how this extremely painful condition may influence treatment choices.  Pain and hypermobility in the wrists and hands are covered, and Dr. Chopra shares how your writing style might be influenced by joint hypermobility. He offers hacks to increase proprioception in fine motor skills, and explains the downside to wearing a full hand brace. With an incredible body of knowledge to share, Dr. Chopra continues to help us examine complicated issues in a methodical way. For doctors, therapists, patients, and anyone associated with connective tissue disorders, this is another episode to add to your must-listen list. Learn more about Dr. Chopra here. Check out the products discussed during this episode: https://www.oxo.com/ https://www.ancient-minerals.com/ https://www.zebrasplints.com/ https://www.etsy.com/ Learn more about your ad choices. Visit megaphone.fm/adchoices Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities.


    Dr. Chopra breaks down the shoulder joint and its inherent instability. He gives advice on how to have hard conversations about sports that push an excessive range of motion in the upper extremities, and addresses noisy joints (eg: cavitation) in the hypermobile person.


    Dr. Chopra shares his experience with muscle relaxants, and why releasing tight muscles is not always helpful with joint pain. He also explains thoracic outlet syndrome and how it can mimic cervical disc issues, making it difficult to find effective treatments.  We cover complex regional pain syndrome (CRPS) and how this extremely painful condition may influence treatment choices. 


    Pain and hypermobility in the wrists and hands are covered, and Dr. Chopra shares how your writing style might be influenced by joint hypermobility. He offers hacks to increase proprioception in fine motor skills, and explains the downside to wearing a full hand brace.


    With an incredible body of knowledge to share, Dr. Chopra continues to help us examine complicated issues in a methodical way.


    For doctors, therapists, patients, and anyone associated with connective tissue disorders, this is another episode to add to your must-listen list.


    Learn more about Dr. Chopra here.


    Check out the products discussed during this episode:


    https://www.oxo.com/

    https://www.ancient-minerals.com/

    https://www.zebrasplints.com/

    https://www.etsy.com/

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4885 no     71. Examining Head, Spine, and Chest Pain with Pradeep Chopra, MD https://share.transistor.fm/s/d90174d2 Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something. We’re in the midst of our summer series with Dr. Pradeep Chopra, renowned expert on connective tissue disorders such as Ehlers-Danlos Syndromes. In this discussion, Dr. Chopra talks through several common causes of head, neck, and chest pain in people with connective tissue disorders or symptomatic joint hypermobility. Dr. Chopra discusses his approach to exploring a patient’s signs and symptoms, and dives into common causes of headaches in this population and how to seek treatment. He shares headache hacks for different types of head pain and explains Chiari malformation and various problems that may arise from it. Dr. Chopra also offers hacks for TMD head pain, and touches briefly on craniocervical instability. He shares why he looks for cranial settling, looks at rib subluxations, and offers hacks for them as well. Finally, Dr. Chopra discusses chronic pain and the loneliness it may cause, emphasizing the benefits that may come from having an understanding support group. Another episode full of wisdom and encouragement from one of the world’s top experts in his field, you will find yourself listening, saving and sharing it with everyone! . . . . . #RootCauseAnalysis #PatientCare #HeadAndSpineHealth #ChiariAwareness #UprightMRIAdvantage #SpinalConditions #ChiariWarrior #MRIInnovation #NeurologicalDisorders #SpineHealthMatters #ChiariJourney #AdvancedImaging #HSD  #JointHyermobility  #ChronicIllness  #ChronicPain  #EhlersDanlos --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Jul 2023 08:54:00 -0000 71. Examining Head, Spine, and Chest Pain with Pradeep Chopra, MD full 71 Dr. Linda Bluestein <p>Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something.</p><p>We’re in the midst of our summer series with Dr. Pradeep Chopra, renowned expert on connective tissue disorders such as Ehlers-Danlos Syndromes. In this discussion, Dr. Chopra talks through several common causes of head, neck, and chest pain in people with connective tissue disorders or symptomatic joint hypermobility.</p><p>Dr. Chopra discusses his approach to exploring a patient’s signs and symptoms, and dives into common causes of headaches in this population and how to seek treatment. He shares headache hacks for different types of head pain and explains Chiari malformation and various problems that may arise from it.</p><p>Dr. Chopra also offers hacks for TMD head pain, and touches briefly on craniocervical instability. He shares why he looks for cranial settling, looks at rib subluxations, and offers hacks for them as well. Finally, Dr. Chopra discusses chronic pain and the loneliness it may cause, emphasizing the benefits that may come from having an understanding support group.</p><p>Another episode full of wisdom and encouragement from one of the world’s top experts in his field, you will find yourself listening, saving and sharing it with everyone!</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#RootCauseAnalysis #PatientCare #HeadAndSpineHealth #ChiariAwareness #UprightMRIAdvantage #SpinalConditions #ChiariWarrior #MRIInnovation #NeurologicalDisorders #SpineHealthMatters #ChiariJourney #AdvancedImaging #HSD  #JointHyermobility  #ChronicIllness  #ChronicPain  #EhlersDanlos --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something. We’re in the midst of our summer series with Dr. Pradeep Chopra, renowned expert on connective tissue disorders such as Ehlers-Danlos Syndromes. In this discussion, Dr. Chopra talks through several common causes of head, neck, and chest pain in people with connective tissue disorders or symptomatic joint hypermobility. Dr. Chopra discusses his approach to exploring a patient’s signs and symptoms, and dives into common causes of headaches in this population and how to seek treatment. He shares headache hacks for different types of head pain and explains Chiari malformation and various problems that may arise from it. Dr. Chopra also offers hacks for TMD head pain, and touches briefly on craniocervical instability. He shares why he looks for cranial settling, looks at rib subluxations, and offers hacks for them as well. Finally, Dr. Chopra discusses chronic pain and the loneliness it may cause, emphasizing the benefits that may come from having an understanding support group. Another episode full of wisdom and encouragement from one of the world’s top experts in his field, you will find yourself listening, saving and sharing it with everyone! . . . . . #RootCauseAnalysis #PatientCare #HeadAndSpineHealth #ChiariAwareness #UprightMRIAdvantage #SpinalConditions #ChiariWarrior #MRIInnovation #NeurologicalDisorders #SpineHealthMatters #ChiariJourney #AdvancedImaging #HSD  #JointHyermobility  #ChronicIllness  #ChronicPain  #EhlersDanlos --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something.

    We’re in the midst of our summer series with Dr. Pradeep Chopra, renowned expert on connective tissue disorders such as Ehlers-Danlos Syndromes. In this discussion, Dr. Chopra talks through several common causes of head, neck, and chest pain in people with connective tissue disorders or symptomatic joint hypermobility.

    Dr. Chopra discusses his approach to exploring a patient’s signs and symptoms, and dives into common causes of headaches in this population and how to seek treatment. He shares headache hacks for different types of head pain and explains Chiari malformation and various problems that may arise from it.

    Dr. Chopra also offers hacks for TMD head pain, and touches briefly on craniocervical instability. He shares why he looks for cranial settling, looks at rib subluxations, and offers hacks for them as well. Finally, Dr. Chopra discusses chronic pain and the loneliness it may cause, emphasizing the benefits that may come from having an understanding support group.

    Another episode full of wisdom and encouragement from one of the world’s top experts in his field, you will find yourself listening, saving and sharing it with everyone!

    .

    .

    .

    .

    .

    #RootCauseAnalysis #PatientCare #HeadAndSpineHealth #ChiariAwareness #UprightMRIAdvantage #SpinalConditions #ChiariWarrior #MRIInnovation #NeurologicalDisorders #SpineHealthMatters #ChiariJourney #AdvancedImaging #HSD  #JointHyermobility  #ChronicIllness  #ChronicPain  #EhlersDanlos --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5535 no     70. Examining Abdominal Pain with Pradeep Chopra, MD https://share.transistor.fm/s/4067eab0 Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergists, nutritionists, and pain specialists may look at abdominal pain from very different points of view. So getting complete information can be elusive and frustrating.  That’s why Bendy Bodies took this opportunity to talk about abdominal pain with Dr. Pradeep Chopra, a pain management physician who works with complex chronic pain conditions.  Dr. Chopra lists many possible causes of abdominal pain, and talks through different diagnoses and how they might be interrelated. Dr. Chopra looks at over two dozen different diagnoses, from gastroparesis to small intestinal bacterial overgrowth (SIBO) to postural orthostatic tachycardia syndrome (POTS) to endometriosis. He shares his approach to uncovering abdominal pain sources, as well as the question he asks himself with every patient. Finally, Dr. Chopra offers some concrete tips for people suffering with abdominal pain. He suggests solutions for people who have trouble absorbing medication, and reveals his hacks for people working to sort out the source of their abdominal pain. For doctors looking to deepen their understanding of abdominal pain, as well as people trying to figure their own issues out, this deep dive of a podcast is not to be missed. Learn more about Dr. Chopra here.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 29 Jun 2023 08:06:00 -0000 70. Examining Abdominal Pain with Pradeep Chopra, MD full 70 Dr. Linda Bluestein <p>Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergists, nutritionists, and pain specialists may look at abdominal pain from very different points of view. So getting complete information can be elusive and frustrating. </p><p>That’s why Bendy Bodies took this opportunity to talk about abdominal pain with Dr. Pradeep Chopra, a pain management physician who works with complex chronic pain conditions.  Dr. Chopra lists many possible causes of abdominal pain, and talks through different diagnoses and how they might be interrelated.</p><p>Dr. Chopra looks at over two dozen different diagnoses, from gastroparesis to small intestinal bacterial overgrowth (SIBO) to postural orthostatic tachycardia syndrome (POTS) to endometriosis. He shares his approach to uncovering abdominal pain sources, as well as the question he asks himself with every patient.</p><p>Finally, Dr. Chopra offers some concrete tips for people suffering with abdominal pain. He suggests solutions for people who have trouble absorbing medication, and reveals his hacks for people working to sort out the source of their abdominal pain.</p><p>For doctors looking to deepen their understanding of abdominal pain, as well as people trying to figure their own issues out, this deep dive of a podcast is not to be missed.</p><p><br>Learn more about Dr. Chopra <a href="https://painri.com/">here</a>.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergists, nutritionists, and pain specialists may look at abdominal pain from very different points of view. So getting complete information can be elusive and frustrating.  That’s why Bendy Bodies took this opportunity to talk about abdominal pain with Dr. Pradeep Chopra, a pain management physician who works with complex chronic pain conditions.  Dr. Chopra lists many possible causes of abdominal pain, and talks through different diagnoses and how they might be interrelated. Dr. Chopra looks at over two dozen different diagnoses, from gastroparesis to small intestinal bacterial overgrowth (SIBO) to postural orthostatic tachycardia syndrome (POTS) to endometriosis. He shares his approach to uncovering abdominal pain sources, as well as the question he asks himself with every patient. Finally, Dr. Chopra offers some concrete tips for people suffering with abdominal pain. He suggests solutions for people who have trouble absorbing medication, and reveals his hacks for people working to sort out the source of their abdominal pain. For doctors looking to deepen their understanding of abdominal pain, as well as people trying to figure their own issues out, this deep dive of a podcast is not to be missed. Learn more about Dr. Chopra here.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergists, nutritionists, and pain specialists may look at abdominal pain from very different points of view. So getting complete information can be elusive and frustrating. 

    That’s why Bendy Bodies took this opportunity to talk about abdominal pain with Dr. Pradeep Chopra, a pain management physician who works with complex chronic pain conditions.  Dr. Chopra lists many possible causes of abdominal pain, and talks through different diagnoses and how they might be interrelated.

    Dr. Chopra looks at over two dozen different diagnoses, from gastroparesis to small intestinal bacterial overgrowth (SIBO) to postural orthostatic tachycardia syndrome (POTS) to endometriosis. He shares his approach to uncovering abdominal pain sources, as well as the question he asks himself with every patient.

    Finally, Dr. Chopra offers some concrete tips for people suffering with abdominal pain. He suggests solutions for people who have trouble absorbing medication, and reveals his hacks for people working to sort out the source of their abdominal pain.

    For doctors looking to deepen their understanding of abdominal pain, as well as people trying to figure their own issues out, this deep dive of a podcast is not to be missed.


    Learn more about Dr. Chopra here.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4893 no     69. Traveling with a Chronic Disorder with Dr. Linda Bluestein, Kristin Koskinen RDN, and Jennifer Milner NCPT https://share.transistor.fm/s/54d994fa Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becomes even more complicated. How can you plan for contingencies, guard yourself against flares, and still have a fantastic time while traveling? The Bendy Bodies team shares their favorite tips on traveling during this round table discussion.  We share suggestions for actions to take leading up to the trip, reveal items we cannot live without on a trip, and look at ways to combat the effects of travel on a bendy body.  Dr. Bluestein gives advice on preparing for traveling without your “pit crew”. Jennifer Milner addresses how to stay active on the trip without overdoing it, and Kristin Koskinen shares her top three tips for finding food to support your nutritional needs while away from your favorite grocery stores. The team offers their best all-around travel tips and advice for planning - as well as knowing that if things go awry, it will be ok! For anyone planning to travel soon, this episode is so packed with tips that you’ll find yourself taking notes while you listen! Learn more about Jennifer Milner, NCPT, Kristin Koskinen, RDN, and Linda Bluestein, MD.   PS:  Do not transport controlled substances across state (or country) lines outside of their original container, as that is illegal.  If you need a smaller container, ask your pharmacist.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Jun 2023 08:27:53 -0000 69. Traveling with a Chronic Disorder with Dr. Linda Bluestein, Kristin Koskinen RDN, and Jennifer Milner NCPT full 69 Dr. Linda Bluestein <p>Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becomes even more complicated.</p><p>How can you plan for contingencies, guard yourself against flares, and still have a fantastic time while traveling? The Bendy Bodies team shares their favorite tips on traveling during this round table discussion. </p><p>We share suggestions for actions to take leading up to the trip, reveal items we cannot live without on a trip, and look at ways to combat the effects of travel on a bendy body. </p><p>Dr. Bluestein gives advice on preparing for traveling without your “pit crew”. Jennifer Milner addresses how to stay active on the trip without overdoing it, and Kristin Koskinen shares her top three tips for finding food to support your nutritional needs while away from your favorite grocery stores.</p><p>The team offers their best all-around travel tips and advice for planning - as well as knowing that if things go awry, it will be ok!</p><p>For anyone planning to travel soon, this episode is so packed with tips that you’ll find yourself taking notes while you listen!</p><p>Learn more about <a href="https://www.jennifer-milner.com/">Jennifer Milner, NCPT,</a> <a href="https://www.eatwellpros.com/">Kristin Koskinen, RDN</a>, and <a href="https://www.hypermobilitymd.com/">Linda Bluestein, MD. </a> </p><p>PS:  Do not transport controlled substances across state (or country) lines outside of their original container, as that is illegal.  If you need a smaller container, ask your pharmacist.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becomes even more complicated. How can you plan for contingencies, guard yourself against flares, and still have a fantastic time while traveling? The Bendy Bodies team shares their favorite tips on traveling during this round table discussion.  We share suggestions for actions to take leading up to the trip, reveal items we cannot live without on a trip, and look at ways to combat the effects of travel on a bendy body.  Dr. Bluestein gives advice on preparing for traveling without your “pit crew”. Jennifer Milner addresses how to stay active on the trip without overdoing it, and Kristin Koskinen shares her top three tips for finding food to support your nutritional needs while away from your favorite grocery stores. The team offers their best all-around travel tips and advice for planning - as well as knowing that if things go awry, it will be ok! For anyone planning to travel soon, this episode is so packed with tips that you’ll find yourself taking notes while you listen! Learn more about Jennifer Milner, NCPT, Kristin Koskinen, RDN, and Linda Bluestein, MD.   PS:  Do not transport controlled substances across state (or country) lines outside of their original container, as that is illegal.  If you need a smaller container, ask your pharmacist.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becomes even more complicated.

    How can you plan for contingencies, guard yourself against flares, and still have a fantastic time while traveling? The Bendy Bodies team shares their favorite tips on traveling during this round table discussion. 

    We share suggestions for actions to take leading up to the trip, reveal items we cannot live without on a trip, and look at ways to combat the effects of travel on a bendy body. 

    Dr. Bluestein gives advice on preparing for traveling without your “pit crew”. Jennifer Milner addresses how to stay active on the trip without overdoing it, and Kristin Koskinen shares her top three tips for finding food to support your nutritional needs while away from your favorite grocery stores.

    The team offers their best all-around travel tips and advice for planning - as well as knowing that if things go awry, it will be ok!

    For anyone planning to travel soon, this episode is so packed with tips that you’ll find yourself taking notes while you listen!

    Learn more about Jennifer Milner, NCPT, Kristin Koskinen, RDN, and Linda Bluestein, MD.  

    PS:  Do not transport controlled substances across state (or country) lines outside of their original container, as that is illegal.  If you need a smaller container, ask your pharmacist.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3241 no     68. Fostering Hope for Hypermobility with Cortney Gensemer, PhD, Victoria Daylor, and Linda Bluestein, MD https://share.transistor.fm/s/45814cd5 Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”. We were able to sit down with Dr. Gensemer, Ms. Daylor, and Dr. Bluestein to discuss their research and the results. They share how the collaboration came about and the developmental process they went through. The co-authors reveal their intentions behind the articles, and three things they want people to know about symptomatic joint hypermobility (SJH). The panel of guests discuss what they see for the future of joint hypermobility and related conditions, and stress the importance of properly done research. Written to be accessible both for people with SJH and medical professionals, these articles may well be a defining reference for many people in the future! With limited-time free access to Part 1 and Part 2 of this peer reviewed series, you will want to dive into these papers and share with others as soon as possible! . . . . . #Hypermobility #ChronicPain #ConnectiveTissueDisorder #JointSupport #MedicalResearch #JointPain #SymptomManagement #Healthcare #PatientEducation #DoctorPatientRelationship #HopeForHypermobility #KnowledgeIsPower #Education #Scientist #WomenInStem #DisabledInStem --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 May 2023 08:35:29 -0000 68. Fostering Hope for Hypermobility with Cortney Gensemer, PhD, Victoria Daylor, and Linda Bluestein, MD full 68 Dr. Linda Bluestein <p>Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”. We were able to sit down with Dr. Gensemer, Ms. Daylor, and Dr. Bluestein to discuss their research and the results.</p><p>They share how the collaboration came about and the developmental process they went through. The co-authors reveal their intentions behind the articles, and three things they want people to know about symptomatic joint hypermobility (SJH).</p><p>The panel of guests discuss what they see for the future of joint hypermobility and related conditions, and stress the importance of properly done research. Written to be accessible both for people with SJH and medical professionals, these articles may well be a defining reference for many people in the future!</p><p>With limited-time free access to <a href="https://journals.lww.com/topicsinpainmanagement/Fulltext/2023/03000/Hope_for_Hypermobility__Part_1_An_Integrative.1.aspx">Part 1</a> and <a href="https://journals.lww.com/topicsinpainmanagement/Fulltext/2023/04000/Hope_for_Hypermobility__Part_2_An_Integrative.1.aspx">Part 2</a> of this peer reviewed series, you will want to dive into these papers and share with others as soon as possible!</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#Hypermobility #ChronicPain #ConnectiveTissueDisorder #JointSupport #MedicalResearch #JointPain #SymptomManagement #Healthcare #PatientEducation #DoctorPatientRelationship #HopeForHypermobility #KnowledgeIsPower #Education #Scientist #WomenInStem #DisabledInStem --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”. We were able to sit down with Dr. Gensemer, Ms. Daylor, and Dr. Bluestein to discuss their research and the results. They share how the collaboration came about and the developmental process they went through. The co-authors reveal their intentions behind the articles, and three things they want people to know about symptomatic joint hypermobility (SJH). The panel of guests discuss what they see for the future of joint hypermobility and related conditions, and stress the importance of properly done research. Written to be accessible both for people with SJH and medical professionals, these articles may well be a defining reference for many people in the future! With limited-time free access to Part 1 and Part 2 of this peer reviewed series, you will want to dive into these papers and share with others as soon as possible! . . . . . #Hypermobility #ChronicPain #ConnectiveTissueDisorder #JointSupport #MedicalResearch #JointPain #SymptomManagement #Healthcare #PatientEducation #DoctorPatientRelationship #HopeForHypermobility #KnowledgeIsPower #Education #Scientist #WomenInStem #DisabledInStem --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”. We were able to sit down with Dr. Gensemer, Ms. Daylor, and Dr. Bluestein to discuss their research and the results.

    They share how the collaboration came about and the developmental process they went through. The co-authors reveal their intentions behind the articles, and three things they want people to know about symptomatic joint hypermobility (SJH).

    The panel of guests discuss what they see for the future of joint hypermobility and related conditions, and stress the importance of properly done research. Written to be accessible both for people with SJH and medical professionals, these articles may well be a defining reference for many people in the future!

    With limited-time free access to Part 1 and Part 2 of this peer reviewed series, you will want to dive into these papers and share with others as soon as possible!

    .

    .

    .

    .

    .

    #Hypermobility #ChronicPain #ConnectiveTissueDisorder #JointSupport #MedicalResearch #JointPain #SymptomManagement #Healthcare #PatientEducation #DoctorPatientRelationship #HopeForHypermobility #KnowledgeIsPower #Education #Scientist #WomenInStem #DisabledInStem --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2892 no     67. Destigmatizing Eating Disorders with Dr. Jennifer Gaudiani https://share.transistor.fm/s/070dd744 Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered eating, which can spiral into an eating disorder. For years, eating disorders have been stigmatized and dismissed by many in the health community. To discuss this difficult topic, Bendy Bodies sat down with Dr. Jennifer Gaudiani, MD, CEDS-S, FAED, and founder of the Gaudiani Clinic for Eating Disorders. Dr. Gaudiani shares how she became so passionate about caring for this complex population and the importance of understanding her patient’s stories. She talks about why there’s such a stigma around eating disorders and how she’s working to change that. We discuss why this topic is so important for those with SJH and cover possible eating disorder mimickers. We break down definitions and explore possible predictors of eating disorders. Dr. Gaudiani shares the aspects of treatment that she has found vital, and offers tips on how to speak to someone you suspect may have an eating disorder. Finally, she reveals ways to find experts for getting the help needed for an eating disorder.  Learn more about the Gaudiani Clinic here.   For physicians, dance teachers, coaches, and anyone struggling with an eating disorder, this episode is a valuable look at a difficult topic.   . . . . . #MentalHealth #BodyPositive #Nutritionist #DoctorsOfIG #IntuitiveEating #EDWarriors #Recovery #SportsNutrition #ChronicIllness #EatingDisorders #PlantBasedNutrition #MentalHealthMatters #NutritionMatters #InvisibleIllness #AntiDiet #AntiDietCulture --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 May 2023 14:21:01 -0000 67. Destigmatizing Eating Disorders with Dr. Jennifer Gaudiani full 67 Dr. Linda Bluestein <p>Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered eating, which can spiral into an eating disorder. For years, eating disorders have been stigmatized and dismissed by many in the health community.</p><p>To discuss this difficult topic, Bendy Bodies sat down with Dr. Jennifer Gaudiani, MD, CEDS-S, FAED, and founder of the Gaudiani Clinic for Eating Disorders.</p><p>Dr. Gaudiani shares how she became so passionate about caring for this complex population and the importance of understanding her patient’s stories. She talks about why there’s such a stigma around eating disorders and how she’s working to change that.</p><p>We discuss why this topic is so important for those with SJH and cover possible eating disorder mimickers. We break down definitions and explore possible predictors of eating disorders.</p><p>Dr. Gaudiani shares the aspects of treatment that she has found vital, and offers tips on how to speak to someone you suspect may have an eating disorder. Finally, she reveals ways to find experts for getting the help needed for an eating disorder.  Learn more about the Gaudiani Clinic <a href="https://www.gaudianiclinic.com/">here</a>.  </p><p>For physicians, dance teachers, coaches, and anyone struggling with an eating disorder, this episode is a valuable look at a difficult topic.  </p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#MentalHealth #BodyPositive #Nutritionist #DoctorsOfIG #IntuitiveEating #EDWarriors #Recovery #SportsNutrition #ChronicIllness #EatingDisorders #PlantBasedNutrition #MentalHealthMatters #NutritionMatters #InvisibleIllness #AntiDiet #AntiDietCulture --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered eating, which can spiral into an eating disorder. For years, eating disorders have been stigmatized and dismissed by many in the health community. To discuss this difficult topic, Bendy Bodies sat down with Dr. Jennifer Gaudiani, MD, CEDS-S, FAED, and founder of the Gaudiani Clinic for Eating Disorders. Dr. Gaudiani shares how she became so passionate about caring for this complex population and the importance of understanding her patient’s stories. She talks about why there’s such a stigma around eating disorders and how she’s working to change that. We discuss why this topic is so important for those with SJH and cover possible eating disorder mimickers. We break down definitions and explore possible predictors of eating disorders. Dr. Gaudiani shares the aspects of treatment that she has found vital, and offers tips on how to speak to someone you suspect may have an eating disorder. Finally, she reveals ways to find experts for getting the help needed for an eating disorder.  Learn more about the Gaudiani Clinic here.   For physicians, dance teachers, coaches, and anyone struggling with an eating disorder, this episode is a valuable look at a difficult topic.   . . . . . #MentalHealth #BodyPositive #Nutritionist #DoctorsOfIG #IntuitiveEating #EDWarriors #Recovery #SportsNutrition #ChronicIllness #EatingDisorders #PlantBasedNutrition #MentalHealthMatters #NutritionMatters #InvisibleIllness #AntiDiet #AntiDietCulture --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered eating, which can spiral into an eating disorder. For years, eating disorders have been stigmatized and dismissed by many in the health community.

    To discuss this difficult topic, Bendy Bodies sat down with Dr. Jennifer Gaudiani, MD, CEDS-S, FAED, and founder of the Gaudiani Clinic for Eating Disorders.

    Dr. Gaudiani shares how she became so passionate about caring for this complex population and the importance of understanding her patient’s stories. She talks about why there’s such a stigma around eating disorders and how she’s working to change that.

    We discuss why this topic is so important for those with SJH and cover possible eating disorder mimickers. We break down definitions and explore possible predictors of eating disorders.

    Dr. Gaudiani shares the aspects of treatment that she has found vital, and offers tips on how to speak to someone you suspect may have an eating disorder. Finally, she reveals ways to find experts for getting the help needed for an eating disorder.  Learn more about the Gaudiani Clinic here.  

    For physicians, dance teachers, coaches, and anyone struggling with an eating disorder, this episode is a valuable look at a difficult topic.  

    .

    .

    .

    .

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    #MentalHealth #BodyPositive #Nutritionist #DoctorsOfIG #IntuitiveEating #EDWarriors #Recovery #SportsNutrition #ChronicIllness #EatingDisorders #PlantBasedNutrition #MentalHealthMatters #NutritionMatters #InvisibleIllness #AntiDiet #AntiDietCulture --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3080 no     66. Codifying Upper Cervical Instability with Leslie Russek, DPT, PhD https://share.transistor.fm/s/7a55453a Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH).  Both can be impactful and are frequently missed.  An international team of physical / physiotherapy clinicians and a S-GJH expert rheumatologist recently published expert consensus recommendations for screening, assessing and managing patients with UCI associated with S-GJH.  Bendy Bodies sat down with first author, Leslie Russek, DPT, PhD, to discuss this important paper.   Hypermobility (too much range of motion) is different from instability (difficulty controlling motion at the joints).  UCI, upper cervical instability, means that the muscles and nerves lack the ability to appropriately control movement at the joint and sense where the joint is in space.  When UCI is severe it can be debilitating.  Except in the most extreme forms of UCI, conservative (ie: non-surgical) therapies are usually considered first.  Improving joint stability is the goal and Dr. Russek explains what patient factors are important to consider in determining treatment strategy.   Dr. Russek explains the difference between “highly suggestive” and “common” symptoms as well as musculoskeletal UCI vs neurological UCI.  She describes the three levels of irritability and how those should be approached in clinical practice.  Yellow and red flags in the history and the physical examination are addressed. Whether you are someone who suspects upper cervical instability or treats them, this is an episode you will not want to miss.   Learn more here.  Hashtags: #CervicalSpineInstability #EhlersDanlosSyndrome #ChronicIllness #SpineInstability #ZebraSurvivor #ChronicPain #CervicalSpinalFusion #InvisibleIllness #Hypermobility #SpineHealth #hEDS #EDSawareness #ChronicPainWarrior #SpineFusion #ButYouDontLookSick #Instability #HSD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Apr 2023 08:00:40 -0000 66. Codifying Upper Cervical Instability with Leslie Russek, DPT, PhD full 66 Dr. Linda Bluestein <p>Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH).  Both can be impactful and are frequently missed.  An international team of physical / physiotherapy clinicians and a S-GJH expert rheumatologist recently published expert consensus recommendations for screening, assessing and managing patients with UCI associated with S-GJH.  Bendy Bodies sat down with first author, Leslie Russek, DPT, PhD, to discuss this important paper.  </p><p>Hypermobility (too much range of motion) is different from instability (difficulty controlling motion at the joints).  UCI, upper cervical instability, means that the muscles and nerves lack the ability to appropriately control movement at the joint and sense where the joint is in space.  When UCI is severe it can be debilitating.  Except in the most extreme forms of UCI, conservative (ie: non-surgical) therapies are usually considered first.  Improving joint stability is the goal and Dr. Russek explains what patient factors are important to consider in determining treatment strategy.  </p><p>Dr. Russek explains the difference between “highly suggestive” and “common” symptoms as well as musculoskeletal UCI vs neurological UCI.  She describes the three levels of irritability and how those should be approached in clinical practice.  Yellow and red flags in the history and the physical examination are addressed.</p><p>Whether you are someone who suspects upper cervical instability or treats them, this is an episode you will not want to miss.  </p><p>Learn more <a href="https://webspace.clarkson.edu/~lrussek/">here</a>. </p><p>Hashtags: #CervicalSpineInstability #EhlersDanlosSyndrome #ChronicIllness #SpineInstability #ZebraSurvivor #ChronicPain #CervicalSpinalFusion #InvisibleIllness #Hypermobility #SpineHealth #hEDS #EDSawareness #ChronicPainWarrior #SpineFusion #ButYouDontLookSick #Instability #HSD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH).  Both can be impactful and are frequently missed.  An international team of physical / physiotherapy clinicians and a S-GJH expert rheumatologist recently published expert consensus recommendations for screening, assessing and managing patients with UCI associated with S-GJH.  Bendy Bodies sat down with first author, Leslie Russek, DPT, PhD, to discuss this important paper.   Hypermobility (too much range of motion) is different from instability (difficulty controlling motion at the joints).  UCI, upper cervical instability, means that the muscles and nerves lack the ability to appropriately control movement at the joint and sense where the joint is in space.  When UCI is severe it can be debilitating.  Except in the most extreme forms of UCI, conservative (ie: non-surgical) therapies are usually considered first.  Improving joint stability is the goal and Dr. Russek explains what patient factors are important to consider in determining treatment strategy.   Dr. Russek explains the difference between “highly suggestive” and “common” symptoms as well as musculoskeletal UCI vs neurological UCI.  She describes the three levels of irritability and how those should be approached in clinical practice.  Yellow and red flags in the history and the physical examination are addressed. Whether you are someone who suspects upper cervical instability or treats them, this is an episode you will not want to miss.   Learn more here.  Hashtags: #CervicalSpineInstability #EhlersDanlosSyndrome #ChronicIllness #SpineInstability #ZebraSurvivor #ChronicPain #CervicalSpinalFusion #InvisibleIllness #Hypermobility #SpineHealth #hEDS #EDSawareness #ChronicPainWarrior #SpineFusion #ButYouDontLookSick #Instability #HSD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH).  Both can be impactful and are frequently missed.  An international team of physical / physiotherapy clinicians and a S-GJH expert rheumatologist recently published expert consensus recommendations for screening, assessing and managing patients with UCI associated with S-GJH.  Bendy Bodies sat down with first author, Leslie Russek, DPT, PhD, to discuss this important paper.  

    Hypermobility (too much range of motion) is different from instability (difficulty controlling motion at the joints).  UCI, upper cervical instability, means that the muscles and nerves lack the ability to appropriately control movement at the joint and sense where the joint is in space.  When UCI is severe it can be debilitating.  Except in the most extreme forms of UCI, conservative (ie: non-surgical) therapies are usually considered first.  Improving joint stability is the goal and Dr. Russek explains what patient factors are important to consider in determining treatment strategy.  

    Dr. Russek explains the difference between “highly suggestive” and “common” symptoms as well as musculoskeletal UCI vs neurological UCI.  She describes the three levels of irritability and how those should be approached in clinical practice.  Yellow and red flags in the history and the physical examination are addressed.

    Whether you are someone who suspects upper cervical instability or treats them, this is an episode you will not want to miss.  

    Learn more here. 

    Hashtags: #CervicalSpineInstability #EhlersDanlosSyndrome #ChronicIllness #SpineInstability #ZebraSurvivor #ChronicPain #CervicalSpinalFusion #InvisibleIllness #Hypermobility #SpineHealth #hEDS #EDSawareness #ChronicPainWarrior #SpineFusion #ButYouDontLookSick #Instability #HSD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3223 no     65. Finding Balance with Jenelle Manzi https://share.transistor.fm/s/05ce6a1c Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging.  Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a company.  How do you push yourself to the edge of your limits, but not over them?  We asked Jenelle Manzi, a professional dancer with New York City Ballet, this very question.  enelle shares her stories of growing up dancing with EDS. She describes her journey as a young professional, figuring out how to work with a chronic illness, and talks through her early injuries and what she learned from them. Jenelle opens up about hitting a wall with her EDS, and how she took time to get her health under control and figure out what works for her. She shares how her health journey inspired her to start her company Get Golden, and goes deep into her methods for staying at an elite performance level while maintaining long-term health.  Learn more about Jenelle here.  . . . . .  #EDSawareness #BalletWithEDS #ChronicIllnessWarrior #EhlersDanlosSyndrome #DancerWithEDS #SpoonieBallet #DisabilityInclusion #HealthJourney #InvisibleDisability #BalletDancer #DisabilityAdvocate #BalletInspiration #ChronicPainLife #HealthStory #EDSsupport  #hEDS --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 06 Apr 2023 08:00:29 -0000 65. Finding Balance with Jenelle Manzi full 65 Dr. Linda Bluestein <p>Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging.  Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a company.  How do you push yourself to the edge of your limits, but not over them?  We asked Jenelle Manzi, a professional dancer with New York City Ballet, this very question.  enelle shares her stories of growing up dancing with EDS. She describes her journey as a young professional, figuring out how to work with a chronic illness, and talks through her early injuries and what she learned from them. Jenelle opens up about hitting a wall with her EDS, and how she took time to get her health under control and figure out what works for her. She shares how her health journey inspired her to start her company Get Golden, and goes deep into her methods for staying at an elite performance level while maintaining long-term health. </p><p>Learn more about Jenelle here.  . . . . . </p><p>#EDSawareness #BalletWithEDS #ChronicIllnessWarrior #EhlersDanlosSyndrome #DancerWithEDS #SpoonieBallet #DisabilityInclusion #HealthJourney #InvisibleDisability #BalletDancer #DisabilityAdvocate #BalletInspiration #ChronicPainLife #HealthStory #EDSsupport  #hEDS --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging.  Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a company.  How do you push yourself to the edge of your limits, but not over them?  We asked Jenelle Manzi, a professional dancer with New York City Ballet, this very question.  enelle shares her stories of growing up dancing with EDS. She describes her journey as a young professional, figuring out how to work with a chronic illness, and talks through her early injuries and what she learned from them. Jenelle opens up about hitting a wall with her EDS, and how she took time to get her health under control and figure out what works for her. She shares how her health journey inspired her to start her company Get Golden, and goes deep into her methods for staying at an elite performance level while maintaining long-term health.  Learn more about Jenelle here.  . . . . .  #EDSawareness #BalletWithEDS #ChronicIllnessWarrior #EhlersDanlosSyndrome #DancerWithEDS #SpoonieBallet #DisabilityInclusion #HealthJourney #InvisibleDisability #BalletDancer #DisabilityAdvocate #BalletInspiration #ChronicPainLife #HealthStory #EDSsupport  #hEDS --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging.  Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a company.  How do you push yourself to the edge of your limits, but not over them?  We asked Jenelle Manzi, a professional dancer with New York City Ballet, this very question.  enelle shares her stories of growing up dancing with EDS. She describes her journey as a young professional, figuring out how to work with a chronic illness, and talks through her early injuries and what she learned from them. Jenelle opens up about hitting a wall with her EDS, and how she took time to get her health under control and figure out what works for her. She shares how her health journey inspired her to start her company Get Golden, and goes deep into her methods for staying at an elite performance level while maintaining long-term health. 

    Learn more about Jenelle here.  . . . . . 

    #EDSawareness #BalletWithEDS #ChronicIllnessWarrior #EhlersDanlosSyndrome #DancerWithEDS #SpoonieBallet #DisabilityInclusion #HealthJourney #InvisibleDisability #BalletDancer #DisabilityAdvocate #BalletInspiration #ChronicPainLife #HealthStory #EDSsupport  #hEDS --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2973 no     64. Demystifying Chiropractic Care with Dr. Carrie Skony https://share.transistor.fm/s/91d39ddc Chiropractic care has been around for over 100 years, but many people don’t quite know what it entails. Artistic athletes may be told to add regular chiropractic visits to their regimen to help relieve pain without really understanding why.  How does a method best known for joint manipulation work for those with hypermobile bodies? Is it a valid treatment option? And what exactly is it, anyway? Dr. Carrie Skony is a certified chiropractic sports physician and owner of Perform Active Wellness Dance Medicine. Specializing in dancers, Dr. Skony sees many hypermobile bodies and sat to talk with us about how people with hypermobility may (or may not) benefit from seeing a chiropractor. Dr. Skony defines chiropractic care for us, outlining the broad spectrum of options that fall under its umbrella. She covers what sort of issues may cause people to seek out chiropractic care, different kinds of chiropractic care people may encounter, as well as common misconceptions about chiropractors. Dr. Skony cautions against indiscriminate joint manipulation, and describes how she changes her treatment approach when working with someone with symptomatic hypermobility.  She talks through her method of working with dancers through a variety of modalities, including hands-on treatments, strengthening exercises, and more. Common comorbidities in hypermobile patients and how that may change Dr. Skony’s treatment approaches are explained, and she offers tips on how to find a good chiropractor in your own area. Finally, she shares her desire to educate dance instructors on working with hypermobility for future generations of dancers. If you’ve been skeptical of chiropractic care, unsure of what it is, or a huge fan of it, this episode goes deep on the topic in an easy-to-understand way. Learn more about Dr. Skony here.. . . . #Chiro #ChiropracticCare #Adjustment #JointManipulation #Hypermobility #Hypermobile #hEDS #EDS #Modalities #LowBackPain #Chiropractors #Subluxation #Dislocation #JointInstability #ChiropracticAdjustment #Headaches #Doctor #ChronicIllness --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 23 Mar 2023 08:30:30 -0000 64. Demystifying Chiropractic Care with Dr. Carrie Skony full 64 Dr. Linda Bluestein <p>Chiropractic care has been around for over 100 years, but many people don’t quite know what it entails. Artistic athletes may be told to add regular chiropractic visits to their regimen to help relieve pain without really understanding why. </p><p>How does a method best known for joint manipulation work for those with hypermobile bodies? Is it a valid treatment option? And what exactly is it, anyway?</p><p>Dr. Carrie Skony is a certified chiropractic sports physician and owner of Perform Active Wellness Dance Medicine. Specializing in dancers, Dr. Skony sees many hypermobile bodies and sat to talk with us about how people with hypermobility may (or may not) benefit from seeing a chiropractor.</p><p>Dr. Skony defines chiropractic care for us, outlining the broad spectrum of options that fall under its umbrella. She covers what sort of issues may cause people to seek out chiropractic care, different kinds of chiropractic care people may encounter, as well as common misconceptions about chiropractors.</p><p>Dr. Skony cautions against indiscriminate joint manipulation, and describes how she changes her treatment approach when working with someone with symptomatic hypermobility. </p><p>She talks through her method of working with dancers through a variety of modalities, including hands-on treatments, strengthening exercises, and more.</p><p>Common comorbidities in hypermobile patients and how that may change Dr. Skony’s treatment approaches are explained, and she offers tips on how to find a good chiropractor in your own area. Finally, she shares her desire to educate dance instructors on working with hypermobility for future generations of dancers.</p><p>If you’ve been skeptical of chiropractic care, unsure of what it is, or a huge fan of it, this episode goes deep on the topic in an easy-to-understand way.</p><p>Learn more about Dr. Skony <a href="https://www.performactivewellness.com/">here.</a><br>.</p><p>.</p><p>.</p><p>.</p><p>#Chiro #ChiropracticCare #Adjustment #JointManipulation #Hypermobility #Hypermobile #hEDS #EDS #Modalities #LowBackPain #Chiropractors #Subluxation #Dislocation #JointInstability #ChiropracticAdjustment #Headaches #Doctor #ChronicIllness --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Chiropractic care has been around for over 100 years, but many people don’t quite know what it entails. Artistic athletes may be told to add regular chiropractic visits to their regimen to help relieve pain without really understanding why.  How does a method best known for joint manipulation work for those with hypermobile bodies? Is it a valid treatment option? And what exactly is it, anyway? Dr. Carrie Skony is a certified chiropractic sports physician and owner of Perform Active Wellness Dance Medicine. Specializing in dancers, Dr. Skony sees many hypermobile bodies and sat to talk with us about how people with hypermobility may (or may not) benefit from seeing a chiropractor. Dr. Skony defines chiropractic care for us, outlining the broad spectrum of options that fall under its umbrella. She covers what sort of issues may cause people to seek out chiropractic care, different kinds of chiropractic care people may encounter, as well as common misconceptions about chiropractors. Dr. Skony cautions against indiscriminate joint manipulation, and describes how she changes her treatment approach when working with someone with symptomatic hypermobility.  She talks through her method of working with dancers through a variety of modalities, including hands-on treatments, strengthening exercises, and more. Common comorbidities in hypermobile patients and how that may change Dr. Skony’s treatment approaches are explained, and she offers tips on how to find a good chiropractor in your own area. Finally, she shares her desire to educate dance instructors on working with hypermobility for future generations of dancers. If you’ve been skeptical of chiropractic care, unsure of what it is, or a huge fan of it, this episode goes deep on the topic in an easy-to-understand way. Learn more about Dr. Skony here.. . . . #Chiro #ChiropracticCare #Adjustment #JointManipulation #Hypermobility #Hypermobile #hEDS #EDS #Modalities #LowBackPain #Chiropractors #Subluxation #Dislocation #JointInstability #ChiropracticAdjustment #Headaches #Doctor #ChronicIllness --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Chiropractic care has been around for over 100 years, but many people don’t quite know what it entails. Artistic athletes may be told to add regular chiropractic visits to their regimen to help relieve pain without really understanding why. 

    How does a method best known for joint manipulation work for those with hypermobile bodies? Is it a valid treatment option? And what exactly is it, anyway?

    Dr. Carrie Skony is a certified chiropractic sports physician and owner of Perform Active Wellness Dance Medicine. Specializing in dancers, Dr. Skony sees many hypermobile bodies and sat to talk with us about how people with hypermobility may (or may not) benefit from seeing a chiropractor.

    Dr. Skony defines chiropractic care for us, outlining the broad spectrum of options that fall under its umbrella. She covers what sort of issues may cause people to seek out chiropractic care, different kinds of chiropractic care people may encounter, as well as common misconceptions about chiropractors.

    Dr. Skony cautions against indiscriminate joint manipulation, and describes how she changes her treatment approach when working with someone with symptomatic hypermobility. 

    She talks through her method of working with dancers through a variety of modalities, including hands-on treatments, strengthening exercises, and more.

    Common comorbidities in hypermobile patients and how that may change Dr. Skony’s treatment approaches are explained, and she offers tips on how to find a good chiropractor in your own area. Finally, she shares her desire to educate dance instructors on working with hypermobility for future generations of dancers.

    If you’ve been skeptical of chiropractic care, unsure of what it is, or a huge fan of it, this episode goes deep on the topic in an easy-to-understand way.

    Learn more about Dr. Skony here.
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    #Chiro #ChiropracticCare #Adjustment #JointManipulation #Hypermobility #Hypermobile #hEDS #EDS #Modalities #LowBackPain #Chiropractors #Subluxation #Dislocation #JointInstability #ChiropracticAdjustment #Headaches #Doctor #ChronicIllness --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3650 no     63. Shining Your Light with Gigi Robinson https://share.transistor.fm/s/585bbe1c Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people. Gigi Robinson was diagnosed with EDS at 11 years old, and one of the lucky ones to receive support and care from a very early age. Even so, heading off to college and needing to advocate for herself was a difficult transition. As she moved into adulthood, her natural passion for learning turned into a desire to help others who experience some of the same issues. She quickly became an outspoken advocate for Gen Z in particular, but for anyone struggling with chronic illness, body image issues, and more.  She used her platform as a Sports Illustrated swimsuit model to shine light on EDS and body dysmorphia. Now a successful podcast host and powerful social influencer, Gigi speaks around the globe on these topics, educating and encouraging people. Bendy Bodies recently caught up with Gigi and chatted about her life as an advocate with a chronic illness. Gigi shares her early experiences with EDS, her diagnosis, and how she learned to advocate for herself in a school setting. Gigi opens up about being a swimsuit model while advocating for body positivity, and describes her passion for speaking up for Gen Z. Gigi dives into her mental health advocacy, reveals her tips for pacing herself in her daily life, and offers advice to caregivers of people with chronic illnesses, as well as encouragement to those struggling with a chronic illness. An inspiring and uplifting story of positivity and encouragement, Gigi’s conversation is sure to inspire others to look within themselves for strength and ways to shine their own lights for others. . . . . . #ChronicIllness #Advocate #hEDS #EhlersDanlos #MentalHealth #BodyImage #DisabledModel #BodyDysmorphia #Hypermobility #RepresentationMatters #BodyPositivity #GenZ #InclusiveFashion #AbilityNotDisability --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 Mar 2023 09:00:44 -0000 63. Shining Your Light with Gigi Robinson full 63 Dr. Linda Bluestein <p>Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people.</p><p>Gigi Robinson was diagnosed with EDS at 11 years old, and one of the lucky ones to receive support and care from a very early age. Even so, heading off to college and needing to advocate for herself was a difficult transition. As she moved into adulthood, her natural passion for learning turned into a desire to help others who experience some of the same issues. She quickly became an outspoken advocate for Gen Z in particular, but for anyone struggling with chronic illness, body image issues, and more.  She used her platform as a Sports Illustrated swimsuit model to shine light on EDS and body dysmorphia. Now a successful podcast host and powerful social influencer, Gigi speaks around the globe on these topics, educating and encouraging people.</p><p>Bendy Bodies recently caught up with Gigi and chatted about her life as an advocate with a chronic illness.</p><p>Gigi shares her early experiences with EDS, her diagnosis, and how she learned to advocate for herself in a school setting. Gigi opens up about being a swimsuit model while advocating for body positivity, and describes her passion for speaking up for Gen Z.</p><p>Gigi dives into her mental health advocacy, reveals her tips for pacing herself in her daily life, and offers advice to caregivers of people with chronic illnesses, as well as encouragement to those struggling with a chronic illness.</p><p>An inspiring and uplifting story of positivity and encouragement, Gigi’s conversation is sure to inspire others to look within themselves for strength and ways to shine their own lights for others.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#ChronicIllness #Advocate #hEDS #EhlersDanlos #MentalHealth #BodyImage #DisabledModel #BodyDysmorphia #Hypermobility #RepresentationMatters #BodyPositivity #GenZ #InclusiveFashion #AbilityNotDisability --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people. Gigi Robinson was diagnosed with EDS at 11 years old, and one of the lucky ones to receive support and care from a very early age. Even so, heading off to college and needing to advocate for herself was a difficult transition. As she moved into adulthood, her natural passion for learning turned into a desire to help others who experience some of the same issues. She quickly became an outspoken advocate for Gen Z in particular, but for anyone struggling with chronic illness, body image issues, and more.  She used her platform as a Sports Illustrated swimsuit model to shine light on EDS and body dysmorphia. Now a successful podcast host and powerful social influencer, Gigi speaks around the globe on these topics, educating and encouraging people. Bendy Bodies recently caught up with Gigi and chatted about her life as an advocate with a chronic illness. Gigi shares her early experiences with EDS, her diagnosis, and how she learned to advocate for herself in a school setting. Gigi opens up about being a swimsuit model while advocating for body positivity, and describes her passion for speaking up for Gen Z. Gigi dives into her mental health advocacy, reveals her tips for pacing herself in her daily life, and offers advice to caregivers of people with chronic illnesses, as well as encouragement to those struggling with a chronic illness. An inspiring and uplifting story of positivity and encouragement, Gigi’s conversation is sure to inspire others to look within themselves for strength and ways to shine their own lights for others. . . . . . #ChronicIllness #Advocate #hEDS #EhlersDanlos #MentalHealth #BodyImage #DisabledModel #BodyDysmorphia #Hypermobility #RepresentationMatters #BodyPositivity #GenZ #InclusiveFashion #AbilityNotDisability --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people.

    Gigi Robinson was diagnosed with EDS at 11 years old, and one of the lucky ones to receive support and care from a very early age. Even so, heading off to college and needing to advocate for herself was a difficult transition. As she moved into adulthood, her natural passion for learning turned into a desire to help others who experience some of the same issues. She quickly became an outspoken advocate for Gen Z in particular, but for anyone struggling with chronic illness, body image issues, and more.  She used her platform as a Sports Illustrated swimsuit model to shine light on EDS and body dysmorphia. Now a successful podcast host and powerful social influencer, Gigi speaks around the globe on these topics, educating and encouraging people.

    Bendy Bodies recently caught up with Gigi and chatted about her life as an advocate with a chronic illness.

    Gigi shares her early experiences with EDS, her diagnosis, and how she learned to advocate for herself in a school setting. Gigi opens up about being a swimsuit model while advocating for body positivity, and describes her passion for speaking up for Gen Z.

    Gigi dives into her mental health advocacy, reveals her tips for pacing herself in her daily life, and offers advice to caregivers of people with chronic illnesses, as well as encouragement to those struggling with a chronic illness.

    An inspiring and uplifting story of positivity and encouragement, Gigi’s conversation is sure to inspire others to look within themselves for strength and ways to shine their own lights for others.

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    #ChronicIllness #Advocate #hEDS #EhlersDanlos #MentalHealth #BodyImage #DisabledModel #BodyDysmorphia #Hypermobility #RepresentationMatters #BodyPositivity #GenZ #InclusiveFashion #AbilityNotDisability --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3173 no     62. Deconstructing Head Pain with Rudrani Banik, MD https://share.transistor.fm/s/90de3414 Headaches and migraines are common in many chronic illnesses, and people with hypermobility often struggle with chronic head pain for a variety of reasons. But what is the difference between migraine and other types of headache? How do you get properly evaluated?  What are the best treatments? Bendy Bodies spoke with neuro-ophthalmologist Rudrani Banik, MD in an effort to understand this complex topic. A fellowship-trained neuro-ophthalmologist certified in functional medicine, Dr. Banik specializes in headaches and migraines and has worked with many patients with Ehlers-Danlos syndromes and other connective tissue disorders. Dr. Banik describes how she integrates her vast training to evaluate and treat her patients. She explains the difference between headache and migraine, and shares the criteria for a migraine diagnosis. Dr. Banik talks through common causes of tension headaches as well as triggers for migraines, and suggests steps that are often helpful for migraines. She offers tips on how to get proper care, talking through her pharmacologic and nutritional supplement approaches.  She reveals common lifestyle choices that may greatly impact headaches and migraines covering conditions like idiopathic intracranial hypertension, CSF leak, Chiari malformation as well as vestibular, ocular, and abdominal migraine. For doctors, physical therapists, and anyone suffering from chronic head pain, this episode contains lots of concrete tips and suggestions for finding a path to relief. . . . . . #Headaches #Migraine #hEDS #ConnectiveTissueDisorder #JointHypermobility #ChronicIllness #MigraineRelief #ChronicPainAwareness #HeadacheRelief #MigraineNutrition #Neuro #Diagnosis --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 23 Feb 2023 09:00:30 -0000 62. Deconstructing Head Pain with Rudrani Banik, MD full 62 Dr. Linda Bluestein <p>Headaches and migraines are common in many chronic illnesses, and people with hypermobility often struggle with chronic head pain for a variety of reasons. But what is the difference between migraine and other types of headache? How do you get properly evaluated?  What are the best treatments?</p><p>Bendy Bodies spoke with neuro-ophthalmologist Rudrani Banik, MD in an effort to understand this complex topic. A fellowship-trained neuro-ophthalmologist certified in functional medicine, Dr. Banik specializes in headaches and migraines and has worked with many patients with Ehlers-Danlos syndromes and other connective tissue disorders.</p><p>Dr. Banik describes how she integrates her vast training to evaluate and treat her patients. She explains the difference between headache and migraine, and shares the criteria for a migraine diagnosis.</p><p>Dr. Banik talks through common causes of tension headaches as well as triggers for migraines, and suggests steps that are often helpful for migraines. She offers tips on how to get proper care, talking through her pharmacologic and nutritional supplement approaches.  She reveals common lifestyle choices that may greatly impact headaches and migraines covering conditions like idiopathic intracranial hypertension, CSF leak, Chiari malformation as well as vestibular, ocular, and abdominal migraine.</p><p>For doctors, physical therapists, and anyone suffering from chronic head pain, this episode contains lots of concrete tips and suggestions for finding a path to relief.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#Headaches #Migraine #hEDS #ConnectiveTissueDisorder #JointHypermobility #ChronicIllness #MigraineRelief #ChronicPainAwareness #HeadacheRelief #MigraineNutrition #Neuro #Diagnosis --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Headaches and migraines are common in many chronic illnesses, and people with hypermobility often struggle with chronic head pain for a variety of reasons. But what is the difference between migraine and other types of headache? How do you get properly evaluated?  What are the best treatments? Bendy Bodies spoke with neuro-ophthalmologist Rudrani Banik, MD in an effort to understand this complex topic. A fellowship-trained neuro-ophthalmologist certified in functional medicine, Dr. Banik specializes in headaches and migraines and has worked with many patients with Ehlers-Danlos syndromes and other connective tissue disorders. Dr. Banik describes how she integrates her vast training to evaluate and treat her patients. She explains the difference between headache and migraine, and shares the criteria for a migraine diagnosis. Dr. Banik talks through common causes of tension headaches as well as triggers for migraines, and suggests steps that are often helpful for migraines. She offers tips on how to get proper care, talking through her pharmacologic and nutritional supplement approaches.  She reveals common lifestyle choices that may greatly impact headaches and migraines covering conditions like idiopathic intracranial hypertension, CSF leak, Chiari malformation as well as vestibular, ocular, and abdominal migraine. For doctors, physical therapists, and anyone suffering from chronic head pain, this episode contains lots of concrete tips and suggestions for finding a path to relief. . . . . . #Headaches #Migraine #hEDS #ConnectiveTissueDisorder #JointHypermobility #ChronicIllness #MigraineRelief #ChronicPainAwareness #HeadacheRelief #MigraineNutrition #Neuro #Diagnosis --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Headaches and migraines are common in many chronic illnesses, and people with hypermobility often struggle with chronic head pain for a variety of reasons. But what is the difference between migraine and other types of headache? How do you get properly evaluated?  What are the best treatments?

    Bendy Bodies spoke with neuro-ophthalmologist Rudrani Banik, MD in an effort to understand this complex topic. A fellowship-trained neuro-ophthalmologist certified in functional medicine, Dr. Banik specializes in headaches and migraines and has worked with many patients with Ehlers-Danlos syndromes and other connective tissue disorders.

    Dr. Banik describes how she integrates her vast training to evaluate and treat her patients. She explains the difference between headache and migraine, and shares the criteria for a migraine diagnosis.

    Dr. Banik talks through common causes of tension headaches as well as triggers for migraines, and suggests steps that are often helpful for migraines. She offers tips on how to get proper care, talking through her pharmacologic and nutritional supplement approaches.  She reveals common lifestyle choices that may greatly impact headaches and migraines covering conditions like idiopathic intracranial hypertension, CSF leak, Chiari malformation as well as vestibular, ocular, and abdominal migraine.

    For doctors, physical therapists, and anyone suffering from chronic head pain, this episode contains lots of concrete tips and suggestions for finding a path to relief.

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    #Headaches #Migraine #hEDS #ConnectiveTissueDisorder #JointHypermobility #ChronicIllness #MigraineRelief #ChronicPainAwareness #HeadacheRelief #MigraineNutrition #Neuro #Diagnosis --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3291 no     61. Getting Back Up Again with Keeya Steel https://share.transistor.fm/s/97464146 Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life. How do you find balance? How do you find a way forward and regain joy in your life? We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find that balance. Keeya shares her journey through a childhood peppered with “you’re making this up” accusations, as well as her diagnoses as an adult that brought relief and despair in equal measures. Keeya speaks openly about how humor helped her find her way forward through some dark days, and her decision to share that humor with the world. She shares her emotional journey to accepting her chronic illnesses and disabilities. Keeya also explains the online course she created with Dr. Linda Bluestein on optimizing medical appointments with complex illness, and why she wanted to share that course with others. Keeya reveals tips on getting the most out of doctor’s appointments and discusses her experiences with finding new medical professionals. “In the end,” Keeya says, “I want people to be more open to hope and future joy.” An inspiring episode for us all so don’t miss it! More information about Keeya can be found on her website.   . . . . . #Hope #Resilience #Disabled #ChronicIllness #DespiteTheOdds #PotsSyndrome #MastCells #EhlersDanlos #hEDS #Advocacy #ChronicIllnessCommunity #MedicalProfessionals #MedicalGaslighting #ChronicIllnessSupport #Accessibility --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 09 Feb 2023 09:00:51 -0000 61. Getting Back Up Again with Keeya Steel full 61 Dr. Linda Bluestein <p>Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life.</p><p>How do you find balance? How do you find a way forward and regain joy in your life?</p><p>We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find that balance.</p><p>Keeya shares her journey through a childhood peppered with “you’re making this up” accusations, as well as her diagnoses as an adult that brought relief and despair in equal measures.</p><p>Keeya speaks openly about how humor helped her find her way forward through some dark days, and her decision to share that humor with the world. She shares her emotional journey to accepting her chronic illnesses and disabilities.</p><p>Keeya also explains the online course she created with Dr. Linda Bluestein on optimizing medical appointments with complex illness, and why she wanted to share that course with others. Keeya reveals tips on getting the most out of doctor’s appointments and discusses her experiences with finding new medical professionals.</p><p>“In the end,” Keeya says, “I want people to be more open to hope and future joy.”</p><p>An inspiring episode for us all so don’t miss it!</p><p>More information about Keeya can be found on her <a href="https://hellsbellsandmastcells.com/">website.  </a></p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#Hope #Resilience #Disabled #ChronicIllness #DespiteTheOdds #PotsSyndrome #MastCells #EhlersDanlos #hEDS #Advocacy #ChronicIllnessCommunity #MedicalProfessionals #MedicalGaslighting #ChronicIllnessSupport #Accessibility --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life. How do you find balance? How do you find a way forward and regain joy in your life? We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find that balance. Keeya shares her journey through a childhood peppered with “you’re making this up” accusations, as well as her diagnoses as an adult that brought relief and despair in equal measures. Keeya speaks openly about how humor helped her find her way forward through some dark days, and her decision to share that humor with the world. She shares her emotional journey to accepting her chronic illnesses and disabilities. Keeya also explains the online course she created with Dr. Linda Bluestein on optimizing medical appointments with complex illness, and why she wanted to share that course with others. Keeya reveals tips on getting the most out of doctor’s appointments and discusses her experiences with finding new medical professionals. “In the end,” Keeya says, “I want people to be more open to hope and future joy.” An inspiring episode for us all so don’t miss it! More information about Keeya can be found on her website.   . . . . . #Hope #Resilience #Disabled #ChronicIllness #DespiteTheOdds #PotsSyndrome #MastCells #EhlersDanlos #hEDS #Advocacy #ChronicIllnessCommunity #MedicalProfessionals #MedicalGaslighting #ChronicIllnessSupport #Accessibility --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life.

    How do you find balance? How do you find a way forward and regain joy in your life?

    We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find that balance.

    Keeya shares her journey through a childhood peppered with “you’re making this up” accusations, as well as her diagnoses as an adult that brought relief and despair in equal measures.

    Keeya speaks openly about how humor helped her find her way forward through some dark days, and her decision to share that humor with the world. She shares her emotional journey to accepting her chronic illnesses and disabilities.

    Keeya also explains the online course she created with Dr. Linda Bluestein on optimizing medical appointments with complex illness, and why she wanted to share that course with others. Keeya reveals tips on getting the most out of doctor’s appointments and discusses her experiences with finding new medical professionals.

    “In the end,” Keeya says, “I want people to be more open to hope and future joy.”

    An inspiring episode for us all so don’t miss it!

    More information about Keeya can be found on her website.  

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    #Hope #Resilience #Disabled #ChronicIllness #DespiteTheOdds #PotsSyndrome #MastCells #EhlersDanlos #hEDS #Advocacy #ChronicIllnessCommunity #MedicalProfessionals #MedicalGaslighting #ChronicIllnessSupport #Accessibility --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2773 no     60. Strengthening Precision with Monica Lorenzo, MS, ATC https://share.transistor.fm/s/d8bf6d68 Dance injuries can be career ending especially for those with joint hypermobility. Competition dance or precision performance can introduce a whole new set of challenges, whether it’s dancing as part of a team, competitive cheer, or synchronized swimming. Controlling hypermobility and matching lines requires strength, specific coaching, and proprioceptive awareness that’s not always second nature to the performer. We spoke with Monica Lorenzo, the first NBA entertainment athletic trainer who pioneered sports medicine for these performing artists. Monica has worked with many dance teams including the Rockettes, the Knicks City Dancers and the Golden State Warriors Dance Team. Monica shares her own journey from dancer to athletic trainer and describes the differences between precision dance and other forms of dance. She explains why precision dance may be challenging for the hypermobile dancer, and shares her strategies for staying healthy over a long performance season. Monica reveals how she prepares dancers for working on less-than-ideal surfaces, and offers advice on how dancers might prepare for a career in precision dance. Finally, she shares her secret of how she builds individual programs within a group training setting. Full of helpful advice for artists, athletic trainers, coaches, and more, you won’t want to miss this episode. More information about Monica can be found at https://romofit.com/. Check out these episodes about fatigue we mentioned during this conversation: https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md OR Listen to the episodes about fatigue we discussed: https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md . . . . #Rockettes #KnicksCityDancers #Knicks #GSWarriors #nba #dancers #DanceTeam #AthleticTrainer #SportsMedicine #Performance #BendyBuddy #DancerLife #DanceDance #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 Jan 2023 09:00:44 -0000 60. Strengthening Precision with Monica Lorenzo, MS, ATC full 60 Dr. Linda Bluestein <p>Dance injuries can be career ending especially for those with joint hypermobility. Competition dance or precision performance can introduce a whole new set of challenges, whether it’s dancing as part of a team, competitive cheer, or synchronized swimming. Controlling hypermobility and matching lines requires strength, specific coaching, and proprioceptive awareness that’s not always second nature to the performer.</p><p>We spoke with Monica Lorenzo, the first NBA entertainment athletic trainer who pioneered sports medicine for these performing artists. Monica has worked with many dance teams including the Rockettes, the Knicks City Dancers and the Golden State Warriors Dance Team.</p><p>Monica shares her own journey from dancer to athletic trainer and describes the differences between precision dance and other forms of dance. She explains why precision dance may be challenging for the hypermobile dancer, and shares her strategies for staying healthy over a long performance season.</p><p>Monica reveals how she prepares dancers for working on less-than-ideal surfaces, and offers advice on how dancers might prepare for a career in precision dance. Finally, she shares her secret of how she builds individual programs within a group training setting.</p><p>Full of helpful advice for artists, athletic trainers, coaches, and more, you won’t want to miss this episode.</p><p>More information about Monica can be found at <a href="https://romofit.com/">https://romofit.com/</a>.</p><p>Check out these episodes about fatigue we mentioned during this conversation:</p><p><a href="https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn">https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn</a></p><p><a href="https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md">https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md</a></p><p>OR</p><p>Listen to the episodes about fatigue we discussed:</p><p><a href="https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn">https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn</a></p><p><a href="https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md">https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md</a></p><p>.</p><p>.</p><p>.</p><p>.</p><p>#Rockettes #KnicksCityDancers #Knicks #GSWarriors #nba #dancers #DanceTeam #AthleticTrainer #SportsMedicine #Performance</p><p>#BendyBuddy #DancerLife #DanceDance #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Dance injuries can be career ending especially for those with joint hypermobility. Competition dance or precision performance can introduce a whole new set of challenges, whether it’s dancing as part of a team, competitive cheer, or synchronized swimming. Controlling hypermobility and matching lines requires strength, specific coaching, and proprioceptive awareness that’s not always second nature to the performer. We spoke with Monica Lorenzo, the first NBA entertainment athletic trainer who pioneered sports medicine for these performing artists. Monica has worked with many dance teams including the Rockettes, the Knicks City Dancers and the Golden State Warriors Dance Team. Monica shares her own journey from dancer to athletic trainer and describes the differences between precision dance and other forms of dance. She explains why precision dance may be challenging for the hypermobile dancer, and shares her strategies for staying healthy over a long performance season. Monica reveals how she prepares dancers for working on less-than-ideal surfaces, and offers advice on how dancers might prepare for a career in precision dance. Finally, she shares her secret of how she builds individual programs within a group training setting. Full of helpful advice for artists, athletic trainers, coaches, and more, you won’t want to miss this episode. More information about Monica can be found at https://romofit.com/. Check out these episodes about fatigue we mentioned during this conversation: https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md OR Listen to the episodes about fatigue we discussed: https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md . . . . #Rockettes #KnicksCityDancers #Knicks #GSWarriors #nba #dancers #DanceTeam #AthleticTrainer #SportsMedicine #Performance #BendyBuddy #DancerLife #DanceDance #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Dance injuries can be career ending especially for those with joint hypermobility. Competition dance or precision performance can introduce a whole new set of challenges, whether it’s dancing as part of a team, competitive cheer, or synchronized swimming. Controlling hypermobility and matching lines requires strength, specific coaching, and proprioceptive awareness that’s not always second nature to the performer.

    We spoke with Monica Lorenzo, the first NBA entertainment athletic trainer who pioneered sports medicine for these performing artists. Monica has worked with many dance teams including the Rockettes, the Knicks City Dancers and the Golden State Warriors Dance Team.

    Monica shares her own journey from dancer to athletic trainer and describes the differences between precision dance and other forms of dance. She explains why precision dance may be challenging for the hypermobile dancer, and shares her strategies for staying healthy over a long performance season.

    Monica reveals how she prepares dancers for working on less-than-ideal surfaces, and offers advice on how dancers might prepare for a career in precision dance. Finally, she shares her secret of how she builds individual programs within a group training setting.

    Full of helpful advice for artists, athletic trainers, coaches, and more, you won’t want to miss this episode.

    More information about Monica can be found at https://romofit.com/.

    Check out these episodes about fatigue we mentioned during this conversation:

    https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn

    https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md

    OR

    Listen to the episodes about fatigue we discussed:

    https://www.hypermobilitymd.com/bendybodiespodcast/episode/1c065966/46-fueling-against-fatigue-with-kristin-koskinen-rdn

    https://www.hypermobilitymd.com/bendybodiespodcast/episode/33cfae69/45-understanding-fatigue-with-alan-pocinki-md

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    #Rockettes #KnicksCityDancers #Knicks #GSWarriors #nba #dancers #DanceTeam #AthleticTrainer #SportsMedicine #Performance

    #BendyBuddy #DancerLife #DanceDance #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3306 no     59. Preparing for Competitions: A Round Table with Kristin Koskinen RDN, Linda Bluestein MD, and Jennifer Milner NCPT https://share.transistor.fm/s/517f6030 For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point. Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods. So how do you prepare for a competition, and what can you do during the event to make sure you are at the top of your game and come out of it injury-free? We decided to approach this topic from a multi-disciplinary angle, so Jennifer, Dr. Bluestein, and resident Bendy Bodies nutrition expert, Kristin Koskinen, all sat down for a round table discussion on this important topic. We talk through a timeline of preparation before the big event, and ways to make sure you’re heading into your competition as healthy and prepared as possible. Nutrition, training, sleep, and more are discussed as we sketch out the ways to make the most of your preparation time. Kristin offers practical advice on ways to fuel healthily during the competition, often without access to refrigerators or even a true meal break. Dr. Bluestein shares ways to be prepared for any issues that might come up physically, and Jennifer reveals her top competition-day tips. Finally, we look at the importance of recovering after a competition. How we replenish our body’s nutrients, ways to approach constructive rest and gradual return to training, and more are shared as we offer ways to be the healthiest competitive artist you can be. Share this with parents of young artistic athletes, bookmark for yourself as a competitor, and pass it on to studio owners, coaches, physical therapists, and more! . . . . . #CompetitionDay #PreparingForCompetitions #Nutrition #NutritionalTips #HealthyFoodAdvice #Nutrients #NutritionEducation #Sleep #SleepTips #SleepHealth #TrainingAdvice #TrainingDay --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Jan 2023 15:25:12 -0000 59. Preparing for Competitions: A Round Table with Kristin Koskinen RDN, Linda Bluestein MD, and Jennifer Milner NCPT full 59 Dr. Linda Bluestein <p>For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point.</p><p>Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods. So how do you prepare for a competition, and what can you do during the event to make sure you are at the top of your game and come out of it injury-free?</p><p>We decided to approach this topic from a multi-disciplinary angle, so Jennifer, Dr. Bluestein, and resident Bendy Bodies nutrition expert, Kristin Koskinen, all sat down for a round table discussion on this important topic.</p><p>We talk through a timeline of preparation before the big event, and ways to make sure you’re heading into your competition as healthy and prepared as possible. Nutrition, training, sleep, and more are discussed as we sketch out the ways to make the most of your preparation time.</p><p>Kristin offers practical advice on ways to fuel healthily during the competition, often without access to refrigerators or even a true meal break.</p><p>Dr. Bluestein shares ways to be prepared for any issues that might come up physically, and Jennifer reveals her top competition-day tips.</p><p>Finally, we look at the importance of recovering after a competition. How we replenish our body’s nutrients, ways to approach constructive rest and gradual return to training, and more are shared as we offer ways to be the healthiest competitive artist you can be.</p><p>Share this with parents of young artistic athletes, bookmark for yourself as a competitor, and pass it on to studio owners, coaches, physical therapists, and more!</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#CompetitionDay #PreparingForCompetitions #Nutrition #NutritionalTips #HealthyFoodAdvice #Nutrients #NutritionEducation #Sleep #SleepTips #SleepHealth #TrainingAdvice #TrainingDay --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point. Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods. So how do you prepare for a competition, and what can you do during the event to make sure you are at the top of your game and come out of it injury-free? We decided to approach this topic from a multi-disciplinary angle, so Jennifer, Dr. Bluestein, and resident Bendy Bodies nutrition expert, Kristin Koskinen, all sat down for a round table discussion on this important topic. We talk through a timeline of preparation before the big event, and ways to make sure you’re heading into your competition as healthy and prepared as possible. Nutrition, training, sleep, and more are discussed as we sketch out the ways to make the most of your preparation time. Kristin offers practical advice on ways to fuel healthily during the competition, often without access to refrigerators or even a true meal break. Dr. Bluestein shares ways to be prepared for any issues that might come up physically, and Jennifer reveals her top competition-day tips. Finally, we look at the importance of recovering after a competition. How we replenish our body’s nutrients, ways to approach constructive rest and gradual return to training, and more are shared as we offer ways to be the healthiest competitive artist you can be. Share this with parents of young artistic athletes, bookmark for yourself as a competitor, and pass it on to studio owners, coaches, physical therapists, and more! . . . . . #CompetitionDay #PreparingForCompetitions #Nutrition #NutritionalTips #HealthyFoodAdvice #Nutrients #NutritionEducation #Sleep #SleepTips #SleepHealth #TrainingAdvice #TrainingDay --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point.

    Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods. So how do you prepare for a competition, and what can you do during the event to make sure you are at the top of your game and come out of it injury-free?

    We decided to approach this topic from a multi-disciplinary angle, so Jennifer, Dr. Bluestein, and resident Bendy Bodies nutrition expert, Kristin Koskinen, all sat down for a round table discussion on this important topic.

    We talk through a timeline of preparation before the big event, and ways to make sure you’re heading into your competition as healthy and prepared as possible. Nutrition, training, sleep, and more are discussed as we sketch out the ways to make the most of your preparation time.

    Kristin offers practical advice on ways to fuel healthily during the competition, often without access to refrigerators or even a true meal break.

    Dr. Bluestein shares ways to be prepared for any issues that might come up physically, and Jennifer reveals her top competition-day tips.

    Finally, we look at the importance of recovering after a competition. How we replenish our body’s nutrients, ways to approach constructive rest and gradual return to training, and more are shared as we offer ways to be the healthiest competitive artist you can be.

    Share this with parents of young artistic athletes, bookmark for yourself as a competitor, and pass it on to studio owners, coaches, physical therapists, and more!

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    .

    #CompetitionDay #PreparingForCompetitions #Nutrition #NutritionalTips #HealthyFoodAdvice #Nutrients #NutritionEducation #Sleep #SleepTips #SleepHealth #TrainingAdvice #TrainingDay --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4088 no     58. Preparing for Surgery with Linda Bluestein, MD https://share.transistor.fm/s/67fe2f18 Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present  complications for  surgery, anesthesia, and more. If you’re anticipating  surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”? Bendy Bodies founder Dr. Linda Bluestein spent years in the operating room as a top anesthesiologist. We asked her for advice on this often-overlooked aspect of dealing with symptomatic joint hypermobility. Dr. Bluestein discusses the possible medication reactions that often accompany connective tissue disorders and associated conditions. She talks about ways to prepare for the pre-operative assessment, and outlines what medical conditions should be shared in advance with the anesthesia team. Dr. Bluestein explains the different types of anesthesia and why that information is important, and shares her observations about people with joint hypermobility and their potential complications. Finally, Dr. Bluestein offers suggestions for how to share your concerns with the surgery team, from limb positioning to avoid  dislocations, cervical spine and jaw problems that may influence airway management and so much more. Whether you’re part of a surgical team or preparing to undergo your own surgery, you’ll find helpful advice here to prepare you for next steps. . . . . . #Anesthesia #AnesthesiaLife Anesthesiologist #LocalAnesthetic #LocalAnesthesia  #hypermobilitytreatment #mobility #ehlersdanlos #spinalstabilization #butyoudontlooksick #hypermobilitypain #spooniesupport #hypermobilityrehabilitation #hypermobilityspectrum #bendy #invisibledisability #JenniferMilner  #hypermobilitysyndrome #hypermobilityhacks #HypermobilityMD #chronicconditions For an even deeper dive, read this peer-reviewed journal article co authored by Dr. Bluestein and Dr. Pradeep Chopra: Perioperative Care in Patients with Ehlers Danlos Syndromes https://www.scirp.org/journal/Paperabs.aspx?PaperID=97524 --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 15 Dec 2022 09:00:07 -0000 58. Preparing for Surgery with Linda Bluestein, MD full 58 Dr. Linda Bluestein <p>Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present  complications for  surgery, anesthesia, and more. If you’re anticipating  surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”?</p><p>Bendy Bodies founder Dr. Linda Bluestein spent years in the operating room as a top anesthesiologist. We asked her for advice on this often-overlooked aspect of dealing with symptomatic joint hypermobility.</p><p>Dr. Bluestein discusses the possible medication reactions that often accompany connective tissue disorders and associated conditions. She talks about ways to prepare for the pre-operative assessment, and outlines what medical conditions should be shared in advance with the anesthesia team.</p><p>Dr. Bluestein explains the different types of anesthesia and why that information is important, and shares her observations about people with joint hypermobility and their potential complications.</p><p>Finally, Dr. Bluestein offers suggestions for how to share your concerns with the surgery team, from limb positioning to avoid  dislocations, cervical spine and jaw problems that may influence airway management and so much more.</p><p>Whether you’re part of a surgical team or preparing to undergo your own surgery, you’ll find helpful advice here to prepare you for next steps.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#Anesthesia #AnesthesiaLife Anesthesiologist #LocalAnesthetic #LocalAnesthesia  #hypermobilitytreatment #mobility #ehlersdanlos #spinalstabilization #butyoudontlooksick #hypermobilitypain #spooniesupport #hypermobilityrehabilitation #hypermobilityspectrum #bendy #invisibledisability #JenniferMilner  #hypermobilitysyndrome #hypermobilityhacks #HypermobilityMD #chronicconditions</p><p><br></p><p>For an even deeper dive, read this peer-reviewed journal <a href="https://www.scirp.org/journal/Paperabs.aspx?PaperID=97524">article</a> co authored by Dr. Bluestein and Dr. Pradeep Chopra:</p><p>Perioperative Care in Patients with Ehlers Danlos Syndromes</p><p>https://www.scirp.org/journal/Paperabs.aspx?PaperID=97524 --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present  complications for  surgery, anesthesia, and more. If you’re anticipating  surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”? Bendy Bodies founder Dr. Linda Bluestein spent years in the operating room as a top anesthesiologist. We asked her for advice on this often-overlooked aspect of dealing with symptomatic joint hypermobility. Dr. Bluestein discusses the possible medication reactions that often accompany connective tissue disorders and associated conditions. She talks about ways to prepare for the pre-operative assessment, and outlines what medical conditions should be shared in advance with the anesthesia team. Dr. Bluestein explains the different types of anesthesia and why that information is important, and shares her observations about people with joint hypermobility and their potential complications. Finally, Dr. Bluestein offers suggestions for how to share your concerns with the surgery team, from limb positioning to avoid  dislocations, cervical spine and jaw problems that may influence airway management and so much more. Whether you’re part of a surgical team or preparing to undergo your own surgery, you’ll find helpful advice here to prepare you for next steps. . . . . . #Anesthesia #AnesthesiaLife Anesthesiologist #LocalAnesthetic #LocalAnesthesia  #hypermobilitytreatment #mobility #ehlersdanlos #spinalstabilization #butyoudontlooksick #hypermobilitypain #spooniesupport #hypermobilityrehabilitation #hypermobilityspectrum #bendy #invisibledisability #JenniferMilner  #hypermobilitysyndrome #hypermobilityhacks #HypermobilityMD #chronicconditions For an even deeper dive, read this peer-reviewed journal article co authored by Dr. Bluestein and Dr. Pradeep Chopra: Perioperative Care in Patients with Ehlers Danlos Syndromes https://www.scirp.org/journal/Paperabs.aspx?PaperID=97524 --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present  complications for  surgery, anesthesia, and more. If you’re anticipating  surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”?

    Bendy Bodies founder Dr. Linda Bluestein spent years in the operating room as a top anesthesiologist. We asked her for advice on this often-overlooked aspect of dealing with symptomatic joint hypermobility.

    Dr. Bluestein discusses the possible medication reactions that often accompany connective tissue disorders and associated conditions. She talks about ways to prepare for the pre-operative assessment, and outlines what medical conditions should be shared in advance with the anesthesia team.

    Dr. Bluestein explains the different types of anesthesia and why that information is important, and shares her observations about people with joint hypermobility and their potential complications.

    Finally, Dr. Bluestein offers suggestions for how to share your concerns with the surgery team, from limb positioning to avoid  dislocations, cervical spine and jaw problems that may influence airway management and so much more.

    Whether you’re part of a surgical team or preparing to undergo your own surgery, you’ll find helpful advice here to prepare you for next steps.

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    #Anesthesia #AnesthesiaLife Anesthesiologist #LocalAnesthetic #LocalAnesthesia  #hypermobilitytreatment #mobility #ehlersdanlos #spinalstabilization #butyoudontlooksick #hypermobilitypain #spooniesupport #hypermobilityrehabilitation #hypermobilityspectrum #bendy #invisibledisability #JenniferMilner  #hypermobilitysyndrome #hypermobilityhacks #HypermobilityMD #chronicconditions


    For an even deeper dive, read this peer-reviewed journal article co authored by Dr. Bluestein and Dr. Pradeep Chopra:

    Perioperative Care in Patients with Ehlers Danlos Syndromes

    https://www.scirp.org/journal/Paperabs.aspx?PaperID=97524 --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3706 no     57. Alleviating Anxiety with Jo-Anne La Flèche https://share.transistor.fm/s/ca82b900 Dance and other performing arts are, by nature, stressful. Stress can easily develop into anxiety, which is exponentially more common in the hypermobile population than the general population. How can you distinguish between stress and anxiety? What can you do to manage your anxiety? When is it time to seek outside help? We asked these questions and more of Jo-Anne La Flèche, a clinical and dance psychologist with a Masters in Somatics. Jo-Anne defines the difference between stress and anxiety, and discusses factors that may contribute to anxiety, both within a person and in their external circumstances. She breaks down how a dance environment might foster anxiety and shares ways to self-manage that anxiety. Self-care practices are offered as ways to lower anxiety, as well as seeing the value in recognizing things you can’t control. Jo-Anne lists signs that may indicate a dancer should seek help in managing their mental health and suggests ways to find the right therapist for you. Finally, Jo-Anne shares her thoughts on why it’s important to have an identity outside of dance. For all artists or even anyone struggling with anxiety, this episode is not to be missed. Click to access informational papers written by Jo-Anne under the auspices of the Dance/USA Task Force on Dancer Health on anxiety and depression. --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 01 Dec 2022 09:00:45 -0000 57. Alleviating Anxiety with Jo-Anne La Flèche full 57 Dr. Linda Bluestein <p>Dance and other performing arts are, by nature, stressful. Stress can easily develop into anxiety, which is exponentially more common in the hypermobile population than the general population.</p><p>How can you distinguish between stress and anxiety? What can you do to manage your anxiety? When is it time to seek outside help?</p><p>We asked these questions and more of Jo-Anne La Flèche, a clinical and dance psychologist with a Masters in Somatics.</p><p>Jo-Anne defines the difference between stress and anxiety, and discusses factors that may contribute to anxiety, both within a person and in their external circumstances. She breaks down how a dance environment might foster anxiety and shares ways to self-manage that anxiety.</p><p>Self-care practices are offered as ways to lower anxiety, as well as seeing the value in recognizing things you can’t control. Jo-Anne lists signs that may indicate a dancer should seek help in managing their mental health and suggests ways to find the right therapist for you.</p><p>Finally, Jo-Anne shares her thoughts on why it’s important to have an identity outside of dance.</p><p>For all artists or even anyone struggling with anxiety, this episode is not to be missed.</p><p>Click to access informational papers written by Jo-Anne under the auspices of the Dance/USA Task Force on Dancer Health on <a href="https://danceusa.s3.us-east-2.amazonaws.com/wp-content/uploads/2021/07/08141315/Managing-Anxiety_What-Do-Dancers-Need-to-Know_2021.pdf">anxiety</a> and <a href="https://danceusa.s3.us-east-2.amazonaws.com/page_uploads/Tips%20on%20Depression%20for%20Dancers%20FINAL%20-%20PDF.pdf">depression</a>. --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Dance and other performing arts are, by nature, stressful. Stress can easily develop into anxiety, which is exponentially more common in the hypermobile population than the general population. How can you distinguish between stress and anxiety? What can you do to manage your anxiety? When is it time to seek outside help? We asked these questions and more of Jo-Anne La Flèche, a clinical and dance psychologist with a Masters in Somatics. Jo-Anne defines the difference between stress and anxiety, and discusses factors that may contribute to anxiety, both within a person and in their external circumstances. She breaks down how a dance environment might foster anxiety and shares ways to self-manage that anxiety. Self-care practices are offered as ways to lower anxiety, as well as seeing the value in recognizing things you can’t control. Jo-Anne lists signs that may indicate a dancer should seek help in managing their mental health and suggests ways to find the right therapist for you. Finally, Jo-Anne shares her thoughts on why it’s important to have an identity outside of dance. For all artists or even anyone struggling with anxiety, this episode is not to be missed. Click to access informational papers written by Jo-Anne under the auspices of the Dance/USA Task Force on Dancer Health on anxiety and depression. --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Dance and other performing arts are, by nature, stressful. Stress can easily develop into anxiety, which is exponentially more common in the hypermobile population than the general population.

    How can you distinguish between stress and anxiety? What can you do to manage your anxiety? When is it time to seek outside help?

    We asked these questions and more of Jo-Anne La Flèche, a clinical and dance psychologist with a Masters in Somatics.

    Jo-Anne defines the difference between stress and anxiety, and discusses factors that may contribute to anxiety, both within a person and in their external circumstances. She breaks down how a dance environment might foster anxiety and shares ways to self-manage that anxiety.

    Self-care practices are offered as ways to lower anxiety, as well as seeing the value in recognizing things you can’t control. Jo-Anne lists signs that may indicate a dancer should seek help in managing their mental health and suggests ways to find the right therapist for you.

    Finally, Jo-Anne shares her thoughts on why it’s important to have an identity outside of dance.

    For all artists or even anyone struggling with anxiety, this episode is not to be missed.

    Click to access informational papers written by Jo-Anne under the auspices of the Dance/USA Task Force on Dancer Health on anxiety and depression. --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4089 no     56. Optimizing Immunity with Kristin Koskinen, RDN https://share.transistor.fm/s/f1eedccb As the weather changes and schedules become busier, staying healthy can feel like a huge challenge. Artistic athletes may struggle to keep their bodies at optimal performance level, and fighting off infectious illnesses may seem like an uphill battle. How can we naturally strengthen our immune system, supporting its function for optimum success? We posed this question to Kristin Koskinen, RDN and Bendy Bodies team member, in this episode. Kristin shares why dancers and other performing artists with hypermobility and/or a connective tissue disorder like the Ehlers-Danlos syndromes should care about immunity and nutrition in general. She explains how the foods we eat impact our immune system, and how investing efforts to fuel well now can have a big impact on our health down the road. Kristin walks us through her process for building a healthy, supportive diet for her clients, talking through her suggestions for planning wide varieties of foods, as well as efficient shortcuts when time is an issue.  She discusses the possible effects of sugar on the immune system, and how to deal with the emotional component of foods during the holidays. Kristen looks at the impact of alcohol on the immune system and talks about the microbiome’s role. She shares her expert view on nutritional supplements including probiotics, and offers lots of encouraging tips for managing busy seasons while striving for healthy nutrition. This episode breaks down what can be a stressful and complicated subject in encouraging and manageable ways for all bendy bodies. . . . . . #JenniferMilner #HypermobilityMD #Bendy #BendyBuddy #Immunity #Bloating #DietitiansOfIG #Glucose #Gut #Supplement #ChronicDisease #ChronicIllness #InvisibleDisability #Infection #AlwaysOptimal #AutoImmune #NutritionForDancers #DanceNutrition #OptimalNutrition #NutrientDeficiencies --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Nov 2022 09:00:48 -0000 56. Optimizing Immunity with Kristin Koskinen, RDN full 56 Dr. Linda Bluestein <p>As the weather changes and schedules become busier, staying healthy can feel like a huge challenge. Artistic athletes may struggle to keep their bodies at optimal performance level, and fighting off infectious illnesses may seem like an uphill battle.</p><p>How can we naturally strengthen our immune system, supporting its function for optimum success? We posed this question to Kristin Koskinen, RDN and Bendy Bodies team member, in this episode.</p><p>Kristin shares why dancers and other performing artists with hypermobility and/or a connective tissue disorder like the Ehlers-Danlos syndromes should care about immunity and nutrition in general. She explains how the foods we eat impact our immune system, and how investing efforts to fuel well now can have a big impact on our health down the road.</p><p>Kristin walks us through her process for building a healthy, supportive diet for her clients, talking through her suggestions for planning wide varieties of foods, as well as efficient shortcuts when time is an issue.  She discusses the possible effects of sugar on the immune system, and how to deal with the emotional component of foods during the holidays.</p><p>Kristen looks at the impact of alcohol on the immune system and talks about the microbiome’s role. She shares her expert view on nutritional supplements including probiotics, and offers lots of encouraging tips for managing busy seasons while striving for healthy nutrition.</p><p>This episode breaks down what can be a stressful and complicated subject in encouraging and manageable ways for all bendy bodies.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#JenniferMilner #HypermobilityMD #Bendy #BendyBuddy #Immunity #Bloating #DietitiansOfIG #Glucose #Gut #Supplement #ChronicDisease #ChronicIllness #InvisibleDisability #Infection #AlwaysOptimal #AutoImmune #NutritionForDancers #DanceNutrition #OptimalNutrition #NutrientDeficiencies --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> As the weather changes and schedules become busier, staying healthy can feel like a huge challenge. Artistic athletes may struggle to keep their bodies at optimal performance level, and fighting off infectious illnesses may seem like an uphill battle. How can we naturally strengthen our immune system, supporting its function for optimum success? We posed this question to Kristin Koskinen, RDN and Bendy Bodies team member, in this episode. Kristin shares why dancers and other performing artists with hypermobility and/or a connective tissue disorder like the Ehlers-Danlos syndromes should care about immunity and nutrition in general. She explains how the foods we eat impact our immune system, and how investing efforts to fuel well now can have a big impact on our health down the road. Kristin walks us through her process for building a healthy, supportive diet for her clients, talking through her suggestions for planning wide varieties of foods, as well as efficient shortcuts when time is an issue.  She discusses the possible effects of sugar on the immune system, and how to deal with the emotional component of foods during the holidays. Kristen looks at the impact of alcohol on the immune system and talks about the microbiome’s role. She shares her expert view on nutritional supplements including probiotics, and offers lots of encouraging tips for managing busy seasons while striving for healthy nutrition. This episode breaks down what can be a stressful and complicated subject in encouraging and manageable ways for all bendy bodies. . . . . . #JenniferMilner #HypermobilityMD #Bendy #BendyBuddy #Immunity #Bloating #DietitiansOfIG #Glucose #Gut #Supplement #ChronicDisease #ChronicIllness #InvisibleDisability #Infection #AlwaysOptimal #AutoImmune #NutritionForDancers #DanceNutrition #OptimalNutrition #NutrientDeficiencies --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices As the weather changes and schedules become busier, staying healthy can feel like a huge challenge. Artistic athletes may struggle to keep their bodies at optimal performance level, and fighting off infectious illnesses may seem like an uphill battle.

    How can we naturally strengthen our immune system, supporting its function for optimum success? We posed this question to Kristin Koskinen, RDN and Bendy Bodies team member, in this episode.

    Kristin shares why dancers and other performing artists with hypermobility and/or a connective tissue disorder like the Ehlers-Danlos syndromes should care about immunity and nutrition in general. She explains how the foods we eat impact our immune system, and how investing efforts to fuel well now can have a big impact on our health down the road.

    Kristin walks us through her process for building a healthy, supportive diet for her clients, talking through her suggestions for planning wide varieties of foods, as well as efficient shortcuts when time is an issue.  She discusses the possible effects of sugar on the immune system, and how to deal with the emotional component of foods during the holidays.

    Kristen looks at the impact of alcohol on the immune system and talks about the microbiome’s role. She shares her expert view on nutritional supplements including probiotics, and offers lots of encouraging tips for managing busy seasons while striving for healthy nutrition.

    This episode breaks down what can be a stressful and complicated subject in encouraging and manageable ways for all bendy bodies.

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    #JenniferMilner #HypermobilityMD #Bendy #BendyBuddy #Immunity #Bloating #DietitiansOfIG #Glucose #Gut #Supplement #ChronicDisease #ChronicIllness #InvisibleDisability #Infection #AlwaysOptimal #AutoImmune #NutritionForDancers #DanceNutrition #OptimalNutrition #NutrientDeficiencies --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3588 no     55. Cultivating Resiliency with Jazz Bynum https://share.transistor.fm/s/fb5e2da3 As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”.   Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) gave Jazz the information necessary to build the resiliency and strength she needs as a professional dancer with Ballet West. Jazz chats with Bendy Bodies about navigating her dance career while addressing her body’s unique needs with hEDS. Jazz discusses her diagnosis and what led her to seek one, and shares how her diagnosis changed how she seeks treatment. Jazz speaks openly about her decision to reveal her hEDS publicly, documenting her latest injury and nearly year-long recovery process on social media. She shares her maintenance routine outside of dance, and the lessons she’s learned about her body and her hEDS during her rehabilitation. Finally, Jazz encourages other dancers on their own journeys, addressing the importance of finding people who will support and advocate for you. An inspiring story of cultivating your own resilience through injuries, this podcast is full of encouragement and motivation for everyone struggling to move forward in spite of obstacles. . . . . . #BendyBuddy #Bendy #EhlersDanlos #Dancer #ZebraStrong  #ChronicIllness  #spoonie #Zebra  #Disease #ArtisticAthlete #Disability #EDS #JointStability #Bendy #hypermobile #HypermobilitySpectrum #BendyBallerina #BendyBallet #Ballet #Movement --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Nov 2022 08:00:05 -0000 55. Cultivating Resiliency with Jazz Bynum full 55 Dr. Linda Bluestein <p>As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”.   Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) gave Jazz the information necessary to build the resiliency and strength she needs as a professional dancer with Ballet West.</p><p>Jazz chats with Bendy Bodies about navigating her dance career while addressing her body’s unique needs with hEDS. Jazz discusses her diagnosis and what led her to seek one, and shares how her diagnosis changed how she seeks treatment.</p><p>Jazz speaks openly about her decision to reveal her hEDS publicly, documenting her latest injury and nearly year-long recovery process on social media. She shares her maintenance routine outside of dance, and the lessons she’s learned about her body and her hEDS during her rehabilitation. Finally, Jazz encourages other dancers on their own journeys, addressing the importance of finding people who will support and advocate for you.</p><p>An inspiring story of cultivating your own resilience through injuries, this podcast is full of encouragement and motivation for everyone struggling to move forward in spite of obstacles.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#BendyBuddy #Bendy #EhlersDanlos #Dancer #ZebraStrong  #ChronicIllness  #spoonie #Zebra  #Disease #ArtisticAthlete #Disability #EDS #JointStability</p><p>#Bendy #hypermobile #HypermobilitySpectrum</p><p>#BendyBallerina #BendyBallet #Ballet #Movement --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”.   Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) gave Jazz the information necessary to build the resiliency and strength she needs as a professional dancer with Ballet West. Jazz chats with Bendy Bodies about navigating her dance career while addressing her body’s unique needs with hEDS. Jazz discusses her diagnosis and what led her to seek one, and shares how her diagnosis changed how she seeks treatment. Jazz speaks openly about her decision to reveal her hEDS publicly, documenting her latest injury and nearly year-long recovery process on social media. She shares her maintenance routine outside of dance, and the lessons she’s learned about her body and her hEDS during her rehabilitation. Finally, Jazz encourages other dancers on their own journeys, addressing the importance of finding people who will support and advocate for you. An inspiring story of cultivating your own resilience through injuries, this podcast is full of encouragement and motivation for everyone struggling to move forward in spite of obstacles. . . . . . #BendyBuddy #Bendy #EhlersDanlos #Dancer #ZebraStrong  #ChronicIllness  #spoonie #Zebra  #Disease #ArtisticAthlete #Disability #EDS #JointStability #Bendy #hypermobile #HypermobilitySpectrum #BendyBallerina #BendyBallet #Ballet #Movement --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”.   Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) gave Jazz the information necessary to build the resiliency and strength she needs as a professional dancer with Ballet West.

    Jazz chats with Bendy Bodies about navigating her dance career while addressing her body’s unique needs with hEDS. Jazz discusses her diagnosis and what led her to seek one, and shares how her diagnosis changed how she seeks treatment.

    Jazz speaks openly about her decision to reveal her hEDS publicly, documenting her latest injury and nearly year-long recovery process on social media. She shares her maintenance routine outside of dance, and the lessons she’s learned about her body and her hEDS during her rehabilitation. Finally, Jazz encourages other dancers on their own journeys, addressing the importance of finding people who will support and advocate for you.

    An inspiring story of cultivating your own resilience through injuries, this podcast is full of encouragement and motivation for everyone struggling to move forward in spite of obstacles.

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    #BendyBuddy #Bendy #EhlersDanlos #Dancer #ZebraStrong  #ChronicIllness  #spoonie #Zebra  #Disease #ArtisticAthlete #Disability #EDS #JointStability

    #Bendy #hypermobile #HypermobilitySpectrum

    #BendyBallerina #BendyBallet #Ballet #Movement --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2515 no     54. Managing Mast Cell Pain with Linda Bluestein, MD https://share.transistor.fm/s/90df6f57 Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed.  Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”.  How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain? How can medical professionals accurately seek to diagnose and treat mast cell pain? For this conversation, we put Bendy Bodies founder, Linda Bluestein, MD, in the hot seat. With her many years as a practicing anesthesiologist and her long career treating people with hypermobility disorders, she’s been in a unique position to research, diagnose, and treat these complex conditions. Dr. Bluestein defines mast cell disorders and ways they may present. She explains why people with hypermobility should be aware of mast cell disorders, and reveals the prevalence of pain associated with mast cell issues. Dr. Bluestein shares her techniques for evaluating pain in a patient, and offers advice on treating pain in a patient with mast cell issues. She suggests ways to communicate with a medical professional about your own pain, and shares her wish list of ways she would address mast cell disorders on a large scale. With practical advice for both medical practitioners looking to improve patient care, and hypermobile people searching for ways to mitigate their own chronic pain, this episode is filled with tips and insight into a complex problem. Additional notes:  Excipients:  All medications have excipients (“inactive” ingredients in medications that may cause problems in susceptible people). Mast cell disorder testing:  Tryptase is just one mediator that is important to check (both at baseline and within four hours of a flare).  I provide lab slips to my patients that they can take in for testing as needed.  Tryptase levels can be helpful (especially if they are elevated) but a normal level does not rule out a mast cell problem. Pain sources:  People with EDS and comorbidities (like mast cell disorders) can have all the types of pain.  These include nociceptive (coming from actual or potential tissue damage), neuropathic (problem within the nervous system) and nociplastic (dysfunction of how pain signals are processed). . . . . . #BendyBuddy #HypermobilityMD #JenniferMilner #MastCell #Disease #ChronicDisease #Hypermobile #Histamine #FoodIntolerance #ChronicPain #ButYouDontLookSick #MCAS #MastCellActivation #ComplexIllness #EhlersDanlos #DoctorsOfIG #ChronicIllnessSupport #LowHistamine #Histaminintoleranz #MastCellActivationSyndrome --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Oct 2022 19:29:39 -0000 54. Managing Mast Cell Pain with Linda Bluestein, MD full 54 Dr. Linda Bluestein <p>Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed.  Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”.  How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain? How can medical professionals accurately seek to diagnose and treat mast cell pain?</p><p><br>For this conversation, we put Bendy Bodies founder, Linda Bluestein, MD, in the hot seat. With her many years as a practicing anesthesiologist and her long career treating people with hypermobility disorders, she’s been in a unique position to research, diagnose, and treat these complex conditions.</p><p>Dr. Bluestein defines mast cell disorders and ways they may present. She explains why people with hypermobility should be aware of mast cell disorders, and reveals the prevalence of pain associated with mast cell issues.</p><p>Dr. Bluestein shares her techniques for evaluating pain in a patient, and offers advice on treating pain in a patient with mast cell issues. She suggests ways to communicate with a medical professional about your own pain, and shares her wish list of ways she would address mast cell disorders on a large scale.</p><p>With practical advice for both medical practitioners looking to improve patient care, and hypermobile people searching for ways to mitigate their own chronic pain, this episode is filled with tips and insight into a complex problem.</p><p>Additional notes: </p><ol><li>Excipients:  All medications have excipients (“inactive” ingredients in medications that may cause problems in susceptible people).</li><li>Mast cell disorder testing:  Tryptase is just one mediator that is important to check (both at baseline and within four hours of a flare).  I provide lab slips to my patients that they can take in for testing as needed.  Tryptase levels can be helpful (especially if they are elevated) but a normal level does not rule out a mast cell problem.</li><li>Pain sources:  People with EDS and comorbidities (like mast cell disorders) can have all the types of pain.  These include nociceptive (coming from actual or potential tissue damage), neuropathic (problem within the nervous system) and nociplastic (dysfunction of how pain signals are processed).</li></ol><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#BendyBuddy #HypermobilityMD #JenniferMilner #MastCell #Disease #ChronicDisease #Hypermobile #Histamine #FoodIntolerance #ChronicPain #ButYouDontLookSick #MCAS #MastCellActivation #ComplexIllness #EhlersDanlos #DoctorsOfIG #ChronicIllnessSupport #LowHistamine #Histaminintoleranz #MastCellActivationSyndrome --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed.  Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”.  How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain? How can medical professionals accurately seek to diagnose and treat mast cell pain? For this conversation, we put Bendy Bodies founder, Linda Bluestein, MD, in the hot seat. With her many years as a practicing anesthesiologist and her long career treating people with hypermobility disorders, she’s been in a unique position to research, diagnose, and treat these complex conditions. Dr. Bluestein defines mast cell disorders and ways they may present. She explains why people with hypermobility should be aware of mast cell disorders, and reveals the prevalence of pain associated with mast cell issues. Dr. Bluestein shares her techniques for evaluating pain in a patient, and offers advice on treating pain in a patient with mast cell issues. She suggests ways to communicate with a medical professional about your own pain, and shares her wish list of ways she would address mast cell disorders on a large scale. With practical advice for both medical practitioners looking to improve patient care, and hypermobile people searching for ways to mitigate their own chronic pain, this episode is filled with tips and insight into a complex problem. Additional notes:  Excipients:  All medications have excipients (“inactive” ingredients in medications that may cause problems in susceptible people). Mast cell disorder testing:  Tryptase is just one mediator that is important to check (both at baseline and within four hours of a flare).  I provide lab slips to my patients that they can take in for testing as needed.  Tryptase levels can be helpful (especially if they are elevated) but a normal level does not rule out a mast cell problem. Pain sources:  People with EDS and comorbidities (like mast cell disorders) can have all the types of pain.  These include nociceptive (coming from actual or potential tissue damage), neuropathic (problem within the nervous system) and nociplastic (dysfunction of how pain signals are processed). . . . . . #BendyBuddy #HypermobilityMD #JenniferMilner #MastCell #Disease #ChronicDisease #Hypermobile #Histamine #FoodIntolerance #ChronicPain #ButYouDontLookSick #MCAS #MastCellActivation #ComplexIllness #EhlersDanlos #DoctorsOfIG #ChronicIllnessSupport #LowHistamine #Histaminintoleranz #MastCellActivationSyndrome --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed.  Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”.  How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain? How can medical professionals accurately seek to diagnose and treat mast cell pain?


    For this conversation, we put Bendy Bodies founder, Linda Bluestein, MD, in the hot seat. With her many years as a practicing anesthesiologist and her long career treating people with hypermobility disorders, she’s been in a unique position to research, diagnose, and treat these complex conditions.

    Dr. Bluestein defines mast cell disorders and ways they may present. She explains why people with hypermobility should be aware of mast cell disorders, and reveals the prevalence of pain associated with mast cell issues.

    Dr. Bluestein shares her techniques for evaluating pain in a patient, and offers advice on treating pain in a patient with mast cell issues. She suggests ways to communicate with a medical professional about your own pain, and shares her wish list of ways she would address mast cell disorders on a large scale.

    With practical advice for both medical practitioners looking to improve patient care, and hypermobile people searching for ways to mitigate their own chronic pain, this episode is filled with tips and insight into a complex problem.

    Additional notes: 

    1. Excipients:  All medications have excipients (“inactive” ingredients in medications that may cause problems in susceptible people).
    2. Mast cell disorder testing:  Tryptase is just one mediator that is important to check (both at baseline and within four hours of a flare).  I provide lab slips to my patients that they can take in for testing as needed.  Tryptase levels can be helpful (especially if they are elevated) but a normal level does not rule out a mast cell problem.
    3. Pain sources:  People with EDS and comorbidities (like mast cell disorders) can have all the types of pain.  These include nociceptive (coming from actual or potential tissue damage), neuropathic (problem within the nervous system) and nociplastic (dysfunction of how pain signals are processed).

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    #BendyBuddy #HypermobilityMD #JenniferMilner #MastCell #Disease #ChronicDisease #Hypermobile #Histamine #FoodIntolerance #ChronicPain #ButYouDontLookSick #MCAS #MastCellActivation #ComplexIllness #EhlersDanlos #DoctorsOfIG #ChronicIllnessSupport #LowHistamine #Histaminintoleranz #MastCellActivationSyndrome --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2874 no     53. Creating a New Hypermobility Screening Tool with Aiko Callahan, DPT, and Stephanie Greenspan, DPT https://share.transistor.fm/s/fbe5ca6c Hypermobility is far more prevalent in dancers, circus performers and other aesthetic athletes. While some hypermobile artistic athletes have asymptomatic joint hypermobility, others have symptoms due to an underlying hypermobility or connective tissue disorder. How can a physical therapist or physician assess the bendy artist, beyond tools like the Beighton Score, and see what the artist might need by way of support? Aiko Callahan and Stephanie Greenspan, both DPTs who work a lot with dancers, circus artists and other bendy bodies, wondered this same thing. They worked with Annie Squires, DPT to publish “Management of Hypermobility in Aesthetic Performing Artists: A Review” and create a fabulous new tool, the Hypermobility Screening Tool. The two physical therapists talk through their process and how they assess new patients. They reveal screening questions to ask hypermobile artists to best understand the artist’s needs.  Some areas include performer identity, scheduling issues, and self-management. The two lay out the guidelines they’ve put together for a physical exam and tests they use to screen for joint stability. They discuss the importance of a team approach for the hypermobile artist, and ways to help the artist grow their own support team. Finally, Aiko and Stephanie share their Hypermobility Screening Tool used to assess the presence of other systemic issues often seen in those with hypermobility.  A self-reporting screening tool, this questionnaire is designed to efficiently gather information to aid the medical professional to determine what next steps might be most appropriate. A tool that could be used by medical professionals, trainers looking to help their clients find support, or even hypermobile individuals looking for ways to communicate their issues more clearly, the screening tool is an important step forward in streamlining care for people with hypermobility disorders. For more information about Stephanie, visit ArtleticScience.com.  Aiko can be reached at AikoCallahanPT@gmail.com.  AOPT members can access the full article here.  (link the word here if possible)  https://www.orthopt.org/content/publications.  Non members can contact sklinski@orthopt.org to discuss other options. You can also click here to dowload a sample of the Hypermobility Screening Tool: Hypermobility Screening Tool Sample PDF. . . . . . #BendyBuddy #Hypermobility #Hypermobile #Screening #EhlersDanlos #ConnectiveTissue #EhlersDanlosSyndrome #HypermobilitySpectrum #PhysicalTherapy #Acrobats #JointPain #Flexible #Aerial #Acrobatics #CircusArtist #Dance #DancerLife #DanceDance #Ballet #BalletLife #Mobility #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Oct 2022 19:13:58 -0000 53. Creating a New Hypermobility Screening Tool with Aiko Callahan, DPT, and Stephanie Greenspan, DPT full 53 Dr. Linda Bluestein <p>Hypermobility is far more prevalent in dancers, circus performers and other aesthetic athletes. While some hypermobile artistic athletes have asymptomatic joint hypermobility, others have symptoms due to an underlying hypermobility or connective tissue disorder.</p><p>How can a physical therapist or physician assess the bendy artist, beyond tools like the Beighton Score, and see what the artist might need by way of support?</p><p>Aiko Callahan and Stephanie Greenspan, both DPTs who work a lot with dancers, circus artists and other bendy bodies, wondered this same thing. They worked with Annie Squires, DPT to publish “Management of Hypermobility in Aesthetic Performing Artists: A Review” and create a fabulous new tool, the Hypermobility Screening Tool.</p><p>The two physical therapists talk through their process and how they assess new patients. They reveal screening questions to ask hypermobile artists to best understand the artist’s needs.  Some areas include performer identity, scheduling issues, and self-management.</p><p>The two lay out the guidelines they’ve put together for a physical exam and tests they use to screen for joint stability. They discuss the importance of a team approach for the hypermobile artist, and ways to help the artist grow their own support team.</p><p>Finally, Aiko and Stephanie share their Hypermobility Screening Tool used to assess the presence of other systemic issues often seen in those with hypermobility.  A self-reporting screening tool, this questionnaire is designed to efficiently gather information to aid the medical professional to determine what next steps might be most appropriate.</p><p>A tool that could be used by medical professionals, trainers looking to help their clients find support, or even hypermobile individuals looking for ways to communicate their issues more clearly, the screening tool is an important step forward in streamlining care for people with hypermobility disorders.</p><p>For more information about Stephanie, visit ArtleticScience.com.  Aiko can be reached at AikoCallahanPT@gmail.com.  AOPT members can access the full article here.  (link the word here if possible)  <a href="https://www.orthopt.org/content/publications">https://www.orthopt.org/content/publications</a>.  Non members can contact sklinski@orthopt.org to discuss other options. You can also click here to dowload a sample of the Hypermobility Screening Tool: <a href="https://mail.google.com/mail/u/0?ui=2&amp;ik=875023cbe7&amp;attid=0.1&amp;permmsgid=msg-f:1747232594373700580&amp;th=183f6ac98fa0ebe4&amp;view=att&amp;disp=safe&amp;realattid=183f6a7e3c561568a59">Hypermobility Screening Tool Sample PDF</a>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#BendyBuddy #Hypermobility #Hypermobile #Screening #EhlersDanlos #ConnectiveTissue #EhlersDanlosSyndrome #HypermobilitySpectrum #PhysicalTherapy #Acrobats #JointPain #Flexible #Aerial #Acrobatics #CircusArtist #Dance #DancerLife #DanceDance #Ballet #BalletLife #Mobility #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Hypermobility is far more prevalent in dancers, circus performers and other aesthetic athletes. While some hypermobile artistic athletes have asymptomatic joint hypermobility, others have symptoms due to an underlying hypermobility or connective tissue disorder. How can a physical therapist or physician assess the bendy artist, beyond tools like the Beighton Score, and see what the artist might need by way of support? Aiko Callahan and Stephanie Greenspan, both DPTs who work a lot with dancers, circus artists and other bendy bodies, wondered this same thing. They worked with Annie Squires, DPT to publish “Management of Hypermobility in Aesthetic Performing Artists: A Review” and create a fabulous new tool, the Hypermobility Screening Tool. The two physical therapists talk through their process and how they assess new patients. They reveal screening questions to ask hypermobile artists to best understand the artist’s needs.  Some areas include performer identity, scheduling issues, and self-management. The two lay out the guidelines they’ve put together for a physical exam and tests they use to screen for joint stability. They discuss the importance of a team approach for the hypermobile artist, and ways to help the artist grow their own support team. Finally, Aiko and Stephanie share their Hypermobility Screening Tool used to assess the presence of other systemic issues often seen in those with hypermobility.  A self-reporting screening tool, this questionnaire is designed to efficiently gather information to aid the medical professional to determine what next steps might be most appropriate. A tool that could be used by medical professionals, trainers looking to help their clients find support, or even hypermobile individuals looking for ways to communicate their issues more clearly, the screening tool is an important step forward in streamlining care for people with hypermobility disorders. For more information about Stephanie, visit ArtleticScience.com.  Aiko can be reached at AikoCallahanPT@gmail.com.  AOPT members can access the full article here.  (link the word here if possible)  https://www.orthopt.org/content/publications.  Non members can contact sklinski@orthopt.org to discuss other options. You can also click here to dowload a sample of the Hypermobility Screening Tool: Hypermobility Screening Tool Sample PDF. . . . . . #BendyBuddy #Hypermobility #Hypermobile #Screening #EhlersDanlos #ConnectiveTissue #EhlersDanlosSyndrome #HypermobilitySpectrum #PhysicalTherapy #Acrobats #JointPain #Flexible #Aerial #Acrobatics #CircusArtist #Dance #DancerLife #DanceDance #Ballet #BalletLife #Mobility #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobility is far more prevalent in dancers, circus performers and other aesthetic athletes. While some hypermobile artistic athletes have asymptomatic joint hypermobility, others have symptoms due to an underlying hypermobility or connective tissue disorder.

    How can a physical therapist or physician assess the bendy artist, beyond tools like the Beighton Score, and see what the artist might need by way of support?

    Aiko Callahan and Stephanie Greenspan, both DPTs who work a lot with dancers, circus artists and other bendy bodies, wondered this same thing. They worked with Annie Squires, DPT to publish “Management of Hypermobility in Aesthetic Performing Artists: A Review” and create a fabulous new tool, the Hypermobility Screening Tool.

    The two physical therapists talk through their process and how they assess new patients. They reveal screening questions to ask hypermobile artists to best understand the artist’s needs.  Some areas include performer identity, scheduling issues, and self-management.

    The two lay out the guidelines they’ve put together for a physical exam and tests they use to screen for joint stability. They discuss the importance of a team approach for the hypermobile artist, and ways to help the artist grow their own support team.

    Finally, Aiko and Stephanie share their Hypermobility Screening Tool used to assess the presence of other systemic issues often seen in those with hypermobility.  A self-reporting screening tool, this questionnaire is designed to efficiently gather information to aid the medical professional to determine what next steps might be most appropriate.

    A tool that could be used by medical professionals, trainers looking to help their clients find support, or even hypermobile individuals looking for ways to communicate their issues more clearly, the screening tool is an important step forward in streamlining care for people with hypermobility disorders.

    For more information about Stephanie, visit ArtleticScience.com.  Aiko can be reached at AikoCallahanPT@gmail.com.  AOPT members can access the full article here.  (link the word here if possible)  https://www.orthopt.org/content/publications.  Non members can contact sklinski@orthopt.org to discuss other options. You can also click here to dowload a sample of the Hypermobility Screening Tool: Hypermobility Screening Tool Sample PDF.

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    #BendyBuddy #Hypermobility #Hypermobile #Screening #EhlersDanlos #ConnectiveTissue #EhlersDanlosSyndrome #HypermobilitySpectrum #PhysicalTherapy #Acrobats #JointPain #Flexible #Aerial #Acrobatics #CircusArtist #Dance #DancerLife #DanceDance #Ballet #BalletLife #Mobility #JenniferMilner #HypermobilityMD #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2878 no     52. Unlocking Jaw Pain with Leslie Russek, DPT, PhD https://share.transistor.fm/s/731e2a1b Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum.  It’s not often something we think of addressing, however, until it’s clamoring for our attention. Leslie Russek, DPT, PhD is a practicing orthopedic physical therapist specializing in hypermobility syndromes, Ehlers-Danlos syndromes, fibromyalgia, headaches, and chronic pain. She speaks with Bendy Bodies about temporomandibular disorder (TMD) and jaw pain sharing her wisdom on this topic. Dr. Russek describes the temporomandibular joint (TMJ) and why hypermobile people should be aware of this commonly misunderstood joint. She illuminates the link between TMD and proprioception, as well as how muscles outside the jaw can cause jaw problems. We learn strategies for mouth breathing, a possible contributor to TMD, hear practical actions for reducing jaw pain, and learn about the link between the jaw and issues such as headaches or tooth pain. Finally, Dr. Russek walks us through her steps for finding a healthy resting position, and talks through the Rocabado 6x6 exercise program for TMD. With practical pointers on addressing jaw pain and dysfunction, this episode is helpful for every bendy body with or without jaw pain. Visit this webpage for handouts and more information about Dr. Russek. . . . . . #JawPain #TMD #BendyBuddy #PhysicalTherapy #PhysicalTherapist #Hypermobile #Hypermobility #JointPain #Temporomandibular #LockJaw #ToothPain #ChronicPain #TmjDisorder #HypermobilityMD #JenniferMilner #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 Sep 2022 19:45:20 -0000 52. Unlocking Jaw Pain with Leslie Russek, DPT, PhD full 52 Dr. Linda Bluestein <p>Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum.  It’s not often something we think of addressing, however, until it’s clamoring for our attention.</p><p>Leslie Russek, DPT, PhD is a practicing orthopedic physical therapist specializing in hypermobility syndromes, Ehlers-Danlos syndromes, fibromyalgia, headaches, and chronic pain. She speaks with Bendy Bodies about temporomandibular disorder (TMD) and jaw pain sharing her wisdom on this topic.</p><p>Dr. Russek describes the temporomandibular joint (TMJ) and why hypermobile people should be aware of this commonly misunderstood joint. She illuminates the link between TMD and proprioception, as well as how muscles outside the jaw can cause jaw problems.</p><p>We learn strategies for mouth breathing, a possible contributor to TMD, hear practical actions for reducing jaw pain, and learn about the link between the jaw and issues such as headaches or tooth pain.</p><p>Finally, Dr. Russek walks us through her steps for finding a healthy resting position, and talks through the Rocabado 6x6 exercise program for TMD.</p><p>With practical pointers on addressing jaw pain and dysfunction, this episode is helpful for every bendy body with or without jaw pain.</p><p>Visit this <a href="https://webspace.clarkson.edu/~lrussek/hsd.html">webpage</a> for handouts and more information about Dr. Russek.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#JawPain #TMD #BendyBuddy #PhysicalTherapy #PhysicalTherapist #Hypermobile #Hypermobility #JointPain #Temporomandibular #LockJaw #ToothPain #ChronicPain #TmjDisorder #HypermobilityMD #JenniferMilner #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum.  It’s not often something we think of addressing, however, until it’s clamoring for our attention. Leslie Russek, DPT, PhD is a practicing orthopedic physical therapist specializing in hypermobility syndromes, Ehlers-Danlos syndromes, fibromyalgia, headaches, and chronic pain. She speaks with Bendy Bodies about temporomandibular disorder (TMD) and jaw pain sharing her wisdom on this topic. Dr. Russek describes the temporomandibular joint (TMJ) and why hypermobile people should be aware of this commonly misunderstood joint. She illuminates the link between TMD and proprioception, as well as how muscles outside the jaw can cause jaw problems. We learn strategies for mouth breathing, a possible contributor to TMD, hear practical actions for reducing jaw pain, and learn about the link between the jaw and issues such as headaches or tooth pain. Finally, Dr. Russek walks us through her steps for finding a healthy resting position, and talks through the Rocabado 6x6 exercise program for TMD. With practical pointers on addressing jaw pain and dysfunction, this episode is helpful for every bendy body with or without jaw pain. Visit this webpage for handouts and more information about Dr. Russek. . . . . . #JawPain #TMD #BendyBuddy #PhysicalTherapy #PhysicalTherapist #Hypermobile #Hypermobility #JointPain #Temporomandibular #LockJaw #ToothPain #ChronicPain #TmjDisorder #HypermobilityMD #JenniferMilner #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum.  It’s not often something we think of addressing, however, until it’s clamoring for our attention.

    Leslie Russek, DPT, PhD is a practicing orthopedic physical therapist specializing in hypermobility syndromes, Ehlers-Danlos syndromes, fibromyalgia, headaches, and chronic pain. She speaks with Bendy Bodies about temporomandibular disorder (TMD) and jaw pain sharing her wisdom on this topic.

    Dr. Russek describes the temporomandibular joint (TMJ) and why hypermobile people should be aware of this commonly misunderstood joint. She illuminates the link between TMD and proprioception, as well as how muscles outside the jaw can cause jaw problems.

    We learn strategies for mouth breathing, a possible contributor to TMD, hear practical actions for reducing jaw pain, and learn about the link between the jaw and issues such as headaches or tooth pain.

    Finally, Dr. Russek walks us through her steps for finding a healthy resting position, and talks through the Rocabado 6x6 exercise program for TMD.

    With practical pointers on addressing jaw pain and dysfunction, this episode is helpful for every bendy body with or without jaw pain.

    Visit this webpage for handouts and more information about Dr. Russek.

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    #JawPain #TMD #BendyBuddy #PhysicalTherapy #PhysicalTherapist #Hypermobile #Hypermobility #JointPain #Temporomandibular #LockJaw #ToothPain #ChronicPain #TmjDisorder #HypermobilityMD #JenniferMilner #Bendy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2337 no     51. Moving Fearlessly with Jeannie DiBon https://share.transistor.fm/s/bcff85c2 Hypermobile athletes and artists are often excellent movers - until they hit “the wall”. Sometimes you hit a point where even basic movements become a struggle. How can you continue moving without increasing your pain? Bendy Bodies discusses this important topic during pain awareness month with Jeannie Di Bon, a movement therapist who literally wrote the book on moving pain-free with hypermobility! Jeannie talks about steps people can take if they’re struggling to add movement into their everyday life. She shares why movement is crucial for people with hypermobility and how she works to improve joint stability in the body. Jeannie offers insight into how deconditioning can happen so quickly and discusses why alignment reeducation is so important. She discusses how to reprogram your posture and shares ways to improve proprioception. Jeannie describes her Integral Movement Method and how it can be incorporated into day-to-day life. And she shares information on her Zebra Club, the importance of having a supportive community around you, and her education courses for dance educators, trainers, and more. Finally, Jeannie stresses the importance of the nervous system being engaged in the movement education process, and reinforces the need to listen to your body and move accordingly. An episode for every Bendy Body, this discussion is full of practical tips and encouragement. To learn more about Jeannie, visit:  https://jeanniedibon.com/ . . . . #EhlersDanlos #ZebraStrong #Bendy #BendyBody #Spoonie #Movement #Hypermobile #PainAwarenessMonth #PainCounts #LifeWithPain #Hypermobility #Posture #JointPain #JointStability #MovementEducation #ZebraClub #DiBon  #JenniferMilner #HypermobilityMD #BendyBuddy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Sep 2022 13:53:40 -0000 51. Moving Fearlessly with Jeannie DiBon full 51 Dr. Linda Bluestein <p>Hypermobile athletes and artists are often excellent movers - until they hit “the wall”. Sometimes you hit a point where even basic movements become a struggle.</p><p>How can you continue moving without increasing your pain?</p><p>Bendy Bodies discusses this important topic during pain awareness month with Jeannie Di Bon, a movement therapist who literally wrote the book on moving pain-free with hypermobility!</p><p>Jeannie talks about steps people can take if they’re struggling to add movement into their everyday life. She shares why movement is crucial for people with hypermobility and how she works to improve joint stability in the body.</p><p>Jeannie offers insight into how deconditioning can happen so quickly and discusses why alignment reeducation is so important. She discusses how to reprogram your posture and shares ways to improve proprioception.</p><p>Jeannie describes her Integral Movement Method and how it can be incorporated into day-to-day life. And she shares information on her Zebra Club, the importance of having a supportive community around you, and her education courses for dance educators, trainers, and more.</p><p>Finally, Jeannie stresses the importance of the nervous system being engaged in the movement education process, and reinforces the need to listen to your body and move accordingly.</p><p>An episode for every Bendy Body, this discussion is full of practical tips and encouragement.</p><p>To learn more about Jeannie, visit:  <a href="https://jeanniedibon.com/">https://jeanniedibon.com/</a></p><p>.</p><p>.</p><p>.</p><p>.</p><p>#EhlersDanlos #ZebraStrong #Bendy #BendyBody #Spoonie #Movement #Hypermobile #PainAwarenessMonth #PainCounts #LifeWithPain #Hypermobility #Posture #JointPain #JointStability #MovementEducation #ZebraClub #DiBon  #JenniferMilner</p><p>#HypermobilityMD #BendyBuddy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Hypermobile athletes and artists are often excellent movers - until they hit “the wall”. Sometimes you hit a point where even basic movements become a struggle. How can you continue moving without increasing your pain? Bendy Bodies discusses this important topic during pain awareness month with Jeannie Di Bon, a movement therapist who literally wrote the book on moving pain-free with hypermobility! Jeannie talks about steps people can take if they’re struggling to add movement into their everyday life. She shares why movement is crucial for people with hypermobility and how she works to improve joint stability in the body. Jeannie offers insight into how deconditioning can happen so quickly and discusses why alignment reeducation is so important. She discusses how to reprogram your posture and shares ways to improve proprioception. Jeannie describes her Integral Movement Method and how it can be incorporated into day-to-day life. And she shares information on her Zebra Club, the importance of having a supportive community around you, and her education courses for dance educators, trainers, and more. Finally, Jeannie stresses the importance of the nervous system being engaged in the movement education process, and reinforces the need to listen to your body and move accordingly. An episode for every Bendy Body, this discussion is full of practical tips and encouragement. To learn more about Jeannie, visit:  https://jeanniedibon.com/ . . . . #EhlersDanlos #ZebraStrong #Bendy #BendyBody #Spoonie #Movement #Hypermobile #PainAwarenessMonth #PainCounts #LifeWithPain #Hypermobility #Posture #JointPain #JointStability #MovementEducation #ZebraClub #DiBon  #JenniferMilner #HypermobilityMD #BendyBuddy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobile athletes and artists are often excellent movers - until they hit “the wall”. Sometimes you hit a point where even basic movements become a struggle.

    How can you continue moving without increasing your pain?

    Bendy Bodies discusses this important topic during pain awareness month with Jeannie Di Bon, a movement therapist who literally wrote the book on moving pain-free with hypermobility!

    Jeannie talks about steps people can take if they’re struggling to add movement into their everyday life. She shares why movement is crucial for people with hypermobility and how she works to improve joint stability in the body.

    Jeannie offers insight into how deconditioning can happen so quickly and discusses why alignment reeducation is so important. She discusses how to reprogram your posture and shares ways to improve proprioception.

    Jeannie describes her Integral Movement Method and how it can be incorporated into day-to-day life. And she shares information on her Zebra Club, the importance of having a supportive community around you, and her education courses for dance educators, trainers, and more.

    Finally, Jeannie stresses the importance of the nervous system being engaged in the movement education process, and reinforces the need to listen to your body and move accordingly.

    An episode for every Bendy Body, this discussion is full of practical tips and encouragement.

    To learn more about Jeannie, visit:  https://jeanniedibon.com/

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    #EhlersDanlos #ZebraStrong #Bendy #BendyBody #Spoonie #Movement #Hypermobile #PainAwarenessMonth #PainCounts #LifeWithPain #Hypermobility #Posture #JointPain #JointStability #MovementEducation #ZebraClub #DiBon  #JenniferMilner

    #HypermobilityMD #BendyBuddy --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2637 no     50. Pushing Limits with Jen Crane, DPT https://share.transistor.fm/s/033d4443 As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly treats artistic athletes with hypermobility. As a circus artist and former dancer who is also diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), Jen Crane intimately understands the struggles of these athletes. How does a hypermobile artist use that hypermobility to its full advantage - the long, gorgeous, bendy lines and movement patterns - while still remaining healthy and not pressing the body beyond its limits? Dr. Crane discusses this tightrope walk with Bendy Bodies. She shares her own diagnosis journey as an artist and a medical professional. She discusses how she helps artistic athletes reconcile their connective tissue disorders with their need to push their bodies to the limits.  And she talks about training in a healthy way. Dr. Crane covers how she assists artists with their personal risk vs benefit analysis, and examines predictive variables she may see in people who might have a more successful career. She reflects on the sacrifices artists might need to make, and shares what it’s like to have the hard conversations with artists pushing themselves too much. Dr. Crane discusses the importance of finding a coach or healthcare provider who understands hypermobility, and how to find one. She breaks down current trends she sees in the medical world with hypermobility, and advocates for people to do what they love to do while taking care of their physical health. For anyone who works with hypermobile artistic athletes,or for any hypermobile artist who wonders how to find that safe boundary for themselves. #Podcast #Contortion #FlexibilityTraining #Bendy #CircusLife #CircusEveryDamnDay #CircusCircus #CircusInspiration #Aerial #Aerialist #AerialistOfIG #Ballet #BalletDancer #BalletLife #DancersLife #DanceLife #DancersWorld #ZebraStrong #BendyBack #BendyFeet #EhlersDanlosSyndrome #hEDS #Hypermobility #HypermobilitySpectrumDisorder #hEDS #EhlersDanlos #EhlersDanlosAthlete #EhlersDanlosSyndromeAwarenessMonth #BalletWhisperer #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 26 May 2022 08:30:12 -0000 50. Pushing Limits with Jen Crane, DPT full 50 Dr. Linda Bluestein <p>As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly treats artistic athletes with hypermobility.</p><p>As a circus artist and former dancer who is also diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), Jen Crane intimately understands the struggles of these athletes.</p><p>How does a hypermobile artist use that hypermobility to its full advantage - the long, gorgeous, bendy lines and movement patterns - while still remaining healthy and not pressing the body beyond its limits?</p><p>Dr. Crane discusses this tightrope walk with Bendy Bodies.</p><p>She shares her own diagnosis journey as an artist and a medical professional. She discusses how she helps artistic athletes reconcile their connective tissue disorders with their need to push their bodies to the limits.  And she talks about training in a healthy way.</p><p>Dr. Crane covers how she assists artists with their personal risk vs benefit analysis, and examines predictive variables she may see in people who might have a more successful career. She reflects on the sacrifices artists might need to make, and shares what it’s like to have the hard conversations with artists pushing themselves too much.</p><p>Dr. Crane discusses the importance of finding a coach or healthcare provider who understands hypermobility, and how to find one. She breaks down current trends she sees in the medical world with hypermobility, and advocates for people to do what they love to do while taking care of their physical health.</p><p>For anyone who works with hypermobile artistic athletes,or for any hypermobile artist who wonders how to find that safe boundary for themselves.</p><p>#Podcast #Contortion #FlexibilityTraining #Bendy #CircusLife #CircusEveryDamnDay #CircusCircus #CircusInspiration #Aerial #Aerialist #AerialistOfIG</p><p>#Ballet #BalletDancer #BalletLife #DancersLife #DanceLife #DancersWorld #ZebraStrong</p><p>#BendyBack #BendyFeet #EhlersDanlosSyndrome #hEDS #Hypermobility #HypermobilitySpectrumDisorder</p><p>#hEDS #EhlersDanlos #EhlersDanlosAthlete #EhlersDanlosSyndromeAwarenessMonth #BalletWhisperer #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly treats artistic athletes with hypermobility. As a circus artist and former dancer who is also diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), Jen Crane intimately understands the struggles of these athletes. How does a hypermobile artist use that hypermobility to its full advantage - the long, gorgeous, bendy lines and movement patterns - while still remaining healthy and not pressing the body beyond its limits? Dr. Crane discusses this tightrope walk with Bendy Bodies. She shares her own diagnosis journey as an artist and a medical professional. She discusses how she helps artistic athletes reconcile their connective tissue disorders with their need to push their bodies to the limits.  And she talks about training in a healthy way. Dr. Crane covers how she assists artists with their personal risk vs benefit analysis, and examines predictive variables she may see in people who might have a more successful career. She reflects on the sacrifices artists might need to make, and shares what it’s like to have the hard conversations with artists pushing themselves too much. Dr. Crane discusses the importance of finding a coach or healthcare provider who understands hypermobility, and how to find one. She breaks down current trends she sees in the medical world with hypermobility, and advocates for people to do what they love to do while taking care of their physical health. For anyone who works with hypermobile artistic athletes,or for any hypermobile artist who wonders how to find that safe boundary for themselves. #Podcast #Contortion #FlexibilityTraining #Bendy #CircusLife #CircusEveryDamnDay #CircusCircus #CircusInspiration #Aerial #Aerialist #AerialistOfIG #Ballet #BalletDancer #BalletLife #DancersLife #DanceLife #DancersWorld #ZebraStrong #BendyBack #BendyFeet #EhlersDanlosSyndrome #hEDS #Hypermobility #HypermobilitySpectrumDisorder #hEDS #EhlersDanlos #EhlersDanlosAthlete #EhlersDanlosSyndromeAwarenessMonth #BalletWhisperer #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly treats artistic athletes with hypermobility.

    As a circus artist and former dancer who is also diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), Jen Crane intimately understands the struggles of these athletes.

    How does a hypermobile artist use that hypermobility to its full advantage - the long, gorgeous, bendy lines and movement patterns - while still remaining healthy and not pressing the body beyond its limits?

    Dr. Crane discusses this tightrope walk with Bendy Bodies.

    She shares her own diagnosis journey as an artist and a medical professional. She discusses how she helps artistic athletes reconcile their connective tissue disorders with their need to push their bodies to the limits.  And she talks about training in a healthy way.

    Dr. Crane covers how she assists artists with their personal risk vs benefit analysis, and examines predictive variables she may see in people who might have a more successful career. She reflects on the sacrifices artists might need to make, and shares what it’s like to have the hard conversations with artists pushing themselves too much.

    Dr. Crane discusses the importance of finding a coach or healthcare provider who understands hypermobility, and how to find one. She breaks down current trends she sees in the medical world with hypermobility, and advocates for people to do what they love to do while taking care of their physical health.

    For anyone who works with hypermobile artistic athletes,or for any hypermobile artist who wonders how to find that safe boundary for themselves.

    #Podcast #Contortion #FlexibilityTraining #Bendy #CircusLife #CircusEveryDamnDay #CircusCircus #CircusInspiration #Aerial #Aerialist #AerialistOfIG

    #Ballet #BalletDancer #BalletLife #DancersLife #DanceLife #DancersWorld #ZebraStrong

    #BendyBack #BendyFeet #EhlersDanlosSyndrome #hEDS #Hypermobility #HypermobilitySpectrumDisorder

    #hEDS #EhlersDanlos #EhlersDanlosAthlete #EhlersDanlosSyndromeAwarenessMonth #BalletWhisperer #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2563 no     49. Pioneering a Path with Bonnie Moore Southgate https://share.transistor.fm/s/3797bf18 As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist first with American Ballet Theatre, then with the Royal Ballet. Struggling with injuries and pain for years, Bonnie retired from dance and eventually was diagnosed with Ehlers-Danlos Syndrome. Her journey to find treatments and pain relief led to her second career as a neurokinetic therapist, massage therapist, and Pilates trainer. Bonnie specializes in working with hypermobility as well as elite athletes, and she sat down to share her dance experience with Bendy Bodies. Bonnie shares her amazing story of dancing through a brilliant career, starting with winning the Prix de Lausanne, being invited to work with Mikhail Baryshnikov at ABT, and working her way to soloist at the Royal Ballet.  She is open about her injuries throughout her career, and how they shaped the choices she made during rehearsals and performance opportunities. Bonnie discusses how her EDS manifested itself while she was still a young dancer, her reasons for seeking an EDS diagnosis and how it shaped her choices. She shares her first steps into Pilates and injury rehabilitation when dance medicine was still in its infancy, and why she trained as a Pilates instructor before becoming a sports and corrective exercise specialist.  She also discusses her experience with cranial sacral therapy. Finally, Bonnie looks at how far dance medicine has come in supporting dancer health and career longevity, and shares what she wants teachers and choreographers to know about working with dancers with EDS or hypermobility disorders. #ehlersdanlos #balletwhisperer #hypermobiledancers #zebrastrong #podcast #hypermobilitymd #dancer #hsd #bendy #ballet #balletdancer #keepmoving #hyperextension #hypermobility #dance #jennifermilner #dancelife #arabesque #balletteacher #ballerina #technique #pointe #pointework #balletlife --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 May 2022 08:00:27 -0000 49. Pioneering a Path with Bonnie Moore Southgate full 49 Dr. Linda Bluestein <p>As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist first with American Ballet Theatre, then with the Royal Ballet. Struggling with injuries and pain for years, Bonnie retired from dance and eventually was diagnosed with Ehlers-Danlos Syndrome. Her journey to find treatments and pain relief led to her second career as a neurokinetic therapist, massage therapist, and Pilates trainer.</p><p>Bonnie specializes in working with hypermobility as well as elite athletes, and she sat down to share her dance experience with Bendy Bodies.</p><p>Bonnie shares her amazing story of dancing through a brilliant career, starting with winning the Prix de Lausanne, being invited to work with Mikhail Baryshnikov at ABT, and working her way to soloist at the Royal Ballet.  She is open about her injuries throughout her career, and how they shaped the choices she made during rehearsals and performance opportunities.</p><p>Bonnie discusses how her EDS manifested itself while she was still a young dancer, her reasons for seeking an EDS diagnosis and how it shaped her choices. She shares her first steps into Pilates and injury rehabilitation when dance medicine was still in its infancy, and why she trained as a Pilates instructor before becoming a sports and corrective exercise specialist.  She also discusses her experience with cranial sacral therapy.</p><p>Finally, Bonnie looks at how far dance medicine has come in supporting dancer health and career longevity, and shares what she wants teachers and choreographers to know about working with dancers with EDS or hypermobility disorders.</p><p>#ehlersdanlos #balletwhisperer #hypermobiledancers #zebrastrong #podcast #hypermobilitymd #dancer #hsd #bendy #ballet #balletdancer #keepmoving #hyperextension #hypermobility #dance #jennifermilner #dancelife #arabesque #balletteacher #ballerina #technique #pointe #pointework #balletlife --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist first with American Ballet Theatre, then with the Royal Ballet. Struggling with injuries and pain for years, Bonnie retired from dance and eventually was diagnosed with Ehlers-Danlos Syndrome. Her journey to find treatments and pain relief led to her second career as a neurokinetic therapist, massage therapist, and Pilates trainer. Bonnie specializes in working with hypermobility as well as elite athletes, and she sat down to share her dance experience with Bendy Bodies. Bonnie shares her amazing story of dancing through a brilliant career, starting with winning the Prix de Lausanne, being invited to work with Mikhail Baryshnikov at ABT, and working her way to soloist at the Royal Ballet.  She is open about her injuries throughout her career, and how they shaped the choices she made during rehearsals and performance opportunities. Bonnie discusses how her EDS manifested itself while she was still a young dancer, her reasons for seeking an EDS diagnosis and how it shaped her choices. She shares her first steps into Pilates and injury rehabilitation when dance medicine was still in its infancy, and why she trained as a Pilates instructor before becoming a sports and corrective exercise specialist.  She also discusses her experience with cranial sacral therapy. Finally, Bonnie looks at how far dance medicine has come in supporting dancer health and career longevity, and shares what she wants teachers and choreographers to know about working with dancers with EDS or hypermobility disorders. #ehlersdanlos #balletwhisperer #hypermobiledancers #zebrastrong #podcast #hypermobilitymd #dancer #hsd #bendy #ballet #balletdancer #keepmoving #hyperextension #hypermobility #dance #jennifermilner #dancelife #arabesque #balletteacher #ballerina #technique #pointe #pointework #balletlife --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist first with American Ballet Theatre, then with the Royal Ballet. Struggling with injuries and pain for years, Bonnie retired from dance and eventually was diagnosed with Ehlers-Danlos Syndrome. Her journey to find treatments and pain relief led to her second career as a neurokinetic therapist, massage therapist, and Pilates trainer.

    Bonnie specializes in working with hypermobility as well as elite athletes, and she sat down to share her dance experience with Bendy Bodies.

    Bonnie shares her amazing story of dancing through a brilliant career, starting with winning the Prix de Lausanne, being invited to work with Mikhail Baryshnikov at ABT, and working her way to soloist at the Royal Ballet.  She is open about her injuries throughout her career, and how they shaped the choices she made during rehearsals and performance opportunities.

    Bonnie discusses how her EDS manifested itself while she was still a young dancer, her reasons for seeking an EDS diagnosis and how it shaped her choices. She shares her first steps into Pilates and injury rehabilitation when dance medicine was still in its infancy, and why she trained as a Pilates instructor before becoming a sports and corrective exercise specialist.  She also discusses her experience with cranial sacral therapy.

    Finally, Bonnie looks at how far dance medicine has come in supporting dancer health and career longevity, and shares what she wants teachers and choreographers to know about working with dancers with EDS or hypermobility disorders.

    #ehlersdanlos #balletwhisperer #hypermobiledancers #zebrastrong #podcast #hypermobilitymd #dancer #hsd #bendy #ballet #balletdancer #keepmoving #hyperextension #hypermobility #dance #jennifermilner #dancelife #arabesque #balletteacher #ballerina #technique #pointe #pointework #balletlife --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3729 no     48. Supporting the Foot and Ankle with Andrea Zujko, DPT https://share.transistor.fm/s/c61d34f8 Hypermobility can help the artist create aesthetically pleasing lines with one of the most obvious locations involving the foot. And while many artists envy the banana feet that sometimes accompany excessive ranges of motion, having hypermobile feet and ankles can just as often bring complications. Andrea Zujko, a physical therapist who works regularly with dancers from New York City Ballet and from all over the world, takes the opportunity to chat with Bendy Bodies about some of the common difficulties that flexible feet may face. Andrea discusses ankle sprains, and why they may need more recovery time than you might think. She explains the importance of an ankle bone called the talus and shares wisdom on maintaining its healthy range of motion. Andrea looks at stress fractures and how they can occur in artistic athletes, and explains the importance of evaluating the entire body when addressing foot and ankle problems. We discuss bunions in bendy feet, and Andrea shares secrets for working with bunions. Finally, Andrea discusses common tendon issues seen in hypermobile artists, the importance of strength conditioning, and techniques for controlled stretching. Proving that a small area can have a big effect on the rest of the body, this discussion is one to be listened to several times over. #ankle #Ballet #DancerFeet #BalletFeet #BalletDancer #HypermobileFeet #DanceTraining #DancersOfInsta #BalletTeacher #DanceInjuries #BalletLife #hypermobility #hypermobiledisorders #hypermobilitymd #BendyBodies #bendybodiespodcast #hypermobilitydisorders #bodiesinmotion #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 28 Apr 2022 08:00:10 -0000 48. Supporting the Foot and Ankle with Andrea Zujko, DPT full 48 Dr. Linda Bluestein <p>Hypermobility can help the artist create aesthetically pleasing lines with one of the most obvious locations involving the foot.</p><p>And while many artists envy the banana feet that sometimes accompany excessive ranges of motion, having hypermobile feet and ankles can just as often bring complications.</p><p>Andrea Zujko, a physical therapist who works regularly with dancers from New York City Ballet and from all over the world, takes the opportunity to chat with Bendy Bodies about some of the common difficulties that flexible feet may face.</p><p>Andrea discusses ankle sprains, and why they may need more recovery time than you might think. She explains the importance of an ankle bone called the talus and shares wisdom on maintaining its healthy range of motion.</p><p>Andrea looks at stress fractures and how they can occur in artistic athletes, and explains the importance of evaluating the entire body when addressing foot and ankle problems. We discuss bunions in bendy feet, and Andrea shares secrets for working with bunions.</p><p>Finally, Andrea discusses common tendon issues seen in hypermobile artists, the importance of strength conditioning, and techniques for controlled stretching.</p><p>Proving that a small area can have a big effect on the rest of the body, this discussion is one to be listened to several times over.</p><p>#ankle #Ballet #DancerFeet #BalletFeet #BalletDancer #HypermobileFeet #DanceTraining #DancersOfInsta #BalletTeacher #DanceInjuries #BalletLife #hypermobility #hypermobiledisorders #hypermobilitymd #BendyBodies #bendybodiespodcast #hypermobilitydisorders #bodiesinmotion #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Hypermobility can help the artist create aesthetically pleasing lines with one of the most obvious locations involving the foot. And while many artists envy the banana feet that sometimes accompany excessive ranges of motion, having hypermobile feet and ankles can just as often bring complications. Andrea Zujko, a physical therapist who works regularly with dancers from New York City Ballet and from all over the world, takes the opportunity to chat with Bendy Bodies about some of the common difficulties that flexible feet may face. Andrea discusses ankle sprains, and why they may need more recovery time than you might think. She explains the importance of an ankle bone called the talus and shares wisdom on maintaining its healthy range of motion. Andrea looks at stress fractures and how they can occur in artistic athletes, and explains the importance of evaluating the entire body when addressing foot and ankle problems. We discuss bunions in bendy feet, and Andrea shares secrets for working with bunions. Finally, Andrea discusses common tendon issues seen in hypermobile artists, the importance of strength conditioning, and techniques for controlled stretching. Proving that a small area can have a big effect on the rest of the body, this discussion is one to be listened to several times over. #ankle #Ballet #DancerFeet #BalletFeet #BalletDancer #HypermobileFeet #DanceTraining #DancersOfInsta #BalletTeacher #DanceInjuries #BalletLife #hypermobility #hypermobiledisorders #hypermobilitymd #BendyBodies #bendybodiespodcast #hypermobilitydisorders #bodiesinmotion #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobility can help the artist create aesthetically pleasing lines with one of the most obvious locations involving the foot.

    And while many artists envy the banana feet that sometimes accompany excessive ranges of motion, having hypermobile feet and ankles can just as often bring complications.

    Andrea Zujko, a physical therapist who works regularly with dancers from New York City Ballet and from all over the world, takes the opportunity to chat with Bendy Bodies about some of the common difficulties that flexible feet may face.

    Andrea discusses ankle sprains, and why they may need more recovery time than you might think. She explains the importance of an ankle bone called the talus and shares wisdom on maintaining its healthy range of motion.

    Andrea looks at stress fractures and how they can occur in artistic athletes, and explains the importance of evaluating the entire body when addressing foot and ankle problems. We discuss bunions in bendy feet, and Andrea shares secrets for working with bunions.

    Finally, Andrea discusses common tendon issues seen in hypermobile artists, the importance of strength conditioning, and techniques for controlled stretching.

    Proving that a small area can have a big effect on the rest of the body, this discussion is one to be listened to several times over.

    #ankle #Ballet #DancerFeet #BalletFeet #BalletDancer #HypermobileFeet #DanceTraining #DancersOfInsta #BalletTeacher #DanceInjuries #BalletLife #hypermobility #hypermobiledisorders #hypermobilitymd #BendyBodies #bendybodiespodcast #hypermobilitydisorders #bodiesinmotion #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4228 no     47. Exploring the Link between Joint Hypermobility and Neurodivergency with Jessica Eccles, MRCPsych, PhD https://share.transistor.fm/s/092a5484 Evidence shows that neurodivergency occurs at a higher rate amongst people with hypermobility disorders.  And we know that anxiety is also prevalent in the hypermobile population. When we look at neurodivergency, hypermobility, anxiety, and dysautonomia, we see hints of lines drawn between them.  Might science soon be able to connect the dots? Jessica Eccles, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, returns to speak with Bendy Bodies about neurodivergency, hypermobility, and possible links with anxiety and the autonomic nervous system. In February 2022, Dr. Eccles published the peer reviewed journal article,  "Joint hypermobility links neurodivergence to dysautonomia and pain".  She discusses the fascinating results of her research, and explains why neurodivergency, dysautonomia, and pain appear to be connected via joint hypermobility. Dr. Eccles shares her findings of higher levels of musculoskeletal symptoms in the study’s neurodivergent population vs the comparison group, and wonders if this may be a potential reason why people with neurodivergency experience more health symptoms. She explains the importance of raising awareness of the link between joint hypermobility and neurodivergency in the medical community, and discusses how anxiety is linked to joint hypermobility and possibly autonomic nervous system dysfunction. Dr. Eccles shares her work on the ADAPT program, a program aimed at reducing anxiety with a combined brain-body approach in hypermobile people. Still in its early stages, the program (Altering Dynamics of Autonomic Processing Therapy) has fascinating implications. Finally, Dr. Eccles reveals her current research projects and shares her hopes for future research. An incredible, accessible discussion by one of the top researchers in this field, this is an episode not to be missed. #neurodivergency #BendyBrain #dysautonomia #AutonomicNervousSystem #anxiety #ActuallyAutistic #adhd #ADHDAwareness #ASD #AutisticPride #DisabilityInclusion #RedInstead #AutismAcceptance #AutismAwareness #neurodivergent #AutisticAdults #neurodiversity #autistic #autism #BendyBodies #BendyBodiesPodcast #JenniferMilner #ZebraStrong #hypermobility #HypermobilityDisorders --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 14 Apr 2022 08:00:00 -0000 47. Exploring the Link between Joint Hypermobility and Neurodivergency with Jessica Eccles, MRCPsych, PhD full 47 Dr. Linda Bluestein <p>Evidence shows that neurodivergency occurs at a higher rate amongst people with hypermobility disorders.  And we know that anxiety is also prevalent in the hypermobile population. When we look at neurodivergency, hypermobility, anxiety, and dysautonomia, we see hints of lines drawn between them.  Might science soon be able to connect the dots?</p><p>Jessica Eccles, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, returns to speak with Bendy Bodies about neurodivergency, hypermobility, and possible links with anxiety and the autonomic nervous system.</p><p>In February 2022, Dr. Eccles published the peer reviewed journal article,  "Joint hypermobility links neurodivergence to dysautonomia and pain".  She discusses the fascinating results of her research, and explains why neurodivergency, dysautonomia, and pain appear to be connected via joint hypermobility.</p><p>Dr. Eccles shares her findings of higher levels of musculoskeletal symptoms in the study’s neurodivergent population vs the comparison group, and wonders if this may be a potential reason why people with neurodivergency experience more health symptoms.</p><p>She explains the importance of raising awareness of the link between joint hypermobility and neurodivergency in the medical community, and discusses how anxiety is linked to joint hypermobility and possibly autonomic nervous system dysfunction.</p><p>Dr. Eccles shares her work on the ADAPT program, a program aimed at reducing anxiety with a combined brain-body approach in hypermobile people. Still in its early stages, the program (Altering Dynamics of Autonomic Processing Therapy) has fascinating implications.</p><p>Finally, Dr. Eccles reveals her current research projects and shares her hopes for future research.</p><p>An incredible, accessible discussion by one of the top researchers in this field, this is an episode not to be missed.</p><p>#neurodivergency #BendyBrain #dysautonomia #AutonomicNervousSystem #anxiety #ActuallyAutistic #adhd #ADHDAwareness #ASD #AutisticPride #DisabilityInclusion #RedInstead #AutismAcceptance #AutismAwareness #neurodivergent #AutisticAdults #neurodiversity #autistic #autism #BendyBodies #BendyBodiesPodcast #JenniferMilner #ZebraStrong #hypermobility #HypermobilityDisorders --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Evidence shows that neurodivergency occurs at a higher rate amongst people with hypermobility disorders.  And we know that anxiety is also prevalent in the hypermobile population. When we look at neurodivergency, hypermobility, anxiety, and dysautonomia, we see hints of lines drawn between them.  Might science soon be able to connect the dots? Jessica Eccles, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, returns to speak with Bendy Bodies about neurodivergency, hypermobility, and possible links with anxiety and the autonomic nervous system. In February 2022, Dr. Eccles published the peer reviewed journal article,  "Joint hypermobility links neurodivergence to dysautonomia and pain".  She discusses the fascinating results of her research, and explains why neurodivergency, dysautonomia, and pain appear to be connected via joint hypermobility. Dr. Eccles shares her findings of higher levels of musculoskeletal symptoms in the study’s neurodivergent population vs the comparison group, and wonders if this may be a potential reason why people with neurodivergency experience more health symptoms. She explains the importance of raising awareness of the link between joint hypermobility and neurodivergency in the medical community, and discusses how anxiety is linked to joint hypermobility and possibly autonomic nervous system dysfunction. Dr. Eccles shares her work on the ADAPT program, a program aimed at reducing anxiety with a combined brain-body approach in hypermobile people. Still in its early stages, the program (Altering Dynamics of Autonomic Processing Therapy) has fascinating implications. Finally, Dr. Eccles reveals her current research projects and shares her hopes for future research. An incredible, accessible discussion by one of the top researchers in this field, this is an episode not to be missed. #neurodivergency #BendyBrain #dysautonomia #AutonomicNervousSystem #anxiety #ActuallyAutistic #adhd #ADHDAwareness #ASD #AutisticPride #DisabilityInclusion #RedInstead #AutismAcceptance #AutismAwareness #neurodivergent #AutisticAdults #neurodiversity #autistic #autism #BendyBodies #BendyBodiesPodcast #JenniferMilner #ZebraStrong #hypermobility #HypermobilityDisorders --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Evidence shows that neurodivergency occurs at a higher rate amongst people with hypermobility disorders.  And we know that anxiety is also prevalent in the hypermobile population. When we look at neurodivergency, hypermobility, anxiety, and dysautonomia, we see hints of lines drawn between them.  Might science soon be able to connect the dots?

    Jessica Eccles, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, returns to speak with Bendy Bodies about neurodivergency, hypermobility, and possible links with anxiety and the autonomic nervous system.

    In February 2022, Dr. Eccles published the peer reviewed journal article,  "Joint hypermobility links neurodivergence to dysautonomia and pain".  She discusses the fascinating results of her research, and explains why neurodivergency, dysautonomia, and pain appear to be connected via joint hypermobility.

    Dr. Eccles shares her findings of higher levels of musculoskeletal symptoms in the study’s neurodivergent population vs the comparison group, and wonders if this may be a potential reason why people with neurodivergency experience more health symptoms.

    She explains the importance of raising awareness of the link between joint hypermobility and neurodivergency in the medical community, and discusses how anxiety is linked to joint hypermobility and possibly autonomic nervous system dysfunction.

    Dr. Eccles shares her work on the ADAPT program, a program aimed at reducing anxiety with a combined brain-body approach in hypermobile people. Still in its early stages, the program (Altering Dynamics of Autonomic Processing Therapy) has fascinating implications.

    Finally, Dr. Eccles reveals her current research projects and shares her hopes for future research.

    An incredible, accessible discussion by one of the top researchers in this field, this is an episode not to be missed.

    #neurodivergency #BendyBrain #dysautonomia #AutonomicNervousSystem #anxiety #ActuallyAutistic #adhd #ADHDAwareness #ASD #AutisticPride #DisabilityInclusion #RedInstead #AutismAcceptance #AutismAwareness #neurodivergent #AutisticAdults #neurodiversity #autistic #autism #BendyBodies #BendyBodiesPodcast #JenniferMilner #ZebraStrong #hypermobility #HypermobilityDisorders --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4199 no     46. Fueling Against Fatigue with Kristin Koskinen, RDN https://share.transistor.fm/s/f5fac01a People with hypermobility often struggle with fatigue.  They want more energy, and know that exercise and adequate sleep can help. But what is the role of nutrition in combating fatigue? Bendy Bodies team member, Kristin Koskinen, RDN, chats with us on how what we eat can influence how we feel. She explores the role nutrition can play in fatigue, and how executive function may contribute to nutritional deficits. Kristin discusses how to “control what you can control”, and reveals tips on how to get the most out of every mealtime. She looks at the role of sugar as both a necessary fuel and a possible contributor to fatigue, and explores the possible consequences of restrictive or fad diets on energy levels. Kristin highlights the importance of zinc, B vitamins, and folic acid in supporting a body’s energy levels. She offers ways to figure out what foods might be contributing to fatigue, and shares what role vitamins and supplements may play in fatigue. Kristin breaks down the difference between stimulants and fuel, and how caffeine may actually end up working against you. Finally, Kristin gives guidance on how to find a nutrition specialist to help you on your own food journey. For anyone struggling with fatigue, this episode is packed with great advice. . . . . . #DanceNutrition #NutritionForDancers #dietitian #FoodRules #NutritionCoach #RDN #DietitianApproved #DietitiansOfInstagram #AntiinflammatoryDiet #ChronicFatigue #ChronicIllness #hypermobility #NourishYourBody #KristinKoskinenRDN #HypermobilityMD #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Mar 2022 08:00:00 -0000 46. Fueling Against Fatigue with Kristin Koskinen, RDN full 46 Dr. Linda Bluestein <p>People with hypermobility often struggle with fatigue.  They want more energy, and know that exercise and adequate sleep can help. But what is the role of nutrition in combating fatigue?</p><p>Bendy Bodies team member, Kristin Koskinen, RDN, chats with us on how <em>what</em> we eat can influence <em>how </em>we feel. She explores the role nutrition can play in fatigue, and how executive function may contribute to nutritional deficits.</p><p>Kristin discusses how to “control what you can control”, and reveals tips on how to get the most out of every mealtime. She looks at the role of sugar as both a necessary fuel and a possible contributor to fatigue, and explores the possible consequences of restrictive or fad diets on energy levels.</p><p>Kristin highlights the importance of zinc, B vitamins, and folic acid in supporting a body’s energy levels. She offers ways to figure out what foods might be contributing to fatigue, and shares what role vitamins and supplements may play in fatigue.</p><p>Kristin breaks down the difference between stimulants and fuel, and how caffeine may actually end up working against you. Finally, Kristin gives guidance on how to find a nutrition specialist to help you on your own food journey.</p><p>For anyone struggling with fatigue, this episode is packed with great advice.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#DanceNutrition #NutritionForDancers #dietitian #FoodRules #NutritionCoach #RDN #DietitianApproved #DietitiansOfInstagram</p><p>#AntiinflammatoryDiet #ChronicFatigue #ChronicIllness #hypermobility #NourishYourBody</p><p>#KristinKoskinenRDN #HypermobilityMD #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> People with hypermobility often struggle with fatigue.  They want more energy, and know that exercise and adequate sleep can help. But what is the role of nutrition in combating fatigue? Bendy Bodies team member, Kristin Koskinen, RDN, chats with us on how what we eat can influence how we feel. She explores the role nutrition can play in fatigue, and how executive function may contribute to nutritional deficits. Kristin discusses how to “control what you can control”, and reveals tips on how to get the most out of every mealtime. She looks at the role of sugar as both a necessary fuel and a possible contributor to fatigue, and explores the possible consequences of restrictive or fad diets on energy levels. Kristin highlights the importance of zinc, B vitamins, and folic acid in supporting a body’s energy levels. She offers ways to figure out what foods might be contributing to fatigue, and shares what role vitamins and supplements may play in fatigue. Kristin breaks down the difference between stimulants and fuel, and how caffeine may actually end up working against you. Finally, Kristin gives guidance on how to find a nutrition specialist to help you on your own food journey. For anyone struggling with fatigue, this episode is packed with great advice. . . . . . #DanceNutrition #NutritionForDancers #dietitian #FoodRules #NutritionCoach #RDN #DietitianApproved #DietitiansOfInstagram #AntiinflammatoryDiet #ChronicFatigue #ChronicIllness #hypermobility #NourishYourBody #KristinKoskinenRDN #HypermobilityMD #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices People with hypermobility often struggle with fatigue.  They want more energy, and know that exercise and adequate sleep can help. But what is the role of nutrition in combating fatigue?

    Bendy Bodies team member, Kristin Koskinen, RDN, chats with us on how what we eat can influence how we feel. She explores the role nutrition can play in fatigue, and how executive function may contribute to nutritional deficits.

    Kristin discusses how to “control what you can control”, and reveals tips on how to get the most out of every mealtime. She looks at the role of sugar as both a necessary fuel and a possible contributor to fatigue, and explores the possible consequences of restrictive or fad diets on energy levels.

    Kristin highlights the importance of zinc, B vitamins, and folic acid in supporting a body’s energy levels. She offers ways to figure out what foods might be contributing to fatigue, and shares what role vitamins and supplements may play in fatigue.

    Kristin breaks down the difference between stimulants and fuel, and how caffeine may actually end up working against you. Finally, Kristin gives guidance on how to find a nutrition specialist to help you on your own food journey.

    For anyone struggling with fatigue, this episode is packed with great advice.

    .

    .

    .

    .

    .

    #DanceNutrition #NutritionForDancers #dietitian #FoodRules #NutritionCoach #RDN #DietitianApproved #DietitiansOfInstagram

    #AntiinflammatoryDiet #ChronicFatigue #ChronicIllness #hypermobility #NourishYourBody

    #KristinKoskinenRDN #HypermobilityMD #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3437 no     45. Understanding Fatigue with Alan Pocinki, MD https://share.transistor.fm/s/47132cd2 Fatigue is common in people with chronic disease. Pain, fatigue, and depression can feed into each other and become a vicious cycle that’s difficult to break. Combating fatigue can be particularly difficult for those with bendy bodies and comorbidities. Alan Pocinki, MD, specialist in hypermobility and related autonomic and sleep disorders, speaks with Bendy Bodies on this complicated subject. Dr. Pocinki shares his “eureka” moment in linking the chronic fatigue syndrome population with the hypermobile population. He defines fatigue and how it’s different from sleepiness, and describes the underlying causes of fatigue in hypermobility spectrum disorders, outlining the way an overactive sympathetic nervous system can mimic a panic attack. Dr. Pocinki explains how autonomic dysfunction can be both the cause and effect of fatigue, and the role of sleep continuity. He discusses the concept of budgeting your energy and explores the role of anxiety in hypermobility spectrum disorders. Dr. Pocinki describes his approach to treating patients with fatigue, reveals the role hormones may play in fatigue, and shares his hopes for future research in fatigue and hypermobility. You will not want to miss this episode if you are struggling with fatigue or are a medical professional looking to better serve your hypermobile population. . . . . . #fatigue #ButYouDontLookSick #ChronicIllness #Hypermobility #EhlersDanlosSyndromes #EhlersDanlos #SleepDisorder #dysautonomia #AutonomicDysfunction #anxiety #BendyBodies #BendyBodiesPodcast #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Mar 2022 09:00:00 -0000 45. Understanding Fatigue with Alan Pocinki, MD full 45 Dr. Linda Bluestein <p>Fatigue is common in people with chronic disease. Pain, fatigue, and depression can feed into each other and become a vicious cycle that’s difficult to break. Combating fatigue can be particularly difficult for those with bendy bodies and comorbidities.</p><p>Alan Pocinki, MD, specialist in hypermobility and related autonomic and sleep disorders, speaks with Bendy Bodies on this complicated subject.</p><p>Dr. Pocinki shares his “eureka” moment in linking the chronic fatigue syndrome population with the hypermobile population. He defines fatigue and how it’s different from sleepiness, and describes the underlying causes of fatigue in hypermobility spectrum disorders, outlining the way an overactive sympathetic nervous system can mimic a panic attack.</p><p>Dr. Pocinki explains how autonomic dysfunction can be both the cause and effect of fatigue, and the role of sleep continuity. He discusses the concept of budgeting your energy and explores the role of anxiety in hypermobility spectrum disorders. Dr. Pocinki describes his approach to treating patients with fatigue, reveals the role hormones may play in fatigue, and shares his hopes for future research in fatigue and hypermobility.</p><p>You will not want to miss this episode if you are struggling with fatigue or are a medical professional looking to better serve your hypermobile population.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#fatigue #ButYouDontLookSick #ChronicIllness #Hypermobility #EhlersDanlosSyndromes #EhlersDanlos #SleepDisorder #dysautonomia #AutonomicDysfunction #anxiety</p><p>#BendyBodies #BendyBodiesPodcast #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Fatigue is common in people with chronic disease. Pain, fatigue, and depression can feed into each other and become a vicious cycle that’s difficult to break. Combating fatigue can be particularly difficult for those with bendy bodies and comorbidities. Alan Pocinki, MD, specialist in hypermobility and related autonomic and sleep disorders, speaks with Bendy Bodies on this complicated subject. Dr. Pocinki shares his “eureka” moment in linking the chronic fatigue syndrome population with the hypermobile population. He defines fatigue and how it’s different from sleepiness, and describes the underlying causes of fatigue in hypermobility spectrum disorders, outlining the way an overactive sympathetic nervous system can mimic a panic attack. Dr. Pocinki explains how autonomic dysfunction can be both the cause and effect of fatigue, and the role of sleep continuity. He discusses the concept of budgeting your energy and explores the role of anxiety in hypermobility spectrum disorders. Dr. Pocinki describes his approach to treating patients with fatigue, reveals the role hormones may play in fatigue, and shares his hopes for future research in fatigue and hypermobility. You will not want to miss this episode if you are struggling with fatigue or are a medical professional looking to better serve your hypermobile population. . . . . . #fatigue #ButYouDontLookSick #ChronicIllness #Hypermobility #EhlersDanlosSyndromes #EhlersDanlos #SleepDisorder #dysautonomia #AutonomicDysfunction #anxiety #BendyBodies #BendyBodiesPodcast #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Fatigue is common in people with chronic disease. Pain, fatigue, and depression can feed into each other and become a vicious cycle that’s difficult to break. Combating fatigue can be particularly difficult for those with bendy bodies and comorbidities.

    Alan Pocinki, MD, specialist in hypermobility and related autonomic and sleep disorders, speaks with Bendy Bodies on this complicated subject.

    Dr. Pocinki shares his “eureka” moment in linking the chronic fatigue syndrome population with the hypermobile population. He defines fatigue and how it’s different from sleepiness, and describes the underlying causes of fatigue in hypermobility spectrum disorders, outlining the way an overactive sympathetic nervous system can mimic a panic attack.

    Dr. Pocinki explains how autonomic dysfunction can be both the cause and effect of fatigue, and the role of sleep continuity. He discusses the concept of budgeting your energy and explores the role of anxiety in hypermobility spectrum disorders. Dr. Pocinki describes his approach to treating patients with fatigue, reveals the role hormones may play in fatigue, and shares his hopes for future research in fatigue and hypermobility.

    You will not want to miss this episode if you are struggling with fatigue or are a medical professional looking to better serve your hypermobile population.

    .

    .

    .

    .

    .

    #fatigue #ButYouDontLookSick #ChronicIllness #Hypermobility #EhlersDanlosSyndromes #EhlersDanlos #SleepDisorder #dysautonomia #AutonomicDysfunction #anxiety

    #BendyBodies #BendyBodiesPodcast #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3021 no     44. Navigating Pregnancy with Shanda Dorff, MD https://share.transistor.fm/s/136ca45c Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt. Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond. She imparts her hard-learned wisdom to Bendy Bodies on this complicated subject. Dr. Dorff shares important considerations for someone with connective tissue disorders to consider in a pregnancy, and discusses higher-risk issues with various types of Ehlers-Danlos syndromes. She lists things to watch for during pregnancy, and gives advice on how to prepare for possible complications during a delivery. Dr. Dorff offers things to do - and avoid - during the post-partum weeks, as well as exercise considerations for hypermobile athletes during and after pregnancy. Finally, she reveals possible considerations for breastfeeding when hypermobile, and suggests ways to find specialists to help someone navigate a “bendy” pregnancy. For any bendy body considering pregnancy, as well as all healthcare providers, this episode shares decades of hard-won expertise with our listeners. Resources: https://hiddenstripes.com/ (Disjointed Book) https://www.complexcaresmn.com/ (Dr. Dorff's clinic) https://pubmed.ncbi.nlm.nih.gov/32148151/ (Drs. Dorff and Afrin article, Mast cell activation syndrome in pregnancy, delivery, postpartum and lactation: a narrative review) https://www.scirp.org/html/2-1920604_97524.htm#%23%23 (Drs. Chopra and Bluestein article Perioperative Care in Patients with Ehlers Danlos Syndromes) . . . . . #pregnancy #pregnant #podcast #EhlersDanlossyndromes #EhlersDanlos #BendyBodies #BendyBodiesPodcast #highriskpregnancy #zebrastrong #heds #hypermobile #connectivetissuedisorder #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 17 Feb 2022 09:00:00 -0000 44. Navigating Pregnancy with Shanda Dorff, MD full 44 Dr. Linda Bluestein <p>Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt.</p><p>Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond. She imparts her hard-learned wisdom to Bendy Bodies on this complicated subject.</p><p>Dr. Dorff shares important considerations for someone with connective tissue disorders to consider in a pregnancy, and discusses higher-risk issues with various types of Ehlers-Danlos syndromes. She lists things to watch for during pregnancy, and gives advice on how to prepare for possible complications during a delivery.</p><p>Dr. Dorff offers things to do - and avoid - during the post-partum weeks, as well as exercise considerations for hypermobile athletes during and after pregnancy.</p><p>Finally, she reveals possible considerations for breastfeeding when hypermobile, and suggests ways to find specialists to help someone navigate a “bendy” pregnancy.</p><p>For any bendy body considering pregnancy, as well as all healthcare providers, this episode shares decades of hard-won expertise with our listeners.</p><p>Resources:</p><p><a href="https://hiddenstripes.com/">https://hiddenstripes.com/</a> (Disjointed Book)</p><p><a href="https://www.complexcaresmn.com/">https://www.complexcaresmn.com/</a> (Dr. Dorff's clinic)</p><p><a href="https://pubmed.ncbi.nlm.nih.gov/32148151/">https://pubmed.ncbi.nlm.nih.gov/32148151/</a> (Drs. Dorff and Afrin article, Mast cell activation syndrome in pregnancy, delivery, postpartum and lactation: a narrative review)</p><p><a href="https://www.scirp.org/html/2-1920604_97524.htm#%23%23">https://www.scirp.org/html/2-1920604_97524.htm#%23%23</a> (Drs. Chopra and Bluestein article Perioperative Care in Patients with Ehlers Danlos Syndromes)</p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#pregnancy #pregnant #podcast #EhlersDanlossyndromes #EhlersDanlos #BendyBodies #BendyBodiesPodcast</p><p>#highriskpregnancy #zebrastrong #heds #hypermobile #connectivetissuedisorder #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt. Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond. She imparts her hard-learned wisdom to Bendy Bodies on this complicated subject. Dr. Dorff shares important considerations for someone with connective tissue disorders to consider in a pregnancy, and discusses higher-risk issues with various types of Ehlers-Danlos syndromes. She lists things to watch for during pregnancy, and gives advice on how to prepare for possible complications during a delivery. Dr. Dorff offers things to do - and avoid - during the post-partum weeks, as well as exercise considerations for hypermobile athletes during and after pregnancy. Finally, she reveals possible considerations for breastfeeding when hypermobile, and suggests ways to find specialists to help someone navigate a “bendy” pregnancy. For any bendy body considering pregnancy, as well as all healthcare providers, this episode shares decades of hard-won expertise with our listeners. Resources: https://hiddenstripes.com/ (Disjointed Book) https://www.complexcaresmn.com/ (Dr. Dorff's clinic) https://pubmed.ncbi.nlm.nih.gov/32148151/ (Drs. Dorff and Afrin article, Mast cell activation syndrome in pregnancy, delivery, postpartum and lactation: a narrative review) https://www.scirp.org/html/2-1920604_97524.htm#%23%23 (Drs. Chopra and Bluestein article Perioperative Care in Patients with Ehlers Danlos Syndromes) . . . . . #pregnancy #pregnant #podcast #EhlersDanlossyndromes #EhlersDanlos #BendyBodies #BendyBodiesPodcast #highriskpregnancy #zebrastrong #heds #hypermobile #connectivetissuedisorder #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt.

    Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond. She imparts her hard-learned wisdom to Bendy Bodies on this complicated subject.

    Dr. Dorff shares important considerations for someone with connective tissue disorders to consider in a pregnancy, and discusses higher-risk issues with various types of Ehlers-Danlos syndromes. She lists things to watch for during pregnancy, and gives advice on how to prepare for possible complications during a delivery.

    Dr. Dorff offers things to do - and avoid - during the post-partum weeks, as well as exercise considerations for hypermobile athletes during and after pregnancy.

    Finally, she reveals possible considerations for breastfeeding when hypermobile, and suggests ways to find specialists to help someone navigate a “bendy” pregnancy.

    For any bendy body considering pregnancy, as well as all healthcare providers, this episode shares decades of hard-won expertise with our listeners.

    Resources:

    https://hiddenstripes.com/ (Disjointed Book)

    https://www.complexcaresmn.com/ (Dr. Dorff's clinic)

    https://pubmed.ncbi.nlm.nih.gov/32148151/ (Drs. Dorff and Afrin article, Mast cell activation syndrome in pregnancy, delivery, postpartum and lactation: a narrative review)

    https://www.scirp.org/html/2-1920604_97524.htm#%23%23 (Drs. Chopra and Bluestein article Perioperative Care in Patients with Ehlers Danlos Syndromes)

    .

    .

    .

    .

    .

    #pregnancy #pregnant #podcast #EhlersDanlossyndromes #EhlersDanlos #BendyBodies #BendyBodiesPodcast

    #highriskpregnancy #zebrastrong #heds #hypermobile #connectivetissuedisorder #JenniferMilner #HypermobilityMD --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3757 no     43. Supporting Artistic Athletes with Selina Shah, MD https://share.transistor.fm/s/c7f9122b Artistic athletes like dancers, gymnasts, and skaters require highly skilled medical care in order to maintain peak health while operating at an elite level. Understanding the unique demands placed on their bodies is crucial for their physicians. And when the artist is competing as part of a team - say, as an Olympic skater or gymnast, or as a company dancer - the artist doesn’t always have the luxury of choosing their team doctor.  Selina Shah, MD, has herself been a competitive swimmer and gymnast, as well as a professional salsa and Bollywood dancer. She’s served as team physician for both Team USA figure skating and artistic swimming, and sits down to talk with us about maintaining your health in a team setting. Dr. Shah looks at why hypermobility can be a tremendous asset in some athletic fields, and hugely problematic in others. She explores the process of natural selection for artistic athletes and the secret to success at the elite level.  Looking at injuries that are common in hypermobile artistic athletes, Dr. Shah explains why it’s never too soon to address an issue. She discusses misconceptions about stubborn tendon problems in bendy bodies as well as what procedures to consider and which ones to avoid. Dr. Shah shares ways for hypermobile athletes to communicate with a team doctor and trainer about their specific needs, and how to advocate for yourself in a team setting. Finally, she opens up about what research she’d like to see for hypermobile artistic athletes in the future.  To learn more about Dr. Shah, visit her website https://selinashah.com/ . . . . . .  #podcast #iceskating #gymnast #BendyBodies #artisticswimming #OlympicAthlete #hypermobileathlete #rhythmicgymnastics #bendy #HypermobilityMD #JenniferMilner #BodiesinMotion #BendyBodiesPodcast #HypermobilityDisorders #Hypermobility #HypermobilitySpectrum --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Feb 2022 11:51:57 -0000 43. Supporting Artistic Athletes with Selina Shah, MD full 43 Dr. Linda Bluestein <p>Artistic athletes like dancers, gymnasts, and skaters require highly skilled medical care in order to maintain peak health while operating at an elite level. Understanding the unique demands placed on their bodies is crucial for their physicians. And when the artist is competing as part of a team - say, as an Olympic skater or gymnast, or as a company dancer - the artist doesn’t always have the luxury of choosing their team doctor. </p><p>Selina Shah, MD, has herself been a competitive swimmer and gymnast, as well as a professional salsa and Bollywood dancer. She’s served as team physician for both Team USA figure skating and artistic swimming, and sits down to talk with us about maintaining your health in a team setting. Dr. Shah looks at why hypermobility can be a tremendous asset in some athletic fields, and hugely problematic in others. She explores the process of natural selection for artistic athletes and the secret to success at the elite level. </p><p>Looking at injuries that are common in hypermobile artistic athletes, Dr. Shah explains why it’s never too soon to address an issue. She discusses misconceptions about stubborn tendon problems in bendy bodies as well as what procedures to consider and which ones to avoid. Dr. Shah shares ways for hypermobile athletes to communicate with a team doctor and trainer about their specific needs, and how to advocate for yourself in a team setting.</p><p>Finally, she opens up about what research she’d like to see for hypermobile artistic athletes in the future. </p><p>To learn more about Dr. Shah, visit her website https://selinashah.com/</p><p>. . . . . . </p><p>#podcast #iceskating #gymnast #BendyBodies #artisticswimming #OlympicAthlete #hypermobileathlete #rhythmicgymnastics #bendy #HypermobilityMD #JenniferMilner #BodiesinMotion #BendyBodiesPodcast #HypermobilityDisorders #Hypermobility #HypermobilitySpectrum --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Artistic athletes like dancers, gymnasts, and skaters require highly skilled medical care in order to maintain peak health while operating at an elite level. Understanding the unique demands placed on their bodies is crucial for their physicians. And when the artist is competing as part of a team - say, as an Olympic skater or gymnast, or as a company dancer - the artist doesn’t always have the luxury of choosing their team doctor.  Selina Shah, MD, has herself been a competitive swimmer and gymnast, as well as a professional salsa and Bollywood dancer. She’s served as team physician for both Team USA figure skating and artistic swimming, and sits down to talk with us about maintaining your health in a team setting. Dr. Shah looks at why hypermobility can be a tremendous asset in some athletic fields, and hugely problematic in others. She explores the process of natural selection for artistic athletes and the secret to success at the elite level.  Looking at injuries that are common in hypermobile artistic athletes, Dr. Shah explains why it’s never too soon to address an issue. She discusses misconceptions about stubborn tendon problems in bendy bodies as well as what procedures to consider and which ones to avoid. Dr. Shah shares ways for hypermobile athletes to communicate with a team doctor and trainer about their specific needs, and how to advocate for yourself in a team setting. Finally, she opens up about what research she’d like to see for hypermobile artistic athletes in the future.  To learn more about Dr. Shah, visit her website https://selinashah.com/ . . . . . .  #podcast #iceskating #gymnast #BendyBodies #artisticswimming #OlympicAthlete #hypermobileathlete #rhythmicgymnastics #bendy #HypermobilityMD #JenniferMilner #BodiesinMotion #BendyBodiesPodcast #HypermobilityDisorders #Hypermobility #HypermobilitySpectrum --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Artistic athletes like dancers, gymnasts, and skaters require highly skilled medical care in order to maintain peak health while operating at an elite level. Understanding the unique demands placed on their bodies is crucial for their physicians. And when the artist is competing as part of a team - say, as an Olympic skater or gymnast, or as a company dancer - the artist doesn’t always have the luxury of choosing their team doctor. 

    Selina Shah, MD, has herself been a competitive swimmer and gymnast, as well as a professional salsa and Bollywood dancer. She’s served as team physician for both Team USA figure skating and artistic swimming, and sits down to talk with us about maintaining your health in a team setting. Dr. Shah looks at why hypermobility can be a tremendous asset in some athletic fields, and hugely problematic in others. She explores the process of natural selection for artistic athletes and the secret to success at the elite level. 

    Looking at injuries that are common in hypermobile artistic athletes, Dr. Shah explains why it’s never too soon to address an issue. She discusses misconceptions about stubborn tendon problems in bendy bodies as well as what procedures to consider and which ones to avoid. Dr. Shah shares ways for hypermobile athletes to communicate with a team doctor and trainer about their specific needs, and how to advocate for yourself in a team setting.

    Finally, she opens up about what research she’d like to see for hypermobile artistic athletes in the future. 

    To learn more about Dr. Shah, visit her website https://selinashah.com/

    . . . . . . 

    #podcast #iceskating #gymnast #BendyBodies #artisticswimming #OlympicAthlete #hypermobileathlete #rhythmicgymnastics #bendy #HypermobilityMD #JenniferMilner #BodiesinMotion #BendyBodiesPodcast #HypermobilityDisorders #Hypermobility #HypermobilitySpectrum --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2708 no     42. Pursuing a Diagnosis with Linda Bluestein, MD https://share.transistor.fm/s/56b2f6f0 Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need. In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist. Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis, and theorizes on why they might discourage it. She gives advice on where to start this journey, and discusses the importance of having even just one medical professional in your corner. As well, she suggests types of specialists who might have knowledge of connective tissue disorders, and outlines steps people can take to prepare for a doctor’s visit. Dr. Bluestein offers compassionate advice to people who hear “no” a lot, and cautions against confirmation bias. She busts some harmful myths around connective tissue diagnoses and reveals some of the pitfalls a person might encounter in their pursuit of a diagnosis. Full of advice from a medical expert in hypermobility, this is an episode for anyone feeling defeated or looking to confirm a diagnosis. #ButYouDontLookSick #ChronicPain #bendybodies #BendyBodiesPodcast #ehlersdanlossyndrome #ConnectiveTissue #ZebraStrong #collagen #diagnosis #physiciansofinstagram #EhlersDanlos #hypermobility  #hypermobilitymd #bodiesinmotion --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 20 Jan 2022 09:00:00 -0000 42. Pursuing a Diagnosis with Linda Bluestein, MD full 42 Dr. Linda Bluestein <p>Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need.</p><p>In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist.</p><p>Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis, and theorizes on why they might discourage it.</p><p>She gives advice on where to start this journey, and discusses the importance of having even just one medical professional in your corner. As well, she suggests types of specialists who might have knowledge of connective tissue disorders, and outlines steps people can take to prepare for a doctor’s visit.</p><p>Dr. Bluestein offers compassionate advice to people who hear “no” a lot, and cautions against confirmation bias. She busts some harmful myths around connective tissue diagnoses and reveals some of the pitfalls a person might encounter in their pursuit of a diagnosis.</p><p>Full of advice from a medical expert in hypermobility, this is an episode for anyone feeling defeated or looking to confirm a diagnosis.</p><p>#ButYouDontLookSick #ChronicPain #bendybodies #BendyBodiesPodcast #ehlersdanlossyndrome #ConnectiveTissue #ZebraStrong #collagen #diagnosis #physiciansofinstagram #EhlersDanlos #hypermobility  #hypermobilitymd #bodiesinmotion --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need. In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist. Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis, and theorizes on why they might discourage it. She gives advice on where to start this journey, and discusses the importance of having even just one medical professional in your corner. As well, she suggests types of specialists who might have knowledge of connective tissue disorders, and outlines steps people can take to prepare for a doctor’s visit. Dr. Bluestein offers compassionate advice to people who hear “no” a lot, and cautions against confirmation bias. She busts some harmful myths around connective tissue diagnoses and reveals some of the pitfalls a person might encounter in their pursuit of a diagnosis. Full of advice from a medical expert in hypermobility, this is an episode for anyone feeling defeated or looking to confirm a diagnosis. #ButYouDontLookSick #ChronicPain #bendybodies #BendyBodiesPodcast #ehlersdanlossyndrome #ConnectiveTissue #ZebraStrong #collagen #diagnosis #physiciansofinstagram #EhlersDanlos #hypermobility  #hypermobilitymd #bodiesinmotion --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need.

    In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist.

    Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis, and theorizes on why they might discourage it.

    She gives advice on where to start this journey, and discusses the importance of having even just one medical professional in your corner. As well, she suggests types of specialists who might have knowledge of connective tissue disorders, and outlines steps people can take to prepare for a doctor’s visit.

    Dr. Bluestein offers compassionate advice to people who hear “no” a lot, and cautions against confirmation bias. She busts some harmful myths around connective tissue diagnoses and reveals some of the pitfalls a person might encounter in their pursuit of a diagnosis.

    Full of advice from a medical expert in hypermobility, this is an episode for anyone feeling defeated or looking to confirm a diagnosis.

    #ButYouDontLookSick #ChronicPain #bendybodies #BendyBodiesPodcast #ehlersdanlossyndrome #ConnectiveTissue #ZebraStrong #collagen #diagnosis #physiciansofinstagram #EhlersDanlos #hypermobility  #hypermobilitymd #bodiesinmotion --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2650 no     41. Changing the Face of EDS with Camille Schrier, Miss America 2020 https://share.transistor.fm/s/eb3beaaf People struggling with a chronic illness often feel overwhelmed at the idea of pursuing a passion. Health issues may seem insurmountable when trying to go after your dream, and you may feel hopeless and alone on your journey. Camille Schrier, Miss America 2020, was diagnosed with Classical Ehlers-Danlos Syndrome at age 11, at the same time she was discovering her love of nature and science. For her, a diagnosis helped her understand all the “crazy” things happening to her body and gave her comfort. Camille walks us through her diagnostic odyssey, explaining the signs of EDS she saw in herself and the twists and turns that came up along the way. She shares her journey to the Miss America title, and her concerns about serving as Miss America with a chronic illness. Camille discusses the importance of advocating for yourself and having providers who listen. She speaks honestly about her struggles with an eating disorder, her journey through mental health issues, and her fights with misdiagnoses. Sharing how her own struggles have made her more compassionate towards others, Camille describes how she is using her platform to spread her Social Impact Initiative, “Mind Your Meds - Drug Safety and Abuse Prevention From Pediatrics to Geriatrics.” You won't want to miss this inspiring interview. Learn more at  https://www.camilleschrier.com/.  . . . . . #dysautonomia #ehlersdanlossyndrome #hypermobility #invisibleillness #hypermobilitymd #balletwhisperer #zebra #ehlersdanlos #zebrastrong #spoonie #chronicillness #chronicpain #camilleshrier #missamerica #JenniferMilner If you are able to share the resized image, it is much appreciated! Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 06 Jan 2022 14:06:21 -0000 41. Changing the Face of EDS with Camille Schrier, Miss America 2020 full 41 Dr. Linda Bluestein <p>People struggling with a chronic illness often feel overwhelmed at the idea of pursuing a passion. Health issues may seem insurmountable when trying to go after your dream, and you may feel hopeless and alone on your journey.</p><p>Camille Schrier, Miss America 2020, was diagnosed with Classical Ehlers-Danlos Syndrome at age 11, at the same time she was discovering her love of nature and science. For her, a diagnosis helped her understand all the “crazy” things happening to her body and gave her comfort.</p><p>Camille walks us through her diagnostic odyssey, explaining the signs of EDS she saw in herself and the twists and turns that came up along the way. She shares her journey to the Miss America title, and her concerns about serving as Miss America with a chronic illness.</p><p>Camille discusses the importance of advocating for yourself and having providers who listen. She speaks honestly about her struggles with an eating disorder, her journey through mental health issues, and her fights with misdiagnoses.</p><p>Sharing how her own struggles have made her more compassionate towards others, Camille describes how she is using her platform to spread her Social Impact Initiative, “Mind Your Meds - Drug Safety and Abuse Prevention From Pediatrics to Geriatrics.”</p><p>You won't want to miss this inspiring interview. Learn more at </p><p><a href="https://www.camilleschrier.com/">https://www.camilleschrier.com/</a>. </p><p>.</p><p>.</p><p>.</p><p>.</p><p>.</p><p>#dysautonomia #ehlersdanlossyndrome #hypermobility #invisibleillness #hypermobilitymd #balletwhisperer #zebra #ehlersdanlos #zebrastrong #spoonie #chronicillness #chronicpain #camilleshrier #missamerica #JenniferMilner</p><p>If you are able to share the resized image, it is much appreciated!</p><p><br></p> People struggling with a chronic illness often feel overwhelmed at the idea of pursuing a passion. Health issues may seem insurmountable when trying to go after your dream, and you may feel hopeless and alone on your journey. Camille Schrier, Miss America 2020, was diagnosed with Classical Ehlers-Danlos Syndrome at age 11, at the same time she was discovering her love of nature and science. For her, a diagnosis helped her understand all the “crazy” things happening to her body and gave her comfort. Camille walks us through her diagnostic odyssey, explaining the signs of EDS she saw in herself and the twists and turns that came up along the way. She shares her journey to the Miss America title, and her concerns about serving as Miss America with a chronic illness. Camille discusses the importance of advocating for yourself and having providers who listen. She speaks honestly about her struggles with an eating disorder, her journey through mental health issues, and her fights with misdiagnoses. Sharing how her own struggles have made her more compassionate towards others, Camille describes how she is using her platform to spread her Social Impact Initiative, “Mind Your Meds - Drug Safety and Abuse Prevention From Pediatrics to Geriatrics.” You won't want to miss this inspiring interview. Learn more at  https://www.camilleschrier.com/.  . . . . . #dysautonomia #ehlersdanlossyndrome #hypermobility #invisibleillness #hypermobilitymd #balletwhisperer #zebra #ehlersdanlos #zebrastrong #spoonie #chronicillness #chronicpain #camilleshrier #missamerica #JenniferMilner If you are able to share the resized image, it is much appreciated! Learn more about your ad choices. Visit megaphone.fm/adchoices People struggling with a chronic illness often feel overwhelmed at the idea of pursuing a passion. Health issues may seem insurmountable when trying to go after your dream, and you may feel hopeless and alone on your journey.

    Camille Schrier, Miss America 2020, was diagnosed with Classical Ehlers-Danlos Syndrome at age 11, at the same time she was discovering her love of nature and science. For her, a diagnosis helped her understand all the “crazy” things happening to her body and gave her comfort.

    Camille walks us through her diagnostic odyssey, explaining the signs of EDS she saw in herself and the twists and turns that came up along the way. She shares her journey to the Miss America title, and her concerns about serving as Miss America with a chronic illness.

    Camille discusses the importance of advocating for yourself and having providers who listen. She speaks honestly about her struggles with an eating disorder, her journey through mental health issues, and her fights with misdiagnoses.

    Sharing how her own struggles have made her more compassionate towards others, Camille describes how she is using her platform to spread her Social Impact Initiative, “Mind Your Meds - Drug Safety and Abuse Prevention From Pediatrics to Geriatrics.”

    You won't want to miss this inspiring interview. Learn more at 

    https://www.camilleschrier.com/. 

    .

    .

    .

    .

    .

    #dysautonomia #ehlersdanlossyndrome #hypermobility #invisibleillness #hypermobilitymd #balletwhisperer #zebra #ehlersdanlos #zebrastrong #spoonie #chronicillness #chronicpain #camilleshrier #missamerica #JenniferMilner

    If you are able to share the resized image, it is much appreciated!


    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4525 no     40. Understanding Overstretching with Jennifer Milner, NCPT https://share.transistor.fm/s/ee848076 What is overstretching, and why should we talk about it? As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching  as a way to stay competitive, forcing an artificial hypermobility in some joints. Dr. Linda Bluestein interviews Bendy Bodies’ own Jennifer Milner, NCPT, on the subject of overstretching and forced hypermobility. Jennifer discusses why a joint might be hypermobile, and what issues she sees in the hypermobile population versus the non-hypermobile population. Jennifer explores overstretching, how it affects the body, and some issues that may arise because of it. She explains the difference between dynamic and static stretching, and when each type may be appropriate. Jennifer looks at the practice of overstretching in dance studios and shares alternatives to overstretching for achieving flexibility in a healthy way. Finally, Jennifer offers suggestions on how to find resources to help you increase your flexibility safely, both online and in person, and confides what she wishes every dancer knew about flexibility. Whether you are an artist, a parent, a studio owner, or a health practitioner, this is an episode you won’t want to miss. Full of helpful advice and practical tips! #flexibility #flexible #ballet #ballerina #stretching #stretch #pointe #splits #pointeshoes #bendy #balletdancer #gymnast #gymnastics #instadance #instaballet #backbend #worldwideballet #dancer #contortion #poledance #oversplits #overstretching #split #acrobatics #zebra #hypermobilitymd #bendybodies #JenniferMilner #balletwhisperer  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 16 Dec 2021 09:00:00 -0000 40. Understanding Overstretching with Jennifer Milner, NCPT full 40 Dr. Linda Bluestein <p>What is overstretching, and why should we talk about it?</p><p>As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching  as a way to stay competitive, forcing an artificial hypermobility in some joints.</p><p>Dr. Linda Bluestein interviews Bendy Bodies’ own Jennifer Milner, NCPT, on the subject of overstretching and forced hypermobility. Jennifer discusses why a joint might be hypermobile, and what issues she sees in the hypermobile population versus the non-hypermobile population.</p><p>Jennifer explores overstretching, how it affects the body, and some issues that may arise because of it. She explains the difference between dynamic and static stretching, and when each type may be appropriate.</p><p>Jennifer looks at the practice of overstretching in dance studios and shares alternatives to overstretching for achieving flexibility in a healthy way.</p><p>Finally, Jennifer offers suggestions on how to find resources to help you increase your flexibility safely, both online and in person, and confides what she wishes every dancer knew about flexibility.</p><p>Whether you are an artist, a parent, a studio owner, or a health practitioner, this is an episode you won’t want to miss. Full of helpful advice and practical tips!</p><p>#flexibility #flexible #ballet #ballerina #stretching #stretch #pointe #splits #pointeshoes #bendy #balletdancer #gymnast #gymnastics #instadance #instaballet #backbend #worldwideballet #dancer #contortion #poledance #oversplits #overstretching #split #acrobatics #zebra #hypermobilitymd #bendybodies #JenniferMilner #balletwhisperer </p> What is overstretching, and why should we talk about it? As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching  as a way to stay competitive, forcing an artificial hypermobility in some joints. Dr. Linda Bluestein interviews Bendy Bodies’ own Jennifer Milner, NCPT, on the subject of overstretching and forced hypermobility. Jennifer discusses why a joint might be hypermobile, and what issues she sees in the hypermobile population versus the non-hypermobile population. Jennifer explores overstretching, how it affects the body, and some issues that may arise because of it. She explains the difference between dynamic and static stretching, and when each type may be appropriate. Jennifer looks at the practice of overstretching in dance studios and shares alternatives to overstretching for achieving flexibility in a healthy way. Finally, Jennifer offers suggestions on how to find resources to help you increase your flexibility safely, both online and in person, and confides what she wishes every dancer knew about flexibility. Whether you are an artist, a parent, a studio owner, or a health practitioner, this is an episode you won’t want to miss. Full of helpful advice and practical tips! #flexibility #flexible #ballet #ballerina #stretching #stretch #pointe #splits #pointeshoes #bendy #balletdancer #gymnast #gymnastics #instadance #instaballet #backbend #worldwideballet #dancer #contortion #poledance #oversplits #overstretching #split #acrobatics #zebra #hypermobilitymd #bendybodies #JenniferMilner #balletwhisperer  Learn more about your ad choices. Visit megaphone.fm/adchoices What is overstretching, and why should we talk about it?

    As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching  as a way to stay competitive, forcing an artificial hypermobility in some joints.

    Dr. Linda Bluestein interviews Bendy Bodies’ own Jennifer Milner, NCPT, on the subject of overstretching and forced hypermobility. Jennifer discusses why a joint might be hypermobile, and what issues she sees in the hypermobile population versus the non-hypermobile population.

    Jennifer explores overstretching, how it affects the body, and some issues that may arise because of it. She explains the difference between dynamic and static stretching, and when each type may be appropriate.

    Jennifer looks at the practice of overstretching in dance studios and shares alternatives to overstretching for achieving flexibility in a healthy way.

    Finally, Jennifer offers suggestions on how to find resources to help you increase your flexibility safely, both online and in person, and confides what she wishes every dancer knew about flexibility.

    Whether you are an artist, a parent, a studio owner, or a health practitioner, this is an episode you won’t want to miss. Full of helpful advice and practical tips!

    #flexibility #flexible #ballet #ballerina #stretching #stretch #pointe #splits #pointeshoes #bendy #balletdancer #gymnast #gymnastics #instadance #instaballet #backbend #worldwideballet #dancer #contortion #poledance #oversplits #overstretching #split #acrobatics #zebra #hypermobilitymd #bendybodies #JenniferMilner #balletwhisperer 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2592 no     39. Rethinking Rhythmic Gymnastics with Vita Bachman https://share.transistor.fm/s/80a31692 Artistic athletes often push their flexibility to the limit, both for competitive and aesthetic reasons.   Nowhere are limits tested more than in rhythmic gymnastics where hypermobility tends to be the norm. Vita Bachman, former international Ukrainian rhythmic gymnast and now a highly respected coach, speaks openly with Bendy Bodies about her experience in the world of rhythmic gymnastics, both as an athlete and as a coach. Vita discusses how the sport has changed since she competed, and what factors influence how she coaches today.  She discusses the pitfall in “chasing the points” of competitive rhythmic gymnastics, and why she continually seeks out the best methods for training her students even when these methods differ from what she was taught as a competitor. Living with her own career-related medical problems, Vita strives to be a coach that trains competitive but healthy athletes, both physically and mentally. She shares the hopes she has for the future of rhythmic gymnastics, as well as the hurdles she finds in trying to change certain aspects. She discusses her concerns with social media, confides what she’d like parents to know when shepherding their children through extreme stretching, and shares her own approach to training flexibility in a long-term, healthier way A rare, inside look at one of the most demanding sports for bendy bodies out there! #rhythmicgymnastics #rhythmicgymnasts #vitabachman #beyondlimitsrg #hypermobility #overstretching #bodiesinmotion #hypermobilitymd #jennifermilner #oversplits #safestretching #bendybodies #bendybodiespodcast #hypermobile Her website is www.beyondlimitsrg.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 02 Dec 2021 09:00:00 -0000 39. Rethinking Rhythmic Gymnastics with Vita Bachman full 39 Dr. Linda Bluestein <p>Artistic athletes often push their flexibility to the limit, both for competitive and aesthetic reasons.   Nowhere are limits tested more than in rhythmic gymnastics where hypermobility tends to be the norm.</p><p>Vita Bachman, former international Ukrainian rhythmic gymnast and now a highly respected coach, speaks openly with Bendy Bodies about her experience in the world of rhythmic gymnastics, both as an athlete and as a coach.</p><p>Vita discusses how the sport has changed since she competed, and what factors influence how she coaches today.  She discusses the pitfall in “chasing the points” of competitive rhythmic gymnastics, and why she continually seeks out the best methods for training her students even when these methods differ from what she was taught as a competitor.</p><p>Living with her own career-related medical problems, Vita strives to be a coach that trains competitive but healthy athletes, both physically and mentally. She shares the hopes she has for the future of rhythmic gymnastics, as well as the hurdles she finds in trying to change certain aspects. She discusses her concerns with social media, confides what she’d like parents to know when shepherding their children through extreme stretching, and shares her own approach to training flexibility in a long-term, healthier way</p><p>A rare, inside look at one of the most demanding sports for bendy bodies out there!</p><p>#rhythmicgymnastics #rhythmicgymnasts #vitabachman #beyondlimitsrg #hypermobility #overstretching #bodiesinmotion #hypermobilitymd #jennifermilner #oversplits #safestretching #bendybodies #bendybodiespodcast #hypermobile</p><p>Her website is <a href="http://www.beyondlimitsrg.com/">www.beyondlimitsrg.com</a> --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Artistic athletes often push their flexibility to the limit, both for competitive and aesthetic reasons.   Nowhere are limits tested more than in rhythmic gymnastics where hypermobility tends to be the norm. Vita Bachman, former international Ukrainian rhythmic gymnast and now a highly respected coach, speaks openly with Bendy Bodies about her experience in the world of rhythmic gymnastics, both as an athlete and as a coach. Vita discusses how the sport has changed since she competed, and what factors influence how she coaches today.  She discusses the pitfall in “chasing the points” of competitive rhythmic gymnastics, and why she continually seeks out the best methods for training her students even when these methods differ from what she was taught as a competitor. Living with her own career-related medical problems, Vita strives to be a coach that trains competitive but healthy athletes, both physically and mentally. She shares the hopes she has for the future of rhythmic gymnastics, as well as the hurdles she finds in trying to change certain aspects. She discusses her concerns with social media, confides what she’d like parents to know when shepherding their children through extreme stretching, and shares her own approach to training flexibility in a long-term, healthier way A rare, inside look at one of the most demanding sports for bendy bodies out there! #rhythmicgymnastics #rhythmicgymnasts #vitabachman #beyondlimitsrg #hypermobility #overstretching #bodiesinmotion #hypermobilitymd #jennifermilner #oversplits #safestretching #bendybodies #bendybodiespodcast #hypermobile Her website is www.beyondlimitsrg.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Artistic athletes often push their flexibility to the limit, both for competitive and aesthetic reasons.   Nowhere are limits tested more than in rhythmic gymnastics where hypermobility tends to be the norm.

    Vita Bachman, former international Ukrainian rhythmic gymnast and now a highly respected coach, speaks openly with Bendy Bodies about her experience in the world of rhythmic gymnastics, both as an athlete and as a coach.

    Vita discusses how the sport has changed since she competed, and what factors influence how she coaches today.  She discusses the pitfall in “chasing the points” of competitive rhythmic gymnastics, and why she continually seeks out the best methods for training her students even when these methods differ from what she was taught as a competitor.

    Living with her own career-related medical problems, Vita strives to be a coach that trains competitive but healthy athletes, both physically and mentally. She shares the hopes she has for the future of rhythmic gymnastics, as well as the hurdles she finds in trying to change certain aspects. She discusses her concerns with social media, confides what she’d like parents to know when shepherding their children through extreme stretching, and shares her own approach to training flexibility in a long-term, healthier way

    A rare, inside look at one of the most demanding sports for bendy bodies out there!

    #rhythmicgymnastics #rhythmicgymnasts #vitabachman #beyondlimitsrg #hypermobility #overstretching #bodiesinmotion #hypermobilitymd #jennifermilner #oversplits #safestretching #bendybodies #bendybodiespodcast #hypermobile

    Her website is www.beyondlimitsrg.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2390 no     38. Refusing Limits with Allysa Seely https://share.transistor.fm/s/fcf1248a Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things. Just ask gold medalist Allysa Seely. Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more. Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she’s been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis. Allysa confides that she used all her “you can’t”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days. Allysa’s story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship. #TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS  #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 18 Nov 2021 09:00:00 -0000 38. Refusing Limits with Allysa Seely full 38 Dr. Linda Bluestein <p>Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things.</p><p>Just ask gold medalist Allysa Seely.</p><p>Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more.</p><p>Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she’s been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis.</p><p>Allysa confides that she used all her “you can’t”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days.</p><p>Allysa’s story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship.</p><p>#TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS  #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things. Just ask gold medalist Allysa Seely. Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more. Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she’s been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis. Allysa confides that she used all her “you can’t”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days. Allysa’s story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship. #TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS  #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things.

    Just ask gold medalist Allysa Seely.

    Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more.

    Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she’s been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis.

    Allysa confides that she used all her “you can’t”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days.

    Allysa’s story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship.

    #TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS  #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2982 no     37. Advocating for Yourself with Aidan Leslie https://share.transistor.fm/s/bdb2e38e Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more. And with multiple diagnoses comes multiple doctors’ visits. Bendy Bodies chats with our own wellness ambassador, Aidan Leslie, a retired dancer who has been living with an hEDS diagnosis for the past five years and spending her fair share of time in doctors’ offices. Aidan opens up about the bumpy road of her own health journey. She talks about hitting the “EDS wall” and fighting to take control of her life back. Aidan speaks frankly about her experience navigating the medical world, both as a minor and as someone with an invisible illness.  Aidan offers tips on how to prepare for medical appointments and suggestions for “how to push back against the push-back”. And just as Aidan is willing to share her side of the medical experience, Bendy Bodies founder Dr. Linda Bluestein joins in to give advice from her side of the stethoscope. Dr. Bluestein describes a medical one-sheet and how to build one for your medical care, and shares what she wants teen patients specifically to know about advocating for your own health. Dr. Bluestein discusses options you might have if you feel unseen or unheard in an appointment, and suggests ways to connect with a doctor during an appointment. Filled with excellent insight from both sides of the prescription pad, this episode is one you’ll want to listen to with a notepad handy. #spoonie #chronicillness #ehlersdanlossyndrome #ehlersdanlos #hypermobility #chronicpain #pots #heds #ehlersdanlossyndromes #mcas #invisibleillness #hypermobilitysyndrome  #hypermobilityspectrumdisorders  #zebrastrong  #bendybodies #BendyBodiesPodcast #JenniferMilner #balletwhisperer #hypermobilitymd --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 04 Nov 2021 08:00:00 -0000 37. Advocating for Yourself with Aidan Leslie full 37 Dr. Linda Bluestein <p>Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more.</p><p>And with multiple diagnoses comes multiple doctors’ visits.</p><p>Bendy Bodies chats with our own wellness ambassador, Aidan Leslie, a retired dancer who has been living with an hEDS diagnosis for the past five years and spending her fair share of time in doctors’ offices.</p><p>Aidan opens up about the bumpy road of her own health journey. She talks about hitting the “EDS wall” and fighting to take control of her life back. Aidan speaks frankly about her experience navigating the medical world, both as a minor and as someone with an invisible illness.  Aidan offers tips on how to prepare for medical appointments and suggestions for “how to push back against the push-back”.</p><p>And just as Aidan is willing to share her side of the medical experience, Bendy Bodies founder Dr. Linda Bluestein joins in to give advice from her side of the stethoscope.</p><p>Dr. Bluestein describes a medical one-sheet and how to build one for your medical care, and shares what she wants teen patients specifically to know about advocating for your own health. Dr. Bluestein discusses options you might have if you feel unseen or unheard in an appointment, and suggests ways to connect with a doctor during an appointment.</p><p>Filled with excellent insight from both sides of the prescription pad, this episode is one you’ll want to listen to with a notepad handy.</p><p>#spoonie #chronicillness #ehlersdanlossyndrome #ehlersdanlos #hypermobility #chronicpain #pots #heds #ehlersdanlossyndromes #mcas #invisibleillness #hypermobilitysyndrome  #hypermobilityspectrumdisorders  #zebrastrong  #bendybodies #BendyBodiesPodcast #JenniferMilner #balletwhisperer #hypermobilitymd --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more. And with multiple diagnoses comes multiple doctors’ visits. Bendy Bodies chats with our own wellness ambassador, Aidan Leslie, a retired dancer who has been living with an hEDS diagnosis for the past five years and spending her fair share of time in doctors’ offices. Aidan opens up about the bumpy road of her own health journey. She talks about hitting the “EDS wall” and fighting to take control of her life back. Aidan speaks frankly about her experience navigating the medical world, both as a minor and as someone with an invisible illness.  Aidan offers tips on how to prepare for medical appointments and suggestions for “how to push back against the push-back”. And just as Aidan is willing to share her side of the medical experience, Bendy Bodies founder Dr. Linda Bluestein joins in to give advice from her side of the stethoscope. Dr. Bluestein describes a medical one-sheet and how to build one for your medical care, and shares what she wants teen patients specifically to know about advocating for your own health. Dr. Bluestein discusses options you might have if you feel unseen or unheard in an appointment, and suggests ways to connect with a doctor during an appointment. Filled with excellent insight from both sides of the prescription pad, this episode is one you’ll want to listen to with a notepad handy. #spoonie #chronicillness #ehlersdanlossyndrome #ehlersdanlos #hypermobility #chronicpain #pots #heds #ehlersdanlossyndromes #mcas #invisibleillness #hypermobilitysyndrome  #hypermobilityspectrumdisorders  #zebrastrong  #bendybodies #BendyBodiesPodcast #JenniferMilner #balletwhisperer #hypermobilitymd --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more.

    And with multiple diagnoses comes multiple doctors’ visits.

    Bendy Bodies chats with our own wellness ambassador, Aidan Leslie, a retired dancer who has been living with an hEDS diagnosis for the past five years and spending her fair share of time in doctors’ offices.

    Aidan opens up about the bumpy road of her own health journey. She talks about hitting the “EDS wall” and fighting to take control of her life back. Aidan speaks frankly about her experience navigating the medical world, both as a minor and as someone with an invisible illness.  Aidan offers tips on how to prepare for medical appointments and suggestions for “how to push back against the push-back”.

    And just as Aidan is willing to share her side of the medical experience, Bendy Bodies founder Dr. Linda Bluestein joins in to give advice from her side of the stethoscope.

    Dr. Bluestein describes a medical one-sheet and how to build one for your medical care, and shares what she wants teen patients specifically to know about advocating for your own health. Dr. Bluestein discusses options you might have if you feel unseen or unheard in an appointment, and suggests ways to connect with a doctor during an appointment.

    Filled with excellent insight from both sides of the prescription pad, this episode is one you’ll want to listen to with a notepad handy.

    #spoonie #chronicillness #ehlersdanlossyndrome #ehlersdanlos #hypermobility #chronicpain #pots #heds #ehlersdanlossyndromes #mcas #invisibleillness #hypermobilitysyndrome  #hypermobilityspectrumdisorders  #zebrastrong  #bendybodies #BendyBodiesPodcast #JenniferMilner #balletwhisperer #hypermobilitymd --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2787 no     36. Needling for Pain with Mandy Blackmon, DPT https://share.transistor.fm/s/5cc72eff What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for? Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014. Mandy explains why she considers dry needling to be a highly effective tool for treating the hypermobile population, and how people with hypermobility can react differently to dry needling. She offers advice on where to start when faced with people with multi-systemic issues, and reveals why dry needling is like rebooting a computer! Mandy tells us how to find a dry-needling practitioner, and what information to share with that professional, as well as outlining situations where dry needling might not be appropriate. Whether you’re new to dry needling or use it as a regular part of your health maintenance toolbox, there’s a lot to learn from this excellent discussion. To learn more about Dr. Blackmon and Myopain Seminars: https://www.mandydancept.com/ https://www.atlantadancemedicine.com/ https://www.myopainseminars.com/resources/blog/ • • • • #dryneedling #dancemedicine #hypermobility #hypermobile #dancephysicaltherapy #chronicpain #ehlersdanlossyndrome #fibromyalgia #ehlersdanlos  #heds #hypermobility #zebrastrong #BendyBodies #zebra #chronicpainwarrior #JenniferMilner #balletwhisperer  #hypermobilityMD #BendyBodiesPodcast --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 14 Oct 2021 08:00:00 -0000 36. Needling for Pain with Mandy Blackmon, DPT full 36 Dr. Linda Bluestein <p>What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for?</p><p>Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014.</p><p>Mandy explains why she considers dry needling to be a highly effective tool for treating the hypermobile population, and how people with hypermobility can react differently to dry needling. She offers advice on where to start when faced with people with multi-systemic issues, and reveals why dry needling is like rebooting a computer!</p><p>Mandy tells us how to find a dry-needling practitioner, and what information to share with that professional, as well as outlining situations where dry needling might not be appropriate.</p><p>Whether you’re new to dry needling or use it as a regular part of your health maintenance toolbox, there’s a lot to learn from this excellent discussion.</p><p>To learn more about Dr. Blackmon and Myopain Seminars:</p><p><a href="https://www.mandydancept.com/">https://www.mandydancept.com/</a></p><p><a href="https://www.atlantadancemedicine.com/">https://www.atlantadancemedicine.com/</a></p><p><a href="https://www.myopainseminars.com/resources/blog/">https://www.myopainseminars.com/resources/blog/</a></p><p>•</p><p>•</p><p>•</p><p>•</p><p>#dryneedling #dancemedicine #hypermobility #hypermobile #dancephysicaltherapy #chronicpain #ehlersdanlossyndrome #fibromyalgia #ehlersdanlos  #heds #hypermobility #zebrastrong #BendyBodies #zebra #chronicpainwarrior #JenniferMilner #balletwhisperer  #hypermobilityMD #BendyBodiesPodcast --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for? Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014. Mandy explains why she considers dry needling to be a highly effective tool for treating the hypermobile population, and how people with hypermobility can react differently to dry needling. She offers advice on where to start when faced with people with multi-systemic issues, and reveals why dry needling is like rebooting a computer! Mandy tells us how to find a dry-needling practitioner, and what information to share with that professional, as well as outlining situations where dry needling might not be appropriate. Whether you’re new to dry needling or use it as a regular part of your health maintenance toolbox, there’s a lot to learn from this excellent discussion. To learn more about Dr. Blackmon and Myopain Seminars: https://www.mandydancept.com/ https://www.atlantadancemedicine.com/ https://www.myopainseminars.com/resources/blog/ • • • • #dryneedling #dancemedicine #hypermobility #hypermobile #dancephysicaltherapy #chronicpain #ehlersdanlossyndrome #fibromyalgia #ehlersdanlos  #heds #hypermobility #zebrastrong #BendyBodies #zebra #chronicpainwarrior #JenniferMilner #balletwhisperer  #hypermobilityMD #BendyBodiesPodcast --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for?

    Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014.

    Mandy explains why she considers dry needling to be a highly effective tool for treating the hypermobile population, and how people with hypermobility can react differently to dry needling. She offers advice on where to start when faced with people with multi-systemic issues, and reveals why dry needling is like rebooting a computer!

    Mandy tells us how to find a dry-needling practitioner, and what information to share with that professional, as well as outlining situations where dry needling might not be appropriate.

    Whether you’re new to dry needling or use it as a regular part of your health maintenance toolbox, there’s a lot to learn from this excellent discussion.

    To learn more about Dr. Blackmon and Myopain Seminars:

    https://www.mandydancept.com/

    https://www.atlantadancemedicine.com/

    https://www.myopainseminars.com/resources/blog/

    •

    •

    •

    •

    #dryneedling #dancemedicine #hypermobility #hypermobile #dancephysicaltherapy #chronicpain #ehlersdanlossyndrome #fibromyalgia #ehlersdanlos  #heds #hypermobility #zebrastrong #BendyBodies #zebra #chronicpainwarrior #JenniferMilner #balletwhisperer  #hypermobilityMD #BendyBodiesPodcast --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2514 no     35. Reeducating Mast Cells with Anne Maitland, MD, PhD https://share.transistor.fm/s/63162259 Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave? We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it. Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But what if your mast cells perceive the situation incorrectly? What if they perceive a five-alarm fire when it’s just an overcooked, smoky dinner? The mast cells react disproportionately to the perceived threat, and the over-reaction manifests itself throughout the body. She discusses how misbehaving mast cells manifest differently in different systems; she talks through examples of mast cell disorders; and she lists three questions to ask yourself as you try to figure out: are your mast cells misbehaving? Dr. Maitland describes the challenges people with mast cell disorders face in getting properly diagnosed and treated, and outlines her approach to treating mast cell disorders.  And finally, Dr. Maitland likens the hypermobile patient to a Maserati, and explains why proper maintenance is important sooner rather than later. A deep dive into all things mast cell-related, this episode is full of wisdom you won’t want to miss! Visit these links for more information about the books mentioned by Dr. Maitland. https://hiddenstripes.com/ https://originwellnesscolorado.com/passport #Mastcellactivationsyndrome #Mastcellactivationdisorder #Mastcelldisease #MastCell #Hypermobilityspectrumdisorder #Hypermobilityspectrumdisorders #Ehlersdanlossyndromes #Doublejointed #heds  #ehlersdanlosawareness #BendyBodies  #hypermobilityMD #BendyBodiesPodcast #JenniferMilner For more information about Dr. Maitland, visit https://clinicalparadigms.com/ or https://chiarinsc.com/patient/ For more information about Dr. Linda Bluestein, visit https://www.hypermobilitymd.com/ For more information about Jennifer Milner, visit https://www.jennifer-milner.com/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 30 Sep 2021 08:00:00 -0000 35. Reeducating Mast Cells with Anne Maitland, MD, PhD full 35 Dr. Linda Bluestein <p>Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave?</p><p>We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it.</p><p>Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But what if your mast cells perceive the situation incorrectly? What if they perceive a five-alarm fire when it’s just an overcooked, smoky dinner? The mast cells react disproportionately to the perceived threat, and the over-reaction manifests itself throughout the body.</p><p>She discusses how misbehaving mast cells manifest differently in different systems; she talks through examples of mast cell disorders; and she lists three questions to ask yourself as you try to figure out: are your mast cells misbehaving?</p><p>Dr. Maitland describes the challenges people with mast cell disorders face in getting properly diagnosed and treated, and outlines her approach to treating mast cell disorders.  And finally, Dr. Maitland likens the hypermobile patient to a Maserati, and explains why proper maintenance is important sooner rather than later.</p><p>A deep dive into all things mast cell-related, this episode is full of wisdom you won’t want to miss!</p><p>Visit these links for more information about the books mentioned by Dr. Maitland.</p><p><a href="https://hiddenstripes.com/">https://hiddenstripes.com/</a></p><p><a href="https://originwellnesscolorado.com/passport">https://originwellnesscolorado.com/passport</a></p><p>#Mastcellactivationsyndrome #Mastcellactivationdisorder #Mastcelldisease #MastCell #Hypermobilityspectrumdisorder #Hypermobilityspectrumdisorders #Ehlersdanlossyndromes #Doublejointed #heds  #ehlersdanlosawareness #BendyBodies  #hypermobilityMD #BendyBodiesPodcast #JenniferMilner</p><p>For more information about Dr. Maitland, visit <a href="https://clinicalparadigms.com/">https://clinicalparadigms.com/</a> or <a href="https://chiarinsc.com/patient/">https://chiarinsc.com/patient/</a></p><p>For more information about Dr. Linda Bluestein, visit <a href="https://www.hypermobilitymd.com/">https://www.hypermobilitymd.com/</a></p><p>For more information about Jennifer Milner, visit <a href="https://www.jennifer-milner.com/">https://www.jennifer-milner.com/</a> --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message</p> Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave? We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it. Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But what if your mast cells perceive the situation incorrectly? What if they perceive a five-alarm fire when it’s just an overcooked, smoky dinner? The mast cells react disproportionately to the perceived threat, and the over-reaction manifests itself throughout the body. She discusses how misbehaving mast cells manifest differently in different systems; she talks through examples of mast cell disorders; and she lists three questions to ask yourself as you try to figure out: are your mast cells misbehaving? Dr. Maitland describes the challenges people with mast cell disorders face in getting properly diagnosed and treated, and outlines her approach to treating mast cell disorders.  And finally, Dr. Maitland likens the hypermobile patient to a Maserati, and explains why proper maintenance is important sooner rather than later. A deep dive into all things mast cell-related, this episode is full of wisdom you won’t want to miss! Visit these links for more information about the books mentioned by Dr. Maitland. https://hiddenstripes.com/ https://originwellnesscolorado.com/passport #Mastcellactivationsyndrome #Mastcellactivationdisorder #Mastcelldisease #MastCell #Hypermobilityspectrumdisorder #Hypermobilityspectrumdisorders #Ehlersdanlossyndromes #Doublejointed #heds  #ehlersdanlosawareness #BendyBodies  #hypermobilityMD #BendyBodiesPodcast #JenniferMilner For more information about Dr. Maitland, visit https://clinicalparadigms.com/ or https://chiarinsc.com/patient/ For more information about Dr. Linda Bluestein, visit https://www.hypermobilitymd.com/ For more information about Jennifer Milner, visit https://www.jennifer-milner.com/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave?

    We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it.

    Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But what if your mast cells perceive the situation incorrectly? What if they perceive a five-alarm fire when it’s just an overcooked, smoky dinner? The mast cells react disproportionately to the perceived threat, and the over-reaction manifests itself throughout the body.

    She discusses how misbehaving mast cells manifest differently in different systems; she talks through examples of mast cell disorders; and she lists three questions to ask yourself as you try to figure out: are your mast cells misbehaving?

    Dr. Maitland describes the challenges people with mast cell disorders face in getting properly diagnosed and treated, and outlines her approach to treating mast cell disorders.  And finally, Dr. Maitland likens the hypermobile patient to a Maserati, and explains why proper maintenance is important sooner rather than later.

    A deep dive into all things mast cell-related, this episode is full of wisdom you won’t want to miss!

    Visit these links for more information about the books mentioned by Dr. Maitland.

    https://hiddenstripes.com/

    https://originwellnesscolorado.com/passport

    #Mastcellactivationsyndrome #Mastcellactivationdisorder #Mastcelldisease #MastCell #Hypermobilityspectrumdisorder #Hypermobilityspectrumdisorders #Ehlersdanlossyndromes #Doublejointed #heds  #ehlersdanlosawareness #BendyBodies  #hypermobilityMD #BendyBodiesPodcast #JenniferMilner

    For more information about Dr. Maitland, visit https://clinicalparadigms.com/ or https://chiarinsc.com/patient/

    For more information about Dr. Linda Bluestein, visit https://www.hypermobilitymd.com/

    For more information about Jennifer Milner, visit https://www.jennifer-milner.com/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3632 no     34. Highlighting GI Disorders with Leonard Weinstock, M.D. https://share.transistor.fm/s/b0778f96 Are you suffering from gastrointestinal distress? People with hypermobility disorders have a higher prevalence of GI problems than the general population.  Dr. Leonard Weinstock, board-certified gastroenterologist with expertise in Ehlers-Danlos Syndromes (EDS) and related disorders, sits down with Bendy Bodies to discuss this very topic. Dr. Weinstock discusses the “unhappy triad" of EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) and how MCAS may actually be at the heart of EDS. He lists ways to be evaluated for GI disorders and speculates that 10-17% of the general population may have undiagnosed MCAS. He stresses the importance of a multi-disciplinary approach to treatment and thinking outside the box.  We look at gastroparesis and small bowel intestinal overgrowth (SIBO) and their links to hEDS and hypermobility spectrum disorder (HSD), and Dr. Weinstock outlines the prevalence of median arcuate ligament syndrome (MALS) in people with MCAS or POTS. He elaborates on his prescribing practices with low-dose naltrexone (LDN) to help increase endorphin production and reduce inflammation, and lists vitamins and diet changes that can be effective in people with MCAS.  As one of the authors of "Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome", Dr. Weinstock discusses the possible link between long-COVID 19 illness and MCAS. And finally, he shares suggestions on what to do if you’re having difficulty finding a GI specialist who understands complicated disorders like EDS and MCAS.  For anyone dealing with GI issues, as well as physicians looking to understand the connection between hypermobility and GI disorders, this is a timely and important podcast.  https://www.gidoctor.net/provider/leonard-weinstock-md https://pubmed.ncbi.nlm.nih.gov/32328892/ https://pubmed.ncbi.nlm.nih.gov/32920235/ https://www.researchgate.net/publication/338327834_Perioperative_Care_in_Patients_with_Ehlers_Danlos_Syndromes  #Podcast #LeonardWeinstockMD #GIdisorders #EDS #zebrastrong #MCAS #MALS #POTS #SIBO #hEDS #autoimmunedisorders #BendyBodies #BendyBodiespodcast #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion #balletwhisperer #hypermobility #mastcelldisease #mastcelldisorder #EhlersDanlos #EDSAwarenessMonth  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 27 May 2021 08:00:00 -0000 34. Highlighting GI Disorders with Leonard Weinstock, M.D. full 34 Dr. Linda Bluestein <p>Are you suffering from gastrointestinal distress? People with hypermobility disorders have a higher prevalence of GI problems than the general population. </p><p>Dr. Leonard Weinstock, board-certified gastroenterologist with expertise in Ehlers-Danlos Syndromes (EDS) and related disorders, sits down with Bendy Bodies to discuss this very topic. Dr. Weinstock discusses the “unhappy triad" of EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) and how MCAS may actually be at the heart of EDS. He lists ways to be evaluated for GI disorders and speculates that 10-17% of the general population may have undiagnosed MCAS. He stresses the importance of a multi-disciplinary approach to treatment and thinking outside the box. </p><p>We look at gastroparesis and small bowel intestinal overgrowth (SIBO) and their links to hEDS and hypermobility spectrum disorder (HSD), and Dr. Weinstock outlines the prevalence of median arcuate ligament syndrome (MALS) in people with MCAS or POTS. He elaborates on his prescribing practices with low-dose naltrexone (LDN) to help increase endorphin production and reduce inflammation, and lists vitamins and diet changes that can be effective in people with MCAS. </p><p>As one of the authors of "Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome", Dr. Weinstock discusses the possible link between long-COVID 19 illness and MCAS. And finally, he shares suggestions on what to do if you’re having difficulty finding a GI specialist who understands complicated disorders like EDS and MCAS. </p><p>For anyone dealing with GI issues, as well as physicians looking to understand the connection between hypermobility and GI disorders, this is a timely and important podcast. </p><p>https://www.gidoctor.net/provider/leonard-weinstock-md https://pubmed.ncbi.nlm.nih.gov/32328892/ https://pubmed.ncbi.nlm.nih.gov/32920235/ https://www.researchgate.net/publication/338327834_Perioperative_Care_in_Patients_with_Ehlers_Danlos_Syndromes </p><p>#Podcast #LeonardWeinstockMD #GIdisorders #EDS #zebrastrong #MCAS #MALS #POTS #SIBO #hEDS #autoimmunedisorders #BendyBodies #BendyBodiespodcast #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion #balletwhisperer #hypermobility #mastcelldisease #mastcelldisorder #EhlersDanlos #EDSAwarenessMonth </p> Are you suffering from gastrointestinal distress? People with hypermobility disorders have a higher prevalence of GI problems than the general population.  Dr. Leonard Weinstock, board-certified gastroenterologist with expertise in Ehlers-Danlos Syndromes (EDS) and related disorders, sits down with Bendy Bodies to discuss this very topic. Dr. Weinstock discusses the “unhappy triad" of EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) and how MCAS may actually be at the heart of EDS. He lists ways to be evaluated for GI disorders and speculates that 10-17% of the general population may have undiagnosed MCAS. He stresses the importance of a multi-disciplinary approach to treatment and thinking outside the box.  We look at gastroparesis and small bowel intestinal overgrowth (SIBO) and their links to hEDS and hypermobility spectrum disorder (HSD), and Dr. Weinstock outlines the prevalence of median arcuate ligament syndrome (MALS) in people with MCAS or POTS. He elaborates on his prescribing practices with low-dose naltrexone (LDN) to help increase endorphin production and reduce inflammation, and lists vitamins and diet changes that can be effective in people with MCAS.  As one of the authors of "Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome", Dr. Weinstock discusses the possible link between long-COVID 19 illness and MCAS. And finally, he shares suggestions on what to do if you’re having difficulty finding a GI specialist who understands complicated disorders like EDS and MCAS.  For anyone dealing with GI issues, as well as physicians looking to understand the connection between hypermobility and GI disorders, this is a timely and important podcast.  https://www.gidoctor.net/provider/leonard-weinstock-md https://pubmed.ncbi.nlm.nih.gov/32328892/ https://pubmed.ncbi.nlm.nih.gov/32920235/ https://www.researchgate.net/publication/338327834_Perioperative_Care_in_Patients_with_Ehlers_Danlos_Syndromes  #Podcast #LeonardWeinstockMD #GIdisorders #EDS #zebrastrong #MCAS #MALS #POTS #SIBO #hEDS #autoimmunedisorders #BendyBodies #BendyBodiespodcast #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion #balletwhisperer #hypermobility #mastcelldisease #mastcelldisorder #EhlersDanlos #EDSAwarenessMonth  Learn more about your ad choices. Visit megaphone.fm/adchoices Are you suffering from gastrointestinal distress? People with hypermobility disorders have a higher prevalence of GI problems than the general population. 

    Dr. Leonard Weinstock, board-certified gastroenterologist with expertise in Ehlers-Danlos Syndromes (EDS) and related disorders, sits down with Bendy Bodies to discuss this very topic. Dr. Weinstock discusses the “unhappy triad" of EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) and how MCAS may actually be at the heart of EDS. He lists ways to be evaluated for GI disorders and speculates that 10-17% of the general population may have undiagnosed MCAS. He stresses the importance of a multi-disciplinary approach to treatment and thinking outside the box. 

    We look at gastroparesis and small bowel intestinal overgrowth (SIBO) and their links to hEDS and hypermobility spectrum disorder (HSD), and Dr. Weinstock outlines the prevalence of median arcuate ligament syndrome (MALS) in people with MCAS or POTS. He elaborates on his prescribing practices with low-dose naltrexone (LDN) to help increase endorphin production and reduce inflammation, and lists vitamins and diet changes that can be effective in people with MCAS. 

    As one of the authors of "Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome", Dr. Weinstock discusses the possible link between long-COVID 19 illness and MCAS. And finally, he shares suggestions on what to do if you’re having difficulty finding a GI specialist who understands complicated disorders like EDS and MCAS. 

    For anyone dealing with GI issues, as well as physicians looking to understand the connection between hypermobility and GI disorders, this is a timely and important podcast. 

    https://www.gidoctor.net/provider/leonard-weinstock-md https://pubmed.ncbi.nlm.nih.gov/32328892/ https://pubmed.ncbi.nlm.nih.gov/32920235/ https://www.researchgate.net/publication/338327834_Perioperative_Care_in_Patients_with_Ehlers_Danlos_Syndromes 

    #Podcast #LeonardWeinstockMD #GIdisorders #EDS #zebrastrong #MCAS #MALS #POTS #SIBO #hEDS #autoimmunedisorders #BendyBodies #BendyBodiespodcast #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion #balletwhisperer #hypermobility #mastcelldisease #mastcelldisorder #EhlersDanlos #EDSAwarenessMonth 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3191 no     33. Conquering the Wall: A Round Table Discussion https://share.transistor.fm/s/3076b268 Do you live with a hypermobility disorder? Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone.  These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more.  What do these have in common?   Bodies that rely on aesthetics as well as maintaining peak performance. So how do you continue forward as your condition poses challenges to what you want to do? And when your health derails your career plans, how do you recover from that? We sat down with several athletic artists living with EDS, to hear their stories. We chatted with Marimba Gold-Watts, a former dancer and now Pilates trainer and teacher at Alvin Ailey; Mariana J. Plick, a circus artist; Kyle Thompson, a former elite baseball player and competitive cheerleader; and Cailey Brandon, a former dancer and now Pilates trainer. Our panelists discuss the early days, when things were “easy”, and the point at which it became difficult. They share how their hypermobility disorders may have gone undiagnosed for a long time, lending itself to seemingly random and frustrating multiple injuries. Many identified with “hitting the EDS wall”, and the sharp turn their health seemed to take at that point. We hear emotional stories, and lots of wisdom for other people also struggling with hypermobility disorders. The panelists also shared their hope, reflecting on ways that their disorders have made them even stronger right now, and revealed what advice they would offer to their younger selves if they had the chance. Filled with “Oh my goodness, me too!” moments, as well as words of gut-level truth, this is an episode filled with bravery. You won’t want to miss it. #hypermobility #heds #zebrastrong #hypermobilitydisorders #ehlersdanlossyndrome #hypermobileathletes #hypermobileartists #hypermobiledancers #hypermobilitymd #bendybodies #bendybodiespodcast #bodiesinmotion #jennifermilner  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 13 May 2021 08:00:00 -0000 33. Conquering the Wall: A Round Table Discussion full 33 Dr. Linda Bluestein <p>Do you live with a hypermobility disorder?</p><p>Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone.  These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more.  What do these have in common?   Bodies that rely on aesthetics as well as maintaining peak performance. So how do you continue forward as your condition poses challenges to what you want to do?</p><p>And when your health derails your career plans, how do you recover from that?</p><p>We sat down with several athletic artists living with EDS, to hear their stories. We chatted with Marimba Gold-Watts, a former dancer and now Pilates trainer and teacher at Alvin Ailey; Mariana J. Plick, a circus artist; Kyle Thompson, a former elite baseball player and competitive cheerleader; and Cailey Brandon, a former dancer and now Pilates trainer.</p><p>Our panelists discuss the early days, when things were “easy”, and the point at which it became difficult. They share how their hypermobility disorders may have gone undiagnosed for a long time, lending itself to seemingly random and frustrating multiple injuries. Many identified with “hitting the EDS wall”, and the sharp turn their health seemed to take at that point.</p><p>We hear emotional stories, and lots of wisdom for other people also struggling with hypermobility disorders. The panelists also shared their hope, reflecting on ways that their disorders have made them even stronger right now, and revealed what advice they would offer to their younger selves if they had the chance.</p><p>Filled with “Oh my goodness, me too!” moments, as well as words of gut-level truth, this is an episode filled with bravery. You won’t want to miss it.</p><p>#hypermobility #heds #zebrastrong #hypermobilitydisorders #ehlersdanlossyndrome #hypermobileathletes #hypermobileartists #hypermobiledancers #hypermobilitymd #bendybodies #bendybodiespodcast #bodiesinmotion #jennifermilner </p> Do you live with a hypermobility disorder? Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone.  These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more.  What do these have in common?   Bodies that rely on aesthetics as well as maintaining peak performance. So how do you continue forward as your condition poses challenges to what you want to do? And when your health derails your career plans, how do you recover from that? We sat down with several athletic artists living with EDS, to hear their stories. We chatted with Marimba Gold-Watts, a former dancer and now Pilates trainer and teacher at Alvin Ailey; Mariana J. Plick, a circus artist; Kyle Thompson, a former elite baseball player and competitive cheerleader; and Cailey Brandon, a former dancer and now Pilates trainer. Our panelists discuss the early days, when things were “easy”, and the point at which it became difficult. They share how their hypermobility disorders may have gone undiagnosed for a long time, lending itself to seemingly random and frustrating multiple injuries. Many identified with “hitting the EDS wall”, and the sharp turn their health seemed to take at that point. We hear emotional stories, and lots of wisdom for other people also struggling with hypermobility disorders. The panelists also shared their hope, reflecting on ways that their disorders have made them even stronger right now, and revealed what advice they would offer to their younger selves if they had the chance. Filled with “Oh my goodness, me too!” moments, as well as words of gut-level truth, this is an episode filled with bravery. You won’t want to miss it. #hypermobility #heds #zebrastrong #hypermobilitydisorders #ehlersdanlossyndrome #hypermobileathletes #hypermobileartists #hypermobiledancers #hypermobilitymd #bendybodies #bendybodiespodcast #bodiesinmotion #jennifermilner  Learn more about your ad choices. Visit megaphone.fm/adchoices Do you live with a hypermobility disorder?

    Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone.  These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more.  What do these have in common?   Bodies that rely on aesthetics as well as maintaining peak performance. So how do you continue forward as your condition poses challenges to what you want to do?

    And when your health derails your career plans, how do you recover from that?

    We sat down with several athletic artists living with EDS, to hear their stories. We chatted with Marimba Gold-Watts, a former dancer and now Pilates trainer and teacher at Alvin Ailey; Mariana J. Plick, a circus artist; Kyle Thompson, a former elite baseball player and competitive cheerleader; and Cailey Brandon, a former dancer and now Pilates trainer.

    Our panelists discuss the early days, when things were “easy”, and the point at which it became difficult. They share how their hypermobility disorders may have gone undiagnosed for a long time, lending itself to seemingly random and frustrating multiple injuries. Many identified with “hitting the EDS wall”, and the sharp turn their health seemed to take at that point.

    We hear emotional stories, and lots of wisdom for other people also struggling with hypermobility disorders. The panelists also shared their hope, reflecting on ways that their disorders have made them even stronger right now, and revealed what advice they would offer to their younger selves if they had the chance.

    Filled with “Oh my goodness, me too!” moments, as well as words of gut-level truth, this is an episode filled with bravery. You won’t want to miss it.

    #hypermobility #heds #zebrastrong #hypermobilitydisorders #ehlersdanlossyndrome #hypermobileathletes #hypermobileartists #hypermobiledancers #hypermobilitymd #bendybodies #bendybodiespodcast #bodiesinmotion #jennifermilner 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3819 no     32. Embracing Neurodivergency with Jessica Eccles, MD https://share.transistor.fm/s/1fce2913 Neurodivergency occurs at a much higher rate amongst people with hypermobility disorders like Ehlers-Danlos Syndromes and hypermobility spectrum disorders. What’s the connection?  Jessica Eccles, MD, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, recently spoke with Bendy Bodies about these neurological conditions that include dyslexia, autism, ADHD, dyspraxia, and dyscalculia. Dr. Eccles led the first neuroimaging study of hypermobility and her work has focused on neuropsychiatric manifestations of connective tissue disorders.  Dr. Eccles stresses that neurodivergency isn’t a disability or disorder, but a different way of neurological processing. She explains surprising findings of her research including possible explanations for the link between hypermobility and anxiety. Dr. Eccles reveals that people with EDS (Ehlers-Danlos Syndromes) are seven times more likely to be autistic, and six times more likely to have ADHD, compared to the general population. She stresses the importance of recognizing the link between hypermobility and neurodivergency and dives into proprioceptive issues and dyspraxia.  Dr. Eccles offers suggestions for seeking help if you suspect you are neurodivergent. She also provides advice for teachers and parents to be more effective in their roles with neurdivergent artists. As Dr. Eccles states, “Neurodivergency shouldn’t be thought of as something to hold you back, but something to embrace.”  If you or someone you know may be neurodivergent, this is an episode not to be missed. Find Dr. Eccles: https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx @BendyBrain https://www.researchgate.net/profile/Jessica_Eccles  Suggested reading: "The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/  #autismacceptence #autismawareness #neurodivergent #autisticadults #neurodiversity #autistic #autimstruth #redinstead #bendybodies #bendybodiespodcast #lindabluesteinmd #jennifermilner #zebrastrong #hypermobility #hypermobilitydisorders  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 Apr 2021 08:00:00 -0000 32. Embracing Neurodivergency with Jessica Eccles, MD full 32 Dr. Linda Bluestein <p>Neurodivergency occurs at a much higher rate amongst people with hypermobility disorders like Ehlers-Danlos Syndromes and hypermobility spectrum disorders. What’s the connection? </p><p>Jessica Eccles, MD, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, recently spoke with Bendy Bodies about these neurological conditions that include dyslexia, autism, ADHD, dyspraxia, and dyscalculia. Dr. Eccles led the first neuroimaging study of hypermobility and her work has focused on neuropsychiatric manifestations of connective tissue disorders. </p><p>Dr. Eccles stresses that neurodivergency isn’t a disability or disorder, but a different way of neurological processing. She explains surprising findings of her research including possible explanations for the link between hypermobility and anxiety. Dr. Eccles reveals that people with EDS (Ehlers-Danlos Syndromes) are seven times more likely to be autistic, and six times more likely to have ADHD, compared to the general population. She stresses the importance of recognizing the link between hypermobility and neurodivergency and dives into proprioceptive issues and dyspraxia. </p><p>Dr. Eccles offers suggestions for seeking help if you suspect you are neurodivergent. She also provides advice for teachers and parents to be more effective in their roles with neurdivergent artists. As Dr. Eccles states, “Neurodivergency shouldn’t be thought of as something to hold you back, but something to embrace.” </p><p>If you or someone you know may be neurodivergent, this is an episode not to be missed. Find Dr. Eccles: https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx @BendyBrain https://www.researchgate.net/profile/Jessica_Eccles </p><p>Suggested reading: "The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/ </p><p>#autismacceptence #autismawareness #neurodivergent #autisticadults #neurodiversity #autistic #autimstruth #redinstead #bendybodies #bendybodiespodcast #lindabluesteinmd #jennifermilner #zebrastrong #hypermobility #hypermobilitydisorders </p> Neurodivergency occurs at a much higher rate amongst people with hypermobility disorders like Ehlers-Danlos Syndromes and hypermobility spectrum disorders. What’s the connection?  Jessica Eccles, MD, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, recently spoke with Bendy Bodies about these neurological conditions that include dyslexia, autism, ADHD, dyspraxia, and dyscalculia. Dr. Eccles led the first neuroimaging study of hypermobility and her work has focused on neuropsychiatric manifestations of connective tissue disorders.  Dr. Eccles stresses that neurodivergency isn’t a disability or disorder, but a different way of neurological processing. She explains surprising findings of her research including possible explanations for the link between hypermobility and anxiety. Dr. Eccles reveals that people with EDS (Ehlers-Danlos Syndromes) are seven times more likely to be autistic, and six times more likely to have ADHD, compared to the general population. She stresses the importance of recognizing the link between hypermobility and neurodivergency and dives into proprioceptive issues and dyspraxia.  Dr. Eccles offers suggestions for seeking help if you suspect you are neurodivergent. She also provides advice for teachers and parents to be more effective in their roles with neurdivergent artists. As Dr. Eccles states, “Neurodivergency shouldn’t be thought of as something to hold you back, but something to embrace.”  If you or someone you know may be neurodivergent, this is an episode not to be missed. Find Dr. Eccles: https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx @BendyBrain https://www.researchgate.net/profile/Jessica_Eccles  Suggested reading: "The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/  #autismacceptence #autismawareness #neurodivergent #autisticadults #neurodiversity #autistic #autimstruth #redinstead #bendybodies #bendybodiespodcast #lindabluesteinmd #jennifermilner #zebrastrong #hypermobility #hypermobilitydisorders  Learn more about your ad choices. Visit megaphone.fm/adchoices Neurodivergency occurs at a much higher rate amongst people with hypermobility disorders like Ehlers-Danlos Syndromes and hypermobility spectrum disorders. What’s the connection? 

    Jessica Eccles, MD, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, recently spoke with Bendy Bodies about these neurological conditions that include dyslexia, autism, ADHD, dyspraxia, and dyscalculia. Dr. Eccles led the first neuroimaging study of hypermobility and her work has focused on neuropsychiatric manifestations of connective tissue disorders. 

    Dr. Eccles stresses that neurodivergency isn’t a disability or disorder, but a different way of neurological processing. She explains surprising findings of her research including possible explanations for the link between hypermobility and anxiety. Dr. Eccles reveals that people with EDS (Ehlers-Danlos Syndromes) are seven times more likely to be autistic, and six times more likely to have ADHD, compared to the general population. She stresses the importance of recognizing the link between hypermobility and neurodivergency and dives into proprioceptive issues and dyspraxia. 

    Dr. Eccles offers suggestions for seeking help if you suspect you are neurodivergent. She also provides advice for teachers and parents to be more effective in their roles with neurdivergent artists. As Dr. Eccles states, “Neurodivergency shouldn’t be thought of as something to hold you back, but something to embrace.” 

    If you or someone you know may be neurodivergent, this is an episode not to be missed. Find Dr. Eccles: https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx @BendyBrain https://www.researchgate.net/profile/Jessica_Eccles 

    Suggested reading: "The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/ 

    #autismacceptence #autismawareness #neurodivergent #autisticadults #neurodiversity #autistic #autimstruth #redinstead #bendybodies #bendybodiespodcast #lindabluesteinmd #jennifermilner #zebrastrong #hypermobility #hypermobilitydisorders 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2313 no     31. Allowing Imperfection with Bonnie Robson, MD https://share.transistor.fm/s/edeabd86 A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals. Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world. She defines perfectionism, and explores the duality of perfectionism and anxiety. Bonnie discusses the difference between positive and negative perfectionism, and warns of the danger of the “I should” syndrome. Bonnie shares techniques to get rid of negative thoughts and looks at performance STRIVINGS versus performance CONCERNS. She discusses the variables that differentiate between adaptive and maladaptive perfectionism, and how unhealthy competition actually decreases creativity. We look at how the pursuit of perfection can increase stress, which contributes to social anxiety, eating disorder, and suicidal thoughts. Bonnie offers tips for training and setting reasonable goals, and shares tools for parents to recognize stress and anxiety in their young artists. As Bonnie reminds everyone who strives for perfection, “It’s ok to say that’s good enough”. This episode is a must-listen for parents, artists, studio owners, and dance medicine professionals working with artists on a regular basis. Link to "Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms" article mentioned in the episode: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3365276/ #anxiety #mentalhealth #selflove #bodypositivity #mentalhealthawareness #disorderedeating #perfectionism #depression #perfectionist #ehlersdanlossyndromes #selfcare #mcas #healthcoach #movementismedicine #healthyliving #pots #inspiration #motivation #perfection #berealnotperfect #certifiedhealthcoach #IADMS #danceanxiety #mentalhealthfordancers #BendyBodies #BendyBodiesPodcast #jennifermilner #bodiesinmotion #balletwhisperer #hypermobilitymd  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Apr 2021 08:00:00 -0000 31. Allowing Imperfection with Bonnie Robson, MD full 31 Dr. Linda Bluestein <p>A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals.</p><p>Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world. She defines perfectionism, and explores the duality of perfectionism and anxiety. Bonnie discusses the difference between positive and negative perfectionism, and warns of the danger of the “I should” syndrome.</p><p>Bonnie shares techniques to get rid of negative thoughts and looks at performance STRIVINGS versus performance CONCERNS. She discusses the variables that differentiate between adaptive and maladaptive perfectionism, and how unhealthy competition actually decreases creativity.</p><p>We look at how the pursuit of perfection can increase stress, which contributes to social anxiety, eating disorder, and suicidal thoughts. Bonnie offers tips for training and setting reasonable goals, and shares tools for parents to recognize stress and anxiety in their young artists. As Bonnie reminds everyone who strives for perfection, “It’s ok to say that’s good enough”.</p><p>This episode is a must-listen for parents, artists, studio owners, and dance medicine professionals working with artists on a regular basis.</p><p>Link to "Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms" article mentioned in the episode:</p><p><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3365276/">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3365276/</a></p><p>#anxiety #mentalhealth #selflove #bodypositivity #mentalhealthawareness #disorderedeating #perfectionism #depression #perfectionist #ehlersdanlossyndromes #selfcare #mcas #healthcoach #movementismedicine #healthyliving #pots #inspiration #motivation #perfection #berealnotperfect #certifiedhealthcoach #IADMS #danceanxiety #mentalhealthfordancers #BendyBodies #BendyBodiesPodcast #jennifermilner #bodiesinmotion #balletwhisperer #hypermobilitymd </p> A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals. Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world. She defines perfectionism, and explores the duality of perfectionism and anxiety. Bonnie discusses the difference between positive and negative perfectionism, and warns of the danger of the “I should” syndrome. Bonnie shares techniques to get rid of negative thoughts and looks at performance STRIVINGS versus performance CONCERNS. She discusses the variables that differentiate between adaptive and maladaptive perfectionism, and how unhealthy competition actually decreases creativity. We look at how the pursuit of perfection can increase stress, which contributes to social anxiety, eating disorder, and suicidal thoughts. Bonnie offers tips for training and setting reasonable goals, and shares tools for parents to recognize stress and anxiety in their young artists. As Bonnie reminds everyone who strives for perfection, “It’s ok to say that’s good enough”. This episode is a must-listen for parents, artists, studio owners, and dance medicine professionals working with artists on a regular basis. Link to "Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms" article mentioned in the episode: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3365276/ #anxiety #mentalhealth #selflove #bodypositivity #mentalhealthawareness #disorderedeating #perfectionism #depression #perfectionist #ehlersdanlossyndromes #selfcare #mcas #healthcoach #movementismedicine #healthyliving #pots #inspiration #motivation #perfection #berealnotperfect #certifiedhealthcoach #IADMS #danceanxiety #mentalhealthfordancers #BendyBodies #BendyBodiesPodcast #jennifermilner #bodiesinmotion #balletwhisperer #hypermobilitymd  Learn more about your ad choices. Visit megaphone.fm/adchoices A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals.

    Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world. She defines perfectionism, and explores the duality of perfectionism and anxiety. Bonnie discusses the difference between positive and negative perfectionism, and warns of the danger of the “I should” syndrome.

    Bonnie shares techniques to get rid of negative thoughts and looks at performance STRIVINGS versus performance CONCERNS. She discusses the variables that differentiate between adaptive and maladaptive perfectionism, and how unhealthy competition actually decreases creativity.

    We look at how the pursuit of perfection can increase stress, which contributes to social anxiety, eating disorder, and suicidal thoughts. Bonnie offers tips for training and setting reasonable goals, and shares tools for parents to recognize stress and anxiety in their young artists. As Bonnie reminds everyone who strives for perfection, “It’s ok to say that’s good enough”.

    This episode is a must-listen for parents, artists, studio owners, and dance medicine professionals working with artists on a regular basis.

    Link to "Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms" article mentioned in the episode:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3365276/

    #anxiety #mentalhealth #selflove #bodypositivity #mentalhealthawareness #disorderedeating #perfectionism #depression #perfectionist #ehlersdanlossyndromes #selfcare #mcas #healthcoach #movementismedicine #healthyliving #pots #inspiration #motivation #perfection #berealnotperfect #certifiedhealthcoach #IADMS #danceanxiety #mentalhealthfordancers #BendyBodies #BendyBodiesPodcast #jennifermilner #bodiesinmotion #balletwhisperer #hypermobilitymd 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3702 no     30. Focusing on Fascia with Jill Miller https://share.transistor.fm/s/7527f46a Jill Miller’s life was upended with shocking news of end-stage osteoarthritis in her early forties. This led to her exploration of healthy ways of releasing and restoring her hypermobile body. Her study of the body led her to fascia and its importance in healthy motion. As she began applying fascial  work to her own body practice, she realized she wanted to share her own journey and what she’d learned in the process. So what exactly is fascia? Fascia is the structural web in the body that connects all the parts together: organs, muscles, tendons, and nerves are all surrounded by it. Fascia is richly innervated by sensory nerves, and plays an important role in proprioception and interoception. In this episode, Jill discusses why stretching feels so good, and suggests healthier ways to achieve that feeling. She touches on why tears in connective tissue, especially tendons and ligaments, are particularly challenging to repair, and thus why it’s important for bendy bodies to understand fascia.  Jill believes that understanding fascia gives us insight into more effective and efficient ways to alter perceived tightness and transform your embodied sense of the musculoskeletal system, and wants to help people define longevity strategies for healthy movement patterns. Finally, Jill speaks about her book “The Roll Model” and how she developed her own fascial mobilization system - and wants to share it with everyone! Whether you’re new to the fascial world  or wanting a deeper look, there’s something for everyone in this episode.  For the Anatomy Trains program,visit: https://tuneup.fit/6DVqIz Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 Mar 2021 08:00:00 -0000 30. Focusing on Fascia with Jill Miller full 30 Dr. Linda Bluestein <p>Jill Miller’s life was upended with shocking news of end-stage osteoarthritis in her early forties. This led to her exploration of healthy ways of releasing and restoring her hypermobile body. Her study of the body led her to fascia and its importance in healthy motion. As she began applying fascial  work to her own body practice, she realized she wanted to share her own journey and what she’d learned in the process.</p><p>So what exactly is fascia? Fascia is the structural web in the body that connects all the parts together: organs, muscles, tendons, and nerves are all surrounded by it. Fascia is richly innervated by sensory nerves, and plays an important role in proprioception and interoception.</p><p>In this episode, Jill discusses why stretching feels so good, and suggests healthier ways to achieve that feeling. She touches on why tears in connective tissue, especially tendons and ligaments, are particularly challenging to repair, and thus why it’s important for bendy bodies to understand fascia.</p><p><br> Jill believes that understanding fascia gives us insight into more effective and efficient ways to alter perceived tightness and transform your embodied sense of the musculoskeletal system, and wants to help people define longevity strategies for healthy movement patterns. Finally, Jill speaks about her book “The Roll Model” and how she developed her own fascial mobilization system - and wants to share it with everyone!<br> Whether you’re new to the fascial world  or wanting a deeper look, there’s something for everyone in this episode.<br> <br> For the Anatomy Trains program,visit: <a href="https://tuneup.fit/6DVqIz">https://tuneup.fit/6DVqIz</a></p> Jill Miller’s life was upended with shocking news of end-stage osteoarthritis in her early forties. This led to her exploration of healthy ways of releasing and restoring her hypermobile body. Her study of the body led her to fascia and its importance in healthy motion. As she began applying fascial  work to her own body practice, she realized she wanted to share her own journey and what she’d learned in the process. So what exactly is fascia? Fascia is the structural web in the body that connects all the parts together: organs, muscles, tendons, and nerves are all surrounded by it. Fascia is richly innervated by sensory nerves, and plays an important role in proprioception and interoception. In this episode, Jill discusses why stretching feels so good, and suggests healthier ways to achieve that feeling. She touches on why tears in connective tissue, especially tendons and ligaments, are particularly challenging to repair, and thus why it’s important for bendy bodies to understand fascia.  Jill believes that understanding fascia gives us insight into more effective and efficient ways to alter perceived tightness and transform your embodied sense of the musculoskeletal system, and wants to help people define longevity strategies for healthy movement patterns. Finally, Jill speaks about her book “The Roll Model” and how she developed her own fascial mobilization system - and wants to share it with everyone! Whether you’re new to the fascial world  or wanting a deeper look, there’s something for everyone in this episode.  For the Anatomy Trains program,visit: https://tuneup.fit/6DVqIz Learn more about your ad choices. Visit megaphone.fm/adchoices Jill Miller’s life was upended with shocking news of end-stage osteoarthritis in her early forties. This led to her exploration of healthy ways of releasing and restoring her hypermobile body. Her study of the body led her to fascia and its importance in healthy motion. As she began applying fascial  work to her own body practice, she realized she wanted to share her own journey and what she’d learned in the process.

    So what exactly is fascia? Fascia is the structural web in the body that connects all the parts together: organs, muscles, tendons, and nerves are all surrounded by it. Fascia is richly innervated by sensory nerves, and plays an important role in proprioception and interoception.

    In this episode, Jill discusses why stretching feels so good, and suggests healthier ways to achieve that feeling. She touches on why tears in connective tissue, especially tendons and ligaments, are particularly challenging to repair, and thus why it’s important for bendy bodies to understand fascia.


     Jill believes that understanding fascia gives us insight into more effective and efficient ways to alter perceived tightness and transform your embodied sense of the musculoskeletal system, and wants to help people define longevity strategies for healthy movement patterns. Finally, Jill speaks about her book “The Roll Model” and how she developed her own fascial mobilization system - and wants to share it with everyone!
     Whether you’re new to the fascial world  or wanting a deeper look, there’s something for everyone in this episode.
     
     For the Anatomy Trains program,visit: https://tuneup.fit/6DVqIz

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3622 no     29. Capturing Limitless Authenticity with Rachel Neville https://share.transistor.fm/s/90111b8d Photography encapsulates a moment in time like no other art form, and every artist walks into the studio wanting to capture their best selves. Some walk away ecstatic, while others leave unsatisfied or even injured. Dancers and photographers alike may feel pressure for photos that continue to push the body - and safety - to its limits, to capture the next “WOW!” shot. How do you get pictures that reflect your fullest, most amazing self, without pushing your body too far? How do you find a photographer who understands dancers and will make you feel safe? Bendy Bodies asked renowned dance photographer Rachel Neville these very questions. Rachel’s passion for dancers is evident as she discusses the ways she helps dancers get the perfect arabesque or action shot. But she also understands the tension a  photographer wrestles with, of wanting to push boundaries in art while at the same time protecting the dancer and creating a safe space. What is the photographer’s responsibility in making sure a dancer stays physically and emotionally safe? Rachel offers practical tips on developing a session organically, finding your “best self” and working into it. She reveals why she treats a shoot like a ballet class, shares the reason photography shoots take patience and practice from both the photographer and the dancer, and explains why the foundational elements of how the shoot is built are just as important as using the right muscles in a movement. Rachel discusses how she makes dancers feel confident and safe in a shoot, and find their emotional expression through their movements. She emphasizes the importance of letting dancers know that the photographer “has your back”, and opens up about what she wishes all dancers could know before a photo shoot, offering questions to ask photographers beforehand. And for all artists, Rachel asks the question: How do we find our authentic self, and truly show what we have to offer? If you’re a photographer, artist, or simply a fan, you’ll love the wisdom in this episode.  Link is in bio, or listen on your favorite streaming platform! #rachelneville #rachelnevillestudios #dancephotography #dance #bendybodies #bendybodiespodcast #hypermobility #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 Mar 2021 09:00:00 -0000 29. Capturing Limitless Authenticity with Rachel Neville full 29 Dr. Linda Bluestein <p>Photography encapsulates a moment in time like no other art form, and every artist walks into the studio wanting to capture their best selves. Some walk away ecstatic, while others leave unsatisfied or even injured. Dancers and photographers alike may feel pressure for photos that continue to push the body - and safety - to its limits, to capture the next “WOW!” shot.</p><p>How do you get pictures that reflect your fullest, most amazing self, without pushing your body too far? How do you find a photographer who understands dancers and will make you feel safe?</p><p>Bendy Bodies asked renowned dance photographer Rachel Neville these very questions.</p><p>Rachel’s passion for dancers is evident as she discusses the ways she helps dancers get the perfect arabesque or action shot. But she also understands the tension a  photographer wrestles with, of wanting to push boundaries in art while at the same time protecting the dancer and creating a safe space. What is the photographer’s responsibility in making sure a dancer stays physically and emotionally safe?</p><p>Rachel offers practical tips on developing a session organically, finding your “best self” and working into it. She reveals why she treats a shoot like a ballet class, shares the reason photography shoots take patience and practice from both the photographer and the dancer, and explains why the foundational elements of how the shoot is built are just as important as using the right muscles in a movement.</p><p>Rachel discusses how she makes dancers feel confident and safe in a shoot, and find their emotional expression through their movements. She emphasizes the importance of letting dancers know that the photographer “has your back”, and opens up about what she wishes all dancers could know before a photo shoot, offering questions to ask photographers beforehand.</p><p>And for all artists, Rachel asks the question:</p><p>How do we find our authentic self, and truly show what we have to offer?</p><p>If you’re a photographer, artist, or simply a fan, you’ll love the wisdom in this episode. </p><p>Link is in bio, or listen on your favorite streaming platform!</p><p>#rachelneville #rachelnevillestudios #dancephotography #dance #bendybodies #bendybodiespodcast #hypermobility #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion </p> Photography encapsulates a moment in time like no other art form, and every artist walks into the studio wanting to capture their best selves. Some walk away ecstatic, while others leave unsatisfied or even injured. Dancers and photographers alike may feel pressure for photos that continue to push the body - and safety - to its limits, to capture the next “WOW!” shot. How do you get pictures that reflect your fullest, most amazing self, without pushing your body too far? How do you find a photographer who understands dancers and will make you feel safe? Bendy Bodies asked renowned dance photographer Rachel Neville these very questions. Rachel’s passion for dancers is evident as she discusses the ways she helps dancers get the perfect arabesque or action shot. But she also understands the tension a  photographer wrestles with, of wanting to push boundaries in art while at the same time protecting the dancer and creating a safe space. What is the photographer’s responsibility in making sure a dancer stays physically and emotionally safe? Rachel offers practical tips on developing a session organically, finding your “best self” and working into it. She reveals why she treats a shoot like a ballet class, shares the reason photography shoots take patience and practice from both the photographer and the dancer, and explains why the foundational elements of how the shoot is built are just as important as using the right muscles in a movement. Rachel discusses how she makes dancers feel confident and safe in a shoot, and find their emotional expression through their movements. She emphasizes the importance of letting dancers know that the photographer “has your back”, and opens up about what she wishes all dancers could know before a photo shoot, offering questions to ask photographers beforehand. And for all artists, Rachel asks the question: How do we find our authentic self, and truly show what we have to offer? If you’re a photographer, artist, or simply a fan, you’ll love the wisdom in this episode.  Link is in bio, or listen on your favorite streaming platform! #rachelneville #rachelnevillestudios #dancephotography #dance #bendybodies #bendybodiespodcast #hypermobility #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion  Learn more about your ad choices. Visit megaphone.fm/adchoices Photography encapsulates a moment in time like no other art form, and every artist walks into the studio wanting to capture their best selves. Some walk away ecstatic, while others leave unsatisfied or even injured. Dancers and photographers alike may feel pressure for photos that continue to push the body - and safety - to its limits, to capture the next “WOW!” shot.

    How do you get pictures that reflect your fullest, most amazing self, without pushing your body too far? How do you find a photographer who understands dancers and will make you feel safe?

    Bendy Bodies asked renowned dance photographer Rachel Neville these very questions.

    Rachel’s passion for dancers is evident as she discusses the ways she helps dancers get the perfect arabesque or action shot. But she also understands the tension a  photographer wrestles with, of wanting to push boundaries in art while at the same time protecting the dancer and creating a safe space. What is the photographer’s responsibility in making sure a dancer stays physically and emotionally safe?

    Rachel offers practical tips on developing a session organically, finding your “best self” and working into it. She reveals why she treats a shoot like a ballet class, shares the reason photography shoots take patience and practice from both the photographer and the dancer, and explains why the foundational elements of how the shoot is built are just as important as using the right muscles in a movement.

    Rachel discusses how she makes dancers feel confident and safe in a shoot, and find their emotional expression through their movements. She emphasizes the importance of letting dancers know that the photographer “has your back”, and opens up about what she wishes all dancers could know before a photo shoot, offering questions to ask photographers beforehand.

    And for all artists, Rachel asks the question:

    How do we find our authentic self, and truly show what we have to offer?

    If you’re a photographer, artist, or simply a fan, you’ll love the wisdom in this episode. 

    Link is in bio, or listen on your favorite streaming platform!

    #rachelneville #rachelnevillestudios #dancephotography #dance #bendybodies #bendybodiespodcast #hypermobility #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3586 no     28. Caring for the Adolescent Artist https://share.transistor.fm/s/7c4cc788 What support does a hypermobile young artist need? Hint: a lot. Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more. They have unique needs and susceptibilities - so how do we help them? For this episode, several members of Team Bendy Bodies sit down to discuss a whole-body (and mind) approach to caring for adolescent artists. Specialist Linda Bluestein MD, trainer and ballet coach Jennifer Milner, nutritionist Kristin Koskinen, and EDS Wellness ambassador Aidan Leslie speak frankly about the requirements in working with adolescent bendy bodies, from their “superpowers” to their “kryptonite”. We discuss how parents can find help for their adolescent artist, and when to start putting together a “pit crew” to have on hand. Aidan shares her own story and offers suggestions on how to advocate for yourself as a teen artist looking to stay healthy in classes that don’t allow for modifications for hypermobility dancers. Kristin describes signs of disordered eating, and how to get help with fueling. Dr. Bluestein looks at symptoms of hypermobility that go beyond “flexibility” and discusses how “hypermobile” doesn’t always equal “flexible”. Jennifer shares her experiences training hypermobile dancers and mentoring them down that narrow path of working hard to be strong while knowing when to pull back to avoid injury. And finally, we discuss the importance of mental health in the adolescent artist and why it’s always better to address something when it’s “little” than wait until it’s “big”. As Kristin points out, “Emotional owies have a harder time healing.” Are you a pre-professional artist? This episode can give you guidance on how and when to ask for help as well as how to advocate for yourself. If you’re a parent, teacher, coach, or mentor, this is a must-listen as we discuss how it really takes a village to raise a hypermobile artist. #traininghypermobiledancers #hypermobileathletes #mentalhealthfordancers #disorderedeating #mentalhealthfordancers #hypermobility #dancerlife #hypermobiledancer #hypermobileballet #hyperextensiondance #BendyBodies #BendyBodiespodcast #TeamBendyBodies #HypermobilityMD #LindaBluesteinMD #JenniferMilner #BodiesInMotion #balletwhisperer #KristinKoskinenRDN #eatwellpros #atypicalAidan  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 25 Feb 2021 09:00:00 -0000 28. Caring for the Adolescent Artist full 28 Dr. Linda Bluestein <p>What support does a hypermobile young artist need?</p><p>Hint: a lot.</p><p>Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more. They have unique needs and susceptibilities - so how do we help them?</p><p>For this episode, several members of Team Bendy Bodies sit down to discuss a whole-body (and mind) approach to caring for adolescent artists. Specialist Linda Bluestein MD, trainer and ballet coach Jennifer Milner, nutritionist Kristin Koskinen, and EDS Wellness ambassador Aidan Leslie speak frankly about the requirements in working with adolescent bendy bodies, from their “superpowers” to their “kryptonite”.</p><p>We discuss how parents can find help for their adolescent artist, and when to start putting together a “pit crew” to have on hand. Aidan shares her own story and offers suggestions on how to advocate for yourself as a teen artist looking to stay healthy in classes that don’t allow for modifications for hypermobility dancers. Kristin describes signs of disordered eating, and how to get help with fueling. Dr. Bluestein looks at symptoms of hypermobility that go beyond “flexibility” and discusses how “hypermobile” doesn’t always equal “flexible”. Jennifer shares her experiences training hypermobile dancers and mentoring them down that narrow path of working hard to be strong while knowing when to pull back to avoid injury.</p><p>And finally, we discuss the importance of mental health in the adolescent artist and why it’s always better to address something when it’s “little” than wait until it’s “big”. As Kristin points out, “Emotional owies have a harder time healing.”</p><p>Are you a pre-professional artist? This episode can give you guidance on how and when to ask for help as well as how to advocate for yourself. If you’re a parent, teacher, coach, or mentor, this is a must-listen as we discuss how it really takes a village to raise a hypermobile artist.</p><p>#traininghypermobiledancers #hypermobileathletes #mentalhealthfordancers #disorderedeating #mentalhealthfordancers #hypermobility #dancerlife #hypermobiledancer #hypermobileballet #hyperextensiondance #BendyBodies #BendyBodiespodcast #TeamBendyBodies #HypermobilityMD #LindaBluesteinMD #JenniferMilner #BodiesInMotion #balletwhisperer #KristinKoskinenRDN #eatwellpros #atypicalAidan </p> What support does a hypermobile young artist need? Hint: a lot. Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more. They have unique needs and susceptibilities - so how do we help them? For this episode, several members of Team Bendy Bodies sit down to discuss a whole-body (and mind) approach to caring for adolescent artists. Specialist Linda Bluestein MD, trainer and ballet coach Jennifer Milner, nutritionist Kristin Koskinen, and EDS Wellness ambassador Aidan Leslie speak frankly about the requirements in working with adolescent bendy bodies, from their “superpowers” to their “kryptonite”. We discuss how parents can find help for their adolescent artist, and when to start putting together a “pit crew” to have on hand. Aidan shares her own story and offers suggestions on how to advocate for yourself as a teen artist looking to stay healthy in classes that don’t allow for modifications for hypermobility dancers. Kristin describes signs of disordered eating, and how to get help with fueling. Dr. Bluestein looks at symptoms of hypermobility that go beyond “flexibility” and discusses how “hypermobile” doesn’t always equal “flexible”. Jennifer shares her experiences training hypermobile dancers and mentoring them down that narrow path of working hard to be strong while knowing when to pull back to avoid injury. And finally, we discuss the importance of mental health in the adolescent artist and why it’s always better to address something when it’s “little” than wait until it’s “big”. As Kristin points out, “Emotional owies have a harder time healing.” Are you a pre-professional artist? This episode can give you guidance on how and when to ask for help as well as how to advocate for yourself. If you’re a parent, teacher, coach, or mentor, this is a must-listen as we discuss how it really takes a village to raise a hypermobile artist. #traininghypermobiledancers #hypermobileathletes #mentalhealthfordancers #disorderedeating #mentalhealthfordancers #hypermobility #dancerlife #hypermobiledancer #hypermobileballet #hyperextensiondance #BendyBodies #BendyBodiespodcast #TeamBendyBodies #HypermobilityMD #LindaBluesteinMD #JenniferMilner #BodiesInMotion #balletwhisperer #KristinKoskinenRDN #eatwellpros #atypicalAidan  Learn more about your ad choices. Visit megaphone.fm/adchoices What support does a hypermobile young artist need?

    Hint: a lot.

    Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more. They have unique needs and susceptibilities - so how do we help them?

    For this episode, several members of Team Bendy Bodies sit down to discuss a whole-body (and mind) approach to caring for adolescent artists. Specialist Linda Bluestein MD, trainer and ballet coach Jennifer Milner, nutritionist Kristin Koskinen, and EDS Wellness ambassador Aidan Leslie speak frankly about the requirements in working with adolescent bendy bodies, from their “superpowers” to their “kryptonite”.

    We discuss how parents can find help for their adolescent artist, and when to start putting together a “pit crew” to have on hand. Aidan shares her own story and offers suggestions on how to advocate for yourself as a teen artist looking to stay healthy in classes that don’t allow for modifications for hypermobility dancers. Kristin describes signs of disordered eating, and how to get help with fueling. Dr. Bluestein looks at symptoms of hypermobility that go beyond “flexibility” and discusses how “hypermobile” doesn’t always equal “flexible”. Jennifer shares her experiences training hypermobile dancers and mentoring them down that narrow path of working hard to be strong while knowing when to pull back to avoid injury.

    And finally, we discuss the importance of mental health in the adolescent artist and why it’s always better to address something when it’s “little” than wait until it’s “big”. As Kristin points out, “Emotional owies have a harder time healing.”

    Are you a pre-professional artist? This episode can give you guidance on how and when to ask for help as well as how to advocate for yourself. If you’re a parent, teacher, coach, or mentor, this is a must-listen as we discuss how it really takes a village to raise a hypermobile artist.

    #traininghypermobiledancers #hypermobileathletes #mentalhealthfordancers #disorderedeating #mentalhealthfordancers #hypermobility #dancerlife #hypermobiledancer #hypermobileballet #hyperextensiondance #BendyBodies #BendyBodiespodcast #TeamBendyBodies #HypermobilityMD #LindaBluesteinMD #JenniferMilner #BodiesInMotion #balletwhisperer #KristinKoskinenRDN #eatwellpros #atypicalAidan 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2955 no     27. Supporting the Pelvic Floor with Jeanice Mitchell, PT https://share.transistor.fm/s/91141588 What the heck is a pelvic floor and why should you care? The pelvic floor is a collection of muscle and connective tissue forming a hammock at the bottom of your pelvis. Hypermobile people should be especially aware of their pelvic floor, as connective tissue disorders can cause ligaments and tendons to stretch and weaken, creating problems in this crucial area of the body. Jeanice Mitchell, a pelvic floor physical therapist and worldwide educator on the topic, joins Bendy Bodies to share her wisdom on common pelvic floor issues with hypermobility. She takes us through ways to recognize pelvic floor issues and warning signs of pelvic floor dysfunction. She also touches on pelvic organ prolapse and why this is relevant in hypermobile folks. Jeanice discusses when someone might seek out a pelvic floor PT, how hormones can affect pelvic floor tissue, and how pelvic floor health is important for all ages, and for men as well as women. We touch on common dysfunctions in the hypermobile population such as constipation, pelvic pain, and sexual dysfunction, as well as dysfunction of the pupic symphysis and sacroiliac joints. This episode is packed with tips for improving your own pelvic floor health, and Jeanice’s passion and enthusiasm for pelvic floor health shines throughout the interview. As she said, Jeanice is “happy to connect people with hope and help.” For more information about Jeanice follow her on Instagram: https://www.instagram.com/mypelvicfloormuscles/ For multi-lingual information: https://www.instagram.com/mypfm/ Healthcare professionals, follow her here: https://www.instagram.com/mypfm.ambassadors/ Check out Jeanice's website: https://www.mypfm.com/ #mypfm #pelvicfloorPT #pelvicfloorsolutions #mypelvicfloormuscles #JeaniceMitchell #JenniferMilner #balletwhisperer #BodiesinMotion #HypermobilityMD #LindaBluesteinMD #HypermobilityDance #HypermobilityBallet #HypermobileDancers #Hypermobility #BendyBodies #BendyBodiesPodcast #HypermobilitySpectrumDisorders #HSD #EhlersDanlosSyndromes #EDS #zebrastrong  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 11 Feb 2021 09:00:00 -0000 27. Supporting the Pelvic Floor with Jeanice Mitchell, PT full 27 Dr. Linda Bluestein <p>What the heck is a pelvic floor and why should you care?</p><p>The pelvic floor is a collection of muscle and connective tissue forming a hammock at the bottom of your pelvis. Hypermobile people should be especially aware of their pelvic floor, as connective tissue disorders can cause ligaments and tendons to stretch and weaken, creating problems in this crucial area of the body.</p><p>Jeanice Mitchell, a pelvic floor physical therapist and worldwide educator on the topic, joins Bendy Bodies to share her wisdom on common pelvic floor issues with hypermobility. She takes us through ways to recognize pelvic floor issues and warning signs of pelvic floor dysfunction. She also touches on pelvic organ prolapse and why this is relevant in hypermobile folks.</p><p>Jeanice discusses when someone might seek out a pelvic floor PT, how hormones can affect pelvic floor tissue, and how pelvic floor health is important for all ages, and for men as well as women. We touch on common dysfunctions in the hypermobile population such as constipation, pelvic pain, and sexual dysfunction, as well as dysfunction of the pupic symphysis and sacroiliac joints.</p><p>This episode is packed with tips for improving your own pelvic floor health, and Jeanice’s passion and enthusiasm for pelvic floor health shines throughout the interview. As she said, Jeanice is “happy to connect people with hope and help.”</p><p>For more information about Jeanice follow her on Instagram:</p><p><a href="https://www.instagram.com/mypelvicfloormuscles/">https://www.instagram.com/mypelvicfloormuscles/</a></p><p>For multi-lingual information:</p><p><a href="https://www.instagram.com/mypfm/">https://www.instagram.com/mypfm/</a></p><p>Healthcare professionals, follow her here:</p><p><a href="https://www.instagram.com/mypfm.ambassadors/">https://www.instagram.com/mypfm.ambassadors/</a></p><p>Check out Jeanice's website:</p><p><a href="https://www.mypfm.com/">https://www.mypfm.com/</a></p><p>#mypfm #pelvicfloorPT #pelvicfloorsolutions #mypelvicfloormuscles #JeaniceMitchell #JenniferMilner #balletwhisperer #BodiesinMotion #HypermobilityMD #LindaBluesteinMD #HypermobilityDance #HypermobilityBallet #HypermobileDancers #Hypermobility #BendyBodies #BendyBodiesPodcast #HypermobilitySpectrumDisorders #HSD #EhlersDanlosSyndromes #EDS #zebrastrong </p> What the heck is a pelvic floor and why should you care? The pelvic floor is a collection of muscle and connective tissue forming a hammock at the bottom of your pelvis. Hypermobile people should be especially aware of their pelvic floor, as connective tissue disorders can cause ligaments and tendons to stretch and weaken, creating problems in this crucial area of the body. Jeanice Mitchell, a pelvic floor physical therapist and worldwide educator on the topic, joins Bendy Bodies to share her wisdom on common pelvic floor issues with hypermobility. She takes us through ways to recognize pelvic floor issues and warning signs of pelvic floor dysfunction. She also touches on pelvic organ prolapse and why this is relevant in hypermobile folks. Jeanice discusses when someone might seek out a pelvic floor PT, how hormones can affect pelvic floor tissue, and how pelvic floor health is important for all ages, and for men as well as women. We touch on common dysfunctions in the hypermobile population such as constipation, pelvic pain, and sexual dysfunction, as well as dysfunction of the pupic symphysis and sacroiliac joints. This episode is packed with tips for improving your own pelvic floor health, and Jeanice’s passion and enthusiasm for pelvic floor health shines throughout the interview. As she said, Jeanice is “happy to connect people with hope and help.” For more information about Jeanice follow her on Instagram: https://www.instagram.com/mypelvicfloormuscles/ For multi-lingual information: https://www.instagram.com/mypfm/ Healthcare professionals, follow her here: https://www.instagram.com/mypfm.ambassadors/ Check out Jeanice's website: https://www.mypfm.com/ #mypfm #pelvicfloorPT #pelvicfloorsolutions #mypelvicfloormuscles #JeaniceMitchell #JenniferMilner #balletwhisperer #BodiesinMotion #HypermobilityMD #LindaBluesteinMD #HypermobilityDance #HypermobilityBallet #HypermobileDancers #Hypermobility #BendyBodies #BendyBodiesPodcast #HypermobilitySpectrumDisorders #HSD #EhlersDanlosSyndromes #EDS #zebrastrong  Learn more about your ad choices. Visit megaphone.fm/adchoices What the heck is a pelvic floor and why should you care?

    The pelvic floor is a collection of muscle and connective tissue forming a hammock at the bottom of your pelvis. Hypermobile people should be especially aware of their pelvic floor, as connective tissue disorders can cause ligaments and tendons to stretch and weaken, creating problems in this crucial area of the body.

    Jeanice Mitchell, a pelvic floor physical therapist and worldwide educator on the topic, joins Bendy Bodies to share her wisdom on common pelvic floor issues with hypermobility. She takes us through ways to recognize pelvic floor issues and warning signs of pelvic floor dysfunction. She also touches on pelvic organ prolapse and why this is relevant in hypermobile folks.

    Jeanice discusses when someone might seek out a pelvic floor PT, how hormones can affect pelvic floor tissue, and how pelvic floor health is important for all ages, and for men as well as women. We touch on common dysfunctions in the hypermobile population such as constipation, pelvic pain, and sexual dysfunction, as well as dysfunction of the pupic symphysis and sacroiliac joints.

    This episode is packed with tips for improving your own pelvic floor health, and Jeanice’s passion and enthusiasm for pelvic floor health shines throughout the interview. As she said, Jeanice is “happy to connect people with hope and help.”

    For more information about Jeanice follow her on Instagram:

    https://www.instagram.com/mypelvicfloormuscles/

    For multi-lingual information:

    https://www.instagram.com/mypfm/

    Healthcare professionals, follow her here:

    https://www.instagram.com/mypfm.ambassadors/

    Check out Jeanice's website:

    https://www.mypfm.com/

    #mypfm #pelvicfloorPT #pelvicfloorsolutions #mypelvicfloormuscles #JeaniceMitchell #JenniferMilner #balletwhisperer #BodiesinMotion #HypermobilityMD #LindaBluesteinMD #HypermobilityDance #HypermobilityBallet #HypermobileDancers #Hypermobility #BendyBodies #BendyBodiesPodcast #HypermobilitySpectrumDisorders #HSD #EhlersDanlosSyndromes #EDS #zebrastrong 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3770 no     26. Balancing Seasonal Fueling Patterns with Kristin Koskinen, RDN https://share.transistor.fm/s/64a9833f Do you love a fresh start? Have you ever made a new year's resolution and then dreaded it?  It’s common for people to look at eating habits, make bold, sweeping commitments, and vow to be perfect this month/year/lifetime. But that’s not realistic, or healthy - physically or emotionally. And since people with hypermobility disorders are statistically more likely to display obsessive behaviors like disordered eating, it's something we need to talk about.  Kristin Koskinen, RDN is back with Bendy Bodies to talk about this potential minefield of a season.  She reminds us that self-improvement is different from self-abuse, and that “being good” does NOT equal “restrictive”. Kristin points out that fear can be a significant driver and that each person’s fear, guilt, or insecurity must be acknowledged. She encourages people to look at the “why” behind wanting to make behavior changes and promotes moving forward with small baby steps.  Kristin discusses how extrinsic devices aren’t necessarily helpful or accurate, how labels might box us in, and reminds us of the importance of not trying to “undo” what we’ve already done, but to simply try to move forward.  This episode is for anyone struggling physically or emotionally with food patterns, or even for the healthy dancer looking to be more mindful of her nourishment.  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 28 Jan 2021 09:00:27 -0000 26. Balancing Seasonal Fueling Patterns with Kristin Koskinen, RDN full 26 Dr. Linda Bluestein <p>Do you love a fresh start? Have you ever made a new year's resolution and then dreaded it? </p><p>It’s common for people to look at eating habits, make bold, sweeping commitments, and vow to be perfect this month/year/lifetime. But that’s not realistic, or healthy - physically or emotionally. And since people with hypermobility disorders are statistically more likely to display obsessive behaviors like disordered eating, it's something we need to talk about. </p><p>Kristin Koskinen, RDN is back with Bendy Bodies to talk about this potential minefield of a season. </p><p>She reminds us that self-improvement is different from self-abuse, and that “being good” does NOT equal “restrictive”. Kristin points out that fear can be a significant driver and that each person’s fear, guilt, or insecurity must be acknowledged. She encourages people to look at the “why” behind wanting to make behavior changes and promotes moving forward with small baby steps. </p><p>Kristin discusses how extrinsic devices aren’t necessarily helpful or accurate, how labels might box us in, and reminds us of the importance of not trying to “undo” what we’ve already done, but to simply try to move forward. </p><p>This episode is for anyone struggling physically or emotionally with food patterns, or even for the healthy dancer looking to be more mindful of her nourishment. </p> Do you love a fresh start? Have you ever made a new year's resolution and then dreaded it?  It’s common for people to look at eating habits, make bold, sweeping commitments, and vow to be perfect this month/year/lifetime. But that’s not realistic, or healthy - physically or emotionally. And since people with hypermobility disorders are statistically more likely to display obsessive behaviors like disordered eating, it's something we need to talk about.  Kristin Koskinen, RDN is back with Bendy Bodies to talk about this potential minefield of a season.  She reminds us that self-improvement is different from self-abuse, and that “being good” does NOT equal “restrictive”. Kristin points out that fear can be a significant driver and that each person’s fear, guilt, or insecurity must be acknowledged. She encourages people to look at the “why” behind wanting to make behavior changes and promotes moving forward with small baby steps.  Kristin discusses how extrinsic devices aren’t necessarily helpful or accurate, how labels might box us in, and reminds us of the importance of not trying to “undo” what we’ve already done, but to simply try to move forward.  This episode is for anyone struggling physically or emotionally with food patterns, or even for the healthy dancer looking to be more mindful of her nourishment.  Learn more about your ad choices. Visit megaphone.fm/adchoices Do you love a fresh start? Have you ever made a new year's resolution and then dreaded it? 

    It’s common for people to look at eating habits, make bold, sweeping commitments, and vow to be perfect this month/year/lifetime. But that’s not realistic, or healthy - physically or emotionally. And since people with hypermobility disorders are statistically more likely to display obsessive behaviors like disordered eating, it's something we need to talk about. 

    Kristin Koskinen, RDN is back with Bendy Bodies to talk about this potential minefield of a season. 

    She reminds us that self-improvement is different from self-abuse, and that “being good” does NOT equal “restrictive”. Kristin points out that fear can be a significant driver and that each person’s fear, guilt, or insecurity must be acknowledged. She encourages people to look at the “why” behind wanting to make behavior changes and promotes moving forward with small baby steps. 

    Kristin discusses how extrinsic devices aren’t necessarily helpful or accurate, how labels might box us in, and reminds us of the importance of not trying to “undo” what we’ve already done, but to simply try to move forward. 

    This episode is for anyone struggling physically or emotionally with food patterns, or even for the healthy dancer looking to be more mindful of her nourishment. 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3237 no     25. Addressing Pain in Hypermobility Disorders with Linda Bluestein, M.D. https://share.transistor.fm/s/874a5405 Why are hypermobility disorders painful and what can be done about it? When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives. Addressing pain early in the process is vital for long-term health and well-being.  Bendy Bodies founder, Dr. Bluestein, takes the guest seat in this episode as she peels back the onion-like layers of the development of chronic pain and options for managing it. She discusses factors that influence how much pain a person experiences, and names some frequently missed contributors to chronic pain. Dr. Bluestein dispels some common myths about chronic pain, and explains why our thoughts and actions are important in how we perceive pain. She cautions that there’s often no one single solution to pain and shares her multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of her long-term care plan.  A perfect companion to Episode 24, with Beth Darnall, "Thriving with Chronic Pain", this episode is great for anyone suffering from chronic pain.  https://www.danceusa.org/informational-papers https://www.hypermobilitymd.com/ https://www.ehlers-danlos.com/ https://www.chronicpainpartners.com/ https://edswellness.org/ https://www.ehlers-danlos.org/ http://hypermobility.org/ https://tinyurl.com/bendybodiesyoutube https://tinyurl.com/bendybodiesapplepodcast https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 14 Jan 2021 09:00:09 -0000 25. Addressing Pain in Hypermobility Disorders with Linda Bluestein, M.D. full 25 Dr. Linda Bluestein <p>Why are hypermobility disorders painful and what can be done about it? When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives. Addressing pain early in the process is vital for long-term health and well-being. </p><p>Bendy Bodies founder, Dr. Bluestein, takes the guest seat in this episode as she peels back the onion-like layers of the development of chronic pain and options for managing it. She discusses factors that influence how much pain a person experiences, and names some frequently missed contributors to chronic pain. Dr. Bluestein dispels some common myths about chronic pain, and explains why our thoughts and actions are important in how we perceive pain. She cautions that there’s often no one single solution to pain and shares her multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of her long-term care plan. </p><p>A perfect companion to Episode 24, with Beth Darnall, "Thriving with Chronic Pain", this episode is great for anyone suffering from chronic pain. </p><p>https://www.danceusa.org/informational-papers https://www.hypermobilitymd.com/ https://www.ehlers-danlos.com/ https://www.chronicpainpartners.com/ https://edswellness.org/ https://www.ehlers-danlos.org/ http://hypermobility.org/ https://tinyurl.com/bendybodiesyoutube https://tinyurl.com/bendybodiesapplepodcast https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx </p> Why are hypermobility disorders painful and what can be done about it? When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives. Addressing pain early in the process is vital for long-term health and well-being.  Bendy Bodies founder, Dr. Bluestein, takes the guest seat in this episode as she peels back the onion-like layers of the development of chronic pain and options for managing it. She discusses factors that influence how much pain a person experiences, and names some frequently missed contributors to chronic pain. Dr. Bluestein dispels some common myths about chronic pain, and explains why our thoughts and actions are important in how we perceive pain. She cautions that there’s often no one single solution to pain and shares her multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of her long-term care plan.  A perfect companion to Episode 24, with Beth Darnall, "Thriving with Chronic Pain", this episode is great for anyone suffering from chronic pain.  https://www.danceusa.org/informational-papers https://www.hypermobilitymd.com/ https://www.ehlers-danlos.com/ https://www.chronicpainpartners.com/ https://edswellness.org/ https://www.ehlers-danlos.org/ http://hypermobility.org/ https://tinyurl.com/bendybodiesyoutube https://tinyurl.com/bendybodiesapplepodcast https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx  Learn more about your ad choices. Visit megaphone.fm/adchoices Why are hypermobility disorders painful and what can be done about it? When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives. Addressing pain early in the process is vital for long-term health and well-being. 

    Bendy Bodies founder, Dr. Bluestein, takes the guest seat in this episode as she peels back the onion-like layers of the development of chronic pain and options for managing it. She discusses factors that influence how much pain a person experiences, and names some frequently missed contributors to chronic pain. Dr. Bluestein dispels some common myths about chronic pain, and explains why our thoughts and actions are important in how we perceive pain. She cautions that there’s often no one single solution to pain and shares her multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of her long-term care plan. 

    A perfect companion to Episode 24, with Beth Darnall, "Thriving with Chronic Pain", this episode is great for anyone suffering from chronic pain. 

    https://www.danceusa.org/informational-papers https://www.hypermobilitymd.com/ https://www.ehlers-danlos.com/ https://www.chronicpainpartners.com/ https://edswellness.org/ https://www.ehlers-danlos.org/ http://hypermobility.org/ https://tinyurl.com/bendybodiesyoutube https://tinyurl.com/bendybodiesapplepodcast https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3562 no     24. Thriving with Chronic Pain with Beth Darnall, PhD https://share.transistor.fm/s/d6fe73b9 Living with hypermobility disorders often means learning to live with chronic pain, and as pain is a whole-person experience - physical, emotional, and mental - it stands to reason that pain can have a profound influence on every facet of our daily lives.  Joining us for this episode is Beth Darnall, a Stanford pain scientist, international speaker, evidence-based psychologist, and author. Beth encourages us to think about pain more broadly, explaining why a multi-disciplinary assessment is so necessary for diagnosing and treating pain. Beth talks about how sleep is a top predictor of pain levels for the next day, and how treatment for sleep disorders can help with chronic pain. She goes in-depth on the topic of treating chronic pain using behavioral treatments so people are empowered to help themselves, and lists some of the best ways people can improve chronic pain.  Beth gives suggestions on how to reduce pain-related distress, discusses the importance of dedicating time to practicing skills and strategies that help people live with chronic pain, and reminds us that it’s what we do in the day-to-day that makes the difference, more than what happens with sporadic office visits.  Check out this must-listen episode for anyone struggling to cope with chronic pain! https://bethdarnall.com/  Learn more about your ad choices. Visit megaphone.fm/adchoices Wed, 30 Dec 2020 09:00:24 -0000 24. Thriving with Chronic Pain with Beth Darnall, PhD full 24 Dr. Linda Bluestein <p>Living with hypermobility disorders often means learning to live with chronic pain, and as pain is a whole-person experience - physical, emotional, and mental - it stands to reason that pain can have a profound influence on every facet of our daily lives. </p><p>Joining us for this episode is Beth Darnall, a Stanford pain scientist, international speaker, evidence-based psychologist, and author. Beth encourages us to think about pain more broadly, explaining why a multi-disciplinary assessment is so necessary for diagnosing and treating pain. Beth talks about how sleep is a top predictor of pain levels for the next day, and how treatment for sleep disorders can help with chronic pain. She goes in-depth on the topic of treating chronic pain using behavioral treatments so people are empowered to help themselves, and lists some of the best ways people can improve chronic pain. </p><p>Beth gives suggestions on how to reduce pain-related distress, discusses the importance of dedicating time to practicing skills and strategies that help people live with chronic pain, and reminds us that it’s what we do in the day-to-day that makes the difference, more than what happens with sporadic office visits. </p><p>Check out this must-listen episode for anyone struggling to cope with chronic pain! https://bethdarnall.com/ </p> Living with hypermobility disorders often means learning to live with chronic pain, and as pain is a whole-person experience - physical, emotional, and mental - it stands to reason that pain can have a profound influence on every facet of our daily lives.  Joining us for this episode is Beth Darnall, a Stanford pain scientist, international speaker, evidence-based psychologist, and author. Beth encourages us to think about pain more broadly, explaining why a multi-disciplinary assessment is so necessary for diagnosing and treating pain. Beth talks about how sleep is a top predictor of pain levels for the next day, and how treatment for sleep disorders can help with chronic pain. She goes in-depth on the topic of treating chronic pain using behavioral treatments so people are empowered to help themselves, and lists some of the best ways people can improve chronic pain.  Beth gives suggestions on how to reduce pain-related distress, discusses the importance of dedicating time to practicing skills and strategies that help people live with chronic pain, and reminds us that it’s what we do in the day-to-day that makes the difference, more than what happens with sporadic office visits.  Check out this must-listen episode for anyone struggling to cope with chronic pain! https://bethdarnall.com/  Learn more about your ad choices. Visit megaphone.fm/adchoices Living with hypermobility disorders often means learning to live with chronic pain, and as pain is a whole-person experience - physical, emotional, and mental - it stands to reason that pain can have a profound influence on every facet of our daily lives. 

    Joining us for this episode is Beth Darnall, a Stanford pain scientist, international speaker, evidence-based psychologist, and author. Beth encourages us to think about pain more broadly, explaining why a multi-disciplinary assessment is so necessary for diagnosing and treating pain. Beth talks about how sleep is a top predictor of pain levels for the next day, and how treatment for sleep disorders can help with chronic pain. She goes in-depth on the topic of treating chronic pain using behavioral treatments so people are empowered to help themselves, and lists some of the best ways people can improve chronic pain. 

    Beth gives suggestions on how to reduce pain-related distress, discusses the importance of dedicating time to practicing skills and strategies that help people live with chronic pain, and reminds us that it’s what we do in the day-to-day that makes the difference, more than what happens with sporadic office visits. 

    Check out this must-listen episode for anyone struggling to cope with chronic pain! https://bethdarnall.com/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2091 no     23. Empowering Patients with Multisystemic Diseases with Jill Schofield, M.D. https://share.transistor.fm/s/f4922aa6 Dr. Jill Schofield, founder and director of the Center for Multisystem Disease, is back to discuss multisystemic diseases and what she wishes everyone knew about them. She offers insight into how to get better care (and what to avoid), the pros and cons of having more or less lenient diagnostic criteria for diseases such as hypermobile Ehlers-Danlos Syndrome (hEDS), and advice on what to do if you suspect you have MCAS.  Dr. Schofield explores possible reasons for the increased incidence of autoimmune disease, and gives guidance on finding the help you need in today’s online world. If you missed Dr. Schofield's first interview with us, please be sure to listen to our previous episode, "Investigating Autoimmune Disorders with Dr. Jill Schofield", for more great insight!  Visit www.BendyBodiesPodcast.com for links to all episodes.  Thank you so very much to Dr. Jill Schofield for being so generous with her time and expertise!  Visit the link below to more information about Dr. Schofield (with fabulous photos from MCAS retreats including one with Bendy Bodies founder, Dr. Linda Bluestein). https://www.centerformultisystemdisease.com/contents/about/about-dr-schofield Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 03 Dec 2020 09:00:15 -0000 23. Empowering Patients with Multisystemic Diseases with Jill Schofield, M.D. full 23 Dr. Linda Bluestein <p>Dr. Jill Schofield, founder and director of the Center for Multisystem Disease, is back to discuss multisystemic diseases and what she wishes everyone knew about them. She offers insight into how to get better care (and what to avoid), the pros and cons of having more or less lenient diagnostic criteria for diseases such as hypermobile Ehlers-Danlos Syndrome (hEDS), and advice on what to do if you suspect you have MCAS. </p><p>Dr. Schofield explores possible reasons for the increased incidence of autoimmune disease, and gives guidance on finding the help you need in today’s online world. If you missed Dr. Schofield's first interview with us, please be sure to listen to our previous episode, "Investigating Autoimmune Disorders with Dr. Jill Schofield", for more great insight! </p><p>Visit www.BendyBodiesPodcast.com for links to all episodes. </p><p>Thank you so very much to Dr. Jill Schofield for being so generous with her time and expertise! </p><p>Visit the link below to more information about Dr. Schofield (with fabulous photos from MCAS retreats including one with Bendy Bodies founder, Dr. Linda Bluestein). https://www.centerformultisystemdisease.com/contents/about/about-dr-schofield</p> Dr. Jill Schofield, founder and director of the Center for Multisystem Disease, is back to discuss multisystemic diseases and what she wishes everyone knew about them. She offers insight into how to get better care (and what to avoid), the pros and cons of having more or less lenient diagnostic criteria for diseases such as hypermobile Ehlers-Danlos Syndrome (hEDS), and advice on what to do if you suspect you have MCAS.  Dr. Schofield explores possible reasons for the increased incidence of autoimmune disease, and gives guidance on finding the help you need in today’s online world. If you missed Dr. Schofield's first interview with us, please be sure to listen to our previous episode, "Investigating Autoimmune Disorders with Dr. Jill Schofield", for more great insight!  Visit www.BendyBodiesPodcast.com for links to all episodes.  Thank you so very much to Dr. Jill Schofield for being so generous with her time and expertise!  Visit the link below to more information about Dr. Schofield (with fabulous photos from MCAS retreats including one with Bendy Bodies founder, Dr. Linda Bluestein). https://www.centerformultisystemdisease.com/contents/about/about-dr-schofield Learn more about your ad choices. Visit megaphone.fm/adchoices Dr. Jill Schofield, founder and director of the Center for Multisystem Disease, is back to discuss multisystemic diseases and what she wishes everyone knew about them. She offers insight into how to get better care (and what to avoid), the pros and cons of having more or less lenient diagnostic criteria for diseases such as hypermobile Ehlers-Danlos Syndrome (hEDS), and advice on what to do if you suspect you have MCAS. 

    Dr. Schofield explores possible reasons for the increased incidence of autoimmune disease, and gives guidance on finding the help you need in today’s online world. If you missed Dr. Schofield's first interview with us, please be sure to listen to our previous episode, "Investigating Autoimmune Disorders with Dr. Jill Schofield", for more great insight! 

    Visit www.BendyBodiesPodcast.com for links to all episodes. 

    Thank you so very much to Dr. Jill Schofield for being so generous with her time and expertise! 

    Visit the link below to more information about Dr. Schofield (with fabulous photos from MCAS retreats including one with Bendy Bodies founder, Dr. Linda Bluestein). https://www.centerformultisystemdisease.com/contents/about/about-dr-schofield

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2197 no     22. Managing Dysautonomia with Svetlana Blitshteyn, M.D. https://share.transistor.fm/s/9963e0a6 In this second interview with Dr. Svetlana Blitshteyn, board-certified neurologist and director of the Dysautonomia Clinic, we go beyond identifying common disorders such as POTS (Postural Orthostatic Tachycardia Syndrome), and take a look at how people with these conditions can improve their quality of life.  Dr. Blitshteyn talks about effective exercises for people with POTS, easy steps to boost sodium and fluid intake, and how important it is to address sleep disorders in this population. She discusses why people might need to be tested for comorbidities such as EDS (Ehlers-Danlos Syndromes) or autoimmune disorders, the difficulty in treating fatigue in this population, and how people can find help with their dysautonomia.  Dr. Blitshteyn also explains post-viral dysautonomia and why it’s important to understand in this time of COVID, and expresses her hopes for the future of dysautonomia treatment and research.  Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic Learn about Bendy Bodies: Website: https://www.hypermobilitymd.com/podcast Instagram: @bendy_bodies Facebook: https://www.facebook.com/BendyBodiesPodcast/  Learn about Dr. Linda Bluestein: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 19 Nov 2020 09:00:11 -0000 22. Managing Dysautonomia with Svetlana Blitshteyn, M.D. full 22 Dr. Linda Bluestein <p>In this second interview with Dr. Svetlana Blitshteyn, board-certified neurologist and director of the Dysautonomia Clinic, we go beyond identifying common disorders such as POTS (Postural Orthostatic Tachycardia Syndrome), and take a look at how people with these conditions can improve their quality of life. </p><p>Dr. Blitshteyn talks about effective exercises for people with POTS, easy steps to boost sodium and fluid intake, and how important it is to address sleep disorders in this population. She discusses why people might need to be tested for comorbidities such as EDS (Ehlers-Danlos Syndromes) or autoimmune disorders, the difficulty in treating fatigue in this population, and how people can find help with their dysautonomia. </p><p>Dr. Blitshteyn also explains post-viral dysautonomia and why it’s important to understand in this time of COVID, and expresses her hopes for the future of dysautonomia treatment and research. </p><p>Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic Learn about Bendy Bodies: Website: https://www.hypermobilitymd.com/podcast Instagram: @bendy_bodies Facebook: https://www.facebook.com/BendyBodiesPodcast/ </p><p>Learn about Dr. Linda Bluestein: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> In this second interview with Dr. Svetlana Blitshteyn, board-certified neurologist and director of the Dysautonomia Clinic, we go beyond identifying common disorders such as POTS (Postural Orthostatic Tachycardia Syndrome), and take a look at how people with these conditions can improve their quality of life.  Dr. Blitshteyn talks about effective exercises for people with POTS, easy steps to boost sodium and fluid intake, and how important it is to address sleep disorders in this population. She discusses why people might need to be tested for comorbidities such as EDS (Ehlers-Danlos Syndromes) or autoimmune disorders, the difficulty in treating fatigue in this population, and how people can find help with their dysautonomia.  Dr. Blitshteyn also explains post-viral dysautonomia and why it’s important to understand in this time of COVID, and expresses her hopes for the future of dysautonomia treatment and research.  Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic Learn about Bendy Bodies: Website: https://www.hypermobilitymd.com/podcast Instagram: @bendy_bodies Facebook: https://www.facebook.com/BendyBodiesPodcast/  Learn about Dr. Linda Bluestein: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices In this second interview with Dr. Svetlana Blitshteyn, board-certified neurologist and director of the Dysautonomia Clinic, we go beyond identifying common disorders such as POTS (Postural Orthostatic Tachycardia Syndrome), and take a look at how people with these conditions can improve their quality of life. 

    Dr. Blitshteyn talks about effective exercises for people with POTS, easy steps to boost sodium and fluid intake, and how important it is to address sleep disorders in this population. She discusses why people might need to be tested for comorbidities such as EDS (Ehlers-Danlos Syndromes) or autoimmune disorders, the difficulty in treating fatigue in this population, and how people can find help with their dysautonomia. 

    Dr. Blitshteyn also explains post-viral dysautonomia and why it’s important to understand in this time of COVID, and expresses her hopes for the future of dysautonomia treatment and research. 

    Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic Learn about Bendy Bodies: Website: https://www.hypermobilitymd.com/podcast Instagram: @bendy_bodies Facebook: https://www.facebook.com/BendyBodiesPodcast/ 

    Learn about Dr. Linda Bluestein: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3011 no     21. Demystifying Dysautonomia with Svetlana Blitshteyn, M.D. https://share.transistor.fm/s/6b20f146 Dysautonomia is an umbrella term used to describe disorders of the autonomic nervous system (which controls all the automatic functions of the body like blood pressure, heart rate, digestion, temperature regulation, etc.). Dr. Svetlana Blitshteyn, a board-certified neurologist and director of the Dysautonomia Clinic, joins us as we dig into these disorders and explore their defining features.  POTS (Postural Orthostatic Tachycardia Syndrome), small-fiber neuropathy, and neurocardiogenic syncope are frequent comorbidities with EDS (Ehlers-Danlos Syndromes), Marfan Syndrome, and other disorders of connective tissue. Dr. Blitshteyn discusses who is considered high-risk for POTS, explains neurocardiogenic syncope and small-fiber neuropathy, and talks about the difference between the three disorders. She explores common symptoms of POTS and outlines frequent comorbidities such as MCAS (Mast Cell Activation Syndrome), IBS (Irritable Bowel Syndrome), and EDS.  Finally, Dr. Blitshteyn answers the question - Is there a link between dysautonomia and autoimmune issues?  An in-depth exploration of dysautonomia and what that might entail for the hypermobile population, this episode is important for patients and healthcare professionals alike who are eager to learn about these complex disorders.  Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Nov 2020 09:00:24 -0000 21. Demystifying Dysautonomia with Svetlana Blitshteyn, M.D. full 21 Dr. Linda Bluestein <p>Dysautonomia is an umbrella term used to describe disorders of the autonomic nervous system (which controls all the automatic functions of the body like blood pressure, heart rate, digestion, temperature regulation, etc.). Dr. Svetlana Blitshteyn, a board-certified neurologist and director of the Dysautonomia Clinic, joins us as we dig into these disorders and explore their defining features. </p><p>POTS (Postural Orthostatic Tachycardia Syndrome), small-fiber neuropathy, and neurocardiogenic syncope are frequent comorbidities with EDS (Ehlers-Danlos Syndromes), Marfan Syndrome, and other disorders of connective tissue. Dr. Blitshteyn discusses who is considered high-risk for POTS, explains neurocardiogenic syncope and small-fiber neuropathy, and talks about the difference between the three disorders. She explores common symptoms of POTS and outlines frequent comorbidities such as MCAS (Mast Cell Activation Syndrome), IBS (Irritable Bowel Syndrome), and EDS. </p><p>Finally, Dr. Blitshteyn answers the question - Is there a link between dysautonomia and autoimmune issues? </p><p>An in-depth exploration of dysautonomia and what that might entail for the hypermobile population, this episode is important for patients and healthcare professionals alike who are eager to learn about these complex disorders. </p><p>Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Dysautonomia is an umbrella term used to describe disorders of the autonomic nervous system (which controls all the automatic functions of the body like blood pressure, heart rate, digestion, temperature regulation, etc.). Dr. Svetlana Blitshteyn, a board-certified neurologist and director of the Dysautonomia Clinic, joins us as we dig into these disorders and explore their defining features.  POTS (Postural Orthostatic Tachycardia Syndrome), small-fiber neuropathy, and neurocardiogenic syncope are frequent comorbidities with EDS (Ehlers-Danlos Syndromes), Marfan Syndrome, and other disorders of connective tissue. Dr. Blitshteyn discusses who is considered high-risk for POTS, explains neurocardiogenic syncope and small-fiber neuropathy, and talks about the difference between the three disorders. She explores common symptoms of POTS and outlines frequent comorbidities such as MCAS (Mast Cell Activation Syndrome), IBS (Irritable Bowel Syndrome), and EDS.  Finally, Dr. Blitshteyn answers the question - Is there a link between dysautonomia and autoimmune issues?  An in-depth exploration of dysautonomia and what that might entail for the hypermobile population, this episode is important for patients and healthcare professionals alike who are eager to learn about these complex disorders.  Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Dysautonomia is an umbrella term used to describe disorders of the autonomic nervous system (which controls all the automatic functions of the body like blood pressure, heart rate, digestion, temperature regulation, etc.). Dr. Svetlana Blitshteyn, a board-certified neurologist and director of the Dysautonomia Clinic, joins us as we dig into these disorders and explore their defining features. 

    POTS (Postural Orthostatic Tachycardia Syndrome), small-fiber neuropathy, and neurocardiogenic syncope are frequent comorbidities with EDS (Ehlers-Danlos Syndromes), Marfan Syndrome, and other disorders of connective tissue. Dr. Blitshteyn discusses who is considered high-risk for POTS, explains neurocardiogenic syncope and small-fiber neuropathy, and talks about the difference between the three disorders. She explores common symptoms of POTS and outlines frequent comorbidities such as MCAS (Mast Cell Activation Syndrome), IBS (Irritable Bowel Syndrome), and EDS. 

    Finally, Dr. Blitshteyn answers the question - Is there a link between dysautonomia and autoimmune issues? 

    An in-depth exploration of dysautonomia and what that might entail for the hypermobile population, this episode is important for patients and healthcare professionals alike who are eager to learn about these complex disorders. 

    Learn about Dr. Blitshteyn, https://www.dysautonomiaclinic.com/ Facebook: https://www.facebook.com/DysautonomiaClinic/ Twitter: https://twitter.com/dysclinic 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2662 no     20. Building Better Bone Strength with Rebekah Rotstein https://share.transistor.fm/s/6c80bbce Osteoporosis is a disease that affects tens of millions of people each year. Dancers and other high-level athletes are often at higher risk due to low body weight, increased time indoors, and suboptimal nutritional support.  Rebekah Rotstein is a former pre-professional dancer who received a shocking diagnosis of osteoporosis at age 28, and then spent the next several years looking for ways to optimize her bone strength through exercise and nutrition. Rebekah is a movement educator and certified Pilates instructor who has presented at conferences and symposia around the world on the topics of bone health, anatomy and movement, and is the founder of Buff Bones®, a research-supported system combining education and focused exercises aimed at the optimization of bone and joint health.  Rebekah shares the knowledge she’s gained in her extensive research on osteoporosis and stresses that a diagnosis isn’t the end of the world but rather a test for advocating for oneself. She discusses why bone density is especially important for those with hypermobility disorders. She theorizes on why dancers should be informed about osteoporosis, and emphasizes the importance of finding a good nutritionist, trainer, and more.  Finally, Rebekah shares how her diagnosis planted a desire to help people with osteoporosis, and to help future generations prevent it.  Links: https://buff-bones.com/ https://www.instagram.com/gotbuffbones/?hl=en https://www.instagram.com/rebekahrotstein/?hl=en Rebekah@buff-bones.com Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 22 Oct 2020 08:00:26 -0000 20. Building Better Bone Strength with Rebekah Rotstein full 20 Dr. Linda Bluestein <p>Osteoporosis is a disease that affects tens of millions of people each year. Dancers and other high-level athletes are often at higher risk due to low body weight, increased time indoors, and suboptimal nutritional support. </p><p>Rebekah Rotstein is a former pre-professional dancer who received a shocking diagnosis of osteoporosis at age 28, and then spent the next several years looking for ways to optimize her bone strength through exercise and nutrition. Rebekah is a movement educator and certified Pilates instructor who has presented at conferences and symposia around the world on the topics of bone health, anatomy and movement, and is the founder of Buff Bones®, a research-supported system combining education and focused exercises aimed at the optimization of bone and joint health. </p><p>Rebekah shares the knowledge she’s gained in her extensive research on osteoporosis and stresses that a diagnosis isn’t the end of the world but rather a test for advocating for oneself. She discusses why bone density is especially important for those with hypermobility disorders. She theorizes on why dancers should be informed about osteoporosis, and emphasizes the importance of finding a good nutritionist, trainer, and more. </p><p>Finally, Rebekah shares how her diagnosis planted a desire to help people with osteoporosis, and to help future generations prevent it. </p><p>Links: https://buff-bones.com/ https://www.instagram.com/gotbuffbones/?hl=en https://www.instagram.com/rebekahrotstein/?hl=en Rebekah@buff-bones.com</p> Osteoporosis is a disease that affects tens of millions of people each year. Dancers and other high-level athletes are often at higher risk due to low body weight, increased time indoors, and suboptimal nutritional support.  Rebekah Rotstein is a former pre-professional dancer who received a shocking diagnosis of osteoporosis at age 28, and then spent the next several years looking for ways to optimize her bone strength through exercise and nutrition. Rebekah is a movement educator and certified Pilates instructor who has presented at conferences and symposia around the world on the topics of bone health, anatomy and movement, and is the founder of Buff Bones®, a research-supported system combining education and focused exercises aimed at the optimization of bone and joint health.  Rebekah shares the knowledge she’s gained in her extensive research on osteoporosis and stresses that a diagnosis isn’t the end of the world but rather a test for advocating for oneself. She discusses why bone density is especially important for those with hypermobility disorders. She theorizes on why dancers should be informed about osteoporosis, and emphasizes the importance of finding a good nutritionist, trainer, and more.  Finally, Rebekah shares how her diagnosis planted a desire to help people with osteoporosis, and to help future generations prevent it.  Links: https://buff-bones.com/ https://www.instagram.com/gotbuffbones/?hl=en https://www.instagram.com/rebekahrotstein/?hl=en Rebekah@buff-bones.com Learn more about your ad choices. Visit megaphone.fm/adchoices Osteoporosis is a disease that affects tens of millions of people each year. Dancers and other high-level athletes are often at higher risk due to low body weight, increased time indoors, and suboptimal nutritional support. 

    Rebekah Rotstein is a former pre-professional dancer who received a shocking diagnosis of osteoporosis at age 28, and then spent the next several years looking for ways to optimize her bone strength through exercise and nutrition. Rebekah is a movement educator and certified Pilates instructor who has presented at conferences and symposia around the world on the topics of bone health, anatomy and movement, and is the founder of Buff Bones®, a research-supported system combining education and focused exercises aimed at the optimization of bone and joint health. 

    Rebekah shares the knowledge she’s gained in her extensive research on osteoporosis and stresses that a diagnosis isn’t the end of the world but rather a test for advocating for oneself. She discusses why bone density is especially important for those with hypermobility disorders. She theorizes on why dancers should be informed about osteoporosis, and emphasizes the importance of finding a good nutritionist, trainer, and more. 

    Finally, Rebekah shares how her diagnosis planted a desire to help people with osteoporosis, and to help future generations prevent it. 

    Links: https://buff-bones.com/ https://www.instagram.com/gotbuffbones/?hl=en https://www.instagram.com/rebekahrotstein/?hl=en Rebekah@buff-bones.com

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     5204 no     19. Living fully with a Hypermobility Disorder with Linda Bluestein, M.D. https://share.transistor.fm/s/e8f749dc In this second interview with Bendy Bodies host Dr. Linda Bluestein, she explores the realities of living with a connective tissue disorder. As a renowned hypermobility expert, Dr. Bluestein discusses issues that can exist alongside Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndromes (EDS), such as autoimmune issues, dysautonomia, and more. She shares her acronym for maintaining a high quality of life, discusses the small changes that can add up to meaningful improvement in quality of life, and reveals her hopes for the future of HSD/EDS research and treatment.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 08 Oct 2020 08:00:17 -0000 19. Living fully with a Hypermobility Disorder with Linda Bluestein, M.D. full 19 Dr. Linda Bluestein <p>In this second interview with Bendy Bodies host Dr. Linda Bluestein, she explores the realities of living with a connective tissue disorder. As a renowned hypermobility expert, Dr. Bluestein discusses issues that can exist alongside Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndromes (EDS), such as autoimmune issues, dysautonomia, and more. She shares her acronym for maintaining a high quality of life, discusses the small changes that can add up to meaningful improvement in quality of life, and reveals her hopes for the future of HSD/EDS research and treatment. </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> In this second interview with Bendy Bodies host Dr. Linda Bluestein, she explores the realities of living with a connective tissue disorder. As a renowned hypermobility expert, Dr. Bluestein discusses issues that can exist alongside Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndromes (EDS), such as autoimmune issues, dysautonomia, and more. She shares her acronym for maintaining a high quality of life, discusses the small changes that can add up to meaningful improvement in quality of life, and reveals her hopes for the future of HSD/EDS research and treatment.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices In this second interview with Bendy Bodies host Dr. Linda Bluestein, she explores the realities of living with a connective tissue disorder. As a renowned hypermobility expert, Dr. Bluestein discusses issues that can exist alongside Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndromes (EDS), such as autoimmune issues, dysautonomia, and more. She shares her acronym for maintaining a high quality of life, discusses the small changes that can add up to meaningful improvement in quality of life, and reveals her hopes for the future of HSD/EDS research and treatment. 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3033 no     18. Molding Healthy, Successful Artists with Mariaelena Ruiz https://share.transistor.fm/s/2f6ec41a How do you prepare a hypermobile student for the rigors of the professional dance world, finding that balance of exploring their gifts while moving cautiously to avoid injury? In this episode, we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals. She discusses her experiences training high-level dancers who wrestle with their hypermobility.  Mariaelena brings her decades as a professional ballerina with a wonky body to her classroom and has a personal understanding of the struggles hypermobile dancers face. She asserts that her injuries also made her both a better dancer and a better teacher, and made her a firm believer in cross-training. She discusses why her teaching is focused on strength and not bendiness, and how she shapes a student’s training over the course of several years.  We talk about why slower is better, and how she and her team approach the long-term training of a hypermobile dancer. She shares tips for teachers of hypermobile dancers, gives advice for frustrated bendy dancers, and reveals what she’d like to see support-wise from the dance medicine community.  Full of thoughtfulness and packed with advice, Mariaelena’s interview is not one to miss!  Learn about Mariaelena Ruiz and follow her on social media: https://www.caryballet.com/ https://www.facebook.com/CaryBallet/ https://www.instagram.com/mariaelenaruizofficial/ https://www.instagram.com/caryballet/  Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.bendybodies.org Instagram: @hypermobilitymd and @bendy_bodies Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/ Learn more about your ad choices. Visit megaphone.fm/adchoices Fri, 25 Sep 2020 08:00:44 -0000 18. Molding Healthy, Successful Artists with Mariaelena Ruiz full 18 Dr. Linda Bluestein <p>How do you prepare a hypermobile student for the rigors of the professional dance world, finding that balance of exploring their gifts while moving cautiously to avoid injury? In this episode, we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals. She discusses her experiences training high-level dancers who wrestle with their hypermobility. </p><p>Mariaelena brings her decades as a professional ballerina with a wonky body to her classroom and has a personal understanding of the struggles hypermobile dancers face. She asserts that her injuries also made her both a better dancer and a better teacher, and made her a firm believer in cross-training. She discusses why her teaching is focused on strength and not bendiness, and how she shapes a student’s training over the course of several years. </p><p>We talk about why slower is better, and how she and her team approach the long-term training of a hypermobile dancer. She shares tips for teachers of hypermobile dancers, gives advice for frustrated bendy dancers, and reveals what she’d like to see support-wise from the dance medicine community. </p><p>Full of thoughtfulness and packed with advice, Mariaelena’s interview is not one to miss! </p><p>Learn about Mariaelena Ruiz and follow her on social media: https://www.caryballet.com/ https://www.facebook.com/CaryBallet/ https://www.instagram.com/mariaelenaruizofficial/ https://www.instagram.com/caryballet/ </p><p>Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.bendybodies.org Instagram: @hypermobilitymd and @bendy_bodies Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/</p> How do you prepare a hypermobile student for the rigors of the professional dance world, finding that balance of exploring their gifts while moving cautiously to avoid injury? In this episode, we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals. She discusses her experiences training high-level dancers who wrestle with their hypermobility.  Mariaelena brings her decades as a professional ballerina with a wonky body to her classroom and has a personal understanding of the struggles hypermobile dancers face. She asserts that her injuries also made her both a better dancer and a better teacher, and made her a firm believer in cross-training. She discusses why her teaching is focused on strength and not bendiness, and how she shapes a student’s training over the course of several years.  We talk about why slower is better, and how she and her team approach the long-term training of a hypermobile dancer. She shares tips for teachers of hypermobile dancers, gives advice for frustrated bendy dancers, and reveals what she’d like to see support-wise from the dance medicine community.  Full of thoughtfulness and packed with advice, Mariaelena’s interview is not one to miss!  Learn about Mariaelena Ruiz and follow her on social media: https://www.caryballet.com/ https://www.facebook.com/CaryBallet/ https://www.instagram.com/mariaelenaruizofficial/ https://www.instagram.com/caryballet/  Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.bendybodies.org Instagram: @hypermobilitymd and @bendy_bodies Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/ Learn more about your ad choices. Visit megaphone.fm/adchoices How do you prepare a hypermobile student for the rigors of the professional dance world, finding that balance of exploring their gifts while moving cautiously to avoid injury? In this episode, we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals. She discusses her experiences training high-level dancers who wrestle with their hypermobility. 

    Mariaelena brings her decades as a professional ballerina with a wonky body to her classroom and has a personal understanding of the struggles hypermobile dancers face. She asserts that her injuries also made her both a better dancer and a better teacher, and made her a firm believer in cross-training. She discusses why her teaching is focused on strength and not bendiness, and how she shapes a student’s training over the course of several years. 

    We talk about why slower is better, and how she and her team approach the long-term training of a hypermobile dancer. She shares tips for teachers of hypermobile dancers, gives advice for frustrated bendy dancers, and reveals what she’d like to see support-wise from the dance medicine community. 

    Full of thoughtfulness and packed with advice, Mariaelena’s interview is not one to miss! 

    Learn about Mariaelena Ruiz and follow her on social media: https://www.caryballet.com/ https://www.facebook.com/CaryBallet/ https://www.instagram.com/mariaelenaruizofficial/ https://www.instagram.com/caryballet/ 

    Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.bendybodies.org Instagram: @hypermobilitymd and @bendy_bodies Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3489 no     17. Training the Hypermobile Dancer with Jennifer Milner https://share.transistor.fm/s/8bc9ddc6 For people working with artistic athletes such as dancers, circus artists, and gymnasts, training the hypermobile body brings its own set of challenges. Shepherding a “wonky body” through healthy training may feel overwhelming and frustrating and, at times, like you’re spinning your wheels. Dr. Linda Bluestein turns the tables to chat with Bendy Bodies' regular guest co-host Jennifer Milner about what it takes to train a hypermobile dancer or athlete.  Jennifer brings her almost twenty years of cross-training dancers across the globe to the conversation, revealing what she’s learned from her dancers and her own dance career navigating injuries with a hypermobile body. She shares what she’s observed in the hypermobile population and how she approaches their training differently than the general population. Jennifer discusses her goals in working with hypermobile dancers and provides concrete suggestions on how to achieve them. She discloses what she wishes dance teachers and medical professionals knew about hypermobile dancers, and how dancers with hypermobility can add longevity to their careers.  This interview is full of practical suggestions. It's a must listen for dance teachers, strength and conditioning coaches, healthcare professionals, and dancers themselves!  Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/  Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 10 Sep 2020 11:36:54 -0000 17. Training the Hypermobile Dancer with Jennifer Milner full 17 Dr. Linda Bluestein <p>For people working with artistic athletes such as dancers, circus artists, and gymnasts, training the hypermobile body brings its own set of challenges. Shepherding a “wonky body” through healthy training may feel overwhelming and frustrating and, at times, like you’re spinning your wheels. Dr. Linda Bluestein turns the tables to chat with Bendy Bodies' regular guest co-host Jennifer Milner about what it takes to train a hypermobile dancer or athlete. </p><p>Jennifer brings her almost twenty years of cross-training dancers across the globe to the conversation, revealing what she’s learned from her dancers and her own dance career navigating injuries with a hypermobile body. She shares what she’s observed in the hypermobile population and how she approaches their training differently than the general population. Jennifer discusses her goals in working with hypermobile dancers and provides concrete suggestions on how to achieve them. She discloses what she wishes dance teachers and medical professionals knew about hypermobile dancers, and how dancers with hypermobility can add longevity to their careers. </p><p>This interview is full of practical suggestions. It's a must listen for dance teachers, strength and conditioning coaches, healthcare professionals, and dancers themselves! </p><p>Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/ </p><p>Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/ </p> For people working with artistic athletes such as dancers, circus artists, and gymnasts, training the hypermobile body brings its own set of challenges. Shepherding a “wonky body” through healthy training may feel overwhelming and frustrating and, at times, like you’re spinning your wheels. Dr. Linda Bluestein turns the tables to chat with Bendy Bodies' regular guest co-host Jennifer Milner about what it takes to train a hypermobile dancer or athlete.  Jennifer brings her almost twenty years of cross-training dancers across the globe to the conversation, revealing what she’s learned from her dancers and her own dance career navigating injuries with a hypermobile body. She shares what she’s observed in the hypermobile population and how she approaches their training differently than the general population. Jennifer discusses her goals in working with hypermobile dancers and provides concrete suggestions on how to achieve them. She discloses what she wishes dance teachers and medical professionals knew about hypermobile dancers, and how dancers with hypermobility can add longevity to their careers.  This interview is full of practical suggestions. It's a must listen for dance teachers, strength and conditioning coaches, healthcare professionals, and dancers themselves!  Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/  Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/  Learn more about your ad choices. Visit megaphone.fm/adchoices For people working with artistic athletes such as dancers, circus artists, and gymnasts, training the hypermobile body brings its own set of challenges. Shepherding a “wonky body” through healthy training may feel overwhelming and frustrating and, at times, like you’re spinning your wheels. Dr. Linda Bluestein turns the tables to chat with Bendy Bodies' regular guest co-host Jennifer Milner about what it takes to train a hypermobile dancer or athlete. 

    Jennifer brings her almost twenty years of cross-training dancers across the globe to the conversation, revealing what she’s learned from her dancers and her own dance career navigating injuries with a hypermobile body. She shares what she’s observed in the hypermobile population and how she approaches their training differently than the general population. Jennifer discusses her goals in working with hypermobile dancers and provides concrete suggestions on how to achieve them. She discloses what she wishes dance teachers and medical professionals knew about hypermobile dancers, and how dancers with hypermobility can add longevity to their careers. 

    This interview is full of practical suggestions. It's a must listen for dance teachers, strength and conditioning coaches, healthcare professionals, and dancers themselves! 

    Learn about Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3632 no     16. Empowering Flexibility with Dr. Jen Crane, DPT https://share.transistor.fm/s/8456fcfc Extreme flexibility has permeated social media and influenced every physical art form, from dance to ice skating and of course circus arts. As artistic athletes are asked to explore greater and more unstable end ranges of motion, performers are often left to figure out how to stay healthy for themselves. For those artists and athletes, the question isn’t IF they should work in an end range of motion, but HOW.  Dr. Jen Crane, a physical therapist specializing in circus arts, chats with us on how to do just that. She talks about the difference between productive discomfort and non-productive discomfort, and how to self-assess between the two. She weighs in on the pros and cons of seeking a definitive diagnosis for EDS or other connective tissue disorders, and emphasizes the need to be strong in your end range. Jen shares her views on passive versus active stretching, how she increases flexibility with strength drills, and sketches out the changes she’d like to see in circus arts training.  Perfect for all people with hypermobility looking to learn more about strengthening, as well as anyone wanting to pursue increasing their flexibility in a healthy way, this episode is a wealth of information on stretching and strengthening safely.  Learn about Jen Crane, PT, DPT, OCS, ATC Website: https://www.cirquephysio.com Instagram: @Cirque_Physio  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/  Learn about guest co-host Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Fri, 28 Aug 2020 04:07:48 -0000 16. Empowering Flexibility with Dr. Jen Crane, DPT full 16 Dr. Linda Bluestein <p>Extreme flexibility has permeated social media and influenced every physical art form, from dance to ice skating and of course circus arts. As artistic athletes are asked to explore greater and more unstable end ranges of motion, performers are often left to figure out how to stay healthy for themselves. For those artists and athletes, the question isn’t IF they should work in an end range of motion, but HOW. </p><p>Dr. Jen Crane, a physical therapist specializing in circus arts, chats with us on how to do just that. She talks about the difference between productive discomfort and non-productive discomfort, and how to self-assess between the two. She weighs in on the pros and cons of seeking a definitive diagnosis for EDS or other connective tissue disorders, and emphasizes the need to be strong in your end range. Jen shares her views on passive versus active stretching, how she increases flexibility with strength drills, and sketches out the changes she’d like to see in circus arts training. </p><p>Perfect for all people with hypermobility looking to learn more about strengthening, as well as anyone wanting to pursue increasing their flexibility in a healthy way, this episode is a wealth of information on stretching and strengthening safely. </p><p>Learn about Jen Crane, PT, DPT, OCS, ATC Website: https://www.cirquephysio.com Instagram: @Cirque_Physio </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/ </p><p>Learn about guest co-host Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/ </p> Extreme flexibility has permeated social media and influenced every physical art form, from dance to ice skating and of course circus arts. As artistic athletes are asked to explore greater and more unstable end ranges of motion, performers are often left to figure out how to stay healthy for themselves. For those artists and athletes, the question isn’t IF they should work in an end range of motion, but HOW.  Dr. Jen Crane, a physical therapist specializing in circus arts, chats with us on how to do just that. She talks about the difference between productive discomfort and non-productive discomfort, and how to self-assess between the two. She weighs in on the pros and cons of seeking a definitive diagnosis for EDS or other connective tissue disorders, and emphasizes the need to be strong in your end range. Jen shares her views on passive versus active stretching, how she increases flexibility with strength drills, and sketches out the changes she’d like to see in circus arts training.  Perfect for all people with hypermobility looking to learn more about strengthening, as well as anyone wanting to pursue increasing their flexibility in a healthy way, this episode is a wealth of information on stretching and strengthening safely.  Learn about Jen Crane, PT, DPT, OCS, ATC Website: https://www.cirquephysio.com Instagram: @Cirque_Physio  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/  Learn about guest co-host Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Extreme flexibility has permeated social media and influenced every physical art form, from dance to ice skating and of course circus arts. As artistic athletes are asked to explore greater and more unstable end ranges of motion, performers are often left to figure out how to stay healthy for themselves. For those artists and athletes, the question isn’t IF they should work in an end range of motion, but HOW. 

    Dr. Jen Crane, a physical therapist specializing in circus arts, chats with us on how to do just that. She talks about the difference between productive discomfort and non-productive discomfort, and how to self-assess between the two. She weighs in on the pros and cons of seeking a definitive diagnosis for EDS or other connective tissue disorders, and emphasizes the need to be strong in your end range. Jen shares her views on passive versus active stretching, how she increases flexibility with strength drills, and sketches out the changes she’d like to see in circus arts training. 

    Perfect for all people with hypermobility looking to learn more about strengthening, as well as anyone wanting to pursue increasing their flexibility in a healthy way, this episode is a wealth of information on stretching and strengthening safely. 

    Learn about Jen Crane, PT, DPT, OCS, ATC Website: https://www.cirquephysio.com Instagram: @Cirque_Physio 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our website and be sure to follow us on social media: Website: www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd and @bendybodiespodcast Twitter: @hypermobilityMD Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/ Pinterest: www.pinterest.com/hypermobilityMD/ LinkedIn: www.linkedin.com/in/hypermobilitymd/ 

    Learn about guest co-host Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3146 no     15. Shaping a Healthy Career with Beckanne Sisk https://share.transistor.fm/s/910c6a3c Hypermobility is often desired in dancers for the long, beautiful lines it affords. But hypermobility adds its own challenges to dancers seeking a long, healthy career on the stage.  In this episode, we chat with principal dancer from Ballet West and international guest star Beckanne Sisk about how she manages her hypermobility. Beckanne opens up about learning to rein in her hypermobility, discovering when to hold back and when to lean into it, as well as how her pre-professional teachers helped her learn control.  She talks about how she maintains her strength and flexibility, what her maintenance program looks like, and why she stresses the importance of mentally working correctly while approaching the work thoughtfully. Beckanne speaks frankly about her approach to stretching safely (hint: it’s not about stretching, it’s about strengthening!) and advice she’d like to share with younger hypermobile dancers (hint: stop stretching and start strengthening!)  Beckanne explains why she’s grateful for her scoliosis and hypermobility, how they’ve challenged and shaped her as a dancer, and what she wants to share with the next generation of dancers.  A must-listen for every dancer living with the blessings and challenges of hypermobility, this episode is one you won't want to miss!  Learn more about your ad choices. Visit megaphone.fm/adchoices Tue, 11 Aug 2020 09:00:22 -0000 15. Shaping a Healthy Career with Beckanne Sisk full 15 Dr. Linda Bluestein <p>Hypermobility is often desired in dancers for the long, beautiful lines it affords. But hypermobility adds its own challenges to dancers seeking a long, healthy career on the stage. </p><p>In this episode, we chat with principal dancer from Ballet West and international guest star Beckanne Sisk about how she manages her hypermobility. Beckanne opens up about learning to rein in her hypermobility, discovering when to hold back and when to lean into it, as well as how her pre-professional teachers helped her learn control. </p><p>She talks about how she maintains her strength and flexibility, what her maintenance program looks like, and why she stresses the importance of mentally working correctly while approaching the work thoughtfully. Beckanne speaks frankly about her approach to stretching safely (hint: it’s not about stretching, it’s about strengthening!) and advice she’d like to share with younger hypermobile dancers (hint: stop stretching and start strengthening!) </p><p>Beckanne explains why she’s grateful for her scoliosis and hypermobility, how they’ve challenged and shaped her as a dancer, and what she wants to share with the next generation of dancers. </p><p>A must-listen for every dancer living with the blessings and challenges of hypermobility, this episode is one you won't want to miss! </p> Hypermobility is often desired in dancers for the long, beautiful lines it affords. But hypermobility adds its own challenges to dancers seeking a long, healthy career on the stage.  In this episode, we chat with principal dancer from Ballet West and international guest star Beckanne Sisk about how she manages her hypermobility. Beckanne opens up about learning to rein in her hypermobility, discovering when to hold back and when to lean into it, as well as how her pre-professional teachers helped her learn control.  She talks about how she maintains her strength and flexibility, what her maintenance program looks like, and why she stresses the importance of mentally working correctly while approaching the work thoughtfully. Beckanne speaks frankly about her approach to stretching safely (hint: it’s not about stretching, it’s about strengthening!) and advice she’d like to share with younger hypermobile dancers (hint: stop stretching and start strengthening!)  Beckanne explains why she’s grateful for her scoliosis and hypermobility, how they’ve challenged and shaped her as a dancer, and what she wants to share with the next generation of dancers.  A must-listen for every dancer living with the blessings and challenges of hypermobility, this episode is one you won't want to miss!  Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobility is often desired in dancers for the long, beautiful lines it affords. But hypermobility adds its own challenges to dancers seeking a long, healthy career on the stage. 

    In this episode, we chat with principal dancer from Ballet West and international guest star Beckanne Sisk about how she manages her hypermobility. Beckanne opens up about learning to rein in her hypermobility, discovering when to hold back and when to lean into it, as well as how her pre-professional teachers helped her learn control. 

    She talks about how she maintains her strength and flexibility, what her maintenance program looks like, and why she stresses the importance of mentally working correctly while approaching the work thoughtfully. Beckanne speaks frankly about her approach to stretching safely (hint: it’s not about stretching, it’s about strengthening!) and advice she’d like to share with younger hypermobile dancers (hint: stop stretching and start strengthening!) 

    Beckanne explains why she’s grateful for her scoliosis and hypermobility, how they’ve challenged and shaped her as a dancer, and what she wants to share with the next generation of dancers. 

    A must-listen for every dancer living with the blessings and challenges of hypermobility, this episode is one you won't want to miss! 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2708 no     14. Stabilizing the Hypermobile Body through Circus Arts with Emily Scherb, PT, DPT https://share.transistor.fm/s/8de6b25b Nowhere is flexibility and hypermobility more valued and explored than in the circus arts! But while circus artists are highly skilled and extremely strong, working in extreme end ranges of motion comes with its own set of issues and potential injuries. In this podcast, we chat with Dr. Emily Scherb, a DPT who specializes in circus and performing arts.  Emily examines what’s similar (and different) between circus and performing arts, looks at what is “normal” for the circus population, and outlines when to push into your end range and when not to. We explore the differences in rehabilitating the hypermobile versus the non-hypermobile population, who Emily would like to see on an artist’s dream support team, and why she literally wrote the book on anatomy for aerial artists.  Emily explains why she prioritizes education for instructors and performers alike, and how she wants to change the language of technique and instill self-knowledge for the next generation. Emily believes circus training can be beneficial for all populations, and encourages adults to start recreational classes!  As she says, “It’s never too late to come play with the circus!”  Learn more about Emily: https://www.thecircusdoc.com/ Instagram: @thecircusdoc  Check out these educational programs: Intro to circus healthcare discount code makes it just $5 https://circusanatomy.com/p/learning-the-ropes/?product_id=1946251&coupon_code=CIRCUSBODIES  Hanging Analysis of the Shoulder course https://circusanatomy.com/p/hanging-analysis-of-the-shoulder  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 30 Jul 2020 08:00:16 -0000 14. Stabilizing the Hypermobile Body through Circus Arts with Emily Scherb, PT, DPT full 14 Dr. Linda Bluestein <p>Nowhere is flexibility and hypermobility more valued and explored than in the circus arts! But while circus artists are highly skilled and extremely strong, working in extreme end ranges of motion comes with its own set of issues and potential injuries. In this podcast, we chat with Dr. Emily Scherb, a DPT who specializes in circus and performing arts. </p><p>Emily examines what’s similar (and different) between circus and performing arts, looks at what is “normal” for the circus population, and outlines when to push into your end range and when not to. We explore the differences in rehabilitating the hypermobile versus the non-hypermobile population, who Emily would like to see on an artist’s dream support team, and why she literally wrote the book on anatomy for aerial artists. </p><p>Emily explains why she prioritizes education for instructors and performers alike, and how she wants to change the language of technique and instill self-knowledge for the next generation. Emily believes circus training can be beneficial for all populations, and encourages adults to start recreational classes! </p><p>As she says, “It’s never too late to come play with the circus!” </p><p>Learn more about Emily: https://www.thecircusdoc.com/ Instagram: @thecircusdoc </p><p>Check out these educational programs: Intro to circus healthcare discount code makes it just $5 https://circusanatomy.com/p/learning-the-ropes/?product_id=1946251&amp;coupon_code=CIRCUSBODIES </p><p>Hanging Analysis of the Shoulder course https://circusanatomy.com/p/hanging-analysis-of-the-shoulder </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: <br>Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Nowhere is flexibility and hypermobility more valued and explored than in the circus arts! But while circus artists are highly skilled and extremely strong, working in extreme end ranges of motion comes with its own set of issues and potential injuries. In this podcast, we chat with Dr. Emily Scherb, a DPT who specializes in circus and performing arts.  Emily examines what’s similar (and different) between circus and performing arts, looks at what is “normal” for the circus population, and outlines when to push into your end range and when not to. We explore the differences in rehabilitating the hypermobile versus the non-hypermobile population, who Emily would like to see on an artist’s dream support team, and why she literally wrote the book on anatomy for aerial artists.  Emily explains why she prioritizes education for instructors and performers alike, and how she wants to change the language of technique and instill self-knowledge for the next generation. Emily believes circus training can be beneficial for all populations, and encourages adults to start recreational classes!  As she says, “It’s never too late to come play with the circus!”  Learn more about Emily: https://www.thecircusdoc.com/ Instagram: @thecircusdoc  Check out these educational programs: Intro to circus healthcare discount code makes it just $5 https://circusanatomy.com/p/learning-the-ropes/?product_id=1946251&coupon_code=CIRCUSBODIES  Hanging Analysis of the Shoulder course https://circusanatomy.com/p/hanging-analysis-of-the-shoulder  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Nowhere is flexibility and hypermobility more valued and explored than in the circus arts! But while circus artists are highly skilled and extremely strong, working in extreme end ranges of motion comes with its own set of issues and potential injuries. In this podcast, we chat with Dr. Emily Scherb, a DPT who specializes in circus and performing arts. 

    Emily examines what’s similar (and different) between circus and performing arts, looks at what is “normal” for the circus population, and outlines when to push into your end range and when not to. We explore the differences in rehabilitating the hypermobile versus the non-hypermobile population, who Emily would like to see on an artist’s dream support team, and why she literally wrote the book on anatomy for aerial artists. 

    Emily explains why she prioritizes education for instructors and performers alike, and how she wants to change the language of technique and instill self-knowledge for the next generation. Emily believes circus training can be beneficial for all populations, and encourages adults to start recreational classes! 

    As she says, “It’s never too late to come play with the circus!” 

    Learn more about Emily: https://www.thecircusdoc.com/ Instagram: @thecircusdoc 

    Check out these educational programs: Intro to circus healthcare discount code makes it just $5 https://circusanatomy.com/p/learning-the-ropes/?product_id=1946251&coupon_code=CIRCUSBODIES 

    Hanging Analysis of the Shoulder course https://circusanatomy.com/p/hanging-analysis-of-the-shoulder 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: 
    Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3204 no     13. Healing the Brain Holistically with Ilene Ruhoy M.D., Ph.D. https://share.transistor.fm/s/7ef9f5b0 Many conditions found in "bendy" people have a neurologic basis, impacting both the brain and nervous system. In this Bendy Bodies episode, Dr. Ilene Ruhoy, the Medical Director and Founder of the Center for Healing Neurology, walks us through the integrative approach she takes to healing the brain and the body.  Dr. Ruhoy discusses the “cross talk” between the gut and the brain and explains how the food we eat and the way we exercise affects our most vital organ, the brain. She covers migraines, myofascial pain, neck pain, “brain fog”, dysautonomia, and more. She shares her approach to the Pentad - EDS, dysautonomia, MCAS, autoimmune diseases, and GI problems - and why she thinks the "Octad" may be the more appropriate term.  Dr. Ruhoy explores the connection between hypermobility and dysautonomia, explains how she approaches small fiber neuropathy, and elaborates on the value of packaged protocols as a place for people to start, while acknowledging that everyone has his own story and no two people are alike.  Learn more about Dr. Ruhoy at https://www.centerforhealingneurology.com  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Fri, 17 Jul 2020 13:34:39 -0000 13. Healing the Brain Holistically with Ilene Ruhoy M.D., Ph.D. full 13 Dr. Linda Bluestein <p>Many conditions found in "bendy" people have a neurologic basis, impacting both the brain and nervous system. In this Bendy Bodies episode, Dr. Ilene Ruhoy, the Medical Director and Founder of the Center for Healing Neurology, walks us through the integrative approach she takes to healing the brain and the body. </p><p>Dr. Ruhoy discusses the “cross talk” between the gut and the brain and explains how the food we eat and the way we exercise affects our most vital organ, the brain. She covers migraines, myofascial pain, neck pain, “brain fog”, dysautonomia, and more. She shares her approach to the Pentad - EDS, dysautonomia, MCAS, autoimmune diseases, and GI problems - and why she thinks the "Octad" may be the more appropriate term. </p><p>Dr. Ruhoy explores the connection between hypermobility and dysautonomia, explains how she approaches small fiber neuropathy, and elaborates on the value of packaged protocols as a place for people to start, while acknowledging that everyone has his own story and no two people are alike. </p><p>Learn more about Dr. Ruhoy at https://www.centerforhealingneurology.com </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Many conditions found in "bendy" people have a neurologic basis, impacting both the brain and nervous system. In this Bendy Bodies episode, Dr. Ilene Ruhoy, the Medical Director and Founder of the Center for Healing Neurology, walks us through the integrative approach she takes to healing the brain and the body.  Dr. Ruhoy discusses the “cross talk” between the gut and the brain and explains how the food we eat and the way we exercise affects our most vital organ, the brain. She covers migraines, myofascial pain, neck pain, “brain fog”, dysautonomia, and more. She shares her approach to the Pentad - EDS, dysautonomia, MCAS, autoimmune diseases, and GI problems - and why she thinks the "Octad" may be the more appropriate term.  Dr. Ruhoy explores the connection between hypermobility and dysautonomia, explains how she approaches small fiber neuropathy, and elaborates on the value of packaged protocols as a place for people to start, while acknowledging that everyone has his own story and no two people are alike.  Learn more about Dr. Ruhoy at https://www.centerforhealingneurology.com  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Many conditions found in "bendy" people have a neurologic basis, impacting both the brain and nervous system. In this Bendy Bodies episode, Dr. Ilene Ruhoy, the Medical Director and Founder of the Center for Healing Neurology, walks us through the integrative approach she takes to healing the brain and the body. 

    Dr. Ruhoy discusses the “cross talk” between the gut and the brain and explains how the food we eat and the way we exercise affects our most vital organ, the brain. She covers migraines, myofascial pain, neck pain, “brain fog”, dysautonomia, and more. She shares her approach to the Pentad - EDS, dysautonomia, MCAS, autoimmune diseases, and GI problems - and why she thinks the "Octad" may be the more appropriate term. 

    Dr. Ruhoy explores the connection between hypermobility and dysautonomia, explains how she approaches small fiber neuropathy, and elaborates on the value of packaged protocols as a place for people to start, while acknowledging that everyone has his own story and no two people are alike. 

    Learn more about Dr. Ruhoy at https://www.centerforhealingneurology.com 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4016 no     12. Investigating Autoimmune Disorders with Jill Schofield, M.D. https://share.transistor.fm/s/2b99f1d3 World renowned expert in autoimmune disorders and the Founder and Director of the Center for Multisystem Disease, Dr. Jill Schofield, generously chatted with us in a recent interview. Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers. Dr. Schofield discusses the relationship between autoimmune diseases, Ehlers-Danlos Syndromes, and dysautonomia (abnormal function of the autonomic nervous system). She dives into the difference between autoimmune and non-autoimmune dysautonomia and small-fiber neuropathy. She explores diagnoses like antiphospholipid antibody syndrome (APS), when you might seek a work up for APS, and issues a call for action for doctors and researchers in this fast-growing field.  Learn more about Jill Schofield, M.D.: Website: https://www.centerformultisystemdisease.com Follow us on Instagram: @BendyBodiesPodcast  Follow Host, Linda Bluestein, M.D.: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Follow guest co-host, Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 02 Jul 2020 09:00:01 -0000 12. Investigating Autoimmune Disorders with Jill Schofield, M.D. full 12 Dr. Linda Bluestein <p>World renowned expert in autoimmune disorders and the Founder and Director of the Center for Multisystem Disease, Dr. Jill Schofield, generously chatted with us in a recent interview. Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers. Dr. Schofield discusses the relationship between autoimmune diseases, Ehlers-Danlos Syndromes, and dysautonomia (abnormal function of the autonomic nervous system). She dives into the difference between autoimmune and non-autoimmune dysautonomia and small-fiber neuropathy. She explores diagnoses like antiphospholipid antibody syndrome (APS), when you might seek a work up for APS, and issues a call for action for doctors and researchers in this fast-growing field. </p><p>Learn more about Jill Schofield, M.D.: Website: https://www.centerformultisystemdisease.com Follow us on Instagram: @BendyBodiesPodcast </p><p>Follow Host, Linda Bluestein, M.D.: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>Follow guest co-host, Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> World renowned expert in autoimmune disorders and the Founder and Director of the Center for Multisystem Disease, Dr. Jill Schofield, generously chatted with us in a recent interview. Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers. Dr. Schofield discusses the relationship between autoimmune diseases, Ehlers-Danlos Syndromes, and dysautonomia (abnormal function of the autonomic nervous system). She dives into the difference between autoimmune and non-autoimmune dysautonomia and small-fiber neuropathy. She explores diagnoses like antiphospholipid antibody syndrome (APS), when you might seek a work up for APS, and issues a call for action for doctors and researchers in this fast-growing field.  Learn more about Jill Schofield, M.D.: Website: https://www.centerformultisystemdisease.com Follow us on Instagram: @BendyBodiesPodcast  Follow Host, Linda Bluestein, M.D.: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Follow guest co-host, Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices World renowned expert in autoimmune disorders and the Founder and Director of the Center for Multisystem Disease, Dr. Jill Schofield, generously chatted with us in a recent interview. Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers. Dr. Schofield discusses the relationship between autoimmune diseases, Ehlers-Danlos Syndromes, and dysautonomia (abnormal function of the autonomic nervous system). She dives into the difference between autoimmune and non-autoimmune dysautonomia and small-fiber neuropathy. She explores diagnoses like antiphospholipid antibody syndrome (APS), when you might seek a work up for APS, and issues a call for action for doctors and researchers in this fast-growing field. 

    Learn more about Jill Schofield, M.D.: Website: https://www.centerformultisystemdisease.com Follow us on Instagram: @BendyBodiesPodcast 

    Follow Host, Linda Bluestein, M.D.: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    Follow guest co-host, Jennifer Milner: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4060 no     11. Understanding Hypermobility Disorders with Linda Bluestein, M.D. https://share.transistor.fm/s/739693de In this episode, guest co-host Jennifer Milner interviews Bendy Bodies’ own host, Dr. Linda Bluestein!  Hypermobility disorders can be frustratingly hard to diagnose or even define. From symptomatic joint laxity to connective tissue disorders like Ehlers-Danlos Syndromes (EDS) or Marfan Syndrome, the umbrella of hypermobility disorders covers a number of conditions and up-to-date information can be hard to find.  Bendy Bodies' host, Linda Bluestein, M.D., shares her expertise with Jennifer Milner in this episode, opening up on how she turned the challenge of her own hypermobility disorder into a blessing for others as she made working with hypermobility disorders into her life’s work.  Dr. Bluestein breaks down the different types of hypermobility, discusses the difference between signs and symptoms, and outlines some hallmark signs of connective tissue disorders.  Be sure to listen to this incredibly informative episode!  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 18 Jun 2020 14:17:46 -0000 11. Understanding Hypermobility Disorders with Linda Bluestein, M.D. full 11 Dr. Linda Bluestein <p>In this episode, guest co-host Jennifer Milner interviews Bendy Bodies’ own host, Dr. Linda Bluestein! </p><p>Hypermobility disorders can be frustratingly hard to diagnose or even define. From symptomatic joint laxity to connective tissue disorders like Ehlers-Danlos Syndromes (EDS) or Marfan Syndrome, the umbrella of hypermobility disorders covers a number of conditions and up-to-date information can be hard to find. </p><p>Bendy Bodies' host, Linda Bluestein, M.D., shares her expertise with Jennifer Milner in this episode, opening up on how she turned the challenge of her own hypermobility disorder into a blessing for others as she made working with hypermobility disorders into her life’s work. </p><p>Dr. Bluestein breaks down the different types of hypermobility, discusses the difference between signs and symptoms, and outlines some hallmark signs of connective tissue disorders. </p><p>Be sure to listen to this incredibly informative episode! </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> In this episode, guest co-host Jennifer Milner interviews Bendy Bodies’ own host, Dr. Linda Bluestein!  Hypermobility disorders can be frustratingly hard to diagnose or even define. From symptomatic joint laxity to connective tissue disorders like Ehlers-Danlos Syndromes (EDS) or Marfan Syndrome, the umbrella of hypermobility disorders covers a number of conditions and up-to-date information can be hard to find.  Bendy Bodies' host, Linda Bluestein, M.D., shares her expertise with Jennifer Milner in this episode, opening up on how she turned the challenge of her own hypermobility disorder into a blessing for others as she made working with hypermobility disorders into her life’s work.  Dr. Bluestein breaks down the different types of hypermobility, discusses the difference between signs and symptoms, and outlines some hallmark signs of connective tissue disorders.  Be sure to listen to this incredibly informative episode!  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices In this episode, guest co-host Jennifer Milner interviews Bendy Bodies’ own host, Dr. Linda Bluestein! 

    Hypermobility disorders can be frustratingly hard to diagnose or even define. From symptomatic joint laxity to connective tissue disorders like Ehlers-Danlos Syndromes (EDS) or Marfan Syndrome, the umbrella of hypermobility disorders covers a number of conditions and up-to-date information can be hard to find. 

    Bendy Bodies' host, Linda Bluestein, M.D., shares her expertise with Jennifer Milner in this episode, opening up on how she turned the challenge of her own hypermobility disorder into a blessing for others as she made working with hypermobility disorders into her life’s work. 

    Dr. Bluestein breaks down the different types of hypermobility, discusses the difference between signs and symptoms, and outlines some hallmark signs of connective tissue disorders. 

    Be sure to listen to this incredibly informative episode! 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Website: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     1744 no     10. Cultivating Psychological Skills with Bonnie Robson, M.D. https://share.transistor.fm/s/5d51fcd9 Living with stress and anxiety has become the rule rather than the exception in today’s world. Everyone develops coping strategies of some kind, but without encouragement and guidance these strategies can be dysfunctional and even harmful.  Dr. Bonnie Robson talks through the risks inherent in social and physical isolation and how to develop strategies that can support and encourage long-term mental and physical health. She explores how and why sleep is affected by stress offering ways to better regulate this crucial component of the circadian cycle.  Dr. Robson walks through developing a safe place, the importance of paying attention to the present moment, and how and when you should take your emotional temperature. She outlines ways to build several tools for your emotional toolbox, and reminds us that in these times, good enough is a great goal to have.  Links: Befrienders Worldwide - https://www.befrienders.org BBC Action Line UK - https://www.bbc.co.uk/actionline/ The Actor's Fund USA - https://actorsfund.org The AFC Canada - https://afchelps.ca IADMS's Response to COVID-19 - https://www.iadms.org/page/coronavirus  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 28 May 2020 08:00:03 -0000 10. Cultivating Psychological Skills with Bonnie Robson, M.D. full 10 Dr. Linda Bluestein ssage Living with stress and anxiety has become the rule rather than the exception in today’s world. Everyone develops coping strategies of some kind, but without encouragement and guidance these strategies can be dysfunctional and even harmful.  Dr. Bonnie Robson talks through the risks inherent in social and physical isolation and how to develop strategies that can support and encourage long-term mental and physical health. She explores how and why sleep is affected by stress offering ways to better regulate this crucial component of the circadian cycle.  Dr. Robson walks through developing a safe place, the importance of paying attention to the present moment, and how and when you should take your emotional temperature. She outlines ways to build several tools for your emotional toolbox, and reminds us that in these times, good enough is a great goal to have.  Links: Befrienders Worldwide - https://www.befrienders.org BBC Action Line UK - https://www.bbc.co.uk/actionline/ The Actor's Fund USA - https://actorsfund.org The AFC Canada - https://afchelps.ca IADMS's Response to COVID-19 - https://www.iadms.org/page/coronavirus  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Living with stress and anxiety has become the rule rather than the exception in today’s world. Everyone develops coping strategies of some kind, but without encouragement and guidance these strategies can be dysfunctional and even harmful. 

    Dr. Bonnie Robson talks through the risks inherent in social and physical isolation and how to develop strategies that can support and encourage long-term mental and physical health. She explores how and why sleep is affected by stress offering ways to better regulate this crucial component of the circadian cycle. 

    Dr. Robson walks through developing a safe place, the importance of paying attention to the present moment, and how and when you should take your emotional temperature. She outlines ways to build several tools for your emotional toolbox, and reminds us that in these times, good enough is a great goal to have. 

    Links: 
    Befrienders Worldwide - https://www.befrienders.org 
    BBC Action Line UK - https://www.bbc.co.uk/actionline/ 
    The Actor's Fund USA - https://actorsfund.org 
    The AFC Canada - https://afchelps.ca 
    IADMS's Response to COVID-19 - https://www.iadms.org/page/coronavirus 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4529 no     9. Educating the Dance Community with Lisa Howell https://share.transistor.fm/s/22c69ffc Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must be examined through the same placement lens as a dance class; and why “boring” and “tedious” can equal “good for you”.  As a parent, helping a hypermobile dancer through the pre-professional years can be bewildering and frustrating for people who don’t understand why their daughter must wait another six months to go on pointe, or why they sometimes need to be “the bad guy” and advocate for their dancer at the studio.  Listen in as physiotherapist Lisa Howell explains what every dance teacher needs to know about hypermobile dancers. She discusses the complexity and subtleties of working with an injured hypermobile dancer, how to optimally develop readiness to go on pointe, and how abdominal pain can affect turns and extensions.  Lisa looks at why the key to greater flexibility is building stability, why the ability to self-assess is one of the most important things we can give dancers as human beings, and how this generation of pre-professional dancers will change the dance industry for the better.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Fri, 15 May 2020 08:00:43 -0000 9. Educating the Dance Community with Lisa Howell full 9 Dr. Linda Bluestein <p>Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must be examined through the same placement lens as a dance class; and why “boring” and “tedious” can equal “good for you”. </p><p>As a parent, helping a hypermobile dancer through the pre-professional years can be bewildering and frustrating for people who don’t understand why their daughter must wait another six months to go on pointe, or why they sometimes need to be “the bad guy” and advocate for their dancer at the studio. </p><p>Listen in as physiotherapist Lisa Howell explains what every dance teacher needs to know about hypermobile dancers. She discusses the complexity and subtleties of working with an injured hypermobile dancer, how to optimally develop readiness to go on pointe, and how abdominal pain can affect turns and extensions. </p><p>Lisa looks at why the key to greater flexibility is building stability, why the ability to self-assess is one of the most important things we can give dancers as human beings, and how this generation of pre-professional dancers will change the dance industry for the better. </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must be examined through the same placement lens as a dance class; and why “boring” and “tedious” can equal “good for you”.  As a parent, helping a hypermobile dancer through the pre-professional years can be bewildering and frustrating for people who don’t understand why their daughter must wait another six months to go on pointe, or why they sometimes need to be “the bad guy” and advocate for their dancer at the studio.  Listen in as physiotherapist Lisa Howell explains what every dance teacher needs to know about hypermobile dancers. She discusses the complexity and subtleties of working with an injured hypermobile dancer, how to optimally develop readiness to go on pointe, and how abdominal pain can affect turns and extensions.  Lisa looks at why the key to greater flexibility is building stability, why the ability to self-assess is one of the most important things we can give dancers as human beings, and how this generation of pre-professional dancers will change the dance industry for the better.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must be examined through the same placement lens as a dance class; and why “boring” and “tedious” can equal “good for you”. 

    As a parent, helping a hypermobile dancer through the pre-professional years can be bewildering and frustrating for people who don’t understand why their daughter must wait another six months to go on pointe, or why they sometimes need to be “the bad guy” and advocate for their dancer at the studio. 

    Listen in as physiotherapist Lisa Howell explains what every dance teacher needs to know about hypermobile dancers. She discusses the complexity and subtleties of working with an injured hypermobile dancer, how to optimally develop readiness to go on pointe, and how abdominal pain can affect turns and extensions. 

    Lisa looks at why the key to greater flexibility is building stability, why the ability to self-assess is one of the most important things we can give dancers as human beings, and how this generation of pre-professional dancers will change the dance industry for the better. 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4523 no     8. Demystifying Genetics with Paldeep Atwal, M.D. https://share.transistor.fm/s/4b663eac Your DNA holds many secrets.  Why do drugs work on some people and not on others?  Why are conditions expressed so differently in different family members?  How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?   Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following:  Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits?  Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene”  Epigenetics - How much of a difference do our day to day choices make?  Genetic and pharmacogenetic testing - Why do the testing if you cannot change the outcome? Important note: The discussion about nutrition and intermittent fasting refers to the body of research with subjects from the general population. Therefore, this information is most applicable to those who are overweight or obese. You need quality nutrients for your body to perform properly! PLEASE do not make any changes to your diet (meaning foods you eat), without consulting with your own primary care physician or nutritionist.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Wed, 29 Apr 2020 19:48:06 -0000 8. Demystifying Genetics with Paldeep Atwal, M.D. full 8 Dr. Linda Bluestein <p>Your DNA holds many secrets.  Why do drugs work on some people and not on others?  Why are conditions expressed so differently in different family members?  How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?  </p><p>Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following: </p><ul><li>Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits? </li><li>Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene” </li><li>Epigenetics - How much of a difference do our day to day choices make? </li><li>Genetic and pharmacogenetic testing - Why do the testing if you cannot change the outcome?</li></ul><p><br>Important note: The discussion about nutrition and intermittent fasting refers to the body of research with subjects from the general population. Therefore, this information is most applicable to those who are overweight or obese. You need quality nutrients for your body to perform properly! PLEASE do not make any changes to your diet (meaning foods you eat), without consulting with your own primary care physician or nutritionist. </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Your DNA holds many secrets.  Why do drugs work on some people and not on others?  Why are conditions expressed so differently in different family members?  How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?   Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following:  Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits?  Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene”  Epigenetics - How much of a difference do our day to day choices make?  Genetic and pharmacogenetic testing - Why do the testing if you cannot change the outcome? Important note: The discussion about nutrition and intermittent fasting refers to the body of research with subjects from the general population. Therefore, this information is most applicable to those who are overweight or obese. You need quality nutrients for your body to perform properly! PLEASE do not make any changes to your diet (meaning foods you eat), without consulting with your own primary care physician or nutritionist.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Your DNA holds many secrets.  Why do drugs work on some people and not on others?  Why are conditions expressed so differently in different family members?  How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?  

    Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following: 

    • Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits? 
    • Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene” 
    • Epigenetics - How much of a difference do our day to day choices make? 
    • Genetic and pharmacogenetic testing - Why do the testing if you cannot change the outcome?


    Important note: The discussion about nutrition and intermittent fasting refers to the body of research with subjects from the general population. Therefore, this information is most applicable to those who are overweight or obese. You need quality nutrients for your body to perform properly! PLEASE do not make any changes to your diet (meaning foods you eat), without consulting with your own primary care physician or nutritionist. 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3414 no     7. Understanding and Preparing for Coronavirus with Immunologist, Dwight McKee, M.D. https://share.transistor.fm/s/41a95e84 PLEASE NOTE***:  The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic. At that time, schools and all non-essential businesses had been closed and people around the world were being asked to stay home. Scientists were learning a lot at this point, but it was unclear how many people would become ill and what the excess mortality would be. Although there had been some understanding of post viral syndromes prior to the COVID pandemic (like dysautonomia following influenza), we would quickly learn that there would be serious long-term effects of COVID-19 that had never before been witnessed with any other virus. Ready for some cutting edge COVID-19 science? In this episode, learn new tips and gain insight into the coronavirus situation! SARS-CoV-2, a novel coronavirus, has forever changed the world as we know it.  Why is this virus unique?  Why does the response to infection vary so dramatically?  What can we do to minimize the risk of infection and decrease the impact if we get sick?  Dwight McKee, M.D., Ph.D., board certified in immunology, medical oncology, hematology, nutrition, and integrative medicine, shares his unique perspective on the Bendy Bodies Podcast. Dr. McKee discusses with Dr. Bluestein useful foods and supplements, psychosocial strategies and special considerations for people with pre-existing conditions.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Fri, 17 Apr 2020 02:30:40 -0000 7. Understanding and Preparing for Coronavirus with Immunologist, Dwight McKee, M.D. full 7 Dr. Linda Bluestein <p>PLEASE NOTE***:  The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic. At that time, schools and all non-essential businesses had been closed and people around the world were being asked to stay home. Scientists were learning a lot at this point, but it was unclear how many people would become ill and what the excess mortality would be. Although there had been some understanding of post viral syndromes prior to the COVID pandemic (like dysautonomia following influenza), we would quickly learn that there would be serious long-term effects of COVID-19 that had never before been witnessed with any other virus.</p><p><br>Ready for some cutting edge COVID-19 science? In this episode, learn new tips and gain insight into the coronavirus situation! SARS-CoV-2, a novel coronavirus, has forever changed the world as we know it. </p><p>Why is this virus unique? </p><p>Why does the response to infection vary so dramatically? </p><p>What can we do to minimize the risk of infection and decrease the impact if we get sick? </p><p>Dwight McKee, M.D., Ph.D., board certified in immunology, medical oncology, hematology, nutrition, and integrative medicine, shares his unique perspective on the Bendy Bodies Podcast. Dr. McKee discusses with Dr. Bluestein useful foods and supplements, psychosocial strategies and special considerations for people with pre-existing conditions. </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> PLEASE NOTE***:  The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic. At that time, schools and all non-essential businesses had been closed and people around the world were being asked to stay home. Scientists were learning a lot at this point, but it was unclear how many people would become ill and what the excess mortality would be. Although there had been some understanding of post viral syndromes prior to the COVID pandemic (like dysautonomia following influenza), we would quickly learn that there would be serious long-term effects of COVID-19 that had never before been witnessed with any other virus. Ready for some cutting edge COVID-19 science? In this episode, learn new tips and gain insight into the coronavirus situation! SARS-CoV-2, a novel coronavirus, has forever changed the world as we know it.  Why is this virus unique?  Why does the response to infection vary so dramatically?  What can we do to minimize the risk of infection and decrease the impact if we get sick?  Dwight McKee, M.D., Ph.D., board certified in immunology, medical oncology, hematology, nutrition, and integrative medicine, shares his unique perspective on the Bendy Bodies Podcast. Dr. McKee discusses with Dr. Bluestein useful foods and supplements, psychosocial strategies and special considerations for people with pre-existing conditions.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices PLEASE NOTE***:  The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic. At that time, schools and all non-essential businesses had been closed and people around the world were being asked to stay home. Scientists were learning a lot at this point, but it was unclear how many people would become ill and what the excess mortality would be. Although there had been some understanding of post viral syndromes prior to the COVID pandemic (like dysautonomia following influenza), we would quickly learn that there would be serious long-term effects of COVID-19 that had never before been witnessed with any other virus.


    Ready for some cutting edge COVID-19 science? In this episode, learn new tips and gain insight into the coronavirus situation! SARS-CoV-2, a novel coronavirus, has forever changed the world as we know it. 

    Why is this virus unique? 

    Why does the response to infection vary so dramatically? 

    What can we do to minimize the risk of infection and decrease the impact if we get sick? 

    Dwight McKee, M.D., Ph.D., board certified in immunology, medical oncology, hematology, nutrition, and integrative medicine, shares his unique perspective on the Bendy Bodies Podcast. Dr. McKee discusses with Dr. Bluestein useful foods and supplements, psychosocial strategies and special considerations for people with pre-existing conditions. 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4083 no     6. Minding the Mental Health Gap with Kathleen McGuire Gaines https://share.transistor.fm/s/797cd285 Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow. A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for Dance Magazine. The article went viral, becoming one of the most-read articles in the history of the publication, and the response ignited a passion in Kathleen to bring mental health issues to the forefront of conversations, while bringing resources to the doorstep of every dancer.  In this Bendy Bodies episode, Kathleen shares her own journey through the mental health minefield of the dance world, and how it spurred her to bring help to the current generation of dancers by founding Minding the Gap, a social good start up for dancers’ mental health. Kathleen talks about how depression isn’t simply weakness, that shame is a terrible motivator, and how encouraging and informing correct coping strategies can make all the difference.  She shares her desire to reduce eating disorders by addressing the underlying mental health issues, and reveals why it’s so important to have one specific phone number ready in your phone for sharing.  Join us for this important conversation we all should be having.  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Sun, 12 Apr 2020 00:00:03 -0000 6. Minding the Mental Health Gap with Kathleen McGuire Gaines full 6 Dr. Linda Bluestein <p>Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow. </p><p>A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for <em>Dance Magazine</em>. The article went viral, becoming one of the most-read articles in the history of the publication, and the response ignited a passion in Kathleen to bring mental health issues to the forefront of conversations, while bringing resources to the doorstep of every dancer. </p><p>In this Bendy Bodies episode, Kathleen shares her own journey through the mental health minefield of the dance world, and how it spurred her to bring help to the current generation of dancers by founding Minding the Gap, a social good start up for dancers’ mental health. Kathleen talks about how depression isn’t simply weakness, that shame is a terrible motivator, and how encouraging and informing correct coping strategies can make all the difference. </p><p>She shares her desire to reduce eating disorders by addressing the underlying mental health issues, and reveals why it’s so important to have one specific phone number ready in your phone for sharing. </p><p>Join us for this important conversation we all should be having. </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow. A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for Dance Magazine. The article went viral, becoming one of the most-read articles in the history of the publication, and the response ignited a passion in Kathleen to bring mental health issues to the forefront of conversations, while bringing resources to the doorstep of every dancer.  In this Bendy Bodies episode, Kathleen shares her own journey through the mental health minefield of the dance world, and how it spurred her to bring help to the current generation of dancers by founding Minding the Gap, a social good start up for dancers’ mental health. Kathleen talks about how depression isn’t simply weakness, that shame is a terrible motivator, and how encouraging and informing correct coping strategies can make all the difference.  She shares her desire to reduce eating disorders by addressing the underlying mental health issues, and reveals why it’s so important to have one specific phone number ready in your phone for sharing.  Join us for this important conversation we all should be having.  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow.

    A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for Dance Magazine. The article went viral, becoming one of the most-read articles in the history of the publication, and the response ignited a passion in Kathleen to bring mental health issues to the forefront of conversations, while bringing resources to the doorstep of every dancer. 

    In this Bendy Bodies episode, Kathleen shares her own journey through the mental health minefield of the dance world, and how it spurred her to bring help to the current generation of dancers by founding Minding the Gap, a social good start up for dancers’ mental health. Kathleen talks about how depression isn’t simply weakness, that shame is a terrible motivator, and how encouraging and informing correct coping strategies can make all the difference. 

    She shares her desire to reduce eating disorders by addressing the underlying mental health issues, and reveals why it’s so important to have one specific phone number ready in your phone for sharing. 

    Join us for this important conversation we all should be having. 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3324 no     5. Optimizing Nutrition to Support a Dancer’s Health with Kristin Koskinen, RDN https://share.transistor.fm/s/cb842abd While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next. Registered dietician nutritionist Kristin Koskinen discusses nutritional needs for dancers and how to shape lifelong healthy eating habits. Kristin examines common mistakes dancers make in fueling choices, and how you can shape a flexible diet built to shift around external factors. She’ll explore creating flexible strategies like a Ballet Bento Box and discuss the base requirements of any foundationally strong diet. Additionally, Kristin lists immune-boosting nutrients and how to find them in foods; explores why stress causes nutritional deficiencies; and explains why removing common inflammatory foods from your diet might help your overall health. Join us for this important discussion! As Kristin points out, “What you do now defines how long and how strong you dance.” Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Sat, 04 Apr 2020 01:20:11 -0000 5. Optimizing Nutrition to Support a Dancer’s Health with Kristin Koskinen, RDN full 5 Dr. Linda Bluestein <p>While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next. </p><p>Registered dietician nutritionist Kristin Koskinen discusses nutritional needs for dancers and how to shape lifelong healthy eating habits. Kristin examines common mistakes dancers make in fueling choices, and how you can shape a flexible diet built to shift around external factors. She’ll explore creating flexible strategies like a Ballet Bento Box and discuss the base requirements of any foundationally strong diet. </p><p>Additionally, Kristin lists immune-boosting nutrients and how to find them in foods; explores why stress causes nutritional deficiencies; and explains why removing common inflammatory foods from your diet might help your overall health. Join us for this important discussion! As Kristin points out, “What you do now defines how long and how strong you dance.” </p><p><strong>Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: </strong><br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer Milner at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next. Registered dietician nutritionist Kristin Koskinen discusses nutritional needs for dancers and how to shape lifelong healthy eating habits. Kristin examines common mistakes dancers make in fueling choices, and how you can shape a flexible diet built to shift around external factors. She’ll explore creating flexible strategies like a Ballet Bento Box and discuss the base requirements of any foundationally strong diet. Additionally, Kristin lists immune-boosting nutrients and how to find them in foods; explores why stress causes nutritional deficiencies; and explains why removing common inflammatory foods from your diet might help your overall health. Join us for this important discussion! As Kristin points out, “What you do now defines how long and how strong you dance.” Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next.

    Registered dietician nutritionist Kristin Koskinen discusses nutritional needs for dancers and how to shape lifelong healthy eating habits. Kristin examines common mistakes dancers make in fueling choices, and how you can shape a flexible diet built to shift around external factors. She’ll explore creating flexible strategies like a Ballet Bento Box and discuss the base requirements of any foundationally strong diet.

    Additionally, Kristin lists immune-boosting nutrients and how to find them in foods; explores why stress causes nutritional deficiencies; and explains why removing common inflammatory foods from your diet might help your overall health. Join us for this important discussion! As Kristin points out, “What you do now defines how long and how strong you dance.”

    Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media:
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer Milner at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3825 no     4. Supporting a Dancer’s Mental Health with Psychotherapist, Terry Hyde https://share.transistor.fm/s/74b7c988 Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection.  Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over the world, joins Linda and Jennifer to explore this often-neglected aspect of dancer health, and discusses how hypermobility can bring unique mental health problems of its own. Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He describes the intrinsic link between the mind and the body, and how anxiety can be reframed into excitement.  Terry reveals why it’s important to practice talking to your body, and discusses how friends and loved ones can support a dancer needing emotional help - as well as what not to do.  Learn more about Terry Hyde: https://www.counsellingfordancers.com/about/ https://www.instagram.com/counsellingfordancers/ https://www.facebook.com/counsellingfordancers https://www.linkedin.com/in/terry-hyde-ma-mbacp-b68617176/ https://twitter.com/counselingdance  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Mon, 30 Mar 2020 01:10:03 -0000 4. Supporting a Dancer’s Mental Health with Psychotherapist, Terry Hyde full 4 Dr. Linda Bluestein <p>Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection. </p><p>Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over the world, joins Linda and Jennifer to explore this often-neglected aspect of dancer health, and discusses how hypermobility can bring unique mental health problems of its own. Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He describes the intrinsic link between the mind and the body, and how anxiety can be reframed into excitement. </p><p>Terry reveals why it’s important to practice talking to your body, and discusses how friends and loved ones can support a dancer needing emotional help - as well as what not to do. </p><p>Learn more about Terry Hyde: <br>https://www.counsellingfordancers.com/about/ <br>https://www.instagram.com/counsellingfordancers/ <br>https://www.facebook.com/counsellingfordancers <br>https://www.linkedin.com/in/terry-hyde-ma-mbacp-b68617176/ <br>https://twitter.com/counselingdance </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer Milner at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection.  Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over the world, joins Linda and Jennifer to explore this often-neglected aspect of dancer health, and discusses how hypermobility can bring unique mental health problems of its own. Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He describes the intrinsic link between the mind and the body, and how anxiety can be reframed into excitement.  Terry reveals why it’s important to practice talking to your body, and discusses how friends and loved ones can support a dancer needing emotional help - as well as what not to do.  Learn more about Terry Hyde: https://www.counsellingfordancers.com/about/ https://www.instagram.com/counsellingfordancers/ https://www.facebook.com/counsellingfordancers https://www.linkedin.com/in/terry-hyde-ma-mbacp-b68617176/ https://twitter.com/counselingdance  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection. 

    Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over the world, joins Linda and Jennifer to explore this often-neglected aspect of dancer health, and discusses how hypermobility can bring unique mental health problems of its own. Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He describes the intrinsic link between the mind and the body, and how anxiety can be reframed into excitement. 

    Terry reveals why it’s important to practice talking to your body, and discusses how friends and loved ones can support a dancer needing emotional help - as well as what not to do. 

    Learn more about Terry Hyde: 
    https://www.counsellingfordancers.com/about/ 
    https://www.instagram.com/counsellingfordancers/ 
    https://www.facebook.com/counsellingfordancers 
    https://www.linkedin.com/in/terry-hyde-ma-mbacp-b68617176/ 
    https://twitter.com/counselingdance 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer Milner at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     4757 no     3. Preserving the Hip with Orthopedic Surgeon, Joel Wells, M.D. https://share.transistor.fm/s/ad0cb410 Hypermobility can affect every joint, but perhaps the most complicated one to understand and train is the hip. With a high prevalence of hip injuries in hypermobile dancers and athletes, proper diagnosis and treatment is critical. From hip dysplasia to labral tears, dance science and medicine’s understanding of the hip continues to evolve even as we work to find the most effective ways to treat and strengthen it.  Listen in as Dr. Wells discusses his role as a hip preservationist, why educating a dancer on pathology and proper kinematics is so essential, and how hips are like baseball mitts!  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 12 Mar 2020 02:57:46 -0000 3. Preserving the Hip with Orthopedic Surgeon, Joel Wells, M.D. full 3 Dr. Linda Bluestein <p>Hypermobility can affect every joint, but perhaps the most complicated one to understand and train is the hip. With a high prevalence of hip injuries in hypermobile dancers and athletes, proper diagnosis and treatment is critical. From hip dysplasia to labral tears, dance science and medicine’s understanding of the hip continues to evolve even as we work to find the most effective ways to treat and strengthen it. </p><p>Listen in as Dr. Wells discusses his role as a hip preservationist, why educating a dancer on pathology and proper kinematics is so essential, and how hips are like baseball mitts! </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer Milner at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Hypermobility can affect every joint, but perhaps the most complicated one to understand and train is the hip. With a high prevalence of hip injuries in hypermobile dancers and athletes, proper diagnosis and treatment is critical. From hip dysplasia to labral tears, dance science and medicine’s understanding of the hip continues to evolve even as we work to find the most effective ways to treat and strengthen it.  Listen in as Dr. Wells discusses his role as a hip preservationist, why educating a dancer on pathology and proper kinematics is so essential, and how hips are like baseball mitts!  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Hypermobility can affect every joint, but perhaps the most complicated one to understand and train is the hip. With a high prevalence of hip injuries in hypermobile dancers and athletes, proper diagnosis and treatment is critical. From hip dysplasia to labral tears, dance science and medicine’s understanding of the hip continues to evolve even as we work to find the most effective ways to treat and strengthen it. 

    Listen in as Dr. Wells discusses his role as a hip preservationist, why educating a dancer on pathology and proper kinematics is so essential, and how hips are like baseball mitts! 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: 
    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com
    Instagram: @hypermobilitymd 
    Twitter: @hypermobilityMD 
    Facebook: https://www.facebook.com/hypermobilityMD/ 
    Pinterest: https://www.pinterest.com/hypermobilityMD/ 
    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer Milner at the links below: 
    Website: www.jennifer-milner.com 
    Instagram: @jennifer.milner 
    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     3282 no     Ensuring Longevity: Screening, Strengthening and Supporting with Physiotherapist Moira McCormack (Ep 2) https://share.transistor.fm/s/86948197 In this continuation of our discussion with Moira McCormack, we delve deeper into Moira’s work as a researcher and tireless advocate for dance science and medicine in the studio setting. Moira talks through the basic screening tests used at the start of each season to help define a dancer’s strength and maintenance program for the year, explains what teachers of hypermobile dancers must understand, and reveals that “It’s never too late to build something else into your body. Nothing is insurmountable."  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media:  Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd  Twitter: @hypermobilityMD  Facebook: https://www.facebook.com/hypermobilityMD/  Pinterest: https://www.pinterest.com/hypermobilityMD/  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below:  Website: www.jennifer-milner.com  Instagram: @jennifer.milner  Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Thu, 05 Mar 2020 01:00:00 -0000 2. Ensuring Longevity: Screening, Strengthening and Supporting, with Physiotherapist Moira McCormack full 2 Dr. Linda Bluestein <p>In this continuation of our discussion with Moira McCormack, we delve deeper into Moira’s work as a researcher and tireless advocate for dance science and medicine in the studio setting. Moira talks through the basic screening tests used at the start of each season to help define a dancer’s strength and maintenance program for the year, explains what teachers of hypermobile dancers must understand, and reveals that “It’s never too late to build something else into your body. Nothing is insurmountable." </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer Milner at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> In this continuation of our discussion with Moira McCormack, we delve deeper into Moira’s work as a researcher and tireless advocate for dance science and medicine in the studio setting. Moira talks through the basic screening tests used at the start of each season to help define a dancer’s strength and maintenance program for the year, explains what teachers of hypermobile dancers must understand, and reveals that “It’s never too late to build something else into your body. Nothing is insurmountable."  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media:  Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd  Twitter: @hypermobilityMD  Facebook: https://www.facebook.com/hypermobilityMD/  Pinterest: https://www.pinterest.com/hypermobilityMD/  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below:  Website: www.jennifer-milner.com  Instagram: @jennifer.milner  Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices In this continuation of our discussion with Moira McCormack, we delve deeper into Moira’s work as a researcher and tireless advocate for dance science and medicine in the studio setting. Moira talks through the basic screening tests used at the start of each season to help define a dancer’s strength and maintenance program for the year, explains what teachers of hypermobile dancers must understand, and reveals that “It’s never too late to build something else into your body. Nothing is insurmountable." 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: 

    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com

    Instagram: @hypermobilitymd 

    Twitter: @hypermobilityMD 

    Facebook: https://www.facebook.com/hypermobilityMD/ 

    Pinterest: https://www.pinterest.com/hypermobilityMD/ 

    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer Milner at the links below: 

    Website: www.jennifer-milner.com 

    Instagram: @jennifer.milner 

    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2664 no     Reducing Injury and Increasing Education with Royal Ballet Physiotherapist, Moira McCormack (Ep 1) https://share.transistor.fm/s/afd09b5e Moira’s tireless work with Royal Ballet and the Royal Ballet school have helped build the Royal Ballet into an oft-emulated model of treatment and intervention for ballet dancers. Join us as Moira describes how important a dancer’s early training is - movement patterns, alignment, biomechanics - to increase their career longevity.  Moira lists concrete, basic rules for training a hypermobile body, emphasizing the importance of strength work, patience in training, and the necessity of recovery time. It is not overstating it to say that Moira’s research, work, and advocacy have made it possible for hypermobile dancers to have longer, healthier careers.  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media:  Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd  Twitter: @hypermobilityMD  Facebook: https://www.facebook.com/hypermobilityMD/  Pinterest: https://www.pinterest.com/hypermobilityMD/  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below:  Website: www.jennifer-milner.com  Instagram: @jennifer.milner  Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Wed, 26 Feb 2020 02:59:00 -0000 Reducing Injury and Increasing Education with Royal Ballet Physiotherapist, Moira McCormack full 1 Dr. Linda Bluestein <p>Moira’s tireless work with Royal Ballet and the Royal Ballet school have helped build the Royal Ballet into an oft-emulated model of treatment and intervention for ballet dancers. Join us as Moira describes how important a dancer’s early training is - movement patterns, alignment, biomechanics - to increase their career longevity. </p><p>Moira lists concrete, basic rules for training a hypermobile body, emphasizing the importance of strength work, patience in training, and the necessity of recovery time. It is not overstating it to say that Moira’s research, work, and advocacy have made it possible for hypermobile dancers to have longer, healthier careers. </p><p>Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: <br>Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com<br>Instagram: @hypermobilitymd <br>Twitter: @hypermobilityMD <br>Facebook: https://www.facebook.com/hypermobilityMD/ <br>Pinterest: https://www.pinterest.com/hypermobilityMD/ <br>LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ </p><p>And follow guest co-host Jennifer Milner at the links below: <br>Website: www.jennifer-milner.com <br>Instagram: @jennifer.milner <br>Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ </p> Moira’s tireless work with Royal Ballet and the Royal Ballet school have helped build the Royal Ballet into an oft-emulated model of treatment and intervention for ballet dancers. Join us as Moira describes how important a dancer’s early training is - movement patterns, alignment, biomechanics - to increase their career longevity.  Moira lists concrete, basic rules for training a hypermobile body, emphasizing the importance of strength work, patience in training, and the necessity of recovery time. It is not overstating it to say that Moira’s research, work, and advocacy have made it possible for hypermobile dancers to have longer, healthier careers.  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media:  Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com Instagram: @hypermobilitymd  Twitter: @hypermobilityMD  Facebook: https://www.facebook.com/hypermobilityMD/  Pinterest: https://www.pinterest.com/hypermobilityMD/  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below:  Website: www.jennifer-milner.com  Instagram: @jennifer.milner  Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices Moira’s tireless work with Royal Ballet and the Royal Ballet school have helped build the Royal Ballet into an oft-emulated model of treatment and intervention for ballet dancers. Join us as Moira describes how important a dancer’s early training is - movement patterns, alignment, biomechanics - to increase their career longevity. 

    Moira lists concrete, basic rules for training a hypermobile body, emphasizing the importance of strength work, patience in training, and the necessity of recovery time. It is not overstating it to say that Moira’s research, work, and advocacy have made it possible for hypermobile dancers to have longer, healthier careers. 

    Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: 

    Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.com

    Instagram: @hypermobilitymd 

    Twitter: @hypermobilityMD 

    Facebook: https://www.facebook.com/hypermobilityMD/ 

    Pinterest: https://www.pinterest.com/hypermobilityMD/ 

    LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ 

    And follow guest co-host Jennifer Milner at the links below: 

    Website: www.jennifer-milner.com 

    Instagram: @jennifer.milner 

    Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/ 

    Learn more about your ad choices. Visit megaphone.fm/adchoices

    ]]>     2694 no